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resourCe guide + Jann arden CoPing as a Profile family Caregiver

CAREGIVER RESOURCE GUIDE 2018 3

CAREGI ER

A RESOURCERESOURCE DAY FOR FAMILY GUIDE CAREGIVERS

Publisher Contents Dana Robbins

Words of Support ...... 5 General Manager John Willems 5 Tips for Family Caregivers ...... 6 Regional Director of Advertising Lifestyle Tips for Healthier Eating ...... 8 Anne Beswick Recipe: Lentil and Mushroom Stew ...... 9 Manager of Strategic Partnerships The Future of Medical Cannabis ...... 10 Ronit White Caring for an Elderly Relative at Home ...... 12 Regional Director of Creative Services Stress Management Tips ...... 14 Katherine Porcheron

Pro le: Jann Arden ...... 16 Graphic Designer Melissa DiFelice How to Help Socially Isolated Seniors ...... 20 Editorial Content Sarah Lennox Treat Yourself ...... 22

This Year... Spring Clear! ...... 25 Jann Arden Cover Photo by Alkan Emin Resource Listings ...... 26

The 2018 Caregiver Resource Guide is a specialty magazine published by Metroland Media. BROUGHT TO YOU BY

Copyright 2018. All rights reserved. Any reproduction of this publication in whole or in part must be approved by the publisher. For further information regarding all our products, please call us at 416-493-4400. SPONSORS Mailing Address: Metroland Media 175 Gordon Baker Rd. Toronto, ON M2H 0A2 Person Centered, Community Integrated Home Care for Persons of “Being, Meaning and Community” Come to the Caregiver Show 4 May (Free Admission) to hear Jane Teasdale speak about Mosaic’s award winning model of care and their innovative “The Meaning of Me®” service that addresses important social and emotional needs. MOSAIC’S MODEL OF CARE IS: Community integrated: its resource centres provide fun, educational events and information for all. Person centered: assessment of personal support needs, care planning and high level continuing oversight of care and care standards. We personally introduce caregivers and pay home visits to check up on you. Personhood focused: The Meaning of Me® has three layers of service; one designed to create a lens of communication that addresses the person; another that develops interests and activities with a focus on creative space and personal growth; opportunities for wider community interaction. We collaborate with both for profit and not for profit entities and are supportive of the World Health Organisation’s vision of Healthy Aging and Age-Friendly Cities.

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Being a family caregiver is a balancing its  fth year!) to recognize all that you do the future. Please take this guide home act. Today, almost eight million as caregivers. We have great respect for with you and keep it handy; we created Canadians balance their work and the role you play and hope you will use it with your busy schedule in mind. personal commitments with caregiving this day to learn about the resources, duties for their children, parents, and services and products available to aid Thank you for participating in the friends on a regular basis. in your caregiving needs and have the Caregiver Show. I welcome your opportunity to connect and form bonds feedback and can be reached anytime at While it can feel like walking a tightrope, with other caregivers – building your own [email protected] the compassion, understanding and networking group. e orts of family caregivers enable loved I wish you all the best in your caregiving ones with acute or chronic health issues  e Caregiver Resource Guide is  lled journey. to live with dignity. with articles o ering help and advice Ronit White, especially for caregivers, as well as We created the Caregiver Show (now in resources you may find beneficial in Manager of Strategic Partnerships

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Know the signs of caregiver fatigue. Exhaustion, sleeplessness, anger, and health problems are all signs that you may be taking on too much and need extra support. Reach out to your healthcare provider to seek treatment and contact a support group.

Seek outside support. Ask family and friends for help, whether it’s with cooking meals once a week or babysitting your kids so you have some time to rest and recharge. Community programs and volunteer organizations can o er some respite from caregiving, help with meals and housework, and provide some caregiving support.

Plan for the future. If your loved one has a condition that will get progressively worse, take steps to ensure that they will receive the care they need, now and in the future. Look into assisted living facilities will face gradual losses, and you may or home support services available in also feel strong emotions about losing your community. It’s also important to the person that they used to be. Don’t One of the most make legal and  nancial arrangements be afraid to acknowledge this grief and important things that will best meet your relative’s wishes speak to other family members or friends and needs. who may be experiencing the same thing. you can do on this earth is to let Learn about the condition. Finding out The federal government is working people know they more about whatever is ailing someone on a national dementia strategy that can help you know what to expect and will complement existing initiatives to are not alone. dispel unhelpful myths and stereotypes. promote awareness, reduce stigma and — Shannon L. Advocacy organizations often have great support those a ected and is committed resources for family members, including to helping improve the quality of life for Alder, Author research and support groups. people living with dementia and their caregivers. Grieve your loss. A condition like dementia may mean your loved one –www.newscanada.com THE LIFESTYLE THAT KEEPS ON GIVING

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Lifestyle Tips for Healthier Eating

Being a caregiver can be incredibly busy nutrients and add avour to foods. Opt receive lots of vitamins, nutrients,  bre and the abundance of tasty, tempting for natural fats from avocados, nuts and antioxidants. Aim for at least one fast food options can make sticking to and seeds, and oils like olive, coconut dark green and one orange piece of healthy eating goals challenging. But and axseed. produce every day. maintaining a nutritious and appetizing diet can be easier than you think. Make it a ritual. Research shows that eating together as a family can help you Try a meatless Monday. Avoid foods Make a plan. Take a few minutes on the make better food choices, so try to enjoy that are high in sodium, fat or cholesterol weekend to plan out healthy meals and at least one meal together every day. and go with healthier options with snacks for the upcoming week. Having If varying schedules prevent you from natural ingredients and nutrition – fresh the dishes planned and ingredients eating together, try breakfast together fruit, vegetables or grains. Try a Meatless purchased will encourage you to follow instead of the traditional family dinners. Monday with protein sources like lentils, through on smarter eating and avoid An omelet bar loaded with veggies is a beans and tofu. Reduce your sodium reaching for the vending machine. fun and nutritious way to start your day. intake by seasoning dishes with herbs Find friendly fats. It’s a myth that Eat the rainbow. Enjoying a variety and spices rather than salt. all types of fat are bad for your body. of fruits and vegetables with all the Healthy fats and oils help us absorb colours of the rainbow ensures you –www.newscanada.com CAREGIVER RESOURCE GUIDE 2018 9 Lentil & Mushroom Stew

PREP TIME COOK TIME SERVES 15 MINUTES 70 MINUTES 8 PEOPLE

Finding the time to craft healthy meals isn’t always an easy feat, but it is important. Compile a list of recipes you can make ahead that will keep you and your loved ones away from fast food and processed treats.

Ingredients Directions

2 tbsp salt-free margarine Melt margarine in large saucepot and 1 medium onion, chopped 1cook onion, celery, carrots, zucchini and mushrooms over medium heat, stirring 2 stalks celery, chopped occasionally until vegetables are tender; 2 medium carrots, chopped about 8 minutes. 1 medium zucchini, chopped 250 g cremini mushrooms, sliced Stir in garlic and ground red pepper, stirring frequently for 1 minute. 3 cloves garlic, fi nely chopped 2 1/4 tsp ground red pepper Stir in water, broth, tomatoes and lentils, 2 1/2 cups water 3and bring to a boil over high heat. 2 cups fat-free reduced-sodium vegetable broth Reduce heat to low and simmer covered 1 can diced tomatoes 4until lentils are tender; about 55 1 cup lentils, rinsed and drained minutes. Stir in vinegar. 1 tbsp balsamic vinegar –www.newscanada.com 10 CAREGIVER RESOURCE GUIDE 2018

Many patients come to cannabis with the new legislation and research, The Future of because they are trying to reduce their medical cannabis is also being adapted use of conventional medications for into exciting new products that o er new pain, in ammation, anxiety, seizures ways to experience the bene ts in forms and many other symptoms. Of the many that provide more precise control over Medical undesirable side-e ects conventional dosage and are much more familiar. medications have, one of the most CanniMed has recently released a topical common is heavy intoxication, making cream, is introducing capsules to the many patients unable to function at market, and is developing a  lm that the level they want or need. With the dissolves under your tongue. Cannabis assistance of their medical practitioners and caregivers, patients choose medical In addition, companies like CanniMed cannabis products with varying strengths are already working with pharmacy of THC and CBD in order to treat a chains to train their sta and prepare symptom without becoming intoxicated. for the time when you can pick up your medical cannabis like any other Cannabis products destined for the prescription. At the same time insurers there are more resources than ever to adult-use market serve a different are becoming more accepting of medical help you make an informed decision purpose. ey are typically high in THC, cannabis, making it easier to claim it and about these products, and we’re always with little-to-no CBD. e focus for these reduce your costs. here to help when you need us. products is recreation. ese products will provide some of the medical bene ts, Make no mistake, medical cannabis For more information, visit us at but their  rst purpose is to intoxicate. is here to stay, and is becoming more CanniMed.ca. prevalent as we learn more about this Making medical, more medical. Along amazing plant. For you, as a caregiver, — Cannimed

It’s a new day in Canada for cannabis. Practices (GPP) as the basis for the Canadians of all After a century of prohibition public manufacturing process, and some, such attitude has changed, which in turn as CanniMed, go a step farther by using ages are using has led to legislative changes that will Good Manufacturing Practices (GMP). medical cannabis make it easier for Canadians to access GMP guides the strict standards required cannabis later this year. But what to do by pharmaceutical companies in Canada, to treat dozens of these changes mean for medical patients, and ensures the best, most consistent symptoms under the and caregivers like you? product for our patients. All LPs must test guidance of their their products for microbial and chemical e medical cannabis program remains contaminants, as well as pesticides, and medical practitioners in place. At present the only organizations if any are found a recall may be issued. allowed to legally grow and sell cannabis are Licensed Producers (LPs). Vetted As of this writing, regulations for the memory. Cannabis is rich in compounds by Health Canada and held to strict adult-use industry are not yet  nalized. called cannabinoids, which have a direct guidelines for quality and safety, LPs However the federal government has e ect on our endocannabinoid system. supply all the medical cannabis in been very clear that the existing medical Of the many cannabinoids that have Canada directly to patients. system will remain in place. been discovered, the two that are the best known are THC and CBD. THC is Eliminating risk to patients is at the heart e same plant has di erent uses. Within the substance that makes users “high,” of the Access to Cannabis for Medical our bodies we have a regulatory system whereas CBD is non-psychoactive, Purposes Regulations (ACMPR) that called the endocannabinoid system meaning that it won’t make the patient currently govern LPs. At a minimum, that has control over how we perceive high. In fact, CBD reduces the intoxicating LPs must utilize Good Production things like pain, appetite, mood and e ects of THC. CAREGIVER RESOURCE GUIDE 2018 11

Many patients come to cannabis with the new legislation and research, The Future of because they are trying to reduce their medical cannabis is also being adapted use of conventional medications for into exciting new products that o er new pain, in ammation, anxiety, seizures ways to experience the bene ts in forms and many other symptoms. Of the many that provide more precise control over Medical undesirable side-e ects conventional dosage and are much more familiar. medications have, one of the most CanniMed has recently released a topical common is heavy intoxication, making cream, is introducing capsules to the many patients unable to function at market, and is developing a  lm that the level they want or need. With the dissolves under your tongue. Cannabis assistance of their medical practitioners and caregivers, patients choose medical In addition, companies like CanniMed cannabis products with varying strengths are already working with pharmacy of THC and CBD in order to treat a chains to train their sta and prepare symptom without becoming intoxicated. for the time when you can pick up your medical cannabis like any other Cannabis products destined for the prescription. At the same time insurers there are more resources than ever to adult-use market serve a different are becoming more accepting of medical help you make an informed decision purpose. ey are typically high in THC, cannabis, making it easier to claim it and about these products, and we’re always with little-to-no CBD. e focus for these reduce your costs. here to help when you need us. products is recreation. ese products will provide some of the medical bene ts, Make no mistake, medical cannabis For more information, visit us at but their  rst purpose is to intoxicate. is here to stay, and is becoming more CanniMed.ca. prevalent as we learn more about this Making medical, more medical. Along amazing plant. For you, as a caregiver, — Cannimed

CHOICE It’s a new day in Canada for cannabis. Practices (GPP) as the basis for the Canadians of all CONTROL After a century of prohibition public manufacturing process, and some, such attitude has changed, which in turn as CanniMed, go a step farther by using ages are using has led to legislative changes that will Good Manufacturing Practices (GMP). medical cannabis FLEXIBILITY make it easier for Canadians to access GMP guides the strict standards required cannabis later this year. But what to do by pharmaceutical companies in Canada, to treat dozens of these changes mean for medical patients, and ensures the best, most consistent symptoms under the The Direct Funding Program and caregivers like you? product for our patients. All LPs must test guidance of their allows adults with permanent physical their products for microbial and chemical disabilities to become employers of their e medical cannabis program remains contaminants, as well as pesticides, and medical practitioners own attendants, who assist with activities in place. At present the only organizations if any are found a recall may be issued. of daily living, including dressing, bathing allowed to legally grow and sell cannabis and toileting. are Licensed Producers (LPs). Vetted As of this writing, regulations for the memory. Cannabis is rich in compounds by Health Canada and held to strict adult-use industry are not yet  nalized. called cannabinoids, which have a direct guidelines for quality and safety, LPs However the federal government has e ect on our endocannabinoid system. dfontario.ca supply all the medical cannabis in been very clear that the existing medical Of the many cannabinoids that have 416-599-2458 • 1-800-354-9950 Canada directly to patients. system will remain in place. been discovered, the two that are the best known are THC and CBD. THC is Eliminating risk to patients is at the heart e same plant has di erent uses. Within the substance that makes users “high,” of the Access to Cannabis for Medical our bodies we have a regulatory system whereas CBD is non-psychoactive, Purposes Regulations (ACMPR) that called the endocannabinoid system meaning that it won’t make the patient currently govern LPs. At a minimum, that has control over how we perceive high. In fact, CBD reduces the intoxicating LPs must utilize Good Production things like pain, appetite, mood and e ects of THC. 12 CAREGIVER RESOURCE GUIDE 2018

Caring for an Elderly Relative at Home

with caring for an aging to build an extension on the home or parent at home may want completely renovate what you have to to employ several strategies make the space safe. to make that transition go as smoothly as possible. • Aim for stability. Moving and changing routines can be especially stressful • Talk to the senior about for seniors who are used to their own your options. Making schedules and habits. Transfer furniture decisions together will be and mementos from their home into best for everyone involved. It yours. Encourage seniors to maintain a can be challenging to discuss social schedule and invite friends over. mortality and whether Try to help your loved one keep his or or not elderly parents or her doctors and, if possible, take them relatives can properly care to shop where they have shopped in the for themselves. Broach the past.  ese opportunities will make the subject well in advance of transition to a new home easier. Decisions about providing care for making any plans so you will have some an aging loved one are seldom easy. understanding of how the senior feels • Discuss finances. It’s essential to Various options exist in terms of elder about the situation and what would understand your loved one’s  nancial care, including assisted living facilities make him or her most comfortable. Your situation. Make lists of his or her assets and nursing homes. Seniors who are parents may already have a plan in place. and any insurance policies in his or self-su cient may be able to stay in a her name. Understand which health retirement community or active living • Establish a caregiving budget. Caring procedures are covered and discuss ways building. In other instances, the best for the elderly is expensive. Before a senior to  nance any procedures or medications course of action is to have an elderly can be welcomed into your home, you that are not covered by your loved one’s relative move in with family members. must first determine which financial policy. Ask if your loved one wants you to changes must be made to accommodate manage his or her  nances or when he or Over  million Canadians over the age this person. Will a parent be contributing she may feel this is necessary. Professional of  provided care to a chronically ill or to a portion of the expenses or paying help, such as an attorney, financial disabled friend or loved one, according rent? Is it feasible for you to reduce hours planner or a geriatric care manager, can to a  Statistics Canada study. Care at work to care for this individual? Once make it easier to understand the legalities is defined as helping with feeding, you have the numbers in black and white, and subtleties of these arrangements. bathing, dressing, and other personal you can better assess your situation. care needs, going beyond driving a parent • Make time for yourself. Caring for the to appointments or helping them with • Make physical modi cations. Your elderly can seem like a full-time job, and  nancial matters. home may not be equipped and safe it’s easy to forget yourself in the process. for an elderly resident. You may need to Make time for yourself so your own health Taking care of a senior requires add a private space for your parent or is not sacri ced while you tend to your a profound commitment and can relative, and install night lights, secured loved one. completely disrupt a person’s life, both at railings, grab bars, ramps, a shower chair, home and at work. Men and women faced and anti-slip surfaces. You may need –MS THIS IS ABOUT THE PLAN OF YOUR LIFE.

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It can be challenging to juggle your time Practice self-care. It’s important that can also share schedules, documents and to meet the concurrent needs of children you don’t forget about your own needs  nancials through cloud-based services and aging parents who all require your and wants, and make time for yourself. to facilitate coordinating appointments attention and care. ere are some things Making sure you get enough exercise, and other details. you can do to achieve a better balance of sleep well, and eat healthy foods can go work and caring responsibilities. a long way towards keeping your mind Explore government financial and body up to the task of caring for support. As our population ages, there Learn more about the illness or your family. Create time to do the things is more assistance for Canadians who condition. If you’re supporting a relative and hobbies you enjoy, like reading, are providing care to loved ones through with a chronic illness, or a condition socializing with friends, or taking a walk. like dementia, speak to their doctor or a the Family Caregivers Tax Credit, and healthcare professional to  nd strategies Keep family in the loop. A group Employment Insurance Special Bene ts that can help you care for them. You email chain or online chat group can for those caring for a dying relative or a can also seek out a local support group quickly and efficiently give siblings critically ill child. ese resources can to connect with others who are going and family updates, and make sharing lessen the  nancial strain and give you through the same things; the more you responsibilities easier. is can also free one less thing to worry about. know about the illness, the easier it will up time spent on the phone for something be to cope. more productive or to simply relax. You –www.newscanada.com

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 e  rst ‘tell’ for Joan’s family go, and not be angry all the time. that she might be su ering from Patience and humour are key.” memory loss came one afternoon about eight years ago, when Initial emotions for Arden at the Arden, who lives  yards from beginning of this journey with her mom in a rural area outside her mom were a con ux of anger of , was visiting with her and frustration, but over time sister-in-law at her mom’s home. these feelings have burgeoned “Mom specifically told us that into a deep sense of empathy, ann when my brother called we were awareness and maturity. “It is not to tell him that the cat had such an equalizer,” Arden says. died. She was very explicit about “I realize my mortality is looming Arden it. But when my brother called and I recognize what is important the  rst thing out of my mom’s in life. I also realize that I need to mouth was that the cat had died,” maintain a sense of myself. I’m Arden says. stronger than I thought I was.” Photo courtesy of Jann By Cece M. Scott While there had been signs that mom. “I liken it to cutting a dog’s tail o Music is the magic anecdote for J things were not quite right with Joan, an inch at a time- it’s not easy for the dog Arden, one that lifts her up, inspires her Jann Arden, a quintessential Canadian the family had chalked it up to a garden and it’s not easy for the person cutting and ful lls her. In February of this year, known for her poignant ballads, is a multi- variety kind of forgetfulness, one that the tail o ,” Arden says. she released a new album, ese Are e platinum award-winning artist with  comes with age. Too, Arden’s parents, Days, featuring A Long Goodbye, a song albums and  Top Ten singles. An -time Joan and Derrel, (now deceased), married After several scary hallucinatory written for Joan. winner, Arden is also a Queen’s for  years, tended to cover for each episodes, with Joan imagining people Diamond Jubilee Medal awardee, ( ), other. “ ere’s a type of dance married sitting at her table or at the end of her Guilt, however, is ever present for Arden and an Order of Canada member, ( ). people do who have been together that bed, medication was prescribed to stop when she is touring, but she realizes this Arden’s  concert dates across Canada in long,” Arden says. “I think my mom the delusions. “Some people are opposed is not an emotion her mom would want   were a huge success, as were her co-host was quite bad but we didn’t notice it to medication but I am not,” Arden says. her to feel. “I can just hear her voice,” spots on CTV’s e Social. Meanwhile, in the because my dad was covering for her. Arden says. “Mom would say, ‘Don’t background, Arden was working on a book  ey manipulated us into thinking that As the disease progressed, specialized worry about me, I’m fine. Things are project particularly close to her heart- the everything was copasetic.” caregivers were hired to give Arden and going to be OK.” intimate sharing of her mother Joan’s journey her circle of friends a break from the with Alzheimer’s, as told through diary entries Since then, there have been a dramatic constant day-to-day tasks, a  nancial in Feeding My Mother: Comfort and Laughter series of changes in Joan, ones that have responsibility that Arden personally took I can’t save mom from in the Kitchen as My Mom Lives with Memory stolen life’s ‘how to’ everyday tasks from on. “At some point, caregivers will sink Loss. (Random House Canada,  ). her. “Mom called me to come over and and become a version of themselves that this illness. I don’t show her how to use the phone and I they will not like,” Arden says. “It puts a have a magic wand. Arden, known to her legion of fans for her had to tell her, ‘Mom you are on it.’  at lot on your immune system to be stressed outsized sense of humour and rapier wit, used is the cruel part of the disease, it takes and down for long periods of time. I am — Jann Arden this skill to paint her mom’s story through away the little tasks that are paramount very fortunate that I am able to a ord the a mix of family photos, recipes and text, all to daily living,” Arden says. care; most people can’t.” sprinkled with her signature candidness. Arden’s advice to caregivers dealing with In the initial few years, Alzheimer’s Financial aid from the province, albeit Alzheimer’s is to take whatever help is “I didn’t start out thinking that I was going changed Joan’s personality completely, a small amount, is also helping families available. “It is absolutely paramount to to write a book,” Arden says. “But as my making her combative and argumentative, like Arden’s to keep their loved ones access outside support and help,” Arden journey with mom progressed, (Arden started traits that Arden had never seen in her at home. And while Joan is not happy says. “Reach out into the Alzheimer’s the book in  ), my journals re ected an mom before. “I didn’t know to roll with engaging in outside social activities, community, speak to other caregivers, unfolding of how things changed from week the punches; I kept thinking I could she still recognizes her family and her lean on friends, take time for yourself. It to week with mom.” change things if I was monitoring it. I at-home caregivers. “She calls the people is important to deal with things minute became the memory police.” that come into the house the homeless to minute, hour to hour. You learn as ladies,” Arden says. “I tell her that she is you go; you stop correcting stu . I just From there things got worse. Arden, the helping these ladies. I try to appeal to want Mom to feel that she is not alone sole caregiver, albeit with some support mom’s sense of wanting to help people, and that I love her.” from friends, was never sure what she which she always did.  ere is no use was going to get, or in fact, who she was trying to correct behaviour; you have to As of mid-March, Joan has moved to a Photo by Alkan Emin going to get, when interacting with her  nd a way to di use the situation, let it Memory Care facility. CAREGIVER RESOURCE GUIDE 2018 17

 e  rst ‘tell’ for Joan’s family go, and not be angry all the time. that she might be su ering from Patience and humour are key.” memory loss came one afternoon about eight years ago, when Initial emotions for Arden at the Arden, who lives  yards from beginning of this journey with her mom in a rural area outside her mom were a con ux of anger of Calgary, was visiting with her and frustration, but over time sister-in-law at her mom’s home. these feelings have burgeoned “Mom specifically told us that into a deep sense of empathy, ann when my brother called we were awareness and maturity. “It is not to tell him that the cat had such an equalizer,” Arden says. died. She was very explicit about “I realize my mortality is looming Arden it. But when my brother called and I recognize what is important the  rst thing out of my mom’s in life. I also realize that I need to mouth was that the cat had died,” maintain a sense of myself. I’m Arden says. stronger than I thought I was.” Photo courtesy of Jann By Cece M. Scott While there had been signs that mom. “I liken it to cutting a dog’s tail o Music is the magic anecdote for J things were not quite right with Joan, an inch at a time- it’s not easy for the dog Arden, one that lifts her up, inspires her Jann Arden, a quintessential Canadian the family had chalked it up to a garden and it’s not easy for the person cutting and ful lls her. In February of this year, known for her poignant ballads, is a multi- variety kind of forgetfulness, one that the tail o ,” Arden says. she released a new album, ese Are e platinum award-winning artist with  comes with age. Too, Arden’s parents, Days, featuring A Long Goodbye, a song albums and  Top Ten singles. An -time Joan and Derrel, (now deceased), married After several scary hallucinatory written for Joan. Juno Award winner, Arden is also a Queen’s for  years, tended to cover for each episodes, with Joan imagining people Diamond Jubilee Medal awardee, ( ), other. “ ere’s a type of dance married sitting at her table or at the end of her Guilt, however, is ever present for Arden and an Order of Canada member, ( ). people do who have been together that bed, medication was prescribed to stop when she is touring, but she realizes this Arden’s  concert dates across Canada in long,” Arden says. “I think my mom the delusions. “Some people are opposed is not an emotion her mom would want   were a huge success, as were her co-host was quite bad but we didn’t notice it to medication but I am not,” Arden says. her to feel. “I can just hear her voice,” spots on CTV’s e Social. Meanwhile, in the because my dad was covering for her. Arden says. “Mom would say, ‘Don’t background, Arden was working on a book  ey manipulated us into thinking that As the disease progressed, specialized worry about me, I’m fine. Things are project particularly close to her heart- the everything was copasetic.” caregivers were hired to give Arden and going to be OK.” intimate sharing of her mother Joan’s journey her circle of friends a break from the with Alzheimer’s, as told through diary entries Since then, there have been a dramatic constant day-to-day tasks, a  nancial in Feeding My Mother: Comfort and Laughter series of changes in Joan, ones that have responsibility that Arden personally took I can’t save mom from in the Kitchen as My Mom Lives with Memory stolen life’s ‘how to’ everyday tasks from on. “At some point, caregivers will sink Loss. (Random House Canada,  ). her. “Mom called me to come over and and become a version of themselves that this illness. I don’t show her how to use the phone and I they will not like,” Arden says. “It puts a have a magic wand. Arden, known to her legion of fans for her had to tell her, ‘Mom you are on it.’  at lot on your immune system to be stressed outsized sense of humour and rapier wit, used is the cruel part of the disease, it takes and down for long periods of time. I am — Jann Arden this skill to paint her mom’s story through away the little tasks that are paramount very fortunate that I am able to a ord the a mix of family photos, recipes and text, all to daily living,” Arden says. care; most people can’t.” sprinkled with her signature candidness. Arden’s advice to caregivers dealing with In the initial few years, Alzheimer’s Financial aid from the province, albeit Alzheimer’s is to take whatever help is “I didn’t start out thinking that I was going changed Joan’s personality completely, a small amount, is also helping families available. “It is absolutely paramount to to write a book,” Arden says. “But as my making her combative and argumentative, like Arden’s to keep their loved ones access outside support and help,” Arden journey with mom progressed, (Arden started traits that Arden had never seen in her at home. And while Joan is not happy says. “Reach out into the Alzheimer’s the book in  ), my journals re ected an mom before. “I didn’t know to roll with engaging in outside social activities, community, speak to other caregivers, unfolding of how things changed from week the punches; I kept thinking I could she still recognizes her family and her lean on friends, take time for yourself. It to week with mom.” change things if I was monitoring it. I at-home caregivers. “She calls the people is important to deal with things minute became the memory police.” that come into the house the homeless to minute, hour to hour. You learn as ladies,” Arden says. “I tell her that she is you go; you stop correcting stu . I just From there things got worse. Arden, the helping these ladies. I try to appeal to want Mom to feel that she is not alone sole caregiver, albeit with some support mom’s sense of wanting to help people, and that I love her.” from friends, was never sure what she which she always did.  ere is no use was going to get, or in fact, who she was trying to correct behaviour; you have to As of mid-March, Joan has moved to a Photo by Alkan Emin going to get, when interacting with her  nd a way to di use the situation, let it Memory Care facility. Are memory problems affecting your life? Call us. We’re your one-stop solution. 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20 CAREGIVER RESOURCE GUIDE 2018

HowSocially Isolated to Help Seniors

e elderly population is on the rise • Provide transportation. Lack of helping them overcome their feelings in many countries; advancements in adequate transportation is a main of isolation even further. healthcare and a growing emphasis cause of social isolation among seniors. on healthy lifestyles means people are Voluntary or necessary cessation of • Participate in hobbies together. living longer than ever before. driving makes getting to and from Give seniors a sense of purpose by appointments or even recreational encouraging them to participate in outings more di cult. Where public Age is often accompanied by wisdom, hobbies or activities. Book clubs are but men and women may also find transportation is unavailable or challenging to come by, volunteers or one activity that can interest people of that feelings of isolation, loneliness di erent age groups. and depression will settle in as they caregivers can help shuttle seniors to and from grocery stores, doctors’ o ces grow older. Some detrimental health and any other places they need to go. • Provide meals and companionship. e ects in older adults have been linked Getting out regularly and seeing new Older adults may not be getting all they to social isolation. ese ailments may faces can help seniors overcome feelings need to maintain healthy weights and include increased risk for mortality, of loneliness. rehospitalization, falls, and dementia. bodily functions. Cooking and shopping for healthy foods may be difficult. Physical exercise • Encourage exercise. Provide seniors with healthy meals when Although it can be difficult to see keeps the body  t and improves mental possible, and take the time to share those seniors with diminished physical or health. Seniors can bene t from physical mental capabilities, the rewards of activity because it promotes strong meals. is can foster conversations that interacting and helping seniors can bones and a healthy cardiovascular keep seniors’ minds sharp and may also be immeasurable. ere are plenty of system. In addition, seniors who enrol help prevent social isolation. ways to help seniors avoid isolation and in exercise classes at gyms or local senior continue to live ful lling lives. centres can meet like-minded adults, –MS Autism ADHD Can’t Focus ADD Not reading yet Anxious Speech or Developmental Delay Relieve the anger, frustration and despair Improve Academics, Communication, and Behaviour Develop brain-body balance nature’s way… Intentional Movement! CALL ME 416-708-8714 LET’S TALK! Tanya Mouland Educational Kinesiology Consultant Licensed Brain Gym® Instructor [email protected] www.thesportoflife.ca

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e daily grind can be exhausting. In • Get a full-body massage. Licensed you live. Such a respite can provide a , Statistics Canada reported that massage therapists have the training welcome change. New scenery and a  per cent of Canadians over the age and knowledge to work the kinks out chance to escape the daily grind can of  said most days are “quite a bit” of your muscles and ease aches and e ectively relieve stress. Consider low- or “extremely stressful.” About  per pains. Massage therapy works tension tech accommodations and turn your cent of the population over the age of out of the body and can help release phone or tablet o for a few days.  provided care to family members or feel-good endorphins. A massage can friends with long-term health conditions improve circulation and help reduce • Try relaxing aromatherapy. in  and many reported health and blood pressure. It’s di cult to walk out Aromatherapy is the use of aromatic psychological problems, like depression, of a spa without feeling relaxed. plant extracts and essential oils to because of the intensity of care provided. elicit mental and physical responses. • Schedule a manicure and pedicure Lavender is a relaxing scent that can In small amounts, stress can push a appointment. If you do not have time be used during a massage or in baths person to act and grow, but constant for a full massage, having your hands to induce a sense of calm. Experiment stress can become debilitating and has and feet pampered can be a good with other scents and oils to achieve been linked to a compromised immune substitute. Manicures and pedicures system and other unhealthy side e ects. are not just for ladies, either. Men can the desired result. is is why a number of people resolve indulge and opt for no nail polish. to reduce stress. Many salons offer different types of • Laugh with friends. Plan a friends’ manicures and pedicures, depending night where you can go out for drinks In addition to taking on fewer on personal preference. Spa treatments and conversation or huddle around responsibilities, engaging in some may include warm para n wax or hot the television and watch your favourite activities to promote a relaxed mind stones to further ease pain and enhance comedy. Laughter is often a great and body can help alleviate stress and the pleasure of the experience. medicine for stress, as is the company tension. ough the term “pampering” of other people who can provide some may not appeal to everyone, a day of • Take a retreat. Schedule a trip to a comic relief. pampering might be just what you need resort or even a small hotel that is away to relieve stress and unwind. from the hustle and bustle of where –MS Find a wide range of products and services to enhance your loved one’s comfort and well-being. • Walkers, Rollators & Scooters • Back Care, Supports & Braces • CPAP Products & Consultations • Compression Socks and Stockings • Diagnostic & Therapy • Mastectomy • Bathroom Safety • Ostomy & Incontinence

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This Year... THE DIVA’S TOP 10 SPRING CLEARING TIPS:

FRESHEN ADD SPICE TO Spring Clear! 1UP! 6YOUR LIFE. Out with the stale winter Replace stale spices with air. IN with the fresh fresh ones. Savour the It’s here -- the rst warm days of spring, with crocuses and spring air! fl avour! tulips breaking though the earth, longer days, more sunlight… everything that reminds us of life’s simple pleasures. WASH THE CLEAN THE 2WINDOWS. 7FRIDGE. It’s time to let go of the heaviness of winter and move towards Let the sunshine in! Let go of food that has the incredible lightness of summer! passed its “best before CLEAR date.” Most of us are familiar with a traditional rite of spring – 3CLUTTER. “spring cleaning.” BANISH THE Keep only the things you BOOKS. really treasure. 8  is year, Spring CLEAR!  is task can be done in small Be selective and keep books you will read or blocks of time and, before you know it, you’ve lightened-up! EDIT re-read. 4CLOSETS! — Downsizing Diva Pack away the winter MEDICINE CABINET clothes; bring out the light 9FIRST AID. summery stuff! Dispose of expired medications responsibly. DE-JUNK YOUR 5JUNK DRAWER. BE A GENEROUS Who needs all that useless 10 GIVER! stuff anyway? Donate everything you don’t want, use or need!

Have nothing in your house that you do not know to be useful, or believe to be beautiful. — William Morris

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GENERAL INFORMATION LEARNING DISABILITIES PEDIATRICS / MATERNAL Dietitians of Canada Canada Pension Plan Canadian Virtual Hospice NEWBORN  www.dietitians.ca  www.servicecanada.gc.ca/eng/sc/ Information and support for living Health Canada Learning Disabilities Association of cpp/retirement/canadapension.shtml with life-limiting illness, end of life,  www.hc-sc.gc.ca Ontario About Kids Health Canada Food Guide loss and grief.  www.ldao.ca  www.aboutkidshealth.ca  www.hc-sc.gc.ca/fn-an/food- Employment Insurance (EI)  www.virtualhospice.ca Health Gateway guide-aliment/index-eng.php Compassionate Care Bene ts Find health information and support Holland Bloorview Kids’  www.servicecanada.gc.ca/eng/ei/ BestEndings services for people living with chronic SENIORS CARE Rehabilitation Hospital Eat Right Ontario types/compassionate_care.shtml Making it easier to talk about and plan illnesses.  www.hollandbloorview. Speak to a registered dietitian. for life’s end.  www.healthgateway.ca Canadian Coalition for Seniors ca/ClientFamilyResources/  -- -  Ontario Seniors Secretariat  www.bestendings.com Mental Health FamilyResourceCentre/  www.eatrightontario.ca Features practical resources for Public Health Agency of Canada  www.ccsmh.ca MychildhasAtoZ caregivers and information on tax Quality End-of-life Care Coalition  www.phac-aspc.gc.ca College of Physicians and Surgeons credits and bene ts. A group of over  national Canadian Centre for Activity and Aging of Ontario  www.seniors.gov.on.ca organizations concerned about quality  www.uwo.ca/actage LUPUS AND JUVENILE LUPUS Find family doctors, specialists and end-of-life care for all Canadians. AUTISM SPECTRUM DISORDER surgeons.  www.qelccc.ca Ministry of Health and Long Term Care Lupus Ontario  www.cpso.on.ca Autism Ontario Seniors’ Care : Home, Community  www.lupusontario.org/  www.autismontario.com and Residential Care Services for Telehomecare Seniors Lupus Canada Provides health coaching by I don’t want to live in the kind of world where we  www.health.gov.on.ca/en/public/  www.lupuscanada.org/english/ phone and provides simple-to-use don’t look out for each other. Not just the people that DOWN SYNDROME programs/ltc living/caregivers-professionals.html equipment for the home to enable the remote monitoring of vital signs by a are close to us, but anybody who needs a helping Down Syndrome Association of Toronto specially trained clinician. hand. I can’t change the way anybody else thinks, or  www.dsat.ca CANCER MENTAL HEALTH  -- -  . what they choose to do, but I can do my bit.  www.ontariotelehomecare.ca Canadian Cancer Society Centre for Addiction and Mental Health — Charles de Lint, Writer DIABETES  www.cancer.ca  www.camh.net Canadian Virtual Hospice: Caregiver Video Demonstrations Canadian Diabetes Association Childhood Cancer Canada Foundation Ontario Ministry of Health and Long  www.virtualhospice.ca/gallery  www.diabetes.ca  www. childhoodcancer.ca Term Care: Mental Health Veterans A airs Canada  www.health.gov.on.ca/english/ Ontario MedsCheck  www.vac.gc.ca/clients/ LEGAL public/ program/mentalhealth/  www.health.gov.on.ca/en/ Ontario Disability Support Program EPILEPSY WOUND CARE /CONTINENCE mentalhealth_mn.html pro/programs/drugs/medscheck/ Find out about income and medscheck_original.aspx employment services for people with Epilepsy Ontario Canadian Association of Wound Care Canadian Mental Health Association disabilities. Ontario Government Assistive  www.epilepsyontario.org  www.cawc.net  www.cmha.ca/bins/index.asp      (toll-free) Devices Program  www.mcss.gov.on.ca/en/mcss/  www.health.gov.on.ca/english/ Epilepsy Support Centre Ostomy Wound Management programs/social/odsp public/program/adp/adp_mn.html  www. epilepsysupport.ca  www.o-wm.com Caregiving often calls  e Law Society of Upper Canada us to lean into love we Ontario Ministry of Education  www.lsuc.on.ca/public/a/faqs---  www.edu.gov.on.ca/eng/parents/ lawyer-referral-service/ If you’re not making someone else’s life better, then you’re wasting your time. didn’t know possible. speced.html Your life will become better by making other lives better. — Tia Walker, Author Power of Attorney  www.attorneygeneral.jus.gov. — Will Smith, Actor on.ca/english/family/pgt/poakit.asp CAREGIVER RESOURCE GUIDE 2018 27 RESOURCES RESOURCES GOVERNMENT CAREGIVER END-OF-LIFE MEDICAL CARE/ MEDICAL CARE/ MEDICAL CARE/ PROGRAMS AND RESPONSIBILITIES CARE SYSTEM SYSTEM SYSTEM BENEFITS

GENERAL INFORMATION LEARNING DISABILITIES PEDIATRICS / MATERNAL Dietitians of Canada Canada Pension Plan Canadian Virtual Hospice NEWBORN  www.dietitians.ca  www.servicecanada.gc.ca/eng/sc/ Information and support for living Health Canada Learning Disabilities Association of cpp/retirement/canadapension.shtml with life-limiting illness, end of life,  www.hc-sc.gc.ca Ontario About Kids Health Canada Food Guide loss and grief.  www.ldao.ca  www.aboutkidshealth.ca  www.hc-sc.gc.ca/fn-an/food- Employment Insurance (EI)  www.virtualhospice.ca Health Gateway guide-aliment/index-eng.php Compassionate Care Bene ts Find health information and support Holland Bloorview Kids’  www.servicecanada.gc.ca/eng/ei/ BestEndings services for people living with chronic SENIORS CARE Rehabilitation Hospital Eat Right Ontario types/compassionate_care.shtml Making it easier to talk about and plan illnesses.  www.hollandbloorview. Speak to a registered dietitian. for life’s end.  www.healthgateway.ca Canadian Coalition for Seniors ca/ClientFamilyResources/  -- -  Ontario Seniors Secretariat  www.bestendings.com Mental Health FamilyResourceCentre/  www.eatrightontario.ca Features practical resources for Public Health Agency of Canada  www.ccsmh.ca MychildhasAtoZ caregivers and information on tax Quality End-of-life Care Coalition  www.phac-aspc.gc.ca College of Physicians and Surgeons credits and bene ts. A group of over  national Canadian Centre for Activity and Aging of Ontario  www.seniors.gov.on.ca organizations concerned about quality  www.uwo.ca/actage LUPUS AND JUVENILE LUPUS Find family doctors, specialists and end-of-life care for all Canadians. AUTISM SPECTRUM DISORDER surgeons.  www.qelccc.ca Ministry of Health and Long Term Care Lupus Ontario  www.cpso.on.ca Autism Ontario Seniors’ Care : Home, Community  www.lupusontario.org/  www.autismontario.com and Residential Care Services for Telehomecare Seniors Lupus Canada Provides health coaching by I don’t want to live in the kind of world where we  www.health.gov.on.ca/en/public/  www.lupuscanada.org/english/ phone and provides simple-to-use don’t look out for each other. Not just the people that DOWN SYNDROME programs/ltc living/caregivers-professionals.html equipment for the home to enable the remote monitoring of vital signs by a are close to us, but anybody who needs a helping Down Syndrome Association of Toronto specially trained clinician. hand. I can’t change the way anybody else thinks, or  www.dsat.ca CANCER MENTAL HEALTH  -- -  . what they choose to do, but I can do my bit.  www.ontariotelehomecare.ca Canadian Cancer Society Centre for Addiction and Mental Health — Charles de Lint, Writer DIABETES  www.cancer.ca  www.camh.net Canadian Virtual Hospice: Caregiver Video Demonstrations Canadian Diabetes Association Childhood Cancer Canada Foundation Ontario Ministry of Health and Long  www.virtualhospice.ca/gallery  www.diabetes.ca  www. childhoodcancer.ca Term Care: Mental Health Veterans A airs Canada  www.health.gov.on.ca/english/ Ontario MedsCheck  www.vac.gc.ca/clients/ LEGAL public/ program/mentalhealth/  www.health.gov.on.ca/en/ Ontario Disability Support Program EPILEPSY WOUND CARE /CONTINENCE mentalhealth_mn.html pro/programs/drugs/medscheck/ Find out about income and medscheck_original.aspx employment services for people with Epilepsy Ontario Canadian Association of Wound Care Canadian Mental Health Association disabilities. Ontario Government Assistive  www.epilepsyontario.org  www.cawc.net  www.cmha.ca/bins/index.asp      (toll-free) Devices Program  www.mcss.gov.on.ca/en/mcss/  www.health.gov.on.ca/english/ Epilepsy Support Centre Ostomy Wound Management programs/social/odsp public/program/adp/adp_mn.html  www. epilepsysupport.ca  www.o-wm.com Caregiving often calls  e Law Society of Upper Canada us to lean into love we Ontario Ministry of Education  www.lsuc.on.ca/public/a/faqs---  www.edu.gov.on.ca/eng/parents/ lawyer-referral-service/ If you’re not making someone else’s life better, then you’re wasting your time. didn’t know possible. speced.html Your life will become better by making other lives better. — Tia Walker, Author Power of Attorney  www.attorneygeneral.jus.gov. — Will Smith, Actor on.ca/english/family/pgt/poakit.asp 28 CAREGIVER RESOURCE GUIDE 2018 RESOURCES CAREGIVER CAREGIVER CAREGIVER SUPPORT SUPPORT SUPPORT

Family Service Association of Toronto Alzheimer Society of Canada: Ontario Caregiver Coalition Provides social work services to older Support Lists municipal, provincial, and people and caregivers. eir work With services right across Canada, federal resources for caregivers, includes counselling, group work, the Alzheimer Society supports as well as caregiver advocacy advocacy, training and educational people with dementia, family organizations. One example is sessions on a variety of topics such members, caregivers, and health-care advising people in Ontario to call as aging and memory loss, anger professionals. “,” which provides information and guilt, how to access community  www.alzheimer.ca/en/We-can- about services in our region. resources, abuse of older adults, etc. help/Support?gclid=COuYaKSjrYCFe  www.ontariocaregivercoalition.ca  -- yPPAodDiAAXA  www.fsatoronto.com/programs/ seniors.html CANES Home Support Services, Caregiver Support No one is useless Family Caregivers’ Support Network  -- ext.  in this world A service which aims to provide  www.canes.on.ca/services/ a coordinating body of caregiver caregiver-support-counselling who lightens the services for the public and to use  [email protected] burdens of another. community input, to identify and  ll areas of support identi ed by Ontario Community Support — Charles Dickens, caregivers Association Writer  ---  www.ocsa.on.ca Maintains a peer support telephone  [email protected] line for caregivers of seniors which operates Tues/Wed/ urs - pm. Community Home Assistance to Canadian Caregiver Coalition Seniors (CHATS) e Canadian Caregiver Coalition A nationally-recognized organization is the national body representing that delivers a continuum of services and promoting the voice, needs and to meet the changing needs of more interests of family caregivers with than , York Region seniors and all levels of government, and the family caregivers each year. community through: Advocacy and  -- or leadership, Research and education  --- and Information, communication and  www.chats.on.ca resource development.  www.ccc-ccan.ca/index.php e Caregiver Network Canada’s largest online learning Caring for Caregivers Resource Centre network supporting family caregivers Search for caregiver support and hosts free educational events in support programs by province or partnership with associations across territory. the country.  www.caringforcaregivers.ca  www.thecaregivernetwork.ca  [email protected] Canadian Mental Health Association - Coping with Stress  www.cmha.ca/data//rec_ docs/_CMHA_coping_with_stress_ EN.pdf H O M E S U P P O R T | PATIE NT T R A N S P O R TATIO N | S ENIOR C A R E

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• Personal Support • Stretcher Transfer Services • Drop-In Companions • Nursing • Wheelchair Transfer Services • Driver Companions • Foot Care • Paramedic Transfer Services • Overnight/Live-in Assistance

TORONTO 416.964.0322 PEEL 905.272.2271 1.866.527.9191 1.844.422.7399 YORK 905.771.2766

W ork i ng t o g e t h er t o a d v a n c e h e a l t h c a r e . The Caregiver Show is a special day to inform family caregivers about resource opportunities, a chance to get to know other family caregivers and to simply spend a unique day of rest and special relaxation. For more resources and information about our upcoming events visit www.caregivershow.ca We have expanded to over 18 STORES in GTA! Mississauga Scarborough East Scarborough Dixie & Dundas Parkway Mall Lawrence Ave E & 905-361-1020 416-510-8576 Markham Rd. Brampton South Scarborough 416-289-0808 Hwy 410 & Queen St. Eglinton Town Centre Oakville 905-457-6565 905-750-7979 North Service Rd. Etobicoke Pickering West & Droval Dr. Islington & Queensway Brock Rd. & Kingston 905-815-1118 416-259-5197 905-239-7922 Aurora Danforth Whitby 14760 Yonge Street Danforth & Carlaw Dundas & Thickson Rd. Unit 3-4 416-465-9998 905-444-9500 Stock Yards Richmond Hill Oakville 1980 St. Clair Ave. W Yonge & Elgin Mills Hyde Park Gate & Bristol Cir Unit C109 905-884-8771 905-829-0999 416-902-7750 North York Burlington Bathurst & Sheppard Fairview St. & Commerce Ct 416-398-2444 905-639-7580 Markham Leaside McCowan & Hwy 7 Laird drive, Leaside Village 905-209-7474 (416) 422-0505 Your life. Your move.

The Diva can help you... downsize, de-clutter, organize, sell, donate, dispose, pack, move, unpack and settle into your new home. We also help executors clear estates.

Call Gail Shields or Karen Shinn for your No-cost, In-Home Assessment!* *In areas served by 416-757-0319 Downsizing Diva

Downsizing + Moving Specialists for Seniors

Mention this Caregiver Show ad to receive a 10% discount on your first Diva work session!** **Must be scheduled before June 1, 2018