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2021 EDITION AUTISM SPECTRUM DISORDER QUALITY HEALTH RELATED INFORMATION CAREFULLY SELECTED BY YOUR LIBRARIES ABOUT COORDINATION – QUEBEC PUBLIC Biblio-Santé is a program of the Quebec Public Library LIBRARY ASSOCIATION Association. The ABPQ is made up of more than 179 member Clémence Tremblay-Lebeau, Project manager municipalities and corporations, for a total of over BIBLIOGRAPHIC RESEARCH 317 autonomous libraries. Biblio-Aidants is available in more than 780 participating public libraries as well as Gabrielle C. Beaulieu, Project manager Audrey Scott, Intern librarian associated health libraries throughout Quebec. Visit our Clémence Tremblay-Lebeau, Project manager website to see if your library participates in the program. CONTENT REVIEW AND EDITING ACKNOWLEDGMENTS Sandra Cliche-Galarza, Intern librarian Biblio-Santé is an initiative of the Charlemagne, L’Assomption Fannie Labonté, Member services and events coordinator and Repentigny libraries that was started under the name Clémence Tremblay-Lebeau, Project manager Biblio-Aidants. The Quebec Public Library Association would like to thank these three cities for allowing it to extend the LAYOUT AND DESIGN program to the rest of Quebec by transferring the copyright. Steve Poutré DGA VISIT OUR WEBSITE You will find all of the Biblio-Santé booklets and additional information. bibliosante.ca The information provided does not replace a diagnosis or medical examination by a physician or qualified health professional. The content of this booklet was verified in the spring of 2021 and will be updated on an annual basis. The slogan Better informed to live better.© is registered with the Canadian Copyright Registry. © 2021 Association des bibliothèques publiques du Québec Legal Deposit – Bibliothèque et Archives nationales du Québec, 2021 ISBN 978-2-925031-70-3 Association des bibliothèques publiques du Québec 1453, rue Beaubien Est, bureau 215, Montréal (Québec) H2G 3C6 [email protected] | www.abpq.ca TABLE OF CONTENT RESOURCE DIRECTORY ORGANIZATIONS AND ASSOCIATIONS 7 INTERNET RESOURCES 10 HEALTH INFORMATION PORTALS 15 HEALTH DATABASES 16 Open access databases 16 Databases with access restricted to subscribers 16 READING SUGGESTIONS NON-FICTION 19 General works 19 Accompaniment of a family member or friend 25 Love and sexuality 30 Autism and the COVID-19 pandemic 32 LIFE STORIES, BIOGRAPHIES AND TESTIMONIALS 33 NOVELS 36 COMICS 38 YOUTH LITERATURE 39 FILM, SERIES AND PROGRAM SUGGESTIONS FICTION 55 DOCUMENTARIES 58 TAKING PART IN ONE’S HEALTH CARE ORGANIZATIONS AND ASSOCIATIONS 65 Legal information 65 INTERNET RESOURCES 68 General works 68 Legal information 73 READING SUGGESTIONS 74 AUTISM SPECTRUM DISORDER 4 INTRODUCTION HOW DO WE SELECT THE INFORMATION? Each document for inclusion in the Biblio-Santé thematic booklets is evaluated with impartiality, based on Librarianship practices in place in public libraries, using various general selection criteria. First, the booklets are carefully designed to primarily meet the needs and interests of health system users and caregivers. Every title is evaluated according to relevance and quality of its content for the general public, in the Quebec context. If of equal value, Quebec materials are always preferred. The credibility and reputation of the author, creator, illustrator, publisher or producer are also of great importance. Furthermore, special attention is given to the timeliness and long-term relevance of the subject as well as the accuracy of the information. With regard to documentaries, works by health professionals (doctors, nurses, occupational therapists, psychologists, etc.) are given preference. However, titles based on lay or experiential knowledge are not rejected outright, especially those involving support by a caregiver. Finally, each thematic booklet is considered as a whole in order to respect the diversity of the topics covered and allow for a balanced presentation of viewpoints. For more information on the selection criteria for Biblio-Santé, please visit bibliosante.ca/criteria CAREGIVERS BOOKLET This booklet is complementary to all booklets of the Biblio-Santé Program. It highlights useful resources to support caregivers. AÎNÉS ET DÉFICIENCE VIEILLISSEMENT CANCER INTELLECTUELLE DEUIL INCAPACITÉS MALADIE MALADIE DIABÈTE PHYSIQUES D’ALZHEIMER DE PARKINSON MALADIES MALADIES SANTÉ SCLÉROSE DU CŒUR PULMONAIRES MENTALE EN PLAQUES TROUBLES SOINS DE DU SPECTRE FIN DE VIE DE L’AUTISME OTHER BOOKLETS AVAILABLE ALZHEIMER’S AUTISM SPECTRUM DISEASE DISORDER BEREAVEMENT CANCER END-OF-LIFE HEART DISEASE INTELLECTUAL DIABETES CARE AND STROKE DISABILITY MENTAL MULTIPLE PARKINSON’S PHYSICAL HEALTH SCLEROSIS DISEASE DISABILITY PULMONARY SENIORS DISEASE AND AGING RESOURCE DIRECTORY BIBLIOSANTE.CA AUTISM SPECTRUM DISORDER | RESOURCE DIRECTORY 7 ORGANIZATIONS AND ASSOCIATIONS ORGANIZATIONS AND ASSOCIATIONS AUTISM CANADA Toll-free 1 800 983-1795 Website http://autismcanada.org Autism Canada was created in 2015 by the merger of two organizations: Autism Society Canada (ASC) and Autism Canada Foundation (ACF). The mission of Autism Canada is to provide support to Canadians with autism and their families, and to raise public awareness. The organization website offers information about diagnosis, screening and treatments. AUTISM SPEAKS CANADA Toll free 1 888 362-6227 Website www.autismspeaks.ca Autism Speaks Canada is an organization dedicated to research and to defending the rights of people with autism. The website offers information and news about autism. Under the Science, Services and Supports tab, you will find a number of guides and links to resources and toolkits to accompany you on a daily basis. CANADIAN THERAPEUTIC RIDING ASSOCIATION (CANTRA) Website http://cantra.ca/en/ The Canadian Therapeutic Riding Association promotes therapeutic horse riding. The website provides information on the benefits of equine therapy (therapy with horses). Find a centre https://cantra.ca/en/member-centres Find a centre member of the Association. AUTISM SPECTRUM DISORDER | RESOURCE DIRECTORY 8 ORGANIZATIONS AND ASSOCIATIONS GOLD CENTRE Phone 514 345-8330 Website www.goldlearningcentre.com The Gold Centre is a non-profit organization supported by the Miriam Foundation with a mission focused on development of services, research and knowledge transfer, as well as various programs to help people with autism spectrum disorders and developmental disabilities. The Centre offers training, courses, programs and conferences. It also offers the MateriaTech service, whereby members can borrow games, toys and teaching tools. L’APPUI POUR LES PROCHES AIDANTS Caregiver support (toll free) 1 855 852-7784 Website www.lappui.org/en The 17 regional Appui offices offer a professional helpline as well as support and reference services tailored to the needs of caregivers serving seniors. Each region provides information, training and respite services. The goal of the Caregiver Support hotline is to provide caregiver support, help you through the different steps, and offer guidance on resources available in your community. The website also includes a directory in which you can search by region and type of need required (respite, psychosocial support, etc.). LIONS FOUNDATION OF CANADA DOG GUIDES Toll free 1 800 768-3030 Website www.dogguides.com/index.html The Foundation provides autistic children from 3 to 18 years old residing in Canada the opportunity to benefit from the services of a dog guide. Information on the program is available on the Foundation’s website. MIRA FOUNDATION – DOG FOR CHILDREN WITH ASD Phone 450 795-3725 Website www.mira.ca/en/programs/guide-dog-kids-asd The MIRA Foundation provides families with a child presenting autism spectrum disorder with the opportunity to benefit from the services of a companion dog. This program was implemented after years of extensive research on the impact of integrating these dogs into families. BIBLIOSANTE.CA AUTISM SPECTRUM DISORDER | RESOURCE DIRECTORY 9 ORGANIZATIONS AND ASSOCIATIONS OFFICE DES PERSONNES HANDICAPÉES DU QUÉBEC Toll free 1 800 567-1465 Website www.ophq.gouv.qc.ca The Office des personnes handicapées du Québec provides support, advice and assistance to people with disabilities and their families. It publishes information brochures for family caregivers that can be downloaded in the “Publications” section of the website. Website in French. REGROUPEMENT DES AIDANTS NATURELS DU QUÉBEC (RANQ) Phone 514 524-1959 Website www.ranq.qc.ca/en The Regroupement des aidants naturels du Québec (RANQ) includes about 111 organizations and associations providing direct services to Quebec caregivers: volunteer centres, caregivers regional groups, etc. A complete list of organizations by region can be found on the website of the Regroupement. AUTISM SPECTRUM DISORDER | RESOURCE DIRECTORY 10 INTERNET RESOURCES INTERNET RESOURCES A few tips for critically assessing information found on the Internet THE SOURCE OF THE INFORMATION (AUTHOR OR AUTHORS) • Who created the site? • Is it possible to obtain information about the author or the owner of the site? • Is it a government or university site or one belonging to a recognized organization? THE QUALITY OF THE INFORMATION SOURCE • What is the objective (to inform or sell)? • Are the sources referenced? • Are there links to similar sources (to verify the accuracy and objectivity of the information)? • How frequently is the information updated? Keep an eye open! Information is shared very quickly, and false news travel just as fast. We should not always rely on content shared online,
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