sign in sign up
<<
Home , Lymphoepithelioma, Mastocytoma, Syringoma

Example Registry Reportable List

This list provides example documentation of all conditions a cancer registry may consider reportable depending on the organizations the registry reports its data to. The reportable list for each cancer registry may vary. - Adapted from: NAACCR Series IV: Cancer Case Ascertainment Procedure Guidelines for Cancer Registries. - It is structured alphabetically by the main histologic term. - Qualifiers and/or adjectives associated with the main term are included only if needed to specify when the condition is reportable. - An asterisk (*) to the right of a term denotes conditions not reportable when arising from skin except at a mucoepidermoid site as defined under Exclusions below. - The abbreviation “NOS” means “Not Otherwise Specified.”

Determining Reportable Conditions Using Histologic Terms - Conditions are to be reported if the diagnosis includes the terms cancer, , malignant, and lymphoma. - Most and are reportable except as noted as exclusions on the listing. - Other reportable conditions not containing these terms (i.e., refractory , stromal endometriosis, Ewing tumor, carcinofibroma) also are included in this listing.

Determining Reportable Conditions Using ICD-O Behavior Codes - All cases with a behavior code of /2 (in situ) or /3 (malignant) in the International Classification of Diseases for (ICD-O), are reportable for all sites. - In addition, juvenile or pilocytic astrocytoma, listed as 9421/1 in ICD-O-3 is reportable using a behavior code of /3. - Non-malignant primary intracranial and central nervous system tumors diagnosed on or after January 1, 2004, with an ICD-O-3 behavior code of 0 or 1 are required for the following sites: meninges (C70._), brain (C71._), spinal cord, cranial nerves, and other parts of central nervous system (C72._), pituitary (C75.1), craniopharyngeal duct (C75.2) and pineal gland (C75.3).

Note: If a pathologist verifies an ICD-O behavior code of /0 (benign) or /1 (uncertain) as “in situ” or “malignant,” these cases are reportable.

Exclusions Conditions are not to be reported if the diagnosis includes: Carcinoma in situ (CIS) of the cervix and intraepithelial neoplasia grade III (8077/2) of the cervix (CIN III). Prostate (PIN III), vulva (VIN III), vagina (VAIN III), and anus (AIN III) are not required by CoC. Squamous and basal cell (8000-8110) primary to the skin (C44._) as of 1/1/2003: • Neoplasms, malignant, NOS of the skin (C44.0-C44.9) • Epithelial of the skin (C44.0-C44.9) • Squamous cell carcinomas of the skin (C44.0-C44.9) • Basal cell carcinomas of the skin (C44.0-C44.9)

Note: The above are reportable for squamous and basal cell cancers originating in mucoepidermoid sites: lip, anus, vulva, vagina, penis or scrotum (ICD-O codes C00.0-C00.9, C21.0, C51.0-C51.9, C52.9, C60.0-60.9, and C63.2).

Changes to December 2000 List of Abbreviated Reportable Conditions: • Reportable conditions from both the International Classification of Diseases for Oncology, Second Edition (ICD-O- 2) and the Third Edition (ICD-O-3) are included in the listing. • Newly reportable conditions and terms with behavior changed from /1 (borderline) in ICD-O-2 to /3 (malignant) in ICD-O-3 are identified in bold print. These conditions are reportable only when diagnosed on or after 1/1/2001. • Several terms changed behavior from /3 (malignant) in ICD-O-2 to /1 (borderline) in ICD-O-3. These conditions are reportable only when diagnosed prior to January 1, 2001, and are identified in [brackets and italics]. • New terms and synonyms for existing ICD-O codes were added.

AHIMA Cancer Registry Management Program March 2010

-A- (dermoid with malignant transformation only or dermoid with secondary tumor) Adamantinoma (long bones, malignant, tibial only) Cystadenocarcinofibroma Adenocarcinofibroma Cystadenofibroma (malignant endometrioid only) [ (diagnosis date prior to January 1, 2001); Adenofibroma (malignant endometrioid only) (mucinous, borderline malignancy ( bronchial and cylindroid bronchial papillary, borderline malignancy only) papillary mucinous, borderline malignancy Adenosarcoma papillary pseudomucinous, borderline AIN III (anal intraepithelial neoplasia, grade III) malignancy papillary serous, borderline Ameloblastoma (malignant only) malignancy pseudomucinous, borderline Androblastoma (malignant only) malignancy serous, borderline malignancy only)] Anemia, refractory Cystosarcoma phyllodes (malignant only) Angioendotheliomatosis Cytopenia, refractory with multilineage dysplasia Angiomyosarcoma Angiosarcoma -D- Argentaffinoma (malignant only) Arrhenoblastoma (malignant only) Dermatofibrosarcoma Astroblastoma Diktyoma (exclude benign) Astrocytoma (exclude subependymal and desmoplastic DIN III (ductal intraepithelial neoplasia, grade III) infantile) Disease (include only: Astroglioma alpha heavy chain Bowen* -B- Di Guglielmo Franklin Blastoma* gamma heavy chain Heavy chain NOS -C- Hodgkin immunoproliferative [NOS, small intestinal only] Cancer* Letterer-Siwe Carcinoid (exclude tumor of appendix, strumal, , systemic tissue argentaffin tumor NOS, Mu heavy chain enterochromaffin-like cell NOS, and tubular) Myeloproliferative, chronic, NOS Carcinofibroma Paget* [exclude of bone] Carcinoma* Sezary) Carcinomatosis* Disorder, myeloproliferative, chronic Disorder, primary cutaneous CD30+ T-cell CASTLE (Carcinoma showing -like element) lymphoproliferative Chloroma Dysgerminoma Chondroblastoma (malignant only) -E- Chondrosarcoma Chordoma Ectomesenchymoma Choriocarcinoma Endometriosis, stromal Chorioepithelioma Enteroglucagonoma (malignant only) Chorionepithelioma Ependymoblastoma Class IV cytology Ependymoma (exclude myxopapillary) Class V cytology Epithelioma* (NOS, basal cell, malignant, and squamous cell only) CPNET (central primitive neuroectodermal, NOS) Erythremia (acute and chronic only) (exclude eccrine dermal, and skin) Erythroleukemia AHIMA Cancer Registry Management Program March 2010 Erythroplasia, Queyrat* -I- Esthesioneuroblastoma Esthesioneurocytoma Immunocytoma Esthesioneuroepithelioma (malignant only)

-F- -J- -K- Fibrochondrosarcoma Fibrodentinosarcoma -L- Fibroepithelioma, of Pinkus type or NOS* Fibroliposarcoma LCIS, NOS ( in situ) Fibromyxosarcoma Fibro-odontosarcoma Lentigo maligna (exclude granular lymphocytic) Fibroxanthoma (malignant only) (exclude well differentiated liposarcoma, -G- superficial) LN2 (of breast also called lobular neoplasia, grade 2 only) Ganglioglioma (anaplastic) Lymphangioendothelioma (malignant only) Ganglioneuroblastoma Lymphangiosarcoma (malignant only) Lymphoblastoma Gemistocytoma * Germinoma Lymphoma GIST-Gastrointestinal stromal tumor Lymphosarcoma (malignant only) Glioblastoma -M- Glioma (exclude nasal and subependymal) Gliomatosis cerebri Macroglobulinemia, Waldenstrom Gliosarcoma Malignancy* Glomangiosarcoma Malignant* (malignant only) Mastocytoma (malignant only) Granuloma (Hodgkin only) (malignant only) Medulloblastoma -H- Medulloepithelioma Medullomyoblastoma Hemangioendothelioma (malignant only) Melanoma (exclude juvenile) Hemangiopericytoma (malignant only) Melanomatosis, meningeal Hemangiosarcoma Melanosis (precancerous only) Meningioma (malignant, anaplastic, papillary, or Hepatocarcinoma rhabdoid only) Hepatocholangiocarcinoma Mesenchymoma (malignant only) Hepatoma (exclude benign) Mesonephroma (exclude benign) (exclude benign and cystic) (malignant only) Metaplasia, agnogenic myeloid (malignant fibrous only) Microglioma (malignant, and acute progressive X only) MPNST, NOS (malignant peripheral nerve sheath Histiocytosis, Langerhans cell, disseminated or tumor) generalized Mycosis fungoides Hutchinson melanotic freckle (melanoma In situ only) Myelofibrosis (acute, chronic idiopathic, with myeloid Hypernephroma metaplasia or as a result of myeloproliferative disease only)

AHIMA Cancer Registry Management Program March 2010 Myeloma Papulosis, lymphomatoid Myelomatosis Paraganglioma (malignant only) Myelosclerosis (megakaryocytic, acute, malignant or with Paragranuloma, Hodgkin myeloid metaplasia) Perineural MPNST Myelosis Perineurioma (malignant only) Myoblastoma (malignant granular cell only) Pheochromoblastoma Myoepithelioma (malignant only) Pheochromocytoma (malignant only) Pilomatrixoma* (malignant only) Myosis, stromal NOS or endolymphatic stromal Pineoblastoma Myxoliposarcoma Plasmacytoma PNET (primitive neuroectodermal tumor) Pneumoblastoma -N- Polycythemia (proliferative, rubra vera, or vera) Polyembryoma Neoplasia, ductal intraepithelial, grade 3 Polyposis (malignant lymphomatous only) (of breast, also called DIN III) Porocarcinoma Neoplasia, intratubular germ cell Poroma, eccrine (malignant only) Neoplasia, lobular, grade 2 of breast only PPNET (peripheral primitive neuroectodermal tumor) (also called LN2) Preleukemia Neoplasia, squamous intraepithelial, grade 3 (of anus, vulva and vagina only- also called, AIN III, VIN III and VAIN III) (check with your state) -Q- , malignant* Nephroblastoma Queyrat erythroplasia* Nephroma (exclude mesoblastic) Neurilemmoma (malignant only) -R- Neurilemmosarcoma Neuroblastoma Reticuloendotheliosis Neurocytoma, olfactory Reticulosarcoma Neuroepithelioma Reticulosis (histiocytic medullary, malignant, pagetoid, Neurofibrosarcoma and polymorphic only) Neurosarcoma Retinoblastoma Nevus (malignant blue only) Rhabdosarcoma -O- -S- Odontosarcoma Oligoastrocytoma, mixed (exclude well differentiated liposarcoma, Oligodendroblastoma superficial) Oligodendroglioma Sarcomatosis (meningeal only) Orchioblastoma Schwannoma (malignant only) Osteochondrosarcoma Seminoma Osteoclastoma (malignant only) SETTLE (spindle epithelial tumor with thymus-like Osteofibrosarcoma element) Osteosarcoma (malignant only) Spermatocytoma -P- (malignant only) Spongioblastoma (polar or malignant only) Spongioneuroblastoma Panmyelosis, acute only Stromatosis, endometrial , choroid plexus (anaplastic and malignant only) Struma (malignant ovarii and Wuchernde Langhans only)

AHIMA Cancer Registry Management Program March 2010 Sympathicoblastoma Tumor (continued): Syndrome, granulosa cell (malignant or sarcomatoid only) 5q deletion with Grawitz Hypereosinophilic interstitial cell (malignant only) Myelodysplastic intravascular bronchial alveolar NOS Klatskin with 5q deletion syndrome Krukenberg therapy-related, NOS Leydig cell (malignant only) therapy or alkylating agent related malignant* (any type) therapy-related, epidopophyllotoxin related mast cell (malignant only) Preleukemic Merkel cell Sezary mesenchymal (malignant only) Synovioma (NOS and malignant only) mesodermal, mixed chondroid, (malignant only) metastatic* mixed pineal -T- mixed salivary gland type (malignant only) [mucinous, of low malignant potential; Teratoblastoma, malignant diagnosis date prior to January 1, 2001] Teratocarcinoma mucocarcinoid Teratoma (embryonal, immature, malignant, and with Mullerian mixed malignant transformation only) neuroectodermal (exclude melanotic) Thecoma (malignant only) nonencapsulating sclerosing Thrombocythemia (essential, essential hemorrhagic, odontogenic (malignant only) idiopathic, or idiopathic hemorrhagic) olfactory, neurogenic (malignant or type C only) Pancoast Tumor (include only: [papillary mucinous, of low malignant potential; adenocarcinoid diagnosis date prior toJanuary 1, 2001] adrenal cortical (malignant only) [papillary serous, of low malignant potential; alpha cell (malignant only) diagnosis date prior toJanuary 1, 2001] Askin peripheral neuroectodermal or Bednar peripheral primitive beta cell (malignant only) neuroectodermal, NOS Brenner (malignant only) peripheral nerve sheath (malignant only) Burkitt phyllodes (malignant only) carcinoid, NOS (except of appendix) pineal parenchymal of intermediate differentiation carcinoid (malignant only) Pinkus* desmoplastic small round cell plasma cell embolus* polyvesicular vitelline endodermal sinus primitive neuroectodermal epithelial* (malignant only) rhabdoid, NOS Ewing rhabdoid/teratoid, atypical fibrous, solitary (malignant only) round cell, desmoplastic, small follicular dendritic cell Schminke fusiform cell type* (malignant only) secondary* G cell (malignant only) [serous, NOS, of low malignant potential gastrin cell (malignant only) serous, papillary, of low malignant gastrointestinal stromal (malignant only) potential; diagnosis date prior to germ cell January 1, 2001] giant cell (malignant only) Sertoli-Leydig cell (poorly differentiated, with glomus (malignant only) heterologous elements, sarcomatoid granular cell (malignant only) (malignant only)

AHIMA Cancer Registry Management Program March 2010 Tumor (continued): sinus, endodermal small cell type* (malignant only) (malignant only) spindle cell type* (malignant only) spindle epithelial with thymus-like element or thymus-like differentiation steroid cell (malignant only) stromal (gastrointestinal, malignant) (malignant only) teratoid/rhabdoid, atypical transitional pineal triton, malignant trophoblastic, epithelioid unclassified (malignant only) vitelline, polyvesicular Wilms yolk sac Typical carcinoid

-U-

Ulcer, rodent* Unclassified (malignant only) Unknown primary site, pseudomyxoma peritonei with (C80.9)

-V-

VAIN III (vaginal intraepithelial neoplasia grade 3) VIN III (vulvar intraepithelial neoplasia, grade 3) Vipoma (malignant only) Vitelline tumor polyvesicular

-W-

Waldenstrom macroglobulinemia Warty carcinoma Wilms tumor

-X-

Xanthoastrocytoma, pleomorphic

-Y-

Yolk sac tumor

-Z-

AHIMA Cancer Registry Management Program March 2010