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Annual Report 2020 a Message from Sandy & Tim

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Annual Report 2020 a Message from Sandy & Tim Read Chozin’s story on Page 8. Keeping Families Close | Annual Report 2020 A message from Sandy & Tim It’s all about the kids – always has been and always Before COVID, the families and children of RMH will be. So much has changed over the last year, but already had their lives turned upside down. The love remains, the mission remains, and the critical pandemic simply added another layer of stress and need for RMH remains. During this uncertain time, this worry to families already pushed to the margins and report is a reminder that what we do matters. We are beyond. They need us now more than they ever have. always humbled by the collective love and generosity In a year when everyone had a perfect excuse to pull that keeps our House going, but this year has been back or do less, you all stepped up and showed our something special. Because of you, in a time that has kids and families that no matter what the external tested and challenged everyone, the heart and soul of forces are, our commitment never wavers and we will the Ronald McDonald House is alive and well. never let them down. Sandy Pagnotti 2020 was supposed to be the year we were going to We don’t know what COVID will mean for 2021 and President & CEO have a collective sigh of relief as we settled into the beyond. We look forward to the day in the near future new Ronald McDonald House, fine-tuned our new when we are all together again in person. In the operating procedures and most importantly, doubled meantime, this is sent with hope that better days are our capacity to fulfill our mission of helping families ahead – for the world and for our Ronald McDonald in pediatric medical crisis. Then came COVID-19. House families. We love and appreciate you all for The year that was supposed to be the great exhale sticking with us. became our toughest year yet. We can’t hug a mother Stay safe and well, who has just lost her child, we can’t high five children Sandy & Tim who ring the good news bell, and the lifeblood of the House, our Volunteer Program, has been suspended for over a year. As an organization built on creating Tim O’Donald community, the human interactions that create an oasis Board Chair of goodness and grace have been pushed 6 feet apart. 2 3 A message from Sandy & Tim It’s all about the kids – always has been and always Before COVID, the families and children of RMH will be. So much has changed over the last year, but already had their lives turned upside down. The love remains, the mission remains, and the critical pandemic simply added another layer of stress and need for RMH remains. During this uncertain time, this worry to families already pushed to the margins and report is a reminder that what we do matters. We are beyond. They need us now more than they ever have. always humbled by the collective love and generosity In a year when everyone had a perfect excuse to pull that keeps our House going, but this year has been back or do less, you all stepped up and showed our something special. Because of you, in a time that has kids and families that no matter what the external tested and challenged everyone, the heart and soul of forces are, our commitment never wavers and we will the Ronald McDonald House is alive and well. never let them down. Sandy Pagnotti 2020 was supposed to be the year we were going to We don’t know what COVID will mean for 2021 and President & CEO have a collective sigh of relief as we settled into the beyond. We look forward to the day in the near future new Ronald McDonald House, fine-tuned our new when we are all together again in person. In the operating procedures and most importantly, doubled meantime, this is sent with hope that better days are our capacity to fulfill our mission of helping families ahead – for the world and for our Ronald McDonald in pediatric medical crisis. Then came COVID-19. House families. We love and appreciate you all for The year that was supposed to be the great exhale sticking with us. became our toughest year yet. We can’t hug a mother Stay safe and well, who has just lost her child, we can’t high five children Sandy & Tim who ring the good news bell, and the lifeblood of the House, our Volunteer Program, has been suspended for over a year. As an organization built on creating Tim O’Donald community, the human interactions that create an oasis Board Chair of goodness and grace have been pushed 6 feet apart. 3 4 OUR HOUSE by the numbers 23,000+ trips around town 22 states 50 served international countries served. Top 5 Diagnoses Neurology, NICU, Oncology, Transplant, 10 0 % Hospitals we partner with to provide and Gastroenterology & Hepatology of our annual operating compassionate care: budget is raised locally. Johns Hopkins Hospital Johns Hopkins-Bayview Medical Center $ University of Maryland Medical Center 4,115,375 Maryland Proton Treatment Center isthevalueofservicesweprovide Kennedy Krieger Institute to our families annually The Rubin Institute at Sinai R Adams Cowley Shock Trauma Center We have been home to more than $ 4.35 Mt. Washington Pediatric Hospital Sheppard Pratt Hospital is the average nightly 50,000 families Mercy Medical Center since our opening in 1982. room payment 5 Community Fundraisers Thank you to all of the individuals, organizations and community groups that host fundraisers for us throughout the year. These events support the everyday operations of RMH. In 2020, over $140,000 was raised to provide hope, care, and love for the children and families of the Ronald McDonald House. ADU, Your Appliance Source The Baltimore Flower Ninjas Treena Clampitt’s Team Big Hearts Brooke Davidson Sam Finkelstein’s Eagle Scout Project Greater Severna Park & Arnold Chamber of Commerce Gunther Charters, Inc. Matt & Lindsay Hamilton Wedding Ron Howard’s Big Shave Down Hydrasearch Raffle James E. Crawford, Jr. & Associates Ryder’s parents – Matt & Devi with daughter Avery TheKidsfortheKidsFundoftheMcDonoghSchool Danielle Nobles Shop Night Ourisman Automotive Group 5k WhenMattandDevi’s2montholdson,Ryder,passedawayfromcancertheyknewtheywantedtocreatealegacy.Roll Philanthropik: The Holiday Edition with Ryder honors and celebrates their brave warrior each and every year. Raven’s Roost #138, Inc. “HopeandLovearethelegacyoursonRyderleftbehind.BeingthematchsponsorforThe Roll With Ryder Holiday Hero Roll with Ryder Gift Card Challenge,allowedourfamilytheopportunitytoshowtheamazingcurrentandfuturefamiliesstayingatthe SweatforSupportFundraiserbyKellyBerger RonaldMcDonaldHousethattheyaresurroundedbyHopeandLove.Asamatchsponsor,italsomeantthatwecould Vascular Surgery Associates stretch and double the dollars which further extends Ryder’s legacy, filling our hearts with happiness.” *This list includes fundraisers that raised over $1,000. – Devi & Matt, Ryder’s Mom and Dad 6 We love you, Baltimore Flower Ninjas! Thank you, Volunteers! As we look back on 2020, we want to thank our RMH Volunteers for your all make sure the families at RMH always feel loved and supported no matter generous, consistent, and overwhelming support during a year full of doubt what. So, thank you. Thank you for being the best community we could ever and struggle. With or without a pandemic, you all are the backbone of this ask for. We hope 2021 brings everyone much more joy, smiles, and hugs. We House. From keeping our families fed, to ensuring overflowing cubbies, you cannot wait for the day we can welcome you all back to the House. 7 8 Meet Chozin Thisisthestoryof3-year-oldChozin,inthewordsofhismomMolika.(Picturedleft) My husband and I had been together for 10 years when therapies. After Chozin had his six-month well-visit we found out we were expecting our first child in 2016. appointment, he was admitted to Children’s National Unfortunately, we miscarried at seven weeks. Miraculously Hospital for failure to thrive as he was only 12 pounds at six shortly after, we were expecting again! My heart was full months old. The doctors decided to perform gastrostomy of joy and I testified in the doctor’s office that I was going surgery (G-tube) on him since he wouldn’t eat on his own. to have a boy as well as carry him full term! I knew God Chozin had his first seizure on March 14, 2019 and was hadchosenthisbabyforusandweimmediatelynamed admitted to Children’s Hospital again. Later that year in him Chozin with an emphasis on the “zin.” I was told by December, Chozin was enrolled into the Kennedy Krieger the doctors to take it one day at a time considering I just feeding program. While attending the program, we were miscarried,butIknewinmyheartIwasgoingtopersevere blessedtostayattheamazingRonaldMcDonaldHouse! through my whole pregnancy and bring home a baby boy. RMH is truly magical, and you can feel the love as soon as My pregnancy went well and before I knew it, I was 41 you walk in. You feel at ease and worry free. It’s a home weeks and admitted to the hospital being considered high away from home! Everyone there was welcoming, nice, risk because I was thirty-five years old. My water broke on and engaging, from the volunteers to the staff and patients. a Thursday night and I didn’t have our son until that Sunday. Chozin successfully completed the feeding program being Four days in labor and Chozin wasn’t breathing when he able to eat purée foods after staying at Ronald McDonald was delivered. Several nurses immediately came to work for two months. In May 2020, after further genetic testing, on him and found out that he swallowed his meconium. My Chozin was diagnosed with mandibulofacial dysostosis son was rushed to the NICU after I was only able to get a with microcephaly, which is an extremely rare condition glanceathim.Iwasalarmedandconfused.Chozinwas7 with fewer than 60 cases reported worldwide! Also, in pounds exactly.
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