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Ocumel Brochure A4.Indd Waldorf Hilton, London 27th September 2018 Sponsered by Getting your motor, pet, gadget and travel insurance is a walk in the park Download the NEW TRiCE insurance app today Wishing you an enjoyable evening in support of OcuMel UK Trice is a trading name of INTAA. INTAA is a limited company registered in England and Wales with registered number 10655399, and is an Appointed Representative of Markerstudy Insurance Services Limited. Markerstudy Insurance Services Limited previously traded as Zenith Marque Insurance Services Limited. Markerstudy Insurance Services Limited registered in England and Wales (No. 2135730) with registered office at 45 Westerham Road, Bessels Green, Sevenoaks, Kent TN13 2QB. Authorised and regulated by the Financial Conduct Authority (No. 475572). 2 JN386_TRiCE_PRINT_AD_OcuMel_PRINT.indd 1 10/07/2018 09:31 Welcome note I have pulled in favours from family, Along with another lady who lost her Joanne Morgan, friends and colleagues; some of dad, we created a website to provide Patient and Trustee whom I have known for over 30 information and supported people years and I would also like to thank through a helpline. everyone from the bottom of my We arranged patient conferences heart who has helped bring this and helped patients understand their evening together. options. Please enjoy what promises to When I think back to what we have be a fantastic event. achieved already, I feel immensely proud, but it is always with sadness, the losses never get easier. Jo Gumbs, The sad reality is that the UK does National Director not have a care coordinator nurse for this condition and so we have developed this role based on the care that is available to patients with more common cancers. This I am Joanne Morgan, mum to disease spreads for half the patients Alannah, Lucy and Daniel, wife to who are diagnosed. Patients need Greg, daughter to Pam and Mike and more support as it’s common for a patient with ocular melanoma. people to experience treatment delays. Employing a nurse to support Being told that I have cancer was the patients will not only provide much- most difficult news for my family and needed guidance, but it will allow us I to come to terms with. It has been to focus on finding a cure for ocular so difficult to understand and accept melanoma. the uncertainty that surrounds rare cancers and my future. We are so grateful to everyone that I will never forget the day we were has helped OcuMel UK reach this Soon after my diagnosis, I came told my dad had a large tumour at the point. The incredible people who across OcuMel UK who have helped back of his eye and that his eye would have brought this evening together me through my journey to date with need to be removed. It wasn’t until and to all of you who are here tonight invaluable emotional and practical two years later that we began to learn supporting our work. support. Without Jo Gumbs and her the enormity of what this dreadful tiny team of staff, my journey would cancer meant. We had assumed A special thank you goes to Joanne have been a very different one. that if the cancer was to spread, he Morgan who has thrown herself into would be offered chemotherapy, or organising this event. It is only through Tonight, I thank you all for coming and some other type of treatment but this her hard work and determination that for digging deep in your hard-earned wasn’t the case. There was no clear this evening has been made possible. pockets. I can assure you that every treatment path and we lost him to this She is an inspiration to us all. penny spent by yourselves and every dreadful disease shortly after. Our pound raised in our auction will go family were devasted, angry, guilty, Thank you again to everyone, I towards supporting the employment lost and every other emotion you wish you all a fantastic night. of a specialist nurse. This vital role could think of, but knew we could not will guide and support us, as patients, let others have the same experience. in the right direction to the medical OcuMel UK was formed. teams and the trials that are available to keep us alive. 3 Order of the Evening Sparkling wine reception featuring Al Murray The Pub Landlord Magic from Josh King Piano Accompaniment by Paul Moran Welcome by Sally Bundock Interactive Silent Auction throughout the evening Starter Salmon Three Ways cured, poached and smoked with a Ponzu dressing and a citrus salad Soprano performance by Natasha Marsh Main Corn Fed Chicken Breast with a chicken scotch egg, crushed new potatoes, beetroot puree, garlic and nutmeg with Café Au Lait sauce Comedy with Tony Brennan Charity Appeal 50/50 Dessert Flourless Chocolate Cake with vanilla mascarpone cream, warm chocolate sauce and Mocha ice-cream or Vanilla Bean Crème Brulee with raspberry sauce, spun sugar caramel and berry compote Live Auction with Ian ‘Roycey’ Royce Music by The Mighty Quinn Carriages at 1am 4 About OcuMel UK Our vision is a world where ocular melanoma patients are given the information, support and treatment they need. OcuMel UK is overseen by a fantastic Board of Trustees, the majority of whom are ocular melanoma patients and family members. The Board is always looking for people to join and strengthen our team • Neil Pearce, Chair & Associate Medical Director • Joanna Dallas, Treasurer and wife of a Patient • Tamara Rimmer, Secretary and Patient • Joanne Morgan, Trustee and Patient • Ben Richardson, Trustee and Optometrist • Gianfranco De Franco, Trustee and Solicitor • Jo Gumbs, Founder, Trustee and daughter of late Patient We know ocular melanoma can spread to other organs Everything that we have achieved, we have done through for half the people it affects. For these patients there are sheer dedication and passion to make a real treatments that can help, but the time it takes to access change to the lives of those affected by this rare and these treatments can be an issue. dreadful cancer. We also know that despite our efforts, our membership is growing faster than we can Ultimately, we need a cure. Until then we can make a properly manage and there are still many patients we have difference by helping people navigate the system not reached yet. until a breakthough is found. This prompted the need to recruit a dedicated nurse who To think that just 2 years ago our small charity was will continue to provide this crucial support and include a working from a spare bedroom and today we have specialist focus for stage IV patients, end of life care, grown to three employees and have an actual offi ce to counselling and be available at the various hospital at clinic work from! Our small team are more determined times. Our aim is to recruit for this role by November 2018 than ever to change the future for ocular melanoma and have a sustainable fundraising strategy in place. All patients. We are privileged to organise annual patient proceeds from this evenings Gala will be directly allocated conferences, produce bulletins, newsletters, launch and to the recruitment and employment of this role. manage annual campaigns, support all awareness and fundraising activities, organise local fundraising By working with our connections in Europe and the USA, events, manage our accounts and be our own IT we are bringing medical professionals, patients support! and pharmaceutical companies together to develop a strategy for focused research into a cure for this disease. This work cannot come quickly enough and we look forward to the Spring to host these meetings. 5 This Evenings Entertainment Sally Bundock Al Murray There is rarely a dull moment Al Murray with his alter-ego, covering news, business and The Pub Landlord, is one of the finance at the BBC and Sally has most recognisable and successful been on the job for 20 years! comics in the UK. Presenting ‘The Briefing’ at 5am on BBC1, BBC News Channel For over 20 years Al has filled and BBC World News Monday to arenas around the world, won Thursday, Sally is the face numerous awards and accolades and of the one-hour live programme that briefs the audience on has successfully hosted an array of TV series which the day ahead with an estimated global audience just shy include Al Murray’s Happy Hour and the ground breaking of 100 million viewers around the world. sitcom, Time Gentlemen Please which has become something of a modern day cult classic. In 2014 Sally was named as one of the UK’s top 50 most powerful part-timers on the third annual Power Part Time Al’s other live TV appearances as The Pub Landlord List compiled by both Timewise and the Financial Times. include three appearances on The Royal Variety Performance (ITV1), Stand Up Central (Comedy Central), Sally’s motivation to support us this evening stems from hosting Live at the Apollo (BBC1) and Live at the her first-hand experience of the devastating effects of Palladium (ITV) to name just a few. cancer. Sally has been good friends with Joanne Morgan for many years since their sons started primary school Al continues to sell-out stand-up national and international together. In June 2017, Sally lost her husband of 18 tours, which has made him one of the most popular live wonderful years, Paul, to cancer. Sally lived the “cancer comedy acts in the country. journey” with their 3 beautiful boys whilst Paul bravely fought terminal cancer for 8 years. Sally is happy to support this cause.
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