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Tidings Issue 39 Autumn 2015 Autumn 2015 | Issue 39 DedicatedDedicated toto ColostomatesColostomates theirtheir FamiliesFamilies andand theirtheir CarersCarers FREE LAPEL PIN OFFER FREE LAPEL PIN OFFER it’s time to make life better Whether it’s our customer support team or specialist nurses, we take the time to build lasting relationships and understand what will deliver the best care for you. We do this independently and honestly, to provide you with the products that your stoma care nurse prescribes for you. It’s a professional, friendly and reliable service and is why our customers say we help make their lives better. 0800 220 300 [email protected] respond.co.uk FROM THE EDITORIAL TEAM EDITORIAL TEAM See page 57 for details. Chair, Editorial Team FREE lapel offer Colostomate/Helpline Volunteer Rosemary Brierley not actual size Trustee, Colostomate & Volunteer Sarah Squire Colostomate & Helpline Volunteer Jackie Dudley Colostomate & Helpline Volunteer Ian Jackson Stoma Care Nurse Advisor Julie Rust RGN, Dip, N MSc General Manager Susan Hale Products & Services Officer Arvind Anand dear READERS If you were at the Colostomy Association’s and admin Sally Armstrong tells us how the COVER PICTURE 10th Anniversary Celebrations in July you weekend went for them. will understand why a large proportion of At the fashion show on Sunday morning, I this issue of Tidings is devoted to this Colostomy Association’s couldn’t help thinking that when these 10th Anniversary celebrations event. Like our magazine, the weekend’s models first had their stoma I bet they programme included professionals never thought that one day they would discussing medical topics and other issues walk confidently down the catwalk in front which relate to day to day life with a of an audience of more than two hundred. stoma, as well as a wealth of real life Short biographies of the models were stories. shown on the screen during the show so Monty Taylor, Chairman of the Colostomy we asked if they would like to expand on Association, introduced the two days as them and write for Tidings. We are How to contact Tidings being topical and fun…and that’s what they delighted to include these stories in this By letter write to: were. In the opening address our President, issue. Mr Ian Daniels FRCS, Consultant Colorectal As many of you will already know, the and General Surgeon spoke about how The Editorial Team Colostomy Association runs a Helpline Colostomy Association surgery today is very different from when he which operates even when head office is Enterprise House, 95 London Street was a junior doctor. Back then the surgeons Reading RG1 4QA closed in the evening and at weekends focused on curing disease and gave little when it is manned by volunteers who By telephone: thought to how the patient would cope 0118 918 0500 themselves have stomas. We are able to with the stoma they were creating; they did offer support to ostomates and answer Via e-mail: not consider how it would impact on [email protected] queries about stoma management. In this patients’ lives. Today surgeons are listening issue we ask Julie Rust to answer some of Advertising Enquiries: to patient feedback and considering how the typical questions we receive on the For a media pack and advertising rates. they can make stomas better and easier to helpline, in particular those which may Contact: Arvind Anand manage. require the advice of a nurse specialist. The Telephone: 0118 918 0500 Later on the Saturday, Ian Daniels gave a Beating Bowel Cancer Helpline is there for presentation about what is known about those whose stoma was created as a result E-mail: of cancer. Paula Madden, Senior Nurse [email protected] the causes of parastomal hernias and emphasised the need for more research Advisor, gives examples of the type questions they are asked and details of how Tidings Magazine: into the best form of treatment; a summary The views expressed by the contributors are not of this presentation will be included in a patients and their families who have necessarily those of the Colostomy Association. Great future issue of Tidings. Amanda Gunning, concerns about cancer can contact the care has been taken to ensure accuracy, but the Colostomy Association cannot accept responsibility for Specialist Stoma Care Nurse and Helpline. errors or omissions. Colostomy Association Trustee spoke We do appreciate your feedback. This is Disclaimer: about prescription management; a your magazine so we welcome your The display, description or demonstration of products and services or the inclusion of advertisements, inserts summary of this presentation can be found questions for our nurse advisor, Julie Rust, and samples within Tidings Magazine does not on page 26. letters and e-mails for the Readers’ Writes constitute an endorsement or recommendation of these products and services by the Colostomy The Breakaway and Facebook pages this page and your real life stories about what Association. time are also related to the anniversary it’s like to live with a stoma. ©Copyright 2015 Colostomy Association. All rights celebrations. Sue Blackwell, a trustee of Look forward to hearing from you. reserved. No part of this publication may be reproduced, stored in a retrieval system, or Breakaway, outlines her presentation transmitted, in any form or by any means, electronic, tracing the growth of this charity from an Rosemary Brierley mechanical, photocopying, recording or otherwise, idea first discussed on New Years’ Eve ten on behalf of The Tidings Editorial Team except as permitted by the UK Copyright, Designs and Patents Act 1988, without the prior written permission years ago. Facebook group members met Email: of the publisher. All marks acknowledged. up on the Friday night before the Open Day [email protected] | WEBSITE: WWW.COLOSTOMYASSOCIATION.ORG.UK TIDINGS | AUTUMN 2015 | 3 The new extensive range of Aura™ pouches feature our tried and tested skin-friendly Hyperfl ex® hydrocolloid fl ange, but now with the added benefi t of medical grade Manuka honey. The inclusion of Manuka honey in our Hyperfl ex® hydrocolloid may help to promote healthy skin around the stoma. New Aura™ also has an accurate cutting guide for a perfect fi t, Easy2peel™ tab for easy removal, a super-soft water-repellent cover for outstanding comfort and a new Dual-Carb®2 and Dual-Carb®i fi lter for better odour management and reduced leakage. Available in a range of sizes and in Closed, Drainable, Urostomy and Stoma cap variants, the new Aura™ with Manuka honey is our most comfortable, skin-friendly pouch yet. Find out more at www.clinimed.co.uk Manufactured by Welland®, a CliniMed® Group company For a free sample of Aura™, please complete the coupon and return it to: CliniMed Ltd., FREEPOST HY241, High Wycombe, Bucks, HP10 8BR (NO STAMP REQUIRED), call our free confi dential Careline on 0800 036 0100 or visit www.clinimed.co.uk Mr/Mrs/Miss/Ms: Initials: Surname: Address: Postcode: Tel. No.: Email: I understand that this request will be handled by CliniMed Limited or SecuriCare (Medical) Limited. I would like my details to be kept on fi le, so that I can be kept up to date with information about relevant new products and services. Manufactured by Welland®, a CliniMed® Group company. Welland® products are distributed in the UK by CliniMed Ltd., a company registered in England number 01646927. Registered offi ce: Cavell House, Knaves Beech Way, Loudwater, High Wycombe, Bucks, HP10 9QY Tel: 01628 850100 Fax: 01628 527312 Email: [email protected] or visit: www.clinimed.co.uk. CliniMed®, Welland®, Aura™, HyperFlex®, Easy2peel™ and Dual-Carb® are trademarks of CliniMed (Holdings) Ltd. ©CliniMed Ltd 2013. 1694/0213/1 TIDINGS CONTENTS How to get in touch with the inside this issue Colostomy all your regulars & special features Association The Association represents the interests of colostomates and other ostomates. We provide support, reassurance and practical information to anyone who has or is about to have a Colostomy. Updates Real Lives How to become a member of the 9 CA Awareness Day 7 An interview Colostomy Association 19 Fundraising with Maria Driffill A thank you for your generous Simply contact us by post: 11 What a difference donations and fundraisers Colostomy Association an operation…or two can Enterprise House, 95 London Street 30 New products make – CA Volunteer Frank Reading RG1 4QA Keep up to date with the latest products and services 17 A hard lesson learnt By telephone: Donna Ashbrook General Enquires: 0118 939 1537 37/41 CA News Sue Hale reports from Head 31 Fashion Show models: Stoma care queries only: Office Marlene, Maureen, Freephone Helpline: 0800 328 4257 Dean, Davina, Faye & Aled tell their stories By E-mail: From Healthcare [email protected] Professionals Find us on FACEBOOK: Support 9 10th Anniversary 17 Stoma Aid Presentations: What’s next? Sarah Squire on the importance of support 43 JOSH Join our ‘closed’ group today simply garments Helpline for carers of young put Colostomy Association into your FACEBOOK search bar, click on Group 26 Prescription ostomates and click on ‘Ask to join’ you will be Management assured of a warm welcome! 45 The Facebook Group Amanda Gunning & Julie Sally Armstrong reports on the Visit us and register at: Oxenham, about Meet-Up at the 10th www.colostomyassociation.org.uk Prescription Review Anniversary celebrations Don’t delay 48 Beating Bowel Cancer 47 The Breakaway Paula Madden, Senior Nurse Donate Online today! Advisor explains how their Foundation There are NOW two ways to donate Sue Blackwell explains how it online helpline supports cancer patients all started 1 50 Dear Nurse 52 Readers’ Writes Julie Rust answers your letters Your letters and e-mails. and e-mails 59 A Local Group DOGS in Dartford Living with a Stoma 60 List of local support Visit the Colostomy Association website From One Ostomate groups and simply click on the donate panel on 13 the home page.
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