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Remember to Dance Evaluating the Impact of Dance Activities for People in Different Stages of Dementia Trish Vella-Burrows and Lian Wilson

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Remember to Dance Evaluating the Impact of Dance Activities for People in Different Stages of Dementia Trish Vella-Burrows and Lian Wilson Sidney De Haan Research Centre for Arts and Health Remember to Dance Evaluating the impact of dance activities for people in different stages of dementia Trish Vella-Burrows and Lian Wilson With special thanks to Georgina Birch, Alan Clarke, Flora Greig, Andrea Meredith and Leah White Sidney De Haan Research Centre for Arts and Health Dr Trish Vella-Burrows, RN. PhD. BA (Hons) Music. FRSPH. Trish is Deputy Director and Principal Research Fellow for the Sidney De Haan Research Centre for Arts and Health and a lecturer in Arts and Health and Dementia Care, Canterbury Christ Church University (CCCU). She is a registered nurse with over 40 years’ experience of working with people with dementia in a clinical and research capacity and over fifteen years research experience in performing arts in health and wellbeing. (Email: [email protected] ). Lian Wilson, RSMT. RSME. ARSPH. Lian is a Registered Somatic Movement Therapist, Registered Somatic Movement Educator and Research Assistant at the Sidney De Haan Research Centre for Arts and Health, CCCU. Lian is also the Director of Tamalpa UK and has over 18 years’ experience of working in community dance settings. (Email: [email protected]). Postal address: Sidney De Haan Research Centre for Arts and Health, Canterbury Christ Church University, The Block, 69, Tontine Street, Folkestone, Kent CT20 1JG Thanks go to The Headley Trust for funding the Remember to Dance programmes and this research study Publisher: Canterbury Christ Church University: ISBN 978-1-909067-53-0 January 2016 ©Sidney De Haan Research Centre for Arts and Health 2 The Sidney De Haan team would like to sincerely thank the kindness and unerring cooperation of Fergus Early and the Green Candle team and the dancers of the Remember to Dance programmes. 3 Sidney De Haan Research Centre for Arts and Health Contents Introduction ............................................................................................................................................................................................................6 Aim .......................................................................................................................................................................................................................................................6 Rationale for the study ...................................................................................................................................................................6 Models of health and dementia ................................................................................................................................................................................6 Salutogenic model of health .........................................................................................................................................................................................7 Jeopardy to quality of life and wellbeing ...........................................................................................................................................................7 Wellbeing and meaningful activity..........................................................................................................................................................................9 Non-pharmacological interventions ....................................................................................................................................................................10 Participatory arts and people with dementia ...........................................................................................................................................10 Dance movement and people with dementia ...........................................................................................................................................10 Differentiating dance movement concepts ..................................................................................................................................................12 Dance and creativity ...........................................................................................................................................................................................................13 Embodiment and emotional expression ..........................................................................................................................................................13 Using props to trigger creative impulse ...........................................................................................................................................................15 Creating an environment for positive change ............................................................................................................................................15 Training staff to facilitate non-pharmacological interventions (NPIs) ...................................................................................17 The current study ...................................................................................................................................................................................17 Remember to Dance: the intervention ..............................................................................................................................................................17 The programme .....................................................................................................................................................................................................................17 Practitioners and assisting facilitators ................................................................................................................................................................17 Participants .................................................................................................................................................................................................................................17 The dance spaces ..................................................................................................................................................................................................................18 The dance movement sessions .................................................................................................................................................................................18 Props .................................................................................................................................................................................................................................................19 Music ................................................................................................................................................................................................................................................19 Example of a community group dance movement session .......................................................................................................... 20 Research question and objectives .........................................................................................................................................................................21 Methods......................................................................................................................................................................................................................21 Data Tools ................................................................................................................................................................................................................................... 22 Research sites and participants ............................................................................................................................................................................... 23 Coding and data analysis ............................................................................................................................................................................................. 24 Ethics ............................................................................................................................................................................................................................................... 25 Results ..............................................................................................................................................................................................................................25 Final Sample ............................................................................................................................................................................................................................. 25 Findings......................................................................................................................................................................................................................................... 26 4 Quality of Life – RtDH group ..................................................................................................................................................................................... 30 Functioning – RtDC group ............................................................................................................................................................................................31
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