Autism Autism a Global Framework for Action
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Annual Report Ist 2015-16
ANNUAL REPORT2015-2016 Rohit, Class VI Raj Singh, Class V Gyanesh, Class VI Krishna, Class VI Neha, Class III We Aboutare a non–profit organizationVISHWAS working in the field of disability and development . The bedrock of our programmes is our fundamental belief in Equal Opportunity and Inclusion. It is our belief that everyone has a right to access basic healthcare and education irrespective of disability, gender, class or caste . Even within vulnerable groups, those with disability are most likely to get excluded. Vishwas is committed to addressing this discrimination. Vision A diverse and inclusive Society where every individual is ensured equal rights and opportunities in a dignified manner. Mission To promote the rights and interests of the disadvantaged and the disabled people in partnership with all stakeholders including the children, their families, community and the government by Building knowledge and capacities on inclusive practices and policies. Creating opportunities with meaningful participation. Overview of Vishwas Programmes VISHWAS VIDYALAYA ADULT TRAINING Providing an equitable and Supporting young adults with inclusive school system. skill development and life skills opportunities VISHWAS (Vision for Health, Welfare and RESEARCH AND Special Needs) COMMUNITY TRAINING BASED Enhancing operational REHABILITATION learning to bridge the gap Facilitating community between the intent and participation to provide a practice barrier free and inclusive environment 2 Note from the Chairperson Our annual report this year is particularly significant as it marks the tenth year of the journey of Vishwas. With this important milestone, while we reflect on our many achievements in the last decade, more importantly, we seek to plan for the next phase in our development with even greater vigour. -
Translation and Usability of Autism Screening and Diagnostic Tools for Autism Spectrum Conditions in India
Translation and usability of autism screening and diagnostic tools for Autism Spectrum Conditions in India. Rudra A1, Banerjee S2, Singhal N3, Barua M3, Mukerji S2, Chakrabarti B1,4 1 School of Psychology and Clinical Language Sciences, University of Reading, UK 2 Creating Connections, Kolkata, India 3 Action for Autism, National Centre for Autism, Delhi, India 4 Autism Research Centre, University of Cambridge, UK Banerjee S is now at University of Haifa, Haifa, Israel. [NOTE: This is the final author-version of the manuscript, the formatted and published version is available at the journal website at : http://onlinelibrary.wiley.com/doi/10.1002/aur.1404/abstract] Correspondence concerning this article should be addressed to: Dr. Bhismadev Chakrabarti School of Psychology and Clinical Language Sciences, University of Reading, Reading RG6 6AL, UK Email: [email protected] Phone: +44 118 378 5551 Fax: +44 118 378 6715 Grant sponsor: Autism Speaks Lay Abstract: Among all the major developing countries, India is conspicuous by the absence of an estimate of autism prevalence. One key reason for this absence is the the lack of availability of standardized screening and diagnostic tools (SDT) for autism in regional languages in India. To address this gap, we translated four widely-used SDT (Social Communication Disorder Checklist, Autism Spectrum Quotient, Social Communication Questionnaire, Autism Diagnostic Observation Schedule) into Hindi and Bengali, two of the main regional languages (~360 million speakers) and tested their usability. We tested these translated instruments on 170 children with and without autism, and found that scores of children with autism were significantly and reliably different from those of control children. -
May 9-12 Rotterdam Netherlands
2018 ANNUAL MEETING MAY 9-12 ROTTERDAM NETHERLANDS PROGRAM BOOK www.autism-insar.org INSAR 2018 Sponsors We thank the following organizations for their generous support of the INSAR Annual Meeting. Platinum Sponsor Level Gold Sponsor Level Silver Sponsor Level Autism Science Foundation Hilibrand Foundation Nancy Lurie Marks Family Foundation TABLE OF CONTENTS Sponsorship .................................Inside Front Cover TABLE OF CONTENTS Special Interest Groups Schedule .......................... 6 Speaker Ready Room ............................................ 6 De Doelen Floor Plans ........................................ 7-9 Meeting Information Schedule-At-A-Glance .................................... 10-12 In-Conjunction Events .................................... 13-14 Keynote Speakers .............................................. 15 Awardees ..................................................... 16-19 INSAR MISSION Acknowledgments .......................................... 20-21 STATEMENT To promote the highest quality INSAR Summer Institute .................................... 22 research in order to improve the Abstract Author Index ...................................... 134 lives of people affected by autism. General Information .......................................... 208 Exhibitors ....................................................... 210 Strategic Initiatives Setting the Bar: Increase the quality, AM diversity and relevance of research promoted through annual meetings, journal, Keynote Address ............................................... -
Appendix A. Exact Search Strings
Appendix A. Exact Search Strings Table A1. MEDLINE® – Ovid Version Table A2. MEDLINE® In-Process and Other Non-Indexed Citations – Ovid Version Table A3. PsycINFO® – Ovid Version Table A4. ERIC – Ovid Version Table A5. EMBASE – Ovid Version Table A6. CINAHL® (Cumulative Index to Nursing & Allied Health Literature) – Ovid Version Table A7. CINAHL® (Cumulative Index to Nursing & Allied Health Literature) – EBSCO Version Table A8. AMED (Allied and Complementary Medicine) – Ovid Version Table A9. Central (EBM Reviews - Cochrane Central Register of Controlled Trials) – Ovid Version Table A10. PsychARTICLES (OVID Journals) – Ovid Version Table A11. Web of Science® – Institute for Scientific Information – Thomson Corporation Table A12. BIOSIS Previews® – Institute for Scientific Information – Thomson Corporation Table A13. Social Sciences Abstracts Table A14. Academic Search Premier – EBSCO Version Table A15. Child Development and Adolescent Studies – EBSCO Version Table A16. Linguistics and Language Behavior Abstracts Table A17. Psychology and Behavioral Sciences Collection – EBSCO Version Table A18. Cochrane Database of Systematic Reviews, Database of Abstracts of Reviews of Effects, Heath Technology Assessment Database, NHS Economic Evaluation Database – Wiley Version Table A19. OCLC Papers First and OCLC Proceedings First – OCLC FirstSearch Table A20. Dissertation Abstracts Table A21. LILACS – OCLC FirstSearch Table A22. NLM Gateway – National Library of Medicine Table A23. DOAJ - Directory of Open Access Journals Databases searched for -
Working with Parents and Carers to Help Autism Development
Health and Medicine ︱ Dr Catherine Aldred & Professor Jonathan Green Guas/Shutterstock.com PACT:Working with parents and carers to help autism development Autism is an enduring condition utism is a common Newcastle, have over 15 years developed affecting over 1% of people neurodevelopmental disorder and tested a new approach, using video- worldwide but with a lack of A affecting over 1% of children feedback techniques with parents to help evidenced therapy to reduce and young people globally. It arises early them understand and respond to the its symptoms. PACT is an in development with often profound particular communication style of their PACT helps adults to interact in different ways to more effectively improve the communication skills of children who early social communication effects on social understanding and young child with autism. The Paediatric have different communication resulting from their autism. intervention working through communication and patterns of Autism Communication Therapy (PACT) parents and carers that is the thinking and behaviour; effects that aims to help autistic children to develop first to have demonstrated long- usually endure through the lifespan. their early social communication skills. to usual care, as well as improved term improvements in autism Additionally, a quarter of people with A not-for-profit community interest PACT aims to help autistic children to develop everyday language. symptoms after therapy within autism go through their lives with company called Interaction Methods a clinical trial. This relatively low no or very little language. All this for Paediatric Autism Communication their early social communication skills. Importantly, these relative improvements intensity approach is referenced inevitably affects social skills, education, Therapy (IMPACT), has been set up to were still apparent when the children in UK national guidance confidence, and ability to find a job. -
AUTISTIC SPECTRUM DISORDERS a Guide to Services for Children
the Foundation for People with Learning Disabilities AUTISTIC SPECTRUM DISORDERS A Guide to Services for Children with Autistic Spectrum Disorders for Commissioners and Providers Rita Jordan, Glenys Jones & Hugh Morgan The Mental Health Foundation is the UK’s leading charity working for the needs of people with mental health problems and those with learning disabilities. We aim to improve people’s lives, reduce stigma surrounding the issues and to promote understanding. We fund research and help develop community services. We provide information for the general public and health and social care professionals. We aim to maximise expertise and resources by creating partnerships between ourselves and others including Government, health and social services. Since October 1998, The Foundation’s work with people with learning disabilities has been carried out under the name, the Foundation for People with Learning Disabilities. It remains part of the Mental Health Foundation. The Foundation for People with Learning Disabilities would like to thank The Shirley Foundation for funding this publication. Contents Contents Introduction ___________________________________________________ 2 Section 1: Definition, Identification and Diagnosis ________________ 3 What is an Autistic Spectrum Disorder? _________________________ 3 The Triad of Impairments in Autistic Spectrum Disorders _________ 3 Levels of Explanation __________________________________________ 5 Individual Differences __________________________________________ 6 Associated Conditions __________________________________________ -
The National Autism Project: Aims and Objectives
The National Autism Project: aims and objectives The National Autism Project: Address for correspondence aims and objectives E-mail: ian@ nationalautismproject. org.uk C Ian Ragan, London Editorial comment Dr Ian Ragan is the director of the National Autism Project (NAP), launched in April 2015 and funded by The Shirley Foundation. In this paper, he describes the key aims of the project and the advisers and organisations who are contributing to this work. He makes the case that the spending on autism, relative to other conditions, is very low and that this has limited the progress on identifying the most effective interven- tions. It is hoped that data will be gathered on the cost-benefit of different services and strategies which can then be used strategically to inform future practice in health, education and social care and the voluntary sector. Readers of the GAP Journal who would like to read more about NAP or contribute to its work can visit the website www.nationalautismproject.org.uk. Note: The term autism is used throughout this paper to denote all individuals on the autism spectrum, including those with Asperger syndrome. Introduction All charities face the issue of deciding how best to spend for young people and adults? Can we be sure that ‘ben- their money and to justify their existence to their donors, efits’, as normally defined by the neurotypical majority, supporters and beneficiaries. They can augment their are really meeting the needs of the autistic minority? in-house expertise with the opinions of independent It was to try and find answers to such questions that experts but every organisation still needs to develop Dame Stephanie (Steve) Shirley with others developed its own strategy, its future direction, and its goals and the idea of the National Autism Project (NAP) which was ambitions. -
The Joy of Autism: Part 2
However, even autistic individuals who are profoundly disabled eventually gain the ability to communicate effectively, and to learn, and to reason about their behaviour and about effective ways to exercise control over their environment, their unique individual aspects of autism that go beyond the physiology of autism and the source of the profound intrinsic disabilities will come to light. These aspects of autism involve how they think, how they feel, how they express their sensory preferences and aesthetic sensibilities, and how they experience the world around them. Those aspects of individuality must be accorded the same degree of respect and the same validity of meaning as they would be in a non autistic individual rather than be written off, as they all too often are, as the meaningless products of a monolithically bad affliction." Based on these extremes -- the disabling factors and atypical individuality, Phil says, they are more so disabling because society devalues the atypical aspects and fails to accommodate the disabling ones. That my friends, is what we are working towards -- a place where the group we seek to "help," we listen to. We do not get offended when we are corrected by the group. We are the parents. We have a duty to listen because one day, our children may be the same people correcting others tomorrow. In closing, about assumptions, I post the article written by Ann MacDonald a few days ago in the Seattle Post Intelligencer: By ANNE MCDONALD GUEST COLUMNIST Three years ago, a 6-year-old Seattle girl called Ashley, who had severe disabilities, was, at her parents' request, given a medical treatment called "growth attenuation" to prevent her growing. -
A Friend in Me Driving the Research Agenda All in A
OutreachFALL 2008 CONNECTING OUR COMMUNITY & RAISING AWARENESS ABOUT AUTISM A FRIEND IN ME New group helps children with autism build friendships Page 34 DRIVING THE RESEARCH AGENDA SARRC’s leadership at the national level Page 36 ALL IN A DAY’S WORK CommunityWorks helps teens learn about the real world Page 42 s p r e a d i n g the SARRC is helping raise awareness and fi ght autism in the Hispanic community Page 22 word SARRC esta ayudando a crear conciencia y Corriendo la Voz a luchar contra el autismo en la comunidad Hispana Página 28 AutismWalk_FullPgAd_OL.ai 8/8/08 10:30:56 AM C M Y CM MY CY CMY K Contents 22 Guiding Force With the help of supporters, SARRC is reaching out to empower the Hispanic community and form a united front against autism. 28 Fuerza y Orientación SARRC se extiende hacia la Features comunidad hispana para formar un frente unido en contra del autismo. 34 A Friend Indeed The FRIEND Playground Club, which has been implemented in the Scottsdale Unified School District with SARRC’s help, earns high marks from parents and peers. 36 Driving Research SARRC leaders help build the national autism research agenda led by the NIH Interagency Autism Coordinating Committee. 38 Teamwork Gear up for the Arizona Walk Now for Autism on Nov. 2 at Tempe Beach Park. 40 Tuned In KTAR’s inaugural Action for Autism on-air fundraiser made a big impact on SARRC and the community. 42 Building Community SARRC’s Vocational & Life Skills Academy provides job opportunities and coaching for teens and adults on the autism spectrum. -
Systems of Care for Autism Spectrum Disorder: a Global Perspective
PROCEEDINGS Systems of Care for Autism Spectrum Disorder: A Global Perspective Mohammed Bin Rashid Academic Medical Center Building 14 | PO Box 505276 | Dubai Healthcare City | Dubai | United Arab Emirates Tel. +971 4 422 1740 | Fax +971 4 422 5814 | http://ghd-dubai.hms.harvard.edu IN COLLABORATION WITH ISBN-10: 1-944302-02-6 ISBN-13: 978-1-944302-02-3 http://ghd-dubai.hms.harvard.edu PROCEEDINGS Systems of Care for Autism Spectrum Disorder: A Global Perspective Workshop Proceedings Rapporteur: Anna Nicholson Planning Committee: Ammar Albanna Bennet Leventhal Gordon Harper Hesham Hamoda Kerim Munir Myron Belfer Sandra Willis Valsamma Eapen Harvard Medical School Center for Global Health Delivery–Dubai Harvard Medical School Al Jalila Children’s Speciality Hospital Dubai, United Arab Emirates Mohamed Bin Rashid University (MBRU) Dubai Healthcare City, Dubai, United Arab Emirates March 30 – April 1, 2017 Copyright 2017 by the Harvard Medical School Center for Global Health Delivery–Dubai. All rights reserved. Publications of the Harvard Medical School Center for Global Health Delivery–Dubai are available at www.ghd-dubai.hms.harvard.edu. Printed publications can also be requested at [email protected]. Any opinion, ndings, conclusions, or recommendations expressed in this publication do not necessarily reect the views of Harvard Medical School. Harvard Medical School or its licensors at all times own and retain all right, title, and interest in and to these Proceedings (hereafter referred to as “the publication”) including all intellectual property rights therein and thereto. You may use and copy the publication, or portions of the publication, provided that you reproduce all copyright notices, claims, or reservation of rights appearing in the publication, as delivered to you, on all copies made pursuant to this sentence. -
The Economic Consequences of Autism in the UK Executive Research and Policy Briefing from the Foundation for People with Learning Disabilities
SummaryThe economic of findings consequences from the Learningof the autism Lessons in theproject UK A multi-methodExecutive evaluation research of and dedicated policy briefingcommunity-based from the services for people with personality disorder November 2007 Foundation for People with Learning Disabilities Autism has life-time consequences with a range of impacts on the health, economic wellbeing, social integration and quality of life of individuals with the disorder, and also on their families and potentially the rest of society. However little was known about the economic consequences of autism until the late 1990’s when the Foundation for People with Learning Disabilities, with funding from the Shirley Foundation, commissioned Professor Martin Knapp & Krister Jarbrink of the Centre for the Economics of Mental Health to estimate the costs of autism spectrum disorders (ASDs) in the UKi. That groundbreaking work has now been updated by • Average annual costs for adults with an ASD and a Professor Knapp, Renee Romeo and Jennifer Beecham to learning disability range from £36,507 to £97,863. take advantage of more detailed data that is availableii , • Average annual costs for an adult with a high-functioning again with funding from the Shirley Foundation. This means ASD range from £32,681 to £87,299. that in addition to the costs associated with health and social care support for people with ASDs, the new estimates The research has important implications for policymakers, include a broader span of public sector expenditure, such public services and families by demonstrating the breadth of as education and housing. These are placed alongside public services used by people with ASD, the high proportion estimates of the out-of-pocket expenses incurred by of the overall cost that falls to families, the lost productivity families and the income and employment opportunities to the UK economy, and the potential benefits that might lost by individuals with ASDs and their families. -
Field Guide Future
FIELD GUIDE FOR THE FUTURE N A M E FIELD GUIDE FOR THE FUTURE A practical guide from the Commission’s inquiries, case studies of good practice and stories of change – the future, happening now. With thanks to everyone who contributed. Contents Introduction 4 Scotland 53 Imagine a future where... 4 Scotland inquiry 53 Postcard 6 Urban growing 54 About this field guide 8 Technology 54 Vertical farming 53 Health 10 Small robots 56 Farming 11 Discussion Kit 57 Richard Betton 11 Liz Findlay 13 Countryside 60 George Hosier 14 Bill Grayson 16 Land use 61 Lydia Otter 18 Scotland’s Land Use Strategy 61 Harry Wilder 20 Peatland restoration 62 Building a deliberative process around the EAT-Lancet report 22 Natural flood management 64 Prioritising the good 22 Trees for timber 66 Procurement 24 Thriving Communities 67 The Carmarthenshire Food Procurement Task Force 24 Frome: a public value lens 67 Reflections on the process 29 Agrivillages 69 Why we need regional stakeholder banks 70 Mental Health 30 Exploring land stewardship 71 Farming Connect mentors 30 Farmers’ and their families’ health 31 Good Work 73 A college for the future 73 Attracting new entrants: the need for good work 75 Farming 32 Soils 33 Generating a healthy future for Lincolnshire’s soils 33 Place 76 How to assess soil quality 36 Northern Ireland 77 Cumbria 86 Advice 38 Devon 92 Discussion groups 38 Mind the gap: analysis of support 40 Transition 42 Learning in Action 98 Agroforestry: Stephen and Lynn Briggs 42 Agroforestry: Harriet Bell 43 Carbon neutral upland farming 45 References 102 Cooperatives 46 Nethergill Farm: rethinking stocking levels 49 Pipers Farm: producing high quality meat 51 The Ethical Dairy 52 2 3 Introduction Introduction Imagine a future where..