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The Institute of Mental Health seeks to help transform the Happy New Year! Kicking off 2019 with our first understanding and treatment newsletter of the year we look back at the highlights of mental illness. from the past 12 months at the Institute of Mental Health. We have an established track record of success in pioneering education and innovative inter-disciplinary The start of a new year always puts the emphasis This year we have several exciting major new projects research. We strive to have a on what is yet to come, but it is always beneficial due to begin, and no doubt many more new ideas positive impact within the health, to also review what has been achieved. and collaborations will begin to germinate as the Institute’s networks and members So in our first newsletter of 2019, we’ve picked social care and criminal justice continue to flourish. sectors. out some of the highlights of last year from across the Institute. It not only reminds us of the great Wishing you all a happy We are a partnership between two achievements that have been made, but also and prosperous 2019. highly respected organisations, shows how the different areas of the Institute Healthcare NHS continue to grow. Foundation Trust and The University This edition also celebrates the achievements of Professor Martin Orrell of . the psychiatry trainees who won our 2018 Duncan Director, The Institute Macmillan Essay Prize competition for their visions of Mental Health of “The next big thing in psychiatry” – read more on page 2.

01 @InstituteMH www.institutemh.org.uk January 2019 2018 Duncan Macmillan essay prize winners announced The Institute of Mental Health and the Royal College of Psychiatrists are pleased to announce this year’s winners of the Duncan Macmillan essay writing competition. The competition asked psychiatry trainees to share Director of the Institute of Mental Health, Professor The Duncan Macmillan essay prize competition is their ideas on “The next big thing in Martin Orrell congratulated this year’s winners: held annually by the Institute of Mental Health, and psychiatry”. was held in partnership with the Royal College of This year’s competition has yet again Psychiatrists for the first time this year. seen a high standard of entries from psychiatry Andrew Shepherd The purpose of the Duncan Macmillan prize is to trainees from across the country. It’s fantastic inspire the eminent psychiatry trainees nationwide. (University of ) won first prize for his to read their entries and get an insight into what The competition is named after Nottingham-based essay “Recognising the importance of group and our up and coming trainees have identified as psychiatrist Duncan Macmillan, who helped pioneer social dynamics in recovery focussed practices”. the “next big thing in psychiatry The essay argued that by recognising mental a community-centred approach to mental health in health recovery as a social or group process, Andrew’s essay highlighted the need to the 1950’s and 1960’s. rather than an individual one, this has implications develop the delivery of mental health services for the way in which mental health research, care to reflect new recovery practices – an area I’m and support are delivered. particularly proud that the Institute continues to expand through pioneering research studies. The purpose of the Duncan Karyn Ayre “Karyn’s essay recognised that there are often limitations in research data, but solutions could (Kings College / South London and Macmillan prize is to inspire be found developing new research practices Maudsley NHS Foundation Trust) was awarded with existing database technology. the eminent psychiatry second prize for her essay “The future of trainees nationwide. psychiatry research” which argued for new digital Congratulations to both our winners and methodologies to be used in psychiatry research to everyone who submitted a competition in order to improve the links between research entry, and my thanks to the Royal College data and the lived experience of people with of Psychiatrists for supporting this year’s mental health problems. competition. (Dr Ayre is funded by a National Institute of Health Research Doctoral Research Fellowship. The views expressed are those of the authors and not necessarily those of the NHS, the NIHR or the Department of Health and Social Care.)

02 @InstituteMH www.institutemh.org.uk New NIHR Senior Institute Investigator awards Three new Senior Investigator awards from the NIHR have of Mental brought the total of Senior Investigator awards now hosted by the Institute Health: 2018 up to five.

highlights Click here to read more Top priorities for www.institutemh.org.uk As we start a new year, digital technology we thought we would in mental healthcare reflect on achievements Publications Researchers from the NIHR MindTech MedTech Co- The Lancet Psychiatry, operative (based at the Institute) with priority setting across the Institute in Schizophrenia Bulletin, partnership specialist, the James Lind Alliance, identified Ageing and Mental Health the top 10 questions that people with mental health the past 12 months and journal, Science, The problems, their carers and healthcare professionals Conversation, The Daily Mail, some of our favourite want answered about how digital technology can help BBC Radio Four, Mental Health Foundation, with treatment and management. highlights. local radio and TV plus a variety of national and international journals have all published Click here to read more research work from individual academics and www.institutemh.org.uk research teams working within the Institute.

This year we ensured that all new research grant applications included PPI activity, we Get introduced a new category in our annual research publication awards to recognise the research-active volunteers affiliated to the involved Institute and we began recruiting to four new PPI advisory group roles. We also worked Our commitment to Patient and Public with the Trent Dementia volunteers with their Involvement (PPI) has continued throughout very first conference, as well as supporting the year and we will be rapidly expanding them to appear on BBC Radio Nottingham activities into 2019 too. for a live radio interview. Trent Dementia volunteers at BBC Radio Nottingham

03 @InstituteMH www.institutemh.org.uk Supporting new talent We are now supporting 80 PhD students across the Institute and host activities throughout the year to help develop their research skills and experience. Our Duncan Macmillan Essay prize competition was held for the first time in partnership with the Royal College of Psychiatrists. The competition is the opportunity to inspire psychiatry trainees across the country, and this year we received our highest number of entries. We held another Research Day event, supporting early-career researchers and giving them an Bigger opportunity to present their work to peers within and better the Institute and the University of Nottingham. events Keeping in touch Grant We were delighted to be partners in the UK’s first Power of Music conference held in We refreshed and relaunched programme October this year. The conference explored our website this year, aiming the role music can play in health, social and to share more news about the expansion neurological care, with delegates including care range of research activity providers, family, volunteer caregivers, patients taking place across the Institute. Over the past 12 months we have exceeded the Institute’s research grant programme and musicians and leading academics. Our bi-monthly newsletter was also relaunched income target by over 60%. The event was also a showcase for local and we continue to gain more followers on Twitter. musicians, plus a performance from West End Our work now spans multiple fields of mental musical star, and former , . health research, with our four largest projects focusing on children and adolescent mental The Institute also hosted the second UK Creating health (STADIA), treatment-resistant depression mental health disability law conference, and (BRIGhTMIND), online intervention for tics and the annual Trent Study Day in partnership with new networks Tourette’s (ORBIT) and psychosis recovery Nottinghamshire Healthcare NHS Foundation Trust. (NEON). The Institute’s event management team also co- Our Managed Innovation Networks (MINs) continue ordinated local dissemination events as well as to grow and this year we developed four new outsourcing their services to national mental health networks focussing on post-modern slavery mental events including the MindTech annual symposium. health, arts and trauma, gender and wellbeing, and social isolation through long-term health conditions.

04 @InstituteMH www.institutemh.org.uk Visit to Indonesian At the Institute of Mental Health, Harleen is developing and testing a Cognitive chapter of Alzheimer’s Stimulation Therapy App (CST) for people Disease International with dementia and carers. In a qualitative study, she will explore (ADI) whether it is feasible to implement the app in Indonesia. She will work with people with Identifying disparity In November 2018, PhD student Harleen Rai dementia and informal carers to gain insights spent eight days visiting Alzheimer Indonesia in their attitudes towards using technology (Alzi) and Atma Jaya University in Jakarta. in access to dementia and identify any barriers and facilitators. She will be spending two months with Alzi this Participants will also be invited test the year while conducting research activities as memory assessment app and share their thoughts. In addition, part of her PhD study for the INDUCT project. professional staff members and other experts This initial visit helped to prepare for her will be consulted regarding their experiences service for South Asian placement and establish valuable contacts. with technology for people with dementia and Harleen met with Alzi staff members, attended carers. The findings will potentially inform population workshops, and also had the opportunity to the adaptation of the app according to the present her research to medical students at An ongoing CLAHRC project on access of Memory Indonesian cultural context and facilitate the University. In addition, Alzi organised two Assessment Service for people of South Asian implementation in the future. visits to care/nursing homes where Harleen background has been mentioned in a Health learned about the organisation of care in Science Journal (HSJ) article about variation in Jakarta. Harleen met with Alzi staff members, dementia diagnosis rates: attended workshops, and also had the “Historically, GPs felt little positive benefit to opportunity to present her research to diagnosing if there were no services to diagnose medical students at the University. into, according to an academic at the University of Nottingham. Neil Chadborn is leading a research project investigating ways to improve care for dementia patients by improving the referral process between GPs and secondary care. “He said it is still not always clear what happens to patients after diagnosis. His work has focused on people of South Asian origin for whom non- attendance at treatment services is more of a problem than white British patients.

Click here to read more www.hsj.co.uk

05 @InstituteMH www.institutemh.org.uk Supporting employees with Music Therapy Charity having been created in Aalborg in Denmark dementia: a systematic review by a team that included Dr McDermott. The experience of developing dementia while in employment awards new PhD grant The aim of producing and evaluating a UK has been explored from the point of view of the employee, but for dementia research version of the PAMI is to provide a culturally less is known about the perspectives, experiences and needs appropriate manual for care home staff to of employers. The Music Therapy Charity has promote attuned interactions with residents Recently published by the Society of Occupational Medicine, this announced that it will award funds to with dementia, and to raise an awareness new study (led by a team from the Institute’s Centre for Dementia) support a three-year PhD Fellowship of the potential benefits of music therapy systematically reviewed literature about the management of to the Division of Psychiatry and skill-sharing amongst music therapy employees who develop dementia whilst in employment. Applied Psychology, Institute of Mental clinicians and researchers, and dementia Health/University of Nottingham, to be care specialists. The study has been able to identify key themes and areas where supervised by Professor Martin Orrell guidance and examples of good practice could be provided to The Fellowship will start in September and Dr Orii McDermott. employers, in order to better support employees. 2019 and applications should be sent The holder of the Fellowship will develop directly to Dr Orii McDermott. and evaluate a UK version of the Person Click here to read more Attuned Musical Interaction in Dementia Click here to read more www.institutemh.org.uk Manual (PAMI-UK), the original version www.institutemh.org.uk

New opportunity for Dr Oliveira Dr Deborah Oliveira is sadly leaving the Institute’s Centre for Dementia in January 2019 as she has been offered an exciting job opportunity to work on the STRiDE programme (www. stride-dementia.org). STRiDE is funded by the prestigious UK Global Challenges Fund and is based at the London School of Economics. This is a very exciting international research programme which will give Dr Oliveira the opportunity to further develop much needed dementia research and policy in low- and middle-income countries for the next three years: I would like to thank everyone who I have worked with during the past three years and I look forward to continuing to collaborate in dementia research in the future! Dr Oliveira’s new email address is [email protected]

06 @InstituteMH www.institutemh.org.uk 2018 Publication Annual Trent Study Day awards now open Last year our annual Trent Study Day conference The Institute is now accepting entries for our sold out three months before the event! annual Publication Awards, highlighting the Held at Rampton Hospital in November, hosted best publications of 2018. by the Institute in partnership with the Forensic The awards aim to celebrate and promote the Services division of Nottinghamshire Healthcare publications produced in the fields of mental health NHS Foundation Trust, the event is open to Trust or intellectual disability research by people working staff and external professionals working in forensic within Nottinghamshire Healthcare NHS Foundation mental health. Trust, The University of Nottingham or affiliated to the The conference explored new ways of working with Institute of Mental Health. sexual offenders. Keynote speakers included Dr Jackie Craissati, Professor Connor Duggan and The award categories are as follows: Dr Kerensa Hocken, plus a special presentation A. Best overall publication from best-selling author of “The Chimp Paradox”, psychiatrist Professor Steve Peters. B. Best publication when the author has no more than 6 previous publications A forensic mental health poster presentation was also held during the conference, and was won by C. Best publication flowing from work during doctoral Nikki Chambers and Lynsey Regan (Community studies or as part of a doctoral dissertation Forensics, Nottinghamshire Healthcare NHS D. Best publication by an employee of Nottinghamshire Foundation Trust) for their project: “Liaison and Healthcare NHS Foundation Trust who does not Diversion in Nottingham - working with people have a substantive contract with a university arrested for possessing and down loading indecent images of children and child sexual Poster winners Nikki and Lynsey are presented E. Best publication co-authored with a person with exploitation”. their prize by Dr Simon Gibbon lived experience of mental distress or a current or former user of mental health services F. Best publication by a member of the Institute of Mental Health who is a person with lived experience of mental distress or a current or former user of mental health services

Each award carries a prize value of £100*. (* award to be used on a research related item of the winner’s choice) For more information and for full award criteria please visit the Institute’s website.

Click here to read more www.institutemh.org.uk

07 @InstituteMH www.institutemh.org.uk Centre for Health and Justice

Mental health hospitalisation discharge consensus study seeks panel members

Researchers from Nottingham University Business School in collaboration with the Greater Manchester Patient Safety Translational Research Centre are looking to form an online panel of experts to gather opinions and vote on items concerning discharge from an acute mental health unit. to make a complaint against the police. They are interested in finding out which items people think are Institute experts This is due to a number of complex and important to ensure discharge is safe. The group will include publish new research interacting reasons. The IOPC is keen service users, carers, researchers, end-users of research (NHS to explore opportunities to improve how managers, commissioners, charities, etc.) and mental health revealing barriers we work and utilise specialist knowledge professionals. to using police and experience from within policing, If you consider yourself to be from any of these groups and the charitable sector, health service and would be willing to complete a series of 3-4 short, online complaints system academia. questionnaires over the next two/three months, please follow New research from the Institute of Mental the link below. “This research was commissioned to Health’s Centre for Health and Justice, listen to those who are seldom heard Panel members that complete all of the questionnaires will commissioned by the Independent Office and consider how we can do things receive a £20 Amazon voucher for their time and an option to for Police Conduct (IOPC), has revealed differently to ensure our service be named in academic publications. The questionnaires can people living with mental health problems meets the needs of a vulnerable be completed on a mobile device and will each take 5 to 20 consider there to be a number of barriers group with low confidence in the minutes. The total duration should be no more than one hour. to using the police complaints system. police complaints system.” Please contact Led by Professor Eddie Kane and Dr Natasha Tyler: [email protected] Dr Louise Thomson, the Centre for Questions on how the complaints for further information about the project. Health and Justice research will help system could be improved produced the IOPC to continuously improve their varied results but indicated participants systems, reduce complexity and create would appreciate help in making a a complaints system that can sensitively complaint, either through a specific Click here handle the needs of someone living with advocate, a step-by-step guide or from to complete the first questionnaire mental health problems. a mental health support service. Michael Lockwood, Director General of the IOPC, said: “People with mental health Click here to read more concerns find it particularly challenging www.institutemh.org.uk

08 @InstituteMH www.institutemh.org.uk Appointments and appearances

New fellowships for Professor Paul Crawford Care and Cure Paul Crawford, lead for the Institute’s Centre for magazine feature for Social Futures, has received two new fellowships. He has recently been appointed a fellow of the Royal TAnDem students Society of Public Health, and a fellow of the Mental TAnDem is a training centre for PhD Health Collective. Paul was delighted with his new researchers that focuses on the arts appointments; and dementia. Supported by Alzheimer’s Society and the It is wonderful to have my work in pioneering universities of Nottingham and Worcester, the health humanities recognised in this way. Health TAnDem Doctoral Training Centre supports humanities is a global field that advances the seven PhD students to build a strong evidence application of the arts and humanities in healthcare, base for the use of creative arts in dementia, health and wellbeing. My recent work in association highlighting which types of activities bring the with the Mental Health Foundation, has included most benefit and at what stage in the dementia BBC Radio 4 “A history of delusions” presenting a rich digital showcase of work carried journey, helping to guide the development of A new series on BBC Radio 4 explored the history of out in a £1.5m programme funded by the Arts future services. The work of the PhD students delusions and included interviews with two Institute and Humanities Research Council. The project was recently reviewed in the Alzheimer’s Society of Mental Health research advisors who have investigated how creative practices can promote “Care and Cure” magazine. experienced extreme delusions in their lives. mutual recovery within and between groups of people with lived experience of mental health challenges, Debbie was interviewed by Clinical psychologist family carers and health practitioners. I am also a Click here to read more Professor Daniel Freeman about a period of extreme co-applicant for ‘MARCH’, a £1.25m programme www.alzheimers.org.uk delusions that she experienced at the end of 1999. funded by UK Research and Innovation. As one of The interview was part of a new series that explored only eight national awards, ‘MARCH’ aims to increase delusions, through both historic and contemporary the capacity for shared social and cultural assets case studies, in order to better understand this for mental health. As with much of my work in health common but too-often unexplored human experience. humanities, the mission is to increase public access Royal College of Physicians of Njoki shared her experience of a very modern-day to mental health solutions. themed delusion - she believed she was part of a Edinburgh symposium presentation reality TV show. Professor Tom Dening, lead for the Centre for Click here to read more Dementia, delivered an oral presentation on arts and Click here to read more www.mentalhealth.org.uk dementia at this year’s Royal College of Physicians www.institutemh.org.uk of Edinburgh St Andrew’s Day Festival Symposium.

09 @InstituteMH www.institutemh.org.uk

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health mental in Gaps Improving psychological psychological Improving The Spirituality Project: Seeking research participants

An ESRC Doctoral research project based at the Institute of Mental Health and School of Health Sciences is now recruiting participants who would like to share their experiences and stories of spirituality and mental health, however these concepts make sense to the individual. The study aims to explore the role of spirituality in mental health and recovery as this dimension is often omitted from professional and clinical training and practice, despite evidence demonstrating that it can be a key component in mental health experiences and recovery. The study aims to contribute towards improving mental health professional’s understanding of people’s spiritual needs and experiences. If you are interested or would like further information please contact Katja Milner: [email protected]

Large international study discovers 11 new epilepsy genes

Don’t forget – if you want to keep up Epilepsy is a common neurological condition with To find new epilepsy genes, a large study was a controversial past. The cause was unknown undertaken by more than 150 researchers to date with news from the Institute and often shrouded in mystery, with little known from multiple centres in the UK, Europe, USA, please remember to follow us on about the specific genes responsible for the most Brazil, Hong Kong and Australia as part of the common forms of the disorder. This is particularly International League Against Epilepsy Consortium important when we consider that a third of the on Complex Epilepsies. Jennifer Jamnadas-Khoda Twitter @InstituteMH or visit 65 million patients worldwide will not become is a researcher based at the Institute of Mental seizure-free using current treatment options. Health and contributed to this global study. our website institutemh.org.uk

To find new epilepsy genes, a large study was undertaken by more than Click here to read more 150 researchers... www.institutemh.org.uk

11 @InstituteMH www.institutemh.org.uk

Events

Centre for Mental Nottinghamshire Patient, 29 JAN Health & Human Rights: 14 FEB Service User, Carer and Registration now o 2019 2019 pen 2019 Seminar Series Citizen Networking Event Join us for our fifth international recovery Join us for this exciting new seminar programme This free event is being organised by the research conference addressing: as part of the new Centre for Mental Health and Academic Health Science Network to inform, Mental health and human rights Human Rights based at the Institute for Mental inspire, motivate and support patients, carers Supporting recovery through services Health. “A panel session on good practise when and citizens to get involved in healthcare services Supporting recovery through communities researching people with disabilities and people across Nottinghamshire. Recovery and power Keynote speakers will include: Steven Allen, Alison Faulkner, Michelle Funk, Joseph Leong, with mental health conditions” Soumitra Pathare, Michael Rowe, Mike Slade, Vicky Stergiopoulos and others! 9:30am – 3:30pm, Trent Vineyard Conference Visit researchintorecovery.com/RonR19 for the latest 2-3pm, Room A08 Centre, Lenton Lane, Nottingham programme and to register your place. Institute of Mental Health @institutemh #RonR19 Click here to read more Click here to read more www.eventbrite.co.uk www.institutemh.org.uk

Research and Education Excellence for Innovation

Centre for Dementia Centre for Mental Institute of Mental Health: 13 FEB Technology and 19 FEB Health & Human Rights: 21 MAY Annual Research Day 2019 Dementia: updates 2019 2019 Seminar Series 2019 from the INDUCT project “Addiction: Causes, Consequences, The Institute of Mental Health (IMH) will be hosting its 7th Harleen Rai and Aline C Barraso will present the and Society’s Responses” Annual Research Day to highlight the work of the Institute’s latest findings from the European-wide INDUCT 2-3pm Room A08, doctoral candidates, Managed Innovation Networks (MINs), dementia research project. Institute of Mental Health and early-career researchers (including research assistants, research fellows, and research-active clinicians and service users). Call for papers is now open. Click here to read more Click here to read more www.institutemh.org.uk www.institutemh.org.uk Click here to read more www.institutemh.org.uk

12 @InstituteMH www.institutemh.org.uk