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“You Are with Someone Who Is a Fighter”: Constructing a Model of Transformation Which Can Occur in Surviving Breast Cancer

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“You Are with Someone Who Is a Fighter”: Constructing a Model of Transformation Which Can Occur in Surviving Breast Cancer University of San Diego Digital USD Dissertations Theses and Dissertations 2003 “You are with Someone Who is a Fighter”: Constructing a Model of Transformation which Can Occur in Surviving Breast Cancer Helen Hays Eckmann EdD University of San Diego Follow this and additional works at: https://digital.sandiego.edu/dissertations Part of the Leadership Studies Commons Digital USD Citation Eckmann, Helen Hays EdD, "“You are with Someone Who is a Fighter”: Constructing a Model of Transformation which Can Occur in Surviving Breast Cancer" (2003). Dissertations. 707. https://digital.sandiego.edu/dissertations/707 This Dissertation: Open Access is brought to you for free and open access by the Theses and Dissertations at Digital USD. It has been accepted for inclusion in Dissertations by an authorized administrator of Digital USD. For more information, please contact [email protected]. “YOU ARE WITH SOMEONE WHO IS A FIGHTER”: CONSTRUCTING A MODEL OF TRANSFORMATION WHICH CAN OCCUR IN SURVIVING BREAST CANCER A Dissertation Presented to the Faculty of University of San Diego In Partial Fulfillment of the Requirements for the Degree Doctor of Education in Organizational Leadership by Helen Hays Eckmann Spring, 2003 Reproduced with permission of the copyright owner. Further reproduction prohibited without permission. ii ©2003 by Helen Hays Eckmann Reproduced with permission of the copyright owner. Further reproduction prohibited without permission. ACKNOWLEDGEMENTS First, I acknowledge my husband, Jim, who has encouraged me and taught me about leadership, courage, ethics and the value of hard work by the way he lives and the way he loves me. Thank you to my chair, Dr. Kathleen Collins, for encouraging me to write both what I know and what I think. Thanks also to Dr. Bob Donmoyer, and to his wife, June, for their incredible talent, support, enthusiasm, guidance and joy concerning this work. I also thank Dr. Dan Miller and Dr. Fred Galloway for encouraging me through the sensitive nature of this work. Thank you also to Dr. Ruth Behar for her assistance and suggestions on the methodology section of this work. I thank the women who love me and have helped me through this work: Billie Sue Holt, AlanaNicastro, Leigh Wren Salem and Shelly Marks Valdez. I thank my daughters and daughters-in-law who have helped me to become even more aware of the beauty of being a woman: Laura Eckmann, Laura Hays Galloway, Sharia Hays and Kara Eckmann Powell. I thank my grandchildren, Hannah Hastings, Hali and Emma Galloway, Nathan and Krista Powell and those children who are to follow. I thank the women of this study who demonstrate the ways that crisis can reveal character. Their stories bring honesty and courage to other survivors and to myself. Lastly, I thank God that I am alive. Reproduced with permission of the copyright owner. Further reproduction prohibited without permission. TABLE OF CONTENTS PAGE ACKNOWLEDGEMENTS..................................................................................................... iii LIST OF TABLES.................................................................................................................. vii ABSTRACT.......................................................................................................................... viii CHAPTER PAGE I. INTRODUCTION.........................................................................................................1 Overview ..................................................................................................................1 Crisis Reveals Character ..........................................................................................3 Leadership, Transformation and Storytelling..........................................................9 Implications for the Current Work.........................................................................10 Summary................................................................................................................11 II. METHODOLOGY......................................................................................................13 Study Design..........................................................................................................13 Participants.............................................................................................................18 Interview Procedures............................................................................................ 21 Data Analysis........................................................................................................ 24 III. RESULTS....................................................................................................................37 Overview ............................................................................................................... 37 Theme One- Surprise/Suspense............................................................................ 37 Theme Two - Study........................................................................................... 38 Theme Three - Separation.................................................................................... 38 Theme Four - Surrender/Reflection..................................................................... 39 Reproduced with permission of the copyright owner. Further reproduction prohibited without permission. CHAPTERS .............................................................................................................PAGE Theme Five - Struggle/Strengthen....................................................................... 39 Dani’s Story.......................................................................................................... 41 Jorie’s Story...........................................................................................................62 Arlene’s Story........................................................................................................74 Krissy’s Story........................................................................................................87 Sherry’s Story......................................................................................................101 Samm’s Story.......................................................................................................117 Judy’s Story.........................................................................................................133 My Story..............................................................................................................147 IV. DISCUSSION & IMPLICATIONS...........................................................................159 Overview ........................................................................................................159 The Five Themes Identified...........................................................................160 The Five Themes Became Stages ..................................................................163 The Five Stages Become the Sophia Model..................................................163 Details of Stage One—This can’t be happening to me.”...............................168 Details of Stage Two—“I want to get smarter than cancer.”.........................170 Details of Stage Three—“I felt that I had just lost my old life.”...................171 Details of Stage Four—“You have to accept your body all over again.” 174 Details of Stage Five—“You are with someone who is a fighter.” ...............175 Reactions from the Women of this Study to the Five Themes and to the Sophia Model.......................................................................................... 177 Subsequent Stages..........................................................................................178 Conclusions....................................................................................................178 Explanation of Tables/Appendices................................................................182 Reproduced with permission of the copyright owner. Further reproduction prohibited without permission. CHAPTERS...................................................................................................................... PAGE Limitations...........................................................................................................183 SOPHIA MODEL..................................................................................................................187 REFERENCES ..................................................................................................................188 APPENDICES A. CONSENT FORM...................................................................................................... 196 B. LETTER TO PARTICIPANTS 1) To verify transcript.............................................. 198 C. LETTER TO PARTICIPANTS 2) To verify themes/model...................................... 200 D. KRISSY WITH HER ART......................................................................................... 203 E. TABLES ..................................................................................................................205 Table 1 - Ages and Dates..............................................................................206 Table 2 - Family Factors...............................................................................207 Table 3 - Methods of Diagnosis....................................................................208 Table 4 - Methods of Treatment....................................................................209
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