Redefining Autism
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Cognitive and Affective Control Deficits in Adults with Autism
City University of New York (CUNY) CUNY Academic Works All Dissertations, Theses, and Capstone Projects Dissertations, Theses, and Capstone Projects 9-2017 Cognitive and Affective Control Deficits in Adults with utismA Spectrum Disorder Melissa-Ann Mackie The Graduate Center, City University of New York How does access to this work benefit ou?y Let us know! More information about this work at: https://academicworks.cuny.edu/gc_etds/2271 Discover additional works at: https://academicworks.cuny.edu This work is made publicly available by the City University of New York (CUNY). Contact: [email protected] COGNITIVE AND AFFECTIVE CONTROL DEFICITS IN ADULTS WITH AUTISM SPECTRUM DISORDER by MELISSA-ANN MACKIE, M.S., M.PHIL. A dissertation submitted to the Graduate Faculty in Psychology in partial fulfillment of the of the requirements of the degree of Doctor of Philosophy, The City University of New York 2017 Ó 2017 MELISSA-ANN MACKIE All Rights Reserved ii Cognitive and Affective Control Deficits in Adults with Autism Spectrum Disorder by Melissa-Ann Mackie, M.S., M.Phil. This manuscript has been read and accepted for the Graduate Faculty in Psychology in satisfaction of the dissertation requirement for the degree of Doctor of Philosophy. ______________________ ____________________________________ Date Jin Fan, Ph.D. Chair of Examining Committee ______________________ ____________________________________ Date Richard Bodnar, Ph.D. Executive Officer Supervisory Committee: Jin Fan, Ph.D. Jeffrey Halperin, Ph.D. Justin Storbeck, Ph.D. Kurt Schulz, Ph.D. A. Ting Wang, Ph.D. THE CITY UNIVERSITY OF NEW YORK iii ABSTRACT Cognitive and Affective Control Deficits in Adults with Autism Spectrum Disorder by Melissa-Ann Mackie, M.S., M.Phil. -
The TEACCH Program in the Era of Evidence-Based Practice
J Autism Dev Disord DOI 10.1007/s10803-009-0901-6 ORIGINAL PAPER The TEACCH Program in the Era of Evidence-Based Practice Gary B. Mesibov • Victoria Shea Ó Springer Science+Business Media, LLC 2009 Abstract ‘Evidence-based practice’ as initially defined in children with autism (e.g., Rogers 1998; Rogers and Vis- medicine and adult psychotherapy had limited applicability mara 2008). to autism interventions, but recent elaborations of the The initial definitions for EST in psychology were quite concept by the American Psychological Association (Am rigid (e.g., requiring evidence from at least two group Psychol 61: 271–285, 2006) and Kazdin (Am Psychol studies using randomized controlled trials or nine single- 63(1):146–159, 2008) have increased its relevance to our case studies, using a treatment manual, and employing a field. This article discusses the TEACCH program (of research design that demonstrated that the intervention which the first author is director) as an example of an being studied was better than another treatment [not just evidence-based practice in light of recent formulations of ‘no treatment’ or a ‘waiting list control group’]). These that concept. criteria, designed to evaluate adult psychotherapy, were not a particularly good fit for evaluating autism interventions Keywords TEACCH Á Evidence-based because of the relatively limited research base and the extremely heterogeneous population of people with autism, among other factors (Mesibov and Shea 2009) (The term Brief History of Evidence-Based Practice autism will be used from this point forward to mean all autism spectrum disorders.). The concept of evidence-based interventions began in the Actually, many psychologists chafed under the early field of medicine in the 1970’s and in recent years has been EST criteria, leading the American Psychological Associ- employed in many other disciplines. -
The Effectiveness of Snoezelen in Reducing
234 The effectiveness of Snoezelen in reducing stereotyping in ARTICLE ORIGINAL adults with intellectual disabilities: a case study of Occupational Therapy intervention in multisensory stimulation rooms A eficácia do Snoezelen na redução das estereotipias em adultos com deficiência intelectual: um estudo de caso da intervenção da terapia ocupacional em salas de estimulação multissensorial* Ana Sofia Pinto Lopes1, Janine Vanessa Martins Araújo1, Marco Paulo Vieira Ferreira1, Jaime Emanuel Moreira Ribeiro2 http://dx.doi.org/10.11606/issn.2238-6149.v26i2p234-243 Lopes ASP, Araújo JVM,Ferreira MPV, Ribeiro JEM. The KEYWORDS: Stereotyped behavior; Intellectual disability; effectiveness of Snoezelen in reducing stereotyping in adults with Occupational Therapy. intellectual disabilities: a case study of Occupational Therapy intervention in multisensory stimulation rooms. Rev Ter Ocup Lopes ASP, Araújo JVM, Ferreira MPV, Ribeiro JEM. Univ São Paulo. 2015 May-Aug.;26(2):234-43. A eficácia do Snoezelen na redução das estereotipias em adultos com deficiência intelectual: um estudo de caso da ABSTRACT: There is little evidence of the effectiveness of intervenção da terapia ocupacional em salas de estimulação intervention in Snoezelen rooms in stereotyping reduction multissensorial. Rev Ter Ocup Univ São Paulo. 2015 in adults with intellectual disabilities. In this direction, the maio-ago.;26(2):234-43. present study sought to evaluate the relationship between this multisensory stimulation and stereotyping reduction RESUMO: Existem escassas evidências sobre a eficácia da in adults with intellectual disabilities. Through the case intervenção em salas de Snoezelen na redução de estereotipias em study methodology, the behavior of a subject was analyzed adultos com deficiência intelectual. Neste sentido, o presente estudo before, during and after the multisensory stimulation in pretendeu avaliar a relação entre esta estimulação multissensorial e Snoezelen rooms for ten biweekly sessions, lasting an hour a redução de estereotipias em adultos com deficiência intelectual. -
Parents Guide to ADHD
Parents Guide to ADHD Copyright 2016. Child Mind Institute Parents Guide to ADHD Children with attention-deficit hyperactivity disorder (ADHD) find it unusually difficult to concentrate on tasks, to pay attention, to sit still and to control impulsive behavior. This guide offers parents the information you need to understand the behaviors associated with the disorder and make effective decisions for your child about diagnosis and treatment. What Is ADHD? Attention-deficit hyperactivity disorder, or ADHD, is a condition that makes it unusually difficult for children to concentrate, to pay attention, to sit still, to follow directions and to control impulsive behavior. While all young children are at times distractible, restless and oblivious to parents’ and teachers’ instructions, kids with ADHD behave this way much more often than other children their age. And their inability to settle down, focus and follow through on tasks in age-appropriate ways makes it very hard for them to do what’s expected of them at school. It can also lead to conflict at home and difficulty getting along with peers. Symptoms of ADHD Symptoms of ADHD are divided into two groups: inattentive behaviors and hyperactive and impulsive behaviors. Inattentive symptoms of ADHD: — Makes careless mistakes — Is easily distracted — Doesn’t seem to be listening when spoken to directly — Has difficulty following instructions — Has trouble organizing — Avoids or dislikes sustained effort — Is forgetful, always losing things Child Mind Institute | Page 2 Parents Guide to ADHD Hyperactive or impulsive symptoms of ADHD: — Fidgeting or squirming, trouble staying in one place or waiting his turn Kids who have inattentive — Excessive running and climbing symptoms may start to — Trouble playing quietly struggle in the middle of — Extreme impatience elementary school, when — Always seems to be “on the go” or “driven by a motor” it becomes increasingly — Excessive talking or interrupting, blurting out answers difficult for them to Some children exhibit only the first group of symptoms, and some exhibit keep up. -
Autism, Asperger's & Theory of Mind a Literature Review
Autism, Asperger©s & Theory of Mind A Literature Review Abstract: This literature review examines the history and pertinent research on Autism, a brain development disorder characterized by social impairment, communication difficulties and ritualistic behavior, and Theory of Mind, the ability for one to impute mental states to the self and to others. An introduction to these topics is followed by an investigation of whether Theory of Mind is missing in cases of autism, whether it is truly a core deficit of the disorder and what the ramifications are if this is the case. Also examined is whether this deficit is also present in cases of Asperger©s syndrome, where language is not delayed and IQs are usually high, as there has been controversy in this area. Possible biological connections are examined, including the Mirror Neuron system. A look at the world of treatment and adaptive technology solutions for the deficit is also undertaken. Lars Sorensen Cognition and Children©s Thinking Seminar : 295:590 Spring 2009 1 Introduction Theory of mind (ToM), the ability to impute mental states to the self and others and make reasoned decisions based on this information, is a cognitive skill usually found in typical children by the age of four or five years old. It is now believed to be a core deficit in cases of autism, a neurological disorder characterized by social and communication impairment, repetitive behavior and delayed speech. A great deal of research has been done in the last thirty years that focuses on this area. Do autistic children -
Autism Terminology Guidelines
The language we use to talk about autism is important. A paper published in our journal (Kenny, Hattersley, Molins, Buckley, Povey & Pellicano, 2016) reported the results of a survey of UK stakeholders connected to autism, to enquire about preferences regarding the use of language. Based on the survey results, we have created guidelines on terms which are most acceptable to stakeholders in writing about autism. Whilst these guidelines are flexible, we would like researchers to be sensitive to the preferences expressed to us by the UK autism community. Preferred language The survey highlighted that there is no one preferred way to talk about autism, and researchers must be sensitive to the differing perspectives on this issue. Amongst autistic adults, the term ‘autistic person/people’ was the most commonly preferred term. The most preferred term amongst all stakeholders, on average, was ‘people on the autism spectrum’. Non-preferred language: 1. Suffers from OR is a victim of autism. Consider using the following terms instead: o is autistic o is on the autism spectrum o has autism / an autism spectrum disorder (ASD) / an autism spectrum condition (ASC) (Note: The term ASD is used by many people but some prefer the term 'autism spectrum condition' or 'on the autism spectrum' because it avoids the negative connotations of 'disability' or 'disorder'.) 2. Kanner’s autism 3. Referring to autism as a disease / illness. Consider using the following instead: o autism is a disability o autism is a condition 4. Retarded / mentally handicapped / backward. These terms are considered derogatory and offensive by members of the autism community and we would advise that they not be used. -
Autism--It's Different in Girls
M E N T A L H E A L T H Autism—It's Different in Girls New research suggests the disorder often looks different in females, many of whom are being misdiagnosed and missing out on the support they need ﺃﻋﺭﺽ ﻫﺫﺍ ﺑﺎﻟﻠﻐﺔ ﺍﻟﻌﺭﺑﻳﺔ By Maia Szalavitz on March 1, 2016 Credit: PAMELA N. MARTIN Getty Images When Frances was an infant, she was late to babble, walk and talk. She was three before she would respond to her own name. Although there were hints that something was unusual about her development, the last thing her parents suspected was autism. “She was very social and a very happy, easy baby,” says Kevin Pelphrey, Frances's father. Pelphrey is a leading autism researcher at Yale University's world-renowned Child Study Center. But even he did not recognize the condition in his daughter, who was finally diagnosed at about five years of age. Today Frances is a slender, lightly freckled 12-year- old with her dad's warm brown eyes. Like many girls her age, she is shy but also has strong opinions about what she does and does not want. At lunchtime, she and her little brother, Lowell, engage in some classic sibling squabbling—“Mom, he's kicking me!” Lowell, seven, received an autism diagnosis much earlier, at 16 months. Their mom, Page, can recall how different the diagnostic process was for her two children. With Lowell, it was a snap. With Frances, she says, they went from doctor to doctor and were told to simply watch and wait—or that there were various physical reasons for her delays, such as not being able to see well because of an eye condition called strabismus that would require surgical treatment at 20 months. -
The Cerebral Subject and the Challenge of Neurodiversity
BioSocieties (2009), 4, 425–445 ª London School of Economics and Political Science doi:10.1017/S1745855209990287 The Cerebral Subject and the Challenge of Neurodiversity Francisco Ortega Institute for Social Medicine, State University of Rio de Janeiro, Rua Saˇ o Francisco Xavier 524, Rio de Janeiro CEP 20550-900, Brazil E-mail: [email protected] Abstract The neurodiversity movement has so far been dominated by autistic people who believe their condition is not a disease to be treated and, if possible, cured, but rather a human specificity (like sex or race) that must be equally respected. Autistic self-advocates largely oppose groups of parents of autistic children and professionals searching for a cure for autism. This article discusses the posi- tions of the pro-cure and anti-cure groups. It also addresses the emergence of autistic cultures and various issues concerning autistic identities. It shows how identity issues are frequently linked to a ‘neurological self-awareness’ and a rejection of psychological interpretations. It argues that the preference for cerebral explanations cannot be reduced to an aversion to psychoanalysis or psychological culture. Instead, such preference must be understood within the context of the dif- fusion of neuroscientific claims beyond the laboratory and their penetration in different domains of life in contemporary biomedicalized societies. Within this framework, neuroscientific theories, prac- tices, technologies and therapies are influencing the ways we think about ourselves and relate to others, favoring forms of neurological or cerebral subjectivation. The article shows how neuroscien- tific claims are taken up in the formation of identities, as well as social and community networks. -
Before You Donate to Autism Speaks, Consider the Facts
Before you donate to Autism Speaks, Consider the facts Autism Speaks’ Budget Very little money donated to Autism source: Autism Speaks 990 Non-Profit Tax Exemption Form, 2018* Speaks goes toward helping autistic Research “Awareness” & people and families. Lobbying Only 1% of Autism Speaks’ budget goes towards the “Family Service” grants that are the organization’s means of funding services. Autism Speaks spends 20x as much—20%—on fundraising. Although Autism Speaks has not 27% 48% prioritized services with a practical impact for families and individuals in its budget, its rates of executive pay are the highest in the autism world: some salaries exceed $600,000 a year. 20% 4% Autism Speaks talks about us 1% without us. Fundraising Misc. Family Services Autism Speaks has only 1 autistic person out of a total of 28 individuals on its Board of Directors. Instead, donate to organizations By contrast, 23 out of 28 board members represent that help autistic people: major corporations, including current and former Autistic Self Advocacy Network (ASAN) CEOs and senior executives of PayPal, Goldman provides support, community, and public policy Sachs, White Castle, FX Networks, Virgin Mobile, advocacy, by and for people on the autism spectrum. eBay, AMC Networks, L’Oreal, CBS, SiriusXM, autisticadvocacy.org American Express, S.C. Johnson, and Royal Bank Autistic Women & Nonbinary Network (AWN) of Scotland. seeks to share information which works to build acceptance and understanding of disability, while dispelling stereotypes and misinformation which Autism Speaks’ fundraising strategies perpetuate unnecessary fears surrounding an promote fear, stigma, and prejudice autism diagnosis. against autistic people. -
REVIEW ARTICLE the Genetics of Autism
REVIEW ARTICLE The Genetics of Autism Rebecca Muhle, BA*; Stephanie V. Trentacoste, BA*; and Isabelle Rapin, MD‡ ABSTRACT. Autism is a complex, behaviorally de- tribution of a few well characterized X-linked disorders, fined, static disorder of the immature brain that is of male-to-male transmission in a number of families rules great concern to the practicing pediatrician because of an out X-linkage as the prevailing mode of inheritance. The astonishing 556% reported increase in pediatric preva- recurrence rate in siblings of affected children is ϳ2% to lence between 1991 and 1997, to a prevalence higher than 8%, much higher than the prevalence rate in the general that of spina bifida, cancer, or Down syndrome. This population but much lower than in single-gene diseases. jump is probably attributable to heightened awareness Twin studies reported 60% concordance for classic au- and changing diagnostic criteria rather than to new en- tism in monozygotic (MZ) twins versus 0 in dizygotic vironmental influences. Autism is not a disease but a (DZ) twins, the higher MZ concordance attesting to ge- syndrome with multiple nongenetic and genetic causes. netic inheritance as the predominant causative agent. By autism (the autistic spectrum disorders [ASDs]), we Reevaluation for a broader autistic phenotype that in- mean the wide spectrum of developmental disorders cluded communication and social disorders increased characterized by impairments in 3 behavioral domains: 1) concordance remarkably from 60% to 92% in MZ twins social interaction; 2) language, communication, and and from 0% to 10% in DZ pairs. This suggests that imaginative play; and 3) range of interests and activities. -
Autism Spectrum Disorder
SPRING 2014 HALDIMAND-NORFOLK HEALTH UNIT COMMUNICATION MATTERS A NEWSLETTER FOR PARENTS, TEACHERS, EARLY LEARNING PROVIDERS AND CAREGIVERS OF PRESCHOOL-AGED CHILDREN. Autism spectrum disorder The last time we featured the topic of autism The following table highlights the most important differences between the DSM-5 and in Communication Matters was 2002. the previous edition, DSM-4. A lot has changed since then! More DSM IV DSM V people receive this diagnosis now than Diagnostic Labels Autism Spectrum Disorders Autism Spectrum Disorder: ever. Scientists are working hard to identify include: Level 1, Level 2, Level 3 the causes of autism. And in Ontario, the • Autistic Disorder, (Levels are defined by Ministry of Children and Youth funds a • Asperger’s Disorder, how much support the range of services for children with autism • PDD-NOS (Pervasive individual needs) and their families. Developmental Disorder Not Otherwise Specified) In this issue, we’ll look at some of the Criteria for diagnosis • Impairments in • Impaired Social recent information available about Autism Communication Communication and/or Spectrum Disorder. • Impairments in Social Interaction Interaction • Restricted and/or • Restricted Interests and Repetitive Behaviors What is Autism Spectrum Repetitive Behaviours. Disorder (ASD)? Age of diagnosis Geared towards Symptoms must show in Autism spectrum disorder is a neurological identification in school-aged early childhood even if condition. It affects the way the brain children diagnosis isn’t made until functions and results in difficulties with later. social communication. People with the disorder also exhibit unusual patterns of down to a few things that may have a in the old diagnosis, social skills and behaviour, activities and interests. -
How the Autistic Mind Functions – an Insider’S Report
www.kosmospublishers.com [email protected] DOI: 10.37722/JNPABR.202031 Review Article Journal of Neurology, Psychiatry and Brain Research JNPBR-154 ISSN: 2641 -6816 How the Autistic Mind Functions – an Insider’s Report David Rowland* Independent researcher registered with ORCID, Canada Received Date: December 07, 2020; Accepted Date: December 14, 2020; Published Date: December 23, 2020 *Corresponding author: David Rowland, Independent researcher registered with ORCID, Canada. Email: [email protected] Abstract Introduction Autism can most clearly be understood from the inside Contrary to popular misconception, autism is a rare condition looking out. Those who are looking in have no frame of that may affect only about 0.6% of the general population [1]. reference by which to readily understand what it is they are Also contrary to popular misconception, autism is neither observing. Autism is neither neurodevelopmental nor a neurodevelopment nor a disorder. It is simply an inherent disorder. It is simply an inherent neurophysiological difference neurophysiological difference in how the brain processes in how the brain processes information. We who are autistic live information [2, 3]. We who are autistic live in a specialized in a specialized inner space that is entirely intellectual, free inner space that is entirely intellectual, free from emotional and from emotional and social distractions. We observe the world social distractions. We observe the world in scholarly detail but in scholarly detail but without any emotional attachment to without any emotional attachment to what we see [4]. Retrospective what we see. analysis indicates that Newton, Jefferson, Darwin, Edison, Tesla, and Einstein were autistic [5].