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By JENNIFER COOK O'toole Didyou ink on the sP ectrum By JENNIFER COOK O’TOOLE you know that a rue-anenome is these characteristics will be the diagnostic criteria an imperfect flower? Now, until for whether or not something is a flower. yesterday, I’ll admit I would’ve Did Would that be accurate? They saw, noted, and reported a pattern indigestion, even nonspecific, general As the red dress campaign has gone guessed it was actually some oceanic creature. of characteristics, just as we did with malaise because they didn’t experience international, gaining much more public But it’s not. It’s a pretty little wildflower - albeit, an Well, partly. Some flowers do have all of these parts. our flowers. But instead of recording numbness down their arms or shortness of awareness, popular culture - and medical “imperfect” one. However, if we had picked another bunch of rue- petals and filaments and then creating breath. In other words, they fatally ignored professionals in general - have begun anenomes, we might just have easily seen all of the OK, let’s stop right here. Let me promise you a “diagnostic criteria for flowers,” these normal female histology simply because to integrate the female expression of same characteristics - except the last two. Instead, something. This is not a lesson in botany. So even if scientists (like Dr. Hans Asperger himself) everyone expected female bodies with heart disease into their understanding of in this second bunch of flowers, we would’ve seen plants aren’t your thing, just go along for a moment watched people. Children. And primarily, the same medical condition to present overall symptomology. In other words, observed a carpel - containing the ovary, stigma or two. they watched boys. exactly as male patients did. symptoms that “look like a female heart and style. So - what does that mean now? Are these attack” are finally catching eyes and Alright. Back to the rue-anenome. Let’s be very other blossoms not flowers? Not surprisingly, then, the constellation Let me be clear. I don’t believe that doctors minds and attention as many additional clinical and professional now - looking carefully and of behaviours, strengths, challenges, and were intentionally being irresponsible or Of course not. You see, it turns out that a rue- manifestations of “a heart attack,” regardless taking notes. And what do we see? Well, beyond tendencies that became the medical and unprofessional. They did the best with anenome is one of the very few plants whose flowers of the patient’s gender. saying, “Ooh! It’s pretty!”, if we truly dedicated a year public “profile of autism” (and Asperger’s) what they knew - but what they knew was have either male or female parts, but not both. to watching one blossom on this pretty plant, we is distinctively, decidedly “male.” More boys decidedly (and disturbingly) incomplete. Autism is pretty much the same. might record that the flower: That’s what earns the designation “imperfect.” are, logically, going to fit a profile that was And as Maya Angelou said, “When you Official diagnostic tests - even the general created by observing and describing boys! know better, you must do better.” • blooms in early spring Most flowers we know - roses, tulips, daffodils - are way society at large conceives of autism “perfect.” They include both male and female parts; The male experience of floweriness or and Aspergers - deploy criteria developed • has petals we’d never have to make a qualification that “Male” autism - or hunger or laughter – is neither by men based upon patterns they • has sepals (small leaves under the stem) roses and “female” roses are similar, but a little bit neutral nor universal. It’s valid. But it’s only observed in boys. Of course more boys different in the way they express their ‘rosiness.’ part of the story. than girls will fit those criteria - even now. has a peduncle (a stem) • We can just say “roses are....” and finish the sentence. If you define a “child” as a young person Until quite recently, women around the with a head, gut, and testes - girls don’t fit • has pollen-producing anthers world were dying in terrific numbers from But in the case of rue-anenomes, one blossom - or the bill then, now, or ever. • has slender filaments even many of them - cannot represent all. heart disease because they were looking for “traditional, expected” symptoms of Like the “imperfect” flowers, there are Let’s say, in fact, that we notice many rue-anemone Who cares? We should. I certainly do - at least in heart attack, like shooting pains or sudden commonalities between the sexes - both flowers, and while they may vary slightly in size or “people” terms. Here’s why: the vast majority of weakness. And these are, most definitely, blossoms have petals and both genders shape, they all have the same characteristics. And foundational observation of, and work with folks symptoms of heart attack – in men. of Aspies have sensory challenges. But so, we report our findings: a flower is the part of a “on the spectrum” was conducted by male clinicians Women (and their doctors), by and large, one rue-anenome or one gender of Aspie plant that has...and then we fill in our list. Hereafter, with male patients. were dismissing sudden onset lethargy, cannot represent the entire population. 18 AUTISM ASPERGERS NETWORK MAGAZINE AUTISM ASPERGERS NETWORK MAGAZINE 19 Neither can a clinical and “vernacular” Barbies are quietly acting out a Girls who don’t fit in are casually dismissed as “too idea of “what autism/Asperger’s looks historical event or favorite Greek like’” be complete if it is “skewed” to myth. Maybe a child is fascinated with smart,” “oversensitive” and “dramatic.” Adults will more readily include one gender medieval times. While a boy dons his shrug, “Girls can be so mean.” Or they pejoratively and frequently overlook or mislabel sword, his sister may be dressing up attach labels like, “bossy” or “stuck up” when they the other. in a princess gown. Looks “typical.” That’s because with girls, it’s less the ought to use the one that can help: “Aspie.” An inclusive representation of the topic that’s unusual and more the spectrum includes all phenotypic intensity of knowledge. expressions of our neurological hardwiring. But that’s not what’s Go ahead. Ask that “princess” if she’s For example? At two Ivy League universities, the eye as an equal when you’re up there. on” or approached by lots of guys. being taught. Yet. “Cinderella,” and she’ll promptly I achieved a 4.0 during my undergraduate They look at you like an object. And every The “beautiful” one may not -- she’s tell you which of Henry VIII’s wives and graduate studies. Yet (as a WOMEN’s object is disposable. Which is why it annoys intimidating. She’s intelligent, she is Present high-level mental health she is impersonating...and then will STUDIES minor!) I saw my real “successes” me to no end that the world now uses the kind, she’s confident in who she is, and she and educator training (I studied proceed to list all six - in order. as having been accepted into a sorority word “hot” to mean “beautiful.” They are seeks the beauty in other people. Learn to both), testing procedures, and and chosen as a college cheerleader - two NOT the same thing, and the difference be her by learning to be the best you. the public’s general conception My work with families around the stereotypes that, to me, indicated (FINAL) between them is where I got very lost. And of what is or isn’t Aspie/autism, world has shown me time and The truth is that girls who “perform” social acceptance. Albeit subconsciously, very hurt. like our flower, is “imperfect.” And again, correct diagnosis is the key to convincingly do not really understand the I even used my academic acumen to that’s a VERY big deal. Clinically, accurate self-concept, independence, In the simplest of terms, the “hot” girl underlying nuances of their behaviour, ensure those feelings of having “made the result is a 4:1 (or higher) male/ productivity, and overall happiness. is the one all the boys are staring at. and often give the impression of being it” would last. The chosen topic for my female ratio of diagnoses; when On the contrary, the damage of missed The “beautiful” girl is the one all the much more savvy than they actually honors thesis? “Barbie” as a didactic tool of more “gender neutral” instruction is or misdiagnosis is unfathomable. girls are staring at. The “hot” girl needs are. Sadly, perfectly-mimicked, naively- postwar modern femininity in America. In provided and assessment tools are attention, and gets it. She will be “hit wielded flirtation often lands these girls Among women diagnosed as adults, other words, I literally made a thesis out of employed, that number is much rape, abuse, and victimization is, researching my own role in my own society. closer to 1:1. (Dr. Judith Gould, in my personal observation, the The Lorna Wing Centre) But there’s a very big “catch” to all of this. rule rather than the exception. As I wrote to the teenagers reading The Like their struggling male “When you’ve come to believe Asperkid’s (Secret) Book of Social Rules: counterparts, young women are you’re difficult to love,” said one just being entirely themselves -- woman, “you’re willing to accept When I was in high school, I was cast as loyal, curious, intense, and often, crumbs of affection, no matter what the lead in the musical “Damn Yankees.” lonely.
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