OUR HELP AND ACTIVITIES NEAR YOU

BY YOUR SIDE FACING DEMENTIA

HELPING YOU TO GET THE MOST OUT OF LIFE CONTENTS

Dementia - The facts in numbers ...... 4

Foreword ...... 5

Preconceptions are hard to change ...... 6

Sure sign of the illness ...... 7

Association France Alzheimer: Our values ...... 8

Don’t try and face the illness on your own ...... 9

Association France Alzheimer: A range of activities ...... 10

For carers ...... 11

For those with dementia ...... 13

For those with dementia and their carers ...... 15

Where to find our support listing of local association ...... 18

An important note for English speaking readers: in France the term dementia is considered pejorative and to some shocking. These days English speakers use the term freely without any perceived problems. One might say that using the term dementia in France is akin to saying someone is a lunatic in English. So, when in this document the terms “la Maladie Alzheimer et les Maladies Apparentées” or translated “Alzheimer’s disease and related diseases”, this means dementia. Alzheimer’s disease is one of a number of types of dementia as are, for instance, Vascular Dementia and Dementia with Lowy Bodies. These other forms of dementia are also described later in this booklet in the section “Related Illnesses”.

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DEMENTIA 900 000 THE FACTS diagnosed with dementia with 60 % of those living IN NUMBERS in their own homes

More than 1 in 4 people in France over 65 will 2 000 000 be affected by dementia carers are caring for a by 2020 relative with dementia FOREWORD

9 out of 10 French people think last 30 years. Thanks to its network ASSOCIATION 97 local associations that Alzheimer’s is a priority for of departmental associations, local with over 200 offices society today. How could it be contacts and the backbone of its FRANCE otherwise when they see or have seen volunteers and professionals, the ALZHEIMER the consequences of the illness on Association has been able to create the lives of someone near to them; a wide range of practical support IN ACTION ! a neighbour, a colleague or a friend? and the capacity to answer questions The reality is, the illness can affect from those with the dementia and everyone. their carers, and from professionals in medical and social work. Another reality: a person facing the challenges of life with dementia needs As you will see from reading this 2 200 The largest not only human resources, but also brochure families are not alone in volunteers private supporter of practical, material help, meeting facing the disease. You may realise supporting research in France places to provide support and sharing that an active life is still possible with people affected by dementia and time for respite. In other words this illness, but it does need to be with through more than this reality needs a response where support, guidance and information. 1200 everyone has a role to play in showing groups, workshops, etc. and reminding vulnerable families that These are the aims of this brochure and they are not alone. of the departmental associations of France Alzheimer, because the whole Association France Alzheimer has family of a person with dementia been championing this cause for the needs help.

4 5 BY YOUR SIDE FIGHTING DEMENTIA

PRECONCEPTIONS ARE HARD SURE SIGNS OF THE ILLNESS TO CHANGE

Alzheimer’s disease is a natural capacities of someone with dementia consequence of ageing and improve their quality of life. FALSE It’s true that the incidence of the disease increases with age, but it Dementia costs a family dearly can also affect people younger than TRUE Dementia is an expensive 60 years of age. It is an abnormal condition. It is classified as a chronic degeneration of the neurones of which disease (ALD 15 in France) and the the first signs appear on average at person with the disease receives 100% around the age of 70 years. reimbursements for their medical care from the French state. However, Dementia is hereditary 74% of the costs linked to the disease FALSE Fewer than 1% of cases of are related to care (not cure) and are dementia are believed to be hereditary. therefore not covered by French social Losing track of time, frequent mood problems at some stage of their life These hereditary forms of the disease security. changes, forgetting recent events, without being affected by dementia. are linked to particular genetic problems recognising people... mutations. In order to help people cope with Several signs may flag up the onset Which is why, when in doubt, consult Alzheimer’s disease it is useful to start of dementia. Association France your regular doctor. They will put We cannot treat dementia with some preconceptions which Alzheimer offers a checklist of ten signs you in contact , if necessary, with the FALSE There isn’t a cure for dementia colour our notions of dementia. that should alert families. nearest local specialist memory clinic at present, but there are drug or a specialist memory research centre treatments which may help alleviate But also it should be noted that that (CMRR). the symptoms. There are also non- anyone can experience these sorts of medical treatments that can sustain the CHECKLIST: 10 SIGNS WHICH HELP DETECT THE DISEASE • Loss of memory • Losing things forgetting recent events • Changes in ability to make • Difficulties in carrying out daily tasks judgements problems preparing a meal, winter clothes worn in summer, shopping... excessive spending...

• Language problems • Changes in behaviour anxiety, iritability, agitation… • Disorientation with time and environment • Loss of motivation

• Problems with abstract reasoning • Change in personality difficulties doing paperwork, jealousy, obsessive prejudice, managing, finances, writing a cheque excessive exuberance...

6 7 BY YOUR SIDE FIGHTING DEMENTIA

ASSOCIATION FRANCE ALZHEIMER: DON’T TRY AND FACE THE ILLNESS OUR VALUES ON YOUR OWN

Close to you and free paper media, newsletters) and events Faced with the isolation that the AN ESSENTIAL SUPPORT Our help and support is available to (Rencontres France Alzheimer or World illness creates for the sufferer and their everyone and anyone regardless of Alzheimer Day) help raise awareness of carer, families can rely on help from Everywhere in France volunteers of their financial and personal situation. the illness for families affected as well trained local volunteers. It’s essential to Association France Alzheimer devote as for the general public and local and benefit from the experience an expert their time and energy to share their Respect and dignity national authorities. assistance from these individuals. The experience and expertise to the Association France Alzheimer places majority of them have experienced or benefit of those with dementia, their the wellbeing of the person at the Training professionals, currently experience the same situation families and friends. heart of its activities and policies, carers and volunteers as your own. The volunteers are promoting tolerance, respect and Alzheimer’s disease and other forms of capable of assisting and advising you Greeting, listening, giving practical wellbeing. To achieve this we take into dementia requires special training and on a daily basis, and in this case, are courses, fundraising, administration consideration individuals’ and families’ knowledge for professionals in order accompanied by professionals. and communication... each brings their particular needs. to provide specific care for people with own particular interests and set of skills. the disease. Solidarity OUR 5 RECOMMENDATIONS One thing is certain: everyone has a The Association seeks to challenge Supporting research role to play when faced with the illness. the attitudes of society to promote a Association France Alzheimer • Do not remain alone better and more caring understanding donates more than any other private For more information: of dementia... organisation in France, giving more • Do not wait until you are exhausted www.francealzheimer.org than a million euros each year to support projects in medical, human • Don’t hesitate to contact your local and social sciences. France Alzheimer association

OUR MISSION • Speak to your family about your situation Supporting families To enable people suffering the illness • Find out about the different types and their carers cope better with the of support available illness, there are several initiatives to accompany and support them : Cafés Mémoire© (a rendez-vous for meeting and receiving usefull information), Haltes Relais© (activities for both carers and people suffering the illness) Groupe de paroles (group therapy).

Informing and raising awarness We offer information and guidance (website, social networks, publications, VOLUNTEER HELP -

8 9 BY YOUR SIDE FIGHTING DEMENTIA

ASSOCIATION FRANCE ALZHEIMER: A RANGE OF SPECIAL ACTIVITIES

France Alzheimer offers helpers and sufferers a whole series of solutions to fulfill their specific needs. This can be implemented by the helper on their own, the sufferer on their own or the two together.

For Carers

CARE TRAINING INFORMATION SESSIONS MEETINGS

GROUPE RELAXATION DE PAROLE© WORKSHOPS

For Family

WELCOME INDIVIDUAL SOCIAL AND LISTENING INTERVIERWS ENCOUNTERS CREATIVE MENTAL THERAPY STIMULATION WORKSHOPS WORKSHOPS

CAFÉ HALTE RESPITE MÉMOIRE© RELAIS© HOLIDAYS PHYSICAL WORKSHOPS

FOLLOW-UP FOR YOUNGER PATIENTS FOR CARERS Caring for a sufferer requires time, energy, patience and understanding. Association France Alzheimer offers specific support for carers.

10 11 BY YOUR SIDE FIGHTING DEMENTIA

Information meetings Meetings are held regularly to update groups on new discoveries about the disease, to give practical advice in supporting those concerned, to give information about help available and to promote the work of Association France Alzheimer.

Objectives to inform: to share Relaxation workshops knowledge and experience; to broaden These groups are run by an accredited the network. professional in sophrology, yoga, tai- Who benefits?the wider public, social/ chi-chuan or qi-gong. The workshop medical professionals and affected takes the form of relaxation exercises families. which help physical relaxation and which are conducive to feelings of well-being. Time is allocated at the Groupes de Paroles end of the session to allow individuals ‘Groupes de Paroles’ (group therapy to share thoughts and feelings. workshops) have been created to help break down isolation and distress in Objectives to reduce stress: to offer affected families. These groups are led a period of respite and relaxation; to by a psychologist and offer a place for prevent burn-out. support and listening where carers can Who benefits?all carers in groups of unburden themselves. 6-8 people.

Objectives to better understand the illness; to break down isolation; to Carer training sessions value carer’s work; to confront difficult This training is led by a team of two: situations and help make decisions; to a psychologist and a volunteer who help carers seek respite when needed. has previous experience as a family Who benefits?a group of 6 - 12 carer. It brings together understanding family carers. and shared experiences to help non-professional carers who live with and support people with dementia. FOR THOSE This training is usually available as 5-6 sessions lasting a total of 14 hours. WITH DEMENTIA Measures have been put in place Objectives to share experiences; to provide information and practical help to excercise and preserve as long and advice; to help carers understand as possible the cognitive abilities the disease; to help the carer to of sufferers, to improve their recognise their limits. quality of life. Who benefits?groups of 10 - 15 carers.

12 13 BY YOUR SIDE FIGHTING DEMENTIA

Creative therapy workshops These groups are led by trained therapists. The workshops help encourage individuals’ self-expression through creativity by exploring emotional and social relationships. Some workshops (theatre or dance) offer physical activity in a group setting. Others, more for the individual, focus on painting or music...

Objectives to stimulate and foster talents and skills; self-expression; to provide social links. Who benefits?people with early stage Alzheimer’s and other dementias. Carers may also participate in these group activities. Mental stimulation workshops These groups adopt an all-round approach: social, cognitive, and psychological. Led by a (neuro) psychologist or by a leader trained in memory workshops they help with the recall of long-term.

Objectives to stimulate and use long- term memory of those with dementia; to help to maintain social links; to build self-esteem. Who benefits?anyone suffering from Physical workshops dementia in its early or moderate stages Workshops run by trained professionals with no major behavioural problems. (sophrologists, occupational therapists, FOR DEMENTIA personal trainers etc.) offer a physical activity that is properly adapted, SUFFERERS AND practical and safe. THEIR CARERS Several programs exist, which Objectives reconnect with your body, manage stress, express your emotions, enable both carers and sufferers improve physical condition and mental together, to regain control well-being, maintain social links. of their lives while living with Who benefits?people suffering the illness. the illness.

14 15 BY YOUR SIDE FIGHTING DEMENTIA

Individual interviews Social encounters These ‘interviews’ are available with Initiatives run by volunteers provide a psychologist and are a means of a space whereby families can meet, providing psychological support and through a fun and friendly cultural help in accepting a family member’s activity (a meal, a visit, a walk). illness. The interview aims to alleviate the carer’s suffering and help them Objectives to maintain social links; confront the challenges of the illness. build a mutual support network. Who benefits?Families. They can also Objectives to allow the carer to express benefit helpers whose partner, relative themselves; to improve the relationship or friend is in care. Welcome and listening Follow-up for younger patients with the family member with dementia; Whether on the telephone or by This is co-ordinated by a specially to give value to the carer’s role; to email volunteers can reply to questions trained volunteer. The volunteer might present physical and mental burn-out Respite holidays from the general public and from be assisted by professionals; (social of the carer. Each year France Alzheimer enables families affected by the illness with worker, family mediator, psychologist or Who benefits?everyone supporting almost 400 sufferers and their carers a welcome, a listening ear and with occupational therapist) to respond to a person with the illness. An interview to go on holiday and enjoy a relaxing advice. They can also direct people to the needs of the person with dementia can also be requested by the couple break. the most relevant agencies which can and support their family. concerned. offer specific assistance. Objectives to identify support and help Objectives to support the person available to suit the situation of the Objectives to identify support and help with the illness and their family; to Café Memoires© family concerned. available to suit the situation of the breakdown feelings of isolation; to These group meetings or workshops Who benefits?the general public and family concerned. provide social and psychological are jointly run by volunteers and families affected. Who benefits?the general public and support; to help the person see a future psychologists and offer information as families affected. ahead of them. well as allowing families to network Who benefits?those diagnosed under with others in a similar same situation. 65 and their families. The volunteer/ psychologist team Haltes Relais© may be enlarged to include other Get-togethers are organised for groups professionals such as a nutritionist or to share certain activities which can help occupational therapist. the carer hand over their responsibilities for a while. These group get-togethers Objectives to break down isolation; are led by volunteers and professionals; to improve acceptance of those with a psychologist, neuropsychologist or an dementia; to offer information on the art-therapist. illness; to share time together in a convivial atmosphere. Objectives to improve life at home for Who benefits?ten to thirty participants, the couple; to help the couple accept open to the public and organised in the outside help; to combat feelings afternoons lasting two to three hours up of isolation; to help restore to four times a month. self-confidence. Who benefits?both those with dementia and their carers...

16 17 BY YOUR SIDE FIGHTING DEMENTIA

WHERE TO FIND OUR SUPPORT France Alzheimer Ardèche France Alzheimer Aude 7, rue Denis Papin - 07200 Aubenas 21 bis, Cours Mirabeau - 11100 Narbonne LISTING OF LOCAL ASSOCIATION Tél. 04 75 36 34 67 (Annonay) Tél. 04 68 65 35 80 06 41 00 35 86 (Tournon) E-mail [email protected] E-mail [email protected] Site web www.francealzheimer.org/aude/ Site web www.francealzheimer.org/ardeche/ Permanences Carcassonne, Castelnaudary, Permanences Aubenas, Annonay, Tournon Quillan, Lézignan, Limoux, Actions Narbonne, Portla- Nouvelle. Actions Day care Activities for Support Training for Activities for France Alzheimer Ardennes carers and for carers carers those with 1, place Henri Dunant France Alzheimer Aveyron those with dementia 08000 Charleville-Mézières 16, avenue Arsène Ratier - 12340 Bozouls dementia Tél. 03 24 54 22 26 / 06 15 52 54 98 Tél. 05 65 44 53 10 E-mail [email protected] E-mail [email protected] France Alzheimer Ain France Alzheimer 04 Site web www.francealzheimer.org/ardennes/ Site web www.francealzheimer.org/aveyron/ 17, bd Victor Hugo - 01000 Bourg-en-Bresse Résidence Fontbelle Bld M. Bret - Permanences Aubenas, Annonay, Tournon Permanences Bozouls, Rodez, Capdenac, Tél. 04 74 52 10 90 04100 Manosque Actions Villefranche-de-Rouergue. E-mail [email protected] Tél 04 92 72 58 21 Actions Site web www.francealzheimer.org/ain/ E-mail [email protected] France Alzheimer Ariège Permanences Bourg-en-Bresse, Belley – Bas Site web www.francealzheimer.org/ 2, impasse des Pommiers - 09120 Varilhes France Alzheimer Bouches-du-Rhône Bugey, Nantua – Haut Bugey, Côtière, Pays de alpesdehauteprovence/ Tél. 06 30 81 18 79 Villa Rambot - 32, avenue Sainte-Victoire Gex, La Plaine de l’Ain Actions E-mail [email protected] 13100 Aix-en-Provence Actions Site web www.francealzheimer.org/ariege/ Tél. 04 42 23 42 49 France Alzheimer 05 Actions E-mail [email protected] France Alzheimer Aisne «Le Concorde» 48, boulevard Site web www.francealzheimer.org/ Espace Henri Matisse 1, rue Théophile Gautier Georges Pompidou 05000 Gap France Alzheimer Aube bouchesdurhone/ 02100 Saint-Quentin Tél. 04 92 51 02 74 37, rue de la Halle - 10400 Nogent-sur-Seine Permanences Marseille, Salon-de-Provence. Tél. 03 23 62 75 58 E-mail [email protected] Tél. 03 25 21 89 16 Actions E-mail [email protected] Actions E-mail [email protected] Plateforme d’accompagnement et de répit Site web www.francealzheimer.org/aisne/ Site web www.francealzheimer.org/aube/ Permanences Laon, St-Quentin, France Alzheimer 06 Permanences Bar-sur-Seine, Villenauxe La France Alzheimer Calvados Soissons, Château-Thierry 5, avenue Béatrix - 06100 Nice Grande, Trainel, Marigny-Le-Chatel, 17, rue des Boutiques - 14000 Caen Actions Tél. 04 93 52 62 00 Marcilly-le-Hayer Tél. 02 31 28 03 54 Fax 04 93 52 33 00 Actions E-mail [email protected] France Alzheimer Allier E-mail [email protected] Plateforme d’accompagnement et de répit Site web www.francealzheimer.org/calvados/ 1/3, rue Berthelot - 03000 Moulins Site web www.francealzheimer.org/ Permanences Caen (siège et au CHU) et dans Tél. 03 23 62 75 58 alpesmaritimes/ tout le département (sur demande). E-mail [email protected] Permanences Antibes, Breil-sur-Roya, Cagnes- Actions Site web www.francealzheimer.org/allier/ sur-Mer, Cannes, Grasse, Menton, Nice, Saint- Permanences Diou, Moulins, Montluçon, Laurent du Var, St-Cezaire, Le Tignet St-Pourçain-sur-Sioule, Vichy, Actions St-Germain-des-Fossés Actions

18 19 BY YOUR SIDE FIGHTING DEMENTIA

France Alzheimer Cantal France Alzheimer Corrèze France Alzheimer Dordogne France Alzheimer 27 Maison des Organismes Familiaux 50, rue du Colonel Vaujour 2, rue Emile Counord - 24100 Bergerac 34, rue Dupont de l’Eure - BP226 8, rue de La Gare - 15000 Aurillac 19100 Brive-la-Gaillarde Tél. 05 53 27 30 34 27400 Louviers Tél. 04 71 63 31 15 Tél. 05 55 17 70 76 E-mail [email protected] Tél. 02 32 09 90 22 E-mail [email protected] E-mail [email protected] Site web www.francealzheimer.org/dordogne/ E-mail Site web www.francealzheimer.org/cantal/ Site web www.francealzheimer.org/correze/ Facebook fr-fr.facebook.com/ [email protected] Permanence Aurillac Facebook fr-fr.facebook.com/france. francealzheimerdordogne/ Site web www.francealzheimer.org/eure/ Actions alzheimercorreze Permanences Bergerac, Brantôme, Carlux, Permanences Louviers, Pont-Audemer Permanences Brive, Tulle, Ussel Excideuil, La Coquille, Montignac, Mussidan, (sur rendez-vous) France Alzheimer Charente Actions Nontron, Périgueux, Port-Ste-Foy, Terrasson, Actions «Ma campagne» 6, allée du Champ Brun - Thiviers, Thenon 16000 Angoulême France Alzheimer Corse Actions France Alzheimer 28 Eure-et-Loir Tél. 05 45 67 06 91 15, rue colonel Colonna d’Ornano 24, rue Jules Hetzel (entrée E-mail france-alzheimer-angouleme@ 20000 Ajaccio France Alzheimer Doubs/ 11, avenue des Sablons) - 28000 Chartres orange fr Tél 04 95 28 91 02 / 06 03 64 45 78 Jura/Haute-Saône Tél. 02 36 15 05 73 Site web www.francealzheimer.org/charente E-mail [email protected] Foyer Logement Les Cèdres E-mail [email protected] Permanences Barbezieux, Cognac, Site web www.francealzheimer.org/corsedusud/ 2, rue Képler - 25000 Besançon Site web Confolens, La Rochefoucauld, Ruffec Actions Tél. 03 81 88 00 59 www.francealzheimer.org/eureetloir/ Actions E-mail Actions France Alzheimer Côte-d’Or [email protected] France Alzheimer Charente Maritime Parc des Grands Crus Site web France Alzheimer 29 4 bis, rue Pasteur - 17100 Saintes 60 L, avenue du 14 juillet - 21300 Chenove www.francealzheimer.org/franchecomte/ 212, rue Jean Jaurès - 29200 Brest Tél. 05 46 92 25 18 Tél. 03 80 45 39 44 Permanences Doubs: Besançon, Montbéliard, Tél. 02 98 44 90 27 E-mail [email protected] E-mail [email protected] Pontarlier, Baume-les-Dames, Ornans (sur E-mail [email protected] Site web www.francealzheimer.org/ Site web www.francealzheimer.org/cotedor/ rendez-vous) Jura: Dole, Champagnole, Site web www.francealzheimer.org/finistere/ charentemaritime/ Permanences Auxonne, Nuits-Saint- Lons-le-Saunier, Pays de Revermont; Haut-Jura; Permanences Brest, Lanrivoaré, Quimper, Permanences La Rochelle, Georges, Châtillon-sur-Seine Haute-Saône: (téléphoner au siège) Crozon, Chateuneuf-du-Faou, Quimperlé, Royan, Saint-Pierre d’Oléron, Saintes, Actions Actions Concarneau, Plonéour Lanvern, Pont l’Abbé, Saint-Jean d’Angély, Surgères Morlaix, Saint-Pol-de-Léon, Landivisiau Actions France Alzheimer Côtes-d’Armor France Alzheimer Drôme La Forêt Fouesnant, Rosporden, 18, rue Abbé Vallée - 22000 Saint-Brieuc 33, avenue de Verdun - 26000 Valence Secteur Cap Sizun France Alzheimer 18 Tél. 02 96 60 85 42 Tél. 04 75 79 17 08 Actions 28, rue Gambon - 18000 Bourges E-mail [email protected] E-mail [email protected] Tél. 02 48 50 41 40 Site web www.francealzheimer.org/ Site web www.francealzheimer.org/drome/ France Alzheimer Gard E-mail [email protected] cotesdarmor/ Facebook www.facebook.com/fadrome/ 11, place du Calvaire - 30320 Marguerittes Site web www.francealzheimer.org/cher/ Permanences St-Brieuc, Dinan, Lannion, Permanences Valence, Bourg-de-Péage, Tél. 04 66 21 03 09 Permanences Bourges, Guingamp, Paimpol Crest, Loriol, Montélimar, Die, E-mail [email protected] Saint-Florent-sur-Cher, Vierzon Actions Grignan, Nyons, Laveyron, Site web www.francealzheimer.org/gard/ Actions St-Donat, Lus La Croix Haute Permanences Marguerittes, Uzès et dans Actions tout le Gard (sur rendez-vous) Actions

20 21 BY YOUR SIDE FIGHTING DEMENTIA

France Alzheimer 31 France Alzheimer Ille-et-Vilaine France Alzheimer Landes France Alzheimer Loire Atlantique 5, rue du Chairedon - Place Olivier Résidence Renan - 24 rue Ernest Renan - 12, rue de la Ferté - 40100 Dax 25, rue Esnoul des Châtelets - 44200 Nantes 31300 Toulouse 35400 Saint-Malo Tél. 05 58 98 80 88 / 06 87 65 52 73 Tél. 02 40 12 19 19 Tél. 05 61 21 33 39 / 09 60 01 58 21 / Tél. 02 99 80 86 43 E-mail [email protected] E-mail [email protected] 05 62 00 43 28 Email [email protected] Site web www.francealzheimer.org/landes/ Site web E-mail [email protected] Site web Permanences Dax, Biscarosse www.francealzheimer.org/loireatlantique/ Site web www.francealzheimer.org/ileetvilaine/ Actions Permanences Nantes, St-Nazaire, www.francealzheimer.org/hautegaronne/ Actions Châteaubriant, Ancenis Permanences: Toulouse, St Gaudens France Alzheimer 41 Actions Actions France Alzheimer Y’ACQA 36 Maison du Bon Secours 182, avenue John Kennedy 10, rue Saint-Coeur - 41100 Vendôme France Alzheimer Loiret France Alzheimer Gers 36000 Châteauroux Tél. 02 54 73 39 04 7, levée des Capucins - Le Bois dormant 56, avenue des Pyrénées - 32000 Auch Tél. 02 54 07 15 90 E-mail [email protected] 45650 Saint-Jean-le-Blanc Tél. 05 62 05 24 52 E-mail [email protected] Site web Tél. 02 38 62 05 47 E-mail [email protected] Permanences téléphoniques www.francealzheimer.org/loiretcher/ E-mail [email protected] Site web www.francealzheimer.org/gers/ Châteauroux, Le Blanc Permanences Blois, Montrichard, Site web www.francealzheimer.org/loiret/ Actions Actions Romorantin, St-Aignan-sur-Cher, Vendôme Permanences Orléans, Gien, Actions La Ferté-Saint-Aubin, Montargis, Patay, France Alzheimer Gironde Touraine France Alzheimer 37 Pithiviers, Sully-sur-Loire 52, rue des Treuils - CS 11092 BP 55 - 37320 Esvres-sur-Indre France Alzheimer Loire Actions 33082 Bordeaux cedex Tél. 02 47 43 01 55 32, rue du Mayollet - 42300 Roanne Tél. 05 56 40 13 13 / 06 81 63 87 98 E-mail [email protected] Tél. 04 77 68 97 78 (secrétariat Roanne) / France Alzheimer 46 E-mail [email protected] Site web www.francealzheimer.org/touraine/ 04 77 59 78 00 (secrétariat Saint-Etienne) Espace associatif Clément Marot Site web www.francealzheimer.org/gironde/ Permanences Tours, Joué les Tours, Loches, E-mail [email protected] Place Bessières - 46000 Cahors Permanences téléphoniques: Arcachon, Chinon, Nazelles, Château La Vallière, Site web www.francealzheimer.org/loire/ Tél. 05 65 20 00 70 Biganos, Blaye, Bordeaux Grand Parc, NeuilléPont-Pierre Permanences Montbrison, Pélussin, Roanne, E-mail [email protected] Bordeaux Saint-Genès, Libourne, Actions Saint-Étienne Site web www.francealzheimer.org/lot/ Saint-Aubin-du-Médoc Actions Permanences Cahors, Leyme Actions France Alzheimer Isère Actions 18, allée de l’école Vaucanson France Alzheimer Haute-Loire France Alzheimer Hérault 38100 Grenoble 18, route de Roderie - 43000 Aiguilhe France Alzheimer 47 3, rue Pagézy - 34000 Montpellier Tél. 04 76 43 18 19 Tél. 04 71 09 17 94 / 06 38 21 40 62 16, rue du Docteur Henri Fourestié Tél. 04 67 06 56 10 E-mail [email protected] E-mail [email protected] 47000 AGEN E-mail [email protected] Site web www.francealzheimer.org/isere/ Site web Tél. 05 53 47 90 67 Site web www.francealzheimer.org/herault/ Permanences Canton de Vif, Grenoble, www.francealzheimer.org/hauteloire/ E-mail [email protected] Facebook facebook.com/francealzheimer34 La Mure, Nord Isère, Voiron, Vienne Permanence: Le Puy en Velay Site web Permanences Montpellier, Agde, Béziers, Actions Actions www.francealzheimer.org/lotetgaronne/ Castries, Clermont l’Hérault, Ganges, Permanences Agen, Fumel, Gignac, Lodève, Lunel, Mèze, Pezenas, Villeneuve-sur-Lot, Nérac, Marmande, St-Martin de Londres, Gontaud-de-Nogaret St-Pons-de-Thomieres, Sète, Valras, Roujan, Actions Lamalou-les-bains, La Grande-Motte. Actions MAIA Orb et Biterrois

22 23 LA MALADIE D’ALZHEIMER ET LES MALADIES APPARENTÉES

France Alzheimer 49 France Alzheimer Mayenne France Alzheimer Moselle France Alzheimer Pas de Calais 15-17, rue de Jérusalem - 49100 Angers 15, carrefour aux Toiles - 53000 Laval 4 Ter, avenue De Lattre de Tassigny Espace 2000 - rue Basly Tél. 02 41 87 94 94 Tél. 02 43 69 06 88 / 02 43 04 55 08 57000 Metz 62530 Hersin-Coupigny E-mail [email protected] E-mail [email protected] Tél 03 87 50 46 40 / 07 70 70 75 44 Tél. 07 77 84 63 11 (accueil téléphonique Site web Site web E-mail [email protected] de 9h à 21h tous les jours même le www.francealzheimer.org/maineetloire/ www.francealzheimer.org/mayenne/ Site web www.francealzheimer.org/moselle/ dimanche) Permanences Angers, Cholet, Saumur, Permanences Laval, Mayenne, Permanence Metz Email [email protected] Baugé, Doué-La-Fontaine, Segré, Brissac- Château-Gontier-Bazouges Actions Site web Loire-Aubance Actions www.francealzheimer.org/pasdecalais/ Actions France Alzheimer Nièvre Permanences Arras, Bapaume, Berck-sur- France Alzheimer 54 71, rue de Nièvre - 58000 Nevers Mer, Bethune, Calais, Campagne-les-Hesdin, France Alzheimer Manche 12, rue de Provence - 54425 Pulnoy Tél. 03 86 59 14 51 / 06 33 80 36 03 Cucq, Ecoust-St-Mein, Huby-St-Leu, Lens, 15, rue du Palais de Justice Tél. 06 49 44 31 95 E-mail [email protected] Lievin, Marquise, Noyelles-Godault, 50200 Coutances E-mail [email protected] Site web www.francealzheimer.org/nievre/ St-Omer, St-Pol-sur-Ternoise, Tél. 02 33 17 16 41 - Fax: 02 33 19 17 81 Permanences Pulnoy, Nancy Permanence Nevers EPHAD St-Landelin-Vaulx- Vraucourt E-mail [email protected] Actions Actions Actions Facebook fr-fr.facebook.com/francealzheimermanche/ France Alzheimer 55 France Alzheimer Nord France Alzheimer 63 Site web www.francealzheimer.org/manche/ 39, place Charles de Gaulle Les Triades - Rue Becquerel - 21, rue d’Alsace - BP 345 Permanences Coutançais, Mortainais, 55200 Commercy Z.I. Douai Dorignies - 59500 Douai 63009 Clermont-Ferrand cedex 1 Nord-Cotentin, Saint-Loise, Avranches, Tél. 03 29 92 14 28 - Fax: 03 29 91 11 09 Tél. 03 27 80 65 08 Tél. 04 73 92 18 66 Granville-Villedieu E-mail [email protected] E-mail [email protected] E-mail [email protected] Actions Permanences Commercy, Bar-le-Duc, Site web www.francealzheimer.org/nord/ Site web Ligny-en -Barrois, Vaucouleurs, Gondrecourt Permanences Bailleul, Cambrai, Douai, www.francealzheimer.org/puydedome/ France Alzheimer Marne le Château, Hannonville-sous-les-côtes Dunkerque, Lille, Maubeuge, Valenciennes Permanences Clermont-Ferrand, Cébazat, 30, rue de Nice Actions Actions Riom, Cournon, St-Sauves-d’Auvergne EHPAD Les Parentèles - 51100 Reims Actions Tél 06 03 82 34 08 France Alzheimer Morbihan France Alzheimer Oise Email [email protected] Maison des familles 35, rue du Général Leclerc France Alzheimer Pyrénées-Atlantiques Site web www.francealzheimer.org/marne/ 47, rue Ferdinand le Dressay BP 10815 - 60008 Beauvais Cedex 100, avenue du Loup - Bâtiment Fuchsia Permanences Reims, Vitry-le-François BP 74 - 56002 Vannes Tél. 03 44 48 63 98 64000 Pau Actions Tél. 07 83 43 13 00 E-mail [email protected] Tél. 05 47 92 19 05 E-mail [email protected] Site web www.francealzheimer.org/oise/ E-mail [email protected] France Alzheimer 52 Site web www.francealzheimer.org/morbihan/ Permanences Beauvais, Compiègne, Site web www.francealzheimer.org/ 5, Paul Valéry - 52000 Chaumont Facebook Villers, St-Paul pyreneesatlantiques/ Tél. 03 25 01 27 79 www.facebook.com/FRANCE.ALZ.56/ Actions Permanences Pau, Biarritz E-mail [email protected] Permanences Vannes, Auray, Lorient, Actions Site web Presqu’ile de Quiberon France Alzheimer Orne www.francealzheimer.org/hautemarne/ Actions 52, bld du 1er chasseur - 61000 Alençon Permanences Chaumont, Langres, Bologne Tél. 02 33 82 63 32 Actions E-mail [email protected] Site web www.francealzheimer.org/orne/ Permanences Alençon, Argentan Actions

24 25 ALZHEIMER’S DISEASE AND RELATED ILLNESSES

France Alzheimer 65 Hautes-Pyrénées France Alzheimer Rhône France Alzheimer Haute-Savoie France Alzheimer Yvelines Maison des associations de l’Arsenal 6, place Carnot - 69002 Lyon 7, rue de la Gare - 74000 Annecy 6, place Royale - Immeuble Lagardère Bât 100 - bureau 16 Tél. 04 78 42 17 65 Tél. 04 50 51 49 14 - Fax: 04 50 51 57 51 Résidence Grand Siècle - 78000 Versailles 11, rue de la Chaudronnerie - 65000 Tarbes E-mail [email protected] E-mail [email protected] Tél. 01 39 50 03 86 Tél. 05 62 38 14 49 Site web www.francealzheimer.org/rhone/ Site web E-mail [email protected] E-mail [email protected] Permanences CHP Lyon 08, Vénissieux, www.francealzheimer.org/hautesavoie/ Site web www.francealzheimer.org/yvelines/ Site web Villeurbanne (CHG et lieu de répit), Bron, Permanences Annecy, Annemasse, Thonon, Permanences Conflans-Ste-Honorine, Poissy, www.francealzheimer.org/hautespyrenees/ Villefranche-sur-Saône, CHG Scionzier, Sallanches Trappes, Guyancourt, Montigny, Magny-les- Permanences Tarbes, Lannemezan, Albigny-sur-Saône Actions Hameaux, St-Germain-en-Laye, Argelès-Gazost, Lourdes, Bagnères, Actions Le Pecq, Versailles Vic-Bigorre France Alzheimer Paris Actions Actions France Alzheimer 71 Site Notre Dame de Bon Secours 68 bis, rue de Lyon - 71000 Mâcon 68, rue des Plantes - Porte D16 - 75014 Paris France Alzheimer Deux-Sèvres France Alzheimer Pyrénées-Orientales Tél. 03 85 38 34 70 Tél. 01 40 52 46 68 74, rue Alsace-Lorraine - 79000 Niort 13, avenue du Palais des Expositions E-mail [email protected] E-mail [email protected] Tél. 05 49 77 82 19 66000 Perpignan Permanences Mâcon, Autun, Site web www.francealzheimer.org/paris/ Écoute téléphonique: 05 49 82 27 89 Tél. 04 68 52 22 22 - Fax: 04 68 28 62 77 Chalon-sur-Saône, Cluny, Paray-le-Monial, Permanences 10e, 12e, 14e E-mail [email protected] E-mail [email protected] Tournus, Louhans, Montceau-les-Mines Actions Site web Site web www.francealzheimer.org/ Actions www.francealzheimer.org/deuxsevres/ pyreneesorientales/ France Alzheimer 76 Permanences Niort, Bressuire, Mauléon, Permanences Argeles, Millas, Fance Alzheimer Sarthe 8, rue Madame Lafayette - BP4023 Parthenay, Thouars, St-Maixent, Melle. St Laurent de la Salanque 13, rue de Flore - 72000 Le Mans 76610 Le Havre Actions Actions Tél. 02 43 28 76 52 Tél. 02 35 24 26 96 E-mail [email protected] E-mail [email protected] France Alzheimer Somme Alsace Alzheimer 67 Site Web www.francealzheimer.org/sarthe/ Site web 9, rue de la 2e DB - 80000 Amiens 10, rue de Leicester - 67000 Strasbourg Facebook www.francealzheimer.org/seinemaritime/ Tél. 03 22 09 38 46 Tél. 03 90 00 68 36 fr-fr.facebook.com/francealzheimer49/ Permanences Le Havre, Fécamp, Lillebonne, E-mail [email protected] E-mail [email protected] Permanences Le Mans, Le Grand Lucé, Notre-Dame-de-Gravenchon, Site web www.francealzheimer.org/somme/ Site web www.francealzheimer.org/basrhin/ Chateau du Loir St-Romain-de-Colboc, Rouen Permanences du lundi au vendredi de 9h30 Actions Actions Actions à 12h30 et de 13h30 à 16h45 (sauf le mercredi fermeture à 12h) France Alzheimer Haut-Rhin France Alzheimer Savoie France Alzheimer Seine-et-Marne Actions 57, boulevard de la Marne - 68200 Mulhouse 11, avenue de Bassens 37, Avenue du Maréchal Foch 77500 Chelles Tél. 03 89 42 79 36 – Fax: 03 89 42 79 45 73000 Bassens Tél. 01 64 21 03 80 France Alzheimer 81 E-mail [email protected] Tél. 04 79 60 31 48 E-mail [email protected] Villégiale Saint-Jacques - Place Carnot Site web www.francealzheimer.org/hautrhin/ E-mail [email protected] Site www.francealzheimer.org/seineetmarne/ 81100 Castres Permanences Mulhouse, Biesheim, Bollwiller, Site web www.francealzheimer.org/savoie/ Facebook fr-fr.facebook.com/France- Tél. 05 63 71 64 97 / 06 19 36 09 91 Colmar, Guebwiller, Kembs, Masevaux, Permanences Bassens, Aix-les-Bains, Alzheimer-Seine-et-Marne E-mail [email protected] Munster, Morschwiller le Bas, Neuf Brisach, Albertville Permanences: Avon, Chelles, Jossigny Site web www.francealzheimer.org/tarn/ Orbey, Pfastatt, Ribeauvillé, Richwiller, Rouffach, Actions Marne-la-Vallée, Lizy-sur-Ourcq, Permanences Albi, Castres St-Amarin, St- Louis, Sierentz, Thann, Meaux, Pringy Actions Wittelsheim, Wittenheim Actions Actions

26 27 BY YOUR SIDE FIGHTING DEMENTIA

France Alzheimer 82 France Alzheimer Vendée France Alzheimer 89 France Alzheimer 93 5 rue du Fort - 82000 Montauban 33, rue Marcellin Berthelot 38, rue des Mésanges - 89470 Moneteau 17, boulevard de l’Ouest Tél. 05 63 20 47 64 - Fax: 05 63 66 82 32 Résidence Saint Louis - Appartement 5 Tél. 03 86 48 27 69 (écoute) / 93340 Le Raincy E-mail [email protected] 85000 La Roche-sur-Yon 03 86 48 12 51 (secrétariat et fax) Tél. 01 43 01 09 66 Site web www.francealzheimer.org/ Tél. 02 51 43 71 05 E-mail [email protected] E-mail [email protected] tarnetgaronne/ E-mail [email protected] Site web www.francealzheimer.org/yonne/ Site web www.francealzheimer.org/ Permanences Caussade, Montauban Site web www.francealzheimer.org/vendee/ Permanences Auxerre, Avallon, Sens seinesaintdenis/ Actions Permanence La Roche-sur-Yon Actions Permanences Aulnay-Sous-Bois, Actions Le Pré-Saint-Gervais, Le Raincy, France Alzheimer Var France Alzheimer 90 Territoire de Belfort Les Pavillons-sous-Bois, Noisy-Le-Grand, Le Palais de la Méditerranée B France Alzheimer Vienne Cité des associations Romainville, Le Raincy, St-Denis 36, rue Henri Poincaré - La Rode 10, rue du Fief des Hausses - 86000 Poitiers 2, rue Jean-Pierre Melville - 90000 Belfort Actions 83000 Toulon Tél. 05 49 43 26 70 Tél. 03 63 78 70 48 Tél. 04 94 09 30 30 E-mail [email protected] E-mail [email protected] France Alzheimer Val-de-Marne E-mail [email protected] Site web www.francealzheimer.org/vienne/ Site web www.francealzheimer.org/ 4, rue du Maréchal Vaillant Site web www.francealzheimer.org/var/ Permanences Poitiers, Chatellerault, territoiredebelfort/ 94130 Nogent-sur-Marne Permanences Toulon-La-Rode, Lussac-les-châteaux Permanence Belfort Tél. 01 48 72 87 82 Toulon-Ste-Musse, Brignoles, Actions Actions E-mail [email protected] Flassans-sur-Issole, Hyères, La Crau, Site web La Farlède, La Londe les Maures, France Alzheimer 87 France Alzheimer Essonne www.francealzheimer.org/valdemarne/ La Seyne-sur-Mer, Le Pradet, Espace « Bellevue » 52, rue Louis Robert Permanences: Nogent-sur-Marne, Sanary-sur-Mer, Saint-Cyr-sur-mer, 1, rue André Messager - 87000 Limoges 91100 Corbeil-Essonnes Choisy-le-Roi, Créteil, Chevilly-Larue, Six-Fours-les-Plages. Tél. 05 55 01 38 52 Tél. 01 60 88 20 07 Charenton-le-Pont, Vincennes, Saint-Mandé Actions E-mail [email protected] E-mail [email protected] Actions Site web Site web France Alzheimer Vaucluse www.francealzheimer.org/hautevienne/ www.francealzheimer.org/essonne/ France Alzheimer Val-d’Oise 615, chemin des Petits Rougiers Permanences Limoges, Maison des Usagers- Permanences Ris-Orangis, Ballainvilliers, 42, bis rue de Paris 84130 Le Pontet CHU Limoges, CHU Esquirol, CHU St-Yrieix Arpajon 95310 Saint-Ouen-L’Aumône Tél. 04 32 74 14 74 (MAIA), CMRR, Centre Jean-Marie Léger, Actions Tél. 01 34 64 43 03 E-mail [email protected] HIHL Bellac (MAIA) E-mail [email protected] Site web Actions France Alzheimer Hauts-de-Seine Site web www.francealzheimer.org/vaucluse/ Maison des Associations www.francealzheimer.org/valdoise/ Permanences Avignon, Bollene, Cadenet, France Alzheimer 88 2 bis, rue du Château Permanences: Argenteuil, Cergy, au Pontet et dans les autres villes du 15 ter, rue du Maréchal Lyautey 92200 Neuilly-sur-Seine Enghien-les-Bains, Magny-en-Vexin, Vaucluse sur rendez-vous 88000 Épinal Tél. 01 46 24 68 31 Pontoise, St-Gratien, St-Ouen-l’Aumône, Actions Tél. 03 29 35 36 19 Permanences Bagneux, Boulogne-Billancourt, St-leu-la-Forêt, Taverny E-mail [email protected] Châtenay- Malabry, Chatillon, Clamart, Actions Site web www.francealzheimer.org/vosges/ Colombes, Courbevoie, Fontenay-aux-Roses, Permanences Épinal, Gérardmer, Garches, Issy-les-Moulineaux, Remiremont, St-Die, Le Thillot, Val d’ajol, Le Plessis Robinson, Malakoff, Meudon/ Xertigny, Vittel Meudon-la-Forêt, Montrouge, Actions Rueil-Malmaison, Sèvres, Vanves Actions

28 29 BY YOUR SIDE FIGHTING DEMENTIA

France Alzheimer Guadeloupe France Alzheimer Mayotte 21, lotissement les Orangers - Moudong Villa Noachim 97122 Baie-Mahaut - Guadeloupe Quartier Ambani-Mroni Lalahi Tél. 05 90 98 94 65 / 06 90 55 52 84 97670 Chiconi (Mayotte) E-mail Email [email protected] [email protected] Actions Site web www.francealzheimer.org/guadeloupe/ France Alzheimer Nouvelle-Calédonie Permanence: Baie-Mahaut Résidence Les Cerisiers Bleus Actions 9, rue Lucien Lozach - Trianon BP 624 - 98845 Nouméa Cedex France Alzheimer Martinique Tél. (687) 27 40 05 ou (687) 78 19 05 Résidence Les Terrasses E-mail [email protected] Bâtiment F, escalier 6, rez-de-chaussée Site web www.francealzheimer.org/ Basse Gondeau - 97232 Le Lamentin nouvellecaledonie/ Tél. (00) 596 79 43 60 Actions Email [email protected] Actions

France Alzheimer Guyane 305, rue des Bougainvilliers - Lotissement Les âmes claires - 97350 Remire Montjoly Tél. 05 94 29 49 36 Email [email protected] Permanence Matoury Actions

France Alzheimer Réunion Thank you the volunteers of the “À VOS CÔTÉS FACE À LA MALADIE” for their 26 bis, rue des Écoliers translation of this document, originally published by: Le Chaudron - 97490 Sainte Clotilde Association France Alzheimer Dordogne Tél. 02 62 94 30 20 - Fax: 02 62 53 85 92 www.francealzheimer.org/dordogne . E-mail [email protected] The translation was made possible by a generous donation of the North East Dordogne Site web Women’s Association (NEDWA). www.francealzheimer.org/reunion/ Pub. September 2018 Permanences: St-Denis, Sainte-Marie, Le Port Actions Department of communication and ressources France Alzheimer Copywriting: Imad Taalabi Translation: Chris Grasby, Susan Blair ([email protected]), Houltonsmets Design adaptation: Houltonsmets Cover photo: Olivia Fryszowski © Cyril Badet - Clémence Bajeux - Olivia Fryszowski - Christophe Hargoues Jean-Louis Courtinat - Catherine Thorel

30 31 Union nationale des associations France Alzheimer et maladies apparentées 11 rue Tronchet 75008 Paris www.francealzheimer.org

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