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WORLD HEALTH ORGANIZATION MEETING OF HEADS OF WHO COLLABORATING CENTRES FOR THE FAMILY OF INTERNATION CLASSIFICATIONS Cologne Germany 19-25 October, 2003 World Health Organization Family of International Classifications (WHO-FIC) Report This document is not issued to the general public, and all rights are reserved by the World Health Organization (WHO). The document may not be reviewed, abstracted, quoted, reproduced or translated, in part or in whole, without the prior written permission of WHO. No part of this document may be stored in a retrieval system or transmitted in any form or by any means – electronic, mechanical or other – without the prior written permission of WHO. The views expressed in documents by named authors are solely the responsibility of those authors. Contents MEETING OF WHO COLLABORATING CENTRES ........................................................... 1 FOR THE FAMILY OF INTERNATION CLASSIFICATIONS ............................................. 1 Cologne Germany ...................................................................................................................... 1 19-25 October, 2003................................................................................................................... 1 Contents...................................................................................................................................... 2 Glossary...................................................................................................................................... 3 Opening Session......................................................................................................................... 5 Plenary Report Back on ICPC.................................................................................................... 9 ICF Training Session................................................................................................................ 10 Subgroup for Hospital Discharge Data .................................................................................... 12 Plenary Session ICF ................................................................................................................. 13 Breakout Sessions .................................................................................................................... 17 Electronic Tools Committee..................................................................................................... 17 Family Development Committee ............................................................................................. 25 Implementation Committee...................................................................................................... 29 Mortality Reference Group ...................................................................................................... 36 Subgroup on Training and Credentialing (Education Committee) .......................................... 41 Update Reference Committee .................................................................................................. 47 Report Back from Committees................................................................................................. 59 WHO-FIC in Europe ................................................................................................................ 63 Plenary Scientific Papers.......................................................................................................... 65 Annex (Terms of Reference).................................................................................................... 71 List of participants.................................................................................................................... 81 List of documents..................................................................................................................... 98 2 Glossary ACCS Automatic Cause Coding Software ACME Automated Classification of Medical Entities AHIMA American Health Information Management Association AIHW Australian Institute of Health and Welfare CCAM Classification Commune des Actes Médicaux CCI Canadian Classification of Health Interventions CIM Classification Internationale des Maladies DIMDI German Institute of Medical Documentation and Information EU-HDP European Union Hospital Data Project FDC Family Development Committee ICD-10 International Statistical Classification of Diseases and Related Health Problems 10th Revision ICD-10 AM International Statistical Classification of Diseases and Related Health Problems 10th Revision Australian Modification ICD-10-CA International Statistical Classification of Diseases and Related Health Problems 10th Revision for morbidity classification in Canada ICD-10-XM International Statistical Classification of Diseases and Related Health Problems 10th Revision International Clinical Modification ICE International Collaborative Effort ICECI International Classification of External Causes of Injuries ICF International Classification of Functioning, Disability and Health ICHI International Classification of Health Interventions ICIDH International Classification of Impairments, Disabilities and Handicaps ICPC International Classification of Primary Care IFHRO International Federation of Health Records Organizations MMDS Mortality Medical Data System MRG Mortality Reference Group NACC North American Collaborating Center OECD Organisation for Economic Co-operation and Development PAHO Pan American Health Organization SNOMED The Systematized Nomenclature of Medicine 3 SNOMED-CT SNOMED Clinical Terms T & C Subgroup on Training and Credentialing (now Education Committee) WHO HQ World Health Organization Headquarters WHO RO World Health Organization Regional Offices WHO-FIC World Health Organisation Family of International Classifications WICC WONCA International Classification Committee WONCA World Organisation of Family Doctors 4 Opening Session Monday, 20 October, 2003 Chair: M. Schopen Rapporteur: L. Cook Dr Michael Schopen, Head of the German Collaborating Centre, welcomed participants to the meeting. Election of Officers Dr Schopen tabled the list of chairs and rapporteurs. Some changes to the rapporteurs were proposed. The list was then endorsed. Consideration and adoption of the agenda The agenda was adopted. Report back from the Geneva meeting Following the appointment of JW Lee as Director General in July 2003 there were changes to the organisational structure at WHO. Members of the Planning Committee had met with Dr Timothy Evans, Assistant Director “General Evidence and Information for Policy” and Dr Abdelhay Mechbal, Director (Health Financing and Stewardship) in Geneva on 17 October, 2003. Dr Bedirhan Üstün, Marjorie Greenberg, Dr Richard Madden, Dr Peter Goldblatt, Dr Marijke de Kleijn –de Vrankrijker and Dr Michael Schopen presented aspects of the discussion. Key points made at the Geneva meeting were: • WHO-FIC are for public good, the building blocks for international health information systems and important applications for mortality, morbidity and functioning and disability • ICD and ICF are bringing significant funds into WHO and the funds should be used for WHO classifications • Books are important but there are opportunities to implement through electronic health records into the health information infrastructure • The WHO-FIC is a powerful network which needs more support of the infrastructure by WHO HQ and RO to make the work productive • The WHO-FIC could help to address the information paradox where areas with the greatest health problems have the least penetration of vital registration systems and WHO-FIC • Implementation needs many elements including training tools and training for trainers but the most important element was the roster of experts. The implementation of the ICF needs also to take account of the many professions using it and translations had to be in everyday language • Dr Evans felt that it was too early to determine the structure of the advisory committee and this should follow from what WHO-FIC wanted to achieve. 5 Discussion points • There was a need for quick wins • 110 member states had implemented ICD-10 but 90 had not. The lack of availability of books was a barrier. Dr Evans had said that ‘print on demand’ might be an option. Electronic files for printing and for an ICD-10 browser were made available to WHO by DIMDI • It had been impressed on WHO managers that the WHO-FIC had a robust strong work programme • There was an opportunity to re-evaluate the WHO knowledge assets and this could be linked in with the Millennium Development Goals. Dr Evans had said that this could be done more urgently. Report from the Sunday meeting of the Heads of Centres Dr Michael Schopen reported on the meeting. Advisory Committee The Business Plan of WHO-FIC prepared in response to the meeting in Geneva would be outlined during this meeting by a group consisting of Committee Chairs and Dr Martti Virtanen, Catherine Sykes and Dr Bedirhan Üstün. Actions and priorities would be identified during committee sessions and the process would continue with business planning. The Committee structure should only change if it does not meet the needs of the business plan. A formal Advisory Committee might not be helpful. Designation and redesignation of Collaborating Centres Designation of new centres is helpful to countries with no vital registration systems. Existing centres were asked for their work plans to proceed quickly with the redesignation process. Terms of Reference

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