Motor Neurone Disease Association of NSW

ANNUAL REVIEW 2006 Board Members

The Board Members of the Motor Neurone Disease Association of NSW Inc. at the date of this report are:

EXECUTIVE

President Ralph Warren Vice President Phil Bower Vice President Paul Brock AM Secretary Bob Howe Treasurer Robert Templeman

MEMBERS

Roger Henshaw, Katrina Horman, Janice Scheinecker, Nick McLoughlin

Cornfl ower photos (opposite and cover) by Paula Trigg 3

Motor Neurone Disease Association of NSW

Mission Statement

To provide and promote the best possible support for people living with motor neurone disease, their families and carers, to advance research and to raise awareness.

Motor Neurone Disease (MND) is the name given to a group of progressive neuromuscular diseases in which the nerve cells (neurones) controlling the muscles that enable people to move around, speak, swallow and breathe fail to work normally. With no nerves to activate them, muscles gradually weaken and waste and paralysis ensues. The patterns of weakness vary from person to person. Some muscles can fail in a few months, while the decline of others may take years. Intellect remains unaffected for most people with MND so an active mind is trapped in an inactive body. The most common form of MND is amyotrophic lateral sclerosis (ALS). MND can strike anyone - most commonly people in their 50s and 60s. The cause of MND is not known, except in about ten percent of cases when it is hereditary. Average survival time after diagnosis is two to three years. In New South Wales, at any point in time, up to 400 people have been diagnosed as having MND, with approximately 140 new cases diagnosed annually. Never Give Up It is estimated that for every person diagnosed with the disease another fourteen, including their carers, families and close friends, will live with it forever.

In Australia, more than one person dies every day from from MND. 4

Executive Report

can only be The Department of Aging Disability 2005/2006 described Home Care (DADHC) has been integral as ‘HUGE!’ Dramatic changes have to our advocacy efforts in broadening occurred in the world of the MND access to Attendant Care and High Association of NSW and the voice of Needs Pool Packages to help people MND nationally. with MND access these services in a Our new offi ce space (now 15 more timely manner. DADHC has also months old) has allowed: an increased been extremely generous in providing a equipment pool; access to people one off grant of $500,000 for equipment. with MND their families and carers; an Conferences this year have included increase in the number of Regional the 16th International Symposium on Advisors; and given volunteers the ALS/MND in Dublin, Ireland where opportunity to participate in the day to Regional Advisor Christina Jason had day operations of MNDA NSW. In 2005 a poster accepted and Ruth Quaken we signed a 20 year lease giving us a presented a paper at the Allied Health permanent operation, centrally located Professional Forum. and close to the city. In June 2006 MNDA NSW hosted the 2nd National MND Conference in Sydney. The Conference has allowed people from across Australia to meet, hear of new research and treatment and share innovative service delivery models. Nationally the Motor Neurone Disease Association of Australia was given a huge boost by the employment of a National Executive Director. All state and territory MND Associations have now agreed on a national logo and to work cooperatively on common areas such as national literature and national fundraising. MND Week was again a great success in terms of fundraising but, more importantly awareness raising. Unprecedented media across NSW and Australia created saturation of both Staff in December 2005 electronic and print media. Across NSW volunteers turned out at railway stations, The Department of Health has been in schools and in their community to a key player in these changes and we support people with MND. thank them. DoH has again contributed to the running of MNDA NSW - our Congratualtions to Shiela Holmes ongoing non government organisation and Robert Marr who were awarded life grant as well as a grant to progress Link membership of MNDA NSW. and Learn. Funding from the Australian Congratulations to Board Member Government has allowed us to complete Paul Brock on his Order of Australia for our Volunteer Visitor Pilot Project service to public education, particularly (VVPP). Thanks also to the Newcastle as an advisor and author in the areas Hunter Support Group who has provided of strategic policy development, to funding to keep the VVPP going. maintaining high standards of teaching 5

Patron

Her Excellency Professor Marie Bashir AC Governor of New South Wales

VICE PATRONS Melinda Gainsford Taylor Kevin Langdon OAM Roderick H. McGeoch AM The Hon Mr Justice Peter W.Young

HONORARY SOLICITOR Mallesons Stephen Jaques CEO Graham Opie at launch of MND Week in April 2006 AUDITOR and professionalism, and to people C. M. Pitt & Co with motor neurone disease. Chartered Accountants During 2005 our Board decreased in size. Long standing Board Member Robert Marr stepped Medical Advisors down. Robert has been a member of the Board and helped guide Dr Paul Clouston the organisation virtually from its Department of Neurology inception. In recognition of his service he was awarded a Life Westmead Hospital Membership. Alex Malley and Gary Jacobson, two Board Members Dr Helen Herz who helped guide and were integral Calvary Health Care, Sydney to the move to the Gladesville premises and recent administrative Associate Professor Matthew Kiernan changes also stepped down from the Prince of Wales Medical Research Institute Board. In April 2006 we welcomed & Prince of Wales Clinical School Association member and supporter University of New South Wales Nick McLoughlin to the board. Some staff changes have also Professor Garth Nicholson occurred. We said farewell to ANZAC Research Institute Regional Advisor Mary Butcher. Concord Hospital & Janet Nash accepted a new role as Executive Offi cer of the Motor University of Sydney Neurone Disease Research Institute of Australia. We welcomed Associate Professor Roger Pamphlett Fundraising Manager, Judy Ford; Department of Pathology Accountant, David Radford; Regional University of Sydney Advisors Fern Linden and Jo Fowler; and Information Resources Dr Dominic Rowe Coordinator, Penny Waterson. Department of Neurology Royal North Shore Hospital 6

Family Support

MND. This helps to ensure a seamless service for people with MND and their carer and minimises duplication of service. The 2005 International MND/ALS Symposium was held in Dublin last December and family support was very proud to be represented by Ruth Quaken. Ruth presented a poster by Christina Jason on the Volunteer Visitor Program at the Symposium and presented the paper on ‘Respiratory Management – A view from the fi eld at the Allied Health Day’. From left, Gwenanne Taggart, Anne Paterson with This year the 2nd National Annual daughters Skye Paterson and Tina MacKander, Margaret MND Conference was hosted by Hoare, and Diane Gordon at the past carers lunch held at the NSW Association with a record the MNDA NSW Gladesville Centre on 20 February. number of 175 delegates from amily support includes around Australia and New Zealand. regional advisors, information, The day before the Conference Fequipment, volunteers and Family Support staff from Australia groups. Family support aims to provide and New Zealand met to discuss the and promote the best possible care issues they face in addressing the and support for people living MND their needs of people living with MND. families and carers and to promote Presenting and hosting research. conferences such as these promotes The Association has enjoyed its fi rst recognition of MND and the needs full year at the premises at Gladesville of people living with this disease. It which continues to offer opportunities to also helps to develop partnerships better meet the needs of people living to address the unmet needs of the with MND and their family members. The people with MND and their families Gladesville support group, Information and demonstrates and enhances the Evenings for People recently diagnosed breadth and depth of knowledge of their families and friends, Care for Carers Family Support. workshops, Special Interest Group workshops, family support meetings, staff education days and past carers meetings Regional Advisors have all been held on-site over the past 12 months. Family support continues to work egional Advisors are closely with the MND Clinics and MND professionals with specifi c services in NSW and ACT. Over the last Rknowledge and experience 12 months there has been an increase of MND and are at the forefront in the number of local multidisciplinary in supporting people living with teams meeting regularly with regional MND. Their objective is to ensure advisors and other involved health that all people living with MND and professionals to discuss the care and their families are well supported management of the people living with throughout their journey with MND 7

and have access to relevant information to help the best possible care wherever people are guide their decision making ensuring that no living. person living with MND has a high level of unmet Regional Advisors continue to forge links need. This usually means that people whose with service providers who provide care and needs are high and changing rapidly receive support for people living with MND in their frequent contacts from their Regional Advisor. regions. Regional Advisor knowledge of the Others who are relatively stable and linked in to services available locally helps to prevent appropriate services, have less frequent contact. people living with MND falling through the gaps During the year 173 people who were newly of service provision. A wide variety of health and diagnosed with MND became members of the community care providers may be involved in Association. During this period the Association the care and support of people with MND and was advised of 128 people who lost their fi ght their families throughout their journey with MND. against MND. Bereavement is the fi nal loss in It is these people who deliver the essential a series of losses experienced by carers, family services needed by people living with MND. and friends and our thoughts are with them. Advocacy continues to be a focus for the At 30 June 2006, services were being family support team in order to ensure that the provided to 346 people living with MND needs of people living with MND are promoted registered as members plus their families and at the grassroots and government planning carers in NSW and the ACT. This number has level. Service providers are increasingly aware steadily increased from 295 at 30 June 2004 and of the progressive nature of MND and the 310 last year. need to respond accordingly. Support from NSW Health and the Australian Government continues through recurrent funding and funding Regional Advisors: 2004/5 2005/6 for special projects. New members 150 173 Number of deaths 126 128 Home/hospital/offi ce Information Visits 309 387 MND Clinic contacts 250 313 Regional Advisors ood quality information is essential for phone calls 1378 1182 people to self manage the progression Gof MND. It is also important for health and community care providers, many of whom As part of our commitment to rural and may not have had experience of MND before, regional NSW a new Regional Advisor position to assist them to provide best practice care and was created in early 2006 to support people support. living with MND in Western NSW and New England. This new position has ensured that the A wide range of quality information is number of people with MND allocated to each constantly researched, developed and regional advisor remains equitable. Regional disseminated covering a wide variety of Advisor hours have increased by 24 hours per relevant topics. Information is sourced week to a total of 138 hours per week. Five from people working in relevant areas, peer Regional Advisors support people living outside reviewed literature, conferences, other MND the Sydney Metropolitan region and two of these organisations around the world and the internet. are based regionally ensuring a more responsive Gathering and reviewing the information and service. The other Regional Advisors support making this available to people living with MND rural and regional people through regular fi eld helps empower them to seek information as and trips, ‘fl ying visits’ courtesy of the Royal Flying when the need arises. Doctor service, telephone and email to ensure 8

For many people recently diagnosed with MND These groups are: and their families and friends, the fi rst contact ● Communication, Swallowing and with the Association is by phone. At this stage the Nutrition provision of accurate information and support is ● Psychosocial and Supportive Care vital. The phone is also a convenient and quick way for people living with MND, family members, ● Independent living friends and service providers involved in caring for The website at www.mndnsw.asn.au a person with MND to obtain ongoing information. is regularly reviewed and updated, continues The family support ‘info line’ is available fi ve to provide accessible information about MND days a week from 9am to 4.30pm and can be and a means of communication with the accessed by ringing the MNDA offi ce on either Association for Internet users. 02 8877 0999 or the freecall number 1800 777 175. All forms of information distribution and dissemination have increased during the year. Equipment Calls to and from the ‘info line’ have increased dramatically demonstrating the importance of this he equipment service is essential for vital service. people living with MND to maintain Tindependence and communication for Information: 2004/5 2005/6 as long as possible and enhance comfort and quality of life. This service encompasses “Info Line” calls 2118 3490 sourcing and purchasing new equipment, Information provision 632 902 liaison with therapists prescribing the Information sessions 50 92 equipment, loans, arranging equipment hire, Newsletters 4/1100 4/1400 seeking further funding, delivery and pick Special Interest up, developing relationships with equipment Group E-Bulletins 6/154 6/202 hire companies, maintenance and cleaning. There is no charge for this service to people living with MND. The provision of information and education to service providers is a high priority for Regional Advisors. During the year Family Support Equipment Pool 2004/5 2005/6 conducted 92 information/education sessions Equipment items 1147 1177 for service providers and community groups with New items acquired 183 159 an audience of 1333. A wide range of printed information was disseminated to health providers Items loaned 888 938 at these sessions and also posted to providers requesting information including: ● The Carers Kit ● Information Packs for Service Providers ● G P Booklets ● Recipe Books ● Special Interest Group Starter Packs Membership of the three discipline specifi c special interest groups continues to grow and there are now 202 health professionals who receive the bi-monthly bulletins and invitations to annual workshops.

Equipment assistant Trevor Rakuraku with new wheelchairs to add to our diverse equipment pool 9

Support Groups

upport groups continue to grow and thrive throughout NSW they are the ‘face’ of the Association in local communities raising awareness of Sthe disease and supporting people living with MND in their community. Volunteers coordinate the majority of the groups and their contribution is highly valued. Family support staff coordinates some groups and attends many of the others regularly to support them and recognise their valuable work. During the year new support groups were established in Orange and at the MND Centre in Gladesville. There are now 14 active support groups throughout NSW and in ACT which meet monthly or bi-monthly.

n the last two and a half years, I have had several clients with motor neurone disease. In community occupational therapy, I discovered that Ithere was limited expertise in regard to understanding the disease and its progression due to two main factors. One of these is that each of us may only see one to two of these clients a year and there is often staff turnover. The second is the fact that no two clients exhibit the same symptoms and progression. MND is one of the most stressful conditions for clients to deal with, and its rapid progression can leave most clinicians feeling somewhat helpless in relieving the client and family’s grief. We rely on the MNDA NSW to provide ongoing support through and in between services, and know they will call therapists in again when required. I have often sought the expertise and resources offered by MNDA NSW. I have not found any other support organisations as helpful and as well run as this association. My questions have always been answered in a timely fashion, and MNDA NSW was more than happy to run workshops for the local occupational therapists. These have been very informative. Other OTs have had joint home visits with MNDA NSW Regional Advisor Ruth Quaken, which were helpful for all concerned. The most useful service offered by MNDA NSW is the equipment loan pool. Due to the fast progression of the disease and the severe lack of fi nances (that many have due to loss of income and medical expenses), buying equipment is out of the question. A lot of equipment may be required by an individual to avoid institutionalisation, and being able to borrow a wide range of equipment from the Association is very benefi cial to all concerned. Local hospital equipment pools can be costly, have only limited specialised equipment, or may not exist at all. My only concern is that due to the increase in need, the equipment in the last six months is now not always there to be borrowed. This equipment directly prevents institutionalisation, and is cost effective as it is reused over and over and having the correct equipment also reduces the potential for carer back injury. It is my hope that this service will be well funded as it is saving the community money on many levels.

Trish Farmer Occupational Therapist Lawson Community Health Centre 10

Volunteer Visitor Pilot in August 2005 thereby extending the program to people living outside the Program Sydney metropolitan region. The MND Associate Professor Roger Pamphlett Volunteer Visitor took blood samples from many willing Pilot Program in DNA donors at DNA donor drives around the Central Coast, the State. Newcastle and These DNA Donor Drives are a unique Hunter regions opportunity for people with MND, their funded through families, friends and interested health the Australian and community care providers to learn Government more about the latest MND research. Department Carers of people living with MND of Health and have specifi c needs related to caring Ageing ‘Caring for their loved one and the support they Communities need in their role as carer. The annual (L-R) Richard Dash and Sharyn Morris, Program’ ended recipients of the Volunteer Visitor Medal with four week Care for Carers Program was in March 2006. held in Sydney in September 2005 and MNDA NSW Patron and Governor of NSW Volunteer Visitors Her Excellency Professor Marie Bashir AC continues to demonstrate its relevance continue to visit for carers to learn about MND and gain people living with MND in those regions much needed mutual support. on a regular basis. The Volunteer Manual developed through this pilot was Four meetings for past carers were launched at the 2nd National Conference held during the year at the MND Centre and will be an invaluable resource for offering an opportunity for carers to educating future MND Volunteer Visitors share with others who understand their and palliative care volunteers. experiences of loss. Round two of the Link and Learn project funded through the NSW Health Group Programs Carers Grants commenced in March 2006. The two day residential program was held in Young and was aimed eople who have been recently at carers living in the Riverina, ACT, diagnosed, their families and South West and Central NSW. This Pfriends have specifi c information was followed by six weekly tele-link needs and information evenings have sessions which were highly valued by the been held regularly at the MND Centre participants. This program will be held in in Gladesville. These have been very the Newcastle/Hunter region in 2007. well attended over the last 12 months This year marked the end of the demonstrating the relevance of providing MNDA NSW Business Plan 2003-2006. information and an opportunity to meet It was a very ambitious plan and we are others in a similar situation at this time. very pleased that family support has had The annual two day Learn Now/Live the support and resources to enable Well program continues to assist people them to achieve the identifi ed objectives. living with MND and their families to prepare for the future and to live as well as possible with MND. This program was delivered in the New England area 11

The Australian MND to herbicides or pesticides appears to increase the risk of MND. An analysis DNA Bank of 179 SALS patients and 179 controls showed that SALS was associated with herbicide/pesticide exposure. These he Australian MND DNA Bank has fi ndings, on an Australian population, been able to substantially increase support northern hemisphere studies on the number of samples collected T exposure to environmental toxins as a over the past year. A major contribution risk factor for MND. to this achievement has been the many successful donor drives organised Studies in progress using DNA through the MNDA NSW. samples from the bank that are looking at susceptibility to MND are examining: We have collected blood samples, hair samples and questionnaire data in - viral receptor genes many country centres: Orange, Armidale, - the metallothionein family of Port Kembla, Gosford and Coffs Harbour’ heavy metal protection genes and at the Gladesville Centre in Sydney. - the glutathione synthetase toxin Many thanks to Regional Advisors, protecting gene local volunteers and the many people - epigenetic changes to genes with MND, their carers, family and friends who came to donate on these - tissue differences in the SOD1 days. The participants appeared to be gene very interested in the presentations - introns in the SOD1 gene on our research, and enjoyed meeting - a whole genome approach to each other and somatic mutations Using this data, Ms Julia strengthening We look forward to ongoing donor support networks. Morahan, a PhD student, has drives and being able to present results As a result of arising from the MND DNA bank. shown that regular exposure the promotion of these donor to herbicides or pesticides Lorel Adams drives, we were appears to increase the risk of (Manager, Austalian MND DNA Bank) contacted by Roger Pamphlett MND. many people (Neurologist) who were geographically isolated, or unable to travel, but still wished to donate to our research. We have been able to communicate via mail or email, and organise local GPs or pathology services to send the samples and data to us. We now have links throughout the state to be able to have donors contribute from their homes. We now have over 1,300 DNA samples and environmental data from people with MND and from controls. Using this data, Ms Julia Morahan, a PhD student, has shown that regular exposure 12

Research

Ian Blair Bill Gole Research Fellow

y research career has focussed on determining the genetic basis of a variety of neurological disorders including motor neuron disease M(MND/ALS), hereditary sensory neuropathy (HSN), Charcot Marie Tooth disorder (CMT), the spinal cerebellar ataxias (SCA), Joubert syndrome, and bipolar disorder. My early career was under the guidance of Prof Garth Nicholson at Concord Hospital, where I learnt the skills of my “trade” as well as experienced the trials and tribulations of genetic research. This was before the completion of the Human Genome Project, when identifying disease genes was a much slower process and a true test of patience. Thankfully, I was part of a dynamic group that was working to identify the gene responsible for a sensory neuron disease, HSN (hereditary sensory neuropathy). We were fi nally successful in mapping the location of the responsible gene, an exciting breakthrough. This quickly led to the development of effective prenatal diagnosis, a real and tangible benefi t for the affected families. Around the same time, I was also researching the biological basis of CMT1A, a degenerative disorder of motor and sensory neurons. Amongst various studies to better understand the causes of CMT1A, I was fortunate enough to discover specifi c genetic “markers” that led to one of the fi rst gene based diagnostic tests for this disease. The culmination of my work during this period was the completion of my PhD. After this fortunate apprenticeship, I travelled the USA where I began my fi rst foray into motor neuron disease research. Again, I was lucky enough to join a well respected group at the University of Washington who were searching for the gene that causes a juvenile form of MND (ALS type 4). After many frustrating false starts, we eventually managed to identify the responsible gene (Senataxin). This was exciting as it was one of the major breakthroughs that identifi ed a shared genetic link among motor neuron disorders. I returned to Australia in 2000 to take up a position in the Neurobiology Program at the Garvan Institute of Medical Research. My goal was to gain extensive experience in the genetic analysis of complex genetic diseases. At the Garvan, I focussed on identifying risk genes for bipolar disorder. Bipolar is a complex genetic disorder caused by a complex interplay between inherited genetic risk factors and environmental exposures. This work led to the successful identifi cation of a risk gene for bipolar disorder, a signifi cant breakthrough. With support from the MNDRIA (Bill Gole Research Fellowship) I moved to the ANZAC Research Institute to establish a research group focussing on identifying genes involved in MND. This research is in direct association with Prof Garth Nicholson, who for over 10 years, has identifi ed and recruited MND families for genetic studies. Our goal is to identify genes that cause the disease among MND families and investigate how these may confer a risk to the disease among sporadic MND cases. Little understanding of the biological basis of MND was known until a major breakthrough came from the fi nding that around 20% of families with familial MND showed mutations in the SOD1 gene. Investigation of SOD1 related MND has been the major source of our current understanding of disease biology. We hope to identify the unknown genes that cause the disease among the 80% of families for which no mutation has yet been found. It is increasingly being shown that sporadic MND can also be caused by some of the same genes that cause familial MND. Identifi cation of genes causing familial MND will lead to a greater understanding of the biological basis of both familial and sporadic forms of the disease. This knowledge is a prerequisite to effective diagnosis, treatment and prevention of MND. 13

Fundraising and Volunteering

Launch of MND receive their medals from the Governor and Ralph Warren. Week Mrs Sheila Holmes and Dr Robert Marr were honoured with life membership ND Week 2006 was of MNDA NSW and received a special launched on Tuesday 28 gift presented by the Governor. Sheila is MMarch at the Waterview a foundation member of Central Coast Convention Centre in the grounds of Support Group and has organised Bicentennial Park. On this very warm, many local promotional events for the sunny day members and friends group, including sreet stalls; served gathered to meet with Her Excellency as coordinator for the group and more Professor Marie Bashir AC, Governor recently, been involved in the Volunteer of NSW and to commemorate the Visitor Program. Robert’s involvement start of another week of promoting with MNDA NSW started prior to 1982 awareness of MND. and he has been instrumental in the Ralph Warren, President MNDA NSW welcomed those present and the Governor. Her Excellency congratulated the volunteers and staff of the Association for their work assisting people living with MND and spoke passionately and empathically about the impact of MND and of the need for MND research. Graham Opie, Chief Executive Offi cer MNDA NSW focused his address on ‘Looking Forward for MNDA NSW’; people living with MND who sometimes ‘slip through the system’, for example people who speak languages other than English, and those of Aboriginal and Torres Strait Islander descent; and of the need for a National co-operative approach Port Kembla Support Group at Launch of MND Week for MND. Janet Nash, Executive Offi cer MND Research Institute of growth and development of support Australia, provided an update on services for people with MND in New MND research in Australia. South Wales. Christina Jason, MNDA NSW Our guest speaker, Mark Rosenberg, Regional Advisor, spoke about the Executive Director of Marketing and Volunteer Visitor Pilot Program and Communications for the Sydney Olympic congratulated the fi rst recipients of Park Authority spoke about the future the MNDA NSW Volunteer Visitor of the Park and of some of the newer medal - Ronnie Blennerhassett, attractions for visitors. Mr Rosenberg Libby Blennerhassett, Lyn Champion, had been instrumental in helping secure Richard Dash, Sharyn Morris, Brian our access to the lovely venue for the Schrader, Dianne Toschack and Launch. Jenny Way. Both Richard and Sharyn were able to be at the presentation to 14

MND in the Media

Week 2006 media coverage and publicity MND ensured that awareness about motor neurone disease was raised in New South Wales local communities and regional areas. Additionally, a cooperative approach by all state MND Associations ensured a united effort was directed towards national media. Thank you to all involved.

Newspapers 31 March, North Shore Times 5 April, Daily Liberal and Macquarie Advocate Dubbo 6 April, Daily Liberal and Macquarie Advocate Dubbo 8 April, Border Mail Albury Wodonga 11 April, Armidale Express 11 April, Central Western Daily Orange

Television 24 March, Channel 7 Better Homes and Gardens 30 March, Ch 10 Morning Show 3 April, Ch 7 Sunrise 7 April, NRL Footy Show 7 April, Sky News 15

Radio 28 March, 2UE Lunch time interview 28 March, 2SM Morning show 1 April, ABC 702 Interview with Kevin Langdon OAM, Vice Patron and Past President MNDA NSW 4 April, 2SM Morning show with national syndication 4 April, 2GB Alan Jones interview with Barry Harrison, Newcastle Support Group

Magazines Better Homes and Gardens April issue and website Woman’s Day magazine website

MND Banners Monday 27 March to Sunday 9 April 2006 Footbridge over Sydney Road east of Manly Road, Balgowlah Pacifi c Highway Bridge over Sydney- Newcastle Freeway (F3), Wahroonga Coleman Street over M4 Motorway, Mays Hill Pennant Street junction with Kissing Point Road over James Ruse Drive, North Parramatta Kent Road Bridge over M4 Motorway, Orchard Hills

City of Sydney MNDA Banners Sunday 26 March through to Sunday 9 April Elizabeth, Park, Pitt, Bathurst and Phillip Streets. Wynyard Park, Belmore Park and outside the Town Hall. 16

March of Faces

nce again the City of Sydney was awash with blue and white as the MND Week fl ags Ofl apped in the autumn breeze. Driving down Elizabeth Street, George Street, Bathurst Street and across Martin Place one could not help but be impressed with the fl ush of colour and the strong awareness of motor neurone disease. The March of Faces was a quieter affair than last year. We assembled in Hyde Park ready to Participants at the March of Faces present to passers-by the faces of loved ones who have been touched by MND. The strong winds made it diffi cult to keep the banners from falling over but the walk through the park still created a sense of commonality. The Rotary Club of Strathfi eld put on a very welcoming BBQ on this unusually cool day and we are most appreciative of their continuing support. Once again we were blessed with the presence of our spiritual leaders to conduct a multi faith service. Father Peter Brock, Sheik Shami and a Rabbi gave moving addresses to those attending. We appreciate their time to join us on this special day.

Other Events for MND NSW

Beautiful Cornfl ower quilt made and donated by the Sloane Family of Molong in memory uring the year many people have worked of Cecil (Toby) Sloane. hard to raise money for the Association in Dvarious ways. ● City to Surf on 14 August attracted a number of people who ran to support MND including Helen Butcher supporting her sister, Liz Sandwith and family and Ken Rowles remembering his brother. ● Blue Cornfl ower Society Launch on 11 October in Sydney attended by members and friends of MNDA NSW. ● Open Garden at the home of Bob and Suzanne Ballinger in Pymble on Saturday 29 and Sunday 30 October. ● Display of Christmas Lights during December L to R: Audrey Dash (Coordinator of the at the home of the Dunn/Oliver family in Cowra. Central Coast Support Group), Jo Folwer (Regional Advisor), Judy Ford (Fundraising Manager), Sheila Holmes (Life Member) 17

● MND Week 2 – 8 April was ● Many individual members of supported by many volunteers the Support Groups have sold selling merchandise to family, merchandise throughout the year. friends and the general public. ● Fire Brigade Graduates collection Volunteers for MND was held 16 February where members of the Class ounded by volunteers, the 7/2005 collected donations from backbone of the MND Association the general public in the city. Fis still its volunteers. Volunteers are ● Tennis Day held by Darren and an integral part of the MND family, they Vanessa Rowley in March at the help to fulfi l our commitment to people Ku-Ring-Gai courts donated by with MND, their families, friends and the Council. carers and they come to us from many avenues. Those who have been former ● Carlingford Seniors’ two carers of people with MND and those who groups had a collection for the have had a friend with MND all know how Association after a presentation valuable their assistance can be. Their by Judy Ford. help comes in many ● ‘Cocktails and Dreams’ was forms; some help the name of the event held at by assisting in the the Paddington Bowling Club in offi ce, some serve honour of the Pearce Family and as members of the raising funds for MND. Board, others help ● A Shaved Head was a method by raising funds. used by Adil Nariman when he The common thread decided to raise money for MND with our volunteers in May. is their willingness ● Students at the Star of the Sea to give their time to help the Association in Wollogong held a fundraising either with their event in memory of the husband special skills or to of one of their teachers. do just whatever needs to be done – they L to R: Regional Advisor Fern Linden ● Golf Day in May, organised by Never Give Up. with MNDA NSW Matt Grant and held at Cronulla The ambience of our location at Private Golf Course. volunteers Libby Gole, Gladesville inspires our volunteers to Joy Pogson and Marj ● A Loud Shirt Golf Day organised want to come and share the workload Harrap at a luncheon by the Newcastle Support Group where they can enjoy the company of at Parliament as part of MND week. others and have room to go about their House in May to ● Nola Turner, Sr. Coral Hedley many and varied tasks. The ongoing acknowledge the and their friends held a wonderful help we receive from our dedicated team wonderful work done by volunteers day full of raffl es and different of volunteers is invaluable and greatly speakers on a variety of subjects appreciated. at the Inverell Art Gallery in June. ● A fundriaser was held by the National Council of Jewish Womens Association and the money presented to the Association in June. 18

In Memoriam,Trusts, Foundations, Clubs and General Donations

Astri, Mr & Mrs Elvio & Barbara We are most grateful for the continuing Astridge, Mr W Atkins, Mr & Mrs Paul & Mary Atkins, Mr Paul support which we receive from the Aussietravelcover Austin, Mr & Mrs Ken & Heather Australasian Order Of Old Bastards community. Thank you. Australian Communication Exchange Ayling, Mr & Mrs John and Pam Rosa Learmont Ross Divett Foundation Other donations B Kilby & N Martin Donations George Lee The Forsight Foundation For The Bacci, Mr & Mrs Eileen Leslie Deaf and Blind received from: Baffsky, Mr & Mrs F & J received in Bailey, Mr H G Paul Lynne Trust Company Australia Ltd Abbey Funeral Home Bailey, Mrs Babs memory of: Oliver Males Trust Company of Australia (for Absalom, Mr & Mrs R & D Bain, Mr Noel Trevor Marsh Woodend Pty Ltd) Access And General Edication Joseph Ackerman Bain, Mrs Margaret Mario Martinoli Curriculum Centre Eric Adams Baker, Mrs Judy William Marwood Ackerman, Ms Rebekah Leonard Akhurst Baker, Mrs Margaret Dorah Mason ACROD Ltd Annie Donations Balassa, Mrs T Kathleen McGlin Adams, Mr Gordon Julie Asher Baliva, Ms Angela John McGregor Adams, Mr Neville Peter Asimakopoulos received from Ballard, Mr & Mrs KA & KE Anthony McKenna Adams, Mr Nick Aunt Patty Ballard, Mrs Jan Paul Mears Clubs: Adams, Mrs Patricia Robin Balsdon Ballinger, Mrs Suzanne Joan Messaris Adams, Mrs Rae Elizabeth Ruth Barlow Barnwell Park Golf Club Ltd Baphis, D Alina Moffi tt Adams, Prof David Leslie (Roy) Baxter Batemans Bay Women’s Baphis, Mr & Mrs Marilyn Moody Adamson, Mrs Beryl Mary Beavan Bowling Club Barata, Mr Arthur Garry Newman Adolphe, Mr & Mrs P M & L Charles Bevk Botany Ladies Golf Club Barba, Ms Maria June Nugent Affl eck, Mr Lloyd Mr Brady Bulldogs League Club Limited Barkel, Mrs Ella Alistair Orr Aggarwal, Mr Mark Thelma Brunner Canterbury-Hurlstone Park Barker, Mr & Mrs Hugo Micheal Parer Aguilar, Mrs Michelle Sandra Burnes RSL Club and Gloria Marie Parker Akhurst, Mr D Georgette Buttie Carlingford Over 55s Club Barling, Mrs Challis David Paterson Akhurst, Mrs Norma Murray Carse City Tattersalls Club Barlow, Mr & Mrs R & K (Bill) Cecil Phillips Al-Chalabi, Miss Munah Ken Carver Cooma Golf Club Barnes, Mr Kenneth Berniece Ponder Alchin, Mrs Jean Mary Cash Dunedoo Bowling Club Barnes, Mrs Jenny Rene Prior Alcock, Mr V Kim Cheah Five Dock Park Womens Barnwell, Mr & Mrs Wal Victor Ramsden Allan, Mrs Adele Joan Clemens Bowling Club and Joyce Douglas Rojio Allaway, Mrs Margaret Clarence Cornish Galston District Garden Club Inc Baron, Mr Grahame Thomas Saladine Allen, Ms Jill Lucy Cross Gerringong Women’s Barton, Helen, Kelvin Colin Schneider Alliss, Mrs Hilda Paul Cunningham Bowling Club and Connor Pieter Schryver Alloggia, Mr & Mrs Franco and Paul D’Arcy Graduates Garden Club Inc Bass Hill Plaza William Scott Raffaella Patricia Joy Davey Holbrook Aviators’ Group Bassiakos, Ms Elli Keith Simpson Allworth, Mr & Mrs MR & ML Florence Dell Holbrook Ultralight Club Inc Bate, Mr & Mrs Alan & Rhonda Maureen Slade Alt, Mr & Mrs Greg and Bev Terry Driscoll Lidcombe Catholic Workman’s Bateman, Mr Timothy Faye Smith Alver, Mrs Margaret Minnie Everett Club Ltd Bath, Mrs Debra Christine Stevens Ambrose, Mr & Mrs Rob & Sue Joyce (Corrie) Falkingham Lions Club of Frenchs Forest Bath, Stewart and Associates Pty Ltd Lindsay Surrey Amizia, Victor and Rita Taccone And Jenny Fernandez Lions Club Of Jervis Bay Inc Battams, Ms Sally Eddie Symonds Families Vera Fitzpatrick Lions Club of Maclean Bava, Mr M John taggart Anastasio, Mr & Mrs Joe Florence Flavell Lions Club Of Nambucca Heads Baxter, Mrs Beatrice Gwen Taylor and Letizia Walter Ford Lodge Theo Grey Bayley, Mrs B J Norman Thearle Anastasio, Mr Tony Alec Forrester Manly Golf Club Limited Baynam, Mr Brian Kevin Thompson Anderson & Joanne Dries, Paul Forrester Manly-Warringah Master Beach, Ms Helen Kathleen Thurgood Anderson, Dr. R Alexis Goh Builders Club Beaupert, Ms Fleur Edwin Todman Anderson, Mr & Mrs W N & B A Malcolm Gorham Orange Ex-Services’ Club Beckhaus, Mrs Thelma Alexandra Toohey Anderson, Mr Graeme Edward Gregory Raymond Terrace Women’s Bowling Behrmann, Mr Matt Bianca Torrelli Anderson, Mrs Carolyn Margaret Grinter Club Belisario, Mrs Maria Dennis Vickery Anderson, Mrs Norma A Marcia Hall Riverstone & District Lions Club Inc Bell, Ms Patricia Joe Walker Anderson, Ms Fiona Tom Harbison Rooty Hill RSL Club & Resort Bellamy, Mrs E Joyce Walter Andrew, Mr Antonis Dallas Hardy Roselands V I P Club Bellevue Medical Lionel Wheatley Angeloni, Mr Alfonso Herbert Hardy Rotary Club Of Newcastle Inc. Bellingen High School Leslie Woods Anna, Andrew, Darcy, Zac William Harris Rotary Club of Strathfi eld Belrose Public School Allan Worrall and Josie Kevin Charles (Pro) Hart Russell Vale Golf & Social Club Bender, Mrs Jan Joyce Zito Antomiou, Mr M Kenneth Haydon Ryde-Eastwood Leagues Club Bennett, Mr & Mrs Bill And Cathy Aondio, Mrs Eva J J Hayes Seabreeze Hotel Pro Am Fishing Bennett, Mr Barry Archibald, Mrs Iris P. S. Philip Heath Club Bennett, Mrs Lorraine Argall, Ms Cherie Paula Helps Donations St Mary’s Bridge Club Bennett, Mrs Shirley Asher Consulting Carol Hickson South Sydney District Junior Rugby Bennett, Ms Jennifer Asher, Miss Katherine Len Hoare received Football League Ltd Bennett, Ms Megan Asher, Mr Bevan Glenis Hogan South West Rocks Country Club Benson, Ms Elizabeth from Trusts & Asimakopoulos, Mr & Mrs G Pamela Holdsworth TB Sailors, Soldiers & Airmens Beresford, Mrs June Asimakopoulos, Ms Kathy Wendy Jarvis Association Of Nsw Inc Berkovitch, Mrs Gabriela Foundations: Aspinall, Mrs Marie Norma Johnson The Probus Club Of Seaforth Inc. Berry, Mrs Gay The Bill and Patricia Ritchie Asproukos, Mr & Mrs George and John Jones The Sydney (‘76) Ionian Club Inc Beta Sigma Phi Gamma Master Foundation, Fiona Graeme Kelly Toukley Women’s Bowling Club Chapter Ian McNair Charitable Foundation Asproukos, Mrs Theoni Geoffrey Kelton Windsor Country Golf Club Beverley, Mr & Mrs Scott and Rita Ltd Asquith Golf Club Ltd John Kent Bevk, Mrs Edwina Aisla Korten Macquarie Bank Foundation Associates In Mercy Inverell 19

Bicknell, Mr & Mrs Harry & June Bushell, Mrs Gwen Cohen, Mr & Mrs Alec Dell Australia Pty Ltd Feledy, Mr & Mrs Denise And Denis Biggs, Mr & Mrs Ken and Pamela Busuttil, Mrs Gail Cohen, Mr A N Dell, Mr Sean Fennamore, Mrs Hazel Binns, Miss Sheila Butler, Mrs Diane Cole, Mr J R Della Vecchio, Mr Leonilde Ferguson, Mr Ronald J Bird, Mr & Mrs Harry & Mary Butler, Mrs Helene Colefax, Ms Jan Demarchi, Mrs Ondina Fergusson, Mr & Mrs Ian & Kayleen Bird, Mrs Nora Butterworth, Mrs Darinka Collender, Mr Sean Demetriou, Chris Fernandez, Mr Michael Birks, Mr & Mrs Ian and Carol Buttie, Mr Nathan Collens, Mr & Mrs Mervyn & Marcia Denney, Mrs Olive Festo Pty Ltd Blaby, Ms Jenny Byrne, Mr & Mrs Hugh and Betty Colley-McKewin, Mrs Patricia Denton, Mr & Mrs Marian and David Fields, Ms Janice Blackburn, Dr. Susan Byrne, Mr Gary Collings, Ms Carmel Denyer, Mr Gareth Finn, Ms Georgina Blackburn, Mrs Mary Byrne, Mr Tom Collins, Mrs Barbara Department Of Housing Fischl, Mr David Blackman, Mr & Mrs P & M Byrne, Mrs Eileen Collins, Mrs Dawn Derry, Ms Suzanne Fitzgerald, Mr L M Blake, Mr Anthony C Theodorou and Family Colwell, Mr Tim Desa Converters and Staff Flannery, Mrs Frances Blake, Mrs Lizzie Cabon Family, Comerford, Mr & Mrs David & Donna Devine, Mr & Mrs Len And Barbara Fleming, Ms Jill Blake, Mrs Suzanne Caccamo, Mr & Mrs Joe Comerford, Ms Virginia Di Giulo, Ms Costanza Fletcher, Mrs Joan Blinco, Mrs Annette and Rose Connolly, Mr & Mrs Kevin & Jenny Diamond, Mr & Mrs John And Paula Flinders Public School Blisset, Mr David CAF Australia Connor, Ms Janice Diamond, Mr Andrew Flynn, Mr James Blue Gem Contractors Cahill, Mr John Conroy, Ms Fiona Dickings, Mr & Mrs Gary & Rita Flynn, Mrs Rachael Boersma, Mrs Rosemary Cahill, Mr M J Conway, Mr & Mrs R J & J M Dickings, Mr Colin Fogg, Ms Diane Bonanni, Mr & Mrs G Calvert, Mr & Mrs Ian & Christine Cook, Mr & Mrs Darren and Joanna Digiantommaso, Ms Rosetta Foley, Ms Angela Bonanni, Mr & Mrs Robert Cambridge, Ms Rebecca Cook, Mr & Mrs Ron and Shirley Dingwell, Ms Sarah Fone, Mr Keith and Anne Cameron, Mr Jack Cook, Mr & Mrs Steve And Jenny Dixon, Ms Caitlin Footloose Dance Studio Bonanni, Mr & Mrs S & R Campbell, Mr Peter Cooney, Ms Monica Do, Ms Marianne Ford, Mrs Elaine Bonanni, Mr Odolfo Campbell, Mrs Elsie Cooper, Mr & Mrs I & L Doble, Mr Mark Forrester, Mr M J Bonanni, Ms Clara Campbell, Mrs Marjorie Cooper, Mr & Mrs Tom and Gwyneth Dobson, Mrs Jean Fortescue, Mrs Betty Bonanni, Ms Nina Campey, Ms Ruth Cooper, W Doched, Mr & Mrs Gary & Margot Foti, Mr & Mrs F Bond, Mrs Irene Canning, Dr. Colleen Corbett, Mr Donald Donaghy, Ms Margaret Fowler, G Bongarzoni, Mrs Ruth Cant, Mr & Mrs Kevin & Moya Corcoran, Mrs Sue Donaldson, Mr & Mrs SJ & CF Fox, Dr James Booker, Miss Wendy Cantrill, Mr & Mrs R & C Corne, Mr Nigel Dornan, Mrs Julie Fox, Ms Jenni Borg, Mr & Mrs Vince & Doris Caparrotta, Mr & Mrs P & A Cornish, Mrs Shirley Dornan, Mrs Pauline Francis, Mr & Mrs John & Diana Bosquet, Ms Ariane Car Care Service Centre - Mobil Cornish, Ms Marilyn Dowding, R Francis, Mrs Doris (Dot) Bourke, Mr K Wahroonga Coroneos, Mr Nicholas Dowling, Mrs Dale Free, Mrs Margaret Bourke, Mr Paul Carey-Evans, Mr Robert Coroneos, Mrs Maureen Downer Engineering Freeland, Mr Steven Bower, Mr Phil Caroso, Mr & Mrs M Corporate Cars Australia Downs, Mrs Evelyn Freeman, Mr & Mrs Walter and Judy Bower, Ms Linda Carroll, Mr & Mrs J & B Corrigan, Mr John Doyle, Dr. D R Friend, Mrs L Bowey, Mr & Mrs Peter Carse, Miss Tracey Coulthart, Mr Gordon S Doyle, Ms Lorraine Frost, Mrs Janette and B. 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Goratschow, Mrs R Head, Mr & Mrs V & G Jones, Mr & Mrs Henry And Patricia Ledingham, Mr & Mrs Charles & Martin, Mr & Mrs Robert And Jean Gordon, Mr & Mrs John and Anne Heaney, Ms Marie Jones, Mr & Mrs Peter & Marie Janelle Martin, Mr Malinda and David Gordon, Ms Judith Hearing Technology Pty Ltd Jones, Mr & Mrs Russell & Catherine Lee, Mrs Elizabeth Martin, Mrs Lois Gorham, Ms Maree Heath, Mrs Margaret Jones, Mr G R Lee, Mrs Patricia Marwood, Mr F B Gosbridge Pty Ltd Heath, Ms Judith Jones, Mrs Deidree Lee, Ms Gaye Mason, Mr Richard Gosford Town Centre Heaton, Mr Geoff Jones, Mrs Dorothy Legg, Mr Michael Mason, Mrs Annette Goth, Mr John Hector, Mr Peter Jones, Mrs Helen Lehman, Dr. Ross Matthew, A Goudy, Mr Anthony Hedderman, Mrs Bregetta Jones, Mrs Joan Lehrle, Mr & Mrs R Matthews, Mr & Mrs J & T Gounaris, Mr Chris Hemery, Mr John Jones, Mrs Lauren Leichhardt Council Maxwell, Mrs C F Gow-Gates, Mr Anthony Henley, Mrs Sue Jones, Ms Margaret Leighton Holdings Limited Mayfi eld, Mr & Mrs Allen and Joy Grabrowski & Family, Mrs Danuta Henley, Mrs Sylvia Joseph, Mrs Pauline Leishman, Mrs Lena Mayson, Mrs J S Graham Bayes Mid Coast Funerals Hennessey, Mr & Mrs Larry & Jo Junee Public School Lemann Dental P/L McBey, Mr Rob Graham, Mrs Joyce Hennessy, Mr Gary Jung, Ms Amanda Lemoine, Mrs Pamela McCallum, Mr & Mrs Wayne & Heidi Grandi, Mr & Mrs G Henshaw, Mrs L Kaal, Mr David Leo, Ms Tanya McCarron, Mr Pat Grant, Mr Malcolm Herd, Ms Marie And Ann-Marie Kakun Holding P/l Leonard, Mr B McCarthy, Mr C Grant, Mr Matt Herslet, Mrs Anne Marie Karnolz, Ms Helena Leroux, Mr M E McCaskill, Ms Maree Grasso, Mr & Mrs Mario and Anna Hertslet, Mr James Kater, Lady Lesley, Glenn, Blake, Gail, Luke and McConnell, Mrs Dorothy Gray, Mrs Joan Hibberson, Mrs Diana Katie Main & Paul Julian, & Michael Karina Young McConvill, Mr & Mrs Peter and Grayking Interior Supply Pty Ltd Higgins, Mr B L & Lindsay Main Lewis, Mrs Lyndsay Margaret Green Point Residents Association High Valley Holdings Pty Ltd Katon, Mrs Vicki Lidcombe Public School McCowan, Mr & Mrs Ian & Kaylene Green, Mr Troy Hill, Mr & Mrs N J KAZ Group Ltd Liffman, Ms Ailsa McCreanor, Mrs Kim Green, Mrs Jenny Himmelreich, Mrs Elisabeth Keany, Mr Peter Lightfoot, Ms Jenny McDonald, Mr A C Green, Ms Sharon Hindmarsh, Miss Anne Keast, Mrs Una Lioness Club Of Camden McDonald, Mr WR Greenberg, Mr Glen Hitchen, Mr Frederick Kefaloukou-Pappas, Ms Poppy Liston, Ms Mary McDonald, Ms Jenny Greenep, Mrs Judith Hoare, Mrs Margaret Keft-Cooper, Mrs Helen Little, Ms Nancy McDonald, Ms Linda Greentree, Mr Neil Hobbs, Mr & Mrs David & Rosemary Keith, Mrs L Livermore, Ms Dorothy McDougall, Mr Bruce Gregory, Mrs Tracy Hodgekiss, Mrs E Kelly, Mrs Patricia Loizou, Mrs Michelle McDougall, Mrs L Griffi n, Mr & Mrs R & M Hodgkinson, Mr Malcolm Kempsey Shire Council Long, Miss Dorothy McDowall, Mr Simon Griffi n, Ms Kayee Hogan, Mr Fred Kendall, Ms Antoinette Long, Ms Teresa McDowall, Mrs Melissa Griffi ths, Mrs Kathryn Holder, Dr. J M Kennedy, Mrs Deanna Louis, Mrs Geraldine McEwan, Mrs J Grimes, Mr Stafford Holt, Mr & Mrs A C & MDF Kennedy, Mrs P Love, Mr M McFarlane, Mr Scott Grose, Mr Greg Homel, Mrs Dorothy Kenny, Mrs May Lovett, Mr Ian McGregor, Ms Helen Grundy Family, Homer, Mrs Valda E. Kenyon, Mr & Mrs Brett and Yvonne Lovett, Mrs Cynthia McGuinness, Mrs Marjorie C Grundy, Mr Alan Hopping, Mrs Cheryl Keogh, Mrs D Lovett, Ms Ruth McIvor, Miss J GSAHS Horman, Mrs Katrina Kerr, Mr W Lovitt, Miss Lorraine McKeand, Mr L H Gudenus, Ms Veronika Horne, Ms Pat Keyte, Aun Low, Mrs Ella McKeand, Ms Janice Guffi cke, Mr B Horsley, Mrs Louise Khoury, Mr George Lowcock, Mrs Gloria McKenna, Mrs Gail Gurgis, Maurice Hosie, Ms Annmarie Khursigara, Mr Rusy Lucas, Mr & Mrs Noel & Margaret McKenzie, Mr & Mrs Fred & Jill Gurney, Mr Troy Houston, Mr & Mrs Graham and Kidd, Mr & Mrs Jim and Noelene Lundie, Mrs B McKenzie, Ms Sue Haggerty, Mrs Catherine Margaret Kiely, Mrs June Lygo, Mrs Mary McKeown, Mr & Mrs Andrew Hale, Ms Jean Howard, Mr W Killotrip, Mr B Lyons, Mr Paul McKinnery, Mrs Shirley Halkea, Ms Victoria Howard, Ms Deborah Kinsey, Mr Bing Lyons, Mrs Valda McLaughlin, Mrs M Hall, Mr & Mrs Stephen & Vicki Howe, Mr Robert Kintominas, Mr Peter Macartney, Mrs C I McLlelland, Mr Daniel Hall, Mrs Mavis Howell, Mrs Stephanie Kirkby, Mr & Mrs P & J Macchi, Mrs Edna-Livio McLoughlin-Hill, Mrs Merlinda Hallaways, Mr N R Howlett, Ms Rachel Kirkwood, Mr Daniel MacCue, Mr & Mrs J McMichael, Mrs Lou Halliwell, Mr & Mrs Norm & Danielle Hrysanthos, Ms Tasia Kirsch, Mr Gorm MacDonald, Mr Allan McNeill, Mrs Barbara Halloway, Mr Donald Hughes, Mr Vince Kirwan, Mrs Elmyra MacDonald, Mrs G H McPherson, Mrs Margaret Hamilton, Mr Tony Hungerford, Mr Bernard Knight, Ms Carole MacDougall, Mr & Mrs Ian and Jenny McRae, Mr & Mrs Bruce & Lynne Hamilton, Mrs Sue Hunt, Mr Ronald Kolokouris, Mr & Mrs N & P MacDougall, Mrs Margaret McRae, Mrs Lynn Hammond, Mrs Lesley Hunt, Ms Melita Kominatos, Mrs Zoe MacGregor, Mr M A Mead, Mr Rex Hammond, Mrs Roslyn Hunter, Mr Rodney Koorey, Ms Jenny MacInnes, Mrs Nicola Meadley, Ms Louise Hanford, Mrs Meryl Hutchings, Mrs Sue Kramer, Mr R Mackay, Mr & Mrs Rosalie and Rod Mears, Mrs Ella Hanko, Mr P Hutchinson, Mrs J Kriketos, Ms Emily Mackovsta, Ms Elizabeth Mears, Mrs Jacqueline Hanlon, Mr Martin Hyland, Ms Lorna Krnel, Mr Andrew MacMahon, Mr Ted Mears, Ms Beatrix Hannon, Mrs Janette IGA Jewel Erina Ku-Ring-Gai Creative Arts High Macmillan, Mr Pat Medfi n Australia Pty Ltd Hanov, Mrs Sue Illawarra Country Bootscooters School Macquarie Bank Limited Meer, Mrs P Hardaker, Mrs Alice Mae Inglis, Mr Howard Kurrajong Pharmacy Maddock, Mrs Terri Mega-Save Pharmacy Harden, Ms N A Innes, Mrs Christine La Motta, Mr & Mrs Peter & Carla Magiannis, Mr & Mrs Angelo and Meggs Grain And Fertiliser Hardgrave, Ms Myrtle Ireland, Mr Greig La, Mr Evan Maria Melchert, Mrs Nella Hardy, Ms Meryl Irving, Mr E Lacey, Ms Liz Maguire, Mrs Pat Melissourgos, G.P. Hare & Forbes MachineryHouse Isemonger, Mr & Mrs Sam & Carlie Laird, Mr Simon Maguire, Ms Natalie Menzies, Mr Arthur Harrap, Mrs Marjorie Jackson, Mr Terrence Laird, Mrs Patricia Maher, Mrs S Merucci, Mrs Ida Harrietville Music Camp Jackson, Mrs Barbara Lakehaven Shopping Centre Major, Mrs Pamela Mezzatesta, Mr Dino Harris, Miss Sian Jacobs, Mr & Mrs L Lambert, Mr Brian Makdi, K Middleton, Mr & Mrs J Harris, Mr & Mrs Anthony & Sandra Jacobs, Ms Elaine Lamont, Mrs Mallick, Mr Robert Mikunda, Mr Slawek Harris, Mr Ian Jacobson, Mr Gary Lane, Mrs J Malmquist, Mrs Margaret Millar, Mrs Nicola Harris, Mr Tony James, Mr David Langdown, Mrs Marion Malusa, Mr & Mrs P & M Miller, Dr. Craig Harris, Mrs Sandra Jameson, Mrs Peg Langford, Mr S H Malusa, Mr Claudio Miller, Mr & Mrs Glenn and Jan Harris, Mrs Valerie Janice Witchard & Dawn Hansen Langstaff, Mr & Mrs Ken & Lyn Mann, Mrs R Miller, Mr Brent Harrison, Mr Jonni Jansen, Mr A P Langton, Ms Christine Mansfi eld, Mr & Mrs Garth And Miller, Mr Cameron Harry, Dr. Jenny Jayawardene, Mrs Margaret Larizza, Mr & Mrs Stephen & Sonya Margaret Miller, Mrs Phyllis Harry, Mr & Mrs Jeoff and Lexie Jedrzejczyk, Ms Y Latta, Mrs L Manuel, Miss Jeanette Milling and Stuart Hartley, Mrs Jean Jefferson, Ms Diana Latter, Ms Lesha Marczan, Mr & Mrs Frank & Karen Mills Cameron Gallagher Lawyers Hartley, Ms Claire Jeffries, Mr Peter Laurent, Ms Jill Margulis, Mrs Ann Mimmo, Mr & Mrs Rocky and Laurel Harvey, Mr & Mrs Bill Jenkins, Mr & Mrs Lily and Bob Laureti, Mr & Mrs A & M Marks, Mr Andrew Minter, Mr & Mrs Wayne and Jean Harvey, Mr & Mrs R & L Joannou, Mr & Mrs George and Dora Laureti, Mr & Mrs S Marlin, Mrs Margaret MND Association of Tasmania Inc Harvey, Mr B Job and Shirley Achilles, Mr Ron Laus, Mrs Lorraine Marr, Mr & Mrs Don And June MND Support Group Newcastle/ Harvey, Mrs Gladys John Smith Building & Design Lawrance, Mr & Mrs P & C Marsh, Mr & Mrs Alan & Shirley Hunter Region Harvey, Mrs Jan Johnson, Mr & Mrs Brian and Ann Lawrance, Ms Leanne Marsh, Mrs Pam Moffi tt, Mr Brian Arthur Haslam, Ms Elizabeth Johnson, Mr Charles Lawson, Mr Phillip Marsh, Ms Sandra Mogg, Mrs Margaret Hastie, Mrs Ona Johnson, Mr David le Bas de Plumetot, Ms Amanda Marshall, Mr Peter Moir, Mr & Mrs Brian and Carolyn Haswell, Mr Kevin Johnson, Mr Norman Lean, Mr & Mrs Jim and Elaine Marshall, Mrs Suzy Monkhouse, Mrs Irene Haydon, Mr & Mrs John & Anne Jones, Fay, Col, Michael and Glenn Leclerc, Mrs M Martin, Mr & Mrs Barrie and Robyn Monteith, Ms Yvonne 21

Montgomery, Mr & Mrs R O’Donnell, Mr & Mrs JM & FE Parmenter, Mrs Majella Pope, Mr & Mrs G & B Ridd, Mrs Gladys Moody, Mr Ian O’Dowd, Mrs Janet Parr, Mrs Wendy Port Stephens Carers Day Rider, Mr George Mooney, Mr Edward O’Grady, Mrs R Parsons, Mrs Janet Committee Robb, Ms L Moore, Mr & Mrs W Olby, Miss Susan Paterson, Mrs Anne Porter, Mr Garth Robb, Ms Melanie Moore, Mr Ken O’Loughlin, Mrs Margaret Paterson, Mrs Jean Porter, Ms Leslie Roberts, Mr Robert (Bob) Morgan, Mr & Mrs Geoffrey & Betty O’Neill, Mr Graham Patrick, Mrs Elspeth Portland Branch Country Women’S Robertson, Mr & Mrs Mike & Janice Morgan, Mr & Mrs Howard & Beverly Openshaw, Ms Diane Payne, Mr & Mrs Alan & Thelma Association Of Nsw Robertson, Mr E Morgan, Mr Michael Order Of The Eastern Star Lithgow Payne, Mrs Portland Central School Robertson, Mrs Donna Moroney, Mr K Chapter No. 39 Payoe, Mr Chris Potbury, Ms Kim Robinson, Mr & Mrs Phil and Sue Morris, Mr David Order Of The Eastern Star Pearce, Mr Hamish Potter, Mr Stewart Robinson, Mr Dave Morris, Mrs Sharyn Wollongong Chapter No. 59 Pearce, Mrs Helen Potter, Mrs Kathleen Robinson, Mrs June Morrison, Mr Don O’Reilly, Ms P L P Pearson, Mrs Allison Potter, Mrs Lesley Robinson, Ms Wendy Morrison, Mr Ian Orel, Mrs Ann Pecar, Mrs Patricia Poulos, Mr Jim Roche Products Pty Ltd Morrow, Ms Corrina Orr, Mr Cameron Pena, Mr Luis Poulos, Mrs Nina Rockliff, Mrs Jann Morse, Ms Joan Orr, Mr Derek Pennefather, Mrs Jean Powditch, Ms Elizabeth Rodgers, Ms Julie Mortimer, Mr & Mrs R & Z Orr, Mr Graham Pennings, Miss Jenny Powell, Mrs Patricia Rodoreda, Ms Louise Moses, Mr Jason Orr, Mrs Debi Perera, Mr Maurice Powney, Ms Maryann Rodrigues Holding Pty Ltd Mossman, Mrs Moya Orr, Mrs Margaret Perkins, Mrs Jill Pring, Ms Ellen Rodwell, Mr Ian Mount Beulah Chapter No. 5 Orr, Mrs Olive Perks, Mr Geoffrey Prinsen, Ms Eve Rogers, Ms Val Mouris, Ms Mary Orton, Mr & Mrs Margaret and Norm Pero & Ivo Polouineo Prior, Mr Kingsley Rogut, Mr Shawn Mr & Mrs Catherine and Matt Rojo, Mrs Karla Mr & Mrs Charles & Melissa Roland Clark & Associates Mr & Mrs Ecka & Glenda year ago we were told my Aunty has Rose, Mr Athol Mr & Mrs John & Jean Cooper Motor Neurone Disease. I didn’t know Ross, Mr & Mrs E & L Mr Pailas & Ms Venning what to think or even what it was, most Rourke, Mr & Mrs John and Eileen Mrs G Bosi and Family A Rowley, Mr & Mrs Darren & Vanessa Mrs R Gibson, Mrs H Lees, Mrs kids my age have no idea. I felt helpless and Royal North Shore Hospital W Taplin, Mrs N Thorn and Mrs J wanted to do something. Royal North Shore-Merchandise Mundell Rumble, Mr Terry Ms Flora Alessio and Ida Torrelli I was in Newport one afternoon when I saw Rumsey, Mr Neville Ms M Davidson & Mr Liam Piggott Ruscio, Mr & Mrs S & M Ms Susan Lupica and Mr Roland my friend who was wearing a blue wristband. Russell, Ms Suzanne Sdiani I liked the look of it and bought one from the Ryan, Mr & Mrs Noel and Sandra Muir, Ms Lauraine chemist, then I realised it was for MND and thought my cousin Ryan, Mr & Mrs Peter and Virginia Mula, Mrs Rosemary Ryan, Mr & Mrs T & C Mulley, Mr & Mrs Graeme And Helen Emma and I could sell them at school to raise money and Ryan, Mr Barry Munday, Mrs Annette awareness of this little known disease. Ryan, Mr Matthew Munro, Mrs Robin Ryan, Mrs Fay Murray, Mr & Mrs John & Joan We spoke at assembly and most of the kids were shocked Ryan, Ms Louise Murrumbidgee Country Quilters I to fi nd out about MND and that at this time there is no cure. Saladine, Mrs Shirley Musso, Mrs Guiseppa Sams, Miss Muriel Muston, Ms Jenny Emma and I were able to sell over 100 wristbands within a Samuels, The Hon. Gordon Myers, Mr & Mrs John and Barb few days. We also bought the socks because they are really Sanson, Mr David Nagle, Mr John Santer, Mr & Mrs David & Eleanor Nakayama, Ayano comfortable. Saunders, Mrs Helen Napier, Mr Phillip Savva, Mr & Mrs Con & Dora Napper, Mrs M J Hopefully our small effort will help research into MND so Sayed-Ahmed, Mr Ahmed Nariman, Mr Adil other families don’t have to go through this. Scenic Tours Nash, Mrs Janet Scheinecker, Mrs Janice Nathan, Mr & Mrs J & P Angie Lovett Schmeising, Mrs Naulty, Mrs Heidi Schneider, Mrs Margaret Naylor, Ms Kerrie-Ann Newport Schouten, Mr Pieter Neal, Mr Arthur Schwertner, Mr & Mrs Lothar & Inge Neal, Mrs Sandra Scipioni, Ms Nina Neeson, Mr & Mrs R W & J E Scully, Mr & Mrs Laurie and Josie Negus, Miss Jean Osborn, Mrs Beverley Perry, Mr Chris Prosser, Mrs Kathleen Searle, Mrs Annette Nelson, Mrs Lilian Oswald, Mr Phillip Petersen, Ms Natalie Pugh, Ms Joan Semple, Mrs Deborah Nemec, Mr & Mrs Jeff And Karen Owen, Mr Matthew Peterson, Mrs Kelly-Anne Purcell, Mr Mark Sen, Mrs Archana Roma New South Wales Fire Brigades Owen, Mr Nev J Peterstiles Associates Pursell, Mr & Mrs Robert and Sergi, Mr F Newlyn, Mr Fred Owen, Mrs Doreen Petterson, Janet Rosemarie Seven Hills Station Newman, Mr & Mrs Paul and Shellie Owen, Mrs Joan Pettiford, Mrs Irene Qasabian, Mr & Mrs Vic & Chris Severin, Mr Reginald Newman, Mrs Ann Owens, Ms Davina Pfaffl in, Mr Robert Qenos Pty Ltd Sewell, Mrs Di Newth, Dr. Jill Oz Labels Pfennigworth, Mr & Mrs Ian And Quality Health Care Pty Ltd Seymour, Miss Carol Nicholls, Mr Bruce Packer, Mrs Jenny Elizabath Quinn, Mr Richard Sharp, Mr & Mrs I Nichols, Ms Margaret Padovan, Ms Belinda Philipp, Mr & Mrs Don And Joy Quist, Mrs Jennifer Shattles, Mr & Mrs G & B Nicholson, Mr John Page, Meredith Phillips, Mr & Mrs S Rainaldi, Ms Anna Shaw, Mr J P Nimmo, Ms Lisa Pailas, Mr & Mrs Phillips, Mr K S Raisin, Mr Louis Shearer, Miss Alison Nixon, Mrs Denise Pakainiskis, Mrs C F Phillips, Mrs Dorothy Rajola, Miss Rosemary Shearer, Mrs Patricia NJ & NP Jones & Co Pty Ltd Pallis, Mr Bill Phillips, Ms Connie Ramsden, Mr George Shiels, Mr & Mrs Gary and Vicki Norman, Mrs E Pallis, Mr Bill Phillips, Ms Judi Rann, Ms Yazmin Shrivell, Mrs C A Norris and Joe Ellindi, Mr David Pallis, Mr Cecil Phillips, Ms Lynne Rantucci, Ms Maria Sibbald, Ms Leanne Norris, Mr & Mrs I R & R M Palmer, Leslie Pinna, Mrs G Recreational Aviation Australia Siciliano, Mr & Mrs M & M Norris, Mr Graeme Palmer, Ms Novah Piper, Mrs Thelma Redding, Mr John Siddall, Mr & Mrs Carl and Rhonda Norris, Ms Juliet Palmerone, Mr & Mrs Vera and Pittman, Mr & Mrs C Reed, Mr John Sidoti, Mr V Northern Rivers Support Group Laurie Pitty, OAM, Mrs Doris Rega, Miss Maria Simiana, Mrs Agnes Nrma Insurance Australia Ltd Pamphlett, Dr Roger Plane, Mr & Mrs H J & E A Regal, Mrs Vi Simich, Mr Martin Nuss, Mrs Marie Paol, Ms Robyn Platt, Mr & Mrs Michael And Pamela Rego, Ms L S Simon, Mrs Susan Oakhill Drive Public School Papadopoulos, Mrs Sofi a Pogson, Mrs Joy Reid, Mr R Simpson, Jim O’Brien, Mr Simon Pappas, Mr Peter Pola, Mr & Mrs Ron and Shirley Rendalls, Mr Shane Simpson, Mr & Mrs David & Penny O’Bryan & Family, Ms Robyn Paranomos, Mr Andrew Pollard, Ms Maryann Reymond, Mr & Mrs R F Simpson, Mrs Val O’Connor, Mr & Mrs Geoffrey & Parker, Mr Neville Pomering, Mr Ron Reymond, Ms Claire Simpson, Ms Lorraine Rachel Parkes High School Ponder, Mr & Mrs G & S Rice, Mr & Mrs Malcolm & Carolyn Sinclair, Ms Linda Oddie, Ms Nola Parkes, Ms Vicki Ponder, Mrs Jean Richard, Kristen and Travis Singer, Mr & Mrs David and Marilyn 22

Singer, Mr Arnold Beverley Ticehurst, Dr. Gregory Van Someren, Mr Dennis White, Mr & Mrs George and Marilyn Single, Mrs K D Taylor, Mr Wayne Ticehurst, Mr Benjamin Van Weije, Mr Len White, Mr Norm Singline, Mr Vernon Taylor, Mrs Beverley Tiernan, Mrs Shane Varley, Ms Jenny White, Mrs Joan C Skal Internation Sydney North Taylor, Mrs L J Tippett, Mr & Mrs Phil and Margaret Vennard, Ms Samone (Sam) White, The Hon, Justice M J Skinner, Mr & Mrs Peter and Sue Taylor, Mrs Lorna Tobias, Ms Tania Venn-Brown, Mr Ian Whitford, Mrs Judy Slack, F Taylor, Mrs Rosemary Todman, Mrs Lorraine Vincent, Mrs Whitton, Miss G Slack, Mrs Betty Teasdale, Miss Julia Tomasi, Miss Sandra Virginie, Mrs G Whitty, Mrs Joanne Sloane, Mrs Olive Tebbutt, Mrs Diedre Toner, Ms Ronda Vittoriano, Doriana and Dana Ciaccia Wiles, Mrs Lianna Smallwood, Mrs Doreen Telstra Tooher, Ms Elizabeth Waddington, Mrs (Gwen) Florence Wilkinson, Mr Robert Smaniotto, Ms Iuana Templeman, Mr Robert Torrelli, Mr Frank Walker, Mr & Mrs A Wilkinson, Ms Fay Smirniotis, Mr & Mrs L & C Templeton, Mrs Deborah Torrelli, Mr R.E. Walker, Mr Glen Wilkinson, Ms Judith Smith & R M Morris, Mr M E Tester Porter Services Town Hall Walker, Mrs Lorraine Williams, Mr Grant Smith, Dr. David The Affl eck Family Treadwell, Mrs M Walker, Mrs Margaret Williams, Mrs Christine Smith, Mr & Mrs Gary & Maura The Department Of Health Trengrove, Ms Deneise Walker, Mrs Pamela Williams, Ms Anna Smith, Mr & Mrs Tony and Prue The Dowdall Family Trewartha, Mr & Mrs David & Walker, Mrs Rosemary Williamson, Mr Grant Smith, Mr Frank The Ellison Family Margaret Walker, Ms Kristy Williamson, Mrs Gwen Smith, Mr Geoff The Espitalier-Noel Family Trigg, Mr & Mrs Tim & Paula Wallace, Mr & Mrs Gordon and Vicky Williamson, Ms Coral Smith, Mr Gregory John Willoughby Public School Smith, Mr J A Wilson, Mr & Mrs Ken and Bessie Smith, Mrs J arly in 2006 Pauline Marcus joined the Wilson, Mr & Mrs Michael & Janelle Smith, Mrs L Wilson, Mr & Mrs Ron and Bev Smith, Mrs Maria Association when she was diagnosed Wilson, Mr John Smith, Mrs Marion Ewith MND. Until being forced to give Wilson, Mr Philip Smith, Ms Barbara up work she had been a highly successful Wilson, Mrs Margaret Smith, Ms Catriona Wineera, Mr & Mrs R Smith, Ms Kim business woman with an appetite to see the Wink, Mr & Mrs A & S Smith, Ms Sandra world. Winkler, Mr Eric Snow, Mr P J Wintle, Mrs Nancy Snow, Mrs E A Her passion for photography and her Wise, Mrs Judith H Southam, Mrs Judith excellent creative skills meant that each of Withers, Mr & Mrs R Spanton, Ms Lorraine Witte, Mr & Mrs Harry And Barbara Spencer, Mr Robert her many trips to the four corners of the world Witte, Mr David Spitzer, Mr & Mrs Allan & Madeleine has resulted in some magnifi cent pictures. Witt-Roney, Mrs Erica Squadrito, Mr & Mrs J & M Wong, Mrs I Squires, Mrs Colleen She has an ability to make a photograph look like a view from Wood, Mr & Mrs Glen & Joyce SSWAHS a window. Animals come alive in her photographs and she has Wood, Mr J St Catherine’s School Wood, Mr Robert St John Ambulance Australia been able to capture them in their natural habitats – places most Wood, Mr S St Mary Star Of The Sea College of us will never see. Woodcock, Mr & Mrs George & Bev Stadler, Ms Tania Woods, Mr Rowley Staff At Macquarie Bank Soon after making contact with her Regional Advisor, Jo Woodward, Ms Charlotte Stankowski, Ms Judith Fowler, Pauline made a wonderful offer and gave us permission Woolley, Mr Matthew Statis, Mrs Elizabeth Woolley, Mrs Una Stavra, Mr Antonios to use some of her photographs in our 2006 Christmas card Worrall, Mrs Lesley Steele, Ms Bonnie selection. Playful polar bears and cheeky seals compliment Wright, Mr & Mrs D R & T A Stenning, Ms Felicity some wonderful scenes of glaciers in the North Pole region. Wright, Mr & Mrs S & P Stevens, Dr. Robert Wyatt, Ms Penny Stevens, Ms Catherine Although Pauline has lost the use of her hands and arms her Wyllie, Mrs Leone Stevenson, Mr Norman amazing photography skills will continue to delight many of us. Wyong Public School Stewart, Mr John Wyrallah Public School Stewart, Ms Shirley We are most grateful for her generosity. Xavier, Ms Maureen Stirzaker, Mrs Clare Xu, Ms Linda Stobo, Mrs Margaret Yeatman, Mr Fae Stock, Mr & Mrs K H & S N The Golfi n Family Tuckwell, Mrs Jeanne Wallace, Mrs Angela Yeomans, Mrs Bev Stockland Bay Village The Grandchildren of Bianca Torrelli Tuesley, Mr William Walsh, Mrs P Yexley, Mr Roger Stojknovic, Mrs Tereza The Irvine Family Turnbull, Mr & Mrs John & Julie Wane, Mrs Dorothy Yip, P Stollwitzer, Mr & Mrs Andy And The Morrison Family Turner, Mr & Mrs Richard & Deborah Warden, Ms Amy Young, Mr & Mrs Howard & Elaine The National Council Of Jewish Turner, Mrs Nola Warners Bay Uniting Church Aid Annemarie Stuart, Ms Lindy Women Of Australia Turnock, Mr & Mrs Doug Warren, Mr Ralph Young, Mr Timothy Stuart, Ms Verity The Pick Family Turvey, Ms Aideen Waterhouse, Mr & Mrs John & Ruth Young, Mrs Valma Sullivan, Mrs M The Rigney Family Twin City Hire Service Watkins, Mr Michael Young, The Hon. Justice Peter Summerell, Mr P The Schools Chapter Twynham, Mr & Mrs Paul And Watkins, Mrs Helen Yu, Mr & Mrs Vince & Norma Sundar, Ms Bevika The Walker Family Raewyn Watson, Mr Grant Zanella, Mrs C Swain, Mrs N The Waythe Family Tyler, P Watson, Mrs Audine Zavvos, Mr & Mrs Swansea High School Thearle, Mr Tim Tyson, Mr Dennis Watson, Mrs Gwen Ziedan, Ms Josephine Sykes, Mrs Tuula Theoharous, Mr & Mrs D Tzavellas, Mr & Mrs Con & Kay Watson, Ms Christine Symonds, Mrs Dorothy Thomas, Mr & Mrs Peter & Mary Ullett, Mr & Mrs Richard & Shirley Webster, Mrs Helen Taggart, Mrs Janet Thomas, Mrs Ann Underhill, Mr & Mrs S Wee, Mr Kenneth Taggart, Mrs Nancy Thomas, Mrs Patricia Unilever Foods Wes Russell Real Estate Pty Ltd Taggart, Ms Gwenanne Thomas, Rev. Warwick United Airlines Westpac Community Involvement Tait, Ms Maree Thompson, Miss Joanne United Services Union Wetherill Park TAFE Tam, Ms Alice Thompson, Mr Philip United Way Sydney Wheeler Garden Chinese Restaurant Tarento, Mr & Mrs David And Fiona Thomsett, Ms Jan Uren, Mr John Wheeler, Miss Michele Tatarelli, Mr & Mrs Giovanni & Thomson Legal & Regulatory Ltd Uther, Ms Hannah Whelan Project Co Pty Limited Luciana Thomson, Mr Graeme UWS School of Law Whitaker, Mrs Sue Tatarelli, Mr & Mrs Pasquale Thomson, Mrs J Valden, Mr John Whitbread, Mr & Mrs Don And Tatarelli, Mr Nazzareno Thomson, Ms Jo Vamos, Mr & Mrs Barbara Taylor, Mr & Mrs J & S Thorley, Mr Barrie Van Cornewal, Mr Peter White, Miss Linda Taylor, Mr & Mrs Robert and Thorpe, Mr & Mrs Trevor and Jo Van Grootel, Mrs Hazel White, Mr & Mrs Eric And Shirlee Staff Motor Neurone Disease Association of New South Wales Inc. Building 4 Gladesville Hospital Victoria Road Gladesville NSW 2111 Locked Bag 5005 Gladesville NSW 1675 Telephone 02 8877 0999 or 1800 777 175 Fax 02 9816 2077 www.mndnsw.asn.au

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