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Is Turning 30. Does America Include Us Yet? Newmobility.Com JUL 2020 $4 United Spinal Virtual Advocacy Series Thank You to Our Advocacy Partners GOLD SILVER BRONZE

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Is Turning 30. Does America Include Us Yet? Newmobility.Com JUL 2020 $4 United Spinal Virtual Advocacy Series Thank You to Our Advocacy Partners GOLD SILVER BRONZE UNITED SPINAL ASSOCIATION’S life beyond wheels The Is Turning 30. Does America Include Us Yet? newmobility.com JUL 2020 $4 United Spinal Virtual Advocacy Series Thank you to our Advocacy Partners GOLD SILVER BRONZE full color black EXECUTIVE w hite PREMEIR SUPPORTER Aquila’s SofTech Healing Results Amaze the Medical Community SofTech Cushion Completely Self-Contained with Wireless Remote Shown without cover Medicare HCPCS code E2609 AquilaCorp.com 8667829658 GO GREEN TO GIVE BACK! Every print subscription that converts to digital saves United Spinal Association $20 per year. If 5,000 readers convert to digital, that would drive $100,000 into our advocacy efforts and resource center! Help us help more people — call 800/404-2898, ext. 7255 or visit unitedspinal.org/switch-to-green-give-back to convert today! Convert your New Mobility print subscription to digital and receive these great perks: • Early access to the full magazine • Enhanced media content, such as videos • Clickable links — no need to type in URLs to find more info Prefer not to convert to digital but still want to give back? Any amount helps! Visit www.unitedspinal.org/donations COVER STORY THE ADA AT 30 Thirty years ago the Americans CONTENTSIssue 322 - July 2020 with Disabilities Act was stuck in Congress. MIKE ERVIN talks with the activists who crawled life beyond wheels up the Capitol steps and shook it loose. JOSIE BYZEK interviews advocates about how our civil rights law has performed since it passed, and where it needs to go next. And STEVE WRIGHT introduces us to people whose job it is to ensure the ADA works i for everyone with a disability, m u w e j O whether they live in the country, a l O f o y s our biggest city or somewhere e t r u o c o in between. t o h P 20 Cover and Contents Photos by Tom Olin FEATURES DEPARTMENTS 4 BULLY PULPIT 16 GO FARTHER, BETTER Long gone are the days of depending solely on giant, leaky bat- 5 BEHIND THE STORIES teries to power chairs and cycles. BOB VOGEL has the scoop on 6 SHARE how new and improved battery technology is helping users get 8 NEWS the most out of their devices. 10 UNITED NEWS 34 READY TO LEAD, READY TO ROLL 11 BIG IDEAS Rear Admiral Kyle Cozad had done a little bit of everything over 13 REFRAMED his three-decade career in the Navy, and as SETH MCBRIDE 14 HOW WE ROLL reports, a 2018 SCI didn’t keep him from serving our country. 44 HOSPITAL MEMBERS 40 THE PRIMARY CARE PROBLEM 46 ERVIN A primary care provider is supposed to help manage your com- 47 TECHNOLOGY plex care needs, but finding one who understands SCI/D and 48 RESEARCH MATTERS actually helps can be surprisingly difficult. BOB VOGEL exam- 51 ines what’s behind the difficulties and shares advice so you can CLASSIFIEDS make sure your next PCP doesn’t let you down. 52 LAST WORD Photo by Dakota Anderson life beyond wheels BULLYBy Ian PULPITRuder NEW MOBILITY IS THE MONTHLY MAGAZINE OF UNITED SPINAL ASSOCIATION PRESIDENT & CEO: JAMES WEISMAN VP OF PUBLICATIONS: JEAN DOBBS AN UGLY BUT POSITIVE LEGACY On the list of “terrible things about flying as does know that I am entitled to equal rights, EDITORIAL a wheelchair user,” being referred to as “an and he associates that with the ADA. PUBLISHER: JEAN DOBBS ADA” by inconsiderate airline staff prob- Would I rather have him thoughtfully EXECUTIVE EDITOR: JOSIE BYZEK ably ranks somewhere between having engage me on the merits of in-home support EDITOR: IAN RUDER your wheelchair damaged and waiting for services and why a broader application of ASSOCIATE EDITOR: SETH MCBRIDE everyone to deplane before getting off. It’s the Olmstead decision makes a lot of sense? EDITOR EMERITUS: TIM GILMER dehumanizing, embarrassing and, honestly, Of course I would. And in no way am I trying SENIOR CORRESPONDENT: BOB VOGEL just rude. to excuse his total lack of people skills and CORRESPONDENT: AARON BROVERMAN It’s bad enough having to be strapped compassion. But it’s progress. into the world’s least comfortable chair and Now you can definitely argue that’s a CUSTOMER SERVICE delivered to the seat like a slab of meat on small step for 30 years, and you’re 100% a dolly. But hearing another human reduce Toll-free 800/404-2898, ext. 7203 your existence to an acronym for a piece of “It speaks to the law’s legislation — often while refusing to make ADVERTISING SALES eye contact — is the final step in complete impact on the collective 718/803-3782 objectification. consciousness — that dark MANAGER, CORPORATE RELATIONS: It’s a legacy Justin Dart and the other dis- corner of society that can MEGAN LEE, EXT. 7253 ability leaders who fought for the Americans AD MATERIALS: DEANNA FIKE, EXT. 7250 with Disabilities Act over 30 years ago surely be so hard to light up.” didn’t envision, and probably wouldn’t have right, but there are plenty of examples of PRODUCTION been thrilled about. But as ugly as it may be, bigger steps surrounding us everywhere we PRODUCTION MANAGER: DEANNA FIKE I think there is a good argument that the use look, from public transit to architecture, em- of “an ADA” is actually evidence of one of the CIRCULATION ployment and beyond. I chose this example law’s most meaningful impacts: giving Ameri- CIRCULATION MANAGER: because it speaks to the law’s impact on the cans a framework and a vocabulary (however BEVERLY SMITH collective consciousness — that dark corner limited) to openly discuss disability rights and of society that can be so hard to light up. see them as civil rights. POSTMASTER: Send address changes to New Outspoken disability activists and ad- Clearly, the ADA wasn’t a panacea, but Mobility, 120-34 Queens Blvd, #320, Kew Gardens between the highly visible efforts of activists NY 11415. Subscription rates: $27.95/year; $35.95/ vocates long ago understood that disability year in Canada; $67.95/year international via rights are civil rights, but prior to the passage and the actual regulations it enshrined, the airmail. New Mobility (ISSN 1086-4741), Volume act managed to shed some light in the dark- 31, Issue 322, is published monthly by United of the ADA, I don’t think most Americans Spinal Association, 120-34 Queens Blvd, #320, understood what they meant. The ADA has ness and wake the general public up to the Kew Gardens NY 11415. Copyright 2020, all rights rights so many of us were being denied. reserved. Reproduction without permission of any become what no previous disability legisla- material contained herein is strictly prohibited. We tion managed: an animating embodiment of The ADA has given us a framework to welcome comments; we reserve the right to edit discuss the progress and the shortcomings submissions. the belief that disabled people should enjoy of the disability rights movement, and for Periodicals postage paid at Flushing, NY the same civil rights as everyone else. and additional mailing offices. The airline employee who calls me “an that I am grateful. Thirty years of fighting ADA” has probably never heard of Section has developed that framework into a solid 504, and probably doesn’t know that it’s ac- foundation of public consciousness and legal www.newmobility.com tually the Air Carrier Access Act that protects protections. Now we have to finish building www.unitedspinal.org my equal rights as an airline passenger, but he our home. 4 NEW MOBILITY life beyond wheels BEHIND THEWith Ian Ruder STORIES COLUMNISTS MAT BARTON • JOSH BASILE SHERI DENKENSOHN • MIKE ERVIN MIKE FRANZ • BROOK MCCALL TEAL SHERER • TODD STABELFELDT REVECA TORRES • KATE WILLETTE life beyond wheels KARY WRIGHT When our editorial team started discussing the idea of an oral history of the Capitol Crawl, my mind instantly leapt to Mike CONTRIBUTORS Ervin as the person for the job. He was there for the Crawl, KIM ANDERSON • CHRISTIAAN BAILEY he knows lots of the other people who were there, and he’s LAWRENCE CARTER-LONG a heckuva writer; what better qualifications could I hope to MICHAEL COLLINS • RORY COOPER find? When I pitched the story to him, he told me he thought DEBORAH DAVIS • JENNIFER FRENCH he could find a few people to interview and pull together ALEX GHENIS • RICHARD HOLICKY 1,200 words. Well, he ended up with almost twice that many GARY KARP • PAULA LARSON words and a collection of voices that makes for a colorful and REGAN LINTON • LILLY LONGSHORE valuable piece of history. “Fortunately, everyone I spoke with KATE MATELAN • BEN MATTLIN was pretty eloquent in their recollections,” says Ervin. ASHLEY LYN OLSON • KENNY SALVINI ERIC STAMPFLI • MITCH TEPPER Photographer Tom Olin had a feeling March 12, 1990, ANTHONY TUSLER • KIRK WILLIAMS was going to be a great day to take photos so he lugged a CORY LEE WOODARD gigantic 500 mm lens with him when he set off to cover LOREN WORTHINGTON the disability rights action planned for the U.S. Capitol. He was right. The photos he shot of what became known as the Capitol Crawl helped galvanize Congress to pass WEB PARTNERS the ADA and turned the nation’s eye to the civil rights of BACKBONES disabled people. Still, Olin plays down his reputation as CURB FREE WITH CORY LEE one of the preeminent chroniclers of the disability rights ROLLIN’ RNS movement. “I was never really a good technical person,” he says. “I think of myself more as being there and being ROOTED IN RIGHTS able to take the right picture at the right time and the SPINALPEDIA right place.” SPIN THE GLOBE FEATURED WEB PARTNER: This issue wouldn’t be a NEW MOBILITY ADA anniversary cel- SPINALpedia is a social mentoring ebration without a memorable contribution from our own network and video archive that executive editor, Josie Byzek.
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