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NCD CIVIL SOCIETY NATIONAL AND REGIONAL NCD ALLIANCES IN ACTION NCD CIVIL SOCIETY ATLAS National and Regional NCD Alliances in Action NCD CIVIL SOCIETY ATLAS National and Regional NCD Alliances in Action Visit us facebook.com/ncdalliance twitter.com/ncdalliance linkedin.com/company/ncd-alliance youtube.com/c/NCDAllianceOrg instagram.com/ncdalliance NCD Alliance, May 2018 Edited by the NCD Alliance Design and layout: Mar Nieto NCD Alliance 31-33 Avenue Giuseppe Motta, 1202 Geneva, Switzerland www.ncdalliance.org Contents ACRONYMS AND ABRREVITATIONS 7 ACKNOWLEDGEMENTS 8 EXECUTIVE SUMMARY 9 NCD CIVIL SOCIETY ATLAS INITIATIVES AROUND THE WORLD 10 I, BACKGROUND 12 National and regional NCD alliances 14 The NCD Civil Society Atlas 17 Sharjah Awards for Excellence in NCD Civil Society Action 17 II. METHODOLOGY 18 III. OVERVIEW AND EMERGING TRENDS 19 IV. KEY SUCCESS FACTORS 21 1. Leveraging member strengths 21 2. Embedded programming: engaging with existing national systems 21 3. Involving people living with NCDs 22 4. Designing joint interventions 22 5. Maximising media outreach 22 6. Building sustainable resourcing models 22 V. INNOVATION 24 VI. NCD CIVIL SOCIETY CONTRIBUTIONS 25 NATIONAL AND REGIONAL NCD CIVIL SOCIETY INITIATIVES ADVOCACY 29 Rapid Regional Response to Strengthen and Defend National NCD Policies in Latin America 30 Coalición Latinoamérica Saludable (CLAS) Latin America Reaching Multisectoral Consensus on Actions to Meet NCD Goals in Finland 32 Finnish NCD Alliance (FNCDA) Finland NCD Civil Society Atlas: National and Regional NCD Alliances in Action | 3 Multi-Stakeholder Advocacy for Sugar-Sweetened Beverages Tax in Colombia 34 Mesa Colombiana de incidencia frente a las Enfermedades Crónicas (MECIEC) Colombia Joining Forces for an Improved Food Labelling System in Australia 36 Australian Chronic Disease Prevention Alliance (ACDPA) Australia and New Zealand Setting the Stage for Regional CSO Collaboration and Capacity Building in the Eastern Mediterranean 38 Eastern Mediterranean Region NCD Alliance (EMRNCDA) Eastern Mediterranean Crafting a Collective Advocacy Agenda in Support of a Sugar-Sweetened Beverages Tax in South Africa 40 South African NCDs Alliance (SANCDA) South Africa Securing High-level Political Support for Global NCD Advocacy 42 Alianza ENT Uruguay Uruguay Supporting National Alcohol Policy Development in Nepal 44 Nepal NCD Alliance Nepal Speaking Up about NCDs as a Women’s Rights Issue at the Global Level 46 Taskforce on Women & NCDs United States of America High-level Advocacy for NCD Prevention through Tobacco Control in Bangladesh 48 Bangladesh Network for NCD Control and Prevention (BNNCP) Bangladesh Collaborating with Government to Improve Healthy Eating Opportunities in Zanzibar 50 Zanzibar NCD Alliance (ZNCDA) Zanzibar Working to Strengthen the Implementation of FCTC Article 14 in Mexico 52 Coalición México Salud-Hable and Coalición Latinoamérica Saludable (CLAS) Mexico Standing Up to Industry to Secure Higher Sugar-Sweetened Beverage Taxes 54 Healthy India Alliance (HIA) India Litigation and Public Mobilization to Demand Healthy Food Regulation in Peru 56 Alianza ENT Perú Peru Turning Members of Parliament into NCD Advocates through Screenings and Seminars 58 Tanzania NCD Alliance (TANCDA) Tanzania 4 | NCD Civil Society Atlas: National and Regional NCD Alliances in Action Rallying Support for NCD Prevention in Parliament through a Cross-Party Group 60 ScotHealth 2021 Coalition Scotland Speaking with One Voice to Rally Support for a Sugar-Sweetened Beverages Tax in Mexico 62 ContraPESO, the Alianza por la Salud Alimentaria, and the Coalición México Salud-Hable Mexico Advocating to Integrate NCDs into Ethiopia’s Health Sector Programme 64 Consortium of Ethiopian NCD Associations (CENCDA) Ethiopia ACCOUNTABILITY 67 Benchmarking to Track and Advance Regional NCD Action in East Africa 68 East Africa NCD Alliance (EANCDA) East Africa Exposing Tobacco Industry Participation in Development Initiatives in Latin America 70 Alianza ENT Perú Peru and other Latin American countries Working to Ensure Accountability on NCD Commitments Across the Caribbean 72 Healthy Caribbean Coalition (HCC) Caribbean Community (CARICOM) Ensuring Government Accountability and Action on Obesity through Civil Society Shadow Reporting 74 Rede ACT de Promoção da Saúde (ACT+) Brazil AWARENESS 77 Creating a Journalists’ Forum to Raise Awareness about NCDs 78 Tanzania NCD Alliance (TANCDA) Tanzania Using a Media Campaign to Spread Public Awareness about Jordan’s Smoking Ban 80 Jordan NCD Alliance (JNCDA) Jordan Adopting a Community Participation Strategy for NCD Prevention and Control 82 NCD Alliance Kenya (NCDAK) Kenya Ensuring High Quality Palliative Care by Educating Hospital Volunteers and Staff 84 Healthy India Alliance (HIA) India Celebrating Healthy Lifestyles at an NCD Festival in Aqaba City 86 Jordan NCD Alliance Jordan NCD Civil Society Atlas: National and Regional NCD Alliances in Action | 5 Strengthening Alliance Membership to Inspire Action on NCDs in Burundi 88 Burundi NCD Alliance (BNCDA) Burundi Using Online Tools and Support Services to Prevent Arterial Diseases in Finland 90 Finnish NCD Alliance Finland Protecting Children’s Health by Involving Paediatricians, Teachers and Students in NCD Prevention 92 Healthy India Alliance (HIA) India Facilitating Provincial Action to Implement South Africa’s National NCD Framework 94 South Africa NCD Alliance (SANCDA) South Africa Promoting NCD Awareness and Screening at Car-Free Day Events in Kigali 96 Rwanda Non Communicable Diseases Alliance (RNCDA) Rwanda Creating Risk Factor Peer Educators by Training Children and People Living With NCDs 98 Healthy India Alliance (HIA) India Turning High-Level Government Leaders into Physical Activity Champions 100 Tanzania NCD Alliance (TANCDA) Tanzania Working Together to Stage Public Events for Stroke Awareness 102 NCD Alliance Kenya (NCDAK) Kenya ACCESS 105 Building Civil Society Capacity to Improve Access to Cancer Services for Underserved Populations 106 Healthy Caribbean Coalition (HCC) Caribbean Community (CARICOM) Leveraging Member Capacity to Improve Access to NCD Services in Rural Areas 108 NCD Alliance Malawi Malawi Expanding Access to Nutritious Food and Health Services Among Vulnerable Urban Communities 110 Non-Communicable Diseases Forum Bangladesh ANNEX 1: Directory of contributing national and regional NCD alliances 114 ANNEX 2: Resourcing and donor acknowledgements 118 6 | NCD Civil Society Atlas: National and Regional NCD Alliances in Action ACRONYMS AND ABRREVITATIONS CSOs Civil society organisations CSSA Civil society situational analysis FCTC Framework Convention on Tobacco Control GAP WHO Global Action Plan for the Prevention and Control of NCDs 2013-2020 GCM Global Coordination Mechanism on NCDs HICs High-income countries LICs Low-income countries MoH Ministry of Health NCDs Noncommunicable diseases NCDA NCD Alliance NGOs Nongovernmental organizations PAHO Pan American Health Organization SDGs UN Sustainable Development Goals STEPS STEPwise approach to Surveillance SSBs Sugar-sweetened beverages USA United States of America WHO World Health Organization NCD Civil Society Atlas: National and Regional NCD Alliances in Action | 7 ACKNOWLEDGEMENTS The NCD Civil Society Atlas presents the initiatives of national and regional NCD alliances around the world. Thanks to all contributors for sharing their valuable work. The NCD Alliance sincerely thanks the four independent reviewers who helped score the initiatives and select the winners of the Sharjah Awards for Excellence in NCD Civil Society Action: Rachel Nugent, Loyce Pace, Joseph Kibachio and Ehsan Latif. The atlas was conceptualised and edited by Josianne Galea Baron, Cristina Parsons Perez and Katie Dain. Case study collection, synopsis and writing were performed by Shoba John (an external consultant)* and Josianne Galea Baron. The graphic design and editorial production were led by Jimena Márquez and Mar Nieto. * Shoba John is a health and development consultant who has been working on a range of national and international policy initiatives, including NCD prevention, for over two decades. 8 | NCD Civil Society Atlas: National and Regional NCD Alliances in Action EXECUTIVE SUMMARY An effective whole-of-society approach to the NCD response requires a vibrant and mobilized civil society capable of delivering on its main roles. National and regional NCD alliances bring together civil society organisations to work together towards a shared agenda to create awareness, improve access, advocate for action and ensure accountability. In 2015, to coincide with the first Global NCD Alliance Forum in Sharjah, UAE, the NCD Alliance produced the Situational Analysis of National and Regional NCD Alliances to help characterize the basic structure, evolution to date, priorities, challenges and support needs of national and regional NCD alliances. At the time, there were 43 regional and national NCD alliances. The situational analysis revealed that a significant number of alliances had been formed in response to global political NCD events, such as the 2011 UN High-level Meeting on NCDs and the SDGs approved in 2015. It also showed that NCD alliances provide platforms for joint action and advocacy coordination. Since 2015, the NCD civil society movement has continued to flourish, with 55 regional and national alliances at the latest count. The NCD Civil Society Atlas: national and regional NCD alliances in action captures a snapshot of how this cohort of NCD civil society