John Mann How the Spirit of the West Singer/Songwriter Found Inspiration from His Experience with Cancer PM 40065475

Home , Geoffrey Kelly, Hugh McMillan (musician), John Mann (musician), Spirit of the West

FORWARDSPRING 2014 LIVING YOUR BEST LIFE AFTER CANCER

A New Chapter Cancer led one woman to reach out to the world Making The Transition How to take control of your return to work Online Connections Special supports for patients, survivors and caregivers

John Mann How the Spirit of the West singer/songwriter found inspiration from his experience with cancer PM 40065475

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Volume 2, number 1 FORWARD MAGAZINE ADVISORY COMMITTEE ANGELA BEDARD Program Facilitator, Survivorship BC Cancer Agency

ALLISON COLINA Communications Manager BC Cancer Foundation

DR. KAREN GELMON Medical Oncologist BC Cancer Agency

TRACY KOLWICH Manager, Pacific Region Ovarian Cancer Canada

MARY McBRIDE Senior Scientist, Cancer Control Research BC Cancer Agency

Kristina Morrison Nurse Practitioner UBC Family Practice

SUNAINA SHARMA Patient Representative

DEBORAH TWOCOCK Patient Representative

CHERI VAN PATTEN, RD Research and Clinical Practitioner, Oncology Nutrition BC Cancer Agency

JENNIFER WAH, ABC, MC Principal Consultant Forwords Communication Inc.

ANGELA WILSON, ABC Communications Manager, BC Cancer Agency PHSA

PATSY WORRALL Vice President, Marketing and Communications BC Cancer Foundation

Chairman CEO Peter Legge, OBC, LLD (HON) President Samantha legge Editor Ann Collette Contributing Editors Angela Bedard, Angela Wilson Art Director SUsAN MINTON GREEN Contributing Photographers CAMERON HERYET, CHUCK RUSSELL, AMANDA SKUSE Contributing Writers Sue Bugos, ALLAN JENKINS, CLAUDIA KWAN, JENNIFER WAH, KATE ZIMMERMAN Electronic Imaging MANDY lau, Laura Michaels Production Manager KRISTINA borys

Forward is published three times a year by Canada Wide Media Limited for the BC Cancer Agency. No part of this magazine may be reproduced without the written permission of the publisher. To unsubscribe or change your address, please send your request to [email protected], or mail to 663 – 750 West Broadway, Vancouver, BC V5Z 1H5, or call 1-800- 663-3333 ext. 674619. Publication Sales Agreement No. 40065475. This magazine is generously supported by the BC Cancer Foundation.

p02-03_Contents.indd 2 14-03-18 9:06 AM FORWARD Volume 2, number 1 15 FORWARD MAGAZINE ADVISORY COMMITTEE ANGELA BEDARD Program Facilitator, Survivorship BC Cancer Agency

ALLISON COLINA Communications Manager BC Cancer Foundation

DR. KAREN GELMON Medical Oncologist BC Cancer Agency TRACY KOLWICH contentsfeatures Manager, Pacific Region Ovarian Cancer Canada 10 John Mann MARY McBRIDE Actor and Spirit of the West singer/songwriter found new inspiration following Senior Scientist, Cancer Control Research BC Cancer Agency his experience with colorectal cancer.

Kristina Morrison Nurse Practitioner 16 Making The Transition UBC Family Practice Are you planning to return to work? Learn how to know yourself, pace yourself SUNAINA SHARMA and take control of what you can. Patient Representative

DEBORAH TWOCOCK 18 Online Connections Patient Representative Confidential online support provides cancer patients, survivors and caregivers CHERI VAN PATTEN, RD with a safe place to share. Research and Clinical Practitioner, Oncology Nutrition BC Cancer Agency

JENNIFER WAH, ABC, MC Principal Consultant departments Forwords Communication Inc. 4 Message ANGELA WILSON, ABC Communications Manager, BC Cancer Agency Dr. Max Coppes, President, BC Cancer Agency PHSA

PATSY WORRALL 5 Living Well Vice President, Marketing and Communications BC Cancer Foundation Are organic foods the healthy choice; Dietary supplements don’t always add up to better health; The continued importance of screening for cancer. 8 Journeys Surviving cancer inspired Terri Wingham to reach out into the world – and bring fellow survivors with her. Chairman CEO Peter Legge, OBC, LLD (HON) President Samantha legge Editor Ann Collette 13 Advances Contributing Editors Angela Bedard, Angela Wilson A new made-in-BC drug shows promise in treating advanced prostate cancer. Art Director SUsAN MINTON GREEN Contributing Photographers CAMERON HERYET, CHUCK RUSSELL, AMANDA SKUSE 14 In Focus Contributing Writers Sue Bugos, ALLAN JENKINS, The importance of access to lifestyle resources for colorectal cancer survivors. CLAUDIA KWAN, JENNIFER WAH, KATE ZIMMERMAN Electronic Imaging MANDY lau, Laura Michaels 15 Ask An Expert Production Manager KRISTINA borys Nurse educator Mary McCullum discusses genetic testing for hereditary

Forward is published three times a year by Canada Wide Media Limited cancers. for the BC Cancer Agency. No part of this magazine may be reproduced without the written permission of the publisher. To unsubscribe or change your address, please send your request to [email protected], or 20 Foundation mail to 663 – 750 West Broadway, Vancouver, BC V5Z 1H5, or call 1-800- Alex Blodgett shares his inspiring story of cancer survival and of giving back. 663-3333 ext. 674619. Publication Sales Agreement No. 40065475. This magazine is generously supported by the BC Cancer Foundation. 22 What’s On A guide to informational seminars and special events around If you have a topic that you would like to see British Columbia. covered in a future issue of Forward, please let us know by emailing us at [email protected]. 23 Helping Hands The top “must-read” books for those who have had cancer.

COVER PHOTO BY Amanda Skuse; ABOVE PHOTO BY Cameron Heryet spring 2014 FORWARD | 3

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Spring Forward

ro beratis nulpa dolupta eruntibus simin Welcome to our second issue of the province – a collaboration between the num reniet dipsam vendit, alibus, sin par- Forward, for those living with and be- BC Cancer Agency, the Regional Health chit. Damusci core, sita qui oﬃ cia ea vo- yond cancer. We received great feedback Authorities and the Ministry of Health. luptatene ea volupta quatia nia aut harum on our fi rst issue and I hope you will Under the Provincial Colon Screening volorib earitia autatis dus sunt fugitibus enjoy our future issues just as much. Program, family physicians and primary pa vel eum facest, volo temposs undioru Spring signifi es moving forward or care providers can refer individuals without mquatum quataque reptaquo et quisquo- leaping ahead, which is also a good repre- symptoms between the ages of 50 and 74 di bea comnis dolupta sum quae. Cabo. Pa volupidion cum nobit, esedi dereratus sentation for the season as many get a fresh for a fecal immunochemical test (FIT), once ma quas dolupta tectatessi as num dolor- start with spring cleaning and getting back every two years. FIT detects blood in your ro beratis nulpa dolupta eruntibus simin outdoors aft er the chilly winter (especially stool (poop), which can be a sign of several num reniet dipsam vendit, alibus, sin par- for those living in Northern BC). disorders, including polyps that may need chit. derum rerum eliqui dolori cuptatque For this issue we have included a variety to be removed to prevent cancer, or colon prestiam voluptati comni blande volori- of content that we hope will help you spring cancer, which requires immediate attention. bus, corest aut venis anis ipis apidell or- ahead on your journey. Stories range from Th e new Provincial Colon Screening esseque es idit hitiunt pel illorum iur, quo tips to maintaining a healthy and proactive Program is an important tool in screening eumenitat facit eost ommollaut erovide lifestyle in Living Well, to supportive re- for colon cancer. With early detection and libusap editatus rernatecto dolendit, unt sources like Online Connections or Making treatment survival rates are approximately pra cus, voluptaecte andit liquis mollaci the Transition, as well as some inspiring 90 per cent. As we talk about in Screening endemol enectibus eaqui quam quis si- stories about individual journeys. for Cancer on page 7, regular screening is maximo et hitam ressunt usamus. Th is past March was also Colorectal important for everyone, even for those who Cancer Awareness Month, which is a have had cancer before. I hope you will par- great reminder to learn more about colon ticipate in this new screening program. cancer. John Mann, our cover story, shares his experience with colorectal Wishing you a vibrant and fresh spring. cancer on page 10. An estimated 3,100 British Columbians will be diagnosed Sincerely, with colorectal cancer in 2014. In November of last year, BC’s Colon Screening Program took effect across

Dr. Max Coppes President BC Cancer Agency Dr. Max Coppes President BC Cancer Agency

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Are Organic Foods a Healthy Choice?

Your hand hovers over the Like most questions, the answer ier than non-organic foods. She believes organic apples, as you wonder, “does it lies in the grey areas, because while all consumers, including those who matter?” Is it worth paying 25 per cent organic food production is widely have had cancer, are far better off more for the allegedly healthier acknowledged to be healthier for making conscious dietary decisions Granny Smith apples your husband the environment, are organic foods based on what is healthy rather than loves so much? necessarily healthier for us? organic. Jesse Veenstra, a nutritionist with “Switching to organic alone will not the Provincial Health Services do nearly as much for you as reducing Authority, says many people buy red meat intake, for example, or avoid- organic foods to avoid pesticides ing processed foods,” says Veenstra. and to make a healthier food “Don’t think, ‘Oh, it’s organic, it must choice. But both impulses may be good for me.’ Reducing sugar is far be misplaced. more important than whether or not “One of the big misconcep- that sugar is organic.” tions about organic foods is that Instead, Veenstra recommends they are pesticide-free,” says choosing whole foods over processed Veenstra. “They are reduced in foods, legumes and pulses (e.g., lentils, organic foods, but pesticides are dried peas) over red meats, and lots of used in organic farming. The fruits and vegetables whether organic difference is in how they are used or not. and what pesticides may be used.” “It is more important for you to “Pesticides used in organic farming focus on eating things that are rich in must be naturally derived, and there minerals and vitamins, especially the are strict rules about when and where antioxidant vitamins like C, which is they can be used,” says Veenstra. rich in fruits and vegetables, like kiwi “Unfortunately, pesticide and kale. Plant foods also contain a residues can also get broad range of beneficial phytochemi- into organic food cals, which have been shown to have a supplies just from role in a lot of disease prevention and proximity to recovery,” says Veenstra. conventionally Veenstra notes that most British grown crops. Columbians are fortunate because they Dr. Max Coppes Given the size of have good year-round access to locally President the food industry, grown products through our many BC Cancer Agency a lot of it ends up farmers’ markets. in run-off.” “Get out and learn more about Veenstra also new fruits and vegetables that you cautions consum- otherwise might not have known,” says ers not to assume Veenstra. “Shop seasonally, and talk to organic foods are growers who can give you tips on how necessarily health- to prepare a certain vegetable.” ■

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Dietary Supplements Th ey don’t always add up to better health

B-complex, vitamin C, zinc, well-meaning friend,” says Ross. “I ask you may have harmful interactions.” folic acid, beta-carotene, coenzyme Q10, ‘what are your goals for using the prod- Ross says that thinking about possible oil of oregano, echinacea…scan the shelves uct?’ Th at oft en gives people pause. I try risks oft en brings the conversation back of any vitamin or health food store these to work with them to make sure they are to goals: days and the options are dizzying, clear about what they want to attain.” “For example, if you are interested in especially for those who are trying to Ross also urges those who have had vitamin C, we can talk about food choices make good health a priority. cancer to think about possible interac- that would give you enough, because food Many people think, “why shouldn’t I tions, noting that most supplements are choices are generally safe. Experts in diet supplement good eating with additional more akin to drugs than food. and cancer recommend that survivors vitamins and minerals, on the off -chance “Supplements are concentrated,” says aim to meet nutritional needs through I’m missing something in my diet?” Ross. “So by ingesting them, people can diet alone.” Not so fast, says one expert. really change the balance in their systems. Ross says that people interested in Brenda Ross, research nurse coordi- Even people who have fi nished active supplements have a number of oﬃ cial nator at the Complementary Medicine treatment for cancer may still be taking resources to consult: Education and Outcomes (CAMEO) pro- some kind of medication. If you mix a • Pharmacists have expert knowledge gram, advises people to take a measured concentrated supplement with a drug, about whether a product has evidence of approach, starting with “why a eff ectiveness or is safe in cancer condi- supplement?” tions and with treatment. “Th ey may have heard of a “Experts in • BC Health Link (8-1-1) has oncology product from a loved one or a diet and cancer dietitians who can answer questions about complementary/alternative medi- recommend cines and cancer. that survivors People aff ected by cancer can call (and aim to meet sometimes visit) their regional BC Cancer Agency library for more information. nutritional Th eComplementary Medicine needs through Education and Outcomes (CAMEO) pro- diet alone.” gram website (www.bccancer.bc.ca/cameo) off ers a “useful links” page where CAMEO’s most trusted sources are referenced. In general, if you are considering supplements, Ross advises caution and a lot of research. Many supplements have not been scientifi cally tested for their benefi ts concerning cancer or promoting survival, and no hard evidence exists showing their eff ectiveness in pre- venting cancer recurrence. ■

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p04-07_Message_LivingWell_v2.indd 6 14-03-18 9:39 AM Screening for Cancer Th e continued importance of regular check-ups you may have harmful interactions.” Th e best-possible bookend to diagnosed with colorectal cancer, when in those who survive. Ross says that thinking about possible the phrase, “you have cancer,” are the compared to the general population. Targeted screening continues to play risks oft en brings the conversation back words “you’re cancer-free.” And, upon “We’re seeing increased survival from a major role in detecting cancers early, to goals: hearing those words, most would like to cancer, but as we continue to age, the when pre-cancerous growths can be “For example, if you are interested in think that they’ll never have cancer again. risk of developing cancer continues to go detected and removed and there are more vitamin C, we can talk about food choices However, the reality is that there is no up,” says Woods. “Age remains one of the treatment options. that would give you enough, because food guarantee and you should continue with strongest factors in determining cancer It’s important to follow a regular choices are generally safe. Experts in diet recommended cancer screening. risk, in part because we accumulate cancer-screening schedule, based on your and cancer recommend that survivors Ryan Woods, scientifi c director of exposure to carcinogens over time.” sex, age and medical history. Talk to your aim to meet nutritional needs through the BC Cancer Registry, points to data Woods also points out that treatments family health care provider if you are not diet alone.” that suggests second cancers are more for cancer do play a role in increasing risk sure what screening is right for you. ■ Ross says that people interested in common than you might think. supplements have a number of oﬃ cial A large-scale American research project resources to consult: examined a group of cancer survivors • Pharmacists have expert knowledge and found that eight per cent had been about whether a product has evidence of diagnosed with two or more cancers. eff ectiveness or is safe in cancer condi- “Th ere have been several studies that tions and with treatment. have estimated the risk of developing • BC Health Link (8-1-1) has oncology cancer again in women who have had dietitians who can answer questions breast cancer. Th ese reports suggest that about complementary/alternative medi- aft er 10 years, between four and eight per cines and cancer. cent of women will get cancer in their People aff ected by cancer can call (and other breast,” he explains. sometimes visit) their regional BC Cancer A separate US study found that the Agency library for more information. risk of developing colon cancer is 1.5 to Th eComplementary Medicine two times higher in people previously Education and Outcomes (CAMEO) program website (www.bccancer.bc.ca/cameo) off ers a “useful links” page where CAMEO’s most trusted sources are referenced. In general, if you are considering supplements, Ross advises caution and a lot of research. Many supplements have not been scientifi cally tested for their benefi ts concerning cancer or promoting survival, and no hard evidence exists showing their eff ectiveness in pre- venting cancer recurrence. ■

p04-07_Message_LivingWell_v2.indd 7 14-03-18 9:39 AM A Fresh Chapter Surviving cancer inspired Terri Wingham to reach out into the world – and bring fellow survivors with her

Terri Wingham had plenty of worries during life was my work, and then I wasn’t allowed to diagnosis just doesn’t seem possible.” her 18-month breast cancer ordeal, which work. I felt really at a loss about who I was.” Wingham cast about for guidance, even began in 2009. But when her cancer went into Many people who’ve been diagnosed with sending a letter to TV personality Oprah Winfrey remission, she discovered that one of her most cancer find themselves stripped of the aspects in hopes that she’d be taken under Winfrey’s challenging new tasks was finding her purpose. of their lives that they feel define them, says generous and encouraging wing. “I wanted to be Before her diagnosis, she says, “I was 30 Wingham. “For some of us, going back and saved, you know? I wanted somebody to help and single and successful in my field, and my pretending to be the same as we were before me figure out what was next.”

“It’s important for those who have had cancer to feel that cancer is part of the story – but it’s not the whole story.”

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p08-09_Wingham_v2.indd 8 14-03-18 9:08 AM Journeys A Fresh Chapter Surviving cancer inspired Terri Wingham to reach out into the world – and bring fellow survivors with her diagnosis just doesn’t seem possible.” Eventually, the Vancouverite discovered an In February of 2013, she took 12 cancer Wingham cast about for guidance, even article by a life coach who urged readers not to list survivors (11 women and one man) on a two-week sending a letter to TV personality Oprah Winfrey their desired goals for the coming year, but figure trip to India, where they were matched up with in hopes that she’d be taken under Winfrey’s out how their ideal situation would make them opportunities that suited their skills and interests. generous and encouraging wing. “I wanted to be feel. Wingham decided that she wanted to feel They worked in New Delhi daycares, supported saved, you know? I wanted somebody to help “healthy, loved and inspired.” She began wondering English lessons in schools, served meals at me figure out what was next.” how to make that happen. institutions catering to the disabled, and washed “Out of nowhere, I had this idea of volunteer- floors at Mother Teresa’s Home for the Destitute and ing in Africa,” she recalls. “I’d never been someone the Dying. They also connected with a New Delhi who wanted to go to the developing world, but cancer support organization. for the first time since I’d got sick, I felt excited Most of the participants were people who had about something. I felt like something new might rejected the idea of traditional support groups, as be possible, that something bigger than cancer had Wingham: “I didn’t want to sit in a circle and might become my story.” talk about my feelings. Inevitably, on these trips, Wingham went to Cape Town, South Africa, they end up doing that, but it’s under the guise of with a volunteer organization called Cross-Cultural volunteering and adventure and travel. They end Solutions, blogging about it all the while. She up having conversations that are really deep about volunteered for six weeks at an underfunded day- who they are as people and what they’re afraid of care, working with toddlers in the mornings. and where they want to go.” “I would say that they healed me,” says The trip was such a success that Wingham Wingham. “It was an opportunity to get out of organized another one for 2014. However, not feeling like my life was ruined by cancer.” everybody wants to travel across an ocean, which Wingham capped off her journey with a trip to is why last November she partnered with an Namibia, Botswana and Zambia, spending her last inner-city school in Los Angeles that has a day in Africa at Victoria Falls, a lifelong wish. community garden. The North American pilot Rejuvenated, she began thinking about how program was for those who wanted to make a she could help others who had overcome cancer difference closer to home. They spent two do something equally positive together, where mornings in the garden and the afternoons their cancer experiences could be a common trying something new like yoga or meditation. backdrop, but not the main event: “I think what The key concept of A Fresh Chapter is that as I really wanted was that sense of connection with long as we’re here, we can do meaningful things. other people who felt like me, who were interested “One of the participants said to me, ‘You know, in the world the way that I was.” I saw someone I hadn’t seen in a long time, and When she realized there weren’t any interna- normally, she’d ask ‘How are you feeling? Is the tional volunteer organizations aimed at cancer cancer gone?’ but she didn’t. She said, ‘I heard you survivors, Wingham decided to establish a non-prof- went to India! How was that?’ It’s important for it foundation, describing it as “a big, hairy, those who have had cancer to feel that cancer is audacious dream.” She called it A Fresh Chapter. part of the story – but it’s not the whole story.” Wingham took a six-month volunteer trip to That’s certainly true for Wingham, whose new seven countries with seven international partners, life is based on opening people up to possibility. looking for the right place to start. She decided on “I love it,” she says of running A Fresh Chapter. ingham

w India because it had infrastructure in place to treat “It’s stressful, but I feel like it’s the work that I any health issues that might arise, it had volunteer was put on the earth to do. Participants are erri t opportunities galore, and it offered unforgettable happier, and they’ve found ways to bring more y of of y s

e “bucket list” experiences, like watching the sun meaning into their lives. And you think, ‘Gosh, t rise over the Taj Mahal. At the same time, each what better thing is there to do in the world?’” o Cour

t survivor would be a “Cancer Ambassador” in a To learn more about A Fresh Chapter and

Pho place where the disease is often treated as shameful. Terri’s journeys, visit www.afreshchapter.com ■

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p08-09_Wingham_v2.indd 9 14-03-18 9:08 AM John Mann An unexpected journey through colorectal cancer delivered some equally unexpected gifts for the actor, singer and songwriter

n stage, he is lithe, muscular and full of life. But John Mann, the accomplished actor and lead singer/songwriter of the Canadian folk rock band Spirit of the West, quickly softens as he talks about being diagnosed with colon cancer five years ago. OAs John tells it from the quiet confines of his eclectic character home in East Vancouver, he was rehearsing for Les Misérables at Vancouver’s Arts Club Theatre in the spring of 2009 when he suddenly started experiencing painful abdominal cramping. Most colorectal cancer (94 per cent of new cases) is diagnosed in people over age 50, and John, then 47, was just on the edge of that milestone. And, while diet and lifestyle are among the most significant risk factors for colorectal cancer, John had lived a healthy, clean, fit life. Still, symptoms of abdominal pain prompted his family doctor to send him for a colonoscopy. The diagnosis: an early-stage, slow-growing tumour in his lower intestine. John’s doctor’s instincts resulted in early intervention. Surgeons removed the tumour, and no additional chemotherapy or radia- tion was needed. John knows he was lucky, as does his wife and collaborator, playwright Jill Daum. Their gratitude is palpable. While no time is a good time for a cancer diagnosis, the timing of John’s cancer surgery posed additional stress as he was right in the midst of preparing for another stage production. With opening night just four months away, his face was already on the promotional posters for Beyond Eden, the story of Wilson Duff, an anthropologist who fought to preserve Haida totem poles on the coast of British Columbia. The Calgary and Vancouver shows starred John, along with Tom Jackson, of North of 60 fame. “My BC Cancer team seemed confident going in to the surgery,” says John. “But you never know how these things are going to go.” Sure enough, while the “angry sore” of cancer was cleanly removed, John woke up to an unexpected turn – a colostomy bag, which is an external pouch for the collection of waste. It’s not an accessory most actors care to work with. Fortunately, three months later, following another surgery, the bag was removed, but not without complications from infection. However, there was an even bigger worry for John. The first surgery had damaged his vocal cords causing scarring, a devastat-

ing injury for a singer and actor. continued on page 12 ▶ SKUSE AMANDA BY Photo

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p10-13_Mann_Advances.indd 10 14-03-18 9:08 AM Feature

Singer/songwriter John Mann with his wife and collaborator, playwright Jill Daum.

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p10-13_Mann_Advances.indd 11 14-03-18 9:08 AM (Top, left to right) Spirit of the West bandmates Hugh McMillan, John Mann, Tobin Frank, Vince Ditrich and Geoffrey Kelly; (below left) John Mann’s cancer experience became a source of new inspiration.

sometimes fall asleep for the night,” says John, while Hattie had her interest in nursing piqued further by her dad’s experience. “You want to protect your kids as a parent. And then, you can’t,” says Jill. “They rise to the occasion, and they end up giving you something, because they are stronger people than you know. But it’s not something you would have chosen for them. You want to protect them, but they end up growing.” Possibly the most moving song on John’s new solo album, The Waiting Room – full of “10 chart-busting cancer anthems” – is “Thank You.” In it, John speaks of “growing a softer heart,” an evolution Jill says has made him more appreciative and less aggravated by the small things. “You’re less irritable,” she laughs at him, as only a spouse of 25 years can. “It opened something up in you.” While not exhaustive, “Thank You” offers an inventory of the moments and memories that got John through, from the “plums from your yard,” to “the joke that nearly ripped [him] apart.” And no, he claims he cannot remember the joke his buddy told. Sometimes the joke matters less than the laughter. These days, John is as ready with smiles as he is with reflection. Five years out, he doesn’t dwell, but absolutely fears a recurrence. Jill continued from page 10 hugs her husband with her words: “It took you awhile to leap into “When they intubate a patient for surgery, there is the possibility things,” she says softly. “John went from being a fearless person, to a of damage to the vocal cords,” explains Jill. “It’s no one’s fault – it’s just person that has fear.” that the tube can rub against the cords. But John sees the whole experience as a gift: “I always just felt we “[After the initial injury] we were terrified about the second sur- were lucky. We got off easy. We pursue what we love. We are blessed. gery,” Jill adds, although John jumps in, enthusiastically remembering We get to do what we want for a living. This all has been a great gift.” the vocal coach he worked with to make his post-surgery voice even John’s new album, The Waiting Room, is a tribute to his experience better than before. with cancer. Most of the songs were originally commissioned by Luckily, a few weeks after the colostomy bag was removed, the Arts Club Theatre, which is producing a stage production of Beyond Eden opened to critical acclaim, first in Calgary, and then in The Waiting Room for the fall of 2015, in collaboration with Morris

Vancouver. For John, the closing curtain on the last show marked the Panych. Thankful to many groups and individuals who supported the SKUSE ) AMANDA T EF end of an intense journey – and an emotional collapse. creation of this CD, including the BC Cancer Foundation, John’s hope L “There’d been this constant self-talk,” he remembers. “Maybe I’ll is that the songs will offer solace and camaraderie to others who have M be okay, maybe I’ll be okay… And then, I was.” been touched by cancer. OTTO t; (B

When asked where he might have put more energy – into healing, Of his songs and his life, John says: “You just tell your story and es w e

or into the creative process – John knows the two are the same for hope others see themselves in it.” ■ h T F F O

him: “Songwriting and performing heal me. Even conversations like T this one, heal me.” F SPIRI F Looking back, John and Jill agree that telling their children – Early Detection Saves Lives O ESY ESY Hattie, 17 at the time, and Harlan, 18 – was the hardest thing. ll With early detection and treatment, survival rates for T UR O “They were stoic and full of love,” John recalls, with tears in his colon cancer are as high as 90 per cent. usse R ) C eyes, telling how the kids rode their bikes to visit him in the hospital T

Women and men ages 50 to 74 should talk to their EF uck L almost every day, since Jill was busy every evening with the premiere health care provider about getting screened regularly P TO of Mom’s the Word Remixed, the show she co-wrote with the interna- as part of the Provincial Colon Screening Program, tionally renowned Mom’s the Word collective. now available across BC. Go to www.screeningbc.ca ( Photo Ch BY Photo “Harlan would come and just sit in the chair in my room, and for more information.

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p10-13_Mann_Advances.indd 12 14-03-18 9:08 AM Advances

Prostate Cancer Breakthrough

Wonder what a marine sponge expert and a prostate cancer researcher could possibly have in common? Thanks to their collaboration, an experimental compound derived from marine sponges, called EPI-001, could become a highly effective new treatment in the fight against advanced prostate cancer. Like other therapies, EPI-001’s aim is to disrupt the androgen receptor protein, which serves as the cancer’s “fuel.” But unlike other therapies, which slow but do not cure the cancer, EPI-001 appears to effectively disable the receptor and destroy the cancer. EPI-001 was developed by Dr. Marianne Sadar, distinguished scientist at the BC Cancer Agency, and Dr. Raymond Andersen, professor of chemistry at UBC. Research published in June 2013, in the Journal of Clinical to attack the “back of the canoe” in A new made-in-BC drug Investigation, confirmed that Sadar’s 1998, when she pondered why the team had provided proof-of-principle marker for prostate cancer, the prostate shows promise in seeking that EPI-001 works on prostate cancer specific antigen PSA( ), continued to be and destroying advanced cells resistant to drug therapy. elevated in men being treated for the prostate cancer “Think of the androgen receptor advanced disease: “The only way that as a canoe. All current therapies for continued elevation is possible is if the advanced prostate cancer work at one androgen receptor is still working, since the team found EPI-001 from Andersen’s end, the bow so to speak,” says Sadar. it turns on the PSA gene. So, it meant natural compounds library and by 2009 “But the front end is not the business the androgen receptor was getting was able to show it was very specific to

) AMANDA SKUSE ) AMANDA part of the androgen receptor, and around being blocked.” damaging androgen receptors, and thus T EF L eventually cancer works around any By 2003, Sadar and her team at the prostate cancers, but would not harm M damage done there. So hormonal BC Cancer Agency had enough data to other tissues. OTTO therapies become ineffective over time. know they had to attack the other end To carry out further research on t; (B

es “The business part of the androgen of the androgen receptor. However, they EPI-001 to conduct clinical trials and w e

h receptor is at the other end – the back had no idea what compound would be commercialize the drug, Sadar and T F F O

of the canoe. And that end is absolutely effective. They ended up looking at an Andersen formed ESSA Pharma Inc., a T essential for the androgen receptor unlikely source: marine sponges. privately held company. F SPIRI F

O and the cancer to work. If you hit the Sadar teamed up with Andersen, “We are looking to enter clinical ESY ESY ll androgen receptor at the back end, who Sadar calls “perhaps the world’s trials, with testing on patients, by the T UR O

usse it just kills it and the tumour. It’s like leading expert at the intersection of the end of this year,” says Sadar. “And if R ) C T taking a wrecking ball and slamming it chemistry of marine sponges and drug we are able to have its approval fast- EF uck L

P through the back of the canoe.” development.” tracked, we hope to be able to bring TO Sadar started looking for a compound After screening 30,000 compounds, EPI-001 to market within five years.” ■ Photo ( Photo Ch BY Photo

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p10-13_Mann_Advances.indd 13 14-03-18 9:08 AM In Focus

colorectal cancer Genetic Testing for Hereditary Cancer Research shows the importance of accessing lifestyle supports Mary McCullum, nurse educator Nancy Payeur, Helena Daudt, Cheri with BC Cancer Cosby and their colleagues at the BC Agency’s Hereditary Cancer Agency Vancouver Island Centre Cancer Program, adapted a survey to study the lifestyle changes that people with colorectal can- answers questions cer have made, or would like to make, about genetic along with the resources they used. testing and who The results of the study showed that should consider it. those who have had colorectal cancer are eager to make lifestyle changes and use a variety of resources to support them. Dietary changes were the most common lifestyle change, however, “only for a larger study that engages patients rolled out across the province in the future. 20 per cent of respondents were meeting in exercise, followed by a maintenance Access to more printed resources, the daily requirement for vegetable and strategy using telephone support and information about complementary and fruit intake,” says Cosby, a dietitian and tailored printed materials.” alternative medicine options and taking regional clinical coordinator for Oncology If successful, the program could be responsibility for their own lifestyle were Nutrition. “People with colorectal cancer also identified as priorities from the sur- can have problems with digestion, Tips to help improve vey results, as well as the desire for group especially with high-fibre fruits and your lifestyle activities such as workshops and classes. vegetables. Symptoms such as diarrhea “Group support can enhance moti- and gas likely affect eating habits.” • Seek out programs or groups in vation to engage in healthy behaviours Exercise was what respondents your local community for exercise such as a healthy diet, exercise and stress wanted to increase the most, but hadn’t. and support. management,” says Cosby. “Just like it is for the rest of us, exercise • Listen to your body when Those who have had colorectal increasing activity; you are the can be a challenge, but these individuals cancer face unique issues when adjusting best judge of what works for you. often face unique health-related barriers their lifestyle and the study helped con- • Keep a food diary to under- as well,” says Payeur, a social worker and stand how best to adjust your firm that the BC Cancer Agency is on regional professional practice leader for diet. Write down everything you the right track in terms of the supports it Patient and Family Counselling Services. eat for a week and note how your currently provides, as well as additional To address this, the team looked for body reacts, especially to foods supports it could provide in the future. partnerships to help patients gain confi- high in dietary fibre. Payeur emphasizes, “It is all about qual- dence using fitness resources. The BC Cancer Agency’s website ity of life, and our aim is to help patients “We partnered with Camosun Col- is full of information under the and those who have had cancer to lege on a pilot study looking at colorectal Patient/Public Info section at achieve that to the best of their abilities.” www.bccancer.bc.ca, or you can

cancer and physical activity,” says Daudt, An article summarizing the study t contact the BC Cancer Agency e y who is the clinical research manager for library toll-free at 1-888-675- conducted in 2010/11 was published n Her

the Vancouver Island Centre. “Based 8001, ext 8001w regarding in the December 2013 issue of Current o on that, we received a national grant available resources. Oncology. ■ BY Camer o PHOT 14 | FORWARD spring 2014

p14-15_InFocus_ATE.indd 14 14-03-18 9:39 AM Ask AnInFocus Expert

Genetic Testing for Hereditary Cancer

Mary McCullum, In 2013, Oscar-winning actress Angelina Jolie tend to live to old age, there’s a high chance some nurse educator made headlines when she underwent a preven- will have cancer, but it is unlikely that there is a with BC Cancer tive double mastectomy after genetic testing genetic link. Agency’s Hereditary confirmed that she had an inherited BRCA1 gene mutation, which increases risk for breast Q: Cancer Program, How would a person know if genetic testing and ovarian cancer. might be possible? answers questions Jolie’s story put genetic testing in the A: Gather a detailed family history and take that about genetic spotlight. Forward asked nurse educator Mary information to your family health care provider, testing and who McCullum of BC Cancer Agency’s Hereditary who can look for flags and help you determine should consider it. Cancer Program to shed some light on who if there could be a hereditary risk. A flag could might consider genetic testing. be two or more close relatives on one side of the family who had the same type of cancer. Another Q: What is genetic testing for hereditary cancers? flag would be common cancers diagnosed at A: Genetic testing looks for an inherited mistake, younger ages than usual (e.g., colon cancer or or mutation, in specific genes known to be associ- breast cancer before age 50). ated with a hereditary pattern of cancer. If there are enough flags, then the person would be referred to our program, where a genetic counsellor would advise on the best approach to genetic testing in the family based on who has had what type of cancer. To be most informative, genetic testing usually starts with a person who already has or has had cancer. In Jolie’s case, there was history of both breast and ovarian cancer in close relatives on one side of the family. That indicated BRCA genetic testing was possible.

Q: How worried should someone be if genetic testing finds a mutation? A: A positive test result means the person has a significantly higher chance of developing specific types of cancer than the general population. But that gene mutation is not the only factor that leads to a cancer developing. Confirming a gene mutation gives that person options. They would be advised on extra cancer screening available given their higher risk. Or, they

t might opt for preventive procedures, as Jolie did. ■ e y Q: If there is a history of cancer in someone’s n Her o family, should they consider testing? For more information about hereditary cancer A: Probably not. Cancer is common and mostly and genetic testing, go to a disease of age. Less than 10 per cent of cancer

BY Camer www.screeningbc.ca/hereditary. o is hereditary. If a family is large and relatives PHOT spring 2014 FORWARD | 15

p14-15_InFocus_ATE.indd 15 14-03-18 9:39 AM p16-17_Return To Work.indd 16 treatment.” to work aftercancer when andhow to return can whendeciding if, take control of what you “Know yourselfand vocational rehabilitation counsellor, – Maureen Parkinson, BC Cancer Agency BC

14-03-18 9:10AM

ILLUSTRATION GETTY IMAGES Making the Transition the Making Feature

Making the Transition Returning to work after cancer treatment

You were diagnosed with cancer more than works at accounting tasks may want to spend cancer treatment is physically unable to safely a year ago. To fight the disease, you took time at home doing taxes and paying bills. Or, perform the duties of the job, in which case a leave from the job you love or need. Now, if the job demands physical labour, the indi- job accommodation may need to be worked with treatment over, you want to go back vidual could – if cleared by the health care out between the employee and the employer. to work. But cancer and its treatment can be team – start doing housekeeping or gardening In How to Handle Workplace Transition, physically, emotionally and often cognitively to see what they can manage. Parkinson guides returning workers on con- challenging. Going back to work may not be as The workbook also includes comprehen- sidering their needs at the workplace and simple as showing up at the office on Monday. sive advice on how to assess job demands. This managing expectations about what they can To help ease the transition back to the is an essential process, because it helps doctors immediately do and not do. workplace, the BC Cancer Agency created make recommendations that guide insurers “In the guide, we talk about being prepared Cancer and Returning to Work: a Practical and employers in their decision about allow- to be tired. In fact, even if you are not return- Guide for Cancer Patients. The 96-page book was ing someone who has finished treatment to ing after cancer treatment, but simply have written by Maureen Parkinson, a vocational come back to the job. been unemployed, be prepared to be tired,” rehabilitation counsellor at the BC Cancer says Parkinson. “It is important to be prepared Agency. It draws on the clinical experience Managing stressors to be realistic about your expectations and gained from vocational rehabilitation pro- The second stage of the return-to-work pro- manage your energy.” grams over 19 years at the BC Cancer Agency, cess, Enhancing Workplace Well-Being, is about Parkinson advises working smarter, so you and clinical research and evaluation. Thirty- feeling stronger at work by coping with neg- can relax after a day at work: “You may want to five people who have been treated for cancer, ative stress. reallocate tasks such as cooking among family and 25 representatives from employers, health In the guide, Parkinson notes that someone members. I often encourage people to prepare care practitioners and the insurance industry, returning to work can draw on three strategies evening meals ahead of time and freeze them, also contributed. to deflect stress. The person can: so you know you are going to eat well even if The point of the book, according to Parkin- • Change the job situation by negotiating you come home tired.” son, is “know yourself and take control of what changing activities on the job or finding an- Parkinson stresses that “sometimes return- you can” when deciding if, when and how to other job altogether. ing to work is fairly straightforward, and this return to work after cancer treatment. • Change their thoughts and feelings about book may be all someone needs. But if you stress. All of us encounter stress, and returning have a significant disability and cannot return Staged return to work after cancer treatment can be stressful. to your old job, or if you are unemployed, or The workbook takes readers through the three But few of us understand our feelings about just have some troubling concerns about going broad stages of the return-to-work process, stress. Parkinson guides readers on how to back to work, it is important to seek additional and uses worksheets and checklists at each identify and challenge unhelpful thought pat- counselling support.” ■ stage to help readers decide for themselves terns, and how to recognize and seek support how ready they are to return to work, and what for depression and anxiety. steps they can take for a smoother transition. • Change reactions and behaviors through Cancer and Returning The first stage, Developing Your Rehabilita- relaxation, breathing exercises, better time to Work will be available for tion Plan, is really about asking, “Am I ready?” management, or seeking a broader perspec- purchase online at the Provincial The book recommends keeping a simple tive on life. Health Services Authority Children’s logbook of daily activities to help readers & Women’s Hospital Bookstore determine which activities are “energizers” and Reasonable expectations (edreg.cw.bc.ca/BookStore). It which are “drainers.” This information can help Finally, the big day: returning to the job. Should will be available online as a PDF to provide ideas about how to regain energy the return to work be a graduated process, document at www.bccancer.bc.ca/ when working or taking a break. perhaps starting with some weeks of part-time PPI/copingwithcancer/emotional/ “Work simulation” is another way to assess work? Is a job accommodation required? In Work+Related+Issues.htm readiness to work. For example, someone who some cases, someone returning to work after ILLUSTRATION GETTY IMAGES GETTY ILLUSTRATION

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p16-17_Return To Work.indd 17 14-03-21 11:21 AM givers, led by a facilitator, for weekly 90-min- ute chats through an encrypted text-based website they could access from the privacy of their own homes. He says the chat room gave him the strength to carry on. “It was just so brilliantly set up. I really can’t put into words how helpful it was.” CancerChatCanada was officially launched in 2010. Participants sign up online and are assigned a group suitable to their needs. “We’re creating the opportunity for patients, cancer survivors and caregivers, no matter where they live in Canada, to be able to access professionally-led support,” says Dr. Joanne Stephen, who leads the program from the BC Cancer Agency Fraser Valley Centre in Surrey. “There’s an incredible power and knowledge that comes from being able to get together with those who have walked that walk, and to share their experiences. It’s also very helpful to have the groups led by psycho-social experts because they’ve got knowledge and skills to help people manage that emotional toll. They talk about coping strategies, communication skills and ways of managing anxiety.” The chat room is hosted by the BC Can- cer Agency (in association with other cancer Online agencies across Canada), together with the Canadian Partnership Against Cancer. It has about 15 active facilitators at present, five of them based in BC. More than 1,000 patients, survivors and Connections caregivers have used the program so far, says Confidential online resources provide cancer patients, Stephen, with four or five new groups launch- survivors and caregivers with a place to share their thoughts ing every eight weeks. Most groups consist of et y cancer patients or survivors with mixed diag- er H noses, but each group’s members are assembled according to similarities in their situations. CancerChatCanada is not for everyone, Stephen acknowledges – 15 to 20 per cent drop

Photo BY Cameron BY Photo out. Of those who remain in the group for its 10- to 12-week duration, however, 80 per Jim Lennox’s wife, Susan, had cancer for from his Chilliwack home. He and his wife end of his tether. He signed up with a pilot cent describe themselves as satisfied or very 28 years. For much of that time, she didn’t had no core family support. “Every five years, project for an online chat room for cancer satisfied. want to talk about it. Susan would get a setback in her cancer, and patients and their caregivers, which turned For them, she says, “These chats are unex- “When you’re a caregiver, there’s a great I just had nobody to talk to, really.” out to be a godsend. pectedly intimate. People feel the freedom to feeling of loneliness,” says Lennox, now 71, In 2009, Lennox found himself near the Lennox joined a group of nine other care- speak openly. They talk about fear of recur-

18 | FORWARD spring 2014

p18-19_Online Support.indd 18 14-03-18 9:12 AM Feature

givers, led by a facilitator, for weekly 90-min- rence, they talk about sex and they talk about Lennox went through a successful treat- ute chats through an encrypted text-based death. They talk about many of the things ment for cancer himself a year after Susan website they could access from the privacy of that they don’t have much opportunity to do died. He was too tired then to participate in their own homes. He says the chat room gave elsewhere, sometimes because it’s taboo. The CancerChatCanada as a patient, although he him the strength to carry on. privacy is very freeing.” believes the experience of having been in it as “It was just so brilliantly set up. I really CancerChatCanada especially suits people a caregiver helped him deal with the ramifi- can’t put into words how helpful it was.” who don’t have ready access to other support cations of his disease. He persuaded his new CancerChatCanada was officially launched groups. At the time, that was the case for Ash- wife, Jane, to join the caregiver group. in 2010. Participants sign up online and are ley Doyle, who lives in the town of Roberts It’s no wonder that people touched by can- assigned a group suitable to their needs. Creek, on BC’s Sunshine Coast. Doyle was 28 cer find getting together, even anonymously, “We’re creating the opportunity for patients, when she joined the chat room a few months helps, says Stephen. “They’re talking about the cancer survivors and caregivers, no matter after completing her treatment for breast can- things that really matter.” ■ where they live in Canada, to be able to access cer, sharing her recovery with other breast professionally-led support,” says Dr. Joanne cancer survivors under the age of 45. Stephen, who leads the program from the “When you finish treatment, you’re thrown Helpful Online Resources BC Cancer Agency Fraser Valley Centre in into this unknown space of uncertainty,” says Surrey. “There’s an incredible power and knowl- the now-30-year-old Doyle. “It’s almost like CancerChatCanada – edge that comes from being able to get together an identity crisis.” www.cancerchatcanada.ca/ with those who have walked that walk, and to Having contact online with other young Professionally led online support groups share their experiences. It’s also very helpful to women who were experiencing similar anx- for Canadians affected by cancer, including have the groups led by psycho-social experts ieties and issues “normalized things for me,” patients in treatment, family members and because they’ve got knowledge and skills to she says. survivors. help people manage that emotional toll. They It was a welcome outlet for Doyle, who felt Canadian Virtual Hospice - Discussion talk about coping strategies, communication reassured to know that every week she’d Forums – www.virtualhospice.ca skills and ways of managing anxiety.” be able to bring up her current concerns. The Life often saves its most difficult questions The chat room is hosted by the BC Can- anonymity of the situation also meant Doyle – to the end. Canadian Virtual Hospice pro- cer Agency (in association with other cancer who later started a local support group herself vides support on palliative and end-of-life care. Connect with a community of people agencies across Canada), together with the – didn’t have to “become too invested” in her talking and sharing about living with a Canadian Partnership Against Cancer. It has fellow survivors while dealing with her own life-limiting illness, caring, loss and grief. about 15 active facilitators at present, five of recovery. them based in BC. “I think post-treatment is almost harder Canadian Cancer Society – Cancer More than 1,000 patients, survivors and than being in treatment, because everything Connection – www.cancerconnection.ca A chance to share, discover and connect. caregivers have used the program so far, says emotional catches up to you.” Connections Cancer Connection is a trusted online com- Stephen, with four or five new groups launch- Meanwhile, cancer patients’ caregivers munity for cancer patients, their families ing every eight weeks. Most groups consist of have their own issues, including concern and friends. et y cancer patients or survivors with mixed diag- about the patient’s physical and emotional er

H Tumour Specific Groups noses, but each group’s members are assembled state, fear of losing their loved one, and finan- Some groups have community message according to similarities in their situations. cial challenges. Jim Lennox felt buoyed by a boards that allow you to connect with CancerChatCanada is not for everyone, community of people dealing with similar people who have had the same type of Stephen acknowledges – 15 to 20 per cent drop worries and frustrations. cancer. Here are a few examples of groups in Canada offering this service:

Photo BY Cameron BY Photo out. Of those who remain in the group for “I was able to get in touch with my inner its 10- to 12-week duration, however, 80 per feelings and share them, feelings that had • Brain Tumour Foundation of Canada – cent describe themselves as satisfied or very been bottled up for years,” he says. Online Peer Support Centre – satisfied. He started to share the stories he heard in www.braintumour.ca For them, she says, “These chats are unex- the chat room with his wife, which encour- • Leukemia and Lymphoma Society of pectedly intimate. People feel the freedom to aged her to open up to him about her own Canada – Social Network Connections – speak openly. They talk about fear of recur- cancer. www.llscanada.org

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p18-19_Online Support.indd 19 14-03-18 9:12 AM A Journey Starts with a Single Step Alex Blodgett shares his inspiring story of survival and giving back

On June 14 and 15, Alex Blodgett and his sons Christopher, Andrew, Stefan, Morgan and Torsten, will be participating in the BC Cancer Foundation’s Ride to Conquer Cancer, a 200-plus-kilometre bike ride from Vancouver to Seattle to support leading-edge research at the BC Cancer Agency. “We are so fortunate to have in our own backyard some of the very best cancer research in the world. As someone who has beneﬁ ted from our system, it is incumbent on me to do what I can to help,” says Alex Blodgett. Visit www.conquercancer.ca/goto/alexblodgett to make a gift to Alex Blodgett’s Ride to Conquer Cancer personal fundraising page and support his family’s collective efforts to create a world free from cancer.

The 6th Annual Ride to Conquer Cancer, presented by Silver Wheaton, is a 20 | FORWARD spring 2014 pow erful movement of hope, healing, celebration and optimism. Find out more at www.conquercancer.ca or call 888-771-BIKE (2453).

p20-21_Alex Blodgett.indd 20 14-03-18 9:12 AM Foundation

A Journey Starts with a Single Step

Alex Blodgett fully understands the pervasive nature getting back into fitness during the course of his treat- of cancer. The father of five boys, Alex has spent most of ment. With one step he began a therapeutic routine of his life testing his endurance through numerous athletic walking the hallways every day at the BC Cancer Agency. pursuits around the globe – racing across the Sahara Now, two years later, and having completed his last and Jordanian deserts, competing in a 500-kilometre round of chemotherapy this past December, Alex says that ultra-marathon across Alaska and trekking through the cancer was a wake-up call that crystallized his priorities. Himalayas, just to name a few. Two years ago, Alex found “Cancer has brought a keener sense of what’s really himself channelling his drive to succeed in a very different important. Gone for me are the debilitating drivers like way as he faced a cancer diagnosis. fear, embarrassment, misplaced expectations, social pretences, which have been replaced by the things that Unexpected diagnosis matter in my life, like my family,” says Alex. Alex’s story begins in the summer of 2011 when, during a routine bike ride around Stanley Park in Vancouver, he Invaluable supports suddenly blacked out. Long accustomed to enduring ex- Going from a difficult cancer journey into a “new normal” treme elements during his athletic activities, Alex ignored has also given Alex a different appreciation for his support the warning signs that something was wrong. system. True to form, Alex carried on with his bike ride and “Cancer not only affected me, but also my family. It’s afterwards headed to his family’s ranch in the BC interior so easy to be self-absorbed in this ugly disease. But it is for a week. Only when he returned did he visit his family important to look up and appreciate those who are so doctor for a routine physical that set him on a completely willing to share this journey with us,” says Alex. unforeseen trajectory. Along with a realignment of his personal priorities, An abdominal ultrasound revealed two large tumours Alex has an immense gratitude for the care he received at in Alex’s stomach that quickly landed him in the emergency the BC Cancer Agency. room at Vancouver General Hospital. There, Alex was “Cancer is a complex disease. However, I put my- diagnosed with stage IV diffuse large B-cell non-Hodgkin’s self out there as a vivid example of how research really lymphoma or “NHL” as Alex calls it, with slow-growth does save lives,” says Alex. “The dollars raised for cancer unidentified cancer in his bone marrow. research throughout our province lead to better treatment Being a pragmatist, Alex’s immediate thought, upon protocols that have improved outcomes for patients like hearing his diagnosis and an initial prognosis of two to me and many others.” four weeks to live, was how his family would react: “In all There is a sense of coming full circle when Alex is honesty, at 55, I felt like I had done so much in my life, but asked what the future holds. He understands that his my children still needed me,” reflects Alex. cancer could return but isn’t letting that stop him from However, Alex was fortunate. After surgery to minimize enjoying life – with some moderation, of course. the chance of perforation, Alex started chemotherapy “Hopefully, those of us who have faced cancer come treatment at the BC Cancer Agency Vancouver Centre, out of this experience being smarter, more aware, healthier which quickly arrested his very aggressive cancer. and, with any luck, even happier. I know that I clearly enjoy living and count my good fortune every day that I do.” ■ Positive attitude Throughout his cancer journey, Alex’s approach revolved The BC Cancer Foundation is the fundraising partner of the around having a positive attitude by focusing on the BC Cancer Agency and the largest funder of cancer research things within his control: “As I tirelessly say to the irrita- in this province. By connecting philanthropy and research, tion of my five boys, ‘it is what it is, accept the fact, set a we support the revolutionary advances that will help us course and attack it cheerfully!’” achieve our vision of a world free from cancer. To learn more,

PHOTO COURTESY OF ALEX BLODGETT AND FAMILY BLODGETT ALEX OF COURTESY PHOTO Alex’s course focused on making survival a priority by visit: www.bccancerfoundation.com

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p20-21_Alex Blodgett.indd 21 14-03-18 9:12 AM What’s On

FOR A CURRENT LISTING OF EVENTS... go to www.bccancer.bc.ca and click on Coming Events under About BCCA. Lymphoid Cancer Education Forum presented by the BC Cancer Agency and BC Cancer Foundation Date: Friday, April 4, 2014 Time: 9:00 am – 2:30 pm Description: The latest in research and care for Non-Hodgkin Lymphoma, Hodgkin Lymphoma, Multiple Myeloma and Chronic Lymphocytic Leukemia for patients, families and their supporters. Location: This year, event organizers are offering more ways for people to participate on Ovarian Cancer Research, in partnership Description: Concrete Hero is the ultimate in the Lymphoid Forum. In-person atten- with health professionals from the BC Cancer urban obstacle challenge for groundbreaking dance is available in Vancouver, Victoria and Agency and Ovarian Cancer Canada, will research at the BC Cancer Agency. During Kelowna. offer a one-day workshop for survivors of this city-wide movement, you will come face Webcast: Attend from your home computer. ovarian cancer, family members and health to face with the city’s elements like you’ve The webcast link will be available on the professionals. During this workshop, you always wanted. BC Cancer Agency website on April 4, 2014. will learn, network and be inspired. For more information: Visit us online For more information: Call 1-800-663- For more information: Visit at www.concretehero.ca and prepare for an 3333 ext 672196 www.ccocr.org/index.php/programme/ adventure like no other. ■ survivorship-workshop Ovarian Cancer Survivorship Workshop Date: Sunday, May 25, 2014 BC Cancer Foundation’s Time: 8:00 am – 9:00 am (Registration); Concrete Hero 9:00 am – 3:15 pm (Workshop Program) Date: Sunday, August 17 Location: Delta Ocean Pointe Resort & Spa, Time: Full day Victoria, BC Location: Strathcona Park Oval Track, Description: The 7th Canadian Conference Vancouver NDATION NDATION Ride to Conquer Cancer U presented by Silver Wheaton Date: Saturday, June 14 – Sunday, June 15 Time: Two-day cycling journey Location: Vancouver start Description: The Ride to Conquer Cancer is a unique two-day cycling FO CANCER BC y OF rtes

event for people who want to challenge themselves for a great cause. u During this bold cycling journey, you will ride through picturesque o scenery toward a world free from cancer. For more information: Visit www.conquercancer.ca. (BOTTOM RIGHT) PHOTO C RIGHT) PHOTO (BOTTOM

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p22-23_WhatsOn_Resources.indd 22 14-03-18 9:38 AM Resources

Four must-reads for those who have had cancer The BC Cancer Agency Library is a rich source of helpful information for those with cancer and their friends and family. Here are four of our librarians’ top picks for moving beyond cancer:

After You Ring where what was once typical must with fear and uncertainly, fear of cancer The Bell...10 give way to “a new normal.” In this recurrence and how survivor issues Challenges book, author Anne Katz, RN, PhD, impact relationships. for the Cancer discusses nine key issues facing cancer Survivor survivors. Each chapter describes by Anne Katz the experience of a particular person Picking Up In boxing, the and the unique challenge each faced The Pieces: ringing of the following treatment. Included are Moving bell signals stories highlighting the challenges of Forward After the end of the going back to work after cancer, fertility Surviving round; for cancer survivors and their issues faced by couples after cancer Cancer by care-providers, it signals the end of treatment, and feelings of depression Sherri Magee treatment and the beginning of a life and anxiety at the loss of the daily visits and Kathy now free of cancer. The moment is an with hospital staff, among others. Scalzo exciting one, but it can also be filled A cancer diagnosis is a shattering with uncertainty. Anne Katz, RN, experience. So, once you’ve completed PhD, endeavors to take some of the Dancing in treatment how do you pick up the mystery out of what cancer survivors Limbo: Making pieces of your life and carry on? Picking can expect moving forward. Her Sense of Life Up The Pieces is a reassuring, realistic book addresses the top 10 challenges After Cancer and insightful guide that offers a four- faced by those who have had cancer, by Glenna phase approach to help navigate the including fatigue, depression, health Halvorson- sometimes rocky path to recovery. The concerns, questions about nutrition Boyd and Lisa book takes much of its inspiration from and uncertainty about the long-term K. Hunter cancer survivors, offering helpful implications of having gone through This book takes information on how to develop your cancer treatment. many of its cues from the real-life own healing plan. Ultimately, the book cancer survival experiences of authors focuses on providing practical advice to Glenna Halvorson-Boyd and Lisa K. help reclaim mind, body and spirit for a NDATION NDATION

U Surviving Hunter. The two mine their own healthy recovery. ■ after Cancer: journeys, together with those of other Living the New cancer survivors, to highlight many of Normal the issues common to all who have To borrow these books, or for more

OF BC CANCER FO CANCER BC y OF by Anne Katz travelled this path, including finding information and resources, please contact

rtes As every cancer ways to recreate meaning and purpose the BC Cancer Agency Library. They have u o patient knows, in their lives. The authors offer practical created a number of excellent resource sheets surviving advice on topics ranging from dealing on a variety of topics of interest. Check the disease with loss in order to move on, to out their website at: www.bccancer.bc.ca/ is a life-changing experience – one finding the courage to be able to live PPI/Library/default.htm#pathfinders (BOTTOM RIGHT) PHOTO C RIGHT) PHOTO (BOTTOM

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