new fvom Harper G. Row!
Housing and Home Services I,,, cmi L,,,,;,, Edit~~rn,,rii~~,~,,,d FOU,,~~,. "Rehabilifa- tio!i Gaefh," wilh ~~niribitlinn~@ Donna McGwinn, for the Disabled Book Editor, and lmepii Smlf I.nnrir, Co-Editor. Carloons b!, Rabtrf E, Tniifon, IT., Arl Cdifor. PWce ly Isahel P. Rohi?laulf, Ph.D.. Supemisor. Research U,iliiat;ml lab^ Guidelines and Experiences or at on^. ICD Rrhnbilihlios end Rmmrrh Cenhr. 415pqprs and index. 131 dlus. 9 cnrtwirs. $20. Publisizd iti lanlran/, in Independm t Living 1977.
CONTENTS:
living arrangements, transitional projects, alimatives Bathroom Adaptations for the develo~mentallvdisabled, home care services. Indenendent Livinp.. Emedences. bvDama MeGwinn c>.#I.r+.:(-: the. c..l,r: bn.1 m.! .I,..r .1~111~-1 c,t., ntlrbd>nlc,we by Ih,nna hlr(:w
men1 housing, iehabilitalion, and veterans agenoes, International Experiences es well as volunteerorganiratiunainthe United Slates, Appendices canada,E~~I~~, and many ,,,her COU~~~~S. nrcessi~>ah~N~~~~ in uifimit cos.,,ie Resoirices for Architects and Plnnriarr
HARPER 6 ROW, Publishem, It?c., Medical Deprhtoll, 2350 Vir,inia Auniue, Hn8emImn. Ma?yialid 21740. (Phone: 301-733~2700.AskforMm Taylor.) If check ir roll milk oidm, Hnvb Ram niill pm, fhr pos1are. If if is billed. n slnnll cI,",~.~uzill be nindc for pasln$e. All books so?,on 3Bdny opprounl.
Readem around ihe world may -te or rdany oi ihc hiiorins Harper B Row of8cer slid ark lhem to anange lor thu hook rn hr ddiuerpd Art.rmon (Sydney. Vex? South Waler, AtwDalia). Geneva (Surtrrrl,md!. Lrgw (Nigma!. Londvn (En~land),hlallila (~iuli~~~~~).hteucncIq (MC~~). NW hi ilndia!. sao ~avlo i~.~ul!,irrrhorollgh (ontanu.cmmn). snwpurr. su,>nysili~ (K~publ>rof South Ahm), lukyo Uapan!. Wwrp (Nethrriandr) Rehabilifafion sazef fe International Journal and Information Semice for the Disabled ~olumrm 1976
Rel?mlb;iihi~~,!Cmeih (fomrrly the 2 Undatanding Depression-Helping with Grief. A special '7oamey j Gazette") is pubBshed once featureby Johli T. Qc?lylq(. ir.. r quadriplegic and a pastoral a year by s volunteer staff. la aim is counscbr to ~~a.to inhim, rnd to dignify ere diiublrd througholit the world 6 Avocati~n~.Club Work md Hobbies b!! lil" Wnilnie. Column Writers and Brordcrstarr by Do>rlin McGttsllxa.
Book Rniover: Donn. McCwinn' 15 Employmen, A Compendi~im01 Enlploymenr Experlenres of 21 More Aceounlmt: ootis Jones' Quadrrplegirs. Profile by Dotilia MrGmi#r~~.John H. Parker. Altomev a, Law.
21 SpoN md Keneation. Tcnnii: A Therapeutic Sport for AU Levels of DisabiliTy. Skiing by s Tl2-Ll Par. b!, Demld Lsndlr. Advi.ion: Dr. Run~ldH. Doneif*, Ray Oaris. Kcm Maha", Manun Greene 22 Books by Oolilla MrCrn,,,~. Dr. Dun=" Hoib..?, Mickie Martin, Ted Smith. jack Quigley' 2J Friends &mmd Ule World.
17 HousingIXndepmdmt Living Hovsing and Home Scrvires h Lllii Lnlcrie. How Big is Too nlg b!, iini;c< o. xnldnil. Blueauiratic Disincentives b!, Bwrrl!, Bnri. Home Health Careb!! Hrirn WniB?, Cc,ardinrting Attendanl Care by Elin Marie Gill. Planned Cheshire Hnmes in thc US. Pre~arini!. .. Quads for inliependent 1,i"l"~. b,,. A,,i,,,rH 32 Camprehenrive Needs Smdy of lndlvidualr With the Most severe Diiib?lities. Highlights of HEWS million-dollar ahldy. 35 Self-Hclp O~mkatioions.White Hoore Conference. Amerlcsn cc.%..r > ,$ ., ., J,'.. Kr?. , .,.I", ,, Coriitiirn of Citirenr x,iih nisrb~ticr.ACCO i~hlorophyby . r. , , 8 , ,. ,,, , I,. . Roger 0. Peleriil, .I/ . I I. I.,.. ..r _^ /I. ,.< ,. ,, . . . ; " ( / 41 Equipment. Comn~unirstionr.Remote Cunhuis. Transpo~trtinnby ,PI Lnc,rie. Wheelchairr. Wheelrhab Loader by Rio>?dsGai~vr. ROHO Cushiw by Ct~llee,,Slikic~ff I,ll"il,i"" per annu,, \o,>): Readers' Ideas. >,,,,m ,,%,I..) ,.,. . '< I', . - l" l I, _.I 46 Patpovrri by Cilli LRC,"~. ( ,I -,IYII.lll. I,. ..h.#.a" '1, 57 Tnvel. Canadian Quads in Hawaii. HilrhHiking Through Europe in a Wheelchair b!, Solor@ K61gln8. A Trip m Montana by Dllncsn A. Holberi. M.D. Rehabilitation Gamke 4502 Moryiyinnd Aomue 61 GPB fox High Level Q~ads. Sf. Louis, Missouri 63108, U.S.A. Phone: (3141 361-0475 Understanding Depression- Helping with-~rief by John L. Quigley, Jr. Those of us who know about physical disab'fityhow The second iden to be distinguished from the others that depression is a very real and somehmes the most is the concept of rmctive dgprmg~iaa. nesc words sug~ vexing problem associated with the lwi of body func- per the fdarprocess of being "down," perhaps tion. Many of us have howtile exoerience we call angry, hopeless, and intensely preoccupied with an upseNi"g event. The important idea is that in this kind of depression there feexngs are assodated more or less directly with the sperific event, sometimes one to manage. others of us have seen ,,depression- in involving great lorr in other words, this mnditian our patients and have tcicd, with vaq6ng degrees of has all of the characteristics of what we usvally csll success, m be helpful. FrequenUy, however, those d "deoressian" but it has a focus. Reactive deoressian us who have a disability and those of us who the related professions don't understand of the dynamics d what is happening in "depression" to be able to help others or aurselues. Perhaps an ar6~ a diwbLg loss. This depression 'ran also ocmr i;; cle outlining the basics about "depression" can @we lighter forms at the time of an anniversary of an in- us a working knowledge of those dynamics and en- iuw. or can be seen in the feelines that mme on when able us to ded with "depression" more helpfully. First of all, let us dishgni~hthree dynamic pra~ cesses which are frequently considered to be the sme . . .. . thing. bm are not. The first is thegwrf proms. Griev- Most people &I1 experience this depression acca- ing is the process which everyone inevitably goes d ion ally and, wen when it is severe, will be able to through after any significant lass-the death of one work it through-sometimes with help h0m otherr- we love or the loss of body function. In grieving the and get on with the business of living. whole personality tries to adjust to a radically altered But there is another kind of depression which, while course of life. coming to grips with its threats, with it may be hipaered or made worse bv a recent sne~ old and new fears, with who one now is in the ab- sence of a sigdicant part of one's former self, and with what effect the lass will have on all our relation- ships. We &I1 look at the piel process in some detail people fall into for managing the ca&tisof everyday below. life. A deoressed nerran of this Lind believes that he is a bai and wokthless peison, fit only ta be hated and rejected. Mart of the resourcer of this kind of personality are immabllized by a very inward, angry process of self destruction. Now, this kind of depres- sion also charactekes some a greatiass. When a person who is prone to this kind of deprer- sion sustains a loss, the usual reactive depression assodated with the loss loses its focus and the piev- ing process dead-ends in the more de- pression. Thk depression feeds an itself. It is a way . . cali[oi,7i". of manapng unconstiausly conflicts which predate Hc is ","oitly iolltpbfirig tizr dqne a/ Doctor of M.iislry the loss. 'The injury and loss seem to fit the system, i8r Pns!oral Cocillidi?igoi Edlo~jin 51, in8rir but the real issues are more primitive and much less nlxil is a pothloa mwrnclni ut Cnn h Consrlirip. inr. and niiis- accessible for the process of working through. in s,,t dinploiir nt 5,. Lake's Hospifnir. SI. Laicis. short, thsew-perpetuating kind of depression senres needs other than those appropriate to real loss and 2 ~nn*s~r~mr~o*iCarrrrr thus it h much more &fficult to relieve prove in he.), proj~tion(Don't worry about me. I'm goingto bedl right.), and others. In addition to rather rigrd defenses there is also a sh-g of psychic awareness, away from all of the to help aurseives when we get depressed? many and complicated asllectr of livine. and r focus- ing in an an intense pr&ccupation ;ith 0ne.s seu, WHATHAFPENSIN G-P. Any peat loss, and particu- one's immediate needs and the most elementary as- larly the loss of bod" function. threatens a oeison in pects of one's immediate experience. This can be seen when individuals, just after a lass, complain about seemingly trivial things: hospital food, noise, etc. There is also withdrawal in this phase of grieving, the better to regroup one's forces for the srmgglc ahead. It is a time of withdrawal from people, and even from the many remaining emotional iesovnes To have any part of the fabric torn away is to have a sriu available within the personality. Most of one's part of what we know as our selves tarn away, too. strengths and abilities are forgotten and the new in^ A peat lane ir accompanied by very deep anxiety. abiities are accentuated. The point is that the denial, Regardless of the age of the onset of disability, we the shrinking of awareness, the wlthdrawd and the have spent our whole liven m that point argaruzing preoccupation with past, now lost, capacities-all of and developing our own individual selves. In the these maneuvers of the mind are entirely necessary. earliest years of life we have ihad to learn to manage They tend to arouse anxiety in others not experienc- the fear that we will be abandoned helpless by those ing the loss and the gnef because they seem "un- around us who are mart important to maintaining life realistic." Or more honestly, others intuitively under- itself. We have had to lean when to take irutiative, stand the anxiety which has triggered these responses utiliiing our bodies and all our capacities to the full, in the grief-stricken person and would like it all to and also how to manage the doubt we have about go away. But fighting these defenses in the name af ourselves. We have had h learn to relate as indi- helping will only impede the gnef process. vidual persons to others and to conquer the fesrs assodated with those relationships. In short, we have Tm REA~Dsr~essro~. When the early defenses had to negotiate Fie's problems at every stage of life, are in place and time and reality begin to erode their using all of our avsilnble resources. including most effectiveness, r persan begins to move into the reac- espedaliy our bodies, and we nre the pattern we tive depression that is the most significant part of the weave out of these srmggles. The loss of body func- grief process. we aften speak of sinking into depres- tion. the most basic of ow capacities upon which we sion and that is exactly right. If a person is finally m have burlt our personalities, arouses anew, and with adjust to the reality of a great loss he must padualiy the same prirmtive sense of panic, all at the deep relinquish the controls or defenses that hold the line anxiety associated with those eariv fears and srme- aga"st the pain of acceptance. He must then slide backwards (or regiesr) to points where he can allow lhimsdf consciausiy, and with dl of the associated emotions, to experience and accept bit by bit the im- The memories of the specific fzars in our lives and pact of the loss on his life. It ir a process of giving how we handled them are lone since nushed out of up andfrrli,ig the awful facts. A persan in this process constiousness, but the anxiety assodated with them will sive wav to rememberine recent events orior to remains. That anxiety is what engulfs a persan who has sustained a peat loss; a peat loss arouses the fear of being helpless and in life-threatening danger again. This anuety triggers all of the emotianrlly wl11 be verbwtion of theioss. ~radua~~y. the .~ain protective devices (defenses) availabie to the indi- cansurfaceand can be confronted in itself. "dual to shield him from pain. The defenses protect Moreover, and perhaps most important, it is iil this in two ways. They seek to piatect us from the awful regression that a person can experience and express memory of those early fears of abandonment and de- the anger, indeed the rage, that is every person's srmction we all cmy with us, and also ta protect us response to theanxiety assodated Mth threats to one- against the terrible pain of having to deal wlth the self The unsympathetic observer may hemme very real, immediate trauma and its consequences which annoyed at what he perceives as childish or even in- are just too much to handle all at once. This is what fantile behavior. Though this attitude totally lacks is happelung in the early phnre of the grief process. empathic understunding, the perception is ersentially Very basic defenses are rigdiy consrmcted-such as correct. A persan working throvgh grief of this mag- denial (It's only a temparaq disability. it will all im- nitude needs to renegotiate so many of life's issues 19761Voru~rXLX 3 Losing our sense of balance in the process. Far some who don't have this caprciry life is lost when bod!, fiznaiorris lost. We say that such a peison doer not ences. That means becoming childlike. It means ex- have a very weu-differentiated self, or lacks a strong ego. Such a person doesn't have much of an idea of his omuniaueness and worth. He doe,"t stance of a hard-core, yilt-ridden depression Acc~FTANcE. As a person is able t" experience the real loss he has suffered, which is at first covered up by thc generalized anxiety he experiences, he also be* to be able to see that his or self being depressed yet being able to work it through by doen not depend totally on what has been lost and gradually accepting more and more of a real loss, and that he may be able to mastei even a greatly altercd being shlck in a depressed dead-end. Thereare things life. Acceptance is this acknowledgment and mastery we can do to help with the reactive depression which of the facts withoot a lot of anxious distortion. It is is a part of grieving us described above, but there is the psychic decision to live uliili the realities, the not much the untrained person can do to help lift the deeply ambivalent feelings, the ambiguities, one's dead~endkind of depression. seat dependence on body function but also one's Wdl, what then can we do to help a person pleve psychic independence from it. Acceptance is ground- successfully, to work through the reactive depression ed in hmi,q the pain and the anger because they which will permit acceptance of the loss and recon- have been directly experienced in expression. and also stitution of one's self? What should we do about knowing that one is big enough ra live with these dcad~enddepression? And what can we ourselves do powerful emotions as they really are and have plenty when we get down? of one's self left aver. When one gets beyond that awful knot of diffuse armiev and can in time begin HELP~Cwm Galnli worn. certainly the beginning to acknowledge the more primary feelings assoriated of helphiiness is to know the difference behveen grief with a loss, more and more energy will become avail^ and depression. If we understand the process of able for the work of reconstituting one's life. pnevlng we will not be 50 likely to get in the way, for example, by becoming annoyed at the many child- Reco~srrrunoa.The final phase of the grief process ish, hostile, aggressive, or pasrive withdrawn expres- is reconstituting oneself based on reality. The posai~ sions which ue necessary steps in the process. some hililies for reconstituting the self are, of course, as professional people, with institutional concerns fore- varied as there are people going through the experi- mod in mind. inadvertenflv make a difficult shuesieuu ence. in all cases, however, the process is one of re- just that much harder by donanding certain levcis of placing the capacities which have been last ethnew social behavior and adherence to schedule, expecting ones, or greatly enhanting old ones. Old relationships stead",. oraaess, " and nor oemlitllne" necessarv, remes-,. must be renegotintcd based on new realities; some sians. They show little empathy, Let alone support, will be @en up and new ones will be formed. It is a for the srmggle of the individual within. A reactive gradual process of redelining the self through new depresrion following a loss is nothing to interactions with others bared on ,hings as they now be alarmed about and it is nothing to Q to force a are. As this process takes the grieving penon is person out of. gradually able to widen his field ol awareness and If one wants to helo another thmueh 6eL it would e"cnt"ally ran resume lioillg hi5 life. THEOmzn DEPRESSION.it all sounds SO simple when written out like this in fashion. But not ouk others and reality. are necessary and appropriate. everybody has the capacily to work through the grief Any attempt to knack them down or cut through process to a full resumption of living. Successful them before a person is ready to give them up d grieving requires inner confidence to let one only force a redoubling of the defense and retard the face the facts and acknowledge the feelings, to hold process. Help mrnes throirgh n fmuinr, strady, nrreptblg things together through the reactive depression. ~~l~ti~t~rhiy.Such a reletionship is possible only if the Anger and h.ustration, the nn~hto be cared for, +he helping individual can see past the outward defensive feeling af helplessness, the wish to die-none af brhaviorr of the grieving person and can perceive thesr are feelings we like to acknowledge. Normally and relate to the basically good and unique self eth- we would like to avoid them So somckhing must be in. Such a relationship implicitly communicates af- available in us to let us work them through without firmation of the larger self. It says, "you RTe someone ~mas~urarzoaGAzrrrr other than the lost body parts and function, different to an empathic relationship. It is not always easy to horn the anger, horn the annoying behavior, and also diatineuirhn there hvo knd. of demesrion as I have from an" ~artificularshi1e of life "0" followed before." ,I,,"*88. 4" '>,~,l" <,,.\131.~ .",, he.,. \.>.A, ,A! ,A".,! mlc ,,; ,I ",! 11 1 ,., ,>~,"ll" ,l,,,>k 8, ,, dk. i,, HBLFPOX DEPREIE~ON.Though prafessional help with IN CONCLUEION.AS I said at the outset, most a1 us deep grief wwld be helpful and wen advisable, when are aware of depression ar a significant in a stagnant depression is mcauntcrcd. it should dcfi- the aftermath of a disubling loss. we understand nitely be rreated professionally. As I have sdd, it in some of its process. Bul it is remarkable to me how different from the reactive depression we have looked often in good rehabililakian facilitics, in able and at above in that there doesn't seem to be any active well-i"tendi"g emises, and in presumably helpful struggle t.hg place. There is very little expiession. groups of physically disabled, the inner shlggles and A seriously depressed person cannot easily respond growth of persons trying to adjust to great loss are 1976iVo~u~rXIX overlooked; at wamt they are inhibited and blocked. another's depression. Nevertheless, perhaps each of When thin happens it almost inevitably means that us, and disabled alike, could rlsk the the other therapies oi the rehabilitation process will personal investment and extend aurse1ves mare than largely bewasted. I imagine that the lackof deliberate we do to share in the grief work with those in need attentian to the grieving process is many times due to of understanding. The empathic assistance we ran the pressure of other concerns-instihltionai require- offer has its cost. But the p"c" that is paid in the suf- ments, money, fascmoving &, famiiy needs, and fering of protracted, agonizing depression, in thelives sa on. But1 also think that, at a deeper level, the grief wasted and even in the money spent on other therapy process and its related depression reaction is more soon undone by depression is much greater, and often avoided or thwarted out ai a dim perception of ought to be more than enough to move us to deal with grief and depression mare directly. . . Depression is a deeply human process. It is relieved to aurseives. There are no "hart mts in human emo- lhr""gh genuine human relati0nrhip. joining tional process, and we know it. We know, too, how with another in grief ran bc a rich and eventually easy it is to get depressed if we get too close to joyfulexpenene. n Avocations Club Work and Hobbies by Jim Wallace s -- y In October, 1937, i was born in Saskatoon, Saskatche- wan, Canada, with the condition of arihrogryposis multiplex congenita. The dodo- warned my parents that 1 would be reverelv handicaooed.. . Naturallv.,. mother and dad were ve;y disappointed but they dr- I tided to make the best of things by raising me as nor- ,r: &dhiod days were happy. I can remember sitting .." on thenoor hr 1,ours playing with my buiidlng blocks ~ ~ - and other toys. When I couldn't do what I wanted .- - - with my ripht hand, which was the best one, i would 1 enjoyed school, especiallyaiociating with the able- bodied students. me young people were fantartic m helping me amund the schools. In high school I hed to travel from classroom to classroom so 1 had a desk built that would fasten to the wheelchair. The kids would throw their brief cases and books on my desk and away we would charge down the halls or the gvys would grab the chair and hoist me up or down the stairr. The trend seems there davs, to out. handica~~ed.. children in special schools. Thi. is good as far as '- .~ making it easier physically but I feel they miss a lot r i if they can't assodate with the able-bodied student.. 1C ' Of course, the ideal thing is to have the special class 1" w 'I, 0;" ,,7,: ,, 7, 7 integrated witha normal school. 0 I,;"".. , " f ,,i3 8,,,, For several reasons. such as transoorration. hrther keqx wm@in lnllit#g;,on. . . . Vhli irr,ni "81 lllLlb\ 01 11," education didn't make itself possibl;aker high school 'I>zt?r'mdio $0 1 m,,,mnniptdnk tlterrr w,tl, ?,z!, ~t#oc~t;#sbck" herein thevan'auver, B.C., srea. I took bookkeeping 6 Rrn&sl~r?~r~orrG~zane in hopes of ~hrtinga little business from our home but that fded as there were several retired amun- Column Writers and tents doing the same thing in the area. Broadcasters Idleness is not in me so I hlrned my energies and interests to hobbies and club work. It wasn't too long liU I had my "ham" rsdia call of VE7BLO. For the past by Donna McGwinn 13 yew I have enjoyed chatting with and helping people amund the world with my station. 1 am also Many disabled have thought about or actually tried vitally interested in stamp collecting. My collection wiiting or broadcasting as a means of expression and is world wide and I will swap stamps with anyone. a way of maliing money. Some who have tried -tmg Another hobby is corresponding with pen pals which calumns have succeeded in having them published or include the disabled and able-bodied. broadcast. They have become effective, helpful voices in 1957 1 joined the Indoor Sports Club for adult in their communities and beyond, and some have physidy handicapped. Since then 1 have held vari- gained a regular income. The subjects of this article, ous offices and am now president of our club. I also however, are agreed that monetary reward is the least belong to a little club for the arthroayposis folk. This of the benefits of column wciting. The biggest are !goup mainlycarries on by mail as our member. are being heard and being helpfui. scattered from coast to coast but still it is interertine" Terry Bti~kiey'~column, "HANDICAPsules", to keep in touch. shares the experiences of the disabled (and some With the aid of the Hoyer lift 0" the car and a able-bodied) in the of daily Living and their Hover lift in the house I am sm able to live at home. rolutionr. it has been mblished weekly far three I hive an ordinary E & J chai as wen as the E & 1 Power Chair and 1 get around a lot. I'm also pleased to repati our city has a handicapped hansportatian system. It is wonderful ta beable to hka bus and go meise~y.s+dication is every ~~i~ni~r~heam. out with my power chair to "Sit or shop. It give. Brickley is 42 years old, married, and a former one a feelinp, of independence. model who was professionally unaware of My mouihstirks aie made out of small-diameter the faced by people in wheelchalrr or on hard~wooddoweling. The sticks are various lengths mtches tqinp to enter the buildings he helped de- x?th intrrve~loushlbing on each end. The hlbing on sign His own confinement to a wheclchdx as a result the mouth end protects the teeth while the tubing on of multiple sclerosis gave him a whole new view of the other end makes catchine" thines" easier berause things. the tubing is kind of sticky or rougher than a smooth Asked whether column writing is a good vacation stick. in the end of one stick there is a hook instcad for the disabled, Brickley answered, "Column writing of tubine." The hook is fine fox .oullin'ne ., thines" toward is a good vacation for anyone, provided they can sell me or kiting loose leaf pages or my paper weights. it, preferably to a ~~ndicate.Most of my mated is on my desk 1 have a desk hiotter under which is a from readers; however, that doesn't stop me from very thin piece of foam rubber. The foam rubber pre- wriihg to myself something I have to say, or a good vents the blotter pad from sliding and then the Matter idea. The only requirements I can see for writing a paper an the pad stops the ~itigpaper etc. from column are having something valid to say and saying moving when you have the use of only one hand to it well. keep things from sliding. "I have had MS for 16 ycan and the mlumn is Recently I have acquired a Tauch~OperatedSeiech ideally matched to my fluctuatmg energy. I am able to Control unit known as TOSC. This is a unit into do thisonmy awn time . . . two hours a week, actual which are plugged such things as a desk light, radio, work, though there are columns going on in my head heatcr, TV. etc. Runningaway from theunitanacord 24 hours a day! I do all the work on the column is a skin sensor device. So just by touching any part myself." of my bare skin on the sensor I can hlrn an or off any How did he get published? "I took my column to of the things 1 mentioned. it is a marvelous unit and an editor of our local paper and told her it was gaod sure saves my parents coming into my room as often. material and that I would like to see it published. The unit in bought by and loaned to me from the She agreed and that's all there was to the first one. Kinsmen Club Rehabilitation Foundation. They also The semnd and third were just as easy. The rest are semi=e it for rile. n and will be up to the syndicate." Then he added, "I sent my stuff to 45 syndicates before I was picked 1," '' Address: Jim Wallace, 4195 Napier Sweet, Burnaby, British Columbia, Canada, V5C 365. 19761Vo~u~aXIX the 'liandicaooed suboooulation.'' "Snthesis" is a recognition from the column could lead into new nreas of activity ma uwf"he3s. '2 would advlse anyone interested in writing a column to write about four ramples and make an of partida1 relevance, and other ieatbres which pro- appointment to discuss them with the managing vide useful information. Like Btickley, Farr spends editor of your local newspaper. (Weeklies are usually two hours a week in preparation. On the advisabMty more receptive to new columns than dafiies.) It might of others starting such programs, Farr said, "Do it. It even be r good idea to offer to let him print the first needs to be done. Patience, persistence, and perre- four columns free of so that he could deter- vervnce are required. Qualifications vary from station mine reader reaction. Even if he decides against con- to sbtion. 1 had same radio experience and am per tinuiw with the column, you will have the clippings sonally disabled." to show future prospects that your work has appeared Fm's braadc;lrting experience was as promotian manager for a radio-N station in Hawaii where he sm another type of column is written by Geti and his wife lived while she gat her master's degree Cogs" of New Jersey. It is a ~hatty,humarous view in social work. They went there a year aker Farr of L,articular news events or life m xeneral. This padusted from college and discovered he had MS. column is printed once a month. or whenever Cogan He is now wnrkine on his PhD dissertation at Stan- gets it done, in the Pormck Vallq Co~rimrinihjLife, r newwpaper. Cog=" began writing when she found at age fifty , . that she had multiple sclerosis. Although she had munity College pro"ides his main aaurce of income. dolle various types of writing during r lifetime of Farr is looking toward television to do a "Syn- theater work, she brushed up with a creative writing thesis" type piapm. He said, '"Sy,,thesis' was the course. At onc time she had been a press agent, u first radio propm of its type, but T hope there will theamcd agent, and personal secretary to Helen be many more. I will be glad to help anyone who Hayes for three years and to Gladys Swanhout for wants to get such a propam started." hventyfive years. Columns are not always slanted to the disabled. She advises new -ten to "take a good journalism Larry Schaefcr, who is confined to a wheelchair and course, in school, correspondence, or adult educa- largeiy unable Lo as a result af encephalitis, tion." She Bstr qudi6cztions as "the neeti !lo write, writes a photography column. "A few years after 'rtickt"iti"eness'. perfect spelling, grammar, composi- I became disabled 1 wrote a short article on how I tion, i",a@ation; know hcrw to senrch out ideas." made personalized greeting cards far all accanians A shining stnr among journalists who are disabled with a Polaraid Land Camera and movie titling set, is Bill Kiaer of Winston~Salem, North Caroha. He and I sent it to the columnist who then wrote the was awarded the President's Trophy as 1976 Handi- camera column in the Gary, Indiana, Post-Tiilisnr qprd Ameticm af the Year Along with Dick Farr, Shc liked the article and printed it under my by-line hc war one of the pioneers in broadcasting a pragram as a guest cohlmulsL For a number of years she en^ especially for the disrhlcd. Of his work Kiser said. raged me to write articles on various photo sub- "I have five papers carrying my weekly column, 'The jects, all of which *he printed under my by-line. Handicapped Mailbag.' For the last two years 1 have When she decided to retire, she persiladcd the man- been writing a weekly radio program. I do this pro- agement of the post-Trihiire ta let mewile thecolumn gram for the North Carolina Drpartment of Human pemmntly. Far the last five years I have been wrir Resaurces, and it is ca"ied on 20 stations throughout ing a weekly column far the Sunday section. The the state. As you might imagine, the program taken PosCTribi,trc is the largest daily newspaper in norlh- up a major part of my effort and provides me with west Indiana." my main source of income:' Scharfer's intended career before hi$ illness was Kiser has cerebral pdsy and was once, after un- photojaurndism. After he became didled he took succesrful brain surgery, considered hopelessly dis- caurrer in magazine writing, short story writing, abled. He war in a nurring home for eight years until philosophy, and psychdogy. He also has s diploma friends, a rehabilitation counselor, rnd a physical ham the International Correspondence School in therapist encouraged and helped him to Leave. His mme1cid art. over 100 of his caitoons and pcn-and- news service was urganized in 1974 through the sale ink drarvmgs have appe.md as illus~ationswith his of stock to friends. Now he liven alone in an apart- column. ment adapted ta his needs and goes hack and forth "A"" disabled person who has u spedd hobby or to his office across the stieet in his electric wheel- interest about which he can write knowledgeably is chW. sure to find that wtiting a newspaper colilmn is a "AS to whether handicapped people should write satishllng way to earn some exha money. Community coiumns or not, it is very diffiiult to make any money Rs"*",nr*rrorr C*rrrru in this work, although it is very rewardmg. The only Kiser r-ived most of his formal education hm way anyone can make s living on columns is ta sell his mother, who was a teacher, and passed a high them to a syndicate, which I have never been able school equivalency test. He has since audited 50 to do." hours of courser at Furman University. n Vocations Vocations and Disability by Fr. Patrick Lewis, C.S.Sp June, 1959, was a red-letter day for the disabled. On for the re1ipous or priestly life, and has raised a ques- the 10th day of that month, the Rrst paraplepc in tion of admitting them to the preparatory seminary the Catholic Church's history was ordained to the progcms. Except lor some religous orders sperifi- priesthood. Fr. Leo Close sustai~eda severed spinal dyfounded lor the disabled, enby into the gener~ cord in a mountain fall while on pilgrimage to Feha; aliy d semiIarie~and ~~ligiausorders is a diflicult, he is now director of relighus education in the dio- if not impossible matter, far those with severe ~h~~i- cese of Dunedm in New Zedand. cal disabilities. In the subsequent years, other severely disabled In exarmning why this is so, it may be well to con- seminarians were ordained to the Catholic priesthood: sider briefly the Catholic theology of vocation. the present writer in December. 1964, Fr. Bob Ronald, If we are to con"ephlake vocation as a "calling" or SI., in early 1965, and Fr. Bill Athsan, O.S.A., a "in"imtion," then all men are called, evelyonc has a quadriplegic, in 1974. in each case, a sperial dispen- vocation-"it is the will of Gad that all men be raved sation from Canon Law was obtained. and mme to the knowledge of the mth" There are In every instance, these men were already seminari~ others, however, who lee1 called to a more direct or ans when they joined the ranks of the disabled. How- immediate following of Christ and hia teadug. So ever, the fact of their ordination has raised the hopes men and women have drawn together into groups af other severely disabled persons who feel the desire and have arsanired- their lives to serve their fellow mnand to facilitate a less hindered becoming of the Fr. Pnm'ck Lru.., C.S.Sp.. n polio qund, im IW,Iin Oulzlin in ideals Christ set before us. These groups are the Re- 19.35. His fitha: R lndifniy offlm. rims i? rnn~ahrrof the iCil> haous orders in the church. Amy's Olyilipir Equahian im!a He iausidrrrd mkntg o degree i?,"#ecr"?rcc"l and ei I~~~IVOLUMTXIX 9 avoid the peoon who wishes mmly to escape celibacy and the obligation of the daily redtd of the the ~~~~~~~ibilitierof life or is hoping for s se- oifiilal prayers of the Church. cure shelier. After rehabilitation, I rehirned home to my psrentr In the willing to assume the health on a fum near Shiner, Texas. I spent ar much time care of this individual? as I could in my wheelchair and rested an a rocking .The bugbear for 811 the disabled: has bed. I kept in touch with the outride world by way of the in.ti,ute suitable facilities free of arc1utectura1 amateur radio. 1 held on to my commitment to the barriers which enable the candidate to fulfil the Ch~l~chand devoted a good deal of time to prayer demands of this role? and meditation. Over the years numerous efforts wwe made to se- As regards the priestly life. the main questions will cure permission from Rome for my ordinetion, but center around whether this person can Mia role the answer war always the same-no. But in recent for omey3. canhe administer the sauments, preach years the trend within the Church has been toward (in wmds or writing), md be of service to his fellow greater heedam and greater emphasis an love and man? 11 was due to the public nature of the office of pastoral need3 than an inflexible law. Thus my priesthood that the Canon Law of the Church laid bishop, Archbishop Francis 1. Furey, Archbishop of down that a disability or disfigurement that would San Antonio. was Bnallv able la clear the wav for cause ndrvimlio yop~di would be an impedunent to my ordination. ordination. Adntirnlia populi is a grew feeling of dis- The steps were to first ordain me a deacon and then traction andlor discomfort on the oart of the conere- a ~ried.My ordination to the diaconate took vlace ganon. That some farms of disahiliiy or disfiprement he& at home on the evening of ~ecember4.' me could cause such a reaction ran be admitted. On the archbishop ordained me a deacon ddngMass by the other hand, this formulation of the law has both the ancient rite of laying on of hands and a prayer of disadvantage and of deckgthe attitudes conserntion. MY mother, ~3,~ho is now a ren- andassumptions of society at a particular time. and of dent i" s local nusine home, came home far the occa- accammodatine" rhanees" of attitude over a ~eriodof sion. Also present, of course, was my father who, a1 time. the age of 89. is stdl my faithful attendant. It has been rightly said that the Chwchz prophetic The next day friends and relatives loaded me into mle should preclude it hom being the slave of public a van borrowed ham a saddle factory. When our cara- opinion. Law of itself does not have the &ma of van arnved at our pansh church, the school bad prophesy, it deals with present fads. Church Law. was playing outside. At 2 o'dock three bishops and hawever, as dintlnct from any 0th~~codified law, has some 100 priests, who had come from near and far, .m inbuilt provision for dispensation fmm nearly all marched down the aisle, led by a group ai whitr- of its pro"isio"r-a hue recagnition of the complexi- gowned littie flower @Is who scattered petals in their ties of human situations. Such a prov?nion used by path. Then came my parents and flnvlly I. followed by chatismatic men in the recognition that "God rhaoses the archbishop. the weak to confound the shang" has been, and d As with the ordination m the diaconate, the o7dina- continue ta be, the avenue by which social attitudes tian to the priestliood also takes place during Mass. sre changed and the severely disabled officially enter The bishops and priests filed by one at a time and a lifeof re&ce to God and their fellow man. I1 laid their hands on mv head. After the lrvinr on of Ordained After a Delay of 23 Years by Rev. Charles Kram The mast forgettable event of my life orcurred on December 5, 1975 when, at the age of 46, 1 was ax- dai~edto the priesthood after spending half my lifeas a I had contacted resoiratory mlio in 1952 when I terack with other deaf persons. Rut what sbuut a deaf person who happens to live in a total hearing en- vironment? It is a ~ompletelydifferent situation, and At the end of Mass came the blessing. My first indeed, a djfflcult and painful one, too. pricstly blessing was for the archbiihap who knelt be- Since 1 am the only deaf seminarian in the De- fore my wheelchair. I was the 9th priest he had parbent of Theology at the Cathatic University af ordained. After Mass I was wheeled to the center of America in Washington, DC and one of the only two the church to be with the crowd af well wishers untii deaf seminarians in the USA, I do find it somcwhat it was heto proceed to the nearby parish gym difficult and frushaling to be in a total hearing en- where a turkey dinncz was waiting. vironment. I have shldied at Cathotic University for In spite of all the cangrrhilxtions and praises I re- almost four years now and have already earned my ceived that day, I went to bed that night knowing MA degree in theology. Very often, during the course that I was still the same old Charlie. except that now of my shidies, I have encountered lonelinrss, depres- 1 was a Ati this happened on Friday, December sions, frusnatians, and several other unpleasant 5. Tile" came Sundav. December 7, the day of the sinmtions. These difficulties have stemmed mainly first Mass. from the communication breakdown. I have made Now that my debut is over, the question is, what every effort to communicate with others, but I cannot kind of ministry will I have? One importanl part of bear the sness af lip~rradingat all times. I find it every priest's minisky is to offer worship in the name to be exhausting. Thrre are times when I simply quit of the Church This I do by offering Mass in my rnnm and withdzaw into my world of lonetineis and soli- almost evew. day. at a small altar on wheels, with tude. When I experienced hardships, very aften, my sameone a3*isting me. aspiration to hecome a priest would become shaky. As for a mcriiil ministm, at oresent I see mine as The whole thine has now chanecd. I am veiv for^ I . , , n. I I : . 3, ,ll"*.~l1.1 II", 1 nII6.I irl~:,1.11 .1,1111, 1 me lhll I f.I : I h r p 1 I 181, iasi rsnl M>, III.,!~:1.1 I l..llll.pl ~1.1.I~II,.(. . 11 8. n,.~, lpc,r. )n\ cn.\,. <>r.twn .h>rc rh. .r Ibor !.I,% 4 t,t,uctr uf pr. mv.8. .I :#.18, .~h,sx, c..,#lv<,c b~.k u .I .~.h I, r r:lv?r* I ., , tb.:. .I. d 1npdr.tcl.ln i.>r a#l,l%>.2ll.1lr :# ~,#,~.'\.tilfrn,t;rl'.~ brnIl;.lp I' ih,lf t?* .1.1! I :,,,<*,tvn f,~I A Profoundly Deaf Seminarian Three Religious Communities The Congregation af the Sisters of Jesus Crucified by Thomas J. Coughlin was founded in Paris in 19311. The first American house, Regina MunN Riory in Devon. Pennsylvania, The ides af a profoundly deaf person shidying for the was founded in 1955. St. Tohn's Riory was estah- Roman Cathok nriesthhaod is a novel thine. at least tished in England in 1959, and St. Paul's Priory in Newport, Rhode Island, in 1962. There ure now 1,ouses in Japan, Molland, west Germany, and five houses in France. is, can be achieved in various me*- The sisters live a monastic, life in umr such as sign-language, 19.d aql Su!ma .praqatqms se pamas aq smad oz xed oqm 'do 'Rplaq "aa,!Q ,a+s,s aneq am '0s jo lSl!d -ds~rpueqsnl jo uo!s~lwr!p alq=xap!suoJ IJ~F6161 -vsmdpq 02 aqqnaq Iaal"n[on "! VI jo as8 aq1 le InpI -3s 1mow parazua aH ylzrq OSp waq4 $0 Luew .saq~"moJqaq, ,410 EIJqluam a~qspqq uaaq seq 'WS 'Iauqaos uqa laqrwg 8rrsedosrpd. . 'ansae are OUM snofltraz. pus . ssaud .9~61nuenlLsliua,l 'enldppelnid 'anu pa[qee!p jo mqmu e yl!~z~sauo:, q am02 aneq I -anv a"@?ye0 'Sa!p"lS jo aL"OH ue!Ja!uKl. 9! 'zapma, anqsasxwpe ayl lac I qa!q~jo '(6503) aq ssarppe sm -alpmrg qsnnrqj aidoad pugq.j=ap woq '=3!1awv v y~!s aqa jo vovn ~gaqzejayl +nonu. m5q a am ppoM aH -S"q"am pqq-pp jo dnd vsns n 30 '0S"pE ,""lgds sa q>e aq 'ymM &run," -"lo3 EX " inq ha., ,ps qa"oq1p '&ON luaw sno@gau pue s?salq palqesra puxq ppue pap Lllgzaz %maq 02 anp am sno@nar av s"!zal"a I(I[mgjTp p'q 'U',a!'sao% p!n.C[ laylola .92061 e!ue"l.('ul'ad '[,!H pxa,,, 'peon ua-t) pue anuanv au~apsuel'kazseuow upr -ugsdanv q warppe q, 'Lrenrqa3 " pa-p,o ERM ,5961 " juapp,e aIrnreaaaqole " ~!as[d"pe"b .>A 2 J>[ IS(, >[","X ,!>.?l,.>>~,>'d #,.Uj ,I,>#, e amaq aqM 'VSO '"0s"ylV -a umq,!,,, '2.q ,v:u,>,,,[ ",,#,",#,.#,,I, J S68SD Onlo 'wauoyedc~'3aaaS had ~ -~ ~ ~ ~~ ~ ~~ qlnoS '.S.JJS 'ea'e* s!naT .naa E! a&, .Su!lno>s EEE~In-n~Ls JgOqaQ aqowold ID] pmMv aha3-4s aq1 panla> -mad ,uanao 'spnau pla!ps pue onpamM 'ho!>d -a= Lnuaaax req pqq s! oq~qsaud mo p aug ~unweqaau 'a!mw um+ J~~S!Srnoq pnq aq dew .WE',, .(a"% ma,,! '&!J Laua1 ,pmn uo!leuuoju! leua!zrppv Lspd psqaza2 m 'nrolaps -al"og Lpa1ruax 'Luape~vJ!"rnaa .IS S! ssarp aldqpw '.(rdal!da 'aa!lepiqal w01j %ugpsaisaqmqe -p~I~H .asla auaawos Su!d[aq jo EL~M~oj auqoa[ -srp ,a s,apzor!p sna.".,au 10 leluam ancq $0" Lsm 5Lwp S! pu. al"paq,I su!q,eal llq P same3 aqr pun Lax -Jualaj!wmoJ ~no!a,,al >!j"aq,"e ue ang 01 ma" xaqxa? q~emloolpr qS!q e r! rale!s 'pugq Lll-Zal E! U~ASaq VM i4mqssod .(mrana 'am Laql j! 'lnq pa[qe 30 year; he has been telephone operator, United Stater in order to raise funds for the expansion zdimr, author, promoter of the MdstApostolate of the &ssodation. His address is Ho Ping West Road, in ~ocioeconomicsaffairs, and lecmrer to the novices Sectioe 2, Lane 98, Na 6, Taipei 107, Taiwa~Republic of the~ Societ"~ of Mm. He now shares his time and of China. caunscling with our groups of blind members in Father Brian Daran. a young deaf priest, was re- CUSA, mrresponding via Brae and tapes. His ad- cently appointed to head the Archdiocese of Las dress is Mdanist Novitiate. 4435 E. Patterson Road, ~"~~1~s'pastoral ministry to same 40,WO disabled Dayton, Ohio45430. persons. Father Daran, who was ordained in 19n. ?hevisitation nuns ~""~shnallyaccept an applicant has his omce equipped with a teletype phone sys- who is handicaooed... but this is d0lW onan indi"idua1 tem. The address d the Archdiocese of Los Angeles basis. is 1531 West 9th Street, Los Angeles, California 9W15. Address: Anna Marie Sopko, 176 Went 8th Sheet, Another young man who isdeaf is just beginning Bayorme, New Jersey 07002. his seminary traklhg in the Society of Jesus (Jcsiuts); his ad&es~is Joe Bruce, 188 Beacon Street. Chesmut More Disabled Priests and ReliBous Hi, Massachusetts 02167. Rev. Robert I. Ronald, ST, has been wheelchaired Brother Patrick Maitin, director of the 0Ifice for by polio since he was a seminaisn. He works more the Handicapped in the Diocese of Nowich. Con- than full time ns a missionary and certiiied rehab& necticut, is legally blind. n tation counselor. He is a psycho-social and voca- ticma1 rehabilitation mnsultant for the Rehabilitation ED: The nu1 isxc t,!iIl inch Rozu, spent nearly dl of the year 1975 touring the crsriblr. Teaching The Blind To Type by Daniel J. Tomasek The typewitcr keyboard is Man's most commoninter- Company marketed the fint workable typewriter. The face with communications in the business community designer, C. L. Sholes, found that the gravity-remm and with the world's growing treasury af computer- action of the keys was slower than the finger moue- borne idomation. Unti recentlv. blindness bas been ments of typists striving fui the then inconceivable rhc. ~n.>.'.~r~~tiJ.,blc. I~r~l~~l#c) IJ t,: ~wti~.~rn.. !n 'hr speed "equal to handwriting." He decided to slow lh.,,,","& .sc ,.,,, *<,o.>,r.l I..,, ,h>~,:fl.:rcc1 \,#,;# down the operators to match the performance of the I... , , ! ""I , , . . 1976iVo~umrXIX tesiify. the mbersome QWERTY is King-even when it comoounds the handicaos of its usen. The Bell System, world leader in communications, has ,. inhoduced the DSK at its Western Elecmc Training siin of an IBM Selectric to the. superior DSK arrange- center in a tial-trrinine". nmeram. .. . and initial results ment can be accomplished by any deriel warkw in a have been favorable. few minutes at a cant of less than one hundred dollan. Why has a deliberate rrippling of skills been en- The blind typing students' double whammy isabaut to dorsed with the manufachire of almost everv mine be exornsed. Another bicentennial boon in mining aids is the talking 'almlatai, SPEECH PLUS, pul into produc- . . " ,. tion this February by Tele-Sensory Systems of Palo the work of ma,"md he added that business callegcs Alto, California. It$ pera at ion in to small cdculamrs were not pleased by the prospect of teaching typing what SPELLEX is to typew"ters. Now then, if they'll in nine weeks rather than nine months. hook up the typewriter to a computer-dictionary so If keyboard design for sighted persons is 100 years we can farget about spelling errors, tie the cnlC"lator behind available technology, the situation for blind into a metric conversion system, then surely, someone typist-winces has (until recently) lingered in the Iron will come up with a way to make the piano keyboard Age. Although braillc-weking accessories have long block out sour notes. and then . . . n been availablr for u broad vmiety of keyboard devices (see the American Foundation for the Bhd hifernn- aonai cmterss~, the hagile link between the thoughts of the blind typist and her sighied reader has been dependent upan her ability to memoriec the inhica- ties of the keyboard and relate the unseen print and 1976. format to their braille counterparts. A blind typist Blim I. C. The optaron. Pramditig5 1974 Coriplerzm 088 without a braille reproduction de%re or a print-m- E#igiiimi,8,~Dnimr it, Rdinhili,nB,r. Boston: Tufts Uni- touch converter such as the OITACON Last the dig- sreurug. H. L. 'lelecamnniiaiionr. ii telephone system for nity of independence to a sighted proofreadei. the deaf, TeIehnimi,iirrs for Nir Dmi, lbir,. Indirnapolir, Un61 very recently, the blind candidate for clerical Indiana 462M. work has been frustrated by the double whammy of Clark. L. L. (Editor) ii~irnmti,,,#oiC#inlqp. Amencan Poun- keyboard communications: (1) mast schools for the drtion for the Blind. Ncw Yrnk. blind hain typists through sighted teacher-monitors conan, N M rypewntlng for the motor-hnndrapped. who provide a running. spoken narrative of the shl- Al,,rr;rn,i plrirnnl 01 Omljinlit~nnl Tla~mpi. 1967 (156- dent's efforts, and (2) the lea~ning-and~~chi~~~rnent-150,.",,. busting QWERTY keyboard is in universal use. Of Oochetiere. W. I. Computer-sided motor commurucntions. course, the schools are tight in their approach. ~lind 1974 Cm8fm,tce n,, Engirxemi,ig Dmiro ili Rehabililo~ nlui Boston. univer9ity. typists will work and compete in a woild and Tuea avoidance of special naining equipment hms been im- Dvmak, A. There ir a better keyboard. Nalionnl Businrsr ~n~,ot 14 my illness as multiplr sdemsis. 1 continued working, using my Left hand and not abandoning my vocation as a cancainrist. As MS advanced inexorably, I was the compendium in every issue. SO that the senes pensioned offns disabled in 1950. may be coordinated, the same system of categorizing ''We now had three sons and there began a difficult occupations is being used. period for me to adapt to complete immobility. In Our quad readers are asked to ronhue to share the necessity of helping the children with their home- their experiences. lust dash off a quick summary, re- work, I learned to write with the pend held fast in counting your educatirmal and employment expen- my mouth. With the hel~of friends 1 obtained work ences, adding whatever thoughts you think would be helpful to other quads, their parents, and their counselors. students. ~imdstat the same ti& my cx-banking M*b companions found a place for me as a caricatunrt mmmrsr. (Quad because of multiple wluosis.) in their dub magazine. Enrique Mate, Biarritr 2085, 1916 Buenos Aires, Ar- "Smn afterwards the Argentine publisherr of the eenha. "I was born in 1915. After I finished mv lntemalional Association of painters without Hands &Mary service, I worked at general office wmk. (Vaduz-Lichtenstein) invited me to join the Associa- 1940 1 became an important bank official. Previous to tion on a schalarship. That was in 1960. Since then my marriage in 1942, 1 began to feel discomfort in my I have dedicated my life and my strength to painting. right fwt and m. In 1943 the neuraloHst diapased The Assodation, of which I am now a Lifetime mem- 15 ber, has provided me with sufficient means to main- insmental in estsblishg a county chapter. He is rain my home with dignity and without economic listed in Outslondirtg Young Mm of Anrmiia. He and pressures." his wife, Jay, adopted a2-year-old @I. W*mnca~oEI3r. (C-4 since an auto ahdent in CLLN~CALPSICHOI-OCIST. (Polio quad since 1955 at age 1960.) Stanley L. Obrltski, Jr., 75 Augusta Street, 11.) Caryl Halper Smith, PhD, 7610 Westwid Lane, irvmgton, New Jersey 07111. "After spending three Haustan. Texas 77071. Tutored at home through yea at the Kesslci Institute for Rehabilitation in junior and senior high srhools. Caryl attended Brook- West Oranee. New lersev, I went home to live with lyn College and graduated xnth a Woodmw Wilson Fellowship to attend giaduate schod. "Stanford Uni- versity accepted my application for graduate work in psychology, offered me a place to live and the oppor- hmity to work with a great man, Dr. Wilhm Dement, a farnnus researcher an orablems of sleeo and dream- . . . . ing (Volume XIII, pages 24-26). . . . 1 received my and picks me up. doctorate in psychology in 1973. For the next three '1 paint wnterco1ors by holding the brush in my vears. 1 worked as Assistant Professor of Psvcholaw mouth and since Sentember 1975 I have been a stw dent member of tie International Association of Mouth and Foot Painting Artists based in Lichten- stein. The Assadation pays me a monthly stipend of continue hd-time employment combining my re- 900 Swiss hancs for which they have the right to search and clinical interests in psychology. I expect ~~prod"cemy work on greetlng and note cards, 01- eventually to develop a private clinical practice as endars etc. I submit my work periodidly to them ~11." for evaluation and hope someday that it wili be good enoueh ta earn me a hill membershio. If this haonens olIro polio quad since 1950.) DT. Ross Williams, 2 Frances Seeet. Randwick 2031, New South Wales, Australia. "I was disabled by polio while in a munhy general practice. After three years of rehabilitation and through the help of a good many mends and colleaeues. i found mv wav into child and in'the ~~therlaids. "My hobbies are chess and amateur radio. I play , , chess over ,he board, via mail in sanctioned tam- ween spent in the Department of Child br ments in the U.S.A. and international, and over the Family Psychiah.y at the Royal Alexandra Hospital radio with my friends up and down the Eastern sea- for Children in Camperdown, Sydney, and a certain board on the 40 meter band." amount of work in private practice in the afternoons at my own home. I have found that the most impor- Health ca..ora tant sped aid which people like ur need comes S~nsolP*morocr~~, Ds~Anmam DnrrnX, RB- through the interest and help of family and hiends msnrr~noaHosprra~. (C5~6 quad since an auto in which respect I have been extremely forhmate." accident in 1964 while in college.) Grant W. Jones, MS. 828 Clifgan Drive, NE, Warren, Ohio 44484 COMMUN~RBLA~ONS, HOSP~AI.. polio quad since Grant received'his BA in speech forensics in 1969 1962. at age 18.) lsmael R. Chaver, 183 Sherman Ave- horn Linfield college (very inaccessible). After many- nue, New Haven, Connectimt 06511. '1 am a Cuban, ing that summer, he began warking toward an MS in I leave my country in 1960 with my family to live in speech pathology at Oiegon college of Education. He Venezuela. There the polio sh'uck me. After 1% years graduated sumrna ntni ia~ideand wae honored with a in the horpital and rehab center in Caracas we move "Citation far Commendable Achievement" fmm the to San Juan, Fuerta Rira. in 19% we move to New Oregon Govemor'r committee on Employment of the Haven, Connecticut. I attended Candler College, Handicapped. After working on the staff at Hillside Southern Connecticut State College, and I have my Hospitd in Warren, Ohio, for a year he passed his BS from La Salle University. My 6mt jab was at Com- exam for the Cemficate of Clinical Competence given munity Progress, Inc.. the anti-pnvery agency in the bv the Amencan S~eechand Hearine Association in dty; my work was as a community and employment 1672. in 1975 he wds made Director orspeech Palhal- counselor. agy. He is an active member of the Ohio Governor's "In 1968 I was hired as a community relations offi- Subcommittee far Barrier-Free Architecture and was cer at Yde-New Haven Hospital. My duties are pa- R~ABILITATIONGAZETTS tient advocate, patient relations, and tnnslations for care of. They are asking for their rights to be a part the Spanish patients. 1 work an average of 8-10 hours of the mainstream of rociety. This is not a medical a day, 5 to 7 days a week. I am also active in severd question or a psychological question bur rather a hospital committees. question of effemveenforcement of evil rights. These "M" main interest is to abolish the architemual tights must be enforced not simply because the inte- barriers. As chairman of the New Haven county gration of the disabled is good sodal policy but be^ A.B. Committee, 1 do a lot of haveling, meetmgs, cause the laws of the various states and the Constitu- soeeches, in the citvand state. . . . Ilive withmvnar- tion of the United States require that they be en- ents and my dog.'^,, brather and two great &ends forced." are the drivers of my van for work, meetings, and vacations. . . . We must all get involved. We must go ED: We on deeply gdeued ly lock's untimely death ia out and demand and try. But we must be invoived." mid-Septmnbm 1976 iulrm hems hilled by o hit arrd run d"i"e7 ,,ear his home. 1mniur11y. he unr in his Knowledge and Information lndvshy wheelchair in ?he rlwl brorirsr llie sidmalhs are riot or Lrca~Rsss*auw. (Cerebral palsied quad.) Mick cessihie. Joyce, Midwest Information center for Equality of the Handicapped, CA 106, Southwest State University, Rehabilitation careerr Marshall, Minnesota 56258. "My parents were told SOCIALWORXEX. (C-5 qnad since 1967 at age 21.) Dick that I was 'very retarded' and should be 'put away' Goodwin, 4402 McPheisan. St. Louis, Missouri 63108. in 3" institution. Fortunately, they and my lhreealder "My life as a quad began to take direction in 1969 sisters didn't believe it. I attended a class in when I started school at Southern lllinois University the publicschools until the fifthgrade when I enrolled at Edwardsville (a "lode1 campus in terms of accessi- at the Crippled Children's Hospital and Home in bilitvl.'. I finfshed mv BA in 19n and went rieht" into Sioux Falls, South Dukota. and stayed there until graduate school in rodolopy with the help of a teach- I finished high school. After qng'olicge carrespan- ing assistantship. I finished my graduate classes in dence coumes, I came to Southwest State. I majored 1975 and 1 am now finishing my thesis. In March of in creative writlng and sodd sdence. Duiv college 1976, with the help of the 'Queen of the Crips,' I began gathering information an laws relating to the Gini Laurie. I began ~~~ki"gat Gaodwill Industries handicapped. After graduation I obtained a North- of St. Louis as a ~otialworker. This meant either west Area Foundation grant to compile and catalog moving to St. Louis or driving over 60 miles round federal and state (Minnesota and the sumunding trip every day; I moved. With the help of friends 1 states) laws and court cares. to publish a guidebook hund an apartment close to work, and then I ran ads in early 1977, and to establish a center here at SSU to find two attendants. I had a good number of re- to provide information ieiatlng to the civll nghh of sponses. The arrangement that I offered was that I the handicapped individual." would pay the total rent and the base telephone bill in exchange far the assistance I needed, and we Law and (he Minishy wdd split thc food bill. Beyond the personal assis- Arma~nlAssrsrmPno~nssoa. (Incomplete tance, their responsibilities are cooking and keeping plegic since 1965.)Jack Achtenberg: "I received my AB the apartment relatively clean. AU is well." from the University of California Berkeley, ID from Loyola Law School in 1969, LLM from Berkeley. MA EMPLO~COUNSSLOI. (Polio quad since 1959.) from UCLA, and I am presently a candidate for my Lynne Recagno Graebaer, 2086 KeUogg Way, Rancho JSD from Berkeley. My special field of interest Is in Cardova. California 95670. "1 was disabled at 16 and the rights of the physically and developmentally dis- finished high school by tutor and limited attendance. abled. 1 have lemr-d and written extensively on the While at Sacramento State College, I lived in the subject. I am president of the A. Milton Miller Me- domumry with the help of student allendants. After morial Foundation, Western Center on Law and the 6 years, I earned an MA degree in psychology. Since Handicapped. I am assistant professox and chvirmvirmn 1968 1 have been an Employment Counselor in the of the contracts deparrment at the University of San California State Employment Development Depart- Fernando Valley College of Law. I recently received ment in Sarramenfo. I ose sliding arm suppom and a commission from the American Ci%l Liberties hand braces to write, type, and operate my motanzed Union to pradvce a 'rights handbooY far the dis- wheelchair. I work at a s~eciallvdesiened eiecbic abled. . . . The physically disabled are presently sec- ond-class citizens. They are ~~b~lli"~against the re- Shaint impaed upon them by . . . The 'Oip Lib Movement' is now expanding from the hails of a ~iitfor wheelchair passengers at the regular fare. legislature lo the steps af the courthouse. . . . Persons I have a Chevyvm with a lift for privateuse and field with long-term disabilities are not asking to be taken work. Counseling people with job reiated 19761Vorumr XiX 17 and mnducting job search groups is chdenging tatio ion, and evaluation of infarmation. It is a work. My husband, my 4-yearold daughter, and my fascinating, fast-moving business which rrowds my job all rnakeupa very rewarding life." day. Dvring the morning, I am on the phone or doing reading. Actual office hours are from 1 to hlr08, ,\r S TEACHER,Hrcn SCELOOL.(a-6 quad since 1971.) Teachem Matthew I. Green, 1221 Tahiti Drive, Cresmod, P~o~ssson.COLLEGE. (Folio quad since 1950.) James MieSoun 63126. Injured in the spring, Matt was able A. Graaskamp, PhD., 202 Breese Terrace, Madison, to return to his teaching position in September of the Wisconsin 53705. Education, post-disability: AB, Rol- same year, on a part-rime basis. "I was determined lins College, MBA, Mnrquette University, and PhD in to get back to work as roon as possible and with the urban land economics, University of Wisconsm. "I am help of many good &ends I was able to resume my presently chairman, real estate and urban land em- career quickly." "OMCS. I Cmy a full range of faculty duties and Man is now teaching full-time in a public lugh wve1 extenri"ely. I operate independently as a schod. He drives to work in a spetially equipped teacher and a business man ired estate) with the dd van. Since his iniurv, he com~letedhis MS ED. was " " an electic reel which he operates with a mouthstick. sotiation. He in currently working on his MAT degree. writem TXA-. Jmon COLLEGE.(Polio quad ~hild- Eorran, News~a~sn(Quad because of r Lifelong hood.) men Fry Peak, 625 26th Avenue NW, B% newolo@ral disablement.) C. 1. Lampas, Achiaemmt, mingham, Alabama 35215. "Like other polio quads, 925 Northeast 122nd Smet, North Miami, Flanda I have fmtnd 'malung it' enmausly hardPnat only 33161. A student of Byzanrine culture who speaks for me but for those who have had to help me and three languages, Connie is the doyen of editanal to watch me do it. But looking back, 1 realize that writers who arc disabled. "They call me the grand- I am successful by most anyo,,e's standards: After father of today's generation of militants. . . . My life's yea of only hlbor-miss tutoring, I earned my BA work has been fighting disoimimstion." His rebellious Phi Befa Knppo; I earned my MA while working as but cons~ctiuespirit pervades the monthly news- am edirnnal assistant with a national magazine; 1 then paper, Acl?ieomimt, which he founded nine years taught French, Spanish, and ~"~li~hin high ago to fight far the rights of the disabled. The 16 page .&<,a;and I now teach ~~n~li~h.including meative tablaid is now an effective voice of the diub~edwith -ting, at Jefferson State Junior College. Along the a nationwide drculation of 16,000. Profile by Donna McGzuinn John H. ParLer-Anomey at Law "There were times when I wanted to quit. I would steps each day, however, and now makes a living as a think of the five steps I had to be pulled up and just lawyer with a general practice. want to stay home," remembers John brker of his John had finished his undeqradurte study at Deni- years at law school. He continued to be pulled up the son University a month before the diving accident that 1976iVoru~rXIX 14 made him a C-5 quad. The choice of a graduate school For about ten years John served as r councilman in was challenging far John because it meant dedding his com""i'Y. Active in many of the dedrion. and behueen huo ways of life. The University of hois policymaking that shaped the growth of his city, he Law School was wheelchair accessible and the law sbongly feels that everyone should serve a couple of school near his Ohio home was not. "I could either years in public office. "YO" d learn what is involved stay in my own social armosphere and have the sup- in decisions, how they are made, by whom, and haw port of family and friends but a hard time with archi- much they cost. It's a real education." While still terhlral bamers, or go man ddararea and work quieUy active in commvnily affairs, lohn has deter- like hell la be self-suifiddnt. I chore to stay at home. mined that his law practice deserved more time and. I had to commute th"v miles every day, but was therefore, decided to leave local politics to others. lucky in finding a good driver who helped me all the one of the less public and publidred ways that time I was in law SC~OOI.we amve in time far John now helps others is munseling fal"illes with my 8 a.m. class and mv driver would wait until 1 was spinal injury members. He waits for rut or eight th;augh at noon. He sil helps me on weekends :. manUis until the doctors know whether the disability 1" 1961 John married Carol, whom he had met in is permanent or not, and thenmntacts the family. Hc 1956 while he was a at Deniron and she offers to share his experience and information ~5th was a sophomore at Wayne State. Carol continued to them so they will realize there is still hope for a full work as an orcuoational theranink fox faror five years life and learn some of the ways to attain it. "I wish after their marriage until John was through school someone had done it for my fami1y;'says John. "I was and earning enough to be their sole support. Over the an only child and my parents were womled sick. They next years they adopted wobabies. The" bay is now were in the dark about my prospects for a normal life ten years old and their girl is seven. John fecls there and didn't howwhere to turn far help. LucWy, they are few differences between a father who is disabled chose the right place to send me, the Institute for and one who is able-bodied. He has to use wards in- Physical Medidne and Rehabilitation in New Yark stead of actions to discipline and there are a few more City. There I saw many other young people h whecl- worries and missed balls when he throws a baseball chairs and many who had been in them for several ~irnhis son. years. I began to think that maybe Me wasn't hope- John's law office is in his home. He thinks case less nker all. It's much easier to solve problems when research is themost difiimltpart of his work. Then he you can compare with others in the same condition. "closes all thc doors, shuts off the phone, and starts It took me a while to get my head back on and I want to seard, out the facts." to help hasten enhat process for athers. lohn is assisted W5th his mumine care bv his wife. "If it were possible, everyone should go to law school for a couple of years, whether they want lo be a lawyer ar not. It unlocks a lot of daan, teacher you , ,, . . the way our sodew works. and grants a lot of oppar- leading him to the conclusion that hospitals are the tunities. Fst two years would doit." best places to find attendants. If a person needing an John is a member of the Exchange Club, the juniar attendant does not make regular visits to a hospital Chamber of Commerce, two fruternities, and the for therapy or checkups, john suggests t&hg to a Cleveland and Ohio Bar Assodations. rehabilitation counsrlar far referrals of possible at- Address: John H. Parker, 31300 Lake Road, Bay Vii- tendants. lage. ohi0~140. n ,o,x~,,,c~~~~~~~PRXC 14 Lowman, E. W. Special wewriterr. PnrfywllcnC Mdicl,tr. ~cnon.I. Typewtitex control ;or an aphasic quadtipln@c 1964. ptient. Cnrinda Mrdirni Asrocl#liaa lniinloi. 1%5 (557- Lee, F. L. New promises in reading by ertening. pro reed^ 559). if#,p1972 Cnna@lzo*tCm?fme!rce. PlnPdn. v. A. vice Preildent. T~l~ienrarysystems. Po- ~arhn.I. K HOW summaih~lW~II affect the future voca- 50,toi ~~~~plzorr~m~~~~~rsn~io~~.May 24, 1976. tional gods of the multiply handicapped cud. C~ilnda semdxc. 6. ~~~~~~iti~~-~~~~ldimproved! nircnztrr fi,#tnmi~$Oioipniiollal Tiaorln(. SpMg. 11967. Line Westem F.lecmi Engneeeng and Research nnd Mudic. S. (Edtar) Typing's Dvorak: Has the time come? Corporate Education Center. November 15,1973 l#,diiimjWeek December 2,1974. Schneide~.Kath~dnc,Deparlment of Pryihalogy. University Moon, I.H. The developmen, of a monitor voice for the of Arkilnsas at Little Rock. Personal telephone conve~sa~ bend Oepnrl,rz~l~ilnf Lklrirnl Eligineentig, 71. Ullkirrrill tion of December 8, 1975 md other conversations. Dr. ,,a,jtisr CO~C~,~,~;~.vancnuver. canada. Sheider is a prycha1ogisi. a typist. and she is blind. Nidellr. X. P. Jr, The design of an optimal typemiter Trenzer. I. C. Toward improving the opkaron. Pnlr~diug like keybowd. nes;s. M~S,01 sdmce ir i,i#,iming. 1972 Cnrrr~in?aCnltpmire. LehighUniversjly, 1973. Tomasek.. D. .1. Assessment 01 audible feedback kevboard pa,hnson. R. 'The Dvorak simplified keyboilrd: forty yelur in mining oi blind fypirtr. Research propornl subrmaed .,f .,f hurtration. Collljlllirn ",id A.,",,,"ti",l. November 1972. lo Dr. T. Smjth. Univerrity of Cmhal Arkmus, 1975. RmAarZIrAnoN GAzrrrr Sports and Recreation Tennis A Thrrnpmtic Sport for All Lmds of Disability Jack Kenney, an outstanding teml% player and a talented and gifted teacher, bus been opervtlng his well-known Tamarack Tennis Camp in New Hsmp- shjre for many years. During recent wintes he has been volunteering his teaching talents, worhg with disabled and reterded children and ymgadults. He has havcled all over the New England area at his own expense, demonshating to recreational and physical therapists the benefits to the disabled when tennis is included in the regular exercises. He has worked out ineeniolis methods of teachine. w -. such as using fleece balis or ballaans or holding a tennis ball by Velcro la a string suspended over the lao. of a oerson, in a wheelchair who c.m tan it 6th a forefinger ar mouthstic*. He has mimeographed step-by-step lists of exeroses and games that cover wery type of tennis that can be played singly or in groups, starting with the lowert-ability groups and working through to whatever level an individual can reach. One of the first rehabilitation centers to use his tennis teaching methods is the Cmtched Mountam Center, a comprehensive rehahi!itation center located at Greed~eld.New Hampshire. After several years of experience it is very enthusiastic about the benefits of his tennis program to its disabled children and adults. William W. Roots, duector, Public Affairs, at Crotched Mountain Center responded enthusiastically to the cmzeac'~inquiry about jacws proRram there. The foliowing are excerpts from a recent letter kom Mr. Rrnb: "Jack is a devoted gentleman who goes about his work expecting no accolade for the long hours he de- VoteS. ences by those children participating in the tennis "Here at Cmtched Mountain, as at many other fa- Prop.m. "liti"~ geared to physical restorative care for the ~~,"d.~,d~h,.,.>l 4"J % .',~p,,:<~",l!h*,,,p, Rnn*s,Llr*r,oN G*zerrn told in 1W pages and a somewhat staccato style that autobiography is full of facts about his We, phllosoph- intensities the emotion and flow of action. The su- icd rnusings, business advice, fdypictures, and thor's effectiveness in remunring the fmst days and some information on multiple sdemsis, a disease week after getting could be felt by this reader in ~hichhe has had since 1936. The book is self-edited, shiv- of remembrance. Even the avoidance of look- printed, and dismbuted. ing at and coping with one's most personal pmblems, an avoidance we all experience at some tie m an- other, is desoibed. In this case the problem is the un- By Carmen McBride, Nelson-Hall Co.. 325 West certain, declining state of the author's marriage. Jackson Boulevard, Chicago, lllinoia 60606. 1969. Betty Banister was a young wife and mother whose $5.95. For those who have had or whose loved ones life was radically changed by disability. In lime she have had aphaia, them is no encouragement or help worked her way out of the hon lung and still spends qviteas meaningful as that given by someone who has much of her hein a chert respirator and rocbgbed. been hugha similar experience. This is the reason Limited hinances prevented her irom leaving the hos- Ben and Carmen McBride decided to mite a book. pital where $he has lived since the onset af polio in When Ren had a stroke and a resulting loss of speech 1953. What this confinement did to Betty and her fam- in1956, therewere few otherthanvery technicalbwks ily ahsthe wisdom of present practices of helping to refer to for help. the disabled leave hospitals and ather institutions and Carmen finally wrote the bwk by herself. In the sir establish normal Lives. years between the onset of Ben's shake and his death Betty discusses her sefihness during the early either there had been no opportunity or he had not "ears of her di~abilit"and the deoreseion that keot her enegl to help her. It is a personal story full of infamation about interpersonal daily living for and with the aphasic, and one of the most tender, moving " love stories I have ever read. Ben and Carmen knew ceptance of her limitations and *ecogni&n of the each other from childhood, were married almost 50 many joys sell possible. years, and when Carmen states that their cornmica- tian reached its demest Level after Ben's 3hoke. the upl* WhatPeopleThemselvesCanDo. By theunited States Jaycees Foundation. Olympur Fublirhing Company, , . . 9327 East Ninth Sheet South, Salt Lake City, Utah The many ways a person can assist a loved one to 84105.144. This is a super book. It contains 458 pages to life without speech are woven into the of stories about disadvantaged people who have story. There is also an appendix with hundreds of helped themselves and others to improve their lives. wards and the different spellings Ben made of them. The foreword is by M. Carl Holman, president of the Nationd Urbm Coillition. He states, 'Tor the fint So Yom Child Hsa Cerebd Palsy he,peopleinvolved in succerrfU1 self-help efforts are By Gil S. Joel, University of New Mexico Press, Al- sharing their experiences on a large scale to encourage buquerque, New Mexico. 1975. No mere~eviewcan do others to follow in the" footsteps and to help others to iustice m the exreilence of this orimrimrim for oarents of avoid their mistakes." c8rehralp21.1 4 Friends Jround fhe World "Nun m6chte ich ebenfalls mi! andere amputiwten "I am a youth proferring The Christian Fsith. 1 am also Frauen aus U.S.A. Kontakt aufnehmen und Brief- a handicap having bath my lower Bmbs affected with wechsel fuhren, evenixell sogar besuchen. Dabei poliomyelitis right from the age of 3, at present I am mochte ich auch die ecnglische Sprache lemen. Seit aged 21. Last year I completed my shldies, I have 4 Wochcn besuche irh bereib einen Sprachkmus. passed the BA (Hons) and LLB exams and om now "Ich bbi 339 Jahre alt, habe ein Auto und fuhre rnlployed in a local private firm for a meager sal- meinen Haushalt alleine. ary. . . In order to overcome the public transport "lch beanhvorte sofort jeder Brief in Englischer difficulty I have been forced to purchase a 3-wheeler sprache und wwde mich "her vide interessmten cab and I have taken s loan and am paying an exhor keuen." Roremnrie Heisle?, D 66W F~mk,+~rtfM-SO, hitant interest of 161/i% to the local bank. In the light laqentrnri~87, Wrrl Grnlioriy. of the afore. I earnestly pray if any assooation of han- 94 RnHAslnrArraN Gnrsrlr 'The sihlah here has changed so much in the last few years. hnation caused many of the for the disabled to closc now everyone is *th the new dollaripero ratio. . . . 1 have rented a larger house. I have good aides and can take a few disabled men or women as residents. en's residence far men. La Morada, is still going sbong. . . . Assnro- cia1 de Lbiada da Iniisco, A.C., a young goup +th a 3p"it of independence, is growing. They print a news- letter and they have just rained off a car. With the proceeds they bought a 6-wheel-chair-passenger van to transport their wheelchaired members to and hom work. . . . Padre Galiego horn Spain is in Mexico city trying to establish the Fratenlidad Cnfalira Da Ellfennos in Mexico." Eiieeli Varr Albert, Apdo 5-208. Guadninjarn. lalirco, Mexim. dicapped odd21~~i5t me finantially in whatever small measure as a sympathetic gesture towards a genwne "I have multiple sclerosis. I would like to read more of and deserving cause'' Williatn S. Rebeiio, 1461Mnlinl. the personal articles by MS patients that were in the Morgm,40361. Gno. India. '75 issue of the Gnzelre. Dick rarr's article was gatify- ing. 1 said to myself. I'm not alone. I chucklcd upon "I was diagnosed as having Severe Poliomyelitin reading Seims Ssck'sarticie. How about implementing Scoliosis with collapsing spine in 1957 when I was a pen pal program for M5 patients?" Willinn8 Fcrmm, 350 two years old. I stayed in a Rehabilitation Center for Prorprit, Mnnrnmncck, Nm York 10s43. two years and now I'm living with my parents and sister. I attended classes in school throueh,, ,iunior hieh lir.,r,>n.l.IIJ:$- 1-4 p3,,,r,n,; I pa.", ]>, ,,., .,,,I I pt,, ,.I,:,, TN,,. 1, ., 'r ,I,, , ,"ll,l. I .c I.., .,,., :1. .I,,.: p".,.'.I. I C, 1.1) ,111 .Sf, r..,.,.,,fi.,. I ,:,,,..:. l I,. , , "In December 1975 1 went to Hungary to visit my 8'1 hiend Ivlth whom 1 have been corresponding for three year;. She has a 15 year old son. On January 20 we were married in Budapmt. . . . A Gnzeth friend, V?," Shdlm, had an important role in our When my anendant had to rehlrn to Hausmn on January 15th. I had to find someone to help for an additional week so the wedding could take place in Budapest instend of in Houston at a later date. 1 went to visit Vera. Gem, and others at Baba Ut and when Vera found what my problem was she went to work and found a young man who works there part-time to help me out. Vera mdothers desewe all the medir formak- ing my visit and especially our getting married in Bu- dapest possible." Phil Clnrkr, 2550 Narlb Lonp Wcsl. Sirite 101, Hai~ion,Tar 77018. 19761Vorumr XlX "I want to ,,.rite to men 35 to 45 years of age in the Lawroirr I. Cotnii!8, RMI North Hnmlin, Skokic Illinois USA and foreign caunhies. 1 can speak Rom&, but 60076. I can only read and wile in English. I am 35 years old. 5'T tall, and weigh 109 poundr. I like to be outside in the freshairand sun. Some of my interests are wtitlng Ienem, watching TV, and bowling. I have the adult me of muscular dystrophy and I am dependent on a wheelchair. I had ostomy surgery for urine and I would like to hear ham readers about how to attach the ring." nrtty /ran ~olb,111 nlid Avniue, "rma teacher now. My life is normal though my Roebling, Nm Josq, 08554. right leg is paralyzed. I would like to ask if anyone knows of romp new gadgets in the U.S.A. I mean an "I would fie to iind more neoole to conesoond *th. electronic or electric which work5 on the muscles of the kp,.'' Dnitiinno Liiciasdrn, Via Corndoni 22, Milo,,", 1iniy. "Several years ago I had a suprapubic cystortomy. Fi- nally, 1 learned to keep a sllicanc-Elastamo~coated catheter in for almost a year and stay free of infection. I have u way of cleaning out the lime every week or ten days I never irrigate the bladder. My urolopst sanctioned what1 have been doing to keep the catheter clean. . . .If anyone has PU try M answer have been an avid camper for many years. Thru the them. . . . I have had multiple sclerosis for 30 yean." 1974 Khabiiihiliori Gazein and a camping magazine I Rm. HomoL, llanis, 5091 Clnyri'igeDriuc Apt. 215, St. located a club for handicapped campers, the Handi- Louis, Mi$sa,cn 63129. capped Travel Club, Inc. It is an utterly fantarticorga- nization. The friendship, good wlll, and assistance are 'lf anyone knows of used elecfric wheelchairs or elec- the greatest. It has brought new meaning to my life, hic hospital beds, I would appreciate their being man- esoruaiiv in the field of outdoar recreation and czlmo- neled my way. I m a paraplegic of long standing sit^ ling)." R. E. Pollersntt, 2309 Lnngford Aunrur. Modesto, Cnlifon?in 95350. Snyiior, Sr., PO 80x47. Gmm, Nlinoi$ 60135 'Triendship'r Door is a pen pal dub in which disabled persans can either -te letters or tape cassettes to one "I would iike to correspond with others who have ce- another. li you are interested, please write." Mnriaa rebral palsy, bath mm and women. I walk an Gabe, 2671 Emory Drive Ensf. Apl. L, West Pnllrl Bcorli, crutrlics, I am 22 years old. 1 work at NASA Johnson Florid" 33406. Soace Center in Houston. Mv interests are readine.". music of nu kinds, embiaidery, and anythL"g I can do to help the handicapped." Cun,!ir M. Moore, 308 Wrsl "I'm the president of the Florida Chapter of FAGA, Inc. (Freidreich? At- Gmup in Ametica, Inc) I Allerrdnle, Pnuldeno. Tpxas 77502. like to.~ocatemembers for my &rida chapter. '1 would like to inhoduce our organhatian, Handi- Someday (soon we believe) there will be a 'break- th.' Love, will cappedAid Program (HAP), which was famed In 1972 hope, and research conquer." K. C. to help disabled persons in the hobby of shorhvave Biyd. 17715 Gulf Boulmard. #712. Madeira R~clt,Fimidn listening (SWL). HAP provides the follaivlng free see 33708. vices for its disabled members: equipment loans, membership in a SWL club, a HAP pal to assist. and "My patient and friend Bruce Hopkins ('75 Gruel*. taped bulletins for blind membcn. Many shorhvave page 35) is now married to girl in picture and is living listeners progress into amateur radio and athers into at his own home aU the rime:' Philip Wnghhai, I8 citizens band 1 shall be glad to answer qurstions." C~ontsPlace, Rnimoia. Attdinrrd 5. Nmo Zmioiid. HousinglIndependent Living Housing and Home Services by Giizi Laurie Abountitulthanks toall theCnztte readersaround the Brnmma 1.-. -Swp,ipn F" ," initiated housing for the disabled. It has beeninitiated Hm,e is A God PI"=. A national perspective of com- and by individuals and voluntnry orga- munity residential facilities for developmentally dis- &ations by fighting far support from governments abled persons. By Gail OTonnor, PhD. 1976. S.95 and by donations from the general public. from Amencan Association of Mental Deficiency, 5201 Comectirut Avenae. NW, Washingtun, DC 20015. SUPPL~N~NTALRLTIP~NCES. The book. Housin~and tion; references to supplement ti;ose in the book. DC 20036. 511. ' Most af them became av>&ableafterthe book had been finalized. There also some pertinent references in the n!e Kousinx nptd Communih~Dmelqnrpnt Act of 1974: "Architect"ra1 Barriers" and "Independent Living" lnlpntt on Perrnns with Diwrbilrtim. The Consortium sections d "Potpourri" in this issue, rutureissues af Concerned With the Developmentally Disabled Task the Gmtllr %I1 continue to add material so that, in Force an Housing issued this report. The report covers effecl, they will function as a supplement to the book. HLlD'5 iailures to develop a program for and multiply disabled persons. The identified obstacles are Disnbiiitin ""d Hausi,lg Ncds. By Anders Gustav". caused by the lack of a national housing policy related 1975. Basic intarmtion on the speck1 needs in the to pe~n~who are disabled, bauung needs, appropri- homes of certdn categories of disability, SL,& as al- ateness of housing. long range finandng, long range lergy. cystic fibrosis, epilepsy, hemophilia, hpaired senlice support. and zoning. The report also discusses sight or hearing. exhemely short stature, eic. $3.50 sped prahlems encountered in implementing the from ICTA Information Centre. Fack. 5-161 25 Ca~nmunityDevelopment Program and the Section 8 subsidy pmgram. Copies of the report are available horn National Association for Retarded Citizens, United Cerehral Palsy Asnodations, and the Nationd Easter Seal Society ior Crippled Children and Adults. 27 Hnncsirrg for Diinbied Pernons: Annornted Bibiiogmphy. By Among the apartment projects withi" the commu- the Deparrment of Spedal Education and Rekbilitr- nily detailed in the book is that of the Glasr Mountain tion of liofstra U. 1975. Free hom United Cerebral Inn, in<. (GMI). This experiment evolved from one Palsy Assodations, Inr., 66 East 34th Street. New dream of r segregated fadlity to a group of York, New York 10016. individuals who live in aplirhnents and sharc at ten^ dantr. The group rn the originalapartments is now full and GMIis faced with theproblem of expandingat the Lr llid~yarde?ili.ii,ilig: NNI Gaol for Disabled Pernoas. By present Lacation or in small units elsewhere m the 35e ving R. Dickman. 1975. hnm Public Affairs Pam~ cammvnity. phlets, 381 Park Avenue South, New York, New York In the August. 1976 issue of GMl's publication. Feed- 10016. lrock lolinlai, the editor, Alice 8. Kendall, summarizer the members'dilemma, the value of their live years of experience. and the impartanre of learning how to live independently. ronment Project. Gerontolagicvl Sodely, OneDupant PosrrsnsrrEs os HUD's 202 Houa~c.Alice Kendall's Circle, Suite 520. Washington, DC 20036. $9. article, which is reprinted in Id, is important for all who we conridering any kind of housing. It is partim~ lady timely because of thc recent expansion of funding Lrmwc TO LIVE INDW-ENTLY. 'The examples of of 202 housing for the elderiy and disabled. This could individuals in the book reflect the gedual evolution result in too mvch sepegated housing for the disabled; kom segregation toward the goals of a normal frcedom it should result in eansitiona1 housing that woi,ld be a of choice of lifestyles within the community and . way of learning to live independently and to exercise aonnal L~ansitionwithin the limits of each individual's keedam of choice-including the choice to live in polential and personality. Some of them leameit the segregated housing.Nonprofit groups that are work- techniques and skills of independent living through ing with HUE on202 housing should w to prevent all tnal and error, many leaned lhiough service oiganiG the housing from becomirq a "cast in bmnze" one- rations of the disabled such as the Centa for indepen- time solution without a choice and to make 202 haus- dent ~i~i~g,and others learned through vanour ing prc~jectsfunction pnmanly as transitional centers binations of grmps of disabled individuals in split- for learning to live independently elsewhrre in the ments or houses. community n How Big is Too Big The GMI living experiment an Del Monte Drive has the young adult can swive this change of emiron- been alive and gowing for about five years. It abvi- ment much more readily than those who have been onsly provides a viable and va~uluab~~ for too long set in their ways and waited upon hand and those handicaooed oeaole who are able to live inde- foot. In the beginning, the grouping of apartments is helpful. This maker possible the sharing of attendants -. (to allow far time off), and the opportunity to share away, to be 1ep1acerl by newcomers. some have left experiences and learn kom one anolher. However, because they could not make the adjusrment from after an individual has made the initial rdjusinient, he home or hospital, or because they required more phys- should be able to leave the group, set out on his awn ical care thanan attendant couldpravidr. Others have initiative, and make his awn way without group sup- departed hecallse they felt that group living smed part. He should be ready and able to live in his own their individuality and inhibited their freedom. These aparrment, wherever hc may choose in the rommuni- have succeeded in finding their own apartments ty. It might be advisable to limit group aparrments to elsewhere in the community. clusters of three or four. These could serve as starting Experience shows us that independent living co"~ points or way-stations towud further independence, tnbubs substantially to the physical. emotional, and rather than the end-point. spinnlsl WPII-beingof those who are able to take the We say this because when a Large group lives in r leap and make the rdjustment. It is also evident that closr-knit unit, subtle changes may ocmr wiihin the 28 Rr"as,r,iri,oN Gnrnrir individual member. Over a period of he, a group cut-sway curbs wen a welcome change! order, grovp mind, puplifestyle may readiiy devel- Smce the fall of 1974. I have been living here in op. Interdependence tends to promoter false sense of Columbus at Creative Living. All residents recutitv.,. wherein the individual ma" be swallowed uo their own attendants, ~suallyuniversity studmt~, in thr group. He may, little by little, surrender his who provide morning and cvening care. There is al- ideas. his independence, for fear of losing his place in ways a stdf assistant on call at CL to provide assis- his secure social unit. Disrpements may lead to for- tance for residents when attendants arena* ~ththem. mation of diques and the establishment of a pecking Since I've been living here, 1have been as order. Finally, ruler and regulations must be formu- a social worker with the Cancer Rehabilitation Project lated to insure an "rderlv existence. Who then will at the O.S.U. medical complex. The project is research-oriented and its purpose is to provide coun- selingand rehab services for cancer patients andtheir ides. I'm employed part-time bemuse I am also r process, with all members of the group participating. EWere diabetic and have many health pmblems from nicse are the problem sihralions which may vnse this. My diabetes often tends to be mare limiting than when a group becomes too big. my polio disability because I m exh.emely susceptible we believe that group living should be a way-station to infections and sores thet don't heal very well. I al- en route to greater independence, not an end unto most lost my job last year brcruse of a presswe sore itself. We feel that such way-stationsshould bclited that kept me down far 6 weeks. This has been a much in sire, for the well-bcing of all concerned. We hope better year. I am very happy with my job. that the handicapped who adopt the independent life- My greatest problem is my financial needs versus style will move our individually into the community as bureaucmgi! My sr1aIy is comenrurate soan as they feel able We know that when this hap- Millh my medical expenses: abotit $400 a month far pens, the community will more readily accept the presdptions, doctor ha, attendants and other handicapped in its midst. n disability-related expenses. For almost 3 yean, I have gotten SSI (5137 monthly) which pays far part of my attendant costs and MeNcaid (health card issued by Bureaucratic Disincentives me state) that for moat of my presuiptions. doc- tor hius and supplies. My paycheck covers my rent, food. phone. and theremainder of my living and med~ by Bmnly Beer icd con*. Without my SSI and Medicaid, my medical expenses would be more thanmy income each month. Probably the most imponant turning point in my life Last fall, the state tank away my Medicaid card. occurred during the summer of 1974, when I was ar- Mter Mia state hearings in which I thoroughly ex^ cented as a resident at Creative Livine. an 18-unit plained my disabilities and exmrdinaq expenses, ae fddetisian the we,made on the basis of my gmss income, was that I could NOT have - Medicaid. am working to become: a competent social worker, an In May, 1976. my lawyer took the care to the outstanding artist and musidan and the author of Franklin Catmty Common Pleas Court. They upheld poems and a book. the dedrion of the state and charged me $Inn for court In 1949,I had polio at 12 and am paralyzed Milth the costs (they wanted $250, but my lawyer talked them exception of my hands, wrists and biceps. In 1955 1 out of iO. The judge refused to see mc in the court- grnduatedfrom public lhigh schooland in 1961 1got my room and said, "I know what she is going to say. so A.B. degree in psychology hom Wilmington College, a there's no need to waste tielisterung to her."He also Qtiaker liberal arts college in Wilmington, Ohio. said to my lawyer, "If she ran rfford a lawyer, I'm not It is interesting that the Ohio Bureau of Vocational concerned aboot her" The lawyer explained that he is Rehabilitation did notacceptmeasa client until1 wasa donating his services. junior in college because I was "too disabled." My last In August 1976, 1 received notice Cram Soda1 Secu~ two yea, they paid about $ZW-53W annually toward rity that my SSI payments were being rtopped. "The my tuition and nothing for room. board, attendants, Bureau of Vocational Rehabilitation has informed us bunks, equipment or any of the things that they that you were no longer receiving thek seMcer. provide assistance lor mdqy 1, was like educvtlng two Therefore all of your income ar of Avgvst 1976, must people for my parents and both sets of grandparents be cauntedag.dnst your supplemental secutity income who provided financial help for me and my payment. With an income of over $500 a month you roammate-attendanfs. were inc%@blefor supplemental security benefits. . . . In 1969. 1got my masters degree in social work from As long as your income is mare than the legal limit, the University of Mireoun. Accessible buildings and no checks ran be sent to YO".'' 1976iVo~unrrXIX 29 My lawyer is planning to cantinue to appeal these required to make the transfer home possible and, to- densionr and to have a reconsideration at the state gether ulth my sirt~lwho lived out of town, they level. This could nike years! 1 was very disappointed rented and put into place the necessary equipment and that the National Associatian of Law and the Handi- the apartment to make it as wheelchzur ac- capped could not help me. l'veonly been able to locate cessiblc as p~sable.However, neither the bathmom huo people in similar situations: a para, sued in the nor the Ktchen was usable for me and major onstmc- amount of SSI oavments she received while workinine. tion work had to be designed and completed. After my transfer home, the OT came evqday to teach me how to dress mysell and do all the other acti*ties of ddvtivw. She arranaed for an overhaad willbe taken itof her 551 check until her debt is paid. I'm apparently a "test case" and am willing to use my situation and skills to set a precedent, so that quads who aren't able to earn woo-$1000 a month can .-people . to make the changes in the bathroom live with independence and decency. PU need all the Meanwhile. the visiting Nurse came by in a couple help I can get from people in slrmiusituntians, organi- of weeks; she took my temperature and tried to get me zations, agennes and anyone else whn is able to to sien-. uo for Medicaid. When I said that I knew 1 was pm*de me with informution and suggertians. "at eligible for welfare and that my particvlar need The sad thing is that the State of Ohio would not war for physical and occupational therapy, lleerned to hesitate to soend 5600dlWO a month of Bxoavers' mv sorrow some three months later that the nurse lust " ". . . Address: Beverly Baer. Apt. 3, 445 West 8th Avenue. therapists' conhued services, as well as the expenses coimbus, 0x0 43201. n I knew I was facing with the reconstruction costs and the purchase of needed permanent equipment. cer- tainly none of what L required was available within a Home Health Care couple of weeks' time. How fragile ir the best of ideas when bureaucratir redtape gets involved in the pic^ by Helm Wallen turc! Therefore, 1 would like to reemphasize the great need for qualified occupational therapists in the Home Though disabled for other reasons, we* a long leg care picture for the period of herequired to solve the brace with pelvic bend. and using outches, I held a problems involved, with access to the bachp equip- responsible pasition as executive seiretary in one of ment the therapists need to accomplish the jab. the Largest coiparvtians lm New York City. At home in This used a great portion of my lifetime savings and the cve~ungof a workday-September 20, 1967, to be there are mast probably thousands of others like me predse-I had a bad full, brerlung my right shoulder who have a continuing cost problem and who are not and cutting the brachial plexus. After a period of has- poor enough for welfare but are not really covered pitaliration and considerable therapy under the Ex- under Medicare for much of their real needs because tended Blue Cross Plan camed by my company, the doctors wanted to transfer me to St. Barnabas. How- p;&ucti"e work in my company, I bpted to return to my sparrment where I live alone. Coordinating Attendant Care The Home care services of the hospital were called to take over, but to shorten a long story, Iparticularly ly Etbl Mane Gill would like tomention the most imnortant ohase which and we discussed some of the problems. she ihen mg on my Master's thesis. My degree will be in health *sited my apartment to see what was immediately adminiseation, with specialilation in Long-term care. 30 Rm*sIL.r*rloN G*rriii Im the last "ear 1 have dwelaoed and administered a The forum, which was followed by a dinner for about seventy persons, was attended by disabled indi- viduals, architects, government offidals from the De- parrment of Health, Education, and Welfare, the De- a source of attendants that was denying most disabled parhnent of Housing and Urban Development, and persons their independence. As a result, I have joined voluntary agencies providing services to the disabled. aconsultineservice. Swerm, and I have worked with As a result of the forum, a steering committee was formed of whichLady Ramsbotham is Hon. Chairper- son. Lady Ramsbotham is directly concerned with the . . problems of the disabled because her daughter is a vim to meet the need for a source of attendants. The quad as the result of an auto actident. The committee grant was accepted and in June. 1976. we began the is working withlocal groups m create a pilot project in service with one fuu-time person in the offlce to an- Washington. DC or in Morris County, New Jersey. swer the phone and disabled volunteea to interview Efforts to organize a Cheshire Hmne in New Jersey pmspcrtive assistants and to do Those have been frustrated for several years because the whose rahg smies add up to only "f& or "poor" plans hr a familylike home do not fit into any esab~ are screened out. At least hua names are given to the lishcd pattern for facilities providing care For infor- disabled individual for at-home interviews. The first mation, wntc to Cheshire Home, 1nc.. Red cross month we had 163 requests for jabs. did over 50 inter- Building, OneMadison Avenue, Madison, New Jersey views, and referred 13 to the prospective disabled em- 07940. DIOV~TS. ' The service saves individuals the cast of ads and the emotional drain of interviewing. ~tis "alu- Preparing Quads far Independent Living able to the disabled in long-term care fadfitier where it is dif6cult to manage the logistics of an ad and inter- vie+ng and to ov&come thh reluctance of m go into an institution to be inter%ewed. The existence of a pool of attendants removes the fear of being left I am =mechanical engineer, a U, 5quad. employed by stranded ifan aide should leave suddenly. the Rehabilitation Engjneering Center of Rancho Lor The referral office coo~dvlates the remirment, Amigos Hospital to work in a new program called interviewing, and referral of prospectivc to Project Thwshald. The purpose of this propm is to the disabled employer. At this point, the disabled em- provide a homelike experience to severely disabled pa- player takes over md makes all the.employment tie& prior to being disdarged, and ta allow them to agreements. hy alternatives of equipment and adaptive fvmiture Synergy is working with the Pacoima Memorial before purchasing. My work in the project includes Hospital to develop a Creative Coping Center. The same caunseting and the recommendation or design of creative coping approach is directed to warking with spedal equipment, ii unavailable on the marker. the individuals affected ta create ways of helping them Our program has a model home next to the Spinal to help themselves in all the varied problemr and as- Cord Injury Ward. I havemy office there, so equipped peca of disability. The appruach involves the patients thatl do all my work with na assistance at all. I have a themselves, both individually and in self-help groups, desk with m revolving table that I turn with my and ranges from biofeedback to patient education. mouthstick. This wav I have easv access to a be- Address: 8540 Marklein. Sepuivada. California 91343. n "parY' or "pick up" by myself, and a simple devlce with which I can handle any number of books placed standvlg on a single long shelf against the wau. All of Planned Cheshire Homes in the U.S. this equipment, which I desiped as part of the pro- gram, enables me to be 100% independent at work. The problem of housing for the disabled was spot- Aware of the bemendous need for a persandked lighted by a forum on May 10 organized by Lady engineering service to solve the independent living Ramsbatham at the Bntish Embassy. Entitled, 'me and working potentials of high level quads outside the Role of the Disabled in Sooety," the forum was hospital, my brother and I have jwt started a company chaired by William P. McCW. Group Captain called "Extensions for 1"dependence." He is now Leonard Cheshire, a World War 11 hero and founder of worbg on orders far rev~lvlng-tabledesks similar to the Cheshire Homes, desmibed his expetiences with mine and a bed that rocks, NrnS like a Shyker, and 150 residences for the disabled around the world. stands up. 19761Voiu~rXIX 31 weare notinterested inma!&gbig profits; we want WedpubL housing project, New Horizon Manor, to provide a necessary sewice, give the best of our- which was opened in July, 1972. selves, and put talented people to work. 1 would like After 20 years of frustration becanre of a lack of to see our business converted into a nonprofit corpo- transportation, the clvb set its sights on gathering 2 ration of disabled people working for the disabled. donpoints from coupan. found with Be* Cracker Address: Arhr Heyer, 12501 Old Fuver School praducts. Finally, after 18 months af concentrated ef- Road, Apartment 9. Downey, Califalif- 90242. n fort. the mano eathered enoueh-. couoons to rehe $8,539.86%om' fenera1 Mills. Donations furnished the balance and they bought a van with a dsed roof and a CB radio. The state voca- The Transportation Problem tion& office knded a hydraulic lift. Boobeping and scheduling are done by volunteer$ the divers are The Red Rivpr V&Y Handic.9~~Club has had extraor- knded bv manta and dhr funds. Scheduline must be Comprehensive Needs Study of Individuals With the Most Severe Handicaps Section 130 01 the Rehabilitation Act of 1973 directed workshops, and professional organizations and indi- the Seoelary of HEW to mnduct a Comprehensive +duals. Needs Study of the most severely disabled persons. The one dondollar mnearr to carry out the study DePmo~s.'The residual limitation resulting from a was wan bv the Urban Institute af Washineton.., . D.C. mn~enitaldefect. disease.. oriniurvis,. animnairment. A In Jme, 1975, the Urban Institute submitted the with an impairment, then, may or may not foiimving three documents toHEW: have a dirnbdihj, an inability to perform some key life ~nrtions.When the diaabibh/ interacts with the envi~ Fiuaf Rqon of the Comprrhmsbs Needs Shldy of ronm~ntto impose impediments to the individual's Indi~idualsmifh fhs Mmf Smme Handiwps. The gwls far fiavel or work, far example, the individual 8%-page report may be viewed at any one of has a hmldiwp that is. there are severely handicapping HEW'S 10 regional offices. It is being printed for environments as well as impairments. sale fhrough the Gwernment Prin~goffice. "An impairment can only be aUeviated or re- Summary Rqort of the Conrpwlrmsiue Needs Sudy mediated through dwices or medical csre. A disability o/ Indiuiduals with the Most same Handimp. This can be remediated through mining, or devices, or %-page report is not being reprinted. medical care. A handicapping condition, on the other .Exerutiw Suulrirnav "f the Comprehmsiw Neds hand, can be remediated through changes in the envi- Stud!, ofllrzdiuiduof~with theMost Smere Hor8diwps. ronment, or training of the individual, or both. This &page summary is available, without "D'irferent perso"% react diff The audv addresses a few kev, ouestions:, Who~ are~ 'hz impa8m~,>tic\rlf itxh a* rn~c?~~t(,~tl.dg?, t du.+ the illtlal ~'.$~.r$lyd>.ahlvJ ind~\,.Ju_tl,~lilsr the,, n'fldr,, !ftt~r.jr~,,r,c,n, IV~J*are ZI,~.,j,e.,.~s "?,I" llld hn,. nr. IhW built", I&,,.?' Ihr btuJ\ <.m~lhid~%111.m rh*. K,A tlrfinx~ion.,I thr rh, rud" .urur).c.l 6'' p,.*,l,,. whcl w,rr ll", .,~ r v JbJ!! 3 pa I lahs.l?n&.' rrl>tml for 1976iVOIOMB XIX 33 Paovlsro~or S~nvlC8s CONSUMERINVOWB~~. Rehabilitation must m&e greater use of the pwing number of mnsumerrun The number of rehabilitation farilitics should 0rga"klations and the growing awareness and advo- be increased and support added to existing fa&- cacy of many of the individuals to establish a more tics. effeeive program, especially in the area of services. .A subsidy program to both workshops and indi- viduals in a ~orkshapsetting should be con- INDSPENOBNTLWINC PROCRAM. The most aciddeci- sidered. sion area is in regard to development of an indepen- Devices for the disabled should be dweloped, dent living program. If the Congress and Admuustra- manufactured, and disseminated. Consumer in- tion feel that the self-cure, homemaking Dutmme is as volvement should be included. important as job placement then services would be ex- Disincentives should be removed sa that the se- panded to those with severe disabilities without voca- verely disabled could work vithout significant tional objectives. This service program rnuld be run by penaltiesin lost medical benefits, income rupple- a non-public agency, a cansumer-run self-help argani- ments, and other pmgrama. ration such an the Center for Independent Lieng in Berkeley. caliiumia, orby thevocationalrehabilitation agency. If anv initiative is to be mounted in new areas. the FMMIAL O~T~ONJ.Whatever cambination of sate, federal. or local financing is used, programs can be fundedfrom more than one sowce. Procedures should . . be dweloped by which therehabilitation agency could same lwel of care and supervision, there are some pay vendon for needed services thraugh a revolving who could be rehabilitated to their homes or mare fund. Vocational rehabilitation would then be reim- congenial community settings if they got some re- bursed from the programs which finance the services habilitation services. Movement to these settings could such as Medicaid. reduce wtlays in Medicaid and Medicare for thew in- dividuals and offset carts of rehabilitation services. Hsa~mCovsa*c8. The shldy suggests huther ks- tigation of the casts of Epparating health care coverage SWING UP. Man" disabled individuals need rer- from income maintenance, extension d health cover- age to all severely disabled persons regardless of em- ployment or income (but with reasonable mst-sharing provisions), and extended scope of services covered to delivered by vacational rehabltatian. ' include ongoing needs Lor equipment m-tenance The study estimates that only 2% of the 522 billion and replacement, ahendant cure. interpreters far the the government spends each year an severely disabled deaf, readers for the blind, etc. persons goes for rehabilitation. The rest is spent on As a minimal proposal the study suggested that Co"~es3eli,,,i"ate the rule requiring2 years of receipt of Disability Insurance Benefits before persons are el- ipble for Medicare coverage. nonetheless so far outship how we treat the nonvet- eran that the comoaisons me embarrassine when ('~NIM,IN,\#w\ <)> HIW I'H~X;YAM> I1 CUIIR~CIIIC~, o>.Iv v~p+cc<~odrd8nx1.m .,! Ill h' prop,ra!rn rhw tt >%.I1,,.,.!? h,"?,<>mah.~,",,".~,,~~r,.,,,,.<,,"~,l~d,ff~r- goal briented pro- and siphicant fkanda com- mitment is Thir commitment mustbe under- taken if the promise of providing comprehensive ser- eces is to be fulfilled." Self-Help Organizations We ~houldshare the thinxs or learn with othm so that read nor wite, he met with several others who had rneyne dmn't hnue to invent eopylhins rnm~time had similar experiences. At the suggestion of Dr. John .I t""~1d like 10 rarnsposd with others who houewta~is Derrick, they formed a dub to help others who had of tile mpirnto"~nnlrcscles. had strokes. -1 hope lo contart utliers will? ryrirrgmplia and form an EUls now devotes an enormous amount of energy orxaniiation. and heto organiring stroke clubs. All the club Theplmulel hooedrn.~~dfirn~mreqonding with othn officers and committee members must be smke M.5. polimb has prompted me to fonn n club. victims. The bee newsletter, Intmatinnrrl shake club Buliem!, includes pen pals, helpful hints, ~~~di~~lists, The excemts above are taken from leners in the and auestionr and answers. Friends ~mundthe World section of theRehobilirnbon In i973, the Galveston Stroke Uub became part of Garelk. They express the universal human need to the American Heart Asrodation. As the movement share mmmon ex~enences.For those who are se- toward io-e stroke clubs has soread around the verely disabled thi; shaMgmny also include thr spe- United States."Canada, Mexico, a& England. other "&zed techniques of managingdisability that makeit organizations, such as The Easter Seal Society and less handica~~inz. Salvation Army. rehabilitation renters. and hos~itals as well as to raise funds far rerearch inmyhe and exempiifies the main purpose ofihe clubs, which is to me ahow that they can avercome handicaps and go on to The following listing of specific disabuiQ or@& lead profitable lives. "A doctor can tell a patient he zations includes only those that are mated and run h, understands," says ELLis, "but the patient doesn't disabled individuals with similar disabilities. It does really believe him. We stroke vichs have been there. not include professional arganirations that are for the We know what it is like and we know how to help." disabled. Most of them were started by one disabled individual with a peat deal of deternunation and a AMERICANCOUNCIL 01 w BLWD, 818 18th Street, need to share. The story of the evolvement of the NW, Suite mo, Washington, DC 20006. ~unvardK. Stroke Clubs of America is typical of these self-help McDaniel, national representative. 0rgarGZations. The founder and president, Elk Williamson, s AMP- Sa~vlc.Assacuno~, 520 North Michigan, Monsanto Co. employee, suffered a atrake h 1964. Suite 1504. Chicago, ILLinois 60611. Following a depressing period when he could neither AL*Iomomc LATEUL Sa68011s SOC~WOP AMERICA, 11520 San VicenteBwlevard, Suite 206, Los Angeles, California 90049. H. Erne. Bishop, psident. (The chauman of the board, Robe* G. Di- ms, deMbed indetailhis experiencer with ALS in the 1973 issue of the Rehahilihltion Gmelle.) incorporated as a non-pmfit organization in November, 1975, by ALS- involved families, ALSSOA has a goal of raising 2% dondollars a year for research. It is estimated that there are behveen 10,000 and 20,000 living ALS pa- tienls. AUALS patients are @"en charter membership in ALSSOA whether or not they can afford the 525 membership contribution. +- A~uomornrcLA-~ San~osrsFormm~nolr. INC., - 1 2840 Adams Avenue, San Diego, Califorrua 92116. K. f F. Vanier, president. Thk orgariration, started in Dr. John D~.irz.. .rj.i ilir 1<1:1 ... ~...II I.I~ZZS~C#-L-l !ti,, ,11,1 ili May, 1973, hasnocannectlon withALSSO.4, though Gd~extmxwlri,Jr L,Z,,,!Z,P,# 8xt,m !)ac, S),OI,Pc-!,,!,. ,,: A~~~,,~~~~both are warkinp, to raise mon~to fund research. There are chapters in San Diego, Los Angele$, San advocate of the DD consumer movement. Edited by Frand~co,Hawaii, Tennessee, and Uhoii. Dmiel A. Poling TI, it includes sections relaring to ce- rebral palsy, epilepsy, and mental retardation. Pub- lished quarterly. it is available without charge. ",, " " Farnoa~rul's Gaour, Bolsover House, 516 erahred conh.acmres of the joints of the ams and legs. Clipstone Sheet, London W. 1.. England. Founded in The Assodation was incorporated in 1972 to share ex- 1964 bv Mr. and Mrs. Heard of Dawlish. Dwnn. who~ periences and to foster research into its causes. Viola p"hl8.l.d ,, ",*..l,l!+, ,Ir1.l. 4, .I r<.p.,,:. ,,n fund- Hamby, who is a talented artist with a mouth-held '48.8"': Inc ..&*" .,<,.<," m.w lhrs 1 I. AurmmPm~crc & Qu~oar~~a~rc Cornrm. 7.0. Box 2, South Hurrlville. New South Wales 2221, FE~BORL~M'EATUU G~omM AMERIU, LNC., P.O. Australis. Box 11116, Oakland, California 14611. Raymond S. McCarthy, president, Founded in 1970, the om- BIO--A=, E,412 Woodward Boulevard. tion has grown to more than 1WO members and sev- Pasadena, California 91107. Sue Owen, a paraplegic, eral dozen chapters. Working along with the National wmte of her experiences with biafeedbackin the 1974 Ataxia Foundation, the organization is cooperating bsue of the Rehnbditatio,i Ga~atir.Subsequently. she with researchers and raiaing hrnds ta increase FA re- has been in contact with many athers who are hying search. A newsletter reports individual and chapter biofeedback and various methods of co"h"lling activities, encourapng ca"e%ponde"ce between movement and pain. She has started a delightiully in- members araund the country. farnative newsletter, n,~Biln,hlcbee, for about 250 INT~RNATTON~ASSOCIATION OP LAX~ECTOMBBJ. 219 Eastand Sheet, New York, New York 1W17. The IAL is made up of several hundred "Lost Chord or of physicd propess. The costperissue of thequarterly 'New voice" clubs. is 50e. Lrrna P~~PLBOI Am=& INC., BOX126, Owatoma, Ba-E Born Socm OF Scona~o,63 Bryon Cres- hesota5m. Billy Barty, TV and movie personal- cent, Dundee. Scotland DD3 655. Mrs. Mqret ity. formed LPA in 1957. With a motto of '7hink Big," Grant, secretary. the aiganization is now a nationwide, voluntary orga- nization with a dozen districts, lwal chapters, and an C*NA~ANPmr~ncrc Assocmno~, 520 Sutherland annud nnaonal cmvmtion. Theannual duesare$7.50 Drive, Toronto, Ontario M4G 3V9, Canada. Member- per person, $10 per family, and $5 for teens or chil- $hip and subscription to its quarterly, The Calipn, are dren. The national newsletter, LPA NEWS. is pub- $2iyear. The CPA is concerned with every phase of lished 10 times a year. The Member's Handbook con- rehabfitation of the spinal cord injured, kom the in- tains ideas and suggestions on every phase of living, &I tTam through home adaptations, employment, 60m gadgets to clothes and employment. LPA has es- and lifelong adjustment. tablished a foundation lo encourage research and to assist agencies in the placement of Little People far C*N- P~mmA~amous, 48 Cedar Valley Lane, adoption. Huntington, New York 11743. LmFomno~ OP AMBRICA,INC, 11675 Holly COM~TO CO~AT H-NCTON'E DISXASP,250 Springs Drive, St. Louis, Missouri 63141. Roger K. west 57Sheet. New York, New York 1W19. After the Sturdevant, president. Syrternic lupus crythematosus death of her husband, Woody Guthrie, the famous (SLE) is variously Iabeleda collagen-vascular, immune folk singer, Marjorie the Camminee to reach camplu, or connective tissue disorder. Its prevalence other families with HD and to Dramote research into is estimated at two or three per 100,OW. Roger, who has been disabled by SLE for more than 10 years, founded a national organization of SLE's and their " families that now has 86 chapters in the United States, represent groups in the United States, Canada, and as well as in Canada and Rlerm lzico. Rs national Great Britain. newsletter explains medical facts in simple, nonmedi- cal terms. Members call on the newly disabled and Dw~wp~s~irnurDaas~m, poll in^ Mqgmine, 122 help each other by sharing knowledge and ~ast23rd Sheet, ~ewyak, ~ewYork 1W10, is the BaaWets and pamphlets are available without charge. 36 Rm*s~~,r*norrGnlarrs NATIONALASSOC~~ON OP m~ DB&F, 8l4 Thayer Av- formation, book reviews, and information on enue, Silver Spring, Maryland 20910. FrederiQ C. nationwide chapters. Schreibei, exemtive secretary Founded in 1880, the assadati.3n serves ar a clearing house for information P~wnaoV~R~NS 08 ha, 7315 Wisconsin relakg to deafness. A free list of publications is avail- Avenue. Suite 301-W, Washington, DC 2W14. The able. WAis dedicated to the remwai of environmental bar- riers to benefit wheelchairedveterans and civilians and to the assistance of veterans in obtaining benefits and legislation. Its excellent monthly journal, Pnraplexia New, is in its 30th year of publication. The subscdp- lion is $41~~or free to chapters and members. its efforts toward the promotion af new self-help pupsand research. POSSUMUSBRS ASSOC~TION, 25 Worlds End Lane. NATIONALDISABLBO LAW OFPI-5 ASIOC~~ON,Weston Tde, Aylesbury Buckinghamshire Iwc., 75 New Sireet, NuUey, New Jersey 07110. Peter HP2255A. England. The members and readers of its A. Fazza, president. Peter was injured in 1963 when a quarterly, PoswbiliSr. are qua&plegir and dependent stolen auto mashed into his patrol car. The accident upon the remote control device known as POSSUM. caused permanent loss of equilibrium and he was re- tired. since then he has founded and organized Rasm~~ur,62 Priory Road, Newbury, Berkshire, En- NDLOA for the estimated 5000 disabled law officers in gland. Margaret Haines, treasurer, will send hee the counby. The aim of the organization is to hrrther copies of the quarterly publication. Rcspo~raut.The thelr employment and to effect legislation hl provide editor and writers are auadri~ieecs. .- denendent . unon more and better benefits. The organization has helped respirators or other gadgets because of respiratory a number of individual members to get sewice- polio or other disabilities. connected pensions end to retain their jobs. Operating without dues, the orpanization offers an infarmatian SPIN*Bmm* Assocuno~or A~r~lca,104 Festone senice which includes sharing the names and addres- Avenue, New Castle, Delaware 19720. Edimrs of the ses of other disabled lawmen. orgmimtion's newsletter, The Pipeline; Sandra Helton, 9 Mountain Avenue, MonWlle. New Jersey 07c4.5. NATIONALFWBRATION OP m BLIND, 218 Randolph Hotel Building, Des Moines, Iowa 503W. SPIN~LI~s ASEO~TION, 24 Nutford Place, Lon- don WIH 6AN, England. The membership cost of If N~no~ar.P-~rcm FO~ATION,333 North includes the newsletter which is sent to its 12W mem- Midugan Avenue, chicago, minois ww1. DO" A. Oi- bers. son, PhD., president. Founded in 1948 by the Paralyzed Veterans of America, the NPF is concerned with both research for a areand the continuing care SmmCLTBS OF AMERICA,805 12th Street. Galveston, and htal environment of those disabled by cord Texas 77550. Ellis Williamson, preddent. injuries. mere are 63 chapters in 27states. Its idorma- tive bimonthly publication, Pamplrgw Life, h Mlyear or TOTALLYDISABLBD HELPER$ ASSOCIATLON. 217 HuUeh free to members. A comprehensive list of publications Street, No. 3, Long Beach, California 90805. Celeste relating to spinal cord injury is available. Thompson, president. In 1974, a poup of former Ran- cho Los Amigos Hospital poliomyelitis pads led by Om War, 4303Bradley Lane, Chevy Chase, Maryland Richard M. Carman formed 7DHA to solve their 2W15 Nancy L. Msuzy, president. Anon-profit group mnsportation and attendant problems by attacking concerned with the problems of disabled in general the problems together. They have achieved a Living and spenficaiiy with those whomay be single-handed. Maintenance Suplement from revenue-shanng hnds of Lor Angeles Countyof PlWlmonth for those of their gmup whoneed 7-day a weeklive-in care. In addition, they have acquired the use of a Rancho van whose , . .. scheduling they arrange. They are worEng for a genetic defect known as "%tittle bones." Chartered in $2Wlmonth supplement and a van of their own. One Geoqia in August 1970, its purpose is to fundresearch of the members rune an informal attendant referral and to exchange information between 01patients and senice. The group has organired an auxiliary, voiun- their families. Active membership dues are $IOlyear. teer Raject for In-Home Senices A newsletter Leas Its quarterly publication. Br~oktirroxgh,mntains sec- membersinformedaf thelatest rewl.tio"., changesh "O~S on pen pals, succesrf"1 careers, eqrupmepmtin- benefits, and fund-raising and lobbying activities. 1976lVo~umrXiX 31 Urmso Osrohn Assocuno~,kc.. 1111 Wdshire lws of a rman disabiliry and then evolved to Boulevard, Los Angeles, California W7.Since it was rights-seeking, there is a burgeoring number of local founded in 1962. the oreanicatian has mow" to in- oreanizations beine formed bv individual5 of all dig- " In addition to the above listing of ~~~ani-year newsletter and to be kept up to date on your zations, that were originally created t~~haretheprob- achievements. n The White House Conference The White House Confenfenre on Handicapped Indi- ing, 'Separate but equal is not equal.' viduals will be held May 23-29.147 at the Shenton- "One of thegreat benefis of thisconference willbe a ParkHotel in Washington, DC. The Conference will be whole nnv of disabled leaders who .."ill offidally attended by 672 delegates who were selected understand samethine" of the ~rocesrand how to at the State Conferences which were held in the fall of mange. some avenues to 1976. The delegate proportions are 50% disabled indi- about change are to vote, and work along viduals, 25% parents or guardians af disabled indi- with other di9abled ~ersonson behalf d ~otiticdcan- viduals. and 25% "ondisabled individualr. didates. The timing of the Conference is auspidour for the "clearly, in the area of civil rights, the handicapped "erowine " movement amone disabled individuals to or- should not be denied access to trdnln!z,- education, or gaNze themselves to a- effective enforcement of employment because of the handicap. civil rights. Planning and warkulg an the State Con- 'Visincentives to wark must be eliminated and em- ferences broidened partitipation in the movement by ployers either be pven incentives or be required to disabled as well as "ondisabled individuals and modify jobs to employ the handicapped and provide fomented a spirit of determination ta continue to wark upward mobility. together, not only to nwke the 1977 Conference pro- "In the area of housing- the handicao~ed.. want more duce tangible results, but to make the results lasting options. through legislatian, such as a Disabled Americans Act "Information dissemination, bath in krms of ben- s"ular to the Older Americans Act. eets avdable and in terms of educatine the eeneral The following excerpts hmthe speeches and writ- ings of the executive dicctor of the Conference, JackF. Smith, who is wheelchaired by polio, effectively ex- press this determination. 'me me~ouse confer- ,7here.s a wave of change taking place in this "0"". incewill have a profound effect on this nation's men- try and the disabled are the generating force behind teUy and physically handicapped Ameticanr. . . . The this wave. White House Conference *11I make recommendations "We, as individuals, must be willing to tear down for public poticy to the Congresr and the President the ."ommams that me not detivedne" and suooort.. those which wlll move the handicall~ed.. of this countrv into that are delivetinp. We need new mechanisms to eval- the mainstream of greater di~rnity,independence, and "ate existing programs and to provide new ldtiatives. h>llnafitination in rommunihi life. It's an awesame oooortwuW. The White House Con- ~~~ ~ ~ ". spokespenons and advocates. There is a pressing executed. This has never beendone before, and it sets need for involvement in all poliq-making efforts that this Wiute Hause Conference apart from others. impact on the disabled. . . . We're begimhg to "The Conference cannot possibly salve all problems understand that litigation te&ques are available, of the mentally and physically handiopped. We will and that tityation is a reasonable avenue that is ohen solve the major ones. . . . Cooperation-not campe- necessiliy. . . .medisabled af this country are say- tition-that's the key." n 38 Rsn~sr~rr~rro~G~zarrn American Coalition of Citizens with Disabilities In mystates the spirit of cooperation that was gen- HWsRehabilitation Services Admlnishation to mn- erated by the State Conferences resulted in the fom- duct a feasibility study and to develop a national ing of task forceaasa preliminary to joiningthe Ameri- model of crass-disability cooperation and communia- can Coalition of Cieens with Disabilities (ACW) as a tion. The RSA -ant has allowed ACCD to hire its first state ma8tion. full-time staff person, Dr. mnk Bowe, who will serve ACW. which was established in-~ 1974.-~ , was~ de-~~~ as project director and condue the feasibility study. sdedin detsll in the 1974 issue of the Gmelte (pages Dr. Bowe, who is deaf, is a ~~dusteof Gdaudet C01- 19-20). Slnce then ih membership has gmwn steadily lege and holds a PhD in clinical psychology from New and it has bemme inmasingly effective as a champion York University. He has becna rehabilitation9petiaiist of civil tixhts for the disabled. with the RSA and a haking at New York Among the national and regional organizations of Univenity. the disabled thal are active memb~rvare: American To join ACCD. request an application hom Ter- rence O'Rourke, Chairman, Membership Camminee, American Cadition af Citizens with Disabilities, In=, . " Room 817, 1346 Connecticut Avenue, NW, Washing- of America. Teletypepewnters ai the ~edFLotidaCoali- ton, DC 20036. Phone: (202) 785-4265. AMud mem- tion of Handicapped Organirationr, Masrachusens bership dues are as follows: organizations o/ the dis- coundl of orgallllatians of the Handicapped, and abled: $100 national; $W state ~rganiratiansor co- New YorWs Congress af People with Disabilities. alitions; 525 laral. Organizationsfar the disabled: $100 Among the assotiate member$ are the Nationd Asso- assotiate. Individual membership, disabled or nondis- "ation for Retarded Citizens and the National Re- abled, 55. habilitation Asrodation. Member organizations reniin complete autonomy. ACCD hctims as a catalyst for unity in purs-g ACCD Philosophy saiutions to the problems that mnfront all members of the nation's disabled population. With one ''taken" by Roger D. Petersen exception-the Garnte's editor-all of the officersand board members are disabled. The 1976 officers and members are as follows: Officers. President, Eunice Fiotito, Director, Mayal's , , ~ Office for the Handicapped. First Vice-President, Zene rcadd wish lo share lhpir lhouglxfr with ACCD, Charles C. Estes, National Association of the Deaf. send thm? toRo8ero11629 Columbvl Road, NW. Washi~~~. Secondvice-President, Dr. Frederick Fay, Director of tan, DC >No9 Since he is blind, it wai,ld be helpfiflrl $ Wls Research, Tufts-New England Medical center. seae- ronimmffiwere on urm~bm in braille. tarv. ludv Heumann. Associate Director. Center for Nstioional~ssodationof the Deaf. Roger Petersen: ser: andmvironkental bakers. vices for the Handicapped. Reese Robrahn, American As we proceed in this manner, it is hemming appar- Council of the Blind. Phyllis Rubedeld, Hunter Col ent thatthereisa generslphilmophyundedylngthese leg*. Richard Santas, Former Exeative Director, Cen- various positions and that making this philosophy ter for Independent Living. David Wllliamsan, Staff expti'dt would be useful in the dwelopment of future Assism, Programs for the Elderly and Handicapped, positions. Thus this statement is an attempt to enun- m. date &is underlying philosophy of the Ametican Co- ACW has been awarded a W,OW grant from alition of Citizens with Disabilities. 1976!Volumn XIX 39 D~ONor D~sasr~ln. An important first step in one hand, we must operate an sotiety to remove bar- this ""deztaking is to define the population which riers, physical and social. on the other hand, we must ACCD represents and thus to which ow philosophy pmvide the disabled penon with the means of com- refem. This defiuition should indude the oeoole to ~ensatinefor the hitations imoased bv the disabilit" bnd for &e banks which can;lot be removed I" tCe fareseeable future. It should be noted that there is in- -. evltablv some arbitrariness as to where the line is as ethnic minorities and womm. dram between badiier removal and A disability is a physialagically or psychologically and the balance behueen the huo will vary with time dffnibable characteristic which impairs or is generally and cirmstances. thought to impslr a person's general functioning, and which thereby places that person in a sotially defined BARR~Rmrovm. As noted above, our barriers are negatively valued minority group. The hvo aspects of sodand physical. We must chip away at the sanal disability, the impairment and the sotial sti'gma, vary barrier through antidisaimination lepjslatian, public in their relativeimportanceindifferent disabilities; but awareness ca&paignr, litigation, andh the the" are both always mesent. Thus, as wube detailed legal, political. and soda1 methods used by ather mjnorities. The goal is that there should be no law, regulation, policy, or individual whim to keep a per ran from doing anything which helahe is atherniae stigmata qualified to do because helshe has a disability. some of the same methods as well as a good deal of THRDISABLED AS A MINORIWGROW in many ways, research and im~lement?itio" are necesnw to remove disabled people occupy a place in society which is equivalent m that of racial and ethnic minority groups and women. (Although they are not numerically a minority, women are to be included in the term architectural barriers for with motor limitations "minority group" as used in this paper.) we (people but a150 that all information required for full partitipa- with disabilities) are looked upon by satiety as a tion must be available in forms acrrssible to more than homogeneous group, all having the same needs and one sensory modality. Some aspects a1 this broadly abilities. We are segregated intoghetti in terms of edu- defined accessibility are not as yet technically possible, cation, housing, recreation, employment, and trans- but the goal should nevertheless be kept in mind. portation. We are faced by disuimination and other indignities every time we venture into the world of the com~*now.The gigantic conrte11ation of services nan-disabled. and handal benefits for the disabled are pm"ided by There are, however, ways in which we are unique way ofcampensating himiherfor thehitationswhich among minority groups. By definition, we have im- the disah'ility entadr and for the rndallv disadvantazed psirments of hrnctlon for which society must make Stat"$ which he1she occupies. Disabled pe"p1e "an be accomadatians; thus our barriers are physical as well trakled to overcome their limitatians to one degree or as sotialandemnomic. Disabilitiesareusually congen- another throueh". soedal rehabilitation training." De- ital or adventitious rather than hereditary; thus one vices can be provided which improve mobility, sen- can become disabled whereas one cannot became sory amity. sbility to communicate, etc. Wherever blak, and a disabled infant ir not born into a disabled mining and devices do not suffice, personal servlees subculhlre. can be purchased; eg., to lead in*print to blind people, to interpret to deaf people, and to assist se- Tm NA- OP Eauam. It is very IiLely that dl of us verely motor-impaired disabled people with their in ACCD would agree that we are shiving for equality physical needs. fm oe"n1e with disabilities. It is oerhaor well here to our main concern about these modes of rampensa- tian i5 their adequacy and appr0p"nteness. The chief problem related to adequacy is to develop a means fm determining need far such services which takes into acmunt the individual differences among disabled people and at the same time avoids the abuses of the means test used in welfare. The anormriateness of equality. Viewed in these +&is, the achievemeAt of ticul&defidt, likepaFentkotorattenhant ,re, andnot equality will require a huo-pronged approach. On the just general charity, like free concert tickets, n 40 Rru*n,L,r*r,o~ GAcrrrX Equipment The Gnaitr doer not accept any Toby Churrha Limited has crested Co.. M Bucknam Road. Falmnuth, adve.tii"g. The gadgc*; snd dpviier the '%ightwtiler- ior people unable Maine 04105. presented here wexe gleaned by ihe to speak. When the typewriter-like editors fro," renders' 1ette.r md keyboard is punched. up tu 32 omer sources. 'They are presented a3 clurrrars ,nay be made to rppwr on idea3 for the leaders to purrue on 'luminous display. The phrases thek owby rending for brochrner move like a ncws~rtnprmoss ihe and latest prices. display. There is a buzzer to ribact ,,.4v,c,.< A?>.,, ,< ., ,>?I r,,, ,,A ait*nnon and a ivnv to conecr errors. I.,, 1884 C.!,?., 9, v,>,,, *", ! .7,. The Gcrzlir dmnot ~perinrziliy ,111 .I,,,, 'ti,, 4. - I. \tun .b I.,, nor ~"dorseany product accept I I.. .< . .,~,".,,,,. .,.:8" .,,#\ rer"ponsibil>?ylor amy appioxmnwte use in cmada. prim listed. me unit is 17~~''wde. 5v." high, C"l,illlillili"tiiil Aids 10, ,IZP Br,,ill and 11"deep and weighs 25 pounds. U""l"*d Adiili. By Lilaun Cohen. The Th" system allows ~evrrely CTXTWJNICATIONS booklet is intended rr a euide lor disabled hdlvidurlr to use a call Prenh Rumiih campany has buzzer. wuh a ""0-way inreram. developed lhree new aids for the unlork ,he front door, receive or "on-"oral-those who cannot rnk. make telephone calla. switch the -re, or urea iypew,iio: Mh.ih.ih.i'l8t radtdio on md off, aperate a TV sel m Srieclor ran be used by children who a inae recorder. and turn iiehts on or /,,I ,,,, I..,"" 1.1 <,7.,1,.. p 'L'.. A".' ' !""+ ' .' ],,,.. ., ,,, ..<, ,. > ,, :. ,, .,re. REMOTE CONTROLS .I, .. )11,, 1. i. ,,,I ,..I .i SurildivO~Mnfk.Herbext 5. Merill, , ,, , 8, .'q, A'.'. :.,me*,. ,A > 8," m elertr"nirr design engmeei. who automatic printing ona emp of has been n respiratory polio quad pxerrum-sensitive paper. Address: since 1953, has spent years perfecting RD 2. Bilx 191, Shreve. OhioM676. an envlronmental C""b"1 system ior qusdtiple*rs. me Mdcal Engineering Sedan 01 The system can be operated ham a the Nafional Rerearch Countil of ringle rmuo-switch aibched to a Canada has worked with cerebral piece of Velcro pinned to sheets or palsy children k" develop dolhmg by breath. by voice, or by a ronlmunirndon aids. They include tiny portabie radio trnnrrmner unit. Co,nhil>tdi (a scanning grid and I, ran he operated by .severely typewriter) and Orrili (a light- disabled oerran hom a hornitrl bed. tpeiwiled as well as bk~ feedback dwices. "l.c,Torui gamer. and 1 ore" hlmer for oorte, books lk. h,,.,, ~\9,*,,,',,.,,<,. :38, ,,...... '.I",,.: I, , . I.",",, person's particular ll~~d(For deb* I., ,,.I in: I.,.< I,: .. ,r., ,a_ ,1111 of POSSUM. rcr psger 54-55 of the control modules. Through its I971 Giartle.1 rnodvlar bilildjng bioh dm@ ii urn ~ ~ .,,1y be changed snd expanded to iirinollics Cmlpr. The P~entke rommuniraBon .ids and 20 rpplisnrer as needs evulue. lr ran Romich cumpany has continued to environmental cnnhnir is rrailnble operate N, radio. aiarm, qtereo, develop eleciranlc ronnol devices in from Gregg C. Yandrrhriden. Tllr tpewdier. doors, Ughls. rape addition ko its Automatic DiaUng TmicRoalriii "lad Dmrloymtnl Cniler recorder, iameia. soeaker. tele~hone. Telephones. The Environmrnhl I", the SNer the finger3 so that quads can w"b. The device is tngge.4 by twitching ,he shoulderr to open or close a valve, The appliance. tailored fur each individ~md,iveiehs - obvvt 250 pamr (abooi 8 oz.) and cork3 about $A170 Further detalis availabl~hom Ausbailsn informalion Se-re. PO - .. BOX 12, crnbena~.c.~.2m. praiert as consulbni with Chrysl~r Canada Ltd. it involved the improve. we weie d.lmg at thattime and were very reacmr about itily"g out late because we were akdd to push our luck. So, Max bought a ROHO balloon rushin. He started si,rmg on it for 15 minutes. 30 minutes, 45. eb. and built his lime up to many hours. The rushhn li mmposed of 72 balloons affixed to a flat bare. We tied down one balloon under each ischial and lnflasd the rushlo" so that the ischials were suspended YA inch from the base of the "Ilhi"". (According 10 mrhuctions, tyhg down me ballonns is not necei.arv but con be done ta aclucue zero pressure.) He development of an ilol~mrtic by reverie activrllo~lof tl~eswitch healed in bur monlhs! Four months wheelchnu loadpi which ii adaptable 'fie passenger seat 13 driven of ,etlmg up at 8 AM and wmhg $0 moat iuo-door auto models, both ..amrrd by its eiemir sea, 8-10 hours= day. comDarf and iilr~eisire. m~rhrnism.~ ~~ TO ""loud. the it reemr to ray ,hats The loader consists at a motor proced,"e rs reversed "Ishi"" has changed one's ~-8tyle. dnvell hoist mounted behind ,he Chryrlr~Canada LM.has no plans but ~ one has Max eat the balloon tight hmt piirscngei seat, a lever to patent or produce the loader. TL hype switch which can be muvntrd offer. the design and ieihniral advice anyhex and m extension hook. to anyone who wishes to pioduce it ma hist 0~~~1~~h! the or develop it further. pasrengei reat, then folds me chair, rwlng out the boom. and secures Additional details avalioble ham tile chair Lo khc hoist cab]? by s hook. Rllolzdn Gniycr, 11230-11307-99 Alter h;msf"mng to the dtiver'r seat. A"D~,,,D,Ldlli~"t~ll, Alb~rs, C"li~d" the use7 upeialps the swihh that TSK OH2 or Stan MrDowall, P. Eng.. raker the rhav 'The chsv ir pivoted Manager, Pmdurt QuaUty into ,he car behind the psssenger Engbeerhg. Chzyrler Canada Ltd., sent w?th the extension honk md Chrysler Center, Whdror. Ontiuio, then lowered to the floor 01 the mr Canada N9A 4H6. ROHO Cushion by Colicen Stnrkloff this one. but warned him that My husbald. Max. has been a C4d regadless of what he sat on he Ufe style would be rsiouely quad for 17 years as il rerdt of an would s611 h~eto lean from side a hampered without a balloon cushron. sutomobde acudent. when he first side every 15 liunmer to relieve hwdaliaut the ROHO cushion he pressure because he had m was IiGng in a nursing home and "padding" to sit on. hadheen m bed with s dembihis shower on it. Several of our inends now ure the another nlshioli on the market that r crpeoauy m ,he summer months quad hid told him aboul. (ROHO. whn his rhperrplred a little, PO. Box 658. Bellevlile, illhoii making breakdowns more 62222.1 He snld thal rlnce Max had threatenmg. No mabier what he did med everything else he might as well the skn awi he irchl.1 hibcmbitler and it did not even come Cl"SP to mema11 1976 ~~~b~~bi~. hlrning over. . . . 1 am a C5-6 quad Fijirh Building, 366 Wnrouin. 5,. Pnui, , , and I've ridden it evervwhere a Mil81rrsoln 55101. ha3 r number of becsurc of skin problemr. we fel that our sucCei3 13 maof that there is a means of ellminaring the pressure mreproblem rs long as r person taker care of himself and the rushion rnd md"ws the proper air pressuie inside the~shion.If "0" do that you can't miri. Good I"&!!!! Caflm Xcily Smrkfof, PPI, 4446 MiPf~~rson. Slmgrt Moim Cilni? Co. This company 51. Louis, Mirsarri 63108. which has been malung motodzed Go-Lift 'We am very pleased with 7948. comes parks our new Go-Lift as It ir rhlldy. Gas-Porufrd Wfrcefchmir. "Four ye-3 for all itr chaixr. Poin>erlyin Kansas compact, wd light. Also, it is ago I had my chrir bluit for only City. hlrrroun. it has muved ,<>120 8alustab~emany vehicle don*. $350. A local mehismith bu%ltit from Nmth Gunter, Siloam Spnngs, Brochurer iron, Holerk Engineering a rough sketch mdhigh srhaol boys Arkanrap 72761 Co., 9255 Ornrey Avenue. Domcy. did the Bnirhlng. 1 used all new California 90240.'' Sr. Ra~erfeyMerit, materials but it could be made with M~,x;.A~~~o.me addition tr Wninloo mid Fnirfiefd Roads. Dmn. the AMlGO hefeaNres Pe,,msyf""r,i" 19333. oar& saluared from ,iunk 'vsrds. wornout lawn mowers. snd svrplu~ mterchwee~blemarts so it can fit ram~rnl~n.My chair is very imhle. 1 0;s N~urnhrnpi TOWCI,n,,,r Piio,irs. hadB inend ride it up anddown Selfhdhering device widens the sideways onn 3P slope on a bank READERS' IDEAS cm,tcaTV. "ladied short padded. from Physical Aids Mfg. Co.. 4848 elssnclred golf rocks make piacticd iiuitefl. Ronron Cowt. Ssn Diemo. covers for cmtcher." Roo Morris. 1074 Shirgrj iiisixiuoy. Saalfiprl Corxnxliot 44 Rrrl*s.rIr*rIow GIlrrrr Mdiiiiy Ezwl~,"H",r /or "ri"ing,or Serdy Didled P,,?sdls, "This is mlso a hit. we equip ,he r-r or wns wrth rurmm deinres that our rehab. on the Msndi-Stirk are welcome. en*neer makc- for the i"di"id"il1. write b ArNirlr Heyii, Ne,rra,,,i,in 1976iVo~u~~XIX 15 Potpourri by Gini Laurie Justice William 0.Dougl8.i: ox,, ronrh, lhnr "8, "hiigntiull to pmidr develop r model ARrmrtiu~Actinn ''Onre you get yollr hotel ,I,* hn,,djjw<,i u,l,i, ,be iiisizs ti, mijoy plan 61businesspr end to trah nhvsicallv,, . and emotiannllv adiurted. mpi, bnrir d"il .,*1,,s: ilis .i*l,l i" "air. ~ehnbilitrtinnrgenrles. ,a pl'"1cgir.. ,hey are easier to ,c ,c!!i,, to gnin,fi,1 "npio!,,,,nif, ,I,< work MnL Bm most, md alm ,,hi ,,hi ," q,.1 ~di,c",la,ml o"psm F#<"df"iinp G, ~arrinfie ~mip.: nlr reio A Environmental brmcn cons~liant. ~urnmsryofrelevant laws in New Chew1 A. Dmir. a ~arapleaic.is York SbC. Fmr fmm Eorbm nlmpy. ongna~~y ~h~ Paraly~edVeterans Assorlation, 432 Biifrnji T~I~,"~,bares the Park Avenue South. New Yark. New development of this fam af therapy Y0.X i"Ol6. over khc past 30 years. The 488~page book inriuder information on existing Acresribilily signs. "Our NPP promamr. rr we,, as ,he chapter now rrllr a onlplele heof both Lhe signs and the dccrlr of the prartira~expenenre in intemnt,annl symbol "i wheelchair planning and brmer-free design "I nrcesribilih.." Free brochure from am sspeos11y interested m providing ZOO Madiron Avenue. New Ynrk. Ellen D. Ddy. Greater Milwankee Osririance k" federal cuntrartors and New York lWl6 Price: 515. A?,, Chapter, Nnlional I'nraple@ educational miiltuBoni in their Foundation. 3175 North Orklmd development of nlClrmalive action *&endan* Avenue. Milwnokee. Wisconsin progmma. with rpecinl attention m Th" Federal Minimum Wage became 53211. o1ferlng co~l+elfefprri"e"lean3 of applicable Lo household workers in eiiminoting en\,~i"nmcntrl barnerr. 1974. As of January 1, 1977, Barrier Free Envhonmentr. inc. r Address: 80 West Dedhnm Street. household warkers are entitled ma derip firm headed by a paraplegic. Aprrrmeni 1217, Bust"", minimum wage of 52.30 per hour. Ronald L. Mare, AIA, rpeciaher in Mrsarrhureit* 021lR. The National Committee of design for peopie With disabililier Hauschold Employment (NCHE) and offerr L~rhnirillssrirlance. indllder ,he following in its c<,de of .. . ,,,< ..,\ , , ..,.:, I#,.,.,.",! standard3 for household workers: ,". .'..,.,., rn1,.".3'. .In ti .PI Sick leave: Employper should I,,,., ..a ljl I,.l\Vl.. .,I re 17 leave a year for earh dsy per week me Gray Panther.. an activist group cats md Dogs worked. a17000 old and young shiving to Omxn Mire. Ever" Chnrlmar the varations: Full-time worknS break the barriers of acirm. The cats 01 ,he Gmdb receiver present of irreirrtable ra,nip rruce hom Dr. Donald W. Hey, a wheelchaired vetennnrinn. our cats recommend (he catnip enlhunastlcally! 4 farn . . from RR3, Box 450. Websler. longer service there should be an Massarhusetts 01570. innease in paid VaCatian Lim~ Hand!-Dog3 A" obedience class for the dogs of disabled and elderly Blind permnr ierches urehil skills such us , , A monthly braille information service pic!&g up dropped obicctr. barking rereii,e the ~q~i~alentof SIX legal for blind prycholog~sliand their on cammand. and ietciunp, a holidays vilh pay s year. A day employers is he* t" blmd persons in newspaper. Natalie Carlton, Hsndi- worker should rccciue st lenrl one the UK, USA. and Canada. The pilot Dogs. 5332 Enrt Rosewood. Tucson, lepi hobday a year. plan of bra& abslracir is offered in Arizona 85711 cooperati"" with the American i2sychratnc A7rocratron and Wiwirk Heanng~CarDog3 using hc E<,*lbh "Pm~mm,"e/or Disubld. Reresrh Unit for the Blind. techniques for naining seeing~eye I-INK. Ule fisk conrlnuour university of Warwick. c0ven"y do@. a non-pram poap is naining nalion*lde reties fix di~bled CV4. England. ht.ating-car dog to bark in response people. deals with ail dirsbled people 0 a tine"?, telephone, s doorbell, an physical and mental, dd md 0°C" timer. n nying baby, or young. deaf and blind. Aimed at whatever a deaf individlial wantr. iaisingrwrrcners. it is dl",d~d ,"lo Douglas E. Wachs. Public Relations two ieclionr-an information sertiun Oeparhment. 3M Company. P.0 Box dealing wiB cdr. mrome, and 33m. SL Paul. Mmllerota 15131. services and a di5C".*i"" r*ctian I,ilqmlio,z o/Hnadirapp?d Chridrm i,i 5,m6,q.B~ lamer ~~~i~~.*bout $6.50 hom U.S. The Spasm Sonet~'s Frcn brde calendarr. cassettes of Baokrhap. 12 Park Crescent. London Catholic periodicals, and taped bmkr WINKQ, England. ere avrllrble to any pe1ron who is ao&i"g blind 01 partially sighted in US. and Cansdr through thc Xavier Society Coatmz,airc Clutlllllg end Clils#,rrs.An for the Blind in New York Write rthartivr. and useful bookie, filled Sight Catholic Gnldcn Age. Scrnnton wilh idear far using z Device b enabie blind p.rionr to use electronic ca1culatarr and ofher of Amerlcn nnd the ~aiion.1 businprs mmchiner. Brother Gabrirl Paraplepa Foundntion, Lhc plopam Kane of Manhaltan College, is heaid on Wednesdays at 3:30PM hlrnhrttrn College Psriiury. clorn;~~~",In oressi,q fir nnfda. A over WNYE~PM,NY. 91.5. The Riveidale. Bmnx. New York 10471, revised edition 01 one 01 ,he p~~~~~ is srili~iib~eto stations has devired "a tactile numeric infomntivc series of booklets on iequert. It is being canfed by display devici'md r cnmprnian published hy Equipment for the WNDU in South Bend. Indlnnn, nnd "nmslamr." The blind person can Disabled, 2 Foredown Drive, WLRN-FM in Miami, Florida Bob thus rcnie a rpcclfic dibt. The fhal I%)rirladu. Suxsrx. BN4 2BB. Morr. K Carnage Lmc. Roslyn iesu1, is s seer of didtb With a En~lmdPnre: f1.50, plus portage. Hcighte. Ncw Yurk 11177. (33). 48 Rrnns,~ir*rrouGalrrrr Deal . . The September 1976 issue of Lnboxniory. George Washington color; 7705 mindes. The film, Pe,fimi~nrp, hepubllcntian of The Unive~silyMedical Center. 200 Eye produced for the Transportation Presidenrs Committee on Shret NW. 420, Washington, DC Development Agency. underher the 2W37. problems tared by the disabled because of hanrpmkation rystcms. 8e bifomrrd oli Filrllin~I, I*. Hieis on inilc"esslMeb"%ldingr. and public o0portu"ti~s, warn ads. ap~llcitions attihides Avaflnbie horn The N#tio,m; and hteMews. 75P *om New F8lm Band, Box 61W. Monnpnl, Readerr I'xesr. Box 131, Syacuse, Qiiebrr H3C 385. Larlada. MCM (Manm1 Comuniiarions Neiv York 13210. Mdde). weighs only 3 lbs, and is completely poltable. Marmation hum: Micon Indushirr, 252 Oak , " Sheet Orklsnd, California 94607. diiabilities. Write: Visual Aids Librani of the Aerirultural Extension sennie. univer&, ot Mimesolzl. St. Paul, Minnesota 55108. Wnlo in<.A film on srvlmrmng for the dimbled orearnted b" the the well:knnwn experk on hndicapped persani. Wluam P. McC~UII,a3 exnrvtive director. Bill war executive re-taiy of ,he FreEidC"t'S Cnmmillee on Employment of Ule Hmdicrpp*d hom 1947 ko 1973. me ro~chabmen of Ulc Conntil am lohn R. Opel. ~dmiAs~;~rn,cefir ~rqmrns srminp brorhm of 14 acccqablr. colleges and president al IBM. and George mc Hu,,dfmpp &9 A Surwaj of the Snody Dirnbld ill Everside Owe. Apt 9G. New York, raw: Cilmil nnd Col#laelorRrcqtLmi NwYmk 1W27. ofvoraihinl D~terrmrlsand mhnhiiitntior#Neb. May-lone 1975. Independent Living This sbdv, of 650 disabled indivldualr Us. Depnnment of A@mlture. For was supported by an Innovation ind information on p~ogramsdesigned Lo Expamion Giant horn HEW. hcip learn dom*stii skills rnd it"" Avaiiable hom Easter Seal Satiety for independently. cantact: (1) county Cnpplcd Cluldren & Adults of Iowa. ExtenPhn Agent; (2) Hame experiences; we'll pass them on to I"<. F.O. BOX6002. Der Maines, Economics. State Land-Gmnt other. in ,he next issue. we hope to Iowa 50333 Uniucrrity; (3) Extension Swlnce see many "Free Matier fur ihc Bhd Liaison-Handicrppcd, USVA, rnd Handicapped stamped on The annual Sickroom SeMce Wasiungton. VC 20250. envelopes instead of postage xminivr in October in Milwaukee Ljvifa nd$ A Giiideior Young Propie stamps.) athart about 700 medird HO~~~XC~~.nirir pnrmts. nlpir professionals from acrorr the itlint ExCerpts &om the artirie, ,,no*a, co,,nq. The workshnps rnd exh*i,~ Tmio The National Center for Disease Control wsms ,hill a ma3siu. outbreak of pallo could ocru unless about 5 millinn children are 1o.ming a worldwid" n~hvnrkt" vacchaled. Both middle class and meirsuc and to Aid6 (0 tee Haadiinpped. Booklet on ghetto rhlidren e among thore not infomation. write: R. E. Knaoo. homemalung and grooming. 3% immunved. from Extension Fublirstions. 318 50 Rr"*s,r,raT,oM CAZETT~ Rich Hall, North Carolina State Home-tonome Fxchmgee. MIS. Kay Univerriv at llaleigh. North Carohn to readers we think ma, Dunnlfe, a member of "WE. is 27607. organvations of the disabled should building a rcgirtei of families who notify their local CEA of their will host a young djsabled "isitor. v{nv af~ifr.A hoi,kieb wntren by a avriiabiliv to rrsi* "the, disabled Details: Kay Uunralk, New Forest talented yuung writer. Henry with problems. Continental Youth Cenve. Corner Henscheid. who is whelchaved by Watch hr Call for Acthon ad by cottage, Hmgeriley. Ringwood. CF. 25e from Erster seal Society for one or yoilistationr. 0,hemise. call Hampshire. England. C~ippledChildren and Adults, 2021 them all end see which one hrr the wert Ogden Avenue. clucrgo, service. suprmnm. Bole%- infom.tivo de la UIinws 60612. Arocindm de Lisiildas dn Jalisco, A.C., Escorra No. 442, S. 1. The bear brrerin in seU-helo booLiefr Nnlhnal Hdlh S!ysirns ill E@hl Guadulajria, Jahco. Mexico. Coalihi born N.11.T.. The Amerind. 15Lh Road, Khsr, Bombay 4m 052. India Dr. John Kmowles. prcrident of the ~rimbliit~tior~fnda A boouet listing Congrer~.In English; 420 pager. Rockefeller Foundation, says . . . ". the projects of 60 agendnr concerned Pirp"blic.tion piice. $15. Order the nexl major advance in the henlrh wlth nlhrbdikahon. United Nations hom: Israel Soclcty for Rehsbilitiltion of ,he Amen'm people WIII result Senelariat. United Nations, NPW of the Disabled, 10 Ibn Gvirol Smet, ouly from that which the individual York, New York 30917. Td AVi", Israel. is wining to do for himseif." Pmreedinp of lllr Ei~roymnC~~fm~~rn Lqal fights Information Sauiees mxaate8rnnmx smrrd!, nisa!pd A Handbook on the Lqmf Rights of offers Call for Action (CPA) ;"lo a,e Comma,iiiy. which met in Hn,idim""ed P~"1wuic. This excellent runfidential telephone assistance m .. , Srptembpi 1974 in Portugal, ue rummsry syor, for ,I? Ser I,.~,.,. .a_., .>h 1 ./',"(. .. Sext,oii~and IlxaHn?xdimpyrd. . 8 """ "):"" '," '."".,:."'" 134021X in Lhe HmnSexuality dl. \I>. .,! I<.,.,.>< d.~, .:,.,, r.,! ?,*tier ol audo cassettes. Indviduds P"". 9'1) ,il..<.r,.I .I -:,. .,,,I. with paraplegia. polio, ceicbml pal35 ,\"' 8 8.'. .""',' ."'. ,.." "C.drcurr ,heir sexual ablelies rnd ,, \,' : @ J.,#%><,% I , >",' conecml. PI4 postpaid 1effr"y n:..,n.n,: ,h. .,,.rh.,.: ' I, I.. u<. Norton fiblishei~.inc. 145 Eilst49h ..,I I,,.",,,. I m.,, ,",%,,.,. . , .., Stlee,. New York. New York 70017. l ,,.,b. ! v 4 m, ,,,.',>a?, , :" 1 pioferrianalr and nanprofesslonsls HI1 6691 "Atkendank care bllV would urn, meets mmthiy. amend the Sodel Sewtiiy Act Title sm M,,<"ti0,,for Ra Dluelop,li~,if"liy XX Lo provide that employablv D;.dM. Rv H. L. Firmer. Univei~iW p'mm unable to care for their pmronal needs could be elidble for home health aide rervirer. . . bboduced in May. 1971. it war sent teachers, and proiesrionalr explrin to the Commiree on Tnterstate & '0"'eplr of send ddevelapm~nt. Fareign Cnmmcrcn. Sa Edilrnrion for Disnbied P~enonr. By Recreation Lrving R. Dlckman. 71," hooklet P;aygmu?ads atid Pinyspiesfni Niu lnclvdes p-ents' and teacher? rn1er. Hn,rdimuord. Bv R. L. Aurlin and G. 3% horn Public Afsirs Comm%tee. Guidebook to state and federal A. 1la~is.197i V. of Waterloo Tnc. 381 F~rkAvenue Snuth. New Ieg~laBonrnd court csses pertaining Rookrkore, Waterloo N2L 3G1, Yurk, New York 10016. m the physically handicapped will Ontario. cnnada. 53. be publirhed in early 1977 by Wrk Eniiliud lo Laze. The Sexual and IOYC'Midwcrt Inlonnrtirm Center One~ArmDove Hunt Arrociiltion. Emotional Needs of Ihe lor Eqt~dityof the Handicnpped, CA Box 582. Olney, l'exar 76374. Handicapped. By Wmdy 106. southwest state uluversiiy. Derirncd i,>irrm m hand amout*rr G~~~~~~~,GI,. Marrhrll. Minnt~ota54258. counselor. ,anmallst, and Rn,,*n,rrranoN GArarrs bruadcaetcr. 128 pages. Faperhack Co&rEflecti"n?m of Spfiml Cord lyawy only. £1.95 and 2lp pilrhg (S.25). Cmar Trmr?nml.Ry David R. FubUshed h Ap"l 1976 by Mrlaby . rressU. M ~~~t)in arrouationwith members rtmsi and to others lor a Nananai F,md fur Research into nomind fee. Crinoline.. " Diseases. Vincent House. Contact James K. Peuley, lROS la Spnn#reid Road, Horrham, North Moreland, Indlnapolis. S"S$,X. Englmd. hdlana 46222. A National Spin.1 Cord Injury Data Llercaich Center has beun eslablished at Good samaritan Hospitili in Psychol~,qi~nl.Srrud, sodl and Phaenu, Arirona. lhe lo icgiunal Vocntiollnl Asp& of Spillni Cad irijuly: sphd cord centers lmdd by RSA A Selected Rihliograyhy. Nearly 700 Olilomia 94109. wlll feed dab on status before iniw. references are included. $2.95 from ouee of injury, bwtment. and Spinal cord Injury Grw T. Athelstan. PhD. P~oiect rehabliiiation. All rmter. and oupctor. universi* of inn;^^,^. So Ycm'rs Pnrnl!~xed. Guide for psns. Department ol Phy~iralMed~clre and pides, and their ladies is avallabla Rehabilltation. Medical Schnnl. 860 from spind injuries As~ouatio",2& Nutford Place. London WIH 6AN. England. 11.30 to members, f2.30 P.60 usefulness is not limited to the spvld to nonmembers. (About and cord injur~d.A" up-dated S.60). supplement will be avdabie. . . me nut a normal part of pardysis. 51.50 ~~GPNIndex. 935 Coastline 'The National Fampiepa foundation, Dtiur. Seal Beach. Californin 90740. . . . "nlerpreventian has been L. W, heeman Chapter, with the established beyond doubt in the case Pnrnplrgia Nms is of value to all asrlrtanre of the ostomu Arrocirti"". as as to of Mrs. Bliss v. Lc*lsham Group disabled. well pmapleycs Hosprtd Management committee. and qurdriplegicr. Fublirhed Any person dneloping sores in monthly. the yearly subrolption rate hospital should conride1 legal action Is $4. A goad buy! against thole responnblr. fur bad program were; an sameywho ""'sing rare." handler maiprrrtire cases. a for me^ NEio Englerid Re.miiiri Diral~ry1976. executive &-tor of Guodwill This 146~pageguide lo progrnmr and Induseies. a pxofesrar of anatomy. a senncer for SCL is hec hum me .~hyrirhirt, ' a social worker. e Spinrl lnju?. Foundation, 369 mot pmfessor ofneurology, a nurse.. Street. Newton Upper Falls, physical therapist, iin occupational And sm anather is Aihirumrrn,, . Massachusetts OZIM. Anothn recent ,herapirk a rehabilitation counselor. great bargain at $2 r year tor this publication, Slaudmrdr nnd Cr;h"n of the "irllatlon chaMlan of a roun1y Lampoaan manthiy hum 925 N.E. cur< is also avnllrbls. agency, and the Dmctor of Chaplain 122nd Street. North MaM, Flotida sewires at indirna Universliy 33161 Medical Center. ", . , Care System Hallil Curt Mnliunl. This is Houiiq Alirnmtivri for indiuid~~zk n solendid wide b selfkare and to ulRi Spilial Cord injug. By Fred Fay, thh teaclung of other people to take PhD. Limited copies of the paper are core of one's needs. Available holn nvrililble lor $2 horn Fred at Box 337, Heal6 Serwces Coordinator. 751 members who have compl*kd'a 171 Harrban Auenue, Bortan, training program and have heen Marearhvsells 02111. ceitned; (2)each visit will he recorded and kept on file for fnllow~ Prarhml Mo?#cpunfof Spinal Injirnm. up; and (3) additional hsining By Alan G. Ilardy, FRCS. and through bi-weekiy sessions in role Reeillald Elron. FRCS For the plrrng using piycho~opc.~ medical prafersion, not ,he average overdew of care of bolh ncutc and techniques of paraphrasing wlil be drsabled indGdud. f3.91. ChmM ChJonic scl'r. 1from Nationsl reqdrcd. Liulngstone. Medical Di"i3i"" of Fnraplepa Foundation. 333 North The all-day reminnr WOE Long- Crovp Llrmled. 23 Mirhl~anAuenoc. Chicago. niinois prole~rinnallyrecorded with finand Raveiston Terrace. Edinburgh EH4 6WOl. a3silmie tom the Lilly Endowment, UL. Smtlmd. Oreanktions of disabled file Enten! Arrrsr lo Pnblir ~rn~icportntion. rare, skn care. a~xua8ty.bawei Imwsuit to fore arrersible mas* Thii handbook was compiled by the managemen!, finanrial aid, lohhylng, Nanrit. On June 17, 1976 twelve Public Inbre%tLaw center in ."d tight to &eatmen,. orgaluzations of thc dirnbled and Philadelphis. Banaiyies the law's seven individuals hied suit against application to equal access and deals the ~~~~t~~~tof irnn~ponntio~ and the U~banMass Transporbiio" \. I .*, ,re, , rrw rnxi pmject; Rmlrfic ~,,it,tions This 160-arae book desdher the ,mi. 01 the rutkxe which ,"ere exhibited at the Museum of Modem An in mid-1976. $845 from Curtam~rSoles Scrviie. Museum of Sf8,emmt of Ned8 ~udernA*. n west srd sheet, A Shmrnt of Shnrrd Nrdr nnd Gwir New York. New York ,0019. some of and cnunvmr ~nnwoik~r's ~ispn~rs~ m the taxis inriude fea,"ws to make Tllese Ned5 rind Gwir. Fmal Report of them earily accessible to the eiduiy ,he 1Uinoi3 Confrrpnce d and the wheelchaired. Hmdhrpped CiSxen~.Nov. 8-9, 1975. Free from Governor's Committee on thr Handicapped. I60 Traucl North LnSaUe Slreel. Room 318. 1(ocXmg Bed Travel Problems. "My clurago, niinoir 60601. The mmhined membership of husband and 1 enlay uavei'rng but these orcanhatioh; totals more thnn hying N sleep in a chest respirator Shti.ti" 5% million people. takes all the hn aui of a vscation. 1 Kq Fadl OM the Haizdimpped. By E. R. The mst of the lawsnit is partially checked on using r rockmg bed in r Klebe, Education and Public Welfare EVpporhd by a gmnt to the Pllhli~ hospital but you have tonntei the Dlvi3ion. Llbral. of Congress. 1975. Interest Law center by The Max and haspikd just ii*e n patient and pay Free from Congres~ianalRe~earch Anna Levhson Famdstion. regular room rates. What about smnce, me Library d congress, Sid Shapiro, president of Dl4 of h-awapprng with someone rbsr Washington. DC 20540. Pennsylvania. rummanrer the urer a rocXing bed? Mrr. Bet,y feeling of the illrahled and elderly, Mielke, 115 Bixhoff Street. Fond du Transnortation. Public "Tlvenv years ago court action made Lac, wisronsin 51935. Hnllnhmk on Tro?gaibbioa /ar UCP it posiible for blacks to sit anywhere ACktes. By I. R. Dirkman. 1975. in a bus-we want a court decision using iron Lungs in Great Britain's Unrted Cerehml Palsy Asrotirtinnr. which %ll allow us ko eel on the Ho&pil&. "I holdaypd h England Inc.. 64 East 34th Sheet, New York, bur." and Smtiand with my sister. rleephg New York ID316 $1. On October B. 1976 the California in horoiwr in bolh counkles and Daparrmvni of Rehabtiitation filed m using their resplramrs. Everybody llxe Disahird md the Eiderij: Equ.1 action to job h the mi,. 'The nloiion war most kLnd and helpful and 1 was Arcis lo Fuhlic Tra,apormtia~~.8y would authanre the slate quite s novelv to mosk of the .knfl lames I. Rsggio, F~iblirInterest Law Department of Rehahihfation to who'd never seen mn iron lung in use Cenn)r of Philadelphia, 1315 Walnut appear in the action as AllliruS Ciirins. before." Ethna O'Dowd. Ward SL. 16th Flmr. PMaddphia. CaMorNa'r motion polnti up the 1,wt Seven, Cherry Orrhilrd Hospitai. Pennsylvania. 1975. Fiee from The that thcre are 3% miUlon chronically Dublin 10. Eire. Elzxiiih Shldrrris' Sliidy Tori, ofRome Nationwide tours on accessible buses brochure. "Consumer hlmmation Engl,naz openuluveclity, ~hi~h wiil begin operaCTon in Janus?r, 1977 About Air Travel for orhe bar over 120" &iiabl"d ~nldmts. ludd Jambson, a quad. has been Handicrpped." arranged 9 rludy tour of Rome. Ten granted an hterslste Conlmerce of Lhe 21 tour menlbers (ages ranging Curnmii%iontour broker's license. H,*iauoy Re, Arms for H",idimpp Aiirri Trrmel-A Guidz lo Nic If ym're in the Philadelphia area and Aci<~;bdilyof Airport Tn,,;,,ais. The wsnt lo enioy a completely accessible Grniniormation centerfur Ahart 0o.ratms counnl -,"re center end mii. head lor the Handicapped Individuals, 1619 M . , International smyed 118 terminals Schuylkll Valley Natwe Center at Sneek. N.w., washngton. 2~36. oc and listed theu acceliibility features. 520 East Wlllnw Grove Avenue, The guide is her from The Wyndnloor. Pennsylvania 19118. Its State of Washineton edde to - Aichileclural and Transporbtion dlrectoi. Dm. W. Tabm. wiil acrerrlble lodeng and rermurants. Barnerr cornoilanc. B~B~~ welronle you warmly ,o the center F~eefrom EMBER Project: Divirion of Washington. DC 20201. and the bag. The 10' wide, Vorational Rehabilitation. D.H.S. hard-surfaced *all has a bdt-in MIS 311. Olympia. Washington 98%. seU-gluded tour eth tape-recorded me3sages an cartridges. h1,rntionai Blsliasmphy ofcuids. Free fmm Rehabilitation lnternatianrl France hss a new organizatiun Lo help dirabled Oavelers: Arsociatioll POU'le iranspwt ci lc tautism des maleder et des handicap& (AVMW), It:,#,.,? .,, ,,4,".'?., ,, , a,,,., 19-21 meBertand-deGaLh, 33000 Hole1 p!idef"i H".d;c"&pd, h both .. ..- ,3111 \,IAF,.. .,r :.; I,.. Bordeaux. English and Danish this very .:I..I".. , :"I, atlractive and informative booklet is < mr-8 ,<,8 < ,+.:.", I .,,,!",A,, ,'ti v~olfio~~biidr~rn YD~X smv. ilvdrble for US. $& horn Saiety Swi~mre!$rfor Hn,rd;mpyed and Saiior and Home lor Disabled. 34 Ciilrnls. 1. Section on Hudson Erplanaden. DK-1263. Copenhagen WA, MSThird Avenue, New York. valley. The rvrt accessibility guide of K. Denmark. New York 10016 has published a elcven rcrtions of New York State. 55 Free from Awociation for Crippled Department of Commerce. PO. Box are auoilehle to orgy blind or phy3iinIly Children and Aduh of New York 490, Latham. New Yorh 12110. hn?#di and Newsletters for the Disabled Periodicals By The Disabld Buonlhly. %4year. Delaware 19720. Am,an Lidng. P.O. BOX 700. RrnplginNaur. '335 coartane Ddve. Skoke Uubr of America. 805~12th Gitium Road 8 High Drive. sen1 Beach, Cati1ornia 90740, sheet.~.~~eston, iass n550. Blaomin@on. Illinois 61701. Monthly. National. $4 year. Quuterly. National. $3 year. Fre Periodicals for the Dilabled fihzblllla&m Gwelte. 4502 Maryland A nlnrnrnl r>iN I iZ1.1> ',I Avenue, St. Louis. Mlsrovri 63108. o,z Your ouni. Diwtion of conhmimg X r lh\l.>#r~#,F >".I3 33l<>l Yearly. International. $3 disabled: $5 Edunho", university 01 Alab.mil. ,108 ,,I. ti.,,,, ,I $2 Y..,, nond,mhled. 7.0.Box 2967. University. Alabmr 3iPBb. Monihly. COPH Bulinin. 7611 Oabnd Aue.. Spoh 'n Sproke~.6043 N. Ninth Mhmeapolis. Minnesota 55403. Avenue, Phoerk Arizona 85013. Quarterly. Natinnal. $Z year. Bimonlhly. National. $4 year. Handy-Cap Harnnr. 3250 E. Loren= Dr.. Lndianapolis. Indians 6227. Qumfrrly. International have1 $3 year diwbled; $6 year nondirnbled. Amicur. National Center for Law and the Linndicnpped. I"". In5 North Eddy StreeL South Bend, Indiana 4b617. Bimonthly. Free U.S. Cmemmont N~vslelhn l'k MA? NmeirHn. 17 Janet Circle. Clam LooX National lnlnlnlmation Shremhq, Mailachulrettr 01541. Cenier lox the Handicapped, Box Monthly. Re@onnl. 52 year. 1492, Washington, DC 21K)13. XeMa?nshmi. 861 6th Avenue, Suite I", -,,r Spina Blfida A~sotiationof Amelica. 104 Fertone Avenue, New Castle, Travel Canadian Quads in Hawaii An Hawaiian holiday in March, 1976, tor Y severely After they arrived in Hawail they used an exellent disabled individuals from Aberhart Hospital in Ed- privately owned wheelchair cab sewiee. As a group, monton. Alberta, was dreamed of and promoted by a they used the cab service faur times; indiddual mem- resniratow nolio ouad. Gaw McFherson. He beean to bers used it frequently for shopping and sight-seeing wipips. Although their hotel, the Sheraton WaW, had ac- " cesible fndities fox wheelchairs, if was necessary to 518.~0 was raised in vanous ways, most of it by dona- remove several of the doors to make room for respi- tions. The donations included 560110 from the Edmon- ratory equipment. The group spent time relaxing by ton Ci6c Employees and other generaus gjfts from the hotel pool. Besides taking in the sun, they also individuals and sefice clubs such as Rotary, Kiwanis. mok in "me of the night life. They went on an island Legion, and Knights of Columbus. This meant that tam and vlsited the Polynesian Cultural Center, Sea each disabled ~eisonwas able to zo for a verv modest Lifepark, and the statecapitol. Severalpeoplewenton cost the Pearl Harboi midnight cruise while several others The Akhart Hospital lent itswholehearted support took in the island supper he. to the pmjert. A~ordingto Pierre Gariety, executive The hip had a noticeable therapeutic effect on the director of the Alberta Division, Canadian Parapleac disabled. People who use oxygen used less in Hawaii. Assodetion. 'me fact that the oatients had their own skin were lessened. They were mare adve, mare ~"tgoing, more aptinistic there and they con- hued to be more active when they returned. Dr. lame- Archibald. resident inoulmonaw care. who ac- hospital paid their iepllar salaries, the staff m;rnbe~bers :showed the ~~timtrthat suFh nips are poss;b~e.,, paid their own travel and other expenses for the hip. For more details, write to Gary McPherson, Roam The staff helped feed and wash the patients, as well as n27,Aberhsrt Hospital, Edmonton. Alberta T6G 213, liEtwheel&airs wand downslairs Each *staff member Canada. had two or thre; days off during the two weeks in Hawnii. The meht nosed poecial orablems to the airline. from Boeing in Seattle and oxygen hmthe University Hospil3il. ''Wardah was more than cooperative: says Gary. "They could"', do enough; there was no heritation. When there was a problem, they didn't say no but said they would look into it-and they did. If &ey said they weregoing to do something they did it. They also gave us pradcally a whole section in the no-smoking area to owselves so those who could not sit up muld lie down. A Wardair engineer haveled rvith us in case there would be diffidties." "&thr"ph northem Fran"e it was hopeless. NO one Hitch-Hiking Through Europe would stop. Th& year Iwas ~~pposedm ga to Sweden-stiU and in a Wheelchair always hitch-hkg. I started my jaumey in Marseille. A nice lorry diver put me oft in a small village near by Solveix Kihlxren ~eneva.BV chance. same vem nice nuns there out me to discover Normandy in my wheelchair, getting IiNlp/ is heaven on earth. around by hitch-hking. Aher touring Normandy and Afterwards I went to the me1of Mont Blanc and visiting a friend in the lovely old town of Fecamp, I found a 10- diver who nut me off in Meh near the decided to cross m England and visit more friends by Luxembourg border. Then some friends in Belgium hitch-hiking. came and picked me up. After a visit, they put me on Mv friends in Landon actuallv live far awav hm the road to Antwerp. After many hours I found a CenhdLondon so1had toga by train tovictoria. With Dutch Iorry d~iver.The Dutch people are like English the help of the friendly employees of Btiti~hrails I people--very ldnd and very helpful. I found another managed a nice long staircase in the railway station. I Dutch driver who invitedme to comeandstay withhis often webaroundLondonby tube and I always found family in a small town on the German border. I had a the employees of London bansports ready to help marvelous time there with them and thelr hiends. me--unlile the employees of Paris transports who da Next a French fa& tookme uo to Hambure." I do not want to give me a hand. not lie Germany. They thought I was crazy to be I spent three wonderful weeks in London. I discov- hitch-hilung. But I met some Red Cross people in ered plenty of things and plenty of nice people too. Germany and they were nice. They were also very Thus 1 disiovered the small Orthodox monastery in hdto me in Denmark. The custom people though* northern London, the Russian churches in Ken- my travelling hnnyand they put meup far a night at a singmn, and a wonderful organ concert st wesrmin- holiday camp far disabled children. ster Abbey. When I was at onemuseum I made a ter- It is imporrible to hitch~hikein Sweden. So my rible misniLe in the special bathroom far the disabled. journey had a bad end. Never mind. It was a wonder- Instead of pulling the chain, I pulled the h-and ful experience to discaver Eumpe fmm a wheelchair. the guard came quickly. As 1 was leaving another "Norma? people who think that my way of haveUing museum I found I had a flat Me and the securiwdrave is mazy do not know how happy you can be in your m. horn,. ..,m) fr., nd. mulJ fir 81. wheelchair. In I:ngl.lnd II t, rdrv tu h%h Yo,. $ran f .r fi1.6. mln- Address: 1 Square de la Bresse. 75016 - Paris, II,I.S ,~nd., m, blJ) pwLl ) .,u up llr! wl#c:>1 r ll r France. n A TRIP TO MONTANA by Dr. Duncan A. Holbert In the smine of 1572 mu mother eave me a band- Well. suffice to sav. there were davs soent in ore- ~ ~, .. .. n,.u 16 l.l.ll ~~t..~~~,~~,".,i 5t,.p-Vln vn. CI~I,.,.I. I m4n.cy 8L>e3.ur,ng'.k.,.l> ,,< 4rdu8r>l; .X:~I a I., hu8:d 1 n,mn,:onal \rn#rl<,\I* 01 81 The h? in the~ black~ ~~ sku: the "J~htair was warm and we morality and we realire too late that Pandara's Box hummed along ;Lard ~Gelocknearly ~Wmilesfur- 5hO"ld never have been opened. ther an. Remembering the l'lmitlrss, unpeop1ed spaces Beyond Avca we entered the real wilderness, fal- that make uo most of the state of Nevada, aeain" I had lowing the course af the beautiW Salmon mer. little cold shivers thinking about what might happen Grass once more appeared, flanking the mountains if we threw a rod or some secret esrential system that rose abruptly from the river and the gorge, per- failed out there 50 or 60 miles awav irom anvbodv. haos 8000 to 10.0W feet. hidden bv the clouds. These West and of the mountain men lay faintly in the evening air, but the not uncommon alumi- num modular home on jacked-up wheels suggested 59 certainly that the old ways were long gone and the "gliness of civilization was iinally forever encroach- ing on the quiet, hidden, green, and lovely mountam3 and the sparkling waters. tain Spolted Fever was discovered. There ar? over 300 On Lost Horse Pass we wound our way down highly kained specialists in the laboratories, working through stands of hees so dense that late afternoon on exotic diseases from aU over the world. suddenly became evening and we felt last in the land of Chief Joseph and Ner Perce. We could imagine them, shvggling and starving, driven this way uim . . Canada. At the bottom of the Pass, we once again "an, flew in from California with some suction equip- skirted =long the banks of the Salmon River and be- ment and we loaded up, gave grateful thanks to our and it the Sapphire Range. An lmur or two of day- long-suffering inendr, wed a little, said a silent light remained and we realized that our immediate prayer. and look off! That evening, amid a Wagnerian destination, Hamilton, Montana, was less than 30 thunderatom we turned west over the Lolo Pass, miles away. through mare torests and rushing rive=-the Swert- The Bitterraat Valley and the forest-covered ranges water into the Snake and Enally to the broad slack fading in the evening light seemed to me like the water of the Columbia beyond the Nez Prrce Reserva- ast of the Frontier. This grandeur was the same as it tion where Idaho meets the eastern border of Oregon. was in the days of the Fur Trade when it drew James on the road again at daybreak, we passed through Ohio Pattee and his comrades to the rendezvous and the barren deserts of eastern Oregon and then the beaver sheamr. Hamilton is a small town so we through the verdant grecnery irom cenh.al Oregon on into Portland-probably the loveliest part of the trip. Portland suddenly emerged from the scenery , .. ~h~~mingby and we stopped there long enough for feet across the parch and we mlled right into the a good big breakfast at lunch time. So far we were front room. Peg and I and the boys had a great sup- 8veraeg 60 miles per hour, 10 miles per gallon of oer of anteiooe shoulder, frontier biscuit*, and home- gas and a stop every 30 minutes far the hoops to canned fruit.' jam thcir arms through the portholes to help me Ruth Brandborg, to whom half the oedit goes, is mugh up another hunk or huo af lung! The whole a can~inualsworise. After vears as an admidseator perfomance began to seem so campletely tidiculaus in the Peninsula schaals. here we found her equally that we began to laugh and clown like a bunch af at home among bluebeny pies, mugs of cowboy cof- idiots! fee, and shelf after shelf af jellies, preserves, and BY late that anmoon aU of oregon war behind olmed fruit which she and Brandy had processed to- us plus Grants Pass and the nurthern segment of the gether. Our long-suffering host, Brandy, is in his Redwood Highway. The dreary KOA camp in Eureka middle eighties, a tall, rawboned ex-forester who is was like a hiendly beacon-Santa Cmand home sFdl fighting the good fight for the diminishing forests was now less than a day away and, with my hachg and for this last corner of orienal wilderness. The bix and my poor helpers around in the cold lumber interests are stripping the mountain sides, dark, sleep was impossible. As the grey foggy dawn the rains and snow wash away the sail and nothing mept in aver the edge of the beach we dabbed a little *ll regrow. It is a sad story that is going on now cold water over our faces and headed br the nearest and the bounty of nature that belongs to all of us is of hot coffee and breakhst. The rest of the day being turned into millionr of dollars proEt to indi- war just eating up the road! viduals and aulfits who have the right connection. he great old Redwoods and Snally the hills and The next morning we awoke early to the smell of "heyards of Sonuma County were all farmliar as I *"g becon and freshly-caught mountain but- had grown up in this crmnq. By noontime the none smaller than two pounds. I" spite of the tcmp- Golden Gate bridge slid by under us and the familiar tation., I sadly realized that my nose was stopped fog separated long enough to reveal the fishing boats up and my throat was raw and sore. I" my mind's far beneath, hurrying home on the early afternoon eye I could see again the drenched little hitchhiker tide. I think that we were ail completely numb from and I cussed him royally for the worst cold I'd ever the lack of rest and decent food, and we saw nothing had. We had oxygen tanks bubbling, vapotirnrs and heard nothine" but the faithful hum of the en- steaming up the room, nurses twenty-four hours a Sines. day, and all the other equipment for intensive care. In an hour and a half we scraped into the driveway Our poor friends were almost squeezed out uf their of the parking bat with the dop briking a welcome. house-like the story of the came1 and his master's It was two weeks later and 4000 miles of some of the Rntl most ~~~ctarnla~and lovely parts of this great country Days were not so bad, and I cniayed "%sitingwith of ours. n ~rnasrrri~rio~Gnrsrrl GPB for High Level Quads Glassopharyngeal breathing (GPB) is rnmmanly off your larynx. Don't move your Adam's apple, then known as "frog breathing" because of the similarity you are swallowing. Leave your throat alone. Work behveen this method of breathing and that employed with your tanpte. The air goes do- automatically." bv, amohibia.. Baaicallv. .. the mechanism of GPB is the same as that of a pump: the tonwe and the throat act '2 dose the back of my throat, iustas one does when .. .pi.ton, and he mouth. the soft and he pretends to have a cold in the nose." la-x act as valves. here results an exoansion of the lungs as air is pumped into them. "We used a hand bellows, the type used topvmp up GPB has been used inadvertenUy for centuries by anairmattress. With this1 wasabletoget thefeelofair swMmeis to fill their lungs with reserve air just before in my thmat and enough pressure to close my larynx diving and by individuals with breathing difficvltirs. against:, Durlng the palio epidemics of the fiities same of the patients acndenrally taught themselves to use GPB. "Try to saatch an itch on the bark of your throat When physiological studies proved its value. GFB was with your tongue sa that you almost gag (SKIP the roof of your mouth)." "Try to make believe you are blowing up a balloon, N~E.-G~Bhas been ;red'exiensively fm mare than then fallow through with the motion of dropping the hventy years by repiratory polio quads to produce throat musdes." adequate respiratory ventiiatian without the use of mechanical equipment-= sort of selfkperated mpi- "On my imaginary straw I take a big swig of a rattc. Some use it only while being bansferred hom yummy. thick. chocolate milkrhake." one meof res~hatorto another: others use it dunne "I learned by continuously ducking my Adam's apple until I obtained a steady rhythm of takng in air." leading proponent of GPB for respiratory potias. Ac- "You have cording to the book, Quodripiegia Affer Spinal Cord fn- a big orange hanging in front of your mouth. Reach out with your lips and get it in your jioy;a Teohnml Gvidcfor Physical niernpi~ls,witten by shff members of the physical therapy department st mouth, thenmove it around and then swallow it." Rancho, they are now using it with equal success with mumatic quads: "Glossapharyngeal breathing (GPB) is taught to patients with lesions at C4 and C5 and these patients are encouraged to use it routinely for chest expansion and cough force. Patienb with lmver came to mind:' lesions axe taught GPB to provide a mare effective "For a long time I have been bying to put down in cough force if, after to the advantages of words a simple way to explain GP breau~ing.Same af GPB. they express a desire to learn.'' you may Like to try the following: Put a straw in your For high-level quads and others with respiratory mouth, then suck on it, using your mouth and tongue problems. who auld benefit kom learning GPB, here only to make the suction. Then after each time you are some of the more successful word cves of respi- &=win air, put the end of your tongue over the end of ratory polio quads: the straw to keep the air hom escaping. Also, I've found that the front part or the tip of yovr tongue plays linle part in GP breathing because I am able to hold my tongue between my teeth and. with my mouth dosed, pump in air through my nose. This is a moreadvanced method, but it ,night give someone the "After five years of qing1 thought I would nwcr clue:' learn to hog breathe. Then. once when 'goofing off' I imitated, in an exaggerated way, my hiends I had seen "Anybody who has tried to learn 'Frog Breathing' doing it. Suddenly, I found myself laughing very laud will know that the main idea is to take a mouthful of laughcl was hogans too!- air, seal it against your palate with your tongue and swallow it. I find that the more mouthhils you take "Don't get theair in your stomach. You have to close and the faster you take them, the better the lunghl of lP7diVo~umrXIX 61 air. I usually take kom four to sh mouthfuls of alr, succeeded in the end. Keep this upuntil you ranmake hold it for a few seconds and then let it out. I have also a loud sound while seokine and sm teke in air. Next. found that if my tap dentures are not very firmly in P"",.< .,,"'3): 0.".". :' 'If 1" * .,., "After a while (when my neck had became shonger "Repeat the 1md shake and practice chopping it off kam sittlng up in a wheelchair) 1 developed a method until you can do it with ease and are obtaining enough of usingthe accessary muscles of my neck to assist me air on each stroke to fill up readily. This may in 'kogging.' While in the wheelchair, I muld lift the from one to three weeks. Be rurevou are ~uttimeeffort very top part of my chest by throwing back my head and pulling very hard on my accessory muscles, at the same time @ping away as fast as poesible:' with a mirror or feather." "'Frog breathing' ran be lwrned by practidng the following sequential steps: Idate your lungs, nor 'To my mi~dthe only real problem is keeping the dy,to yovr maximum inhde and hold yaur breath; air out of the stomach and havlng it go and stay in the close internsl nasal oassaees: with mouth sliehtiv lungs. I think that if thesepossibilitiesareexplained to the patient he wili learn. You can fee1 where the air goes if it goes into the stomach and have him ". .. toinhaleas he forces thcairout of the mouth. Niceties, your mouth. Air will pass into yourlungs. Hold it! and such as taking the air in through the nostrils while the repeat the last two steps several times befare exhal- mouth is closed. can be Learned later.'' ing." Th,. ,hzrrylii uollld 12.1 m,, ,.I ,.P'" my m.""h "Four suggestions: (1) If difficult,. ia in rl. .r 1. .IOJ fc,rrr. the ,i:r u,t~kwnl, rcly II>I,~YP .~YLLII closing the nasal passages, this can belearned by plac- ,,mr* In :",il i!lrn~..i >n \ 62 Shff volunteers, "Quadland" neighbors, Board Members of the St. Louis Chapter of &e National Paraplegia Foundation, and out-of-town guests a1 '76 Sf. Louis Photos 4502 Maryland Avenue, the Laurie's home and the Rehabilitation Gazelte office. Nandirii Nimhkar Rojvanriil Rt?,wr .I< j~l~oa~~~ fill Kinmont Roofla 0ut.af-town guests. at parties and sightseekg l'ri~~iiiiN,miIhr Gini and tiiiiiir i,,li,;i Natlditii Nialbknr Xnjunmbi, yrn?iddaagliler of Mrs. Viuio?!Noyloi: Cliurrhill Feilc~i~,frotlt Englnnd Kalilnln V. Niir,bka", of illdin cini "ild Eu,lir< Fiori,", i,rmidei,f, Amerirali Counnl of RqnM, lefmoh decfrollir erperi, ,?orti Eligland tlte Blind of NNI York Slate /ill Kinmonf Rnoliic, folrnprski ci~maipion.fmniC"lijornia staff Lunching in !he park-Dorolhy Dmis, asswia!~editor, F"o,ices Kno*, si,pe"~rlea,,e,, and Gilii Laurie Shim and Joe Laurie F~ankEngel,the Garette'~pasmian Guests at alumheon in honovr of Lady Runabotham, wife of the British Ambassador to the United Stater snd moUIen of a quad. m-'-? "v -7 +A$--- T* P9'2 rr" i' -. * "'9 'Y 14 ;\ 'r. 1. .F \ r ~- .,: , i I\ CC~I,~~.~~SI~Z~AIC~~~, >,,am! 1Ilo~L. nnrd 1.d~K~r~~!s~~~~ll~~~~~~ )vn!18,. ~prhart,ms<,<,,~t~ t,.!i!ch ,ami ,\,,I~Lz~ ~?~ci$i~?! f I'd I'd Quiglc!, iind Speed Dmis Rehabilitation Gazette Mn-lin.lll 0.. 4502 Malyinnd Avenue U S lixlr%" Sf. Louis. Missouri 63108. U.S.A. st. LV",,. M". rqP".,",, N,, ,,,I Address correction Req"erted S~LLVJ . MA~~NS 0701 KIPIGSJOOD. APT DETROIT, lull 10221 69 8s) "01 \ I I ., , .r . .,,4% 1968. Vol. XI. Tenth annlvenary brue. l,..l,,l_'l.l.I ,I." .I.. / 1 ,I .I . I . .I ! ,..I 1.11 I<.I., alnr N"3" appmarhr. to anmdans. Vo>cnponii?nrr Club. Srli-npuarur. 19Q. Vol. YI. Durdr adrh- lrdicr 1%. "05. XI,. Thc quad in Mr rnmmvnily. Ramp, hi horn* and riu. HonlP c,ve SPrVl'Pr. ll""linirimpl*xi"i,. ,1964. YO,. YII. Quadr the ,v~,L~. IYh"dcharr. Typing aidr Balhrnnm ~oot.tpmg.clotlung. ~outhsrrrka. PquipmentTra.*lingmd IhnnginMexico. PonaWe ra*mng bed Painling aids Pho,ogra,>hy. Homr rnliiy. CuniFmng. I'drting. Phoingsphy. Ann riill%s. Pnrtli ihes Bowling. I., .-.. ,,l.ll,, 1...... I.. I.n ,.I ,,I I,. / ,,, ~.!..,,,,...... ,' 'I, . . . ,,,, . 1976. Val. XIX. Vnations. Avocations. Undnalrndllig depressinn-helping rnlh FPI Teathing th" bimd to ,we.