1 Deane F. and Kate Edelman Johnson Professor of Law
Total Page:16
File Type:pdf, Size:1020Kb
HENRY T. GREELY Deane F. and Kate Edelman Johnson Professor of Law Professor, by courtesy, of Genetics Director, Center for Law and the Biosciences Director, Stanford Program in Neuroscience and Society Stanford University As of August 13, 2020 Education A.B., Political Science, Stanford Univ., 1974 J.D., Yale Law School, 1977 Employment Law Clerk, Hon. John Minor Wisdom, U.S. Court of Appeals for the Fifth Circuit, 1977-1978 Law Clerk, Hon. Potter Stewart, U.S. Supreme Court, 1978-79 Special Assistant, Deanne C. Siemer, General Counsel, Dept. of Defense, Aug. - Oct. 1979 Staff Assistant, Charles W. Duncan, Jr., Secretary of Energy, Oct. 1979- Jan. 1981 Litigation attorney; Tuttle & Taylor Inc., Los Angeles, 1981-1985 (partner from 1984) Associate Professor of Law; Stanford University, 1985-1992 Professor of Law, Stanford University, 1992-present C. Wendell and Edith M. Carlsmith Professor of Law, 1998-2004 Deane F. and Kate Edelman Johnson Professor of Law, 2004-present Professor, by courtesy, of Genetics, Stanford University, 1998-present Selected Leadership and Membership Positions Outside Stanford Current Founder and Director, The International Neuroethics Society, 2006 – present; executive committee member, 2006-present, president, 2017-19, immediate past president, 2019-2021 Multi-Center Working Group of the NIH BRAIN Initiative, member from 2014 Neuroethics Working Group, NIH BRAIN Initiative, member and co-chair from 2015 Chair, Ethical, Legal, and Social Issues Committee, Earth BioGenome Project, from 2020 California Advisory Committee Human Stem Cell Research; member (June 2005 to present), chair from February 2006 National Academies, Committee on Developing a Research Agenda and Research Governance Approaches for Climate Intervention Strategies That Reflect Sunlight to Cool Earth (April 2019 to present) National Academies, Committee on Ethical, Legal, and Regulatory Issues Associated with Neural Chimeras and Organoids (June 2020 to present) World Cell Line Collection 1 (Collaboration between the Human Genome Diversity Project and the Centre de l’Etude de Polymorphism Humain); Ethics Officer (2000 to present) Kaiser Permanente, KP Biobank, Bioethics Advisory Board member, from 2014 Co-founder and co-editor-in-chief, Journal of Law and the Biosciences, published by Oxford Univ. Press (from 2013) 1 Editorial boards: American Journal of Bioethics, American Journal of Bioethics – Neuroscience, PLOS Genetics Past National Academies, Committee on Science, Technology, and Law, member from 2013-2019 Institute of Medicine (now National Academy of Medicine) Forum on Neuroscience and Nervous System Disorders, (2012-2019) National Advisory Council, National Institute for General Medical Sciences, NIH, member (2013-16) Kaiser Permanente, Research Program on Genes, Environment, and Health, member, Scientific Advisory Panel (2007 to 2012), Bioethics Advisory Panel (2009 to 2012) Project on Law and Neuroscience; Co-director (2007 to 2010) National Research Council, Committee on Ethical and Societal Implications of Advances in Militarily Significant Technologies that are Rapidly Changing and Increasingly Globally Accessible (October 2011 to January 2014) National Academy of Sciences, Panel on Collecting, Storing, Accessing and Protecting Biological Data, Member (March 2008 to September 2010) Ethics Committee, American Society for Gene Therapy, member (June 2005 to June 2008) Ethics Advisory Committee and Scientific Advisory Committee, Genetic Tissue Banking Initiative, Cooperative Studies Program (CSP) Coordinating Center, U. S. Department of Veterans Affairs, member (1999 to 2007) Ethics Advisory Committee, BEST study, U. S. Department of Veterans Affairs, member (1997 to 2007) Human Genome Diversity Project, member, North American Regional Committee (Sept. 1993 to present); chair, Ethics Subcommittee of N. Am. Regional Comm. (Sept. 1993 to present); member, International Executive Committee (March 1997 to 2001) Scientific Advisory Board, Stem Cell Network (Canada); member (2005 to 2007) National Academy of Sciences Committee on the Use of Third Party Toxicity Research with Human Research Participants; member (Dec. 2002 to Feb. 2004) California Advisory Committee on Human Cloning, member (Jan. 1999 to Jan. 2002) Editorial Boards: PLOS Medicine At Stanford Current Director, Stanford Center for Law and the Biosciences, 2004 to present Director, Stanford Program in Neuroscience and Society, 2014 to present Chair, Advisory Board, Stanford Center for Biomedical Ethics, 1998 to present Member, Faculty Leadership Council, Bio-X Program Member; Executive Committee; Center for Computational, Evolutionary, and Human Genomics Member, Internal Advisory Committee, Stanford Alzheimer Disease Research Center Member, Advisory Board, Stanford Genetic Counseling Program Past Chair, Stanford Faculty Senate, 2002-03 Member, Stanford Faculty Senate (roughly 14 years from 1989 to 2017) Member, Stanford Faculty Senate Steering Committee (four or five one-year terms, most recently 2015-16) 2 Stanford Stem Cell Research Oversight Committee (June 2005 to 2013; deputy chair 2005 through 2008) Stanford Administrative Panel on Human Subjects Research (IRB); member (2009-2013) Member; Executive Committee; Science, Technology, and Society Interdepartmental Program Honors Fellow, American Association for the Advancement of Science (from 2007) Richard W. Lyman Award, Stanford University (2013) Stanford Prize in Population Genetics and Society (2017) Publications (grouped by book, articles, book chapters, book reviews, and “other”) Books or Book-Length Reports Henry T. Greely, CRISPR PEOPLE: THE SCIENCE AND ETHICS OF EDITING HUMANS (M.I.T. Press, forthcoming February 2020) Henry T. Greely, THE END OF SEX AND THE FUTURE OF HUMAN REPRODUCTION (Harv. Univ. Press, 2016; Italian translation published in 2018 by Codice Editizione, translated by Silvio Ferraresi; Japanese translation to be published in 2018 by Tokyo Kagaku Dojin, translated by Tetsuya Ishii) NRC Committee on Ethical and Societal Implications of Advances in Militarily Significant Technologies That Are Rapidly Changing and Increasingly Globally Accessible, EMERGING AND READILY AVAILABLE TECHNOLOGIES AND NATIONAL SECURITY: A FRAMEWORK FOR ADDRESSING ETHICAL, LEGAL, AND SOCIETAL ISSUES (National Academies Press, 2014) Panel on Collecting, Storing, Accessing, and Protecting Biological Specimens and Biodata in Social Surveys, CONDUCTING BIOSOCIAL SURVEYS: COLLECTING, STORING, ACCESSING AND PROTECTING BIOSPECIMENS AND BIODATA (eds. Robert M. Hauser, Maxine Weinstein, Robert Pool, and Barney Cohen; National Academies Press, Washington, D.C. 2010) Committee on the Use of Third Party Toxicity Research with Human Research Participants, INTENTIONAL HUMAN DOSING STUDIES FOR EPA REGULATORY PURPOSES: SCIENTIFIC AND ETHICAL ISSUES (National Academies Press, Washington, D.C. 2004)(principal author of chapter 6) California Advisory Committee on Human Cloning, CLONING CALIFORNIANS? (Sacramento, CA. 2002) (principal author) Articles Oliver A. Ryder, Carrie Friese, Henry T. Greely, Ronald Sandler, Joseph Saragusty, Barbara S. Durrant, Kent H. Redford, Exploring the Limits of Saving a Subspecies: The Ethics and Social Dynamics of Restoring Northern White Rhinos (Ceratotherium simum cottoni), CONS. SCI. & PRAC., 2020;e241, https://doi.org/10.1111/csp2.241 (on-line July 9, 2020) Henry T. Greely, Covid-19 Immunity Certificates: Science, Ethics, Policy, and Law, J. LAW & BIOSCI., https://doi.org/10.1093/jlb/lsaa035 (May 28, 2020) 3 Joshua L. Deignan, Elizabeth Chao, Jennifer L. Gannon, Henry T. Greely, Kelly D. Farwell Hagman, Rong Mao, Scott Topper, and ASCMG Laboratory Quality Assurance Committee, Points to consider when assessing relationships (or suspecting misattributed relationships) during family-based clinical genomic testing: a statement of the American College of Medical Genetics and Genomics (ACMG), GEN. IN MED. (2020) https://doi.org/10.1038/s41436-020-0821-6 Susan M. Wolf, Pilar N. Ossorio, Susan A. Berry, Henry T. Greely, Amy L. McGuire, Michelle A. Penny, and Sharon F. Terry, for the LawSeq Framework Task Force, Integrating Rules for Genomic Research, Clinical Care, Public Health Screening and DTC Testing: Creating Translational Law for Translational Genomics, JLME 48(1):69-86 (2020) Henry T. Greely, The Future of DTC Genomics and the Law, J. L. MED. & ETHICS 48(1) JLME 151 (2020), https://doi.org/10.1177/1073110520917003 (Apr. 28, 2020) Henry T. Greely, The Law of the Tetrapods, 22 VAND. J. ENT. & TECH. L. 251 (2020) Bartha Maria Knoppers and Henry T. Greely, Biotechnologies Nibbling at the Legal “Human,” SCIENCE 366:1455-57 (Dec. 20, 2019). Hendriks S, Grady C, Ramos KM, Chiong W, Fins JJ, Ford P, Goering S, Greely, HT, Hutchinson K, Kelly ML, Kim SYH, Klein E, Lisanby SH, Mayberg H, Maslen H Miller FG, Rommelfanger K, Sheth SA, Wexler A, “Ethical Challenges of Risk, Informed Consent, and Posttrial Responsibilities in Human Research with Neural Devices: a Review,” [published online October 17, 2019]. JAMA Neurol. doi:10.1001/jamaneurol.2019.3523 Henry T. Greely, Human Germline Genome Editing: An Assessment, THE CRISPR J. 5(2) (Oct. 9, 2019), at https://www.liebertpub.com/doi/10.1089/crispr.2019.0038 Sean Mackey, Henry T. Greely, Katherine T. Martucci, Neuroimaging-Based Pain Biomarkers: Definitions, Clinical and Research Applications, and Evaluation Frameworks to Achieve Personalized Pain Medicine, PAIN REPORTS 4 (Aug. 2019) e762 Henry T. Greely, CRISPR’d Babies: Human Germline Genome Editing in the “He Jiankui