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Creating new opportunities through digital transformation of GERMANY The aim of the Medical Informatics Initiative (MII) is to enhance research and patient care through Within the scope of the MEDICAL INFORMATICS the sharing and use of data from healthcare and INITIATIVE (MII), a project funded by the German from clinical and biomedical research – across federal government, medical and IT profession- Medical informatics multiple entities and sites, while ensuring robust als collaborate with researchers and scientists Strengthening research and data protection and security. across multiple disciplines in German university advancing healthcare hospitals. Their shared goal is to digitally capture MII was launched to build bridges between re- hospital healthcare data, making these available search and healthcare. Its goals include: Developing innovative for research – to provide faster and better medical IT solutions for healthcare treatments. At the same time, therapies can be a aggregating clinical patient data improved for individual patients. a developing IT solutions and infrastructure for e www.medizininformatik-initiative.de/en tailored treatments In the initiative’s current phase, university hos- a harnessing patient data to gain scientific in- pitals and partner organisations are to establish sights and link data integration centres. These centres CONTACT a making new findings immediately available for will allow research and healthcare data – that patient care continue to reside securely on-site – to be aggre- a strengthening medical informatics in Germany Coordination Office, Medical Informatics Initiative gated and integrated across multiple locations. c/o TMF e. V. As an incentive to create new professorships for Charlottenstrasse 42 medical informatics, the German Federal Minis- 10117 Berlin try of Education and Research (BMBF) is funding MII aims to enable the Germany effective exchange junior research groups at universities that commit and use of data from to establishing these positions. In addition, MII Phone: +49 (0)30 2200247-0 healthcare and from consortia will develop innovative IT solutions for Fax: +49 (0)30 2200247-99 clinical and biomedical research. concrete medical use cases, demonstrating the www.medizininformatik-initiative.de/en benefits of high-tech digital healthcare services [email protected] and infrastructures.

Examples of the first use cases are: a Multiple sclerosis Photo credits: Page 1: ProductionPerig | a Parkinson’s disease Dreamstime a Page 2: iStock.com/ Cardiology millionsjoker a Infection control Page 3: iStock.com/ nicolas_ a Appropriate antibiotics use a Precision medicine for tumour patients a Improvements to healthcare processes Published in March 2019 ­ ­

THM University of Applied Freiburg: Consortia and participants Rostock Shared success: Sciences Averbis GmbH Kiel during the development and Greifswald: Halle (Saale): Greifswald Collaboration across Germany Greifswald University Hospital University Hospital Halle (Saale) networking phase Magdeburg: Hamburg: Hamburg Otto von Guericke University University Medical Center Magdeburg/University Hospital Hamburg-Eppendorf Within the four funded consortia – DIFUTURE, DIFUTURE Hannover University of Applied Magdeburg Jena: CONSORTIUM PARTNERS Sciences and Arts Mainz: Friedrich Schiller University Hanover HiGHmed, MIRACUM and SMITH – nearly all : Heidelberg: University Medical Center Jena Brunswick German university hospitals and medical centres University of Augsburg (UA) Hospital of the Johannes Gutenberg University Hospital Jena at over 30 locations cooperate with research Bochum: and the Medical Faculty of University Mainz Jülich: Münster Kairos GmbH (KAIROS) Heidelberg Mannheim: Forschungszentrum Jülich Essen institutions, businesses, health insurers and Munich: German Cancer Research Medical Faculty Mannheim, GmbH (Jülich Research Centre) Düsseldorf patient representatives. Their mission is to lay Technical University of Munich Centre Heidelberg University/University Leipzig: (TUM)/University Hospital NEC Laboratories Europe Medical Centre Mannheim Jülich Leverkusen the foundations required to enable the use of Jena rechts der Isar (MRI) Heilbronn: Mannheim University of Applied Leipzig University Medical Cologne Dresden research findings to the direct benefit of patients. Aachen Bonn Ludwig-Maximilians-Univer­ Heilbronn University Sciences Center Giessen sität (LMU) München/Hospital Kiel: Marburg: Leverkusen: of the Ludwig-Maximilians- University Medical Center Philipps-Universität Marburg/ Bayer AG All MII consortia are represented in the National University (LMU) Munich Schleswig-Holstein (UKSH) – University Hospital Giessen/ Darmstadt Würzburg Steering Committee (NSC), with the aim of aligning Tübingen: Campus Kiel Marburg NETWORK PARTNERS Erlangen University of Tübingen (EKUT)/ Cologne: Düsseldorf: activities and agreeing parameters. Cross-con­ University Hospital Tübingen /University SMITH Düsseldorf University Hospital sortia collaboration within the initiative is organised (UKT) Hospital Cologne (UKK) CONSORTIUM PARTNERS Rostock: and supported by the Berlin-based coordination Ulm: Münster: Aachen: Rostock University Medical Ulm University Medical Center University of Münster/Münster RWTH Aachen University Center office, operated by TMF (Technology, Methods and University Hospital (UKM) Uniklinik RWTH Aachen Ulm Infrastructure for Networked Medical Research) NETWORK PARTNERS Potsdam: Berlin: Coordination office updated in: March 2019 Regensburg: Hasso Plattner Institute ID Information und Dokumen- Berlin: Munich with MFT (German Association of Medical Facul- University Hospital Regensburg Walldorf: tation im Gesundheitswesen MFT/TMF/VUD ties), and VUD (German Association of Academic Saarbrücken, Homburg: InterComponentWare AG GmbH & Co. KGaA Medical Centers). /Saarland Würzburg: Bonn: University Medical Center University Hospital of University Hospital Bonn Würzburg/Julius-Maximilians-­ Dortmund: DIFUTURE MIRACUM Coordination office HiGHmed Universität (JMU) Fraunhofer Institute HiGHmed SMITH CONSORTIUM PARTNERS for Software and Systems Berlin: MIRACUM Engineering ISST Robert Koch Institute CONSORTIUM PARTNERS Essen: Ada Health GmbH Dresden: März Internetwork Services AG Universitätsmedizin Berlin – TU Dresden/University Hospital Essen University Hospital Initial results aatemplate text for patient consent forms, developed Campus Charité Mitte Dresden in cooperation with German Federal and State data Brunswick: Erlangen: Brunswick University of Tech- Friedrich Alexander University protection agencies and the Association of Medical nology (TU Braunschweig) Erlangen-Nuremberg/ With the support of the coordination office, the Ethics-Committees in Germany Helmholtz Centre for Infection Univer­sity Hospital Erlangen National Steering Committee (NSC) and its aaroadmap for the Medical Informatics Initiative Research GmbH (HZI) Frankfurt am Main: Darmstadt: Goethe University Frankfurt/ consent, data-sharing and interoperability work- 2017 – 2025 Darmstadt University of Main/University Hospital The German Federal Ministry of Education and ing groups have developed core documents to aapaper describing key points of standardised use Technology (TU Darmstadt) Frankfurt Erlangen: Freiburg: Research (BMBF) is investing a total of 150 address key MII topics and challenges: and access rules Siemens Healthcare GmbH / million euros in the Medical Informatics Initiative aaMII roadmap for enhanced research, education and Göttingen: Medical Center – University of through 2021. In a later phase of the initiative, aashared core data set in line with international skills development University Medical Center Freiburg Göttingen Averbis GmbH results and solutions will be developed further standards aaUniversity hospital initiative for interoperable HAWK University of Applied Giessen: and consolidated. aapaper summarising key points on interoperability patient records Sciences and Arts Goettingen Justus Liebig University aa Hanover: Giessen/University Hospital recommendations for shared use of standardised Hannover Medical School Giessen/Marburg metadata