2002 ANNUAL REPORT

reaching out...bringing hope...touching lives...closer to home

Millions to Benefit from Completion of the NIH Doubling! Research!America is a national, not-for- profit public education and advocacy alliance workng to make medical and health research—including research to prevent disease, disability and injury and to promote health—a much higher national priority. Through the strength of its diverse and far-reaching membership, Research!America provides a unified link between the voices of citizens who support research and the influence of local, state and national opinion leaders and decision makers.

Through our public opinion polling, advocacy-based programming and media outreach efforts, Research!America is committed to sustaining strong investment in our nation’s medical and health research enterprise. We will continue reaching out, bringing hope and touching lives to bring research and its many benefits closer to home. Cover photos: Kevin Cruff,Wilhelm, Christopher Gridley, Peter Photodisc. Getty Images. 2002 ANNUAL REPORT Research!America…bringing research closer to home

A Year of Accomplishment A MESSAGE FROM THE CHAIR AND THE PRESIDENT 2

Sustaining Research for a Healthy America 5

Serving the Public Interest 9

Engaging the Media 13

Making the Case to Decision Makers 17

Celebrating Visionaries 21

Financials, 26 Major Donors, 27 Membership, 28 Board of Directors, 32

1101 King Street • Suite 520 • Alexandria, VA 22314 703-739-2577 • 703-739-2372 fax • 1-800-366-CURE www.researchamerica.org

©2003 Research!America. All rights reserved. Printed in the United States of America. A Year of Accomplishment A MESSAGE FROM THE CHAIR AND THE PRESIDENT

ur members and friends attending Research!America’s 2002 Annual Forum engaged in lively dialogue on making medical and Ohealth research—including research to prevent disease, disability and injury and to promote health—a higher national priority. Congressman John Edward Porter, Wall Street Journal columnist and Washington Executive Editor Al Hunt and American Association for the Advancement of Science Chief Executive Officer Dr. Alan Leshner outlined elements of an action plan entirely compatible with Research!America’s strategic direction (Blueprint Initiative) adopted the previous year. In sharing highlights of their remarks with you in this Annual Report and the programs we implemented in response to the initiative, we are pleased to provide below a brief overview Hon. Paul G. Rogers, chair, and Mary of our 2002 year. Woolley, president. • Stay on message. Together with our partner • Help researchers become advocates. We organization the Campaign for Medical took our signature 435 Project® across much Research and many other groups in the of the United States in 2002, with media- medical- and health-research advocacy scientist roundtables, leadership forums, community,Research!America worked to advocacy workshops and research partners ensure that the goal of doubling the National forums in 13 states. Through these and Institutes of Health budget over a five-year similar programs mounted by other groups, period became a reality.After nearly a decade more members of the research community are of effort, this “doubling” is already paying becoming proficient, highly effective extraordinary dividends to our nation’s health advocates. and economy.It is a time to celebrate. It also • Focus on prevention. Decision makers and sets the stage for what we must do in 2003 the public are becoming increasingly aware of and beyond to sustain strong support for the critical importance of prevention in research—in federal agencies, the private containing the human and economic costs of sector and academia. disease and disability.Our job is to ensure • Invest in science broadly. Working with that with this new awareness comes a partners in advocacy,we expanded our recognition that only informed prevention— polling and outreach work to make certain we based on research—will achieve societal goals. were capturing and promulgating the backing Prevention research is pitifully underfunded: of the American public for increased Less than one cent of every health care dollar investment in the scientific enterprise. is spent on prevention research. We are working to change that.

Research!America 2002 ANNUAL REPORT 2 After nearly a decade of “ effort, the doubling of the NIH budget is already paying extraordinary dividends to our nation’s health and economy. • Make the economic case for research. It is a time to celebrate. Through our disease-specific fact sheets, a partnership effort undertaken with the Mary ” Woodard Lasker Foundation, we are spelling out the specific ways in which research saves Only about half the U.S. population can money and lives. Our Research Partners name a single place where research is Forums with government, industry and conducted; we must work together to academia demonstrate to local, state and rectify this. federal decision makers that research pays off • Speak to timely issues. Research!America’s in every segment of society.The first award in strategic action alerts and polling on 2002 of the Eugene Garfield Economic emerging issues are effective, ongoing Impact of Medical and Health Research member services. These materials help Award is yet another step toward our goal researchers and advocates for research weigh to make the economic case for research. in on the controversial issues of our day, including therapeutic cloning and animal research.

In the year ahead, we will continue to work diligently on our advocacy agenda, making Research!America effective use of the funding entrusted to us by board member Hon. members and generous donors, including The John Edward Porter at the 2002 Annual Robert Wood Johnson Foundation with its Forum. extraordinary support of our Prevention Research Initiative. As we work to take the message of research to the public and our decision makers, Dr. Alan Leshner (left) and Al Hunt at the 2002 Annual Forum. we will also celebrate those whose commitment to advocacy inspires us all. • Engage in public outreach. We have long We hope you will savor the success stories in been dedicated to learning about public our 2002 Annual Report. We look forward to attitudes toward research, researchers and your continued participation in our broad and the institutions that conduct research. growing alliance. Research!America believe it is essential to gather these data to help our members shape their outreach activities. Knowing both the positives and the relatively few negatives in Mary Woolley Paul G. Rogers the mind of the public is critical to engaging President Chair in dialogue and changing public perceptions.

Research!America 2002 ANNUAL REPORT 3 closer to home MEDICAL AND HEALTH RESEARCH IMPROVES OUR QUALITY OF LIFE. Sustaining Research for a Healthy America

he American public wants research to succeed. They understand that such success requires strong and sustained investment. Our T citizenry continues to speak out on this matter, insisting that the hope and promise of research be realized.

In the mid-1990s, in partnership with our government agencies as the Centers for Disease members representing more than 40 million Control and Prevention, National Science Americans, Research!America played a leadership Foundation and the Agency for Healthcare role in launching the most ambitious advocacy Research and Quality.Increased funds for campaign ever for federal research funding. medical and health research requires strong The U.S. Congress and the White House, stewardship. Fortunately,leading our nation’s working with extraordinary bipartisan federal research and public health agencies are commitment, responded by doubling the budget exceptionally talented men and women, including of the National Institutes of Health (NIH) over a the following: five-year period. This historic action, completed • Richard Carmona, MD, U.S. Surgeon shortly after the end of 2002, demonstrates a General national commitment to bringing better • Carolyn Clancy,MD, Director, Agency for treatment, cures and prevention to America—a Healthcare Research and Quality commitment to protecting our nation through • Rita Colwell, PhD, Director, National Science research. Foundation We are honored to have played a pivotal role • Julie Gerberding, MD, Director, Centers for in this effort, but recognize that the true celebrants Disease Control and Prevention and beneficiaries are the American people— • Mark McClellan, MD, PhD, Commissioner, particularly those facing medical challenges Food and Drug Administration together with their families. • Elias Zerhouni, MD, Director, National Additionally,Research!America is committed Institutes of Health to growth in the research investment in such

Richard Carmona, Carolyn Clancy, MD Rita Colwell, PhD Julie Gerberding, Mark McClellan, Elias Zerhouni, MD MD MD MD, PhD

Research!America Background: Photodisc Green; Inset:White, Nick Vision, Digital Photodisc Green. Getty Images. 2002 ANNUAL REPORT 5 America Speaks! The Public Weighs In on Results of Research!America surveys on public attitudes about Prevention Research scientific and medical research appear throughout this report. Since the 2001 launch of Research!America’s Prevention Research Initiative (PRI), supported Americans Strongly Support Health Disparities Research by The Robert Wood Johnson Foundation, we Studies show that certain health problems such as diabetes, heart disease and have been surveying the attitudes, values and infant mortality happen more often among citizens with lower incomes and minorities. How important do you feel it is to conduct medical or health research opinions of the public, decision makers and to understand and eliminate these differences? opinion leaders on the role of prevention research in our nation’s research enterprise. Despite incredible advances in research and medicine spanning several decades, 40 percent of deaths in the United States can be linked to preventable conditions. Yet,less than one cent of the nation’s health care dollar is spent on prevention research. Research!America’s Prevention Research Public Believes Preventable Diseases Are a Initiative promotes awareness of prevention Major Health Problem research as the bridge between health research Are preventable diseases and injuries in this country today a major health and those practices that can lead to a healthier life. problem, a minor health problem or not a problem? Thus, in 2002, Research!America continued its work with stakeholders in medical and health research, including basic science, industry-based, quality of care and patient safety research, making the case for strong public support of the nation’s research enterprise. As an alliance with a unified viewpoint, we can help sustain and accelerate the momentum gained by research in recent years. Strong research leadership supported by U.S. Should Remain a World Leader in Scientific Research increases in funding that keep pace with scientific How important do you think it is that the U.S. maintain its role as a world opportunity can provide millions of Americans leader in scientific research? with better health and an improved quality of life for generations to come.

NOTE: All poll data aggregate 2002.

Michael McGinnis, MD, of The Robert Wood Johnson Foundation at the Southern Illinois University Media-Scientist Roundtable in Carbondale.

Research!America 2002 ANNUAL REPORT 6 Prevention research costs some “ money, but when you look at its appreciable gains, it is the best investment we can make.

Vice Admiral Richard Carmona, MD U.S. Surgeon General ”

America Speaks! More Should Be Spent on Prevention Research Currently the U.S. spends about one cent of every health care dollar on prevention research. Do you think this is too much, too little or about right?

Mary Woolley and Vice Admiral Dr. Richard Carmona, U.S. Surgeon General, at the October 27–28 roundtable, The Media and Health Research: Informing the Public, in Carbondale.

NOTE: Data aggregate 2002. Prevention Research Initiative Advisory Council, 2002

William Roper, MD, MPH Deborah I. Dingell Gordon P.MacDougall John Seffrin, PhD Dean Vice Chair, President President CEO University of North Carolina General Motors Foundation/GM Beacon Consulting Group, Inc. American Cancer Society Chair Corp. Margaret E. Mahoney Mary C. Selecky Drew Altman, PhD Candace Fleming, PhD President Secretary of Health President Associate Professor & Director MEM Associates Washington State Department of Kaiser Family Foundation of Training Health Health Science Center Marion Nestle, PhD, MPH Byllye Avery, MEd University of Colorado Health Professor & Chair Harold Slavkin, DDS Founder Sciences Center Department of Nutrition & Food Dean National Black Women’s Studies School of Dentistry Health Project Elaine K. Gallin, PhD New York University University of Southern California Program Director, Medical Research Georges C. Benjamin, MD Doris Duke Charitable Foundation William D. Novelli Alfred Sommer, MD, MHS Executive Director Executive Director Dean American Public Health Association Jessie Gruman, PhD AARP Johns Hopkins University Executive Director Bloomberg School of Public Health Barry Bloom, PhD Center for the Advancement of Michael P.O’Donnell, PhD, Dean, School of Public Health Health MBA, MPH Harrison Spencer, MD Harvard University Editor-in-Chief & President President & CEO George E. Hardy, Jr. MD, MPH American Journal of Health Association of Schools of Myrna Blyth Executive Director Promotion Public Health Editor-in-Chief & Publishing Director Association of State & Territorial Ladies Home Journal Health Officials Sandra Raymond C. Charles Stokes, Jr. President & CEO President & CEO Mary K. Chung, MBA Martha N. Hill, PhD, RN, FAAN Lupus Foundation of America CDC Foundation President Dean Iris Alliance Fund The Johns Hopkins University Jordan H. Richland, MPH Hon. Louis W. Sullivan, MD School of Nursing Executive Director President Emeritus Noreen Clark, PhD American College of Preventive The Morehouse School of Medicine Dean & Professor Anne Marie Joseph, MD, MPH Medicine University of Michigan Associate Professor of Medicine Steven Teutsch, MD Veterans Administration Medical Kathleen Roe, PhD, MPH Senior Director John M. Clymer Center President Outcomes Research & Management President San Jose University Merck & Company, Inc. Partnership for Prevention Philip R. Lee, MD Society for Public Health Education Professor Emeritus & Senior Advisor Ruth Wooden Dominick P.DePaola, DDS, PhD Institute for Health Policy Studies Honorable Paul G. Rogers Senior Counselor & Chair President & CEO University of California San Partner Public/Private Initiatives The Forsyth Institute Francisco Hogan & Hartson Porter Novelli School of Medicine Jonathan M. Samet, MD, MS Professor & Chair Department of Epidemiology Johns Hopkins University Research!America 2002 ANNUAL REPORT 7 closer to home RESEARCH MAKES FOR HEALTHIER CITIZENS AND HEALTHIER ECONOMIES.

Research!America 2002 ANNUAL REPORT 8 Serving the Public Interest

esearch!America is recognized for its ability to bring decision makers and advocates for medical and health research together to R work on serving the public interest. Our outreach framework, the 435 Project®, celebrated its sixth year in 2002. It provides advocates across the nation with messages and tools that build a unified voice for research. Under the co-chairmanship of former U.S. Senator Paul Simon and former U.S. Secretary of Health and Human Services Louis Sullivan, MD, the project develops and delivers advocacy programs and outreach that bring the promise and hope of research closer to home. Richard Klausner, MD, of the Bill and Melinda Gates Foundation, at During 2002, Research!America partnered the Vanderbilt University Media- with diverse entities to bring our signature media- Scientist Roundtable in Nashville. scientist forums and roundtables to communities across the country.Through partnerships with Vanderbilt University and The Tennessean, Pfizer Inc and the University of Michigan, the University of Alabama at Birmingham and the Industry Roundtable, these programs continued to help Linda Mays, ABC journalists and scientists work together more Birmingham affiliate news anchor, at the Media- effectively. Scientist Roundtable at the Research!America’s cultivation of a University of Alabama, Birmingham. relationship between media and science as each Former Senator Paul Simon at the Southern Illinois University Media- strives to serve the public’s Scientist Roundtable in Carbondale. interest was showcased by Research!America and the October 27–28 at the university.Here, participants Paul Simon Public Policy underscored the importance of increased resources Institute of Southern Illinois for prevention research, and the role that both the University,Carbondale. The media and science play in making that happen.

Gil Omenn, MD, PhD, Media-Scientist Roundtable, U.S. Surgeon General Richard Carmona, MD, at the University of part of Research!America’s articulated the need for increased medical and Michigan Research Partners Forum, Ann Prevention Research health research, including prevention research, Arbor. Initiative, was held in his keynote address.

Research!America Background:Thornton; Inset: Alan The Moment,Vision, Digital Biondo Productions. Getty Images. 2002 ANNUAL REPORT 9 America Speaks! Community-based partnering organizations ® Public Sees Value in Health Services Research are vital to the 435 Project . During 2002, One kind of research, called health services research, seeks to Research!America enhanced its partnership with understand why there are differences in quality of care and outcomes for the National Coalition of 100 Black Women.Led patients. How do you perceive the value of this kind of research? by Research!America Board Member Jewell Jackson McCabe, the National Coalition’s extensive network of liaisons in the field complemented the work of Research!America advocates who speak out on behalf of medial and health research. The 435 Project® and its media-scientist roundtables, research partners forums, grassroots NOTE: Data aggregate 2002. initiatives and other dedicated advocacy nationwide enable Research!America to work on 435 Project® National Leadership Council, 2002 behalf of and serve the public interest. The Honorable Paul Simon Alan Holmer (Co-Chair) Pharmaceutical Research and Southern Illinois University at Manufacturers of America Carbondale Neen Hunt, EdD Louis W. Sullivan, MD Mary Woodard Lasker (Co-Chair) Charitable Trust Morehouse School of Medicine Leah Mullin Pamela Bailey Juvenile Diabetes Foundation Advanced Medical Technology International Association (AdvaMed) The Honorable Paul G. Enriqueta Bond, PhD Rogers Burroughs Wellcome Fund Research!America

Roger J. Bulger, MD Leon E. Rosenberg, MD Chicago Commissioner of Public Health John Wilhelm, MD, MPH, Association of Academic Health Princeton University at a media conference releasing poll data showing Illinoisans’ strong Centers support of prevention research. John Rother Gail H. Cassell, PhD AARP Eli Lilly and Company Larry Sadwin Information is power. Jordan J. Cohen, MD American Heart Association Association of American Research!America, in Medical Colleges John R. Seffrin, PhD “ American Cancer Society listening to the community, Sam Donaldson ABC News John Seigenthaler reveals the most powerful The First Amendment Center Carl Feldbaum information of all. The Biotechnology Industry Phillip A. Sharp, PhD Organization Massachusetts Institute of City of Chicago will put this Technology Harvey Fineberg, PhD power to work as we confront Harvard University John W. Suttie, PhD University of Wisconsin- health challenges. M.R.C. Greenwood, PhD Madison University of California, Santa John Wilhelm, MD, MPH Cruz Reed V. Tuckson, MD Commissioner ” UnitedHealth Group Chicago Department of Public Health

Research!America 2002 ANNUAL REPORT 10 Participants in the University of Michigan Research Partners Forum toured Pfizer Inc’s Ann Arbor research and development lab.

Gauging Public Perceptions Northwestern University and Southern Illinois Protecting our nation in times of international University,Carbondale. crisis, ensuring economic vitality and realizing To publicize the strong public support for every family’s hope for good health and quality of scientific research, Research!America also life are challenging issues. Such contemporary partnered with a host of other influential concerns require that our nation’s leaders listen organizations over the year. They included the and respond to the voice of the American public. American Heart Association, Coalition for the Research!America is dedicated to monitoring Advancement of Medical Research, North public sentiment on a wide range of issues related Carolina Association for Biomedical Research to medical and health research. To date, we have and Society for Neuroscience. conducted public opinion polls in 42 states. Results consistently reflect the high priority that the public assigns to the nation’s research America Speaks! enterprise. Congress Should Support Incentives Encouraging Board members, organization members, Medical Research advocates in the field and elected and appointed Congress should support tax and regulatory policies that encourage private officials routinely cite data from these public industries to conduct more medical research. Do you agree or disagree? opinion polls. These data are, indeed, powerful advocacy tools. The ability to illustrate strong constituent support for medical and health research is invaluable when making the case for a strong, sustained investment in the nation’s research enterprise. Research!America’s poll data underscoring the need for increased prevention research were NOTE: Data aggregate 2002. presented to state and local leaders in 2002. Partnering with us through the year were the Association of Schools of Public Health, Connecticut Commission on Children, DC Safe Kids Coalition, Illinois and Chicago Departments of Public Health, University of Illinois at Chicago,

Research!America 2002 ANNUAL REPORT 11 closer to home THE MEDIA HELP COMMUNICATE THE IMPLICATIONS OF RESEARCH ADVANCES TO THE PUBLIC. Engaging the Media

esearch!America’s public outreach activities, poll data, advocacy messages and testimony generated strong media coverage in 2002 and R helped bring the research message closer to home. Spotlighted below are some of the mentions that Research!America and its work netted in the mainstream and trade press.

January Nature. Published an article discussing President Bush’s FY 2003 budget proposal, citing Research!America as a leader in advocacy for research.

The Scientist. Spotlighted our Prevention Research Initiative and science outreach programs. Chair Hon. Paul G. Rogers, President

Mary Woolley and Director of Science Outreach Allen Lichter, MD, dean, University of Michigan Medical School, and Christine Brown, PhD, were quoted prominently. Mary Morgan, business editor, Ann Arbor News, at the Research Partners Forum, University of Michigan. U.S. News & World Report. Cited Research!America’s public-opinion poll data The Washington Post, Washington Times and Roll emphasizing public support of the role research Call. Ran an ad spearheaded by Research! plays in preparing for and defending against America, in which 14 Research!America bioterrorism. members and partner organizations thank President Bush for proposing a $3.7 billion Boston Globe. Quoted Research!America Vice increase in the FY 2003 NIH budget. The signers President Bill Leinweber in an article discussing represent a wide range of medical and health President Bush’s proposal to increase the research interests. National Institutes of Health budget by 16 percent in FY 2003, which would be the final Daily Herald, Morning Call, Patriot News, Quad Ken Bode, former dean payment in the campaign to double the NIH City Times, Sioux City Journal, The Gazette, The of the Medill School of budget over five years. Repository, Times Leader and Waterloo Courier. Journalism, Northwestern Ran ads spearheaded by Research!America and University, at our February the Ad Hoc Group for Medical Research October 27–28 Media- Scientist Roundtable American Journal of Public Health. Cited Funding thanking the Senate and House Labor, at the Public Policy Research!America in an article highlighting the Health and Human Services and Education Institute at Southern Illinois University in relationship between ethics and public health. Subcommittee and the leadership of Senators Carbondale. Specter of Pennsylvania and Harkin of Iowa and

Research!America Background:Barry Rosenthal; Inset: David Joel,Tisne, Jerome John Feingersh. Getty Images. 2002 ANNUAL REPORT 13 Dallas Business Journal. Published an article detailing research designed to protect Americans from threats of bioterrorism, referencing our 2001 national poll on public support of bioterrorism research and our 2000 Texas Poll.

June Ann Arbor News. Highlighted the importance of medical and health research to the local Ann Arbor community.Business Editor Mary Morgan also wrote about her involvement in Research!America’s Research Partners Forum held in cooperation with the University of

Bill McGowan, executive vice president of Discovery Communications; Michigan and Pfizer Inc. Kathy Sawyer, Washington Post science reporter; and Jim Hartz, former “Today” show co-host, at the Vanderbilt University Media- Scientist Roundtable in Nashville. Dallas Morning News. Published an article about U.S. Surgeon General nominee Richard Carmona, MD. Research!America Associate Representatives Regula of Ohio and Obey of Director of Public Affairs Matthew Bowdy was Wisconsin for their support of the historic quoted in the piece. increases in the FY 2003 NIH budget.

March San Francisco Chronicle. Reported Research!America has surveyed Research!America’s presentation of its 2002 “ Americans from many walks of life. Advocacy Award to comedian and research The results are stunning. In terms of advocate Jerry Lewis. national priorities, almost all April Americans want more money for Journal of the American Medical Association. medical and health research. A Cited Research!America as a primary source of information on public support for basic science striking 88 percent of Americans research. want the United States to remain a world leader in medical research and feel more favorably toward candidates who support increased funding for research to find treatments and cures for disease.

Dr. Michael DeBakey Houston Chronicle commentary, ” December 29, 2002

Research!America 2002 ANNUAL REPORT 14 Bruce Japsen, Chicago Tribune health America Speaks! reporter, at the Southern Illinois Public Trust in Sources of Research Information University Media- As you are probably aware, there are many sources of information Scientist Roundtable in about medical and health research issues. For each source mentioned, Carbondale. how trustworthy do you think the information they provide is?

September U.S. Medicine. Explored the debate over whether to move bioterrorism research out of the Department of Health and Human Services to the then-proposed Department of Homeland Security.Mary Woolley and Board Member Susan Scrimshaw,PhD, were quoted.

October National Public Radio-Southern Illinois and WSIL-TV aired several broadcasts featuring the remarks of U.S. Surgeon General Richard Carmona at a media-scientist roundtable focused on prevention research. The event was sponsored by Research!America’s Prevention Research Initiative and the Public Policy Institute of Southern Illinois University.The Southern Illinoisan published an article on the same topic.

November Washington Fax. Published an article about Public Willing to Pay More Taxes to Fund Research Surgeon General Carmona’s new policy initiative Would you be willing to pay $1 per week more in taxes for more health research, or not? setting prevention research as a priority and called for increased funding of prevention research. The article featured Carmona’s address at the media- scientist roundtable sponsored by Research!America and the Public Policy Institute of Southern Illinois University.

December The New Republic. Interviewed Mary Woolley about the responsiveness of NIH to the public’s NOTE: Data aggregate 2002. interest in research.

The Houston Chronicle. Published a commentary by Research!America Board Member Michael E. DeBakey,MD, in which he called on Congress to complete the job of doubling the NIH budget.

Research!America 2002 ANNUAL REPORT 15 closer to home WHEN SCIENTISTS SPEAK, PEOPLE LISTEN.

Research!America 2002 ANNUAL REPORT 16 Making the Case to Decision Makers

f resources keep pace with scientific opportunity, the potential of medical and health research to bring improved health status and quality of life to I people everywhere will be realized. Delivering this message to the nation’s decision makers requires the collective and collaborative efforts of numerous advocates.

Through advocacy workshops, including David Skorton, MD, president, and Research!America works with scientists, Robert Kelch, MD, vice president for health educators, patient advocates and others services at the university; and Mary Hendrix, committed to communicating the importance of PhD, past president of the Federation of research and investment in the nation’s research American Societies for Experimental Biology enterprise to their families, communities, the and currently head of the Anatomy and Cell media and elected and appointed officials. Biology Department, University of Iowa, In 2002, leaders at the University of Iowa, trumpeted the advocacy message at a

Dr. Mary Hendrix of the University of Iowa explains her research on the molecular and genetic composition of tumor cells to Senator Tom Harkin.

Research!America Background: The Moment; Inset: Julia Smith, Seifert, Frank Gridley. Peter Getty Images. 2002 ANNUAL REPORT 17 One in our series of disease-specific fact sheets.

with the leadership of the National Perinatal Campaign for Medical Research Chairman John Whitehead, center, pictured with Association, Research!America advocacy trainers CMR senior advisers: (left) Hon. John Edward Porter and Hon. Connie Mack; (right) Hon. Paul Rogers and Hon. Bob Michel. Not pictured is former Sen. Mark Hatfield. emphasized the critical role of the public voice in bringing greater resources and support to research. Research!America-sponsored advocacy Another way Research!America conveys the workshop at the University of Iowa School of importance of research to decision makers is Medicine. Just a few weeks before, Hendrix had through a unique series of disease-specific fact hosted Senator Tom Harkin in a tour of her sheets developed in partnership with research lab. At the workshop, she urged her Lasker/Funding First. These one-pagers, which research colleagues to speak out about research at focus on a spectrum of diseases including cancer, schools and before civic organizations and to diabetes, and heart disease and stroke, underscore educate congressional representatives on the that investment in research saves lives and money. importance of research. At an advocacy workshop Members of Congress, state leaders and patient advocates have told us these materials are incredibly valuable.

As a member of the U.S. Senate, it is “incumbent upon me to hear the public voice about important issues. Research!America, through its national surveys, gives me added evidence of the importance of medical and health This ad ran in several Washington, research to our citizenry—information DC, newspapers in February, necessary to make informed decisions applauding the President for his where the public’s welfare is concerned. commitment to complete the NIH Senator Arlen Specter doubling. Chairman, Subcommittee on ” Labor, Health and Human Services, Education and Related Agencies

Research!America 2002 ANNUAL REPORT 18 America Speaks! Research!America has also brought the Likeliness to Vote for Candidate message of research closer to home through Would you be more or less likely to vote for a candidate for a public dialogue with research leadership. CDC Director office if he or she supported increased funding for the following? Julie Gerberding, MD, spoke to our Board of Directors about the need for strong support of prevention and public health research. Secretary of Health and Human Services Tommy Thompson toured research facilities at the University of Colorado Health Sciences Center with Research!America Board Member Jay Gershen, DDS, PhD. Hon. John Edward Porter, former chairman of the House Labor, Health and Human Services and Education Subcommittee, addressed the Society for Neuroscience on the More Likely need for scientists to carry to members of NOTE: Data aggregate 2002. Congress their urgent message of the hope inherent in research and the need for increased funding for this research. Decision makers in local communities, state houses and the federal government will keep hearing such clarion calls for more research so that future generations of Americans can enjoy improved health.

Talks and Testimony During 2002, Research!America’s chair, president, board and staff educated communities throughout the nation about the importance of medical and health research advocacy.Following are some selected speaking engagements where Research!America brought the hope of research Senators Tom Harkin of Iowa and Arlen Specter of Pennsylvania, with NIH closer to home. leadership at a July 19 press conference announcing that the FY2003 Labor, Health, Human Services and Education (LHHS) appropriations bill will complete the 5-year doubling effort for the NIH budget. January Association of University Research Parks Cystic Fibrosis Foundation International/American Association for Dental Pharmacy School Chairs Research Meeting Research New Jersey Association for Biomedical Research February National Heart, Lung and Blood Institute April Johns Hopkins Bloomberg School of March Public Health Association of American Universities Michigan Society for Medical Research Centers for Disease Control and Prevention Vanderbilt University

Research!America 2002 ANNUAL REPORT 19 A new and potentially powerful “ player in getting out the word May [regarding the benefits of prevention Friends of the National Institute of Dental and research] is the nonprofit education Craniofacial Research National Institute of Environmental Health and advocacy alliance of 460 Sciences public and private organizations New Jersey Chapter of the National Coalition known as Research!America. of 100 Black Women University of Alabama, Birmingham The Scientist, January 7, 2002 ” June The Doris Duke Charitable Trust Washington University September American Heart Association July American Public Health Association Buck Institute for Age Research University of Iowa College of Medicine Columbia University Center for Science, University of Illinois at Chicago School Policy,and Outcomes of Public Health The Forsyth Institute October Academy for Health Services Research and Health Policy America Speaks! American Society of Human Genetics Many Don’t Know if Their Elected Officials Harvard School of Public Health Support Research Paul Simon Public Policy Institute of Southern How well informed would you say you are regarding the stance of Illinois University your elected officials when it comes to their support of medical, health and scientific research? November Association of Schools of Public Health National Association of State University and Land Grant Colleges National Institutes of Health Office of Public Liaison Society for Neuroscience Society of Professional Journalists

NOTE: Data aggregate 2002. December Federal Biodefense Research Conference National Conference on the Advancement of Research National Perinatal Association Annual Conference Seventh International Conference on Public Communication of Science and Technology

Research!America 2002 ANNUAL REPORT 20 The Edwin C. Whitehead Award for Medical Research and Advocacy Celebrating Visionaries esearch!America’s Sixth Annual Advocacy Awards Dinner on March 19 at the National Academy of Sciences in Washington, DC, R celebrated unparalleled advocacy on behalf of medical and health research. Here, visionary advocates from across the country were honored for their tireless efforts to convey the promise and hope of medical and health research. Senator Tom Harkin was honored with Labor Day Telethon bearing his name to his more Research!America’s pinnacle award, the Edwin than 50 years of dedication to the cause of finding C. Whitehead Award for Medical Research new treatments and a cure for muscular Advocacy,for his championship of medical and dystrophy,Lewis’s efforts have helped to bring health research in Congress. Senator Harkin was the promise and hope of medical research closer instrumental in ushering in and shepherding to to home. success the campaign to double the NIH budget. Robert N. Butler, MD, was honored with the Awards also went to the following Award for Sustained Leadership at the National visionaries. Level for his many years of dedication to research Jerry Lewis was honored with the inaugural on the process of aging and age-related disorders. Isadore Rosenfeld Award for Impact on Public Indeed, his research laid the groundwork for the Opinion Through the Media. Ranging from the field of geriatric medicine.

Honorary Chairs for Research!America's 2002 Advocacy Awards Dinner: (from left) Walter Anderson, chairman and CEO, Parade Magazine; Mary Sue Coleman, president, University of Iowa; Isadore Rosenfeld, MD, Rossi Distinguished Professor of Medicine, Weill Medical College of Cornell University; Herbert Pardes, MD, president, NewYork-Presbyterian Hospital; John Forsyth, chairman and CEO, Wellmark®, Inc.; Mary Woolley, president, Research!America; and Michael DeBakey, MD, chancellor emeritus, Baylor College of Medicine.

Research!America 2002 ANNUAL REPORT 21 Research!America Board Member and Campaign for Medical Research Chairman John Whitehead presents Senator Tom Harkin with Research!America's Edwin C. Whitehead Award for Medical Research Advocacy.

Research!America President Mary Woolley presents Constance Lieber with the Research!America Award as a Volunteer Advocate for Medical or Other Health-Related Research, as husband Stephen Lieber looks on.

Left: On behalf of Jerry Lewis, Parade Magazine Chairman and CEO Walter Anderson accepts Research! America's Isadore Rosenfeld Award for Impact on Public Opinion Through the Media. Isadore Rosenfeld, MD (left), and Michael DeBakey, MD (center), were on hand for the presentation. Research!America Chair Hon. Paul G. Rogers (center) presents FASEB's Robert Rich, MD (left), and Sidney Golub, PhD, with the Research!America Award for the Organization That Has Distinguished Itself by Its Advocacy.

Research!America Chair Hon. Paul G. Rogers (left) and President Mary Woolley (right) present Robert Butler, MD, with Research!America's Advocacy Award for Sustained Leadership at the Research!America Chair Hon. Paul G. Rogers (left) and President Mary National Level. Woolley (second from right) present Judy Woodruff and Al Hunt with the Research!America Award for Exceptional Contributions as Volunteer Advocates for Medical or Other Health-Related Research.

Research!America 2002 ANNUAL REPORT 22 Through the celebration of “ visionary advocates for medical research, Research!America Al Hunt and Judy Woodruff were honored with the Award for Exceptional Contributions as rightly shines a spotlight on those Volunteer Advocates for Medical or Other who every day bring the message Health-Related Research. Ever since learning of research and the benefits of their son had spina bifida, this husband and wife team has used all the resources they can muster to that research closer to home. advocate increased support for medical and It is from their example that quality-of-life-related research for people living we will achieve our goal of with spina bifida. bringing better health and Constance Lieber was also honored with the Research!America Award for Exceptional quality of life to all Americans. Contributions as a Volunteer Advocate for Former Senator Mark O. Hatfield Medical or Other Health-Related Research. ” Lieber has spent a lifetime advocating for increased resources for mental health research. 2002 Advocacy Awards Her involvement in the National Alliance for Dinner Sponsors Research on Schizophrenia and Depression, which she founded in 1986, helps to ensure that Host Benefactors the importance of this research is made public. Wellmark® BlueCross BlueShield Federation of American Societies for The Federation of American Societies for Experimental Biology Experimental Biology (FASEB) was honored with the Award for the Organization That Has Award Sponsors Rosenfeld Heart Foundation, Inc. Distinguished Itself by Its Advocacy.For more Whitehead Charitable Foundation than 90 years, FASEB has been a leader in advocacy for research. FASEB strives to enhance Reception Sponsors the ability of biomedical and life scientists to Parade Magazine Purdue Pharma L.P. improve, through research, the health, well-being and productivity of all people. Program Sponsor Chair Paul G. Rogers noted, “Tonight is a Forest Laboratories, Inc. celebration of advocacy for research, and we have Sponsors plenty of reasons to celebrate. The visionary Aetna Inc. advocates we honor . . . have dedicated their lives CaP CURE and the National Prostate Cancer to bringing research into their communities. They Coalition Eli Lilly and Company share their passion with their families, their NewYork–Presbyterian Hospital neighbors and their elected officials. Thanks to Pfizer Inc their advocacy . . . lives are being saved: the lives Sanford and Jeanne Robertson of our family members, our children and Friends grandchildren.” American Cancer Society American Heart Association Anonymous Association of American Medical Colleges Mary Woodard Lasker Charitable Trust Merck & Co. Spina Bifida Association Foundation University of Colorado System Vanderbilt University and Medical Center The Starstream Award Wyeth Pharmaceuticals Research!America 2002 ANNUAL REPORT 23 Research!America Honors Doctor and Economist With Inaugural Award for Economic Impact of Medical and Health Research Selection Committee, The Eugene Garfield Economic Impact of Medical and Health Research Award, 2002 Jordan Cohen, MD President Association of American Medical Colleges Chair Janet Currie, PhD Professor of Economics University of California at Los Angeles David Cutler, PhD Professor of Economics Harvard University Edward Penhoet, PhD Dean Eugene Garfield, PhD, and David Meltzer, MD, PhD, at the Research!America award ceremony at University of California the GlaxoSmithKiline headquarters in Philadelphia. at Berkeley School of Public Health avid Meltzer, MD, PhD, was honored by Research!America in 2002 Samual Silverstein, MD Chair, Department of with the inaugural Eugene Garfield Economic Impact of Medical Physiology and Cellular and Health Research Award. A professor in the departments of Biophysics D College of Physicians and medicine and economics at the University of Chicago, Meltzer accepted his Surgeons, Columbia award during a ceremony held at the GlaxoSmithKline headquarters in University Philadelphia on July 10. Hugo Sonnenschein, PhD President Emeritus The award is named in honor of its generous benefactor, Eugene Garfield, University of Chicago PhD. Garfield is the founder of the science-citation indexing system—an John Sherman, PhD indispensable tool used by scientists across many research disciplines. He is Committee Advisor president and editor-in-chief of The Scientist, a biweekly news journal for life scientists, and a member of the Research!America Board of Directors. Meltzer was recognized for his work to merge the fields of economics and medicine. In publications such as the Journal of Health Economics, Meltzer developed unique methods to help decision makers use the tools of medical cost-effectiveness Jordan Cohen, MD, analysis to assess the potential benefits of biomedical research. Chair David Meltzer, Such methods could be used both to set priorities for MD, PhD research projects and to help identify when further spending on research might be expected to yield substantial returns.

Research!America

2002 ANNUAL REPORT Background:George Chan. Inset: Christian Michaels, Kawalerski, Ted James Sherman. Getty Images. 24 closer to home STRONG LEADERSHIP YIELDS POSITIVE RETURNS.

Research!America 2002 ANNUAL REPORT 25 Financials, 2002

Expenses: $2,886,979

Revenue and Support: $2,784,746

In addition to the above funds, $102,233 was used from assets accumulated in prior years. Renner and Company, an independent corporation of Reserve Fund as of December 31, 2002: $664,136 certified public accountants, conducted an audit of Research!America’s financial statements for the year ending December 31, 2002. A complete copy of our audited financial statement is available upon request.

Audit Committee Members Gail H. Cassell, PhD, Chair Kenneth I. Berns, MD, PhD Yank D.Coble, MD Eugene Garfield, PhD

Research!America 2002 ANNUAL REPORT 26 Major Donors, 2002

Ad Hoc Group Merck & Co., Inc. Adrian & Jessie Archbold Charitable Trust National Health Council Aetna U.S. Healthcare National Prostate Cancer Coalition Albert and Mary Lasker Foundation/ NewYork-Presbyterian Hospital Mary Woodard Lasker Charitable Trust Parade Magazine American Cancer Society Parkinson’s Action Network American Diabetes Association William A. Peck, MD American Heart Association Pfizer Inc American Psychiatric Association The Honorable John Edward Porter American Society for Microbiology Porter Novelli William Anlyan M.D. Purdue Pharma, L.P. Association of American Medical Colleges Robert Wood Johnson Foundation Association of American Universities Sanford R. & Jeanne Robertson Trust Gerald W.Blakeley, Jr. The Honorable Paul G. Rogers William R. Brinkley, PhD Rosenfeld Heart Foundation, Inc. Bristol-Myers Squibb Company Isadore Rosenfeld, MD Roger J. Bulger, MD John W.Rowe, MD Burroughs Wellcome Fund Dr. Raymond R. & Beverly Sackler CapCURE Charles A. Sanders, MD China Medical Board M. Roy Schwarz, MD Yank D.Coble, Jr., MD John F. Sherman, PhD Jordan J. Cohen, MD Samuel C. Silverstein, MD D. Walter Cohen,DDS Southern Illinois University School of Medicine Michael E. DeBakey,MD Spina Bifida Association Foundation Dominick P.DePaola, DDS, PhD Louis W.Sullivan, MD Sam Donaldson UnitedHealth Foundation Eli Lilly and Company University of Alabama Eugene Garfield Foundation University of Colorado System FASEB University of South Dakota Forest Laboratories, Inc. Vanderbilt University and Medical Center Jay A. Gershen, DDS, PhD Alan G. Walton,DSc, PhD William Golden Washington University School of Medicine Martha N. Hill, RN, PhD Wellmark® BlueCross BlueShield, Inc. Juvenile Diabetes Research Foundation International Whitehead Charitable Foundation Joseph H. Kanter John Whitehead Thomas W.Langfitt, MD Judy Woodruff Ellen Levine Mary Woolley Mary Ann Liebert, Inc. Wyeth Pharmaceuticals Merck Company Foundation Tadataka Yamada,MD

Research!America 2002 ANNUAL REPORT 27 Members, 2002

Finch University of Health The Massachusetts General The Pennsylvania State Academia, Hospitals Sciences/The Chicago Hospital University College of and Independent Medical School Massachusetts Institute of Medicine Research Institutes Florida State University Technology Purdue University School of The Forsyth Institute Mayo Foundation Pharmacy Baylor College of Dentistry Fox Chase Cancer Center McLaughlin Research RAND Health Baylor College of Medicine Friends Research Institute, Institute Research Foundation for Baylor College of Medicine- Inc. Medical College of Georgia Mental Hygiene, Inc. Graduate School of The J. David Gladstone The Medical College of The Research Institute, Biomedical Sciences Institutes Wisconsin University Hospitals of The Blood Center of Harbor-UCLA Research & Medical and Health research Cleveland Southeastern Wisconsin Education Institute, Inc. Association of New York Rice University Boston Biomedical Research Harvard Medical School City The Rockefeller University Institute Harvard School of Public Medical University of South Rush-Presbyterian-St. Boston University School of Health Carolina Luke’s Medical Center Dental Medicine Harvard School of Dental Meharry Medical College Saint Louis University Boston University School of Medicine School of Dentistry School of Medicine Public Health Hauptman-Woodward Meharry Medical College Saint Louis University Brown Medical School Medical Research School of Medicine School of Public Health Buck Institute for Age Institute, Inc. Memorial Sloan-Kettering The Salk Institute for Research Johns Hopkins Bloomberg Cancer Center Biological Studies The Burnham Institute School of Public Health Mercer University School of Schepens Eye Research Burns & Allen Research The Johns Hopkins Medicine Institute, Inc. Institute Cedars-Sinai University School of Miami Children’s Hospital The Smith-Kettlewell Eye Medical Center Medicine Morehouse School of Research Institute California Institute of The Johns Hopkins Medicine Southern Illinois University Technology University School of Mount Sinai Medical Center School of Medicine Carnegie Institution of Nursing National Jewish Medical and Southwest Foundation for Washington Howard Hughes Medical Research Center Biomedical Research Case Western Reserve Institute New Jersey Dental School Stanford University School University School of Howard University College New York Blood Center of Medicine Dentistry of Medicine New York Medical College State University of New Case Western Reserve Fred Hutchinson Cancer NewYork-Presbyterian York at Albany University School of Research Center Hospital State University of New Medicine Illinois State University New York University College York at Buffalo School of Center for Blood Research, Mennonite College of of Dentistry Dental Medicine Inc. Nursing New York University School State University of New Children’s Research Indiana University School of Medicine York Health Science Institute, Columbus of Dentistry Northeastern Ohio Center at Brooklyn Cold Spring Harbor Indiana University School Universities College of State University of New Laboratory of Medicine Medicine York at Stony Brook Coleman Institute for Indiana University School Northwestern University, School of Medicine Cognitive Disabilities, of Nursing The Feinberg School of State University of New University of Colorado The Jackson Laboratory Medicine York Upstate Medical Colorado State University Keck School of Medicine of Nova Southeastern University Columbia University the University of Southern University College of Temple University School of Columbia University School California Dental Medicine Medicine of Oral and Dental Surgery Kennedy Krieger Institute Ochsner Clinic Foundation The Texas A&M University Coriell Institute for Medical La Jolla Institute for Allergy The Ohio State University System Health Science Research and Immunology College of Dentistry Center College of Creighton University School Louisiana State University The Ohio State University Medicine of Medicine Health Sciences Center in College of Medicine & Texas Tech University Dana-Farber Cancer New Orleans Public Health Health Sciences Center Institute Louisiana State University The Ohio State University Tufts University School of Dartmouth Medical School Health Sciences Center School of Public Health Dental Medicine Charles R. Drew University School of Dentistry Oklahoma Medical Research Tulane University Health of Medicine and Science Lovelace Respiratory Foundation Sciences Center Duke University Medical Research Institute Oregon Health & Science Uniformed Services Center Loyola University of Chicago University University of the Health East Tennessee State Stritch School of Medicine Oregon Health & Science Sciences University, James H. Drexel University School of University School of University of Alabama at Quillen College of Medicine Dentistry Birmingham Medicine Drexel University School of Oregon Health & Science University of Alabama at Albert Einstein College of Public Health University School of Birmingham School of Medicine Mailman School of Public Nursing Nursing Emory University Rollins Health of Columbia Oregon Research Institute University of Alabama at School of Public Health University Partners Health Care System Birmingham School of Emory University School of Masonic Medical Research Inc. Public Health Medicine Laboratory University of Arizona Research!America College of Medicine 2002 ANNUAL REPORT 28 Members, 2002

University of Arizona University of Illinois at University of North Carolina University of Washington College of Pharmacy Chicago College of at Chapel Hill, School of Academic Medical Center University of Arkansas for Nursing Dentistry University of Wisconsin- Medical Sciences University of Illinois at University of North Carolina Madison School of University of California, Chicago School of Public at Chapel Hill, School of Nursing Berkeley Health Medicine Van Andel Research Institute University of California, University of Iowa School of University of North Carolina Vanderbilt University Berkeley School of Public Dentistry at Chapel Hill, School of Medical Center Health University of Iowa College of Public Health Vanderbilt University School University of California, Medicine University of North Texas of Nursing Davis School of Medicine University of Iowa College of Health Science Center Virginia Commonwealth University of California, Public Health University of Oklahoma University School of Irvine College of Medicine University of Kansas Health Sciences Center Dentistry University of California, Los University of Kansas University of Pennsylvania Wake Forest University Angeles Medical Center School of Dental Medicine School of Medicine University of California, Los University of Kansas School University of Pennsylvania Walther Cancer Institute Angeles School of of Nursing School of Medicine The George Washington Dentistry University of Kentucky University of Pennsylvania University Medical Center University of California, Los College of Dentistry School of Nursing Washington State University Angeles School of Public University of Kentucky University of Pittsburgh Washington University Health Chandler Medical Center Graduate School of Public School of Medicine University of California, San University of Louisville Health Weill Medical College of Diego University of Louisville University of Pittsburgh Cornell University University of California, San School of Dentistry School of Medicine West Virginia University Francisco, Asian American University of Maryland at University of Puerto Rico Health Sciences Center Clinic Baltimore School of Dentistry West Virginia University University of California, San University of Maryland at University of Rochester School of Dentistry Francisco School of Baltimore School of School of Medicine and Whitehead Institute for Nursing Nursing Dentistry Biomedical Research University of California, University of Medicine and University of Rochester The Wistar Institute of Santa Cruz Dentistry of New Jersey School of Nursing Anatomy & Biology University of California, University of Medicine and University of South Carolina Nell Hodgson Woodruff Systemwide Dentistry of New Jersey School of Medicine School of Nursing at The University of Chicago School of Public Health University of South Carolina Emory University Pritzker School of University of Miami School of Public Health Yale University School of Medicine University of Michigan University of South Florida Medicine University of Cincinnati University of Michigan University of South Florida Yale University School of University of Colorado at School of Dentistry College of Nursing Nursing Boulder University of Michigan University of Southern University of Colorado School of Public Health California School of Health Sciences Center University of Minnesota Dentistry Business and Industry School of Dentistry School of Public Health University of Southern University of Colorado The University of California School of Amgen Health Sciences Center Mississippi Medical Pharmacy Athena Diagnostics School of Medicine Center University of Tennessee Avalon Pharmaceuticals, Inc. University of Colorado The University of University of Tennessee Aventis Pharmaceuticals Health Sciences Center Mississippi Medical College of Nursing Battelle School of Nursing Center, School of Nursing The University of Texas Bristol-Myers Squibb University of Colorado University of Mississippi M.D. Anderson Cancer Company Health Sciences Center School of Pharmacy Center The Charles River School of Pharmacy University of Missouri at University of Texas Health Laboratories University of Colorado, Kansas City,School of Science Center at Houston GMP Companies, Inc. System Dentistry University of Texas Health GelTex Pharmaceuticals, University of Connecticut University of Montana Science Center at San Inc. Health Center School of School of Pharmacy and Antonio GlaxoSmithKline Dental Medicine Allied Health Sciences University of Texas Medical Human Genome Sciences, University of Florida College University of Nebraska Branch at Galveston Inc. of Dentistry Medical Center University of Texas IBM Life Sciences Division University of Florida College University of Nebraska Southwestern Medical ImmunoGen, Inc. of Health Professions Medical Center College of Center Johnson & Johnson University of Florida College Dentistry University of Utah Health Mary Ann Liebert, Inc. of Medicine University of Nevada-Reno, Sciences Center Eli Lilly and Company University of Florida College School of Medicine University of Vermont Millenium Pharmaceuticals of Nursing University of Nevada, Las College of Medicine Novartis Pharmaceuticals University of Georgia Vegas, School of Dentistry University of Virginia Oxford Bioscience Partners University of Illinois at University of New Mexico School of Medicine Pfizer Inc Chicago Health Sciences Center University of Virginia School Physiome Sciences University of Illinois at of Nursing Protarga, Inc. Chicago College of Continued Dentistry Research!America 2002 ANNUAL REPORT 29 Members, 2002 Continued Psychiatric Genomics, Inc. March of Dimes Birth American Academy of American Society of Human Purdue Pharma, L.P. Defects Foundation Otolaryngology–Head & Genetics The Scientist Maternity Center Neck Surgery Foundation American Society of Strategic Health Policy Association American Academy of Hypertension International, Inc. Medical Alley Pediatric Dentistry American Society of ValueOptions National Alliance for the American Academy of Nephrology Wellmark®, Inc. Mentally Ill Pediatrics American Society of Wyeth Pharmaceuticals National Alliance for Eye & American Association for the Tropical Medicine & Vision Research Advancement of Science Hygiene National Alliance for American Association for Association of Academic Voluntary Health Research on Dental Research Health Centers Associations Schizophrenia & American Association of Association for the Depression Anatomists Accreditation of Human Alliance for Aging Research National Alliance of Breast American Association of Research Protection Alliance for Lupus Research Cancer Organizations Clinical Endocrinologists Programs Alpha 1 National National Alopecia Areata American Association of Association of American Association Foundation Colleges of Nursing Medical Colleges Alpha-1 Foundation National Asian Women’s American Association of Association of American American Autoimmune Health Organization Colleges of Pharmacy Veterinary Medical Related Diseases National Coalition for American College of Colleges Association Cancer Survivorship Medical Genetics Association of Anatomy,Cell American Cancer Society National Committee for American College of Biology and Neurobiology American Diabetes Quality Health Care Neuropsychopharmacology Chairpersons Association National Foundation for American College of Association of American Federation for Ectodermal Dysplasias Physicians-American Anesthesiology Program Aging Research National Health Council Society of Internal Directors American Foundation for National Marfan Foundation Medicine Association of Chairs of AIDS Research National Organization for American College of Departments of Physiology American Heart Association Rare Disorders Preventive Medicine The Association of American Lung Association National Osteoporosis American College of Cleveland Physiologists Americans for Medical Foundation Surgeons Association of Independent Progress National Perinatal American Dental Association Research Institutes The Arc of the United States Association American Dental Education Association of Medical Arthritis Foundation National Prostate Cancer Association School Microbiology and Association for Assessment Coalition American Gastro- Immunology Chairs and Accreditation of Oral Health America enterological Association Association for Medical Laboratory and Animal Paralyzed Veterans of American Geriatrics Society School Pharmacology Care America American Institute for Association of Minority Association of Clinicians for Parent Project Muscular Medical and Biological Health Professions the Underserved Dystrophy Engineering Schools Association of State & Parkinson’s Action Network American Medical Association of Professors of Territorial Health Officials Parkinson’s Disease Association Dermatology CaPCURE Foundation American Pediatric Society Association of Professors of Cleft Palate Foundation Partnership for Prevention American Physiological Medicine Conquer Fragile X Public Health Foundation Society Association of Schools of Foundation PXE International, Inc. American Psychiatric Public Health Dystonia Medical Research Christopher Reeve Paralysis Association Association of Teachers of Foundation Foundation American Psychological Preventive Medicine Friends of Cancer Research Scleroderma Research Association The Biophysical Society Friends of the National Foundation American Society for Biotechnology Industry Institute for Dental & Sjogren’s Syndrome Biochemistry and Organization Craniofacial Research Foundation Inc. Molecular Biology Coalition for Health Service Friends of the National Spina Bifida Foundation American Society for Bone Research Institute of Nursing Association and Mineral Research Council of Scientific Society Research Tourette Syndrome The American Society for Presidents Friends of the National Association, Inc. Cell Biology The Endocrine Society Library of Medicine American Society for Federation of American Genetic Alliance Clinical Nutrition Societies for Experimental Global Health Council, Inc. American Society for Biology Guillain Barré Syndrome Professional and Microbiology Federation of Behavioral Foundation International Scientific Societies American Society for Psychological-Cognitive Hereditary Disease AARP Pharmacology and Sciences Foundation AcademyHealth Experimental Federation of State Medical Iris Alliance Fund AdvaMed Therapeutics Boards Juvenile Diabetes Research Ambulatory Pediatric American Society for Infectious Diseases Society Foundation International Association Virology of America Kidney Cancer Association American Academy of The American Society of Institute of Food Lupus Foundation of Family Physicians Hematology Technologists America, Inc. Research!America 2002 ANNUAL REPORT 30 Members, 2002

Intercultural Cancer Center New Jersey Association for Thomas M. Lincoln, PhD Keystone Symposia on Biomedical Research International Tom Madden,MD Molecular and Cellular New Jersey Chronic Fatigue Associates John P.Margaritis Biology Syndrome Association, John H. Mather, MD Lawson Wilkins Pediatric Inc. Chinese Academy of Harold M. Maurer, MD Endocrine Society New York State Department Medical Sciences Jewell Jackson McCabe Medical Library Association of Health Peking Union Medical Cindy McConnell Midwest Nursing Research North Carolina Association College Kathy McCracken Society for Biomedical Research Research Australia Robert B. Mellins, MD National Association of Pennsylvania Society for Ray Merenstein Children’s Hospitals Medical Research James E. Mulvihill, DMD National Caucus of Basic South Alabama Medical Individual Frederick Naftolin Biomedical Science Chairs Science Foundation Members Robert M. Nerem, PhD The National Alliance for Washington Association for David Baltimore, PhD Charles Nicoll Hispanic Health Biomedical Research Kenneth I. Berns, MD, PhD Victor Nussenzweig, MD National Pharmaceutical Wisconsin Association for David M. Binkley,PhD Fredrick K. Orkin, MD, Council Biomedical Research and Henry R. Black, MD MBA, MSc North American Vascular Education Mordecai P.Blaustein, MD Philip Palade Biology Organization Herbert Pardes, MD Terence D. Bogard, MD Pharmaceutical Research Herbert Bonkovsky Robert G. Petersdorf, MD and Manufacturers of Foundations and Matthew and Chinelle Robert F. Phalen America Philanthropy Bowdy Katharine A. Phillips, MD Sigma Xi, The Scientific Salvatore Pizzo American Legacy Edward N. Brandt, MD, Research Society PhD Stacie M. Propst, PhD The Society for Investigative Foundation Gertrude Quigley Blue Cross/Blue Shield Douglas E. Brash Dermatology Michael Brennan Kathryn Reed, MD The Society for Women’s Foundation Richard A. Rehberg Burroughs Wellcome Fund C. Michael Brooks, EdD Health Research Christine K. Carrico William L. Roper, MD, Society for Neuroscience CDC Foundation MPH California HealthCare Gail H. Cassell, PhD The Society for Pediatric Wendy Chaite Evan Richard Stanley,PhD Research Foundation Perry G. Rigby,MD The California Wellness Mary K. Chung Society for Public Health John J. Connolly,EdD Arthur Riggs, PhD Education Foundation Cordelia Robinson Cancer Research Fund of the Max D. Cooper, MD Society of Academic Michael H. Creer, MD Rosenberg Anesthesiology Chairs Damon Runyon-Walter Leon E. Rosenberg, MD Winchell Foundation Louis L. Cregler, MD, Student National Medical FACP, FACC Leon E. and Diane D. Association The Charles A. Dana Rosenberg Foundation Bruce N. Cronstein, MD Tissue Engineering Society Arthur A. Dugoni, DDS, Arthur T.Rosenfield, MD International The Children’s Hospital Robert W.Schrier, MD Foundation Research MSD Gabriel A. Elgavish, PhD David A. Schwartz Institute, Denver Susan C. Scrimshaw,PhD Foundation for the National Ronald W.Estabrook, PhD State and Local Janet Fedak Richard S. Schweiker Institutes of Health, Inc. William Schwer, MD Organizations The Eugene Garfield Myron Genel, MD Lynn Ann Goldblum Phillip A. Sharp, PhD Aurora Economic Foundation John F. Sherman, PhD Development Council William T.Grant Foundation Karen A. Goraleski Steven A. Grossman Irwin Shishko Boston Cure Project The Healthcare Foundation Alvin Steinberg California Biomedical of New Jersey,Inc. Vice Admiral Thor Hanson (USN, Ret.) John B. Stokes Research Association Susan G. Komen Breast Alan Townsend, MD Colorado Biotechnology Cancer Foundation Donald I. Hay John B. Hibbs, MD Eleanor M. Vogt,RPh, PhD Association Lymphatic Research M. Cass Wheeler Conference of Boston Foundation John H. Hylton J. Richard Jennings, PhD Susan Whitehead Teaching Hospitals Mary Woodard Lasker Steven L. Whitehurst, MD Connecticut United for Charitable Trust Evan Jones William G. Kaelin, MD Casey Wondergem Research Excellence, Inc. The Medical Foundation, Douglas L. Wood,DO, PhD Fitzsimons Redevelopment Inc. Joseph H. Kanter Scott E. Kern, MD Ruth Wooden Authority Presbyterian Health Albert J. Wright The Greater San Antonio Foundation Charles R. Kleeman, MD Dushanka V.Kleinman, James B. Wyngaarden, MD Chamber of Commerce The Lynn R. & Karl E. Ralph G. Yount,PhD Lupus Foundation of Prickett Fund DDS, MSCD Colorado, Inc. The Whitaker Foundation Hermes A. Kontos, MD, Metro Denver Network, Whitehead Charitable PhD Chamber of Commerce Foundation William E. Kotowicz, DDS Michigan Society for James R. Kuperberg, PhD Medical Research Michael E. Lamm, MD Nebraskans for Research Thomas W.Langfitt, MD Bill Leinweber

Research!America 2002 ANNUAL REPORT 31 Board of Directors, 2002

Officers Dominick P.DePaola, DDS, Alan Walton,DSc, PhD Staff PhD General Partner Hon. Paul G. Rogers,* Mary Woolley President and CEO Oxford Bioscience Partners Chair President and CEO The Forsyth Institute Partner, Hogan & Hartson M. Cass Wheeler John F.Sherman, PhD Sam Donaldson Chief Executive Officer William A. Peck, MD,* Senior Advisor ABC News American Heart Association Vice Chair Executive Vice Chancellor for Matthew A. Bowdy Eugene Garfield, PhD John Whitehead* Medical Affairs and Dean Associate Director of Public President and Founder Chairman, Campaign for Washington University School Affairs The Scientist Medical Research of Medicine Partner, Whitehead Partners Christine P.Brown, PhD Jay A. Gershen, DDS, PhD* Mary Woolley,* Director of Science Outreach Executive Vice Chancellor Ruth Wooden President University of Colorado Health Senior Counselor and Chair, Chief Executive Officer, Nancy Bailey Sciences Center Public/Private Initiatives Research!America Administrative Assistant, Porter Novelli Prevention Research Initiative Ellen Levine Martha N. Hill, RN, PhD,* Editor-in-Chief Judy Woodruff Secretary Janet Fedak Good Housekeeping Anchor and Senior Dean, School of Nursing Administrator Correspondent Johns Hopkins University Mary Ann Liebert CNN Kyndra Fuller President William R. Brinkley,PhD,* Manager, Membership Mary Ann Liebert, Inc., Tadataka Yamada,MD Treasurer Development Publishers Chairman, Research and Vice President for Graduate Development Sciences and Karen A. Goraleski John P.Margaritis* GlaxoSmithKline Dean, Graduate School of Program Director, Prevention President Biomedical Sciences Research Initiative John P.Margaritis & Associates, Baylor College of Medicine Inc. Honorary Board Members Phyllis Hanlon Michael E. DeBakey,MD Executive Assistant to the Jewell Jackson McCabe Board Members Chancellor Emeritus President Chair Baylor College of Medicine Kenneth I. Berns, MD, PhD The National Coalition of 100 Representing Shannon L. Leary Black Women C. Everett Koop, MD, ScD Research!America’s Project Manager, Prevention Former Surgeon General Individual Members Research Initiative Herbert Pardes, MD* United States Public Health President & CEO Service Bill Leinweber Roger J. Bulger, MD* NewYork-Presbyterian Hospital President Vice President Association of Academic Hon. John Edward Porter* Emeritus Directors Cindy McConnell Health Centers Partner Senior Director, Membership Hogan & Hartson William G. Anlyan, MD* Gail H. Cassell, PhD* Steven C. Beering, MD Development and Communications Vice President, Scientific William L. Roper, MD, MPH Purnell W.Choppin, MD Affairs and Dean, School of Public Health Robert Dresing Laura Meagher Distinguished Lilly Research University of North Carolina at Myron Genel, MD Executive Assistant to the Vice Scholar for Infectious Chapel Hill Irma E. Goertzen Diseases Research M.R.C. Greenwood, PhD President Eli Lilly and Company Leon E. Rosenberg, MD Vice Admiral Thor Hanson, Sheilah Miller Satterwhite Professor, Princeton University USN (Ret.) Mary K. Chung, MBA Robert A. Ingram Administrative Assistant, Programs President John W.Rowe, MD Thomas W.Langfitt, MD Iris Alliance Fund Chairman & CEO Philip R. Lee, MD Stacie M. Propst, PhD Aetna Inc. Constance E. Lieber Yank D.Coble, MD Terry L.Lierman Director of Science Policy President Susan C. Scrimshaw,PhD Catherine E. McDermott Joye E. Purser, PhD American Medical Association Dean, School of Public Health Donnica L. Moore, MD Coordinator of Science Policy University of Illinois at Chicago James E. Mulvihill, DMD Jordan J. Cohen, MD Nola Pender, PhD, RN Susan G. Reedy President John R. Seffrin, PhD* Edward E. Penhoet, PhD Administrative Assistant to the Association of American Chief Executive Officer Robert G. Petersdorf, MD Administrator Medical Colleges American Cancer Society Roscoe R. Robinson, MD Isadore Rosenfeld, MD Jane Rooney J. Morton Davis Samuel C. Silverstein, MD* Raymond R. Sackler, MD Manager, Membership Chairman of the Board President Charles A. Sanders, MD Communications D. H. Blair Investment Banking Lasker/Funding First Mitchel Sayare, PhD Corp. M. Roy Schwarz, MD* Public Policy Interns Hon. Louis W. Sullivan, MD Daniel C. Tosteson,MD Eunice Jane Adrian President Emeritus Reed V.Tuckson,MD Christine D. Coiro Morehouse School of Medicine Phillip L. Williams Harry Woolf,PhD (deceased Jill Glasspool Malone 1-6-03) James B. Wyngaarden, MD Research!America * Executive Committee Member 2002 ANNUAL REPORT 32

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