Roommate If Sharing a Room

APD Home and Community-Based Individual Experience Survey

The following represent comments made by individuals completing the HCBS Individual Experience Survey. The following comments were made in the margins of the questions designed to get at an individual’s ability to have a choice of roommate if sharing a room.

Some themes include:

• Clarifying that individual has a private room • Desire for a private room • Belief that Medicaid must have shared room • Roommate is spouse

SHARED ROOM/CHOICE OF ROOMMATE

18. If I live in a shared room, I was offered the choice of a private bedroom or living unit. Yes No Not applicable - I am in a private room

ON MEDICAID

SOMETIMES

WIFE

MARRIED-LIVES W/ SPOUSE

A RECEPIENT OF STATE FUNDS - MUST SHARE A ROOM

I HAVE MY OWN ROOM & BATH

HUSBAND & WIFE

DO'T LIVE IN A SHARED ROOM

IS IN A SHARED ROOM. WE HAVE REPEATEDLY ASKED FOR A PRIVATE ROOM WHEN IT BECOMES AVAILABLE BUT CAREGIVER SAYS NO, UNLESS HE MOVES OUT & REAPPLIES , CURRENTLY HAS NO ROOMMATE BUT THAT CHANGES FROM TIME TO TIME. SOME OK, SOME NOT.

CONCERN! PLUS A BATHROOM WITH A SHOWER & TOILET & SINK does not have a roommate but he lives by himslef in a semi-private room

ALL SHARED ROOMS

I MADE ALL DECISIONS

SEMI PRIVATE (SHARED BATHROOM/ENTRY);

NOT AVAILABLE IN THIS FACILITY

NEED A PRIVATE ROOM DUE TO MENTAL CONDITION. & PTSD

I AM IN PRIVATE NOW - BUT IF A FULL PAYING PATIENT MOVES IN THEY MAY GIVE MY ROOM UP TO FULL PAY OVER MEDICADE

AT 1ST HAD PRIVATE ROOM - AS HER CONDTION PROGRESED & WENT ON MEDICADE HAD TO SHARE A ROOM

STUDIO APT

BUT WOULD NOT HAVE FOR HER NEEDS

HAD A PRIVATE ROOM AT FIRST, BUT HER FINANCES DO NOT SUPPORT A PRIVATE ROOM

NO FUNDS TO BE PRIVATE PAY FOR PRIVATE ROOM

MEDICARE AVAILABITY

NOT AVAILABLE

WITH SHARED BATHROOM

SEMI-PRIVATE

MEDICARE VS NON MEDICARE all are private rooms

APARTMENT

APT

LIVES WITH HUSBAND IN APARTMENT

LIVING WITH WIFE

I AM MARRIED

NO I'M MEDICAID

I LIKE MY OWN ROOM NO SHARE (NEVER) OUTSIDE OF PEOPLE I REALLY KNOW

TRIED ROOM MATE BUT DID NOT WORK DUE TO AGGRESSION w/my husband

Don't have one

MARRIED

IF I PAID MORE PER MONTH I COULD BE IN A PRICATE ROOM, BUT I DO NOT HAVE THE MONEY DUE TO MEDICAID NEEDED ROOMMATE

WHEN MOM MOVED FROM - TO A PRIVATE ROOM WAS NOT AVAILABLE

FINANCIAL LIMITATIONS WITH SPOUSE

IS IN PRIVATE ROOM BUT SHARES BATHROOM

I WOULD ONLY HAVE A PRIVATE ROOM

I AM MOVING IN A PRIVATE BEDROOM

SHARED BATHROOM

19. I have a choice in who my roommate is. Yes No Not applicable - I am in a private room

LIKE YOUR ROOMATE

I HAVE MY OWN ROOM TO MYSELF AT THIS TIME

NO CHOICE - ITS DECIDED FOR HIM

I WOULD NOT WANT A ROOMATE; SECTION 4 MOST TIMES

SHE IS NOT ABLE TO MAKE CHOICES

LIVE WITH HUSBAND

WE AGREED IT WAS BEST

MY WIFE

CURRENTLY NO ROOMMATE FACILITY ACCOMODATES

A CHOICE BETWEEN 2. BUT PROBABLY NOT TO CHANGE

I SHARE A BATHROOM

HAD A CHOICE BETWEEN 2

HUSBAND & WIFE

MY WIFE WOULDN'T LIKE IT

FACILITY IS SOMEWHAT FLEXIBLE

HUSBAN

WIFE

I MADE ALL DECISIONS MY MOTHER HAS BEEN MOVED A COUPLE OF TIMES BUT SEEMS WHERE SHE IS NOW IS WORKING

STAFF HAS CHANGED ROOMMATE 1X IN THE 9 MONTHS SHE HAS LIVED THERE

HUS

STUDENT APT

DOES NOT DO WELL ROOM SHARING

SOMEWHAT

THIS WAS CHOSEN FOR ME BY THE MANAGEMENT TEAM;

W/ HUSBAND

THIS PLACE IS COLD ALL THE TIME IT IS LIKE A BARN. I SLEEP IN MY BED [ILLEGIBLE];

MEDICARE AVAILABITY

STUDIO APT.;

I DON'T KNOW

IS NOT ABLE TO MAKE THOSE KIND OF CHOICES, BUT THE FACILITY DOES A GOOD JOB OF MATCHING ROOMMATES.;

FACILITY IS EXTREMELY ACCOMMODATING WHEN PLACING A NEW ROOMMATE

WITH HUSBAND UNTIL HIS DEATH

WEIRD QUESTION LISTER POORLY. SPOUSE

SPOUSE THIS QUESTION IS POOR - LIMITS OPTIONS

1 BEDROOM APARTMENT

WIFE

ALL ROOMS HERE ARE PRIVATE ROOMS

I could probably ask and they would help, I think, if possible

ONLY 2 RESIDENTS OUR MOTHER WAS IN A PRIVATE ROOM UNTIL VERY RECENTLY, MOVE WAS DISCUSSED WITH FAMILY

WE WERE TOLD A SEMIPRIVATE ROOM WAS OUR ONLY OPTION & NO CHOICE OF ROOM-MATE; SECTION 4 ? UNABLE TO WORK - SERIOUS MEMORY CARE NEEDED

SHE WAS FORCED BY, AND NOT ALLOWED TO RETURN HOME. THEY THOUGHT SHE HAD BEEN ABUSDE AT HOME WHICH SHE WAS NOT. I WAS APPOINTED CONSERVATOR IN JAN TO INVESTIGATE THE ABUSE. HER DAUGHTER HAS & DID NOT TAKE CARE OF HER MOTHER AS WELL AS SOMEONE MIGHT, BUT IT WAS NOT ABUSE. WAS COMPLETLY AMBLITORY WHEN SHE WENT TO, 24 MONTS LATER SHE COULD NO LONGER GET OUT OF HER WHEEL CHAIR. WIFE OF CONSERVATOR

MY SPOUSE

LIVE IN 2 BEDROOM WITH MY EX HUSBAND. WE HAVE BEEN BACK TOGETHER 14 YRS

VERY NICE APT.;

N/A - I AM MARRIED

IF THERE WAS A PROBLEM, FAMILY COULD SWITCH TO ANOTHER ROOM

WIFE

My mother has had a stroke and cannot communicate well. She is either in bed or in a wheelchair and was recently placed in the hospice program (without having to move, services are brought to her). She receives excellent care and is always happy and cheerful when she has visitors

LOTS OF ANGER & RAGE & ON MEDS

MY HUSBAND OF 58 YEARS - HE PAYS TO LIVE HERE WITH ME. WE DON'T WANT TO BE SEPARATE!

PRIVATE-UNAVAILABLE AT THIS TIME

MARRIED

THEY HAVE TRIED SEVERAL

AGE & HEALTH RESTRICT CHOICES

HAS PRIVATE ROOM

I CHOSE THIS PLACE TO LIVE BEFORE I NEEDED IT. I HAD FRIENDS WHO HAD MOVED HERE my goal is to recover and be able in the future to volunteer at other business where my help's accepted. I'm a strong believer in positive motivation. Never quit

I LIVE WITH MY SPOUSE

I LIKE MY ROOMMATE VERY MUCH

IT WAS MY CHOICE TO LIVE WHERE I AM AT

KATHY WOULD NOT RECOGNIZE HER ABILITY TO CHOOSE AND IS UNABLE TO MAKE OWN DECISIONS

(APT.);

MAMORY CARE FACILITY -HAS NO AWARENESS OF WHETHER HE HAS A ROOM-MATE OR NOT. IS LEGALLY BLIND, AND DEMENTIA.;

HAD TO MAKE OTHER ARRANGEMENTS FOR HER BECAUSE OF THE LEVEL OF CARE NEEDED