NWO Newsletter NOV 2020

NOVEMBER 2020

THE HEART OF THE MATTER

The official e-newsletter of the Northwest Ohio Hemophilia Foundation

FROM OUR EXECUTIVE DIRECTOR by Carla Wells IN THIS NEWSLETTER: It’s hard to believe we are approaching the end of 2020, a remarkable and memorable year. We all have faced a multitude of challenges--globally, nationally, locally, and personally. My wish is Note from the Executive that we grow together and find a way to support one another Director through the upcoming fall and winter months. Following are some Page1 ways our Foundation is here to support you:

Virtual Events: Please look on page 3 to see a list of events for Wellness Article November and December. You will find a mix of fun and Page 2 educational things for you to virtually connect with others. Crisis Fund: If you find yourself in a hardship due to a bleeding Upcoming Events disorder related event, please reach out to me. We can often help Page 3 you with a short-term issue. Yoga: We are offering free monthly online yoga memberships for Yoga Program & Harvest November and December. Please see page 4 for more information. Hootenanny Winners The upcoming holidays are an excellent time to reflect upon what Page 4 is good in our lives and to make a renewed commitment to ourselves and to our community. Let’s focus on kindness and Clickables to community empathy. May we have love and understanding for one another. happenings We are all in this together. Please reach out if we can help you at [email protected]. Page 5

Wishing you peace and a happy holiday season, Carla

The Heart of the Matter | page 1 WELLNESS by Kristin Peace, RN

Earlier this year, when we were first introduced to the term COVID-19, we had no way of knowing just how much it would change our lives. The concept of social distancing was abruptly launched into society and most of us believed that after a short while, life would go back to normal. We stayed home, virtually kept in touch with family and friends, and crossed our fingers that we would “flatten the curve” so life as we knew it would return. Fast forward six months. Here we are, mid- way through autumn, and COVID-19 has encroached on every aspect of our lives. From work to play, worship to education, travel to fitness, we have learned to coexist with this unwelcomed visitor. The year 2020 has undoubtedly been a wild and crazy adventure. This pandemic has introduced unparalleled challenges for each and every one of us. The staff at the Northwest Ohio Hemophilia Center would like to thank our patients and their family members for your continued perseverance through this pandemic. The efforts you have all put forth are truly commendable. While we have already traveled so very far, we’ve not yet reached the end of the road. Our staff would like to encourage you to stay the course! Keep wearing those masks, wash your hands, maintain your physical distance, and unless medically unable- get your flu shot! We are, one day at a time, getting through this together.

The Heart of the Matter | page 2 UPCOMING EVENTS

November 13-14 November 18 V I R T U A L A N N U A L V I R T U A L M E E T I N G E D U C A T I O N A L D I N N E R C L I C K H E R E T O R E G I S T E R T O P I C : I N S U R A N C E P A R T I C I P A N T B O X E S H A V E S P O N S O R : T A K E D A A L R E A D Y G O N E O U T , B U T Y O U C A N S T I L L J O I N I N O N S E S S I O N S !

December 3 December 4-6 V I R T U A L V I R T U A L F A M I L Y C A M P E D U C A T I O N A L D I N N E R O P E N T O F A M I L I E S W I T H A C H I L D W I T H A B L E E D I N G D I S O R D E R T O P I C : N U T R I T I O N A G E D 4 - 1 0 . M O R E I N F O R M A T I O N S P O N S O R : M E D E X U S C O M I N G S O O N

The Heart of the Matter | page 3 YOGA WELLNESS PROGRAM

Relieve stress! Increase flexibility! Grow stronger!

The Northwest Ohio Hemophilia Foundation is providing monthly memberships to Yoga by Josh at no cost. Josh has classes for everyone from beginners to advanced and even offers chair fusion yoga for those with mobility issues. Classes are available by livestream or through a link that you can use at your convenience.

Reach out to Carla for more information: [email protected]

HARVEST HOOTENANNY WINNERS!

Thank you to everyone who participated in th e first annual Harvest Hootenanny and congratulations to the winners in each age group!

Aleks, Age 2 Calissa, Age 10 Kayla, Age 16 Thank you to our sponsors:

The Heart of the Matter | page 4

OPEN ENROLLMENT THE IMPORTANCE OF MINDFULNESS Now through December 15 The benefits of mindfulness can include reduction of pain, and lessening anxiety Open enrollment is a great time to take a and stress. Learn more on how closer look at your insurance if you're on a mindfulness can help in your daily life marketplace plan. Click here to get started here. and learn more.

HELP ALEX BORSTEIN SPREAD THE WORD ABOUT WVD

Alex Borstein is an Emmy Award-winning actress, comedian, writer and producer. She is best known for voicing Lois Griffin on Family Guy and Susie Myerson in The Marvelous Mrs. Maisel.

Alex has first hand experience dealing with bleeding disorders. Her brother and uncle live with hemophilia A, her daughter has mild hemophilia, and Alex herself is a carrier of the disease. Knowing just how devastating an inherited bleeding disorder can be, Alex has become a passionate and active advocate on behalf of our community.

Many women and girls endure the symptoms of VWD without knowing that help is available. Click here to learn how you can help spread the word.