INTERNATIONAL DIRECTORY OF BIOETHICS ORGANIZATIONS Edited by Anita L. Nolen Mary Carrington Coutts INTERNATIONAL DIRECTORY OF | BIOETHICS * ORGANIZATIONS Edited by Anita L. Nolen Mary Carrington Coutts National Reference Center for Bioethics Literature Kennedy Institute of Ethics, Georgetown University, Washington, DC 20057-1065 International Directory of Bioethics Organizations edited by Anita L. Nolen and Mary Carrington Coutts. Bioethics Resource Series, volume 1. Washington, DC: Kennedy Institute of Ethics, Georgetown University, 1993. Copyright © July 1993 by the Kennedy Institute of Ethics, Georgetown University. All rights reserved. This book may not be duplicated in any way without the expressed written consent of the publisher, except in the form of brief excerpts or quotations for the purposes of review. The information contained may not be duplicated in other books, databases or any other medium without written consent of the publisher. Making copies of this book, or any portion for any purpose other than your own, is a violation of United States copyright laws. This publication is supported by funds provided under Grant Number LM04492 from the National Library of Medicine, National Institutes of Health. Published by: National Reference Center for Bioethics Literature Kennedy Institute of Ethics Georgetown University Washington, DC 20057-1065 Toll free (U.S. and Canada): 800-MED-ETHX Telephone 202-687-3885 Fax: 202-687-6770 E-Mail: [email protected] ISBN 1-883913-11-X Table of Contents Table of Contents ........................... iii Introduction .......................... vii Advisory Board ....... .......viii Acknowledgements.............................................. ix About the National Reference Center for Bioethics Literature.... xi Staff...................................................... xii Bioethics Organizations (alphabetical order by country, andlor state, and name of organization). Argentina.............................. 1 Australia............... 3 Belgium................. 21 Brazil .............. ..27 Canada................ ..29 Chile................................................................................... 45 China............................ 47 Colombia...................... ...49 Costa Rica ............... 51 Croatia...................... 53 Czech Republic...................................... 55 Denmark..................................................................... 57 England.............................................................................. 59 France.... ............. 73 Germany............................................................................85 Greece............................................................................... 91 Hungary ............................... 93 India............................ 95 Indonesia....................... 97 Israel.................................................................................. 99 iii Table of Contents International Directory of Bioethics Organizations Italy ......... ..........101 Japan ........ 109 Luxembourg.................. .......113 Malta............. 115 Netherlands................................ 117 New Zealand ......... 127 Norway...................... .....129 Philippines..................................... ...133 Portugal ........ ..135 Romania. ..... 137 Russia ...................................................... 139 Scotland ........................... 141 South Africa................... 143 Spain............................................... ...145 Sweden....................................... 147 Switzerland ........................... 153 Thailand .............. 157 Turkey ....................... 159 United States of America............................................ ...161 Arizona ........................... ...161 Arkansas ................... .163 California ............... 165 Colorado.................... 193 Connecticut ..... 195 District of Columbia ........................................ 197 Florida .......................... 207 Georgia ......... 211 Illinois.............. ...213 Indiana............................ 225 Iowa... .......................................................... 227 Kansas.....................................................................229 Maine ........................... 231 Maryland ....................................... 233 Massachusetts........................ 239 Michigan.................................... ....251 Minnesota......................... 255 Missouri....................................................................259 Nebraska........................................... 263 Nevada...................... 265 iv International Directory of Bioethics Organizations Table of Contents New Hampshire ........... ..267 New Jersey.. ..... ....269 New Mexico ....... 273 New York..............................................................275 North Carolina... ..... ................285 North Dakota............ 287 Ohio.............. 289 Oklahoma.................. .................................297 Oregon.............. ........299 Pennsylvania ........... 301 Rhode Island ...... ........307 South Carolina......................................... .......... ...309 South Dakota.. ........... ...............311 Tennessee ..... 313 Texas... ...... ........317 Utah ....... 323 Vermont............................ ....325 Virginia ..... 327 Washington ............................................. .331 West Virginia ..... ...............337 Wisconsin.............................................. ...............339 Uruguay................... 345 Wales ......... 347 SPECIAL INDEXES Bioethics Organizations Granting Academic Degrees ......... .351 Bioethics Organizations Providing Consulting Services 353 Bioethics Organizations with International Focus.................... ..357 GENERAL INDEX ....... 359 INTRODUCTION International Directory of Bioethics Organizations Introduction introduction This Directory is an outgrowth of the many inquiries received in the National Reference Center for Bioethics Literature (NRC) about bioethics activities worldwide. Organizations that could be identified as engaged in the study, teaching, research or practice of bioethics or health care ethics have been included. Some groups are large, university based research and education organizations with many employees. Others are less elaborate, staffed by part-time employees. Though every attempt has been made to include all bioethics organizations, some may have been omitted. All omissions are deeply regretted, and the editors encourage readers to advise us of organizations to be listed in future editions of this Directory. The criteria for inclusion in the Directory are: 1) The organization has to be involved in the broader field of bioethics, and not only in a subfield, such as euthanasia, human experimentation, genetics, etc. 2) The organization has to have some kind of permanent mailing address or office (ad hoc groups or free standing committees are not included); 3) Usually, individual hospital ethics committees were not included. However, some ethics departments or ethics offices in hospitals are listed because it appears that their activities reach beyond ethics consultation for a specific hospital. Standards have been relaxed somewhat for bioethics organizations in countries where bioethics is a new field. If it was not possible to verify that a full-fledged organization with permanent office and staff existed, the organization was nevertheless included it if it was the only bioethics group known to be in that region. The NRC maintains a database of information of the organizations listed here, and other ethics organizations. In cases where information available to us was insufficient to allow listing an organization in this Directory, we store what data we have in our in-house database for future use. The NRC will respond to inquiries about other organizations and will make every effort to list them in subsequent editions of this Directory. We hope this Directory is helpful. Your comments and suggestions for future editions are welcome. Vi! Advisory Board International Directory of Bioethics Organizations Advisory Board Ms. Rachel Goldstein Anderson Dr. Gretchen S. Kolsrud Director, Arizona Health Sciences Library Senior Associate College of Medicine Industry, Technology and Employment University of Arizona Office of Technology Assessment U.S. Congress Dr. Daniel Callahan Director, The Hastings Center Briarcliff Manor, NY Dr. Franklin M. Loew Dean Dr. Ronald Carson School of Veterinary Medicine Director, Institute for the Medical Humanities Tufts University University of Texas Medical Branch Galveston, Texas Mr. Richard Lyders Executive Director Dr. Ellen Fahey Texas Medical Center Library Professor, School of Nursing Houston, Texas University of Minnesota Dr. John C. Fletcher Prof. John A. Robertson Center for Biomedical Ethics School of Law School of Medicine University of Texas University of Virginia Dr. David J. Roy Hon. Gilbert Gude Director Former Director Centre for Bioethics Congressional Research Service Clinical Research Institute of Montreal Library of Congress Dr. Albert R. Jonsen Dr. Mark Siegler Chairman Director Department of Medical History and Ethics Center for Clinical Medical Ethics School of Medicine Pritzker School of Medicine University of Washington University of Chicago viii International Directory of Bioethics Organizations Acknowledgments Acknowledgments The editors would like to thank a number of individuals