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The Changing Environment of the HIV/AIDS Epidemic in Ventura County

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The Changing Environment of the HIV/AIDS Epidemic in Ventura County Hiv/aids Report 2006-2007 C O U N T Y O F V E N T U R A Vea la traduccíon en Español adentro. The Changing Environment of the HIV/AIDS Epidemic In Ventura County Educate, Motivate, and Mobilize against HIV/AIDS VENTURA COUNTY HEALTH CARE AGENCY Quality Advisory Committee Gathers Steam by Doug Green nce a month, a diverse group The task took gathers in the second floor con- several weeks Oference room at Ventura County but the results Public Health in Oxnard. As they settle in and begin to chat over sandwiches are invaluable: a and iced tea, these men and women in searchable resource their thirties, forties and fifties resume an directory that is ongoing dialogue about improving pro- accessible to the grams and services for people living with HIV. They come from all parts of Ven- entire community tura County. They are gay and straight, and which can multi-ethnic and highly opinionated. be continually They are the Quality Advisory Commit- updated at tee of the Ventura County HIV/AIDS virtually no cost. Coalition. … venturapositive. The ‘I know. Do org. you?’ slogan goes beyond knowing ing without services and support,” your HIV status. Jim says. “Our intent in creating the website was to provide a place for … “For some it’s people to get comfortable sharing in- about knowing formation and resources, hoping that how to protect it will build a stronger community yourself. For others, of support.” The site is maintained it’s about keeping through the generous support of Sheila, another group member, who up with new HIV covers the monthly web hosting fees. medications and Each of the committee members is T T E E treatments. That unique, yet they’re all pretty involved I kind of knowledge in the community. Anthony F. lives in Ventura and divides his volun- means a longer, teer time between contributing to healthier life with the Quality Advisory Committee, HIV.” serving as the client advocate for the APVC food pantry, and organiz- ing various community events. He In April 2004, Public Health put out a recently coordinated volunteers at call for clients interested in serving on the AIDS Walk. You see him around a new consumer advisory panel. Asked town wearing an Event Staff tee-shirt to facilitate the group, I really didn’t a rep in the community for a big heart, reliable trans- and a big smile. He is a whirlwind of energy and en- O Rknow Y C what O M to M expect. Ventura County is notorious portation and a willingness to taxi people to medical thusiasm. Anthony has lived with HIV for 15 years and for people not wanting “to get involved”. Some- and other appointments. He is thirty-something and with cancer for another three. He has been through two thing about the stress of battling all of the crabgrass thoughtful. When he speaks, he has something to say. rounds of chemotherapy and coaches patients in the hos- that is the inevitable result of suburban sprawl. I Reflecting on the numbers of people who either don’t pital who are battling cancer and HIV simultaneously. was, at best, guardedly optimistic. Seventeen people know their status or who aren’t in care Anthony says, “I see life as sink or swim. I’m an extremist. I’m going showed for the first meeting. “I want to see people get more involved in the com- to keep swimming. Going through all these treatments, Group dialogue often centers on reaching people Advis munity and more involved in taking care of them- so much support has come my way. I guess it’s true that at high-risk for HIV and getting those who are selves. The ‘I know. Do you?’ slogan goes beyond you get back what you put out there.” infected into care. Mike, a father of three and a Danny, from Santa Paula, came to the group mid-year. grandfather of six from Simi Valley, is frustrated by He’s an activist at heart. He has already written to the the continuing high rates of new infections. I asked “People in Ventura IDS Ventura Star offering local “color” for any stories the pa- the group, “Why are so many people testing positive County are still afraid A per publishes on HIV topics. He was featured in an L.A. and getting an AIDS diagnosis at the same time?” of getting together Times story several years ago and sees the advantage of The group considers possible reasons: denial, lack with others who are letting people hear the stories of people who are liv- of information, fear of the “system.” Mike offers, “I living with HIV. As ing with HIV. About a year after the story appeared he was one of those people who tested positive and got ran into a man at a support group in Los Angeles who an AIDS diagnosis at the same time. I almost died. a result, people are told him, “Your story encouraged me to find a support Nobody ever asked me why I waited so long to get going without services group. I realized that I don’t have to fight this battle tested.” and support,” alone.” Danny took on the challenge of compiling data for a searchable online directory of community service ast year, Mike and his fellow Committee knowing your HIV status. ‘I know. Do you,’ can that is accessible to the entire community and can be members brainstormed slogans for a cam- mean a lot of things to a lot of different people,” he continually updated at virtually no cost. Lpaign to encourage people to get tested. says. “For some it’s about knowing how to protect The Quality Advisory Committee celebrated its After a freewheeling, no-holds-barred discussion of yourself. For others, it’s about keeping up with new one-year anniversary in April. There were no balloons strategies to convince, cajole, goad and guilt people HIV medications and treatments. That kind of or cake. Instead the group listened to a presentation into testing for HIV, Mike suggested “I know. knowledge means a longer, healthier life with HIV.” on how to access information from the VenturaPosi- Do you?” The group immediately agreed that this Jim, a temporary Bay Area transplant, is restoring tive.org website and discussed gaps in services with was the perfect slogan, especially for our county. a boat in Channel Islands Harbor. He comes to the the HIV-affected community. The group stayed later It doesn’t refer to any specific disease or condition group with experience serving on another consumer than the scheduled 1:30 adjournment talking about the (avoiding the nasty, persistent stigma). It leaves it up advisory board for Kaiser Permanente and a wealth website. Some members don’t even own computers but to the individual to disclose what he or she knows. of technological expertise. When the group identified they are looking ahead, to the future, and they want to T-shirts and cards were printed and the group has the need for a safe, confidential place for consumers to be ready for anything. They know that HIV is in every taken the message to the streets. Staffing tables at get information about community services and events, community in Ventura County. They know it is still a the local Pride Festival and the AIDS Walk, the Jim developed a website, www.VenturaPositive.org. huge threat. They know, as men and women affected group is helping to keep the conversation about The site lists upcoming events and provides forums for by this epidemic, they have a major part to play in the HIV alive in the community. discussion of issues and challenges. “People in Ventura battle against HIV. Anthony B., who lives in Thousand Oaks and is County are still afraid of getting together with others They know. Do you? helping to raise two nephews, sports a pony-tail and who are living with HIV. As a result, people are go- VENTURA COUNTY HIV / 2 U NU DN ERD ERS TANS TANdidiNN GG TT HH E CONTEXTCONTEXT OF OF A IDSA IDS 2004-2005 LOCAL HIV PREVENTION PROGRAMS ublic health educator Emper- monolingual Spanish-speaking day work- Ventura County Rainbow portance of Referrals, Evaluating Local atriz Pinedo conducts educa- ers, and service and agricultural workers. Alliance [vcra] Interventions, and Responsibilities/Du- tional classes to prevent HIV Emperatriz teaches the Spanish-speaking Street Outreach ties of a Peer Educator. It also provides in a variety of settings across court mandated HIV education classes interactive group activities where the PVentura County. Her clients include for convicted drug users and prostitutes. Street outreach is conducted at Paddy’s participants can practice and perfect high-risk youth in high school, the She is often asked to conduct presenta- Romantix, which is an adult bookstore specific aspects of peer education. Each incarcerated and monolingual Span- tions at Oxnard and Ventura Colleges. frequented by Latino men who have sex young man then does outreach to ish-speaking adults. She runs a Spanish She has made more than 1,200 contacts with men, Ventura County Pride at the twenty peers. language women’s group at the Santa this fiscal year. Emperatriz is on the Cali- beach, 5th street beach, Foster Park, and Paula Resource Center and offers fornia AIDS Clearing House Advisory Surfers Point. The total number of street Social Marketing/events trainings to the Coalition to End Board that reviews Spanish-language outreach contacts reached so far this fis- Tear-off flyers and posters encouraging Family Violence’s volunteer training educational materials.
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