2010 Annual Report

Living Well with an Unbreakable Spirit A Message from the President

The mission of the Osteogenesis Imperfecta Foundation is to improve lives. I am proud to report that the work we have accomplished during FY 2010 reflects real steps forward in research, education, awareness and mutual support.

Our partnership with the Children’s Brittle Bone Foundation has enabled us to award 20 grants totaling $140,000 for adapted vehicles, computers, hearing aids, wheelchairs, van lifts and other products and services in 2010. We have partnered with Shriners Hospital for Children in Chicago to award sixteen Driving Grants in the past two years for driver evaluations, lessons, or adaptive Sharon Trahan equipment for a vehicle. As a result, dozens of people with OI are working towards increased independence, advancing their education, or simply finding it easier to interact with others. This is the type of difference in people’s lives that I and the OI Foundation are extremely proud of!

As you will read in this Annual Report, we have increasingly focused on improving the health and care received by adults with OI during 2010. Adult health was a major focus of the OI scientific meeting in April 2010, Improving Musculoskeletal Outcomes for Individuals with Osteogenesis Imperfecta, which was chaired by Laura Tosi, M.D. At our National Conference last summer, Dr. Tosi worked with volunteers to convene more than 50 adults with OI in focus groups with the goal of hearing about their concerns. The resulting program is called the Adult Natural History Initiative (ANHI), detailed in these pages. This initiative is one of several important activities supported by the Foundation that will provide a clearer description of the health needs of people with OI, lead to improved treatments, and with the research funded by the foundation, move us ever closer to a cure.

This years’ National Conference brought together more than 500 people to celebrate the OI Foundation’s 40th birthday. The energy and enthusiasm in Portland was inspiring! Two of our founders, Gemma Geisman and Renee Gardner, reminded us how the foundation was started around a kitchen table, and the wide range of sessions and activities engaged all ages in learning, sharing and connecting with friends.

None of these successes can happen without the generous support of the many donors listed in these pages. Thank you for your gifts! We work hard to utilize your investments in a way that achieves the greatest progress possible towards fulfilling our mission. We are pleased to report that Charity Navigator awarded the Foundation with its highest 4-star rating this year for our “ability to efficiently manage and grow (our) finances”! The OI Foundation also meets the highest standards of the BBB Wise Giving Alliance and the National Health Council. I’m pleased to have the acknowledgement from these organizations that your dollars are being used wisely.

During 2011, we will work to maintain our high level of consumer support, build on the successes of this past year, and move cutting-edge research forward! Thank you for your involvement in this work and your confidence in your Foundation!

Sharon Trahan President, OI Foundation Board of Directors

The Osteogenesis Imperfecta Foundation’s Mission

The mission of the Osteogenesis Imperfecta Foundation is to improve the quality of life for people affected by OI through research to find treatments and a cure, education, awareness, and mutual support.

2 OI Foundation FY 2010 Annual Report Education & Mutual Support

2010: A Year in Review By Tracy Hart

The OI Foundation had a very busy 2010! In addition to celebrating 40 years of the OI Foundation, this year included a scientific meeting; our Biennial Conference; the implementation of the Impact Grant Program; expanded work of the Linked Clinical Research Centers; support group meeting activities and much more!

The 2010 National Conference on OI, Living Well with an Unbreakable Spirit, attracted more than 500 members of the OI community, caregivers and medical professionals to Portland, Oregon. According to one family who attended the medical consultation session of the conference, “It is so wonderful to have experts in the field at your fingertips… the time they spent with us was like a weight off my shoulders.”

In addition to our family conference, the Foundation continued to move forward on research initiatives designed to improve care for children and adults with OI. In April 2010 the Foundation held the 9th OI scientific meeting in Chicago, Illinois. The meeting, titled Improving Musculoskeletal Outcomes for Individuals with Osteogenesis Imperfecta, chaired by Dr. Laura Tosi, focused on the orthopedic issues affecting people with OI across the life span, including the importance of exercise and the potential to adopt non-invasive technologies to measure bone quality that are already utilized for osteoporosis patients. Dr. Tosi also attended the National Conference in Portland and held a series of adult focus groups to help shape future directions for OI research relative to adult care.

In addition to our meetings, the OI Foundation has continued partnering with organizations like the Shriners Hospital for Children in Chicago to provide driving grants to young people with OI. To date, the awards have enabled 16 teens and young adults to pay for adapted driving evaluations, lessons or adapted equipment for their car. Another very successful partnership with our friends at the Children’s Brittle Bone Foundation is the Impact Grant Program. The program provides funds to support people with OI in need of equipment or services that will improve the quality of their life.

For those who are now enrolled in the study at one of the six active Linked Clinic Research Centers, I hope your experience has been a positive one. The Natural History Study that is being conducted through the LCRCs will help us gather data to begin performing clinical studies that will answer questions about our very complicated disorder.

And, lastly, the Foundation has continued to be a source of information and referral for the OI community. Last year we answered more than 6,000 requests for information and saw a 25% increase in the number of people visiting our website. I’m sure many of you are now connected to the Foundation through our NING social networking site on our website or through our facebook page. You can even follow us on Twitter!

So, 2010 has been a busy one for the Foundation but as always we look to OIF CEO Tracy Hart and former OIF you, our loyal supporters, for your help in making 2011 successful. Board Members Susie Wilson and Jamie Kendall

OI Foundation FY 2010 Annual Report 3 Education & Mutual Support

OIF Celebrates Successful National Conference in 2010

The 2010 National Conference on OI was held in Portland, One of the most notable parts of the Conference was the Oregon on July 8-10. Over 500 people from all over the opportunity to present our founding Gemma Geisman with country, and world, attended this national event. The three a Humanitarian Award for her lifetime of work. She is the days were filled with informative sessions, social activities, mom whose article in Redbook magazine more than 40 and fun! years ago led to the formation of the OI Foundation. At Conference, Gemma also read from her recently published The day before the Conference began; memoir, From the Seeds of Sadness, attendees were given the opportunity and answered questions along with her to schedule one-on-one medical “It finally dawned on me that adult daughter Cathy and another early consultations with an OI specialist. lectures and presentations are leader, Renee Gardner. Over 100 appointments were made! secondary to the real reason for That night, everyone gathered for a the Conference: connecting with The National Conference plays Welcome Reception, complete with the OI community – the folks a vital role in the lives of many a roaming magician! While the days with OI, the families, the medical people with OI. In addition to the were filled with important sessions and research community unparalleled informational sessions, with topics such as; The Genetics of entrenched in finding a cure, and opportunities to meet with leading OI, Splinting Workshop, and Home and the organizers of the event OI experts, the Conference provides Improvements & Resource Ideas, the from the OIF. The spirit of the attendees with an inviting and inclusive nights were filled with social activities. environment. One Mom repeated her conference is actually visible in The exclusive movie screening of 9-year-old daughter’s happy statement Broken Dreams, featuring Nicole the halls of the hotel.” that “Everyone gets to play together Gerth, an actress who has OI, was a here!” popular event. Nicole attended the ~Laurent Beauregard, first time event, and answered questions about Conference attendee The 2012 National Conference will be the movie and her career. held in Washington, DC, at the Crystal Gateway Marriott in Crystal City, VA. The highly anticipated Talent Show, A major factor in the city selection hosted by Katee Shean from So You Think You Can process was the opportunity Washington, DC offers to Dance, showcased almost two dozen kids. The show increase advocacy and awareness efforts on Capitol Hill. was directed by Suzanne Richard, Director of the Open Circle Theater in Washington, DC. These kids felt 10 feet tall while on the stage! After the show, approximately 500 attendees celebrated the Foundation’s 40th Birthday by enjoying birthday cake.

4 OI Foundation FY 2010 Annual Report Education & Mutual Support

OI Foundation FY 2010 Annual Report 5 Education & Mutual Support

OI Foundation Support Groups

The OIF Support Groups continue to connect people with OI in cities across the country. With four new support groups forming in 2010, the groups held meetings and social activities ranging from holiday parties, to summer picnics, to presentations by leading OI experts.

Did you miss your local support group meeting? Check this list of states and months in which meetings were held during 2010.

Arizona: March, May Connecticut: March Florida (South): January, March, May, June, December Georgia: May Louisiana: August Missouri: May, September New Jersey: April, September, November New Mexico: February, April, May New York (Long Island): April, May, June, July, December Ohio (Cincinnati): March, December Oregon: June Pennsylvania (Pittsburgh): July

To ensure you don’t miss the next support group meeting, stay posted for news by going to the Events page or calendar of events on www.oif.org. A full listing of the OI Support Groups can be found under the Support Networks tab on www.oif.org.

OI Foundation Receives Top Rating for Sound Financial Management

The OI Foundation is among the top 25 percent of charities nationwide, according to Charity Navigator, which calls itself “the nation’s largest and most-utilized evaluator of charities.”

The organization has awarded its highest 4-star rating to the OI Foundation “for its ability to efficiently manage and grow its finances.”

“This ‘exceptional’ designation from Charity Navigator differentiates Osteogenesis Imperfecta Foundation from its peers and demonstrates to the public it is worthy of their trust,” according to a letter from Ken Berger, President & Chief Executive Officer of Charity Navigator.

“We are very pleased by this recognition from Charity Navigator,” said CEO Tracy Smith Hart. “It reinforces our message to constituents and donors that we work hard to make the very best use of their dollars.”

To review Charity Navigator’s data on the OI Foundation’s financial efficiency, accountability and transparency, visit http://www.charitynavigator.org/index.cfm?bay=search.summary&orgid=8139.

6 OI Foundation FY 2010 Annual Report Education & Mutual Support

OIF/CBBF Impact Grant Program Continues to Change Lives

In partnership with the Children’s Brittle Bone Foundation more than 20 grants totaling $140,000 were awarded to people with OI in need of products or services that would improve the quality of their lives in 2010. Grantees received funds to purchase adapted vehicles, computers, hearing aids, wheelchairs, van lifts and other products and services. Since its launch in 2009, the Impact Grant program has received over 240 applications.

The following letter is from Taryn Smith, an Impact Grant recipient who received a new wheelchair lift for her family’s van:

Dear Donor, I want to thank you so much for your generous contribution that made it possible for my son, Matthew, to receive an Impact Grant from the OI Foundation. This impact grant has made things so much easier for Matthew. We are now able to transport his power wheelchair wherever we go which gives him a lot more independence than he has ever had before. The lift in the van is great. Matthew is now able to go places in public with friends and family and get around by himself. This gives him such a great feeling of independence. Now that he is getting older, 9, he no longer wants to be pushed around in either a stroller or grocery cart. We are also able to have his chair at home now. We had only been able to keep it at school prior to us having the lift installed in our van. He is now learning how to do and get things on his own at home. We cannot thank you enough for your generosity. Matthew, age 9, was one of 20 people awarded an Impact Grant in 2010. Sincerely, Taryn Smith Mom to Matthew, Type III OI

Driving Grant Program Continues to Help Young Drivers

In November 2010 four Driving Grants were awarded through a special program sponsored by Shriners Hospital for Children-Chicago and the OI Foundation. The adapted Driving Grant program provides financial aid to help cover expenses faced by young people with OI who wish to learn how to drive. The $500 grants can be used for driver evaluations, lessons, or adaptive equipment for a vehicle. Since the program began in 2009, sixteen young people have received awards totaling $8,000.

2010 Driving Grant recipient Rosemary McDonnell-Horita, Andy Pilgrim Adaptive Driving Grant Sponsor, Dr. Peter Smith, Orthopedic Surgeon at Shriners Hospitals for Children- Chicago.

OI Foundation FY 2010 Annual Report 7 Awareness

Thank You and Congratulations to Our 2009 Volunteer Award Recipients

Frank Fossati, Christine Wyman Rossi and Rebecca Lee Perritt are the 2009 recipients of this year’s OI Foundation volunteer awards.

Selected for the Thelma Clack Lifetime Volunteer Achievement Award, Frank Fossati has served the OI Foundation for 29 years. Motivated by his love for individuals and families with OI, Frank has been at the helm of the annual golf and tennis tournament sponsored by the Southern California Petroleum Industry Charity Association (SCPICA). Through his efforts, the SCPICA has become the longest running charity event in support of the Foundation, raising over $1,150,000. While officially holding the title of Treasurer, Frank oversees every aspect of the tournament. It is generally understood that without him, this annual event begun in 1985 would not be realized. A past recipient of the President’s Award, Frank has continued to put others before himself in support of the OI community.

The Thelma Clack Lifetime Volunteer Achievement Award is given annually to the volunteer who best exemplifies the qualities of loyalty and dedicated service to the Foundation and its members. Recipients demonstrate a willingness to put others before themselves as demonstrated by the late Thelma Clack.

This year’s recipient of the President’s (Volunteer of the Year) Award is Christine Wyman Rossi. The President’s Award is given to the outstanding volunteer of the past year. The award is given to an individual who best exemplifies the qualities of volunteer service to the OI Foundation and the OI community.

Following in the family tradition, Christine has served the OI community in many capacities. She recently completed six years serving on the Board of Directors, a position she began before the birth of her son Jack who, like Christine and her father Dick Wyman, also has OI. The arrival of Jack, or more specifically the arrival of his first femur fracture, inspired a desire to raise funds for research to find a cure and treatment for OI. So began an annual walk-n-wheel event in Massachusetts, now in its 5th year. As chairperson, Christine is involved in all aspects of what has become a very successful event. In addition, through her role as a local support group leader, the Massachusetts OI community has benefited from Christine’s availability in sharing information and support as well as from efforts to coordinate presentations of OI related issues by experts in the field. Most recently, Christine’s work on behalf of the OI community were rewarded by her company, EMC Corporation, with a $10,000 award to the OI Foundation. Christine lives in Framingham with her husband John and sons Jack and 2 year old Hugo.

A volunteer from the age of 2 years old, Rebecca Perritt leads by example. Rebecca is this year’s recipient of the Peter Dohm Junior Volunteer Award. The award is given to an outstanding youth volunteer of the past year. Peter Dohm began volunteering for the OI Foundation as a young man when his parents helped organize an OI conference. He continued to volunteer throughout his lifetime.

A strong advocate for people with disabilities, Rebecca lends her support to local endeavors such as Junior Civitan, Special Olympics and as a student board member of Parents of Children with Special Needs, Inc. Rebecca is a strong OI advocate, and from the age of 5, she has spoken about her disability to teachers at Eastern Kentucky University, encouraging them to advocate for their students. She has also addressed Senators and Representatives about healthcare, helping them understand the needs of those with disabilities. Rebecca has done fundraising for the OI Foundation as well as participated in an OI walk- n-wheel event in Kentucky. With a perseverance that moves others, her spirit in participation has encouraged many youth in the community 2009 Thelma Clack Lifetime Volunteer Award to join or participate in activities. Some are amazed to see her going recipient Frank Fossati poses with OI moms and doing what she does in a wheelchair. Rebecca responds, “I’m not Marybeth Parke (center) and Michelle Hofhine at the Southern California Petroleum Industry handicapped…I just use a wheelchair.” If someone needs help, Rebecca Charity Association (SCPICA) Golf & Tennis is there. Tournament on Nov. 13.

8 OI Foundation FY 2010 Annual Report Awareness

OIF Unveils Plans for OI Awareness Week

In October 2010, the OI Foundation announced plans for OI Awareness Week, to be held May 9-15, 2011. OI Awareness Week is designed to be a collaborative effort of both volunteer events, and Foundation sponsored events and programs that serve to educate communities across the country about OI.

OI community members are currently planning Awareness Week events in cities across the nation, including Walk-N-Wheels and Blue Jeans for Better Bones campaigns. OIF Support Groups are being asked to lead outreach programs in their communities by distributing OI Awareness Week posters to local vendors and requesting proclamations for “OI Awareness Day” from their local elected officials.

In addition to supporting volunteer events, the Foundation will organize an Advocacy Day on Capitol Hill in Washington, DC, and host the popular Fine Wines Strong Bones on Thursday, May 12.

The Foundation is partnering with local and national sponsors support the success of OI Awareness Week.

OI Family Selected to Appear on ABC’s “Extreme Makeover: Home Edition”

The Sharrock Family of Chattanooga, Tennessee was selected as the latest family to appear on the ABC popular show “Extreme Makeover: Home Edition”. The Sharrock’s son, Patrick, has OI. The show will air in late April 2011. The Sharrock’s are the third OI family to be chosen for the show.

OI Foundation FY 2010 Annual Report 9 Science & Research

Adult Health Initiative Update

It is a fact that little is known about growing older with osteogenesis imperfecta (OI). It is well known that OI is a complex disorder and a great deal is known about OI during infancy and childhood. But there is a lack of reliable information about how OI affects people during the different stages of adulthood. Concern about this lack of information for both persons with OI and their physicians was emphasized at the Osteogenesis Imperfecta Foundation Scientific Meeting in April 2010 and again through the focus groups at the OI Foundation National Conference in July 2010. In response, a committee composed of adults with OI and doctors was formed and began developing a research study called the Adult Natural History Initiative (AHNI, pronounced “Annie”).

The ANHI study proposes to survey as many adults with OI in the United States about their health status as possible. Participation will be voluntary and anonymous. All of the personal health related information will be stored in a fully secure manner and there will be no means of tracing it back to the participant.

The results will be combined with information from the OI Foundation’s Registry and Linked Clinical Research Centers to develop not only a clearer description of the health needs of adults with OI but also identify areas where research is needed.

The ANHI study will use a health survey instrument designed at the National Institutes of Health called PROMIS. Using the PROMIS system will make it possible to make the survey widely available and to analyze the information quickly. PROMIS also allows the survey to be repeated periodically, making it possible to track how health needs change in the future.

Results from the ANHI survey will be used to • Identify health needs and concerns of adults with OI • Improve the quality of communication between adults with OI and their health care providers • Expand the focus of medical care for adults with OI beyond “brittle bones” • Ultimately improve best practices and care recommendations available to health care providers

How You Can Help Now At this stage, an Adult Advisory Committee is being formed. The committee will be representative of adults all ages and types of OI. Members will be asked to review the draft of the survey for content and style. Input from the adult OI community is necessary to create the best-possible survey that gets at the heart of the questions adults with OI face about their health. If you are interested in applying to join the Adult Advisory Committee, please send an email to [email protected] and include your contact information, age and type of OI.

How You Can Help in the Future You can plan on taking the survey when it is available later this year. You can also plan on recruiting every adult with OI you know to participate in this important study.

10 OI Foundation FY 2010 Annual Report Science & Research

2010 Research Funding

The OI Foundation funded the following grants in 2010:

A Zebrafish Model of Bone Accrual in the Axial and Appendicular Skeleton Dr. Matthew Goldsmith, Washington University, St. Louis, Department of Genetics – Basic Seed Grant

Effect of a Low-magnitude, High-frequency Mechanical Stimulus on Bone with Children with OI: A Pilot Study Dr. Christopher Modlesky, University of Delaware, Human Performance Laboratory – Clinical Seed Grant

Efficacy of RANKL Inhibition in Adult OIM/OIM Mice Dr. Nancy Pleshko, Hospital for Special Surgery, New York, Research Division – Basic Seed Grant

Linked Clinical Research Center Program Continues to Grow

In 2010, the OI Foundation was pleased to announce the expansion of the Linked Clinical Research Center program and the “Longitudinal Study of Osteogenesis Imperfecta.” The addition of new LCRC sites to those previously announced expands the network to 5 sites, including one in Canada. All of the new sites have a multidisciplinary group of specialists with extensive experience caring for children who have OI. All of the new sites will be participating in the natural history of OI study.

Linked Clinical Research Centers:

NEW Shriners Hospital for Children, Chicago, IL NEW Shriners Hospital for Children, Montreal, Quebec Canada Baylor Medical Center, Houston, TX Kennedy Krieger Institute, Baltimore, MD Oregon Health & Science University / Portland Shriners Hospital, Portland, OR

What is a Natural History of OI Study? “The Longitudinal Study of Osteogenesis Imperfecta” is a natural history study. It will collect and analyze information about the health of people who have OI. To be successful, this study must include as many people as possible and include children and adults of all ages from infancy through senior citizen and all types of OI from the mildest to the most severe. The goal is to enroll 500 people. Each study center will be collecting exactly the same type of health information in the same way from all participants. This information is then entered into the LCRC secure, anonymous, central database.

Study Information Study participants are required to visit the Linked Center once a year for 5 years. Each person will be asked for a detailed medical history and receive an extensive annual physical exam including various diagnostic studies such as a DEXA. Participating in this natural history study does not replace a person’s regular health care team and does not interfere with any other research studies he or she may already be enrolled in.

Contact Information for all Study Sites For detailed information about participating, please speak with a study coordinator at one of the following sites. Information is also posted on the OI Foundation website under the “Research” tab.

The following are two personal accounts from OI community members who visited a LCRC in 2010: (continued on page 12)

OI Foundation FY 2010 Annual Report 11 Science & Research

My Visit to the Linked Clinical Research Center By Tony Benish, OI Foundation Board of Directors

This last May my son Danny and I traveled to one of the newest LCRCs located at Shriner’s Hospital in Oak Park, Illinois. Danny has been treated at Shriner’s OI clinic for several years, but this visit, I was able to attend as both a parent and a patient. I have been anticipating becoming involved in the Natural History study currently ongoing at the LCRCs since the Board first approved the creation of the first LCRC. Imagine being able to participate in a study that could help in treatments for adults affected with OI.I grew up in the 60s and 70s, when very few knew what OI was, let alone if there were any treatments. I often wondered if there would ever be a facility that specialized in research for children and adults with OI. I had always hoped that there would be a place that could help coordinate treatment for adults affected with Ol. I remember the Board’s vote to approve the first LCRC, and hoping that Chicago would one day have their own Center. I placed several calls to Angela Caudill to set up our appointment. I had the crazy idea of being the first adult enrolled in the newest LCRC. However, by the time I got my appointment, there were many others ahead of me. Regardless, I looked forward to my appointment in the hopes of sharing my clinical history.

OIF Board Member Tony Benish, and his son Danny.

My Appointment at the Linked Clinical Research Center in Baltimore, Maryland By Maria Semprini-DeMartino, RN

In September I had an appointment at the Kennedy Krieger Institute in Baltimore, Maryland one of the OI Foundation’s linked centers. My purpose was to participate in the Natural History of OI Study, to get a good physical and to get some of my questions answered about my OI. I live in New York and I’m part of a large, multi-generation family that has Type I OI. Like every other adult I know I’m busy with my family and I’m concerned about how OI might affect the next part of my life.

I corresponded with Dr. Jay Shapiro and his research nurse Pamela Melvin before my appointment so I was able to have some of the required tests done at home before going to Baltimore. These included the PFT (pulmonary function test), DEXA scan and hearing tests. If I had not been able to have them done in my home town, they would have been done as part of my KKI visit. None of the tests were invasive and the only physical thing I had to do was try to walk for 6 minutes. Everyone I met was very nice and easy to work with. The nurse stayed with me the whole time. I also spent about 90 minutes with Dr. Shapiro. He will answer any question you might have and I had a lot. I stayed one night at a nearby hotel, the Hampton Inn, where the KKI gets a discount. I’m glad I enrolled in the LCRC Natural History Study. I hope you will too.

12 OI Foundation FY 2010 Annual Report Financials

Sources of Revenue FY 2010 Other Merchandise 9.6% 0.3%

Corporations & Foundations 33.8% Individuals & Events 56.3%

Distribution of Expenses FY 2010 General & Administration 5.0%

Fundraising 17.3% Program Services (including Research) 77.7%

OI Foundation FY 2010 Annual Report 13

Financials

OSTEOGENESIS IMPERFECTA FOUNDATION, INC.

STATEMENTS OF FINANCIAL POSITION JUNE 30, 2010 AND 2009

2010 2009 ASSETS Current Assets Cash and cash equivalents $ 348,323 $ 576,064 Pledges receivable, net of allowance for uncollectible pledges 603,982 611,854 Other receivables 7,027 1,124 Investments 1,681,630 1,422,583 Prepaid expenses 38,515 13,411 Inventory 11,300 10,669

Total Current Assets 2,690,777 2,635,705

Fixed Assets Furniture and equipment 161,813 141,507 Leasehold improvements 4,206 4,206

Total Cost 166,019 145,713 Accumulated depreciation (105,907) (90,080)

Net Fixed Assets 60,112 55,633

Other Assets Pledges receivable, long-term 21,429 28,572 Funds held in perpetual trust 15,500 15,500 Deposits 6,762 6,762

Total Other Assets 43,691 50,834

Total Assets $ 2,794,580 $ 2,742,172

For a completeFor a complete copy ofcopy our of annual our annual audit auditreport, report, conducted conducted by Thompson, by Thompson, Greenspon Greenspon & Co., & Co., P.C., P.C., visit visit the the OI OI Foundation’sFoundation’s web web site site at www.oif.org/AB_Statements.at www.oif.org/AB_Statements.

14 OI Foundation FY 2010 Annual Report Financials

2010 2009 LIABILITIES AND NET ASSETS Current Liabilities Accounts payable $ 157,908 $ 107,067 Accrued expenses and vacation 27,201 20,425 Deferred revenue 48,177 - Promises to give to others 462,497 531,425

Total Liabilities 695,783 658,917

Net Assets Unrestricted net assets 1,200,229 1,332,141 Temporarily restricted net assets 844,080 696,626 Permanently restricted net assets 54,488 54,488

Total Net Assets 2,098,797 2,083,255

Total Liabilities and Net Assets $ 2,794,580 $ 2,742,172

For a completeFor a complete copy of copy our ofannual our annual audit report,audit report, conducted conducted by Thompson, by Thompson, Greenspon Greenspon & Co., & Co., P.C., P.C., visit visit the the OI OI Foundation’sFoundation’s web web site site at www.oif.org/AB_Statements. at www.oif.org/AB_Statements.

OI Foundation FY 2010 Annual Report 15 Financials - - 7,480 58,839 87,958 20,392 646,157 156,300 233,146 286,208 126,312 298,034 424,346 2,252,006 2,083,255 $ $

$ $

-$ -$ 1,063,070 - - - - 1,036,353 ------1,870,141 - - - 1,614,546 - - (111,216) ------2,038,892 - - (168,751) 54,488 54,488 $ $

2009 ------2,711 590,689 696,626 915,787 (219,161) (219,161) $ $

$ $

Temporarily Permanently 7,480 6,657 81,301 58,839 20,392 50,410 472,381 398,998 247,159 156,300 233,146 286,208 126,312 298,034 424,346 (113,927) 2,089,302 1,614,546 1,036,353 1,332,141 2,038,892 1,281,731 $ $

$ $

- - 1,141,021 (1,141,021) 7,361 2,754 62,604 99,435 61,375 15,542 607,018 155,985 122,983 502,096 100,555 902,935 347,922 448,477 2,098,797 2,083,255 $ $

$ $

-$ -$ 1,073,613 ------1,567,070 ------2,031,089 ------2,015,547 - - 54,488 54,488 $ $

2010 ------420 676,165 147,454 844,080 147,454 696,626 $ $

$ $

Temporarily Permanently YEARS ENDED JUNE 30, 2010 AND 2009 AND 2010 30, JUNE ENDED YEARS 500 60,875 7,361 2,754 62,604 99,435 OSTEOGENESIS IMPERFECTA FOUNDATION, INC. FOUNDATION, IMPERFECTA OSTEOGENESIS 122,563 155,985 902,935 467,041 139,977 397,448 502,096 100,555 347,922 448,477 (131,912) 1,200,229 2,015,547 1,332,141 $ $

$ $

Unrestricted Restricted Restricted Total Unrestricted Restricted Restricted Total STATEMENTS OF ACTIVITIES AND CHANGES IN NET ASSETS IN CHANGES AND OF ACTIVITIES STATEMENTS TotalRevenue and Support 1,883,635 TotalProgram Services 1,567,070 TotalServices Support TotalExpenses Public awareness Conferences Education and support and Education General administration and Research $2,061 for $2,061 for $3,788 and 2010 2009 Fundraising Contributionsgrants and Event revenue Direct mailing revenue Investmentincome (loss) ProgramServices Conference revenue Support ServicesSupport In-kindcontributions Product sales,Product less cost of goods sold of Netassetsreleased from restrictions 729,983 (729,983) Support and Revenue Revenue and Support Expenses Net Assets, end of year end Assets, Net Change in Net Assets Net in Change Net Assets, beginning of year beginning Assets, Net For a complete copy of our annual audit report, conducted by Thompson, Greenspon & Co., P.C., visit the OI Foundation’s web site at www.oif.org/AB_Statements.

16 OI Foundation FY 2010 Annual Report Honor Roll of Donors

Breakthrough Society $100,000 or More Cumulative Lifetime Giving Birdies and Bogies for Better Bones Massachusetts Unbreakable Spirit Bone China Tea Walk for OI Broadway Theatre Benefit William G. McGowan Charitable CT Walk-a-thon and Dinner Fund Henry and Gilda Buchbinder Miracle Michael Fund The Charitable & Research Fn., Inc. New Jersey Beefsteak Dinner Children’s Brittle Bone Foundation New Jersey OI Charity Fundraiser Connecticut Walk-a-thon and Dinner OI Golf Classic (NH) Eichenberg-Larson Charitable Frank & Denise Quattrone Foundation Foundation Fine Wine Strong Bones Riley’s Gathering Place Golf Outing Parker & Carol Folse, III Sally Foster Gift Wrap Sale Estate of Randy Kohler S.C.P.I. Charity Association Estate of Peter A. Willmann UPS United Way North Jersey Estate of Mabel Vogelsang District Golf Invitational Kroger Food Stores UPS Employees Mallie’s Friends Research Legacy

Donors July 1, 2009 to June 30, 2010

The OI Foundation gratefully acknowledges the generous individuals, foundations, and corporations, whose support helps us respond to thousands of inquiries each year, produce new information resources, fund research, organize the biennial National Conference on OI for families, and facilitate the operation of support groups across the country. These are listings of donors from July 1, 2009 to June 30, 2010. We regret any error or omission and ask that corrections be brought to our attention. Breakthrough Society Legacy Circle Achievement Circle $100,000 and greater $10,000 to $24,999 $5,000 to $9,999 Children’s Brittle Bone Foundation Alle Shea’s Unbreakable Spirit Walk Allianz Life Insurance Company Kroger Food Stores for OI (NY) Samuel & Amanda Bergman Family Amgen USA Foundation Harold A. Sofield Society Bash by the Bay (NJ) Central TX Walk-n-Roll $50,000 to $99,999 Bennett Clayton Foundation Ms. Judith Clarke Henry & Gilda Buchbinder Booz Allen Hamilton, Inc. Mr. & Mrs. James Clary Parker & Carol Folse, III The Charitable & Research Fn., Inc. Ms. Leslie Devereaux OI Golf Classic (NH) Degna Spoldi Private Family Fidelity Brokerage Services, LLC S.C.P.I. Charity Association EMC Corporation J. Eric & Laura Gould The TowerBrook Foundation Eichenberg-Larson Charitable Jamie Kendall & Tim Dombro James & Mary Geisman Merck Partnership for Giving Miracle Michael Fund Unbreakable Spirit Walk for OI: Mildred “Midge” Peck Society Edward and Kendrick Pascoe Sacramento $25,000 to $49,999 Riley’s Gathering Place Golf Outing (IL) The TJX Foundation, Inc. Birdies & Bogies for Better Bones (VA) Dr. Samantha Spencer Unbreakable Spirit Walk for OI: Atlanta Fine Wines Strong Bones Jeffrey & Andrea Stewart United Way of Central Indiana MA Unbreakable Spirit Walk for OI Susman Godfrey, L.L.P. ‘Walk with Isaac’ Game Night (MD) Nat. Institute of Arthritis-NIAMS Technical Needs, Inc. New Jersey Beefsteak Dinner John & Carolyn Tipton Optimism Circle United Way of Tri State Inc. Unbreakable Spirit Walk for OI: $2,500 to $4,999 Long Island Amyra’s Walk-n-Roll for Better Bones (IA) Argon ST, Inc.

OI Foundation FY 2010 Annual Report 17 Honor Roll of Donors

Cameron & Julianne’s Unbreakable The Healey Werks Corp. Mr. James Alexander Spirit Wheel/Walk/Run (MO) Mr. Lawrence Hitch Alphabet Goods, LLC Emmett R. Quady Foundation Human Resources Technologies, Inc. Mr. David Amenhauser FYIF, Inc. Hutter Construction Corporation Mr. & Mrs. Jose Ayala, III Mr. Bruce Fingeret IBM Employee Services Center Ms. Theresa Barbieri Goldman, Sachs & Co. John Hancock Denise & Leon Bedeian Kenneth & Teresa Gudek Mrs. Eileen Johnson Michael & Ellen Bendel-Stenzel, M.D. Ms. Pauline M. Herd Mr. Glenn Johnson Anthony & Jennifer Benish Dr. & Mrs. Walter Holman, Jr. Mr. Peter Karmanos, Jr. Sam & Amanda Bergman IC Bus, LLC P.J. & Jennifer Kimball Denis & Kersti-Ly Sunne Biro Independent Charities of America LT Business Dynamics PC Ms. Bonnie Bolden Carlton & Joanne Klapper Mr. Patrick Leach Michael & Rachel Breen Mr. Robert Lyster Ms. Sylvia Leaf Mr. Charles Burnett Mr. Todd McGowan Brian & Kristin Lenahan Peter Byers, M.D. Meltzer Carroll Life Lindaman Orthopaedics CE Design, LTD. Microsoft Matching Gifts Program Michael & Caren Loguercio Camden County Energy Wayne & Patricia Miller Magnani & Buck LTD CardWorks Servicing, L.L.C. Pega Medical Neal Manne & Nancy McGregor Care Medical Equipment and Rehab Ride-Away Mason Finanial Group Carolinas Healthcare System Mr. Thomas Rowe Maurides Foley & Tabanagay L.L.C. Mr. D. Kevin Carroll Sally Foster Gift Wrap Sale Thomas & Rachael McCarthy, III Thomas & Gigi Carroll Robert Sandhaus, M.D., Ph.D. Eric & Mary McNutt Cash America of Oklahoma Stifel, Nicolaus & Company, Inc. J.C. & Neil Milner Chicago Business Intelligence Group Mr. Steven Stuart Mondrian Investment Partners (U.S.) Diego & Flaviola Cisneros TiLite Mr. James Moriarty Ms. Christina Cogdill Sharon & Ted Trahan NEPS, LLC Robbin & Shannon Cohen Veris Consulting, LLC Network for Good Mrs. Laura Conlon Warner Chilcott New England Schooner Connect2 Communications, Inc. Mrs. Charlene Niemann Controlled Systems HVAC, Inc. Resiliency Circle Novartis Pharmaceuticals Corporation Mr. Christopher Conversa $1,000 to $2,499 Herman & Carla Phillips Michael & Kathleen Cook 1st Commonwealth Bank of Virginia Positivity Gym, LLC Discover Re Managers, Inc. Absolute Environmental, Inc. Michelle Prince, MD. Ms. Deane Dolben Antioch Wesleyan Church R. Nelson Snider High School Brian and Carol Duprey Roger & Gayle Bache David & Nancy Reid Ms. Sarah Dyke Mr. Patrick Barron Ms. Amy D. Rossi Ingrid Junker & Andy Eccleshall Mr. John Bendyk Mickey & Robin Rowland Ms. Alice Erskine John & Ellen Benish SDSI Falasca Mechanical, Inc. BlueCross BlueShield Association Salem Advanced CT Imaging LLC Farr, Miller & Washington, LLC John & Nancy Braitmayer Salem Park Place Properties, LLP G-Tech Contractors, Inc. Alan & Elena Bruno-Jezierski Mr. Tony Sarrge Gamma Sigma Phi CPManagement, Inc. Dr. & Mrs. Alan Schnall Gerard Sheet Metal Fab., Inc. William & Tere Canida Simmonds & Klima, Ltd. Mr. Robert Glennon Capital One Mr. & Mrs. Horacio Sobol David & Deborah Glickman Carney Management Co. St. Matthew Catholic School The Gold Foundation George Washington Carver Center’s Mr. J.T. Stephens Goodnow Real Estate Service Cleveland, Waters and Bass, P.A. Mr. James Stolpa Grace Electric, Inc. George & Pat Collett Tenet Healthcare Corp. Arthur & Barbara Graziani Dr. Bharati Desai Texas Parent To Parent Vincent & Sharon Graziani Mr. Donald Dillon Tomlinson Industries/The Meyer Mr. & Mrs. Stephen Gudek Mr. Merle Dimino Company Gerard & Kathleen Haggerty, Sr. Mr. & Mrs. Michael Dimino Mr. Raymond Tuppatsch Rick & Crissy Hancock E*Trade Financial Unicare Life And Health Insurance Co. Ms. Odille Hansen EBSCO Industries, Inc. United Way of CE Mr. & Mrs. Lee Heldt Therese Wareham & Merrick Elfman Vilter Foundation, Inc. Gerard & Marie Hough Ester Eisenberg Charitable Trust Wellpoint Associate Giving Campaign Howe, Riley & Howe, PLLC Peter & Helen Fahey Wells Fargo Foundation Ms. Leigh Ann Hughes Jason & Amy Fond, M.D. ZBI Employee Allocated Gift Fund J A Bisignaro Mechanical Equipment Ms. Teresa Frederick Mr. Raymond Jacques Douglas & Barbara Gibson Encouragement Circle Robert & Kimberly Johnson Gary & Kathy Gonzalez $500 to $999 Mr. Brian Kearney Green Goby Software 804 Diamond Avenue, LLC Mr. & Mrs. James Kendall Wilbur & Nancy Harris Mr. David Abels Ms. Catherine Kenvin Walter & Judith Havenstein Abilene Christian University Klas Shoes, LLC Leinenweber & Baroni Consulting, LLC

18 OI Foundation FY 2010 Annual Report Honor Roll of Donors

MEG Asset Management, Inc. Ms. Pam Uffman Robert & Linda Baker MHF Design Consultants, Inc. United Rehab Specialists, Inc. Mrs. Elizabeth Bandyk MSI Mechanical Systems, Inc. United Way of Central & Northeastern Bank of America Matching Gifts Alfred & Jacqueline Macaluso CT Bank of New England Mr. John Macliver United Way of Central Maryland Bruce & Dee Baraw Mr. Thomas Barbieri Donald & Cindarae Malin Eugene & Nancy Vatch Mrs. Nona Barnes Bernard & Nancy Markstein, III Ms. Carolyn Walker William & Debra Barnes Michael and Nancy Marotta Matthew Warman, M.D. Ms. Sherrill Barron McCormick & Company, Inc. Warrenstreet Architects, Inc. Ms. Gayle Barstow McGladrey & Pullen, LLP Washington Strategic Consulting, LLC Mr. John Bartram Greerson and Ann McMullen Mr. David Welker Mr. William Bartram Mr. & Mrs. Bill McNutt William D. Cuts Junior High School Ms. Gayle Bates Dan & Susan McRae Mr. James Williams Allan & Aimee Bauer Ms. Barbara Michaels Willis Dave & Joyce Baughman Scott and Suzanne Baum Microwave Development Co. Workout Club & Wellness Center Baumgardner Construction Co., Inc. Midtown Sports Medicine Mr. Jonathan Wos, Wos Art Mr. Rick Beaupre Motion Concepts Elliot & Roslyn Zimmerman Thomas and Mary Beckman Daniel & Joan Mulcahy Mr. & Mrs. David Bednarcik Mrs. Laurel Newmark Supporting Members John & Margaret Bee Larry & Sharon Beeman The Nittany Wildkatz Allstar Team $100 to $499 Norris Insulation, Inc. Mr. Michael Bellas Robert & Jacqueline Abatemarco John & Phyllis Benanti Mr. & Mrs. Michael O’Shanick Abbott Laboratories Employee Giving PNC Bank Mrs. Anne Bendel Joan Ablon, Ph.D. John & Christie Benish PNC Investments, LLC Ms. Ginger Abrams Ms. Janet Bennett Mr. John & Lindsay Painter Acadian Ambulance Service Steve & Suzanne Bennett Dr. Mark Papich Mrs. Rebecca Achariyakosol Gerald & Emily Berendt Parkland Medical Center Mr. Thomas Acquafredda Ms. Linda Bergelt Dr. & Mrs. Nathaniel Payne Ms. Kathleen Adamczyk John & Carolyn Berger Administaff Mr. Carl Bergman Mr. Marc Pellegrini Aerotek Aviation Pentucket Bank Howard & Linda Bergson Mr. Pradeep Agnihotri Ms. Jo Ann Berkenbush Ms. Kara Peters Mr. Robert Akalski Pro Clean Service Co. Mr. & Mrs. Thomas Berkenbush Mr. Abdul-Aziz Al-Bata’a Mr. & Mrs. William Berkenbush Quimex, Inc. Dr. & Mrs. James Albright Norman & Ethel Berman RSM McGladrey, Inc. Lester & Patricia Allen James Shaw & Barbara Bernardi Melanie Rak, M.D. Allstate Giving Campaign James & Donna Bernie Ready Mix USA, LLC. Pacifico Amaro, M.D. Robert & Christine Bernstein Vaughan & Margaret Reale Charleen Amato, D.C. Ms. Mary Bevan American Express Gift Giving Program Mr. Sean Bevan Rehabilitation Equipment Professionals Ames Pediatric Dental Miss Purita Reyes Mr. Tom Bevan Shilpan & Lisa Amin Beyond Fit, Inc. Ms. Casandra Riggs Dominic & Kathy Ammerman Ringler Associates Tapan Bhatt Robert & Ginger Anderson Steven & Jacquelyn Biagini Dr. & Mrs. Samuel Rosenfeld Mitchell & Colleen Andrews Mrs. Kirsten Billhardt Jeffrey & Kristen Rush Alan & Sherianne Angel Mark & Martha Birdwhistell Ms. Antoinette Sakaris Wayne & Evin Anglace Bj’s Wholesale Club Sales Recruiters, Inc. Ankeny Pediatric Clinic Blacksheep Contracting, LLC Mr. Irving Salisbury Joe and Martha Antolini Mr. Thomas Blackwood Salvatore & Anne Marie Antoniello Mr. Robert Blakesley Mr. & Mrs. Mark Sassman Ms. Myrna Aquino Mark & Judy Scharenbroich Mr. Richard Blanchette William & Nancy Arce Ms. Janice Blomerth Mr. William Schmidt Mr. Wayne Archer Ms. Marianne Schoel Blue Knights New York Mrs. Cheri Armentrout Mr. Paul Boncaldo John & Alexandra Sharp Mr. James Armstrong Tom Buffkin & Kelven Book Mr. Richard Sheehan, Jr. Mrs. Christina Arnold Mr. Joe Borden Mr. Mark Sickles Paul & Lyn Aronson Mrs. Candince Born Robert & Patricia Sikora Ashland Lumber Company, Inc. Robert & Nancy Bottiglier Sidney & Barbara Simmonds Mrs. Victoria Assumma Joseph & Brenda Bourque Audubon State Bank Charitable Ms. Margaret Bowers Ms. Carol Sirkowski Austin Culture Committee Ms. Carol Barbara Skram Michael & Linda Braun Austin Mobility Solutions, LLC Federico & Dolores Briseno Jack & Carol Sprawls Mr. Andres Avila St. Tarcisius School Kent & Karen Brooks Robert & Donna Ayers Ms. Stacey Brooks Peter & Gretchen Strauch, Jr. B.J. Terroni Co., Inc. William & Mary Brooks TD Banknorth, N.A. Eric & Sue Bach Greg & Jenny Brown Mr. John Tennant Mr. & Mrs. Gobind Bahroos Ms. Lavonne Brown Truist (United Way) Mrs. Brenda Baker Ms. Reagan Brown Ms. Juliadi Two Ms. Dorothy Baker Mr. & Mrs. Stanford Brown Mr. Peter Baker U.S. Alloys, Inc. Theodore & Jessica Brown

OI Foundation FY 2010 Annual Report 19 Honor Roll of Donors

Ms. Jean Bruemmer Mr. Bryant Coats Ms. Alicia Depto Gregg & Jody Bruno Mr. Robert Cohen Douglas & Susan Dere Vincent & Patricia Bruno Ms. Sherry Coleman Dr. & Mrs. Richard Derian Grady & Jewel Buchanan Kim & Angelo Collazo Ms. Lisa Dettmer Mark & Cathy Buck Ms. Eileen Collins Mrs. Patricia Devine Ms. Jane Buckler Ms. Debbie Colt Ms. Athanasia Diamantis Matthew Johnson & Susan Bundock John & Mary Comford James & Amy Dias George & Gail Bunker Ms. Andrea Comito Robert & Rebecca Dickinson Mrs. Lisa Burch Comview Corporation Ken & Diane Dietterich Mr. Charles Burgner Ms. Judith Condon Digital Media Trends, LLC Henry Chamberlain & Lisa Burns Kenneth & A. Lynette Condon Mr. Donald R. Dillon, Jr. Ronni Burns Ms. Patricia Condon Ms. Jessica Dimmer Ms. Carol Burris Michael & Eva Conlan John & Betty Dinella Ms. Patricia Burrowes Ms. Karen Convery Mr. Daniel Dixon Ms. Kathy Burson Dr. Casey B. Cook, D.M.D. Mrs. Peg Dombro James & Marvel Butcher Ms. Erin Cook Thomas & Elizabeth Donnelly C.S.S.T., Inc. Mr. David Cooper Ms. Peggy Donofrio CP Ward Charitable Foundation, Inc. Copiers Plus John & Silva Donvito Guillermo & Nelly Cabacungan, Jr. Andre & Jude Ann Cote Mr. Mike Dougherty Ms. Patricia Cadenhead John & Tiffany Cotsonas Bruce & Shari Douglas Todd & Sheri Cadenhead Covenant Presbyterian Church Downbeach Deli, Inc. Call One Ms. Kathryn Coward Mr. Don Dreyer Martin & Brenda Callaghan Mr. James Crabb Peter & Janet Droste Ms. Holly Calmus The Craig foundation Mr. & Mrs. Douglas Duess Steve & Cindy Calvin Bill, Michelle, & Sarah Cramer John & Mary Alice Duffy Camco Services of NY Inc. Randall & Dianna Cramer Vincent & Harriet Dufour Anthony Young & Kathy Cameron Jeffrey & Susan Crane Ms. Martha Dugan Duke E. Cameron, M.D. Ms. Sally Crawford Ms. Angela Dunn Mr. Michael Cammisa Ms. Kelly Crimmins Mr. Patrick Dunne Anthony & Deborah Campbell Mr. William Crockett Duro Fiber Company Mr. Matthew Campbell Vincent & Marguerite Cronin Don and Robyn Dyke Mr. Thomas Campone Ms. Kathy Cross EBSCO Federal Credit Union Mr. Chas G. Cancellare Mr. Martin Crotty Ms. Annette Eaderesto Mr. David Cannington Ms. Carol Crumlish Mr. John Early Cape Bank Mr. Gregory Cumbey Ms. Abbey Eckelman Capital Area United Way William & Lisa Cundiff Ms. Amy Eckelmann Ms. Olive Capriotti Ashley and Marga Curry John & Diane Eckstein Patrick J. Caputo, DPM Richard & Diane Curtin Paul & Florence Eckstein Arturo & Kelly Caraballo Mr. Joseph Cutugno Brian & Jennine Egan Mr. & Mrs. Rich Carapezzi Dan & Deborah Dagit Mr. & Mrs. William Einstein Mr. Eric Carlton Ms. Sofia Damiani Mr. Phillip Eisenberg Carolinas Medical Center Mr. Ray Damiano Dennis & Diane Eldred Kenneth & Barbara Cascio Raymond & Toni Damiano Kenneth & Thelma Ellenberger Mr. Gregory Case Joe & Janice Daniel Richard & Maribeth Ellsworth Casella Waste Systems, Inc. Eric & Jennifer Dauer Mr. Leon Elwell Mr. & Mrs. Michael Casper Mr. Thomas Davidow Jonathan & Janis Engel Ms. Sharon Catchings Mr. Benjamin Davidson Edward & Linda Enginger Central Metals, Inc. Ms. Diane Davis Ms. Donna England Ms. Elinor Chamas Donn & Mary Anne Davis James & Carol Enright Chandler School SPED Staff John & Marianne Davis Mrs. Sharon Lee Envall Ms. Tiffany Chapman Lonnie Davis Zane & Jennifer Ertel Paul & Jeanine Charbonneau Karen & Don Davison Mr. Jeffrey Eslinger Paul & Elsa Chase Mrs. Helga De Jongh Mr. & Mrs. William Eslinger Steven & Jill L. Chase Mrs. Denise DeCiantis Eurotech Woodcrafters, L.L.C. Ms. Joan Chatfield Ms. Clare DeCosmo Mr. & Mrs. Dwaine Evans Mrs. Yuka Chau David & Michelle DeGroot Ms. Sandra Evans Cheap Chic, Inc. Mr. Edward DeLuca, Jr. Amos & Doris Everett Cheesy Eddie’s Michael & Janet DeLuca Jim & Leah Everett Mrs. Charlotte Christiansen John & Patricia DeLuccia Mrs. Barbara Everson Ms. Jennifer Christianson Ms. Lorraine DePasquale Ms. Lynn Faber Chubb Federal Insurance Company Michael & Melissa DeRuiter Ms. Dana Fabina Ms. Carol Cichon Ms. Denise DeVinny Robert & Claudia Faherty Ms. Kara Ciliotta John & Particia Deal, Jr. Mrs. Caroline Faisal Ms. Lillian Clark Mark & Renee Dean Mr. Daniel Falasca Mr. Matthew Clark Jed & Peg Deegan Falmouth Podiatry Pam Rubin & Larry Clark Ms. Christina Degnore Ms. Myrtle Fantroy Ed & Aileen Clarke Ms. Linda DelSignore Mike & Marianne Farage Ms. Sharon Clarke Ms. Joan Delaney Robert & Christine Farr Clipson & Melinda Class Delaware North Companies Ms. Jacqueline Fawcett Claycomo Firefighters Association Ms. Nicole Deluca Gregory & Mary Beth Fehribach Claymont Holdings, LLC Denafo & Walcoff, L.L.C. William & Bernice Fehribach Mr. Charles Clyne Tracy Denson Ms. Patricia Feierberg

20 OI Foundation FY 2010 Annual Report Honor Roll of Donors

Robert & Susan Feitler Ms. Peggy Grigg Image Companies Howard & Graceann Felson William & Lu Ann Groesch, D.D.S. Index 10 Tanning T. Bruce & Karen Ferrara Mr. Dennis Grogan Information Builders Fidelity Charitable Gift Fund Ray & Kathleen Gunner Ms. Tricia Interrante Fifteen Hundred, LLC T/A NIX Ms. Jeri Gunther Chuck & Jean Intrabartolo Dr. Steven A. Fike Guthrie Glass & Mirror, Inc. Ms. Lynn Iredell Mr. & Mrs. Kenneth Finkel H.C. Nye Co., Inc. Harvey & Judy Irvin Mr. Maurice Finkel H2M Group Mr. J. Douglas Irving Mr. Frank Fitzmaurice Gerard & Kathleen Haggerty Ms. Barbara Isabella Ed & Jinny Fleischman William & Melissa Haggerty JPMorgan Chase Foundation-Matching Mr. Burl Fluharty Nolan & Suzanna Hake JTH Financial Services William & Madeleine Fogarty Halford & Mona Hales Amy Jackson, M.D. Forest Creek Family Dental PA Kevin & Ellen Haley Ms. Patricia Jacob Frank & Connie Fossati Mrs. Catherine Hamilton Thomas & Elizabeth Jacobs David & Pat Foster Mr. Red Hamilton, Jr. Ms. Pamela Jadwin Joel & Cydney Fox Ms. Renee Hammett Ajit & Vicka Jaggi Framingham Co-operative Bank Charles & Judy Hammond Ms. Cindy James Fredrick R. Lewcock, DDS, FAGD Ms. Lexy Hancock Mrs. Rosalind James Jeff & Jodi Freeman Ms. Elizabeth Hannan Mrs. Judith Jarvis Wendy & Gerald Freida Ms. Laurie Hansen Kenneth & Janice Johns Mrs. Bernice Freudensprung Ms. Jocelynn Hanson Ms. Martha Johns John & Tammy Fricker Mr. John Harmann Dennis & Jean Johnson Kenneth & Michele Friedman Jim & Kathy Harmer Mr. & Mrs. Francis Johnson David & Rhoda Fritz Samuel & Patricia Harper Gilbert & Karen Johnson Kenneth & Paula Furber Ms. Sylvia Harper Johnson & Johnson Family of Companies James & AJ Watland Fureby Mrs. Jean Harris Bonnie Landrum & Michael Johnston Fusion Healthcare Mr. Chad Hart Mr. John Johnston Michelle and Chris Fynan Susan & Roger Hart Mr. Matthew Johnston G.T. O’Brien, Inc. Mrs. Frances Harwell Chaplain & Mrs. Roy Johnston GHS, Inc. Ms. Claudia Haskins Eric & Debbie Jones Mrs. Earlene Gagnon Ms. Carol Heacox Jeff & Kelly Povroznik Jones Galliani, Doell & Cozzi, LTD. Healthcare Growth Partners, Inc. Mr. Robert Jones Robert & Silvana Gamble Ms. Kelly Heaps Mr. Ryan Jones Mr. Don H. Gardner, Jr. Michael & Jaimee Helbein Stephen & Linda Jones Mr. & Mrs. Thomas Garrity Ms. Amy Hemstad Mr. Thomas Jones Paul & Catherine Gatto John & Jennie Hench Mr. William Jones Ms. Dorothy Gay Mr. Kevin Hench Mr. William Jordan Ms. Ann Marie Geiger Chuck & Theresa Henry Mr. Nelson Julius Martin & Carin Geiger Mr. & Mrs. William Herbert Steven & Beth Kahn Joseph & Patricia Geisinger Mrs. Lorraine Hernandez Dr. & Mrs. Joseph Kaiser Naomi Lynn Gerber, M.D. Gerald & Dixie Hertel Mr. Pavlos Karaisarides Mr. Chet Gerlach Ms. Elise Hewett Ms. Bridget Karle David & Ruth Gerow John & Ruth Hill Ms. Catherine Kash Mr. Scott Gerow George & Mary Cauffield Hinman Ms. Rosemarie Kasper Ms. Amy Gerstenberger William & Marietta Hipskind Matthew & Janice Kates Mr. Adam Giammarinaro Hipskind Group, Ltd. Mr. Bruce Katz Joe & Terry Giandonato William & Laura & Julie Hocker Ms. Delia Kavanaugh Mr. Angelo Giardino Mr. Bryony Hodges Mr. Charles Kayton Douglas & Susan Gibson Mrs. Helen Holmes Edward & Diane Keane Gerard & Joyce Gietl Mr. Prudence Holmes Ms. Sandra Keller Gilbane Building Company Mr. Lawrence Holt, Esq. Brian & Judith Kelly Ms. Jane Ginestra Mr. & Mrs. Jon Holtzman Mrs. Carol Kelly John & Ann Glennon Ms. Mary Jane Holzmann Mark & Zoie Kelly RJ & Bonnie Goelz The Home Depot Foundation Mrs. Nancy Kemper Mr. & Mrs. Charles Gojer Hope Opera Andrew & Keri Kendall Goldman Sachs Matching Gift Program Mel & Bernadette Hopper Ms. Mary Kennedy Mr. Doug Goldsmith Hospira Employee Giving Campaign Ms. Bonnie Kershner Ms. Monica Gonzales Ms. Ruth Hovden Gary & Linda Keslik Mr. Robert Gower Mr. Daniel Howe Mr. & Mrs. Harry Kettmer Paul & Dina Granger Mr. Kenneth Howe Julie, Craig, Sean & Erin Keyes Mr. & Mrs. Alexander Grant Howie Law Office, PLLC Siribalwant Khalsa Lara & Suddha Graves & Family Howland Company, Inc. Mr. & Mrs. Robert Khanna Mr. Brian Gray Mrs. Stephanie Plantone Hubbard John Killian, M.D. Ms. Sandra Grazioso Ms. Jessica Huber Mr. Thomas Kilmartin Mrs. Dorothy Green Mr. Richard Huber Robert & Ellen King Ms. Virginia Greene Hunt Ridge Montessori, LLC Thomas & Sandra King Ms. Diane Greenhalgh Mr. Mark Hurley Dr. Larry Kipperman Terry Greenhalgh Mr. Paul Hurst Steve & Bonnie Kipperman Mr. John Greffe Walter & Maria Huscilowitc Tim & Jane Kirk Ms. Rhoda Greif Steve & Virginia Hustead Irwin & Joan Kirtman Mrs. Darlene C. Grieco-Price Mr. & Mrs. Stephen Hutchins Brian and Dena Kittelson Mrs. Kathleen Griffis-Bailey Renard & Victoria Iannettone Mr. & Mrs. Daniel Klapperich

OI Foundation FY 2010 Annual Report 21 Honor Roll of Donors

John & Katherine Knoelke Davor Luketic Ms. Joan McMillen Mr. Cooper Ryan Knorr Ms. Haydee Luna Mrs. Marcia McMullen Mrs. Judith Knorr Jerald & Sharon Lundstrom Ms. Grace E. McNally Mr. Kent Knorr Mr. Patrick Luurs Mrs. Patricia McNally Ms. Nicole Knorr Mr. Christopher Lynch Mrs. Barbara McNeely Mr. Paul Knorr Ms. Molly Lynch Ms. Patricia McPherson Dr. & Mrs. Eric Knox MGM Resorts Foundation Mr. Ronald Mead John & Carol Knych MZ Alchemist Oils Mr. Timothy Meals Steven & Trisha Knych Ms. Katie MacGregor Ms. Ann Meisen Mr. Robert Koeck Mr. Brian J. Mach Dan & Rhondi Meiusi Colette M. Kohler, M.D. Ms. Taryn Macliver Pablo & Mary Mejia Mrs. Judith Kong Ms. Rowena Macnab Mr. & Mrs. Jeff Melton Kopka, Pinkus, Dolin & Eads, LLC Mr. Larry Main Mr. & Mrs. Steven Mencarini Ms. Suzanne Koppelman Mr. Sal Malguarnera Ms. Linda Merloni Mr. Steven Kortes Mr. & Mrs. Frederick Maloney Mr. & Mrs. Gene Messner Lea-Rachel Kosnik, Ph.D. Kenneth & Karen Mangan Ms. Leni Michael John & Pam Koster Mr. Joseph Mangiaracina Mr. David Michalak John & Donna Koziatek Mr. Richard Manley Mrs. Barbara Miller Deborah Krakow, M.D. Bill & Jean Mann Ms. Janice Miller Isaac & Sara Kreps Mr. David Manning Robert & Linda Miller Ms. Rita Kronovet Donald & Michelle Manseau Ms. Barbara Milliman Mrs. Geraldine Krotee Ms. Wanda Manuel Ms. Michele Miroff Mr. & Mrs. Paul Kuester Marcus, Errico, Emmer & Brooks, P.C. Richard & Susan Miswald George and Annette Kugler Margate PBA No. 65 Theodore Mitchell Mr. Francisco LaPlaza Marlyn Sheet Metal, Inc. Ms. Ann Mixson Ms. Claire LaRocca Frank & Theresa Marrone Bill & Sara Mize Richard & Jean Laird Mr. James Marsanico Michael Gotzsche & Mary Moench Ms. Carolyn Lam Chris, Karen & Adam Marshall James & Mary Ann Moffett Ms. Kathleen Lamb Marta Employee Charity Club Kevin & Amy Moffett Fred & Ann Landay Barry & Lisa Martin Ms. Doris Mohr James & Deborah Lane Carl & Mary Anne Martin Ms. Diane Moje Mr. Ryan Lane Martin & Smith, Inc. Ms. Elke Monahan Ms. Diana Langer Mary Lou Hale’s School of Dance, LLC Mr. Peter Monteagudo Mr. Joseph Langhauser Ms. Susan Marziliano Mr. Jeff Monzingo Larry & Deborah Lapkin Ms. Jenny Mason Mrs. Shirley Moody Mr. Glennon Laufer Ms. Melissa Massey Richard & Maureen Moran Mr. Robert Laughlin Lewis & Barbara Masters Ms. Sarah Morian Law Offices of Craig A. Tomassi Masters Auto Craft Joy & Donald Moriarty Law Offices-Collins & Collins Ronald & Jamie Mastrangelo Ms. Kathleen Morrissey Ms. Mary Lawrence Ms. Evelyn Matherly Mr. James Moser Ms. Noreen Leahy Mrs. Christine Matthews Ms. Lynn Moser David & Bonnie Leary Ms. Elizabeth Mauer Katherine & Paul Motsuk Mr. Fredric Leary Mr. James May Mountain Resort Properties, Inc. Brendan & Maria Lee, M.D., Ph.D. Mr. & Mrs. Joe Mayes Wanda Jordan & Olwine Moxley Lee Hecht Harrison Roy & Jeanne Maynard Paul & Nicolle Muehr John & Pamela Legg, III Mr. Michael McBride Matthew & Christina Mueller Maeve Leininger McCabe, Weisberg & Conway, P.C. Mrs. Karen Muransky Sherwood & Britta Lennartson Gary & Elaine McCaffrey Chuck & Christina Murphy Ms. Ellen Leonard Ms. Catherine McCarthy Mrs. Carol Ann Murray Lerch, Vinci & Higgins Mr. & Mrs. Joseph McCarthy Music Studio Mr. Richard Letourneau Mr. & Mrs. L. Milton McClure Jonathan & Sharon Mutnick Mrs. Mary Leuck Mr. Kerry McConnon Dr. & Mrs. Dan Myers Mr. Paul Leutgeb Mr. Gregg McCormick NEFCU Irena Levitan, Ph.D. Ms. Carolyn McCoy NYSE Group David & Diana Lewallen Mr. Glenn McDonald Noah & Jessica Nadelson Ms. Deborah Lewis Matthew & Katherine McDonough Richard & Dawn Napolitano Lorna & Wendell Lewis Stephen & Brenda McDonough Ms. Trisha Nashed Mr. & Mrs. Gary M. Liberti Ms. Sally McElroy Nassau Calender Service, Inc. Liberty Medical Center PC Mr. James McElynn Ms. Teresa Neal Lilly Endowment Inc. Paul & Tara McElynn Ms. Karen Neidich Lima Radio Hospital, Inc. Mr. & Mrs. F. Hampton McFadden, Jr. Mr. Edwin Nelson Limelight Photograpy & Design, LLC Mr. James McFarland Steve & Kathy Nelson Thomas & Linda Lindsey Mr. & Mrs. Thomas McGarry James & Debra Neshe Anthony & Rose Loguercio Ms. Betsy Ann McGee Network Construction Co., Inc. Mr. Michael Loguercio, Sr. McIntyre Loam, Inc. Newark Bears Game Mr. John Lomax Charles McKay, M.D. Ms. Christine Nicholl Long, Tuminello Besso Seligman David & Lori McKernan Mr. Clinton Nichols Thomas & Cathy Longos Mrs. Angela McKey Ms. Jennifer Nicol Mr. Jose Lopez Ms. Beth McLain Raymond & Maureen Noeth Julio & Belinda Lopez Mrs. Caroline McLain David & Sheryll Norback Louis P. Canuso, Inc. Mr. Jason McLaughlin North Afton United Methodist Church Mrs. Sandra Lowery Peter & Kathleen McMenamin Nothnagle Realtors

22 OI Foundation FY 2010 Annual Report Honor Roll of Donors

Andrew & Ellen S. Novick Ms. Barbara Popoff Mr. Lester Salisbury Kenneth & Linda Novick Allen & Ann Porter Hector & Ashley Sanchez Ms. Sharon Nucci Mrs. Jacquelyn Powell Ms. Nancy Sanchez Mr. Robert O’Connell Power & Construction Group, Inc. Scott & Susan Sander Edward & Christa O’Mara Prescap Enterprises, Inc. Ms. Ronit Sanders Ocean City Home Bank Tony & Charlotte Preuss Sangerman & Gilfillan Harold & Rosemarie Ogren Ms. Colleen Priest Gregory & Ann Santaga Ms. Jeannie Ohnmacht Protech Interiors, Inc. John & Mary Sarkos Glenn & Meghan Olson Prudential Foundation Matching Gift Mr. William Sauers Mr. John Onder Mr. Samuel Pruett Mr. Gary Schaefer Hank & Karen Orejuela Robert & Jennifer Prybolsky Edward & Sandra Schaeffer Ms. Samantha Oven Mrs. Lenore Puhek Ms. Elizabeth Schaller James & Alice Padilla Ms. Edna Purjes Mr. Richard Scharet Ann & Borden Painter Ms. Jill Quigley Robert & Susan Scharf Ms. Diane Palmer John & Teressa Quigley Ray & Marlene Schatz Steve and Beth Paluszek Ms. Janice Darby Quill John & Patricia Scherrman Mr. Anthony Panagos R & P Construction of NJ, Inc. Mr. & Mrs. Herbert Schettler Mr. Robert Pantano Mr. & Mrs. William Radler Paul & Teresa Schieda Ralph & Carin Pantell Mr. Michael Radovic Ms. Neil Schiff Scott & Christine Pappas Mr. & Mrs. George Rakolta Ms. Dianne Schifini Parent Chiropractic Center Mr. & Mrs. Bhim Rally Eric & Kathleen Schlingloff Ms. Marybeth Parke Mr. Richard Raschke Dr. Allan Schlossberg, DMD Mr. Donald Parker Mr. Jeff Ratajack Dr. & Mrs. David Schmeling Ms. Patricia Parker Ms. Irene Ratto James & Merrie Schmidt Ms. Lisa Parman Andrew & Donna Rauch Ms. Virginia Schmidt Robert & Theresa Patten Mr. Neal Rauch Ms. Joan Schnitzler Mr. Gary Patterson Ms. Jennifer Rayburn Mr. Charles Schudt Mr. Stephen Patterson Ms. Elizabeth Rearick Mrs. Cathleen Schuh Mr. & Mrs. Gary Patti Mrs. Mary Kay Reckers Wayne & Beverly Schultz Jeffrey & Angela Paul William & Kirsten Reddan Henry & Joyce Schurr Anders & Michelle Paulsson Mr. Brian Reed Mr. Phillip Scott Pearson Penguin Putnam, Inc. Mr. & Mrs. Richard Rees Scott Sheppard-Seafood Pecan Street Deli Ms. Katie Reick Ms. Susan Scoughton Mr. Ryan Peck Joseph & Barbara Renton Ms. Maria Scully Ms. Mine Peksen Mr. Christopher Reuter Ms. Barbara Seaman Ms. Donna Pelletier Mr. & Mrs. John Reuter Mr. & Mrs. Gene Seay Lewis & Carol Penn Ms. Yelena Reznik Ms. Suzanne Seegmuller Ms. Nancy Pennell Mr. Paul J. Ribeiro Seiden Foods, Inc. Mr. & Mrs. Leroy Pera Glen & Mary Ricard Mrs. M. Janis Separovich Mrs. Nina Perdue Mr. Hampton Rich Serbin Surgery Center Billing Ms. Juliana Perez Mr. Steve Richards Ms. Trudy Cole Sevier Ms. Maria Perez Ms. Mary Ridgway Sexton Services, Inc. Perfect Smiles Mr. Joseph Ries James & Mariann Seybold Michael & Kimberly Perkins Edward & Roxanne Rios Mr. Jeffrey Shaffer Ms. Laurie Perl Mr. Francis Roberts Bijal Shah Louis & Susan Perna Guy & Meisie Roberts Mr. Kamal Sharma Mr. Ronald Perrell Mr. & Mrs. Benny Robinson Sharp Business Systems Ms. Susan Peters Mr. David E. Robinson Ms. April Shaughnessy Mr. Eric Peterson Ms. Deborah Rodgers Koushik Shaw James & Sheri Petitpren Francis & Armi Rodill Ms. Ruth Shaw Joan Petracca, D.M.D. Dr. Raoul P. Rodriguez Richard & Lesley Shay Lee & Bettijane Petroelje Alan & Patricia Roenigk Mr. John Shea Ms. Natalie Petrone Tyson & Junita Bahroos Roethlisberger Mike & Diane Sheehy Ms. Kelly Petterson Mr. George Rogers Ms. Sharon Sheremet Mrs. Kathryn Phillips Mr. & Mrs. Peter Roll Michael & Deborah Shinbein Mitchell & Linda Phillips Ms. DinaMarie Romanoff Mr. Michael Shoemaker Ms. Christine Piacquadio Ron Sullivan Associates, Inc. Randall & Kelly Sikora Mr. & Mrs. Eugene Pickard Ms. Catherine P. Ross Ms. Christy Ann Silecchia Ms. Allison Pickett John & Christine Wyman Rossi Ms. Mary- Lou Sims Tim & Jodi Picoult-Vanleer Mr. James Rourke Mr. Jonathan Sinnreich Mr. & Mrs. Richard Pinney Ms. Julie Rowlands Mr. Eric Skolnick Henry & Rose Piper Jeffrey Gerber & Shannon Rudisill Rev. Ellen Sloan Pleasantdale Presbyterian Church Louis & Roza Rumao Dr. Charles Smith Plumbers & Steamfitters, U.A. Local Ms. Marie Rundo Mr. & Mrs. Charles W. Smith Union 322 Ms. Joanne Ryan Clark Smith, M.D. Christophe Poirier, Ph.D. Mr. Richard Ryan Mr. Edgar Smith Ms. Jules Poirier Thomas & Mary Ryan Ms. Edith Smith Melvin & Marion Poliakoff SPK Associates Mr. Edward Smith Ms. Gara Pollock Kevin & Nancy Saal Lane Smith Steven Braun & Amy Pollock Dr. Theodore Safford Peter & Patricia Smith Mrs. Nancy Polny Mr. & Mrs. Vijay Sahore Mrs. Sally Smith Mr. Adolph Ponder Saint Joseph’s Preparatory School Mrs. Susan Smith & Staff at Iroquois

OI Foundation FY 2010 Annual Report 23 Honor Roll of Donors

Donald & Carolyn Snyder Ms. Sandra Toporcer Carl & Eileen Wass Ms. Jacquelyn Snyder Laura Tosi, M.D. Joe & Jo-El Waterman Ms. Patricia Sottile Lucretia and Michael Toth Dirk & Tamara Watkins Bruce & Lynda South Tower View Consulting, LLC Mr. Christopher Watson Southern Construction & Renovation Mr. Ramon Towne John & Amy Webb Stephen & Donna Spear Ms. Tammy Tracy Mr. Norman Webb Gerry & Maida Sperling Lars & Angela Traffie Mrs. Wendy Webb Callahan & Ann Spessard Mr. & Mrs. Donald Trahan Mr. & Mrs. Donald Wedding Mr. Clark Spurlock Traveling Light Ministries Mr. Tom Wedell Mr. Jay St. Clair Gary & Jennifer Trendel Ms. Diane Weinberg St. Gerard Printing Ms. Mary Trester Scott & Marcia Weinstein St. Tarcisius 8th Grade Class Bernadette Diaz & Trinka Family David and Cydney Weisberg Ron & Maureen Stabak Tristate HVAC Equipment, LLP Mr. C. Evan Weisman Stafford Communications Inc. Tropicana Casino & Resorts Mr. Christopher Welker Mr. Robert Staley Trump Administration Thomas & Susan Weller Mrs. Sophie Stanley Ms. Rachel Trusty Wells Fargo Community Support Ms. Barbara Stannard Ms. Alfretta Tubo Ralph and Kay West Mark & Robin Stawasz Mr. Robert Turner West Hills United Methodist Church Jeffrey & Sharon Stedman Mr. Robert S. Turner, II Wayne & Kristin Westbrook Mr. Bryson Stephens Ms. Stephanie Tutt Ms. Ann-Marie Westerheim Mr. Marvin Sternlicht Mr. Todd Tyler Bill & Roberta Wheeler Ms. Candice Stevens Ms. Susan Ullman Donald & Dot Wheeler Ms. Barbara Stormo United Way of AL Ms. Vicki White Jim & Beth Story United Way of Chester County Alan & Wanna Wiederhold William & Charlotte Stouder United Way of Dane County Don, Debbie & Daniel Wiederhold Ms. Jan Stowe United Way of Lancaster County Mr. Charles Wiercinski Christopher and Dawn Strasser United Way of Monroe County Wendell & Frankie Wiggins W. Paul & Elizabeth Strassmann United Way of New England Jesse & Patricia Wilkerson, Jr. Mrs. Gladys Strauch United Way of New York City Mr. Brian Willey Strohmier Consulting, LLC United Way of Orange County Mr. Donald Williams, Sr. Ms. Brooke Stromfeld United Way of So. George & Deborah Williams Mr. Stuart Stromfield UnitedHealth Group Employee Giving Ms. Michelle Williams Mr. Eric Stumberg Uno Restaurants, LLC Marcia C. Willing, M.D., Ph.D. Ms. Beverly Suderman Mrs. Shirley Upchurch Earl & Charlotte Willis Jim & Jan Sullivan Mr. Ken Urbanski Mrs. Jennifer Wilson Mrs. Amy Sullivan & Family Valley of the Sun United Way Robert & Julia-Ann Wilson Mr. Harvey Susnick Mrs. Laurie Van Cleve Ms. Susan Wilson Gene & Ann Sutton Jacob & Ida Van Dalen Winnipesaukee Truck Parts & Repair, V. Reid Sutton, M.D. Mr. Lowell VanZandt Brodie & Christine Wise Fred & Joan Swan Ms. Deanna Varney Mr. Howard Wiseman Ralph & Delia Swartwood Ms. Linda Varonin Taylor Wisniewski Mr. Robert Sweeney Vector Wealth Management, LLC Mr. & Mrs. Robert Witz Mr. Pantaleon Tafoya Ms. Danielle Veggian Lauren & Virginia Wolfe Theodore Winter & Brenda Talley Velocity Credit Union Joseph & Renee Wolfson Tallman Eye Associates Mr. Brian Verhoeven Alan Wong Ms. Marianne Tappy Fred & Carmella Verna Ms. Winnie Wong Ms. Sheena Tarachko David Vernick, M.D. Ms. Sarah Wood Mr. Stuart Tart Mrs. Katherine Vesey Ms. Joan Worthington Tastefully Simple’s Finance & Act Mr. Jeffrey Vitelkites Mr. Brian Wright Team Systems, Inc. Tracy Vitols Eric & Margaret Wright Mr. Robert Tennant Ms. Rhonda Voelz Mr. Jack Wright Ms. Silvia Tenreiro Mr. & Mrs. Hermann Volltrauer Robin Wright Maury & Stephanie Tepper, III Mark Vonnegut, M.D. Mr. Scott Wright Mr. & Mrs. Steve Terhune Ms. Kim Voska Mr. & Mrs. Norm Wrona Mr. Edward Teta Wachovia Foundation-Matching Gifts Mr. Curtis Wyman Ms. Kathy Teufert Wag A Bag Richard & MaryEllen Wyman Mr. Louis Thabault Ms. Cecilia Wagner Frederick & Lori Wysk The Empire State Browns Backers Mr. Frank Wagner Paul & Geraldine Yamashita The Jackson Clinics Mr. Albert Waineo Ms. Jin Yang The Progressive Insurance Foundation Waldemar Klimek Physician PC Denzil & Ann Yarbrough Mr. & Mrs. Jerry Thomas Walmart Foundation Ms. Catherine Yen John & Angela Thompson Mrs. Ethel Wanzer Mr. Benjamin Young Fred & S. Garland Thursfield Michael & Georgia Ward Mr. Maurice Zekaria Ms. Carolyn Timpany Mr. Andrew Warner Mark & Janis Ziffer Mr. James Todd Robert & Nancy Warpinski Paul & Sharon Zimmerman Tom’s Auto Body, Inc. Ms. Laura Warren Timothy & Kathleen Zwahlen Ms. Rita Toney Wasden Tire & Muffler

24 OI Foundation FY 2010 Annual Report Honor Roll of Donors

Workplace Giving Donors July 1, 2009 to June 30, 2010

We truly appreciate the many people who contributed to the Foundation through the Combined Federal Campaign, the United Way, state employee charitable campaigns, or company workplace giving programs. In addition, this list includes donors who made gifts through 3rd-party sites, like Network for Good, Just Give and Facebook Causes. We were notified of these contributions between July 1, 2009 and June 30, 2010. We regret any errors or omissions, and ask that corrections be brought to our attention.

Joanne Adamczyk Dan & Deborah Dagit Kelila Josefina Kristic-Arabo Marie Ruddick-Potter Renee Alexander Stephanie DeClercq Dan & Cher Krudys Stephen Ruley Mark Alfonso, Jr. Gregory Deye James LaBarbera Douglas & Christina Rutz Ruth A Allen Alan Disalle Rosa Lachapel Kyle Sandefur Brenda Allen Gerald Donovan Deborah Landeira Rhonda Schaidt Daryl Alvarez Carla Edmisten William Leanues Chris and Alison Schell Andrew & Nicole Anaya Henry Edwards Mark Leavitt Thomas Schmeidler Norman & Karen Aquilino Tom & Sally Erdmann Daniel Leiker Phil Schmidt Angel Arehart Lorna Estep James Lennon Mark Schwartz Christopher Assmann Joseph Fantasia Carol Lerner Eva Seregely Melvyn & Elena Baez Gwenda Fleming Mr. & Mrs. Gary M. Liberti Demetrius Serrano Dwayne Baker Alfons Franken Grace Longo Bill and Jill Shaddock Brian T. Baldwin Janis N. Frazier Michael Loveless Justin Silano Brian Ball Pamela Kay Fromelt Mike & Nancy Lucero George Simms James Barnes Carrie Gegg Jeremy Luna Nick Sloan Julie Barron Ann Marie Geiger Fred & Jean Major Greg Smith Michael Battaglia Robert Gerlach Erin R. Mantz Brian Snook Thomas Bemis John Gjesfjeld William Margrave Emil Soltis Michael & Sandy Bender Anthony Glenn Joe & Jane Marino Stephen Spear Mary & Joshua Benhart Vito and Debbie Goffredo David Martin Kevin Stark Marjorie Berger Miguel Gonzalez James May William Stewart, Jr. Robert Bernstein Kevin Grandberry Helen McGowan John Stillitano Diane Bessler-Hackett Floyd Greene George McNabbIII Jeffery Strickland Dennis Beverley Kristine Groenenboom-Newbold Christopher & Kala Meyering Cheryl Sylvester Kenneth Bishop Charles Gronbach Eric Miller Mr. & Mrs. Robert Syrek Elizabeth Boes Karen M. Grossi Johnny Miller Stephanie Tappendick Mark Bollig James Grover Saurabh Mittal, Ph.D. James Tarnofsky Raquel Bothast Judith Hackett Jennifer Moffat Allan & Janet TeDesco Joseph & Brenda Bourque Kenneth Hall Paul Moffat Jonathan Thomas Jason Bowen Joseph Harris Kathy Muenks Marilyn Thorne Christopher Bowers William Hawkins Wayne Murray Michael Urciuoli Michael & Rachel Breen Ryan Heitt Jonathan & Sharon Mutnick Anthony Velez Sean Brooks Patrick Heneghan Kathleen Nelson Wendy Veney Ed Brown Monica L. Hernandez Patrick O’Connell Donna Voss Amy Bryan Marjorie Hewitt Mike Overby Jeff & Patty Voss Darryl Bullard Frederick & Kimberly Holdsworth Cheryl Owens Lon Wallis Morgan BurgessJr. Gary Jamison Debra Parra Kenneth Wanzer Charles Butler John Jardes Dawn Peeples David Wejrowski Tanya Butler Jacqueline Jenkins Michael Pelkey Emily Wen Lourdes Cabral Ruby Jennings Donna Picano Adam L Wethington Cassandra E. Cain-Hunter Dennis Johnson Allen Pleban Scott Wetschensky Robert & Alice Cameron Leon Johnson Sarah Polak Michael White Joe Campos Robert Johnson Nathan Proctor Donald Wiederhold Lamont Carmon Sandra Johnson James & Rosemarie Quinn Wendy Wilson Robert Carucci Toni Jordan Jose Quiroz, Jr. Robin Wolf Thomas Cassino Patricia Kalcic Carol Rea Catherine Womack Debby Chance Lisa Kennedy Robert Reed Dorothy M. Wright Elaine Chen Matthew Kilar Kenneth Renzi Lawrence Wright Michael Ciampi Jeff King Sindy Reyes Charles Wurz Vincent CiracoJr. Steve & Bonnie Kipperman Irene Rivera James YankovichII James C. Ciulla Beatrice Knight Dennis Rivera Stacy Zebarth Troy Collins Christopher Knoll Donald Roberts John Ziobro Kathleen Conley Nicholas KochekJr. Karla Robinson Rick Crabtree Sharon Kofoed Kenneth Robinson, Jr. Andrew Currier Tamatha Kotowski Steven Rock

OI Foundation FY 2010 Annual Report 25 People

2010 Members

Robert & Jacqueline Abatemarco Mr. David Galloway Ms. Leigh Lewis Mickey & Robin Rowland Joan Ablon, Ph.D. Ms. Crissa Gardner Michael & Caren Loguercio Andrea Ives & Parke Rublee Mr. Thomas Acquafredda Ms. Mary Gardner Mike & Nancy Lucero Mr. Scott Salmon Ms. Cathy Anderson, RN Mr. & Mrs. Thomas Garrity Douglas & Kim Lundell Ms. Ronit Sanders Mrs. Marion Anderson Christine & Adrienne Gautreaux Steven & Shawn Maddox Ms. Yolanda Savoie William & Nancy Arce Ms. Lynda Gerber Steven & Nancy Madej Ms. Elizabeth Schaller Vincent Arlet, M.D. Mr. Robert Gerig Ms. Diane Mallory Mrs. Lee Schaub-Green Ms. Cindy Assmann Patrick & Bernadette Gleason Mr. & Mrs. Frederick Maloney Eric & Kathleen Schlingloff Timothy & Wanda Bachman John & Barbara Goodrich, Jr. Mrs. Betsy Manela Paul & Darlene Schroeder Lamar & Freda Baker John & Paula Goodrich, III Ms. Janet L. Marciniak Wayne & Beverly Schultz Ms. Mikell Baldwin William & Edna Gosier Mr. & Mrs. Robert Marino Henry & Joyce Schurr Mr. Gregory Ballinger Paul & Dina Granger Chris, Karen & Adam Marshall Ms. Jean Sego Mr. Gregory B. Banks Ms. Jo Ann Graves Mrs. Jean Martin Len & Marta Sena Bruce & Dee Baraw Daniel W. Green, M.D. Mr. Jose Felipe Mateos Diaz Ms. Trudy Wong Timothy & Ginny Barker Mrs. Dorothy Green Robert & Sara Mathers Aaron R & Abby C Sieberns Mr. Peter Barna Ms. Mae Gribble Ms. Lisa Mathews Mrs. Ila Simpson Allan & Aimee Bauer Pete & Patricia Grier Mrs. Charlene Maus Mr. Gary Slane Ms. Michelle Beauchamp Nickiforos & Ruth Grigoriades Mrs. Rosie McAdam Mr. Norman Slocum Mr. Michael Bellas Mrs. Juanita Gruenloh Christian & Allison McBrierty Charles & Anna Slomski Mr. Matthew Benjamin Gary Guthrie, DDS Mr. & Mrs. Joseph McCarthy Mrs. Debbie Smith Ms. Cheryl Best Michael & Susan Halligan Ms. Dorothy McComb Mr. Donald Smith Steven & Jacquelyn Biagini Mr. David Hallman Anthony & Barbara D. McDonald Donald & Brenda Smith Ms. Bonnie Bolden Ms. Lynn Hammond Mr. & Mrs. Mitchel McDonald Mrs. Sally Smith Ms. Vickie Bolden Jim & Kathy Harmer Mr. Randy McElhoe Mrs. Carolyn Smith-Hensley Mrs. Carolyn Boone Ms. Brandi Harrington Mr. James McGowan Thomas & Patty Snyder Ms. Cathy Bowen Mrs. Jean Harris Peter & Kathleen McMenamin Michael Sohaskey, Ph.D. Leroy & Marlene Boyer Pegram & Ann Harrison Mrs. Patricia McNally Jack & Carol Sprawls Ms. Kim Brost Susan & Roger Hart Mr. Benjamin McNeely Ms. Barbara St. Amour Alan & Elena Bruno-Jezierski Ms. Linda Harvell Mr. Wayne Medlin Mark & Robin Stawasz Ms. Lucille A. Buell Ms. Cindy Harvey Mrs. Lisa Mehler Ms. Arlene Stone Mrs. Linda Buonadies Mrs. Frances Harwell Joseph & Judith Menster Christopher and Dawn Strasser John & Kathleen Burke Mr. Kevin Hench George Patton &Martha Ann Messinger Ms. Helen Strock Ms. Patricia Burrowes Anthony & Emelia Hendricks Mr. Michael Miller V. Reid Sutton, M.D. Ms. Karen Campbell Ms. Pauline M. Herd Mr. Richard Miller Fred & Joan Swan Ms. Helen Erline Cane Gerald & Dixie Hertel Mrs. Sandra Miller Dr. Anne Swanson Mr. David Cannington William & Ruth Highet Mr. Scott Miller Mrs. Vickie L. Sweitzer Enrique J. Canton, M.D. Mrs. Claire Hlushuk Ms. Stacy Miller Mr. Pantaleon Tafoya Ms. Christine Carney Nedda Hobbs, M.D. Mr. & Mrs. Cliff Millot Theodore Winter & Brenda Talley Don Carolan & Madeline McLaughlin William & Laura & Julie Hocker Mr. Charles Mondun Mr. Dominick Tamburri Children’s Speciality Center Richard & Michelle Hofhine Mrs. Shirley Moody Ms. Barbara Taylor Ms. Amanda Kay Carpenter-Horning Mark and Theresa Holden Mr. Daniel Moore Ms. Elisabeth Taylor Gilles Chabot, M.D. Mr. Douglas Holleman Ms. Sarah Morian Mrs. Stephanie Taylor Hollis Chaney, M.D. Ingrid A. Holm, M.D. Richard & Therese Moriarty Maury & Stephanie Tepper, III Mrs. Yuka Chau Jason & Emily Holub Ms. Ann Muilenburg Mr. Donald Thimble Don & Linda Chinn Ms. Helen Holubnyczyj Gary & Helen Nahrstedt Ms. Amanda Thompson Ms. Charmaine Clark Mr. & Mrs. Wallace Howarter Ms. Gabrielle Nastuck Mr. Eric Thompson Mr. Andy Clinansmith Ms. Susan Howland Mr. Jeffrey Nelson Mrs. Francine Thompson Ms. Christina Cogdill Larry & Pat Hufford Ms. Judith Noel William & Linda Thompson James & Connie Coleman Mr. Michael Hughey Raymond & Maureen Noeth Mr. James Todd Ms. Sue Collado Ms. Dawn Jackson Kenneth & Linda Novick Mrs. Lisa Trelease-Gosweiler Ms. Kathy Collins Dwight & Evangeline Jaggard Ms. Lizzie Owen Mrs. Shirley Upchurch Ms. Juanita Cook Ms. Cindy James Mr. Pat Partipilo Mrs. Laurie Van Cleve Duane & Beverley Copeman Mrs. Debra Johnson Jeffrey & Angela Paul Ms. Cathy Vaughan Luis & Alicia Corvera Ms. Katherine Johnson Eugene & Betty Paykel David Vernick, M.D. James & Constance Cotazino Jarratt Ms. Jennifer Jolivette Ms. Monica Perella Stephen & Debra Vescio Mr. Rod Coyne Ms. Cynthia Jones Ms. Barbara Philbrook Mrs. Virginia Vitale-Abela Bill, Michelle & Sarah Cramer Eric & Debbie Jones Ms. Dawn Pierce Mr. Lawrence Vito Bruce & Alethea Crossman Mr. & Mrs. Steven Jones Mr. & Mrs. Richard Pinney William & Kathleen Vukoder Mr. Stephen Cusulos Mari Kaartinen, Ph.D. Dan Newmark & Alice Platt Ms. Cynthia Waikel Ms. Natasha Dafney James R. Kasser, M.D. Joseph & Marjorie Polerecky Ms. Elaine M. Wallace Dan & Deborah Dagit Ms. Delia Kavanaugh Mr. & Mrs. Jim Pollard Mr. Kenneth Wallace Mrs. Mickey Davis Mr. & Mrs. Tim Keaney Mr. Henry Powsner Mrs. Ethel Wanzer Ms. Pamela Delcore Andrew & Keri Kendall Mrs. Melinda Preston Mrs. Wendy Webb Ms. Lorraine C. Dellasanta Ms. Katherine King Laurie & Dean Projansky Hubert & Lucille Webb & Family Ms. Barbara Douglas Thomas & Sandra King Mr. Travis Radak Mrs. Joan Weiss Dr. Shevaun Doyle Mr. Robert Kissing William & Michele Radak Dick and Barb Welker Mrs. Deanna Duboulay Mr. & Mrs. Daniel Klapperich Mr. & Mrs. William Radler Mr. Shawn Wentworth Mr. Jim Eager Ms. Lucille Klemm Ms. Julie Reed Paul & Beth Whitmore Mrs. Virginia Ecker Mrs. Judith Kong Mr. & Mrs. Roger Gray Renegar Roger F. Widmann, M.D. Ms. Kimberly Edler Lea-Rachel Kosnik, Ph.D. Ms. Gail Rennetty Don, Debbie & Daniel Wiederhold Ms. Yvette Eisenberg Ms. Veronica Kovack Mr. Christopher Reuter Louis M. & Lillie Mae Wiederhold, Jr. Mr. Edgar Emmelhainz, Jr. Mrs. Gloria Kowbel Mr. & Mrs. John Reuter Mr. Charles J. Wilhelm Jim & Kris Ensign Mr. & Mrs. Gopal Krishna Mrs. Beatrice Rieder Robert Wilkinson, Jr., M.D. Larry & Barbara Estrada Morgan & Rebecca Kronk Ms. Christine Rieper Mr. Curtiss Wilson Ms. Myrtle Fantroy Mr. Cory Landers Edward & Roxanne Rios Mr. Norman Wilson Mrs. Raynette Fergason Larry & Deborah Lapkin Conrad & Mary Rivers Mrs. Mary Wilson Gerth Mr. & Mrs. Ronald Flitcraft Mr. & Mrs. John Larimer Guy & Meisie Roberts Mr. Howard Wiseman Ms. Lori Ann Ford Mr. Lester Layman Dr. Raoul P. Rodriguez Mr. & Mrs. Robert Witz Ms. Kathleen Francis Ms. Florence Leary Mr. James Rogers Ms. Denise Woodall Mrs. Bernice Freudensprung Mr. Robert Leary Ron & Mae Rooker Linda & Willie Wooldridge Ms. Lani Fritz Ms. Gloria Lehr Ms. Brenda Roth Ms. Debbie Zarelli Ms. Rachel Fritz Ms. Elsie Leon Richard & Doris Roth Mrs. Jean Zimmerman Mr. Paul Gallagher Ms. Josephine Horst Lewis Mrs. Robert Roubik Mr. Mark Zitzer

26 OI Foundation FY 2010 Annual Report People

Lifetime Members

Joe & Martha Antolini Ms. Odille Hansen Paul & Ramona Petry Ms. Ann Armstrong Ms. Barbara Ann Hanson Bob & Linda Phillips Robert & Donna Ayers Mr. William Harmon Ms. Aileen G. Potter Roger & Gayle Bache Wilbur & Nancy Harris Mr. Joseph Poupard Melvyn & Elena Baez Prof. Sergiu Hart Mr. & Mrs. David Power James & Gina Baxter Mr. & Mrs. Harry Headley Ms. Colleen Priest Armand & Lisa Benassi Mike & Susan Hekstra Richard, Theresa & Jonathan Reed Ms. Jo Ann Berkenbush Miss Sarah Hirsch The Reese Family Mrs. Marcia Bernstein Mr. Lou Holtmann Doug & Diane Reeser Mrs. Diane Bessler-Hackett Mr. & Mrs. Tom Hughes Mr. & Mrs. Dan Reilly Michael & Susan Boyar Ms. Sherry B. Ingram J. P. & Mary Richard John & Nancy Braitmayer Tom & Joan Jacobs Marcos G. & Yazmin J. Ronquillo Robert & Jean Brendel Mrs. Rosalind James Jeff & Cathy Roques Fred & Harriett Bridges Ms. Sarah Jameson John & Elizabeth Rose Dr. & Mrs. William Brock Matt & Marcella Johnson Ms. Catherine P. Ross Charles & Paula C. Brunell Michael Johnston & Dr. Bonnie Landrum Mrs. Sherry Runco Andy & Ronda Bryson Chaplain & Mrs. Roy Johnston David & Shari Safianoff Mr. Dominick Bucci Dr. & Mrs. James Joy Ms. Ada Mae Saxton Mr. & Mrs. Kenneth Buck Mr. Nelson Julius Mr. William Schmidt George & Gail Bunker Ms. Rosemarie Kasper Dr. & Mrs. Alan Schnall Peter Byers, M.D. Eleanor Resnick Katz Mr. & Mrs. Gene Seay Mr. Tom Camp Susumu Kawamura Ms. Cherylanne Sharp Tom & Patricia Camp Mr. & Mrs. James Kendall Clark & Juanita Shaw Mr. David Cannington Mrs. Jamie Kendall Sidney & Barbara Simmonds Jeanne Charnas, M.D. Dr. & Mrs. James Kilman James & Grace Sisco Dr. John Cheronis & Shirley Browner Dr. Larry Kipperman Alexander & Patricia Smith Don & Linda Chinn Steve & Bonnie Kipperman Peter Smith, M.D. Mr. Christopher Ciejek Mr. & Mrs. Greg Kowis Keith & Patricia Snow Mr. Walter Ciejek Kroger Food Stores William & Arlene Solof Ed & Aileen Clarke Mrs. Beverly Krudys S.C.P.I. Charity Association Ms. Judith Clarke Dan & Cher Krudys Gerry & Maida Sperling Mr. James Clinansmith Dr. & Mrs. Richard Kruse Earl A. Stanley Jr., M.D. Robbin & Shannon Cohen Dan & Nancie LaDuke Thomas & Sandra Stapleton George & Pat Collett Bill & Corinne Landrum Ms. Shirlee Stern Mr. & Mrs. Les Cook Henry & Ruth Lapkin Miss Sarah Catherine Stone Mr. & Mrs. Stuardo Coto Mr. Patrick Leach Ms. Gladys Strauch Ms. Victoria Cramer Michael & Rachel Ledbetter Mr. & Mrs. Peter Strauch Jr. Robert & Peggy Davey Ms. Anna Miriam Lennartson Mr. Dan Syrstad Michael & Mary Delfosse Sherwood & Britta Lennartson Mr. & Mrs. James Tate Joel DeLisa, M.D. Ms. Dorothy Lindberg Mr. & Mrs. Jerry Thomas Ms. Colleen Dillon Donald & Cindarae Malin Diane Tierney & Jennifer Camp Mr. Donald Dillon Ms. Jean Mandeville Larry & Alice Tomas Mr. Donald R. Dillon, Jr. Joseph & Peggy Martorano David Vernick, M.D. Edalca Holdings, Ltd. Lee & Elaine Matson Ms. Catherine Voorde Robert & LaDorna Eichenberg Mrs. Mary Ellen McCollom Mr. John Voorde Anthony & Billie Eisnnicher Ms. Susan McLinn Jeffery & Priscilla Wacaster Merrick Elfman & Therese Wareham Mr. & Mrs. Doug Montgomery Ms. Sarah Wassmuth Mrs. Barbara Everson Ms. Bridget Moore Mr. Norman Webb Ms. Eleanor Faber Robert & Laura Motycka Leonard & Julia Weinberg Peter & Helen Fahey Mrs. Laurel Newmark Ralph & Kay West Family Investments, Ltd. Ms. Katherine Nicht Mr. & Mrs. Bob White William & Bernice Fehribach Mr. Roy Oliver Ms. Jennifer White Mr. & Mrs. Eloy Fernandez Open Doors for the Handicapped Dan & Cindy Williamson Ms. Kathleen Finegan Mr. Daniel Aguirre Pace Mrs. Jennifer Wilson Kenneth & Ann Finkel Ms. Marybeth Parke Ms. Susan Wilson Kenneth & Paula Furber Edward & Kendrick Pascoe Mr. Ben Woner Mrs. Gemma Geisman Mr. Gary Patti Eddie & Pam Wood Mr. & Mrs. Jeffrey Gilbert Mark & Kimberly Peck Mr. & Mrs. Carl Zenger Charles & Heidi Glauser Mr. Michael Pelkey & Mr. & Mrs. David Zenger Kris & Kerry Glicken Ms. Angela Mancuso Scott & Patricia Hammond Cheryl Pena & Rebecca Perritt

OI Foundation FY 2010 Annual Report 27 People

Osteogenesis Imperfecta Foundation Board of Directors 2010-2011

President Sharon Trahan, Shoreview, MN Fusion Living

First Vice President Mark Birdwhistell, Lawrenceburg, KY University of Kentucky Healthcare Second Vice President Caren Loguercio, Esq., Mount Sinai, NY New York State Supreme Court Treasurer Anthony Benish, Downer’s Grove, IL Cook Illinois Corp. Secretary Michelle M. Duprey, Esq., New Haven, CT Department of Services for Persons with Disabilities Medical Adisory Council Chair Francis Glorieux, OC, MD, PhD, Montreal, Quebec Shriners Hospital-Montreal Members Denise Bedeian, Garden City, NY Nassau Country Museum of Art Amanda G. Bergman, Potomac, MD Rolyn Companies, Inc. Jacqueline Bourgeois, Alexandria, VA Womble Carlyle Sandridge and Rice Gil R. Cabacungan, III, Oak Park, IL Yaskawa Electric America, Inc.

Anna C. Gualano, Birmingham, AL Littler Mendelson, P.C.

Greg Holman, Westchester, PA ConAgra

Ian Sacks, New York, NY TowerBrook Capital Partners, LP

Robert (Sandy) Sandhaus, MD, PhD, Bow Mar, CO National Jewish Medical & Research Center

28 OI Foundation FY 2010 Annual Report People

Osteogenesis Imperfecta Foundation Medical Advisory Council 2010-2011

Chair David Rowe, MD Francis Glorieux, MD, PhD University of Connecticut Health Center Shriners Hospital for Children Farmington, CT Montreal, Quebec, Canada Jay Shapiro, MD Members Kennedy Krieger Institute Peter Byers, MD Baltimore, MD University of Washington Peter Smith, MD Seattle, WA Shriners Hospital Hollis R. Chaney, MD Chicago, IL Children’s National Medical Center Washington, DC Robert Steiner, MD Oregon Health and Science University Holly Cintas, PT, PhD Portland, OR National Institutes of Health Bethesda, MD Laura Tosi, MD Children’s Hospital National Medical Center Lynn Gerber, MD Washington, DC 20010 George Mason University Fairfax, VA David Vernick, MD Harvard University James K. Hartsfield, Jr. DMD, PHD Boston, MA University of Kentucky College of Dentistry Lexington, KY Matthew Warman, MD Boston Children’s Hospital Deborah Krakow, MD Boston, MA University of California-Los Angeles Los Angeles, CA Michael Whyte, MD Shriners Hospital for Children Brendan Lee, MD, PhD St. Louis, MO Baylor College of Medicine Houston, TX Joan Marini, M.D., PhD National Institutes of Health Bethesda, MD

OI Foundation FY 2010 Annual Report 29 People

Osteogenesis Imperfecta Foundation Staff All staff members also can be reached by phone at (800) 981-2663 or (301) 947-0083.

Tracy Smith Hart Chief Executive Officer [email protected]

Tom Costanzo Director of Finance and Administration [email protected]

Mary Beth Huber Director of Program Services [email protected]

Erika Ruebensaal Associate Director of Marketing/Communications [email protected]

Jennifer Redding Development/Events Associate [email protected]

Jenny Stup Administrative Assistant [email protected]

Desiree Swain Database Manager [email protected]

Stuart Tart Associate Director of Development [email protected]

Gretchen Schock Development Coordinator [email protected]

30 OI Foundation FY 2010 Annual Report Osteogenesis Imperfecta Foundation, Inc. 804 W. Diamond Ave., Ste. 210 Gaithersburg, MD 20878 301.947.0083 www.oif.org