Annual Report and Accounts 2013/2014 2 Annual Report and Accounts How CLIC Sargent Helped in 2013/2014
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Annual Report and Accounts 2013/2014 2 Annual Report and Accounts How CLIC Sargent helped in 2013/2014 We supported around Our income was 6,650 children and young people £25.49 million 14% more than last year with cancer, and their families We gave 5,047 grants to help families and young people cope with the extra costs a cancer diagnosis brings 1,271 340 families stayed in one of our children and young nine Homes from Home, so people, and their families, they could be close to their spent time together at child during treatment our holiday home in Scotland 1,570 children and young people were supported by our nurses, at home or in the community wherever possible � Read Danielle’s story � Read Jasmine’s story � Read Jordan’s story � Read Haroon’s story on p20 on p27 on p30 on p37 Annual Report and Accounts Contents 3 Contents About CLIC Sargent 4 How we help 5 Chair’s introduction 6 Chief Executive’s introduction 8 Trustees’ How you gave your support in 2013/2014 10 report * How we supported children, young people 11 and their families in 2013/2014 Thank you 12 Our achievements and performance for 2013/2014 16 Future plans 38 Risks and uncertainties 39 Financial review and results for the year 40 Structure, governance and management 42 Employees and volunteers 44 Statement of Trustees’ responsibilities for the 45 accounts and corporate governance Financial Independent auditor’s report to the members 47 statements and Trustees of CLIC Sargent Consolidated statement of financial activities 49 Balance sheets 50 Consolidated cashflow statement 51 Notes to the accounts 52 Reference and administrative details 66 * The Trustees’ report incorporates the Strategic report (page 16-41). 4 Annual Report and Accounts About CLIC Sargent About CLIC Sargent Every day in the UK, 10 children and Public benefit young people are given shocking news In reviewing our aims and objectives that will change their lives forever. They and planning our future activities, we are told they have cancer. Treatment have referred to and complied with the normally starts immediately, often duty in section 17 of the Charities Act happens many miles from home and 2011. This relates to having due regard can last for up to three years. A cancer to the Charity Commission’s published diagnosis affects the whole family in general guidance on public benefit. In many different ways as the emotional, particular, the Trustees consider how practical and financial implications planned activities will contribute to the can be intensely challenging. aims and objectives they have set. CLIC Sargent is the UK’s leading cancer charity for children and young people and their families. We provide clinical, practical and emotional support to help them cope with cancer and get the most out of life. We are there from diagnosis onwards and help families deal with the impact of cancer, life after treatment and, in some cases, bereavement. Our purpose Everything we do is guided by our four key aims, to: 1. Reduce the practical and financial impact of cancer treatment on a child or young person, and their family Hanifa, who was diagnosed with leukaemia at 23, with her CLIC Sargent Social Worker Tricia 2. Support the emotional wellbeing and resilience of children, young people and their families 3. Maximise the time that children and young people can spend safely at home during treatment 4. Maximise children and young people’s potential by helping them to access education, training and employment opportunities. 11-year-old Thomas was diagnosed with a brain tumour when he was four Annual Report and Accounts How we help 5 How we help When a child or young person is � Support with employment issues, “To be told that diagnosed with cancer, normal including help with speaking your three- life stops. It can be a devastating to employers about reducing year-old child experience for the whole family. working hours, working flexibly has cancer is a or taking unpaid leave massive shock. Treatment is often gruelling, can start � Free accommodation at our nine It’s like being immediately and be given a long Homes from Home which are hit by a bus. We way from home. There can be an close to specialist hospitals so that were a really overwhelming amount to deal with, families can stay near their child normal, happy, from the emotional strain of coping during treatment, and patients busy family and with uncertainty to practical concerns too when treatment allows it all just turned such as arranging time off work, and � Free holidays and specialist short into chaos.” caring for a child in hospital or their Sara, whose son Quinn breaks away from the everyday siblings at home. The financial impact was diagnosed with challenges of childhood cancer, with can be significant too, with extra costs leukaemia when the support of our care professionals he was three such as travel and accommodation and medical support close by for hospital appointments. � Support to keep up with education, Family life can be disrupted for including delivering treatments months – and in many cases, years. in schools, liaising with schools to The impact of childhood cancer may help children with schoolwork and also last long after treatment ends. providing parents and staff with information and advice about how We know that every child and young best to support a child with cancer person with cancer is different. Families � Clinical care from our nurses are different. Each cancer journey is to maximise the amount of different. We know this because we time children can safely spend listen. And we ask the right questions to at or closer to home, and ensure we can provide the right support. deliver as many treatments in the community as possible We provide: � Support from our play specialists � to help the whole Emotional support who help children cope with family cope with a cancer diagnosis treatment through play and activities. and its impact on everyday life We also campaign and influence � A wide range of information others to raise awareness of the needs on childhood cancer and its of children and young people with impact on all aspects of life cancer and to improve the support � Financial support, including they and their families receive. grants and referral to a specialist CLIC Sargent welfare advice service, to help families and young people deal with the financial difficulties a cancer diagnosis can bring 6 Annual Report and Accounts Chair's introduction Chair’s introduction I’d like to introduce this year’s Annual to be ‘highly commended’ in NHS Report and Accounts by saying thank England’s Excellence in Participation you. Thank you to all our supporters, Awards. These awards show that staff, volunteers and Trustees who make every CLIC Sargent staff member is our work possible. And, of course, thank dedicated to listening to children you to the children and young people and young people with cancer. with cancer, and their families, who share their experiences to help improve Our volunteers too are a constant our work and inspire us every day. source of inspiration. Their commitment to children and young people with This year, more than 300 children cancer is remarkable. This year, just and young people have worked with under 3,500 volunteers supported us to help shape our work. They’ve our work. They have helped in so been part of our staff recruitment many ways: at events, in our shops, interview panels and of focus groups at our annual Big Bucket Collections, that have developed our information supporting families in hospital, in our resources and policy reports. We have Homes from Home, and at our holiday also invited young people to become home Malcolm Sargent House. Our members of our Young People’s Service volunteers bring a wealth of skills, Development Group, and to feed into experience and energy to every part of our Young People Programme Board the organisation. It’s thanks to them that and Board of Trustee meetings. we can raise vital funds, staff our shops, promote awareness of the impact Our Children and Young People’s of childhood cancer, and, ultimately, Advisory Group continues to influence support so many children and young our work. A highlight for me, this people with cancer and their families. year, was attending a workshop for Trustees and senior managers, planned We had a formal celebration for our and led by 10 young people. They volunteers in June 2013. During found inventive ways to help us think national Volunteers’ Week, we made more about the difficult situations sure they knew just how much we they have to deal with on a daily appreciate them. We said ‘thank basis, from coping with hair loss to you’ to as many of our volunteers as what to tell a prospective employer. possible through our social media It was an incredibly meaningful channels by featuring their experiences and motivating experience. and including staff comments about volunteering at CLIC Sargent. We In 2013/2014, we received external also held volunteer parties and recognition for the way we put thanked people individually. young people’s voices at the heart of our work. We were delighted to Working with other charities receive a Hear by Right Gold Award and support groups, including from the National Youth Agency and Cancer Research UK and Children’s Annual Report and Accounts Chair's introduction 7 Cancer and Leukaemia Group, we are I’ve had a wonderful time at moving Childhood Cancer Awareness CLIC Sargent and will miss working with Month from December to September its staff and volunteers, and with the in 2014.