Hyperfocus: the Forgotten Frontier of Attention
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Cognitive and Affective Control Deficits in Adults with Autism
City University of New York (CUNY) CUNY Academic Works All Dissertations, Theses, and Capstone Projects Dissertations, Theses, and Capstone Projects 9-2017 Cognitive and Affective Control Deficits in Adults with utismA Spectrum Disorder Melissa-Ann Mackie The Graduate Center, City University of New York How does access to this work benefit ou?y Let us know! More information about this work at: https://academicworks.cuny.edu/gc_etds/2271 Discover additional works at: https://academicworks.cuny.edu This work is made publicly available by the City University of New York (CUNY). Contact: [email protected] COGNITIVE AND AFFECTIVE CONTROL DEFICITS IN ADULTS WITH AUTISM SPECTRUM DISORDER by MELISSA-ANN MACKIE, M.S., M.PHIL. A dissertation submitted to the Graduate Faculty in Psychology in partial fulfillment of the of the requirements of the degree of Doctor of Philosophy, The City University of New York 2017 Ó 2017 MELISSA-ANN MACKIE All Rights Reserved ii Cognitive and Affective Control Deficits in Adults with Autism Spectrum Disorder by Melissa-Ann Mackie, M.S., M.Phil. This manuscript has been read and accepted for the Graduate Faculty in Psychology in satisfaction of the dissertation requirement for the degree of Doctor of Philosophy. ______________________ ____________________________________ Date Jin Fan, Ph.D. Chair of Examining Committee ______________________ ____________________________________ Date Richard Bodnar, Ph.D. Executive Officer Supervisory Committee: Jin Fan, Ph.D. Jeffrey Halperin, Ph.D. Justin Storbeck, Ph.D. Kurt Schulz, Ph.D. A. Ting Wang, Ph.D. THE CITY UNIVERSITY OF NEW YORK iii ABSTRACT Cognitive and Affective Control Deficits in Adults with Autism Spectrum Disorder by Melissa-Ann Mackie, M.S., M.Phil. -
The TEACCH Program in the Era of Evidence-Based Practice
J Autism Dev Disord DOI 10.1007/s10803-009-0901-6 ORIGINAL PAPER The TEACCH Program in the Era of Evidence-Based Practice Gary B. Mesibov • Victoria Shea Ó Springer Science+Business Media, LLC 2009 Abstract ‘Evidence-based practice’ as initially defined in children with autism (e.g., Rogers 1998; Rogers and Vis- medicine and adult psychotherapy had limited applicability mara 2008). to autism interventions, but recent elaborations of the The initial definitions for EST in psychology were quite concept by the American Psychological Association (Am rigid (e.g., requiring evidence from at least two group Psychol 61: 271–285, 2006) and Kazdin (Am Psychol studies using randomized controlled trials or nine single- 63(1):146–159, 2008) have increased its relevance to our case studies, using a treatment manual, and employing a field. This article discusses the TEACCH program (of research design that demonstrated that the intervention which the first author is director) as an example of an being studied was better than another treatment [not just evidence-based practice in light of recent formulations of ‘no treatment’ or a ‘waiting list control group’]). These that concept. criteria, designed to evaluate adult psychotherapy, were not a particularly good fit for evaluating autism interventions Keywords TEACCH Á Evidence-based because of the relatively limited research base and the extremely heterogeneous population of people with autism, among other factors (Mesibov and Shea 2009) (The term Brief History of Evidence-Based Practice autism will be used from this point forward to mean all autism spectrum disorders.). The concept of evidence-based interventions began in the Actually, many psychologists chafed under the early field of medicine in the 1970’s and in recent years has been EST criteria, leading the American Psychological Associ- employed in many other disciplines. -
The Effectiveness of Snoezelen in Reducing
234 The effectiveness of Snoezelen in reducing stereotyping in ARTICLE ORIGINAL adults with intellectual disabilities: a case study of Occupational Therapy intervention in multisensory stimulation rooms A eficácia do Snoezelen na redução das estereotipias em adultos com deficiência intelectual: um estudo de caso da intervenção da terapia ocupacional em salas de estimulação multissensorial* Ana Sofia Pinto Lopes1, Janine Vanessa Martins Araújo1, Marco Paulo Vieira Ferreira1, Jaime Emanuel Moreira Ribeiro2 http://dx.doi.org/10.11606/issn.2238-6149.v26i2p234-243 Lopes ASP, Araújo JVM,Ferreira MPV, Ribeiro JEM. The KEYWORDS: Stereotyped behavior; Intellectual disability; effectiveness of Snoezelen in reducing stereotyping in adults with Occupational Therapy. intellectual disabilities: a case study of Occupational Therapy intervention in multisensory stimulation rooms. Rev Ter Ocup Lopes ASP, Araújo JVM, Ferreira MPV, Ribeiro JEM. Univ São Paulo. 2015 May-Aug.;26(2):234-43. A eficácia do Snoezelen na redução das estereotipias em adultos com deficiência intelectual: um estudo de caso da ABSTRACT: There is little evidence of the effectiveness of intervenção da terapia ocupacional em salas de estimulação intervention in Snoezelen rooms in stereotyping reduction multissensorial. Rev Ter Ocup Univ São Paulo. 2015 in adults with intellectual disabilities. In this direction, the maio-ago.;26(2):234-43. present study sought to evaluate the relationship between this multisensory stimulation and stereotyping reduction RESUMO: Existem escassas evidências sobre a eficácia da in adults with intellectual disabilities. Through the case intervenção em salas de Snoezelen na redução de estereotipias em study methodology, the behavior of a subject was analyzed adultos com deficiência intelectual. Neste sentido, o presente estudo before, during and after the multisensory stimulation in pretendeu avaliar a relação entre esta estimulação multissensorial e Snoezelen rooms for ten biweekly sessions, lasting an hour a redução de estereotipias em adultos com deficiência intelectual. -
Parents Guide to ADHD
Parents Guide to ADHD Copyright 2016. Child Mind Institute Parents Guide to ADHD Children with attention-deficit hyperactivity disorder (ADHD) find it unusually difficult to concentrate on tasks, to pay attention, to sit still and to control impulsive behavior. This guide offers parents the information you need to understand the behaviors associated with the disorder and make effective decisions for your child about diagnosis and treatment. What Is ADHD? Attention-deficit hyperactivity disorder, or ADHD, is a condition that makes it unusually difficult for children to concentrate, to pay attention, to sit still, to follow directions and to control impulsive behavior. While all young children are at times distractible, restless and oblivious to parents’ and teachers’ instructions, kids with ADHD behave this way much more often than other children their age. And their inability to settle down, focus and follow through on tasks in age-appropriate ways makes it very hard for them to do what’s expected of them at school. It can also lead to conflict at home and difficulty getting along with peers. Symptoms of ADHD Symptoms of ADHD are divided into two groups: inattentive behaviors and hyperactive and impulsive behaviors. Inattentive symptoms of ADHD: — Makes careless mistakes — Is easily distracted — Doesn’t seem to be listening when spoken to directly — Has difficulty following instructions — Has trouble organizing — Avoids or dislikes sustained effort — Is forgetful, always losing things Child Mind Institute | Page 2 Parents Guide to ADHD Hyperactive or impulsive symptoms of ADHD: — Fidgeting or squirming, trouble staying in one place or waiting his turn Kids who have inattentive — Excessive running and climbing symptoms may start to — Trouble playing quietly struggle in the middle of — Extreme impatience elementary school, when — Always seems to be “on the go” or “driven by a motor” it becomes increasingly — Excessive talking or interrupting, blurting out answers difficult for them to Some children exhibit only the first group of symptoms, and some exhibit keep up. -
Autism Entangled – Controversies Over Disability, Sexuality, and Gender in Contemporary Culture
Autism Entangled – Controversies over Disability, Sexuality, and Gender in Contemporary Culture Toby Atkinson BA, MA This thesis is submitted in partial fulfilment of the requirements for the degree of Doctor of Philosophy Sociology Department, Lancaster University February 2021 1 Declaration I declare that this thesis is my own work and has not been submitted in substantially the same form for the award of a higher degree elsewhere. Furthermore, I declare that the word count of this thesis, 76940 words, does not exceed the permitted maximum. Toby Atkinson February 2021 2 Acknowledgements I want to thank my supervisors Hannah Morgan, Vicky Singleton, and Adrian Mackenzie for the invaluable support they offered throughout the writing of this thesis. I am grateful as well to Celia Roberts and Debra Ferreday for reading earlier drafts of material featured in several chapters. The research was made possible by financial support from Lancaster University and the Economic and Social Research Council. I also want to thank the countless friends, colleagues, and family members who have supported me during the research process over the last four years. 3 Contents DECLARATION ......................................................................................... 2 ACKNOWLEDGEMENTS ............................................................................. 3 ABSTRACT .............................................................................................. 9 PART ONE: ........................................................................................ -
Autism Terminology Guidelines
The language we use to talk about autism is important. A paper published in our journal (Kenny, Hattersley, Molins, Buckley, Povey & Pellicano, 2016) reported the results of a survey of UK stakeholders connected to autism, to enquire about preferences regarding the use of language. Based on the survey results, we have created guidelines on terms which are most acceptable to stakeholders in writing about autism. Whilst these guidelines are flexible, we would like researchers to be sensitive to the preferences expressed to us by the UK autism community. Preferred language The survey highlighted that there is no one preferred way to talk about autism, and researchers must be sensitive to the differing perspectives on this issue. Amongst autistic adults, the term ‘autistic person/people’ was the most commonly preferred term. The most preferred term amongst all stakeholders, on average, was ‘people on the autism spectrum’. Non-preferred language: 1. Suffers from OR is a victim of autism. Consider using the following terms instead: o is autistic o is on the autism spectrum o has autism / an autism spectrum disorder (ASD) / an autism spectrum condition (ASC) (Note: The term ASD is used by many people but some prefer the term 'autism spectrum condition' or 'on the autism spectrum' because it avoids the negative connotations of 'disability' or 'disorder'.) 2. Kanner’s autism 3. Referring to autism as a disease / illness. Consider using the following instead: o autism is a disability o autism is a condition 4. Retarded / mentally handicapped / backward. These terms are considered derogatory and offensive by members of the autism community and we would advise that they not be used. -
Autism--It's Different in Girls
M E N T A L H E A L T H Autism—It's Different in Girls New research suggests the disorder often looks different in females, many of whom are being misdiagnosed and missing out on the support they need ﺃﻋﺭﺽ ﻫﺫﺍ ﺑﺎﻟﻠﻐﺔ ﺍﻟﻌﺭﺑﻳﺔ By Maia Szalavitz on March 1, 2016 Credit: PAMELA N. MARTIN Getty Images When Frances was an infant, she was late to babble, walk and talk. She was three before she would respond to her own name. Although there were hints that something was unusual about her development, the last thing her parents suspected was autism. “She was very social and a very happy, easy baby,” says Kevin Pelphrey, Frances's father. Pelphrey is a leading autism researcher at Yale University's world-renowned Child Study Center. But even he did not recognize the condition in his daughter, who was finally diagnosed at about five years of age. Today Frances is a slender, lightly freckled 12-year- old with her dad's warm brown eyes. Like many girls her age, she is shy but also has strong opinions about what she does and does not want. At lunchtime, she and her little brother, Lowell, engage in some classic sibling squabbling—“Mom, he's kicking me!” Lowell, seven, received an autism diagnosis much earlier, at 16 months. Their mom, Page, can recall how different the diagnostic process was for her two children. With Lowell, it was a snap. With Frances, she says, they went from doctor to doctor and were told to simply watch and wait—or that there were various physical reasons for her delays, such as not being able to see well because of an eye condition called strabismus that would require surgical treatment at 20 months. -
Neurodiversity: Creating an Inclusive College Classroom
NEURODIVERSITY: CREATING AN INCLUSIVE COLLEGE CLASSROOM J O S H BURK , K A R I N WULF , C H E R Y L DICKTER , J A N I C E ZEMAN HELPFUL STRATEGIES FOR OUR UTP • Reviewing the literature • Assess group of interest • Assess impact of any manipulation, teaching strategy, etc. WHAT IS NEURODIVERSITY? • Neurodiversity is a philosophy that emphasizes differences in human neurologies. • Neurodiversity emphasizes that Autism and ADHD, for example, represent difference rather than deficits. • Neurodiversity invokes an emerging disability rights/ civil rights movement. NEURODIVERSITY WWW.WM.EDU/NEURODIVERSITY • At W&M, The Neurodiversity Initiative seeks first to serve our campus community and ultimately to be a model for other campuses. • The Neurodiversity Working Group works to foster an inclusive campus culture, and organizes campus events and programs. • The Working Group also produces and supports resources for students, faculty, and staff. WHY NEURODIVERSITY? • More students in • It’s the right and college with learning good thing to do. differences, (Human rights including autism. perspective) • More W&M students needing support. • Our community is • We can offer enriched by diversity. effective, evidence- (Maximizing human based support (ex.: capital perspective) “The Hidden Rules of Seminars.” WHAT IS AUTISM? • Autism is one form of neurological difference that we see on campus, although it is often combined with ADHD. • Autism Spectrum Disorders are marked by social and communication difficulties. Autistic people have more challenges -
Before You Donate to Autism Speaks, Consider the Facts
Before you donate to Autism Speaks, Consider the facts Autism Speaks’ Budget Very little money donated to Autism source: Autism Speaks 990 Non-Profit Tax Exemption Form, 2018* Speaks goes toward helping autistic Research “Awareness” & people and families. Lobbying Only 1% of Autism Speaks’ budget goes towards the “Family Service” grants that are the organization’s means of funding services. Autism Speaks spends 20x as much—20%—on fundraising. Although Autism Speaks has not 27% 48% prioritized services with a practical impact for families and individuals in its budget, its rates of executive pay are the highest in the autism world: some salaries exceed $600,000 a year. 20% 4% Autism Speaks talks about us 1% without us. Fundraising Misc. Family Services Autism Speaks has only 1 autistic person out of a total of 28 individuals on its Board of Directors. Instead, donate to organizations By contrast, 23 out of 28 board members represent that help autistic people: major corporations, including current and former Autistic Self Advocacy Network (ASAN) CEOs and senior executives of PayPal, Goldman provides support, community, and public policy Sachs, White Castle, FX Networks, Virgin Mobile, advocacy, by and for people on the autism spectrum. eBay, AMC Networks, L’Oreal, CBS, SiriusXM, autisticadvocacy.org American Express, S.C. Johnson, and Royal Bank Autistic Women & Nonbinary Network (AWN) of Scotland. seeks to share information which works to build acceptance and understanding of disability, while dispelling stereotypes and misinformation which Autism Speaks’ fundraising strategies perpetuate unnecessary fears surrounding an promote fear, stigma, and prejudice autism diagnosis. against autistic people. -
THE CLINICAL ASSESSMENT of the PATIENT with EARLY DEMENTIA S Cooper, J D W Greene V15
J Neurol Neurosurg Psychiatry: first published as 10.1136/jnnp.2005.081133 on 16 November 2005. Downloaded from THE CLINICAL ASSESSMENT OF THE PATIENT WITH EARLY DEMENTIA S Cooper, J D W Greene v15 J Neurol Neurosurg Psychiatry 2005;76(Suppl V):v15–v24. doi: 10.1136/jnnp.2005.081133 ementia is a clinical state characterised by a loss of function in at least two cognitive domains. When making a diagnosis of dementia, features to look for include memory Dimpairment and at least one of the following: aphasia, apraxia, agnosia and/or disturbances in executive functioning. To be significant the impairments should be severe enough to cause problems with social and occupational functioning and the decline must have occurred from a previously higher level. It is important to exclude delirium when considering such a diagnosis. When approaching the patient with a possible dementia, taking a careful history is paramount. Clues to the nature and aetiology of the disorder are often found following careful consultation with the patient and carer. A focused cognitive and physical examination is useful and the presence of specific features may aid in diagnosis. Certain investigations are mandatory and additional tests are recommended if the history and examination indicate particular aetiologies. It is useful when assessing a patient with cognitive impairment in the clinic to consider the following straightforward questions: c Is the patient demented? c If so, does the loss of function conform to a characteristic pattern? c Does the pattern of dementia conform to a particular pattern? c What is the likely disease process responsible for the dementia? An understanding of cognitive function and its anatomical correlates is necessary in order to ascertain which brain areas are affected. -
REVIEW ARTICLE the Genetics of Autism
REVIEW ARTICLE The Genetics of Autism Rebecca Muhle, BA*; Stephanie V. Trentacoste, BA*; and Isabelle Rapin, MD‡ ABSTRACT. Autism is a complex, behaviorally de- tribution of a few well characterized X-linked disorders, fined, static disorder of the immature brain that is of male-to-male transmission in a number of families rules great concern to the practicing pediatrician because of an out X-linkage as the prevailing mode of inheritance. The astonishing 556% reported increase in pediatric preva- recurrence rate in siblings of affected children is ϳ2% to lence between 1991 and 1997, to a prevalence higher than 8%, much higher than the prevalence rate in the general that of spina bifida, cancer, or Down syndrome. This population but much lower than in single-gene diseases. jump is probably attributable to heightened awareness Twin studies reported 60% concordance for classic au- and changing diagnostic criteria rather than to new en- tism in monozygotic (MZ) twins versus 0 in dizygotic vironmental influences. Autism is not a disease but a (DZ) twins, the higher MZ concordance attesting to ge- syndrome with multiple nongenetic and genetic causes. netic inheritance as the predominant causative agent. By autism (the autistic spectrum disorders [ASDs]), we Reevaluation for a broader autistic phenotype that in- mean the wide spectrum of developmental disorders cluded communication and social disorders increased characterized by impairments in 3 behavioral domains: 1) concordance remarkably from 60% to 92% in MZ twins social interaction; 2) language, communication, and and from 0% to 10% in DZ pairs. This suggests that imaginative play; and 3) range of interests and activities. -
How the Autistic Mind Functions – an Insider’S Report
www.kosmospublishers.com [email protected] DOI: 10.37722/JNPABR.202031 Review Article Journal of Neurology, Psychiatry and Brain Research JNPBR-154 ISSN: 2641 -6816 How the Autistic Mind Functions – an Insider’s Report David Rowland* Independent researcher registered with ORCID, Canada Received Date: December 07, 2020; Accepted Date: December 14, 2020; Published Date: December 23, 2020 *Corresponding author: David Rowland, Independent researcher registered with ORCID, Canada. Email: [email protected] Abstract Introduction Autism can most clearly be understood from the inside Contrary to popular misconception, autism is a rare condition looking out. Those who are looking in have no frame of that may affect only about 0.6% of the general population [1]. reference by which to readily understand what it is they are Also contrary to popular misconception, autism is neither observing. Autism is neither neurodevelopmental nor a neurodevelopment nor a disorder. It is simply an inherent disorder. It is simply an inherent neurophysiological difference neurophysiological difference in how the brain processes in how the brain processes information. We who are autistic live information [2, 3]. We who are autistic live in a specialized in a specialized inner space that is entirely intellectual, free inner space that is entirely intellectual, free from emotional and from emotional and social distractions. We observe the world social distractions. We observe the world in scholarly detail but in scholarly detail but without any emotional attachment to without any emotional attachment to what we see [4]. Retrospective what we see. analysis indicates that Newton, Jefferson, Darwin, Edison, Tesla, and Einstein were autistic [5].