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Autism Entangled – Controversies Over Disability, Sexuality, and Gender in Contemporary Culture
Autism Entangled – Controversies over Disability, Sexuality, and Gender in Contemporary Culture Toby Atkinson BA, MA This thesis is submitted in partial fulfilment of the requirements for the degree of Doctor of Philosophy Sociology Department, Lancaster University February 2021 1 Declaration I declare that this thesis is my own work and has not been submitted in substantially the same form for the award of a higher degree elsewhere. Furthermore, I declare that the word count of this thesis, 76940 words, does not exceed the permitted maximum. Toby Atkinson February 2021 2 Acknowledgements I want to thank my supervisors Hannah Morgan, Vicky Singleton, and Adrian Mackenzie for the invaluable support they offered throughout the writing of this thesis. I am grateful as well to Celia Roberts and Debra Ferreday for reading earlier drafts of material featured in several chapters. The research was made possible by financial support from Lancaster University and the Economic and Social Research Council. I also want to thank the countless friends, colleagues, and family members who have supported me during the research process over the last four years. 3 Contents DECLARATION ......................................................................................... 2 ACKNOWLEDGEMENTS ............................................................................. 3 ABSTRACT .............................................................................................. 9 PART ONE: ........................................................................................ -
VA CEC 2013 Conference Program
The Virginia Federation of the Council for Exceptional Children Fall Conference Seeing the World Through the Spectrum Friday, November 18, 2016 Richmond, VA Presenting Dr. Temple Grandin Endorsed by the Virginia Department of Education Keynote Speaker: Dr. Temple Grandin Temple Grandin, Ph.D., is one of the most accomplished and well-known adults with autism in the world. Her life, with all its challenges and successes, was brought to the screen with the HBO full-length film Temple Grandin, starring Claire Danes. Dr. Grandin has been featured on NPR, and she has a 2010 TED Lecture titled "The World Needs ALL Kinds of Minds." She has also been featured on the BBC special “The Woman Who Thinks Like a Cow”, ABC's “Primetime Live”, “The Today Show” and more. Grandin developed her talents into a successful career as a livestock-handling equipment designer, one of very few in the world. She also speaks on both autism and cattle handling. Dr. Grandin's current bestselling book on autism is The Way I See It: A Personal Look at Autism and Asperger's. She also authored Unwritten Rules of Social Relationships; Animals Make Us Human; Animals in Translation; Thinking in Pictures; and Emergence: Labeled Autistic. Grandin is considered a philosophical leader of both the animal welfare and autism advocacy movements. Honored Guest: Dr. Patricia Abrams Director, Office of Special Education Instructional Services Division of Special Education and Student Services Virginia Department of Education Dr. Abrams serves as the Director of the Office of Special Education Instructional Services at the Virginia Department of Education. -
Neurodiversity: Creating an Inclusive College Classroom
NEURODIVERSITY: CREATING AN INCLUSIVE COLLEGE CLASSROOM J O S H BURK , K A R I N WULF , C H E R Y L DICKTER , J A N I C E ZEMAN HELPFUL STRATEGIES FOR OUR UTP • Reviewing the literature • Assess group of interest • Assess impact of any manipulation, teaching strategy, etc. WHAT IS NEURODIVERSITY? • Neurodiversity is a philosophy that emphasizes differences in human neurologies. • Neurodiversity emphasizes that Autism and ADHD, for example, represent difference rather than deficits. • Neurodiversity invokes an emerging disability rights/ civil rights movement. NEURODIVERSITY WWW.WM.EDU/NEURODIVERSITY • At W&M, The Neurodiversity Initiative seeks first to serve our campus community and ultimately to be a model for other campuses. • The Neurodiversity Working Group works to foster an inclusive campus culture, and organizes campus events and programs. • The Working Group also produces and supports resources for students, faculty, and staff. WHY NEURODIVERSITY? • More students in • It’s the right and college with learning good thing to do. differences, (Human rights including autism. perspective) • More W&M students needing support. • Our community is • We can offer enriched by diversity. effective, evidence- (Maximizing human based support (ex.: capital perspective) “The Hidden Rules of Seminars.” WHAT IS AUTISM? • Autism is one form of neurological difference that we see on campus, although it is often combined with ADHD. • Autism Spectrum Disorders are marked by social and communication difficulties. Autistic people have more challenges -
Unravelling Autism
Unravelling Autism • Preston Wiles M.D. • Professor, UTSWMC • Senior Attending, Autism Center Learning Objectives • Describe essential features of autism spectrum disorders • Overview of genetic factors in the disorder • Understand brain function related to core features of autism • Review features of epidemiology-is there an epidemic or not • Role of science/education vs. Myth/meme Autism Spectrum Disorders • Autistic Disorder • Pervasive Developmental Disorder NOS • Asperger’s Syndrome • Rett’s Disorder • Child Disintegrative Disorder • ALL become ASDs in DSM-V Historical Perspective • Feral children • Kanner-1943 Infantile Autism • Asperger-1944 Autistic Psychopathy • Rank-1949 Atypical Personality Autism Defined The Great Autism Researcher--Dr Seuss Thing One: Social Disability-intuitive understanding of others, feeling their feelings, social understanding, intersubjectivity Thing Two: Early Onset of neuro-developmental disorder (Stolen from Ami Klin) Core Features ASDs • Social impairment • Communication Deficits • Restricted interest/Repetitive Behaviors • Deficit/Deviance beyond IQ/developmental • Core Feature is SOCIAL Areas of Concern Social Impairment Restricted and Communication Repetitive M-CHAT screening • Pediatrics- all 18 and 24 month olds • Does your child take interest in other children? • Does your child ever use his/her body to point, to indicate interest? • Does your child smile in response to your smile? • Does your child respond to his/her name when called? • Does your child imitate you? • Does your child ever pretend, -
Children's Mental Health Disorder Fact Sheet for the Classroom
1 Children’s Mental Health Disorder Fact Sheet for the Classroom1 Disorder Symptoms or Behaviors About the Disorder Educational Implications Instructional Strategies and Classroom Accommodations Anxiety Frequent Absences All children feel anxious at times. Many feel stress, for example, when Students are easily frustrated and may Allow students to contract a flexible deadline for Refusal to join in social activities separated from parents; others fear the dark. Some though suffer enough have difficulty completing work. They worrisome assignments. Isolating behavior to interfere with their daily activities. Anxious students may lose friends may suffer from perfectionism and take Have the student check with the teacher or have the teacher Many physical complaints and be left out of social activities. Because they are quiet and compliant, much longer to complete work. Or they check with the student to make sure that assignments have Excessive worry about homework/grades the signs are often missed. They commonly experience academic failure may simply refuse to begin out of fear been written down correctly. Many teachers will choose to Frequent bouts of tears and low self-esteem. that they won’t be able to do anything initial an assignment notebook to indicate that information Fear of new situations right. Their fears of being embarrassed, is correct. Drug or alcohol abuse As many as 1 in 10 young people suffer from an AD. About 50% with humiliated, or failing may result in Consider modifying or adapting the curriculum to better AD also have a second AD or other behavioral disorder (e.g. school avoidance. Getting behind in their suit the student’s learning style-this may lessen his/her depression). -
Living with Special Abilities
LIVING WITH SPECIAL ABILITIES: A Parent’s Journey with Autism ABOUT THE AUTHOR Afroze Jahan is first of all a mother of two boys who are striving to achieve their milestones of adolescent years and secondly, a professional in the field of mental health. As a budding author and a special parent, she has whole slew of ideas to pass on to the parents who stand in need of guidance. Her passion to help parents and children led her to change her profession from a Microbiologist to a Psychologist & Family Therapist. This helped her refine her skills and confidently handle diverse situations in life. By sharing her experiences as a special parent, she intends to provide a soothing and comfortable environment for those parents who feel they are the only one in the whole world to face disability in life. She is specialized in child and adolescent issues, childhood disabilities, family issues, emotional issues, behavioural issues, educational issues, etc. She is currently empanelled as a Counsellor in the Ministry of Women and Child Development (Govt. of NCT of Delhi) and working as a Psychologist with an NGO- Tamana Autism centre. She has also worked with Udaan- an NGO working with special children and NIPCCD- National Institute of Public Cooperation and Child Development, an autonomous body under the Ministry of Women and Child Development. LIVING WITH SPECIAL ABILITIES: A Parent’s Journey with Autism AFROZE JAHAN ZORBA BOOKS ZORBA BOOKS Publishing Services in India by Zorba Books, 2018 Website: www.zorbabooks.com Email: [email protected] Copyright © AFROZE JAHAN Print Book ISBN: 978-93-88497-17-6 All rights reserved. -
Sensory Processing
helping children with sensory processing disorders: Margarita Sweet, OTR/L, received her the role of occupational therapy bachelor’s degree in occupational therapy from Escuela Colombiana de By Margarita Sweet Rehabilitación in Bogotá, Colombia. She is an occupational therapist at Kendall Demonstration magine yourself inside the coach of a train on your way home during Elementary School (KDES), rush hour. It’s packed and you can’t move. You want to find your mobile part of the Laurent Clerc text device so you dig into your backpack. The train suddenly stops and National Deaf Education you grab a handlebar so that you don’t step on someone else’s feet. Center in Washington, I D.C., as well as at Good Beginnings, a private In this scenario, to relax during the train trip you must have adequate sensory processing pediatric clinic in the skills, including: Northern Virginia area. She welcomes questions and • A mature tactile system to feel comfortable around the people riding on the train who comments about this article may unexpectedly touch or rub against you (maintaining your usual personal boundaries at Margarita.Sweet@gallaudet. is difficult in this situation). Your tactile system also enables you to find items, such as edu. your mobile device, without using your vision. • Your vestibular and proprioceptive systems, which play an important role in maintaining your balance while the train moves or stops. These systems tell you where you are Photos courtesy of Margarita Sweet moving in relation to space and to activate your muscles in order to obtain a desired position. -
Diagnosis of Autism and Future Directions in Treatment and Research
Diagnosis of Autism and Future Directions in Treatment and Research Sarah D. Richie, Ph.D. Clinical Neuropsychologist Assistant Director of Training Center for Pediatric Neuropsychology Le Bonheur Children’s Medical Center Clinical Assistant Professor – UT Health Science Center Adjunct Professor – University of Mississippi Diagnostics • ASD – umbrella catch-all terminology – Dr. Kanner: Austrian-American, Johns Hopkins, 1943, psychiatrist – Dr. Asperger: University of Vienna, 1944 – Heterogeneity and Idiosyncrasy (internationally) – Range of severity and limitations – Differential patterns of strengths and weaknesses – Complex presentations, no Polaroid snapshot diagnostic and treatment profile – 4:1 male-to-female ratio MYTH REALITY 1. Aren’t affectionate 1. On own terms 2. Don’t want friends 2. Difficulty w/social 3. Have a “tic”, it’s OCD 3. Complex expression 4. Happens suddenly 4. Range- sudden, gradual, plateau, regress 5. Are mentally impaired 5. Range of abilities, up to (i.e., mental retardation) very superior 6. No other disorders 6. Often have comborbid dx, possibly higher risk 7. Est. range from 1:120 to 7. Rare diagnosis 1:166, 1:154 for world 8. Psychiatric in type 8. Neurodevelopmental, neurobiological Triad of Impairment (what I look for in general) Language, Communication (verbal & nonverbal) Stereotyped behaviors, Social interaction, rigid interests and Communication, preoccupations (aka “insistence Emotional-behavioral regulation upon sameness”) Disorders within the spectrum at present Diagnoses Within ASD • Autistic Disorder – classic triad of impairment but still a range – Language delay, esp. for functional & social communication, pragmatics, significantly atypical speech (e.g., “Johnny-speak”) – Deficits in social engagement, interaction, and maintenance of play/communication activities – Display of stereotypies, rigid preoccupations and interests – COMPLEX • Stereotypies (e.g., hand-flapping) alone do not solely confirm of autism • Stereotypy vs. -
It Reveals Who I Really Am”: New Metaphors, Symbols, and Motifs in Representations of Autism Spectrum Disorders in Popular Culture
“IT REVEALS WHO I REALLY AM”: NEW METAPHORS, SYMBOLS, AND MOTIFS IN REPRESENTATIONS OF AUTISM SPECTRUM DISORDERS IN POPULAR CULTURE By Summer Joy O’Neal A Dissertation Submitted in Partial Fulfillment of the Requirements for the Degree of Doctor of Philosophy in English Middle Tennessee State University 2013 Dissertation Committee: Dr. Angela Hague, Chair Dr. David Lavery Dr. Robert Petersen Copyright © 2013 Summer Joy O’Neal ii ACKNOWLEDGEMENTS There simply is not enough thanks to thank my family, my faithful parents, T. Brian and Pamela O’Neal, and my understanding sisters, Auburn and Taffeta, for their lifelong support; without their love, belief in my strengths, patience with my struggles, and encouragement, I would not be in this position today. I am forever grateful to my wonderful director, Dr. Angela Hague, whose commitment to this project went above and beyond what I deserved to expect. To the rest of my committee, Dr. David Lavery and Dr. Robert Petersen, for their seasoned advice and willingness to participate, I am also indebted. Beyond these, I would like to recognize some “unofficial” members of my committee, including Dr. Elyce Helford, Dr. Alicia Broderick, Ari Ne’eman, Chris Foss, and Melanie Yergau, who graciously offered me necessary guidance and insightful advice for this project, particularly in the field of Disability Studies. Yet most of all, Ephesians 3.20-21. iii ABSTRACT Autism has been sensationalized by the media because of the disorder’s purported prevalence: Diagnoses of this condition that was traditionally considered to be quite rare have radically increased in recent years, and an analogous fascination with autism has emerged in the field of popular culture. -
The Joy of Autism: Part 4
I also have a list of prominent unconfirmed participants, who should be confirmed shortly. I am looking for Canadian autistic persons to consider joining the board. Please send letters of interest to: [email protected] PERM ALINK POSTED BY ESTEE KLAR-WOLFOND AT 3/16/2006 11:19:00 AM 13 COM M ENTS LINKS TO THIS POST TUESDAY , M ARCH 14, 2006 The Difficulty of Knowing There is an old adage: Ignorance is Bliss. In the case of liberal eugenics, human genome research and ethics, some people might think this as they read on. As we come closer to discovering what makes us physically human, we come closer to becoming god-like. In the name of progress we fly higher and seek control. Apollo had a son called Phaethon, who was human. Phaethon nagged at Apollo to let him borrow the sun chariot and fly across the sky. Finally Apollo agreed. Phaethon proudly drove the sun chariot up into the sky, but then he lost control of the horses. The sun chariot dived towards the earth, burning everything. Finally Jupiter had to stop him with a thunder bolt. In the name of progress, human genetics, biotechnology and the economic engine that will profit dearly from it all, this movement will go on. To what end is yet to be determined. In the meantime, let’s keep talking about what this all means as my son hugs me from behind with his cherub smile this morning. I’ve been pondering my first pregnancy with Adam. The expectation of him. Needless to say, after thirty-six years of waiting, I was ecstatic. -
Neurotypicals Are Snowflakes, They Get Offended Over the Slightest Thing” Exploring How Adults on the Autistic Spectrum Experience Friendship with Neurotypicals
“Neurotypicals are snowflakes, they get offended over the slightest thing” Exploring how Adults on the Autistic Spectrum Experience Friendship with Neurotypicals ELLIOT NEWTON Submitted in partial fulfilment of the requirements of the MSc Conversion Psychology degree, Leeds Beckett University, 2018. 1 I declare that this work is my own and has been completed within the University regulations. I consent for my Dissertation to be made available to other students in the future on the understanding that no material contained within the document will be reproduced or photocopied. I confirm that the word count of the main text is 7456 words. Signed: Elliot Newton Date: 02/10/2018 2 I would like to thank Dr. Bridgette Rickett, Tom Atkinson, Colin Newton and Samantha Whitworth, and all six participants who without, this research could not have taken place. 3 “Neurotypicals are snowflakes, they get offended over the slightest thing” Exploring how Adults on the Autistic Spectrum Experience Friendship with Neurotypicals Abstract This study aimed to investigate autistic people’s experience of friendship with neurotypicals, in an attempt to tackle the issue of social isolation for the autistic population. Participants (N=6) were recruited using social media and were invited to semi-structured interviews that focused on their lived experiences of being friends with neurotypicals and what they found helpful or difficult. The interviews produced vast amounts of rich data, which was then analysed using thematic analysis. The overarching themes that emerged were “Navigating Friendship”, “Means to and Authentic Self” and “Friendship as a Dependency”. One major concern of the participants was that neurotypicals do not understand autism, which prevents the development of friendship. -
Hyperlexia Fact Sheet
Hyperlexia Fact Sheet Hyperlexia is ... Hyperlexia is not ... A syndrome characterized by an intense fascination with written Always a symptom of autism spectrum material from a very early age. There is a significant difference condition (but it can be) between word recognition skills and the ability to understand what is Common. It is in fact relatively rare being read. Some pupils with hyperlexia experience difficulty with social skills, communication and understanding. Currently a stand alone diagnosis. It does not appear as an official diagnosis in Type 1: Neurotypical children who are very early readers Type 2: psychiatric and psychological diagnostic Children on the autism spectrum who demonstrate very early reading as manuals such as the DSM-V. It is often a splinter skill Type 3: Very early readers who are not on the autism diagnosed alongside other diagnoses, such spectrum, though they exhibit some "autistic-like" traits and behaviours as autism, but since hyperlexia is not an which gradually fade as the child gets older (Darold Treffert). official diagnosis, you will likely not receive an official “diagnosis” on paper Unusual” or “different” social skills; difficulty Intense fascination with letters, numbers, logos, maps or visu- interacting appropriately with peers and adults al patterns Sensory integration, participating in school routines and activities, Pupils with Hyperlexia may have trouble handwriting with... Communication: Often, hyperlexic children will learn to speak only by rote and heavy repetition, and may also have difficulty learning the rules of language from examples or from trial and error, which may result in social problems. Their language may develop using echolalia, often repeating words and sentences.