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Ugam Calling Ugam Calling... 9th Anniversary Issue - 2018 International Childhood Cancer Survivor's Week Vision • To ensure that every childhood cancer survivor finds his/ her way to celebrate life after winning their battle with cancer. • To facilitate their life's journey on the correct path & in the right direction. Rise, Shine and Celebrate Survivorship ! Mission • Empowerment of young survivors • Helping children with cancer undergoing treatment • Social awareness and re-bonding with society Donations are exempted from Income Tax under section 80 (G) of the Income Tax Act Cheques / DD should be drawn in favour of Indian Cancer Society, payable at Mumbai, with a covering letter stating that the donation is for UGAM. CONTACT • Dr Purna Kurkure – Convener, UGAM Ph no : +91 9821324504 E-mail: [email protected] • Dr Vandana Dhamankar Ph no : +91 98191 90076 -Assistant Director, Cancer Survivorship E-mail: [email protected] • Mr Shekhar Jha– Administrative Officer Ph no : +91 9699975276 E-mail: [email protected] • Ms Savita Goswami - Mentor Ph no : +91 9820050072 E-mail: [email protected] • Ms Ekta Rawat – Co-ordinator Ph no : 08805267800 E-mail: [email protected] • Ms Preeti Phad - Member Ph no : 9702488007 E-mail: [email protected] Indian Cancer Society Indian Cancer Society 74,Jerbai Wadia Road, Parel, Mumbai,400 012. Tel. No: 022-24161875/ 24139445/51 74,Jerbai Wadia Road, Parel, Mumbai,400 012. Tel. No: 022-24161875/ 24139445/51 [email protected] / [email protected] [email protected] / [email protected] www.ugamcalling.org www.ugamcalling.org www.indiancancersociety.org www.indiancancersociety.org Edited by: Dr. Purna Kurkure / Arun Kumar Nadar Victors of childhood cancer DESIGNED BY: Victors of childhood cancer Illustration by: Shweta Chawre BACK FRONT UGAM PROFILE Indian Cancer Society was established in 1951 by Dr. D. J. Jussawalla and Mr. Naval Tata as India’s first voluntary, non-profit, National Organization for Awareness, Detection, Cure and Survivorship of those affected with this disease. UGAM, Emotional support group of childhood cancer survivors, is the youngest unit of (ICS) under its survivorship program. UGAM means "To Rise", underscoring the determination of childhood cancer survivors, to rise above all obstacles in life & be VICTORS.UGAM has been set up with an aim to provide empowerment to the survivors of childhood cancers & to spread the message "Childhood Cancer is Curable" in society .UGAM was launched in 2009 on the first Sunday of June celebrated as Cancer Survivors Day across the world as a mark of celebration of life. THE UGAM FAMILY Working Groups Patient Support Group Marriage counseling group Prashant Suryawanshi /Nilesh Dokhe/ Vanchinathan/Mrs Sampada Sakre/ Tushar Khillare Anita Gupta Survivor Support Group Public Relations Preeti Phad/Shifa Shaikh/Vanchinathan Ekta Rawat/Narendra Shetty Cultural/ Event management/Creative Web Master Emmanual/ Sushant/Aishwarya/Smruti/Shifa/ Arun Kumar Nadar/Vinay Bansal/Pavan Priti More Fund –raising group Educational & Vocational support group Pranav Mukhi/Narendra Shetty/ Shalaka Mane/ Vishal Tamhankar/Inzamam/ Tushar Khillare/Sai Teja Priyanka Jadhav/ Sandeep Yadav WHAT WE DO? ▪ Create awareness about curability of childhood cancers We are grateful to all UGAM friends, donors and volunteers for their generous support. ▪ Help childhood cancer survivors to begin new life after cancer treatment and to make them We are grateful to Display House for technical support. aware that there can be and there is "normal life" after winning the battle with cancer ▪ Promote the importance of monitoring of monitoring the late effects of cancer therapies. ▪ Advocate against discrimination in society to cancer survivors. ▪ Highlight the need of public support for the cause of Childhood cancer survivors. ▪ Monthly UGAM Meeting last Sunday of every month at ICS HOW CAN YOU HELP ? Volunteer- Help in capacity building. Help find jobs for cancer survivors Advocacy- help in promoting the issues faced like denial of Insurance, refusal of jobs Financial assistance for educational program for survivors Financial assistance for the late effects of treatment eg: infertility, hepatitis treatment, diagnostic tests etc Victors of childhood cancer Victors of childhood cancer Front Inside 1 Dr.Purna Kurkure holistic concept. The approach and Ms Sheila Nair Rukaiya Joshi, Convenor UGAM philosophy of the fund is to "adopt" the Director General Professor - Chairperson Hon Director, eligible cancer survivors and hand hold them Indian Cancer Society CEdSS Cancer Survivorship through every stage until fully rehabilitated SPJIMR Programme, back into the society with potential to earn a Indian Cancer Society livelihood. More than 70 survivors have been UGAM is the beginning, helped through this activity & we are hopeful UGAM is doing a great with lots of hope, life Medical Director & j o b b y p r o v i d i n g Head Pediatric Oncology that continued support from WPP India will and happiness. The spirit make this effort sustainable in future. phenomenal support to SRCC Children's among UGAM children I want to wish each and every member of young cancer survivors is that of Hospital. UGAM the very best in life and may success both emotionally and financially making them “tu na rukega ga kabhi tu na jhukega kabhi, always be with them. Together they seem to unleash their inner strength and the will to kar sapath ,kar sapath, agnipaat ,agnipath” have an unseen power that gives them strength overcome all odds. The support group has also - Harivaneshrai Bachchan. Welcome to grand new venue, The Royal and courage to reach for the sky just like their provided many survivors as a safe place to Opera House, for celebration of 9 t h name suggests share their feelings and challenges making each other emotionally stronger. For the “Life must go on uninterrupted by the disease Anniversary of UGAM ! and pain and the childhood to be filled with Fly, fly, fly high against the sky, young childhood cancer survivors who are fun and learn as other children do, is the th So high I almost touch the sky. now blossoming into young adults and UGAM has entered in 10 year of its existence example set by UGAM children. Excellence & is ready to take its first flight. The Royal Thank you, thank you, pursuing their careers and vocational interests Thank God for you, the wind beneath my with enthusiasm, it is time to look back at the in academic performance unabated by the Opera House has been the wind beneath the difficulties is what the UGAM children have wings to facilitate this first flight. We are wings. journey with UGAM and contribute to giving Jeff Silbar and Larry Henley.... other younger joins the same experience. demonstrated. Seeing them all perform grateful to The Royal family of Gondal, His fearlessly, joyfully on the ICS founder’s day Highness, Maharaja Shri Jyotendrasinhji ,Her 2018 was a delight. I salute each and every Highness, Maharanisaheba Kumud Kumari, We at Indian Cancer Society, are constantly Dr. Vandana Dhamankar researching newer programmes for the the UGAM member for the amount of energy they Honorary Director Ashish Doshi &Curator exhibit individually and more so when they Asad Lalljee for hosting us in this grand Assistant Director, Ugamites to avail of and blossom into the best Cancer Survivorship they can aspire for. are together. On the occasion of 9th UGAM venue. day, 3rd June 2018, I wish them all greater UGAM & Survivorship vertical has taken success in years to come. Congratulation to baby steps forward & started After Congratulations to UGAM Mrs Anita Garware, the entire team at ICS for doing dedicated, Completion Of Treatment( ACT) clinics in on completing 9 successful Chairperson,Rehabilit compassionate work. collaboration with Department of Pediatric years of togetherness! ation Committee Oncology, Wadia Hospital for children & Sion It is heartening to see UGAM accept new SRCC Trust Hospital under PICASSO ( Partnership in Dr. Tapan Saikia challenges in their stride as they continue to Medical Oncologist, Cancer Survivorship Optimization) project 'Over the years I have grow. PAKH, Mumbai, which was launched in 2016 with generous These young victors are a symbol of hope for witnessed UGAM's donation from HES Infra Pvt Ltd. Others like success. It has given Member NMC, ICS, and the hundreds of Childhood cancer survivors Board of Directors and KEM Hospital, Asian Cancer Institute are in that look upon them for making their h o p e t o s o m a n y Senior Advisor, ACCF pipeline. Initial journey has been slow as we extremely difficult journey, bearable. were learning nuances of getting organized children and parents that the big 'C' does not (Assam Cancer Care They deserve special mention for their have to be crippling. To see the survivors towards a common goal of standardizing positive inputs and enthusiastic contribution Foundation) survivorship care .But we are confident & showcase their different talents at the annual to all the awareness and fund raising activities function, and hear their stories to overcome determined to take it beyond the limits of of Indian cancer society ! Mumbai at Pan India level. and be effective members of society, gives me The cultural traditions of the North-East States The need of the time is to spread the word the greatest joy. The mission of UGAM to empower survivors further! There is potential to achieve more, of India, are very rich - a blend of thousands of to get them back to main stream in society has cover more milestones, add more feathers to years of tribal faith, mingling with rest of India now come to fruition .Empowerment through My most sincere congratulations to the at a later era and now waking up to our caps! A stronger advocacy of the various medical consultants who helped them through education & vocational guidance to make issues of Childhood cancer survivors is the globalisation.
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