(EHDDI) Resource Guide for Audiologists
Washington State Early Hearing Detection, Diagnosis, and Intervention (EHDDI)
Resource Guide for Audiologists
DOH 344-074 Jan 2019 Dear Audiologists,
Welcome to the Washington State Department of Health Early Hearing Detection, Diagnosis, and Intervention (EHDDI) team! You have an important role in ensuring all infants are; • Screened for hearing loss by one month of age. • Identified as deaf or hard of hearing by three months of age. • Enrolled in early intervention if deaf or hard of hearing by six months of age.
We have created this Resource Guide specifically for you as a reference when serving patients birth to three years of age. Many of these resources are also available online at www.doh.wa.gov/earlyhearingloss. For the most current resources, please use the “website” links located in the table of contents.
We appreciate the time you take to send hearing screening and diagnostic results to the EHDDI program. Your timely response to our requests for information help us identify which children have not yet received recommended follow-up testing and other important services. Our coordinators then work with families, primary care providers, and referral coordinators to help connect these children with the care they need.
Sincerely,
Early Hearing Detection, Diagnosis, and Intervention (EHDDI) program Washington State Department of Health
For people with disabilities, this document is available on request in other formats. To submit a request, please call 1-800-525-0127 (TDD/TTY call 711). Contents
The EHDDI Process…………………………………………………………………………………………………5 Pathway to Services for Infants who are Deaf/Hard of Hearing……………………..6 Services for Children who are Deaf/Hard of Hearing………………………………………7 Washington State EHDDI Statistics…………………………………………………………………8 website Organization Assessment Tool to improve EHDDI Follow-up………..………………11 website
Best Practice Protocols………………………………………………………………………………………….13 Newborn Hearing Screening…………………………………………………………………………14 website Diagnostic Audiological Assessment……………………………………………………………..18 website Early Intervention (EI) for Children who are Deaf/Hard of Hearing……………....25 website
After identifying a child (age birth to three) who is Deaf/Hard of Hearing…………….28 Resource Referral Form for Children who are Deaf/Hard of Hearing……….…...29 website Frequently Asked Questions about EI Referrals…….………………………………………31 Primary Referral Contacts for EI Services by County……………………………………..33 website Washington Hands and Voices Guide By Your Side® Program Referral Form English………………………………………………………………………………………………34 website Spanish………..……………………………………………………………………………………35 website Resource Notebook for Families of Children who are Deaf/Hard of Hearing English………………………………………………………………………………………………36 website Spanish…..………………………………………………………………………………………………..website Russian…..………………………………………………………………………………………………..website Mandarin Chinese…………………………………………………………………………………….website Somali………………………………………………………………………………………………………website Vietnamese………………………………………………………………………………………………website
Brochures and Handouts for Families……………………………………………………………………37 Can Your Baby Hear? English...... 38 website Spanish...... 40 website Russian...... 42 website Your Baby Needs Another Hearing Test English...... 44 website Spanish...... 46 website If Your Baby Is Referred for a Hearing Evaluation English...... 48 website Spanish...... 50 website Russian...... 52 website Care Plan for Infants who are Deaf or Hard of Hearing…………………………………54 website Washington Hands and Voices Guide By Your Side® Program English………………………………………………………………………………………………56 website Spanish……………………………………………………………………………………………..57 website Center for Childhood Deafness and Hearing Loss………………………………………….58
Facility Directories………………………………………………………………………………………………..60 Newborn Hearing Screening Facilities in Western Washington.……………………61 website Newborn Hearing Screening Facilities in Central and Eastern Washington…..65 website Diagnostic Audiology Clinics for Infants………………………………………………………..67 website EHDI-PALs…………………………………………………………………………………………………….69 website
Reporting Results to the EHDDI Program……………………………………………………………..70 Hearing Loss Type and Reporting Guidelines……………………………………………….71 Sample Blue Hearing Screening Card……………………………………………………………73 How to Complete Blue Hearing Screen Cards……………………………………………….74 website Newborn Screening Supply Order Form……………………………………………………….75 website Diagnostic Hearing Evaluation Form…………………………………………………………….76 website HIPAA Privacy Rule and Public Health…………………………………………………………..77 Instructions for Registering for the EHDDI Web Application…………………………..... website Instructions for Using the EHDDI Web Application………………………….……………..... website The EHDDI Process
5
Developed by Representatives of Washington State Agencies: ABBREVIATIONS: Center for Childhood Deafness and Hearing Loss (CDHL) B-3 = Birth to three years of age www.wsdsonline.org CDHL Outreach: 855-342-1670 CDHL = Center for Childhood Deafness and Hearing Loss CSHCN = Children with Special Health Care Needs Department of Health (DOH) DHH = Deaf and Hard of Hearing www.doh.wa.gov EHDDI program: 206-418-5613 Genetics: 253-395-6742 DOH = Department of Health Early Support for Infants and Toddlers Program (ESIT) EHDDI=Early Hearing Detection Diagnosis & Intervention www.del.wa.gov/esit/ Family Health Hotline at 1-800-322-2588 EI = Early Intervention Office of the Deaf and Hard of Hearing (ODHH) ESIT = Early Support for Infants & Toddlers www.dshs.wa.gov/hrsa/odhh/ 800-422-7930 FRC = Family Resources Coordinator Washington Sensory Disabilities Services (WSDS) GBYS = Guide By Your SideTM www.wsdsonline.org 800-572-7000 IFSP = Individualized Family Service Plan ODHH = Office of Deaf/Hard of Hearing Dx With Hearing Loss PCP = Primary Care Provider Start WSDS = Washington Sensory Disabilities Services
Initial hearing screen Notify Does county/LLA have Pass before discharge from Refer parents, a well-developed plan FRC and CDHL develop an No interim IFSP and consider hospital PCP, DOH with identified B-3 DHH provider(s)? potential EI partners:
Notify Rescreen as outpatient parents, What local/regional B-3 services and other resources are by 1 month of age PCP, DOH Yes accessible/available? Arrange for support and/or consultation/TA from: Center for Childhood Deafness and Hearing Loss (CDHL) Notify Guide By Your Side (GBYS) ODHH (regional service centers for the Deaf/HH) Pass parents, Refer Proceed with IFSP Washington Sensory Disabilities Services (WSDS) PCP, DOH development with input from CDHL and/or B-3 DHH provider(s), GBYS, Notify other partners (see list at parents, Future goal: Refer selected families right) TM PCP, DOH to Guide By Your Side (GBYS) Proceed with IFSP development & implement EI services
Diagnostic audiologic evaluation by 3 months of age Consult CDHL for assistance with monitoring outcomes every 3-6 months. No hearing Identified as loss identified Deaf or Hard of Hearing
Notify parents, Audiologist refers family to ESIT via EHDDI link. PCP, DOH FRC fills out B-3 Sensory Disabilities Registry Form; sends via “submit” button/link. FRC refers to GBYS program if parents request. Offer family Initiate early intervention services by 6 months of genetic age, including B-3 DHH specialized services. counseling Rev. 02/01/16 6 Services for Children with Health Care Hearing Loss & Their Families Services, Monitoring, & System Evaluation Educational Services for Professionals $XGLRORJLVWV Serv ices for x 7HVWGLDJQRVHDQG UHIHU FKLOGUHQ x &RPPXQLFDWHZLWK (+'', SDUHQWVDQG3&3V &'+/ Children & Families x 0DNH UHIHUUDO WR )5& x 6WDWHZLGHFRQVXOWDWLRQIRUFKLOGUHQELUWKWR x ([SODLQKHDULQJORVV x 6XSSRUW)5&V(DUO\&KLOGKRRGSURYLGHUV &6+&1 x 3HUIRUPUHVFUHHQV DVQHHGHG VFKRROWHDPVDQGIDPLOLHV x +HOS IDPLOLHV ILQG UHVRXUFHV SUH.$GXOW x 'LVWULEXWH HGXFDWLRQPDWHULDOV WRSDUHQWVRI x 5HSUHVHQWDOOFRPPXQLFDWLRQPRGDOLWLHV x 3D\HU RI ODVW UHVRUW QHZO\GLDJQRVHGFKLOGUHQ LQFOXGLQJSDUHQWVRI (+'', (+'', QHZERUQV x 9LD 6HDWWOH &KLOGUHQ¶V+RVSLWDOWHDFKKRVSLWDO x 'HYHORS UHVRXUFHVIRUIDPLOLHVSURYLGHUV (+'', VFUHHQHUVDQGDXGLRORJLVWV x &RQQHFWIDPLOLHV ZLWK SURYLGHUVDXGLRORJLVWV x 7UDFNLQJ LQIRUP3&3V x 'HYHORS UHVRXUFHVIRUIDPLOLHVDQGSURYLGHUV )5& x 6XUYHLOODQFH (6,7 x )LQG UHVRXUFHVIRUIDPLOLHV x )ROORZXSZLWKPHGLFDOKRPH VSHFLDOLVWV x 7UDLQ )5&V x &RQQHFWIDPLOLHV WR VHUYLFHV (6,7 x &RQWUDFWZLWK/RFDO/HDG DJHQFLHVWRFRRUGLQDWH x +HOSGHYHORS,)63 x &ROOHFWLQIRUPDWLRQ GDWD DERXWLQIDQWVDQG ORFDO(,V\VWHP *%<670 UHVRXUFHVHDUO\LQWHUYHQWLRQ IURP)5&V )5& x +HOS SDUHQWV QDYLJDWHWKHV\VWHP DIWHUKHDULQJ +RVSLWDO 6FUHHQHUV x &RRUGLQDWHUHIHUUDOLQWR(,DQG,)63 ORVVGLDJQRVLV x 6FUHHQ LQIDQWV GHYHORSPHQW x ,QWHUIDFH ZLWK VFUHHQHUV )5& :6'6 (+'', x 5HSRUW UHFRUG VFUHHQLQJ UHVXOWV x &RRUGLQDWH(, VHUYLFHV x +HOS SDUHQWV OHDUQ WR DGYRFDWHIRUWKHLUIDPLO\ x 7HOOSDUHQWVUHVXOWVQH[W VWHSV 70 *%<6 2'++ 56&V x (QVXUH UHVFUHHQV DV QHHGHG x (GXFDWHWKHSXEOLF x (GXFDWHSDUHQWV WR DGYRFDWH IRU WKHLU FKLOG x 5HYLHZTXDOLW\DVVXUDQFHUHSRUWVIURP(+'', x (GXFDWHSURYLGHUVRQSDUHQW SHUVSHFWLYH x 7HDFK$PHULFDQ 6LJQ /DQJXDJH $6/ 3&3 x 3DUHQWWR3DUHQWVXSSRUW x /HQG DVVLVWLYHFRPPXQLFDWLRQ GHYLFHV x 7HOOSDUHQWVUHVXOWVQH[W VWHSV 2'++ 56&V x 3URYLGHWHFKQLFDO DVVLVWDQFHFRQVXOWDWLRQHJ x 5HVFUHHQ DV QHHGHG x 7HDFK$PHULFDQ 6LJQ /DQJXDJH $6/ EX\LQJDKHDULQJ DLG FRPPXQLFDWLRQVWUDWHJLHV x 5HIHU SDWLHQWV WR DXGLRORJLVW x 2IIHULQIRUPDWLRQ DQG UHIHUUDOV x 'LVWULEXWH VSHFLDOL]HG WHOHFRPPXQLFDWLRQ x 'LVFXVVULVN IDFWRUV x 7UDLQRQSURYLGLQJUHDVRQDEOH DFFRPPRGDWLRQV GHYLFHV x 9HULI\FRQILUPULVN IDFWRUV x /HQG DVVLVWLYHFRPPXQLFDWLRQ GHYLFHV :6'6 x 5HVSRQGWR(+'', IROORZXS :6'6 x +RVW ³)DPLO\ :HHNHQG´ x &RPPXQLFDWHZLWK (+'', x 7UDLQ '++SURIHVVLRQDOVDQG(,SURYLGHUV
x &'+/6WDWHZLGH&HQWHURQ x (,(DUO\,QWHUYHQWLRQ x )5&)DPLO\5HVRXUFHV &RRUGLQDWRU x 3&33ULPDU\&DUH3URYLGHU &KLOGKRRG'HDIQHVV +HDULQJ x (+'','HSDUWPHQWRI +HDOWK(DUO\ x *%<670*XLGH %\ 7 EHDDI Screening Statistics Goal: Screen all infants for hearing loss by one month of age. HOW WE’RE DOING: Overall success, with 96% screened by one month of age (99% screened overall). HOWEVER, some challenges remain: • Many infants born out-of-hospital did not get hearing screens. • 292 infants did not get needed follow-up screens. Infants Born Between 1/1/2017 and 12/31/2017 in Washington State* Total = 86,063 INITIAL SCREEN Pass Did Not Pass NICU Missed Declined 79,590 3,980 1,780 521 192 92% 5% 2% 1% <1% FOLLOW-UP SCREEN Pass Refer Lost† Other Pass Refer Lost† Other Pass Refer Lost† Other 3,189 551 201 39 1,579 101 23 77 384 31 68 38 80% 14% 5% 1% 89% 6% 1% 4% 74% 6% 13% 7% * Excludes many infants delivered by midwives at home or in a birth center. † Infant lost to follow-up or documentation. EHDDI Diagnostic and EI Statistics Goal: Infants with hearing loss are diagnosed by three month of age and receive early intervention (EI) services by six months of age. HOW WE’RE DOING: 154 infants were identified with hearing loss (2/1000 infants). HOWEVER, challenges remain: • Only 66% of infants were identified before three months of age. • 33 infants did not receive a diagnosis after being referred to audiology. • EHDDI program has not received EI status for 6 infants with hearing loss. Referred for Audiologic Evaluation 683 DIAGNOSTIC EVALUATION No Hearing Loss Hearing Loss Pending Other Lostǂ 404 154 58 34 33 59% 23% 8% 5% 5% ENROLLED IN PART C EI SERVICES Enrolled Declined Other Not Enrolled§ 98 32 18 6 64% 21% 12% 4% Date: 7/23/18 ǂ Infant did not receive a diagnostic evaluation or a conclusive diagnosis was not reported to the EHDDI program. § Infant not enrolled based on EHDDI program’s linkage and follow-up with Washington’s Part C program. INITIALStep1 SCREEN The initial newborn hearing screening performed before hospital discharge. Results of this hearing screen are generally reported to the EHDDI program on the pink hearing screen card associated with the Newborn Screening blood spot card. FOLLOW-UP SCREEN The hearing screening results reported after an initial missed, delayed (infants who are in the Neonatal Intensive Care Unit (NICU) for an extended time), or not passing hearing screen. These results are generally reported to the EHDDI program on blue rescreen cards. Initial and follow-up newborn hearing screens should be done before one month of age. Infants who do not pass their initial and follow-up hearing screening should be referred to a pediatric audiologist for a diagnostic evaluation. DIAGNOSTIC EVALUATION The diagnostic evaluation results. Infants who do not pass newborn hearing screening(s) should have an audiologic evaluation no later than three months of age. According to national estimates, 1-3 of every 1000 infants are born deaf or hard of hearing. Hearing Loss category includes unilateral and bilateral hearing losses of: • Slight, mild, moderate, severe, or profound degree • Sensorineural, conductive-permanent, mixed, neural, or unspecified type No Hearing Loss category includes infants who have no hearing loss or a fluctuating conductive loss ENROLLED IN PART C EI SERVICES The Part C Early Intervention (EI) enrollment status. Infants who are deaf or hard of hearing should be enrolled in EI services by six months of age. The EHDDI program obtains EI services information through its electronic linkage and follow-up with Washington State’s Part C program, the Early Support for Infants and Toddlers (ESIT) program. DEFINITION OF ‘OTHER’ CATEGORY Other category includes infants: •Whose parents declined further screening or diagnostic testing. •Who are deceased. •Whose case is still pending in the EHDDI system because we are waiting for pending hearing screening results. •Who were are unable to receive testing due to medical reasons. •Who are non-residents or moved out-of-state. •Who were not eligible for Part C services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o calculate the Improvement Area Score, divide the total number of self-ranking points in each section by the total number of possible points in that section. Do not include items rated with an X. For example, there are 16 total possible points in an improvement area if no items are scored as X and there are 12 possible if one item is scored as X. 11 )ROORZXS$IWHU1HZERUQ+HDULQJ6FUHHQLQJ$VVHVVPHQW7RRO Assessment Tool This tool is designed to help audiology practices identify opportunities to improve follow-up after newborn hearing screening, while creating efficiencies within the organization. The tool establishes four potential improvement areas: 1. Pre-Appointment Activities 2. Appointment Procedures 3. Reporting Results 4. Next Steps Following Diagnosis The strategies in each of these improvement areas have been shown to improve organizational processes and improve outcomes for infants with hearing loss and their families by promoting high quality care for infants, ensuring information is shared among providers, focusing on effective communication with families, and strengthening the EHDDI safety net. Audiologists play a key role in caring for children with hearing loss and ensuring they receive timely follow-up. The Assessment Tool enables you as a provider to consider the ideas that make the most sense for your setting given the context and constraints in your environment. How to Rate Your Organization Rate your organization's current practice for each of the improvement strategies listed using this rating scale: X - Not part of standard work in the practice and it is not feasible to add it to standard practice. 1 - Not part of standard work but it is feasible and the practice may be interested in testing ideas in this area now or in the future. 2 - Has been implemented but the practice is unsure how reliably infants/families are receiving this element of care. 3 - Part of standard work and the practice is confident that at least 50% of infants/families experience this; may occur frequently but may not be documented or not built into policy/procedure. 4 - Part of the policy/procedure and the practice is confident that at least 90% of infants/families experience this; documentation for this item can be found in the infant's medical record. 12 Best Practice Protocols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²:HOO%DE\1XUVHU\ )RUWKHLQLWLDOVFUHHQLQJXVHRQHRIWKHIROORZLQJ o (YRNHG2WRDFRXVWLF(PLVVLRQV (2$(2$(7(2$('32$( o $XGLWRU\%UDLQVWHP5HVSRQVH $%5$$%5%$(5$%$(5 RU o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¶V KHDG DQG ZLUHV DUH QRW FURVVHG 1RW DOO EDELHV ZLOO SDVV VR RQO\ PDNH WZR DWWHPSWV7KHVHWZRDWWHPSWVPDNHXSWKH³LQLWLDO´KHDULQJVFUHHQ ,IWKHLQIDQWGRHVQRWSDVVWKHILUVWVFUHHQLQJWKHQSHUIRUPDVHFRQGVFUHHQLQJLIWLPHDOORZV EHIRUHKRVSLWDOGLVFKDUJH,QHDFKVFUHHQLQJVHVVLRQPDNHRQO\WZRDWWHPSWVSHUHDU,IWKH ILUVWVFUHHQLQJXVHGDQ2$(XVHHLWKHUDQ2$(RU$%5IRUWKHVHFRQGVFUHHQLQJ LIWKHILUVW VFUHHQLQJXVHGDQ$%5XVHDQ$%5IRUWKHVHFRQGVFUHHQLQJ5HVFUHHQERWKHDUVHYHQLI RQO\RQHHDUGLGQRWSDVVLQLWLDOO\ 5HIHUWKHLQIDQWIRUDQRXWSDWLHQWUHVFUHHQ VWHS LI o 6KHGRHVQRWSDVVWKHLQLWLDOVFUHHQLQJRU o 5HVXOWVFDQQRWEHREWDLQHGLQRQHRUERWKHDUV ,IDQRXWSDWLHQWUHVFUHHQLQJLVQRWXWLOL]HGWKHQDUHIHUUDOWRGLDJQRVWLF HYDOXDWLRQ LV DSSURSULDWH6NLSWRVWHS ϭϰ E,QLWLDO+HDULQJ6FUHHQLQJ²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¶VHDUVWRFOHDURIUHVLGXDOELUWKLQJ GHEULV 7KHUHVFUHHQLQJVKRXOGRFFXUSULRUWRRQHPRQWKRIDJH 7KHELUWKKRVSLWDOW\SLFDOO\SHUIRUPVWKHUHVFUHHQRQDQRXWSDWLHQWEDVLV o ,I WKH LQLWLDO WHVW XVHG DQ 2$( UHVFUHHQ ZLWK 2WRDFRXVWLF (PLVVLRQV (2$( 2$( 7(2$('32$( $XGLWRU\%UDLQVWHP5HVSRQVH $%5$$%5 %$(5$%$(5 RUD FRPELQDWLRQRIERWKPHDVXUHV o ,IWKHLQLWLDOWHVWXVHG$%5UHVFUHHQZLWKRQO\$%5WRDYRLGPLVVLQJDQHXUDOKHDULQJ ORVV 5HVFUHHQERWKHDUVHYHQLIRQO\RQHHDUGLGQRWSDVVWKHLQLWLDOVFUHHQ 7KHUHVFUHHQLQJVKRXOGRFFXULQDVLQJOHYLVLWZLWKWZRDWWHPSWVPD[LPXPRQHDFKHDU7KHVH WZRDWWHPSWVPDNHXSWKH³UHVFUHHQ´ 5HIHUDQLQIDQWIRUDGLDJQRVWLFDXGLRORJLFDOHYDOXDWLRQLI o 6KHGRHVQRWSDVVWKHUHVFUHHQLQJRU o 5HVXOWVFDQQRWEHREWDLQHGLQRQHRUERWKHDUV 5HIHUUDOVIRU'LDJQRVWLF$XGLRORJLFDO(YDOXDWLRQ 5HIHU DQ LQIDQW IRU D GLDJQRVWLF DXGLRORJLFDO HYDOXDWLRQ DIWHU IDLOXUH WR SDVV WKH LQLWLDO KHDULQJ VFUHHQDQGWKHUHVFUHHQLQRQHRUERWKHDUV'RQRWFRQWLQXHWRVFUHHQIXUWKHU $QDXGLRORJLVWWUDLQHGLQLQIDQWGLDJQRVWLFDXGLRORJLFDOHYDOXDWLRQVKRXOGSHUIRUPWKHHYDOXDWLRQ 6HHWKH:DVKLQJWRQ6WDWH'HSDUWPHQWRI+HDOWK'LDJQRVWLF$XGLRORJ\%HVW3UDFWLFH*XLGHOLQHV IRUGHWDLOV 7KHLQIDQW¶VSULPDU\FDUHSK\VLFLDQPD\FRRUGLQDWHWKHUHIHUUDOIRUGLDJQRVWLFHYDOXDWLRQ 7KHGLDJQRVWLFHYDOXDWLRQVKRXOGRFFXUSULRUWRWKUHHPRQWKVRIDJH ϭϱ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¶VPHGLFDOUHFRUG &OHDUO\FRPPXQLFDWHVFUHHQLQJUHVXOWVWRWKHLQIDQW¶VSDUHQWVYHUEDOO\DQGLQZULWLQJ3URYLGH UHVXOWVDQGKHDULQJVFUHHQLQJLQIRUPDWLRQWRIDPLOLHVLQWKHLUSUHIHUUHGODQJXDJH &RPPXQLFDWHVFUHHQLQJUHVXOWVWRWKHLQIDQW¶VSULPDU\FDUHSURYLGHULQZULWLQJ 5HSRUW VFUHHQLQJ UHVXOWV WR WKH 'HSDUWPHQW RI +HDOWK '2+ RQ WKH QHZERUQ KHDULQJ VFUHHQLQJ FDUGV 6HQG UHVXOWV WR '2+ HYHU\ ZHHN )RU PRUH LQIRUPDWLRQ RQ UHSRUWLQJ VFUHHQLQJUHVXOWVWR'2+SOHDVHFRQWDFWWKHSURJUDPDWRU:$(+'', *LYH SDUHQWV ZULWWHQ LQIRUPDWLRQ DERXW ULVN IDFWRUV IRU KHDULQJ ORVV DQG W\SLFDO ODQJXDJH GHYHORSPHQW 4XDOLW\$VVXUDQFH :LWKLQWKUHHPRQWKVRILQLWLDWLQJDKHDULQJVFUHHQLQJSURJUDP o 0DLQWDLQDUHIHUUDOUDWHQRKLJKHUWKDQIRUWKHLQLWLDOVFUHHQLQJ o ,IWKH KRVSLWDOSHUIRUPV RXWSDWLHQW UHVFUHHQLQJPDLQWDLQ DUHIHUUDO UDWH QR KLJKHUWKDQ :LWKLQ VL[ PRQWKV RI SURJUDP LQLWLDWLRQ VFUHHQ D PLQLPXP RI RI LQIDQWV SULRU WR GLVFKDUJHRUEHIRUHRQHPRQWKRIDJH 7KHEHQFKPDUNIRUSHUFHQWRILQIDQWVORVWDIWHUQRWSDVVLQJWKHLQLWLDOVFUHHQVKRXOGEHRU OHVV ,QVWLWXWHDWUDFNLQJV\VWHPWRPRQLWRUUHIHUUDOUDWHVDQGWRDVVLVWLQWKHIROORZ XSRILQIDQWV UHIHUUHGIRUDUHVFUHHQRUGLDJQRVWLFHYDOXDWLRQ 6FUHHQHU5HTXLUHPHQWV 6FUHHQHUVVKRXOGKDYHDGHTXDWHVNLOOVLQVRRWKLQJDQGFDOPLQJQHZERUQV ϭϲ $QDXGLRORJLVWRUVRPHRQHVLPLODUO\WUDLQHGLQVFUHHQLQJWHFKQLTXHVVKRXOGWUDLQVFUHHQHUV 7UDLQVFUHHQHUVKRZWRFRPPXQLFDWHUHVXOWVWRIDPLOLHVLQDVHQVLWLYHDQGFXOWXUDOO\FRPSHWHQW PDQQHU.HHSODPLQDWHGH[DPSOHVRISURSHUKHDULQJVFUHHQLQJWHUPLQRORJ\DQGODQJXDJHZLWK WKHVFUHHQLQJHTXLSPHQWIRULPPHGLDWHUHIHUHQFH 7UDLQ VFUHHQHUV WR DQVZHU SDUHQWV¶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http://www.seattlechildrens.org/classes-community/ community-programs/newborn-hearing-screening/ )RUJHQHUDOLQIRUPDWLRQUHJDUGLQJQHZERUQKHDULQJVFUHHQLQJRUIROORZXSFRQWDFW (DUO\+HDULQJ'HWHFWLRQ'LDJQRVLVDQG,QWHUYHQWLRQ (+'', 3URJUDP 1(WK6WUHHW 6KRUHOLQH:$ 3KRQH 7ROOIUHH :$(+'', )D[ (PDLO (KGGL#GRKZDJRY ZZZGRKZDJRYHDUO\KHDULQJORVV Funding provided by Maternal and Child Health Bureau (MCHB) and Health Resources and Services Administration (HRSA). )RUSHUVRQVZLWKGLVDELOLWLHVWKLVGRFXPHQWLVDYDLODEOHRQUHTXHVWLQRWKHUIRUPDWV 7RVXEPLWDUHTXHVWSOHDVHFDOO 7''77<FDOO '2+)HE ϭϳ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x 2EWDLQLQJKRVSLWDOVFUHHQLQJUHVXOWVDQGDPHGLFDOKLVWRU\LQFOXGLQJWKHSUHVHQFHRIDQ\ULVNLQGLFDWRUV VHH$SSHQGL[$DWHQGRIWKLVGRFXPHQW x 3HUIRUPLQJDQRWRVFRSLFHYDOXDWLRQ ϭϴ $%53URFHGXUHV x $WWDFKHOHFWURGHVWRWKHEDE\XVLQJDFKDQQHOPRQWDJH KLJKIRUHKHDG QRQLQYHUWLQJ HDFKPDVWRLG SURFHVV LQYHUWLQJ ODWHUDOIRUHKHDG FRPPRQ x +DYHWKHFDUHJLYHUIHHGWKHLQIDQWLIQHFHVVDU\WRLQGXFHQDWXUDOVOHHS'LDJQRVWLF$%5UHTXLUHVD VOHHSLQJEDE\,QIDQWVXQGHUVL[PRQWKVRIDJHFDQRIWHQEHWHVWHGZKLOHVOHHSLQJQDWXUDOO\7KLVW\SLFDOO\ GRHVQRWZRUNZLWKROGHULQIDQWVZKRPD\QHHGWRVHHDSURYLGHUZKRFDQGRVHGDWLRQ x 3ULRULWL]HWKHWHVWVWLPXOXVRUGHUDQGOHYHOWRREWDLQWKHPRVWLQIRUPDWLRQLQWKHVKRUWHVWDPRXQWRIWLPH 7RREWDLQIUHTXHQF\VSHFLILFHVWLPDWHVRIKHDULQJWKUHVKROGVEHJLQZLWKWRQHEXUVWVWKRXJKLQVRPH FDVHVLWPD\KHOSWRVWDUWZLWKRUVZLWFKWRDFOLFN6HH$SSHQGL[%DWWKHHQGRIWKLVGRFXPHQWIRU VWLPXOXVDQGUHFRUGLQJSDUDPHWHUV x 3HUIRUPIUHTXHQF\VSHFLILF$%5XVLQJXQPDVNHG%ODFNPDQJDWHGWRQHEXUVWVSUHVHQWHGYLDLQVHUW HDUSKRQHV:KHQIHDVLEOHLQVHUWERWKHDUSKRQHVDWWKHVWDUWRIWHVWLQJWRPDNHVZLWFKLQJEHWZHHQHDUV HDV\ x %HJLQZLWKD+]WRQHEXUVWDWRUQHDUWKHPLQLPXPVWLPXOXVOHYHOUHTXLUHGWRFODVVLI\KHDULQJDV QRUPDO6HH$SSHQGL[%,IQRUHVSRQVHLVGHWHFWHGLQFUHDVHVWLPXOXVOHYHOE\G%,IUHVSRQVHLV SUHVHQWGHVFHQGLQG%VWHSVXQWLO\RXILQGWKHWKUHVKROG x 3URFHHGWRD+]WRQHEXUVW x ,IWLPHSHUPLWVFRQVLGHUREWDLQLQJUHVXOWVIRU+]DQG+]WRQHEXUVWVIRUHDFKHDU EDVHGRQ UHVXOWV x ,ILQGLFDWHGDQGIHDVLEOHSHUIRUPERQHFRQGXFWHG$%5RQHDFKHDUXVLQJDFOLFN7RQHEXUVWVDWDQG +]PD\EHXVHGDVWLPHSHUPLWV x 3HUIRUPFOLFNHYRNHG$%5LIWKHLQIDQWKDVHOHYDWHGRU³QRUHVSRQVH´RQWRQHEXUVW$%5 VHH 1HXURGLDJQRVWLFSDUDPHWHUVLQ$SSHQGL[% 2$(3URFHGXUHV ,QHYDOXDWLQJ2$(VSHUIRUPWKHIROORZLQJSURFHGXUHVLQFRQMXQFWLRQZLWK$%5DVDFURVVFKHFNIRUGHWHUPLQLQJ RXWHUKDLUFHOOIXQFWLRQ2$(VDUHQRWDVXEVWLWXWHIRU$%51RWHWKDWWKHVHSURFHGXUHVIRUGLDJQRVWLFDVVHVVPHQW GLIIHUIURPSDUDPHWHUVIRU2$(VFUHHQLQJEHFDXVHWKHDXGLRORJLVWGHWHUPLQHVWKHSURWRFRODQGLQWHUSUHWVWKH UHVXOWV LHWKHUHVXOWLVQRWD³SDVV´RU³UHIHU´ 6HH'2+GRFXPHQW³3URWRFROIRU1HZERUQ+HDULQJ6FUHHQLQJ´ IRXQGDWKWWSV ZZZGRKZDJRY3RUWDOV'RFXPHQWV3XEVB(+'',1%6FUQ3URWRSGI͕IRUVFUHHQLQJ SDUDPHWHUV(LWKHURUERWKRIWKHIROORZLQJ2$(WHVWVPD\EHXVHG 7UDQVLHQW(YRNHG2WRDFRXVWLF(PLVVLRQV 7(2$( x &RPSOHWHDWOHDVWUXQV x 6WDUWWHVWLQJDWG%SH63/DQGJRXSWRRUGRZQWRDIWHUWKDWGHSHQGLQJRQLQLWLDOUHVXOWV x )RU7(2$(VWREHFRQVLGHUHGSUHVHQWDQGQRUPDOWKHUHVSRQVHPXVWKDYHDPLQLPXPRIDG%615 VLJQDOWRQRLVHUDWLR DQGUHSURGXFLELOLW\DWDQ\SDUWLFXODUIUHTXHQF\EDQG,QDGGLWLRQWKHRYHUDOO UHVSRQVHDPSOLWXGHVKRXOGIDOOZLWKLQWKHUDQJHW\SLFDOIRUQRUPDOKHDULQJFKLOGUHQRIFRPSDUDEOHDJH 'LVWRUWLRQ3URGXFW(YRNHG2WRDFRXVWLF(PLVVLRQV '32$( x 6WLPXOXVOHYHOV/ G%63// G%63/RU/ G%63// G%63/ x '32$(GDWDLQWHUSUHWDWLRQLVYHU\HTXLSPHQWVSHFLILF7KHPLQLPXP615QHHGHGIRUDUHVSRQVHWREH FRQVLGHUHGSUHVHQWGHSHQGVRQKRZWKHHTXLSPHQWPDQXIDFWXUHUFDOFXODWHVWKHQRLVHIORRU x ,QJHQHUDO'32$(VDUHFRQVLGHUHGWREHSUHVHQWDQGQRUPDOLIWKHUHVSRQVH615LV!WRG%DWWKH PDMRULW\RIIUHTXHQF\EDQGVWHVWHGDQGWKHRYHUDOOUHVSRQVHDPSOLWXGHIDOOVZLWKLQWKHUDQJHW\SLFDOIRU QRUPDOKHDULQJFKLOGUHQRIFRPSDUDEOHDJH ϭϵ ,PPLWWDQFH3URFHGXUHV 2EWDLQDFRXVWLFLPPLWWDQFHPHDVXUHV XVLQJD+]SUREHWRQHLIWKHLQIDQWLVVL[PRQWKVRU\RXQJHU ,QFRUSRUDWHDQLPPLWWDQFHEDWWHU\ZLWKFDXWLRQGXHWRWKHGLIILFXOW\LQFODVVLI\LQJW\PSDQRPHWULFPHDVXUHV QXPHULFDOO\²W\PSDQRJUDPVREWDLQHGZLWKD+]SUREHWRQHUHTXLUHYLVXDOLQWHUSUHWDWLRQ7KHDFRXVWLFUHIOH[ FDQEHDXVHIXOSDUWRIWKHDXGLRORJLFWHVWEDWWHU\LQLQIDQWV$SUHVHQWUHIOH[DGGVVXSSRUWIRUGHWHUPLQLQJQRUPDO PLGGOHHDUIXQFWLRQDQGSURYLGHVDFURVVFKHFNIRU$%5PHDVXUHPHQWV,WLVDOVRLPSRUWDQWWRXVHDKLJK IUHTXHQF\SUREHWRPHDVXUHWKHDFRXVWLFUHIOH[LQLQIDQWVOHVVWKDQVL[PRQWKVRIDJH)RULQIDQWVROGHUWKDQIRXU PRQWKVWKHLPPLWWDQFHEDWWHU\EHFRPHVPRUHUHOLDEOHDQGYDOLG)RUDOODJHVREWDLQDW\PSDQRJUDPZLWKD +]SUREHWRQHWRHVWLPDWHHDUFDQDOYROXPH 5HIHUUDOV x ,QIDQWVLGHQWLILHGDVGHDIRUKDUGRIKHDULQJVKRXOGEHILWZLWKDSSURSULDWHDPSOLILFDWLRQLIWKHIDPLO\ FKRRVHVWKLVRSWLRQDQGVHHDQ(17IRUPHGLFDOVXUJLFDOFDUH$)DPLO\5HVRXUFHV&RRUGLQDWRU )5& FDQKHOSIDPLOLHVHQUROOFKLOGUHQLQWRWKH(DUO\6XSSRUWIRU,QIDQWVDQG7RGGOHUV (6,7 3URJUDPDQG(DUO\ ,QWHUYHQWLRQVHUYLFHV&KLOGUHQVKRXOGUHFHLYHUHJXODUDXGLRORJLFIROORZXSHYHU\WKUHHWRVL[PRQWKVXQWLO WKUHH\HDUVRIDJH x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¶VQHHGVDQGGHVLUHVODQJXDJHDQGFXOWXUDO QHHGVDQGWKHLUDELOLW\WRLQWHUSUHWWKHLQIRUPDWLRQ$XGLRORJLVWVVKRXOGJLYHIDPLOLHVLQIRUPDWLRQWKDW DGGUHVVHVEXWLVQRWOLPLWHGWRWKHIROORZLQJVXEMHFWDUHDVUHODWHGWRHGXFDWLQJSDUHQWVDQGIDPLOLHV DERXWKHDULQJORVVDQGLWVLPSDFWV D 7KH)5&¶VUROHVFRSHRIUHVSRQVLELOLW\DQGKRZWRDFFHVVWKHVHVHUYLFHV E +RZWRDFFHVVSDUHQWIDPLO\VXSSRUWJURXSVDQGVXSSRUWQHWZRUNVLQWKHGHDIKDUGRIKHDULQJ FRPPXQLWLHV7KH:DVKLQJWRQ6WDWH5HVRXUFH1RWHERRNIRU)DPLOLHVRI&KLOGUHQZKRDUH'HDIRU +DUGRI+HDULQJLVDJXLGHIRUIDPLOLHVRIFKLOGUHQZLWKKHDULQJORVV ZZZGRKZDJRY3RUWDOV'RFXPHQWV3XEVB(+'',5HVRXUFH*XLGH(QJSGI͘ F )XWXUHGLDJQRVWLFIROORZXSDQGUHIHUUDOWRHDUO\LQWHUYHQWLRQVHUYLFHV ,IWKHIDPLO\ZDQWVWRXVH)5&VHUYLFHVJHWWKHSDUHQWV¶SHUPLVVLRQWRFRQWDFWWKH)5&WRIDFLOLWDWHIROORZ XS ϮϬ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¶V VHFXUHZHEEDVHGDSSOLFDWLRQRUE\ID[LQJWKHUHVXOWVWRWKH(+'',SURJUDPXVLQJWKH³(+'','LDJQRVWLF (YDOXDWLRQ)RUP´3OHDVHGRQRWVHQGSULQWRXWVRIWHVWUHVXOWVZLWKRXWLQWHUSUHWLYHLQIRUPDWLRQ 7KHGLDJQRVWLFLQIRUPDWLRQUHSRUWHGVKRXOGLQFOXGH EXWLVQRWOLPLWHGWR WKHIROORZLQJ x 3DWLHQWLQIRUPDWLRQ SDWLHQWQDPHGDWHRIELUWKPRWKHU¶VQDPH x 'DWHRIHYDOXDWLRQ x 1DPHRIDXGLRORJLVWSHUIRUPLQJWKHHYDOXDWLRQ x 5LVNIDFWRUVDVVRFLDWHGZLWKKHDULQJORVVSUHVHQW x 5HVXOWVRIWHVW V SHUIRUPHG H[ LPPLWWDQFH2$($%5 x +HDULQJORVVSUHVHQW±\HVQRRUXQGHWHUPLQHG x ,IKHDULQJORVVLVSUHVHQWWKHW\SHDQGGHJUHHRIKHDULQJORVV x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Ϯϭ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ϮϮ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Ϯϯ %LEOLRJUDSK\ %ULWLVK&ROXPELD(DUO\+HDULQJ3URJUDP %&(+3 'LDJQRVWLF$XGLRORJ\$GYLVRU\*URXS 'LDJQRVWLF$XGLRORJ\ 3URWRFROKWWS ZZZFRXUVHVDXGLRVSHHFKXEFFDKDSODEEFHKSBGLDJQRVWLFDXGLRORJ\SURWRFROVGHFSGI *RUJD01RUWRQ66LQLQJHU<HWDO 'LVWRUWLRQ3URGXFW2WRDFRXVWLF(PLVVLRQVGXULQJWKH SHULQDWDOSHULRGEar and Hearing 21 +DOO-: 1HZ+DQGERRNIRU$XGLWRU\(YRNHG5HVSRQVHV%RVWRQ 3HDUVRQ(GXFDWLRQ +DOO-:,,,6ZDQHSRHO': 2EMHFWLYH$VVHVVPHQWRI+HDULQJ6DQ'LHJR 3OXUDO3XEOLVKLQJ -RLQW&RPPLWWHHRQ,QIDQW+HDULQJ 0DUJROLV5+%DVV5LQJGDKO6+DQNV:'+ROWH/=DSDOD'$ 7\PSDQRPHWU\LQ 1HZERUQ,QIDQWV²N+]1RUPVJournal of the American Academy of Audiology 1DWLRQDO&HQWHUIRU+HDULQJ$VVHVVPHQWDQG0DQDJHPHQW 7KH1&+$0(%RRN $5HVRXUFH *XLGHIRU(DUO\+HDULQJ'HWHFWLRQDQG,QWHUYHQWLRQ (+', KWWS LQIDQWKHDULQJRUJHKGLHERRNLQGH[KWPO 1RUWRQ6*RUJD0:LGHQ-HWDO 7UDQVLHQWHYRNHGRWRDFRXVWLFHPLVVLRQVGXULQJWKH SHULQDWDOSHULRGEar and Hearing 21 2¶1HDO-)LQLW]R7/LWWPDQ7 1HRQDWDO+HDULQJ6FUHHQLQJ )ROORZXSDQG'LDJQRVLV,Q 5RHVHUHWDO HGV $XGLRORJ\ 'LDJQRVLV SS 1HZ 6HHZDOG57KDUSH$0 HGV &RPSUHKHQVLYH+DQGERRNRI3HGLDWULF$XGLRORJ\6DQ'LHJR 3OXUDO3XEOLVKLQJ Funding provided by Maternal and Child Health Bureau (MCHB) and Health Resources and Services Administration (HRSA). '2+)HE (DUO\+HDULQJ'HWHFWLRQ'LDJQRVLVDQG,QWHUYHQWLRQ (+'', 3URJUDP 1(WK6WUHHW 6KRUHOLQH:$ 3KRQH 7ROOIUHH :$(+'', (KGGL#GRKZDJRY ZZZGRKZDJRYHDUO\KHDULQJORVV )RUSHUVRQVZLWKGLVDELOLWLHVWKLVGRFXPHQWLVDYDLODEOHRQUHTXHVWLQRWKHUIRUPDWV7RVXEPLWDUHTXHVW SOHDVHFDOO 7''77<FDOO Ϯϰ Washington State Department of Health Best Practice Guidelines in Early Intervention for Children who are Deaf or Hard of Hearing Overview All infants should be screened for hearing loss by one month of age, receive diagnostic audiological assessment by three months of age if necessary, and be enrolled in early intervention services by six months of age if the child is identified as deaf or hard of hearing (D/HH). Studies have shown that children who are D/HH who receive intervention prior to six months of age often meet or exceed the receptive and expressive language scores of their hearing peers. This protocol was developed by a workgroup comprised of parents, early intervention specialists, audiologists, members of the Deaf community, and Washington State Department of Health (DOH) staff, with extensive knowledge and expertise in early intervention services for children who are D/HH. Terms Early Intervention (EI) in Washington State are services and supports designed to meet the developmental needs of a child 0-3 with a delay or disability and the needs of their family related to enhancing the child’s development. The term deaf is used to describe persons who have a hearing loss greater than 90 dB HL. It also may be used to refer to those who consider themselves part of the Deaf community or culture and choose to communicate using American Sign Language (ASL). Hard of Hearing (H/H) is the term used to describe those with mild to severe hearing loss. The Individualized Family Service Plan (IFSP) is an ongoing planning process and document designed to meet the changing needs of children and families enrolled in early intervention. Federal guidelines require that the initial IFSP be completed within 45 days of referral. American Sign Language (ASL) is a visual language with unique form, function and social usage. It is the language of the Deaf community and the third most common language in the United States. Unbiased means free from all prejudice or favoritism. Relationship-Focused Early Intervention is concerned with the prevention of developmental problems and the promotion of social-emotional well-being. With prompt support, family and children develop mutual engagement and elaborate satisfying, barrier-free 2-way communication early in life. A Family Resources Coordinator (FRC) assists families with children 0-3, in accessing resources from the point of identification of a concern through the development of the IFSP, early intervention services and transition to preschool special education or other services. Assistive Technology may include relay telephone services, telecommunication devices, closed- Ϯϱ captioning, hearing dogs, visual and/or technical devices. 1) Early Intervention (EI) for children who are D/HH is family focused: x Families have access to EI services provided by specialist(s) with specific training in working with birth-to-three year olds who are D/HH, in addition to other specialists that may be needed, as identified in the Individualized Family Service Plan (IFSP) (e.g., physical therapists, speech/language pathologists). x Families may access these specialized services via a variety of supports, including outreach by specialized program staff, outreach by other families, and distance technology. x Services will be delivered and resources made available in the parent’s primary language. x Services are provided and resources are available in the family’s chosen method of communication and educational approach including ASL, Signed Exact English (SEE), Auditory- Oral, Auditory Verbal, Cued-Speech, etc. x During the early period of information gathering and decision-making, families are assisted by a person who can present and discuss unbiased information about communication options, respects family choices, and allows parents to make an informed final decision. x Care focuses on family strengths and follows the family’s vision and priorities. x Services include all members of the family and their circle of support, as requested by the family. x Care is developmentally appropriate for the child. x Families, EI providers, and the child’s medical home collaborate to provide the child who is D/HH complete access to communication with the important people in their lives (“relationship-focused EI”). x Families choose where to meet with EI providers, their Family Resources Coordinator (FRC) and other providers. x Brothers and sisters of children who are D/HH have access to age appropriate information, support, and instruction. x Children who are D/HH and their hearing siblings have opportunities to interact socially with other siblings of D/HH children, young children, youth, and adults who are D/HH. 2) EI providers and other professionals working with this population have specialized expertise and training: x FRCs with initial contact with families have specialized training in effective practices for infants/toddlers who are D/HH and related family issues. They provide support and information in an unbiased manner. x EI providers working with D/HH children and their families receive initial and ongoing training in D/HH education, child development, early childhood education, and technology. x EI specialists who are trained to work with children who are D/HH, including consultants who are deaf, participate in outreach to, and consultation with, other EI providers and medical professionals. 3) Families with D/HH children enrolled in EI receive appropriate information, evaluation, services, and support. Components include: x How to link with county/state Part C system, including an FRC and other EI services, to ensure access to funding a variety of services, including other EI services that may be needed by the child (e.g., physical therapy, vision services). x Information about family networking and support services, including support in dealing with the emotional impact of diagnosis (i.e. parent support groups, individual and family counseling). Ϯϲ x Information regarding communication options for D/HH individuals, Deaf culture, and available specialized services and assistive technology. x Support and careful assistance in exploring and selecting a communication approach of their choice. x Variety of support models for children/families in learning the communication approach of their choice. x Ongoing audiological services and monitoring of hearing aids/cochlear implants if requested by parents. x Assistance in helping the child learn to effectively wear and/or use assistive devices, and to develop his/her residual hearing if requested by parents. x Opportunities to gain support and information from a variety of individuals who are D/HH, and other parents of children who are D/HH (e.g. parent mentoring program). x Information specifically for families relocating to, or moving out of, Washington State. 4) IFSP Meetings and Ongoing Evaluation of Child: x Participants in the IFSP meetings will include, but are not limited to, family members, EI provider specializing in D/HH, audiologist, FRC, any other healthcare/service provider requested by the family. x The EI team administers and coordinates regular assessments appropriate for children who are D/HH to document progress of child toward developmental milestones and IFSP outcomes. 5) Other Services: x Infants identified as D/HH are referred to an Ear Nose and Throat (ENT) for evaluation and appropriate medical and/or surgical care if indicated. x Families are informed of genetic services, and if requested, provided with a referral to genetic evaluation within three months of identification. 6) References Joint Committee on Infant Hearing (2007). Year 2007 Position Statement: Principles and guidelines for early hearing detection and intervention programs. Pediatrics 120 (4), 898-921. Or http://jcih.org/. For general information regarding newborn hearing screening or follow-up, contact: Early Hearing Detection, Diagnosis and Intervention (EHDDI) Program 1610 NE 150th Street Shoreline, WA 98155 Phone: 206-418-5613 Toll-free: 1-888-WA-EHDDI Fax: 206-364-0074 Email: [email protected] www.doh.wa.gov/earlyhearingloss/ Funding provided by Maternal and Child Health Bureau (MCHB) and Health Resources Services Administration (HRSA). For persons with disabilities, this document is available on request in other formats. To submit a request, please call 1-800-525-0127 (TDD/TTY call 711). DOH 344-019 Mar 2018 Ϯϳ After Identifying a Child (age birth to three) Who is Deaf/Hard of Hearing 2ϴ 67$7(2):$6+,1*721 '(3$570(172)+($/7+ (DUO\+HDULQJ'HWHFWLRQ'LDJQRVLVDQG,QWHUYHQWLRQ3URJUDP 1(WK6WUHHWÂ6KRUHOLQH:DVKLQJWRQ 3KRQH7ROO)UHH:$(+'', )D[ 5HVRXUFH5HIHUUDO)RUPIRU&KLOGUHQZKRDUH'HDIRU+DUGRI+HDULQJ +RZWRFRPSOHWHWKLVIRUP 'LVFXVVWKHUHVRXUFHVRQSDJHZLWKWKHFKLOG¶VSDUHQWRUJXDUGLDQ 6HOHFWZKLFKUHVRXUFHVWKH\ZRXOGOLNHWREHUHIHUUHGWR &RPSOHWHWKHFRQWDFWLQIRUPDWLRQVHFWLRQDQGKDYHWKHFKLOG¶VSDUHQWRUJXDUGLDQVLJQWKH DXWKRUL]DWLRQEHORZ )D[FRPSOHWHGIRUPVWRWKH(+'',SURJUDPDW 7KH(+'',SURJUDPZLOOIRUZDUG WKHUHIHUUDOWRWKHRUJDQL]DWLRQ V VHOHFWHGDQGPDLOWKHIDPLO\DUHVRXUFHQRWHERRNLIUHTXHVWHG &KLOG¶V1DPH '2% 3DUHQW*XDUGLDQ1DPH 0DLOLQJ$GGUHVV &LW\ 6WDWH =LS 3KRQH1XPEHU (PDLO 3ULPDU\/DQJXDJH6SRNHQ 5HIHUULQJ3URYLGHU &OLQLF %\VLJQLQJEHORZ,DXWKRUL]HWKH:DVKLQJWRQ6WDWH'HSDUWPHQWRI+HDOWK(DUO\+HDULQJ'HWHFWLRQ 'LDJQRVLVDQG,QWHUYHQWLRQ (+'', SURJUDPWRVKDUHP\FRQWDFWLQIRUPDWLRQDQGP\FKLOG¶VQDPHDQG GDWHRIELUWKZLWKWKHRUJDQL]DWLRQVVHOHFWHGRQWKHQH[WSDJHIRUWKHSXUSRVHRIREWDLQLQJUHVRXUFHVRU VHUYLFHV 3DUHQW*XDUGLDQ6LJQDWXUH BBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBB'DWH BBBBBBBBBBBBBBB 5HODWLRQVKLSWR&KLOG BBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBB 2ϵ 3OHDVHFKHFNWKHER[QH[WWRWKHUHVRXUFHV\RXZRXOGOLNHWRUHFHLYH (DUO\6XSSRUWIRU,QIDQWVDQG7RGGOHUV (6,73URJUDP ±3URYLGHVHDUO\ LQWHUYHQWLRQVHUYLFHVIRUHOLJLEOHFKLOGUHQ DJHVELUWKWR )DPLO\UHVRXUFHV FRRUGLQDWLRQGHYHORSPHQWDOVFUHHQLQJDQGHYDOXDWLRQVWRGHWHUPLQH HOLJLELOLW\DUHSURYLGHGDWQRFRVWWRIDPLOLHV)DPLOLHVZLOOEHFRQWDFWHGE\ WKHLUORFDO)DPLO\5HVRXUFHV&RRUGLQDWRU )5& &HQWHUIRUDeaf and Hard of Hearing Youth &'+Y ±2IIHUV VWDWHZLGHVHUYLFHVIRUFKLOGUHQZKRDUHGHDIDQGKDUGRIKHDULQJDQGWKHLU IDPLOLHVWHDFKHUVRIWKHGHDIVFKRROGLVWULFWVHGXFDWRUVVHUYLQJWKHGHDI DQGHGXFDWLRQDOLQWHUSUHWHUV 7HOHSKRQH1XPEHU )D[1XPEHU +DQGV 9RLFHV±*XLGH%\ 7HOHSKRQH1XPEHU )D[1XPEHU 5HVRXUFH1RWHERRNIRU)DPLOLHVRI&KLOGUHQ:KRDUH'HDIRU+DUGRI +HDULQJ±$IUHHQRWHERRNWKDWLQFOXGHVVWRULHVIURPRWKHUIDPLOLHV LQIRUPDWLRQDERXWKHDULQJDQGDVVLVWLYHWHFKQRORJ\FRPPXQLFDWLRQRSWLRQV DQGHDUO\LQWHUYHQWLRQVHUYLFHV ,I\RXKDYHDQ\TXHVWLRQVSOHDVHFRQWDFWXVDW 7KDQN\RXIRU\RXUWLPH :DVKLQJWRQ6WDWH(DUO\+HDULQJ'HWHFWLRQ'LDJQRVLVDQG,QWHUYHQWLRQ (+'', 3URJUDP '2+-XO\ ϯϬ Frequently Asked Questions About Early Intervention Referrals for Children Who are Deaf or Hard of Hearing Who provides early intervention services? The Early Support for Infants and Toddlers (ESIT) program coordinates a statewide system of early intervention services and provides assistance in accessing those services through a county Family Resources Coordinator (FRC). Early intervention services are available to eligible children ages birth to 3 years of age. How do I make a referral? Fax, call, or secure email the Lead FRC for the county in which the child lives. See the Early Support for Infants and Toddlers (ESIT) Contact Directory to locate the child’s lead FRC. Refer through the EHDDI program o Complete the Resource Referrals for Children who are Deaf or Hard of Hearing Form and fax it to the EHDDI program at 206-364-0074. o If you use the EHDDI Web Application to report results online, enter an FRC referral in the child’s case. See page 18 of our EHDDI Web Application Guide for instructions on how to make a referral through the EHDDI web application. What will the FRC do when they receive the referral? Arrange in-depth developmental screening or evaluation to verify or rule out the need for early intervention services; Explain early intervention services available and help develop an Individualized Family Service Plan (IFSP), if needed; Access other community programs such as parent support, respite, and transportation; and Identify funding resources for early intervention services. When should I refer the family to the FRC? The Individuals with Disabilities Act (IDEA) Part C requires primary referral sources, such as audiologists, to refer a child identified as deaf or hard of hearing to the Part C program “as soon as possible but in no case more than seven days” after identification. What if I haven’t confirmed the hearing loss with repeat testing yet? Refer to the FRC as soon as you suspect a permanent hearing loss. The family can start working with the FRC before receiving the follow-up hearing evaluation(s) or other medical evaluations. Should I refer a child with fluctuating but persistent conductive hearing loss? Yes, refer a child with a fluctuating conductive hearing loss that has persisted in the first few months of life and remains for 6 months. This includes children with cleft palate or Trisomy 21 who are at very high risk for chronic fluctuating middle ear effusion. What if the child is already enrolled in early intervention services? You still need to notify the child’s FRC about a suspected hearing loss. The FRC can assist the family in accessing additional services available for children who are deaf or hard of hearing. ϯ1 Do I need the family’s permission to send a referral to the FRC? Yes, obtain and document parental consent before sending the referral to the FRC. What if the child doesn’t qualify for services? Permanent hearing loss of any degree or configuration, even mild and unilateral, can put a child at risk for developmental delays. If an FRC determines that a child is not eligible for early intervention services through the ESIT program, the FRC can provide the family with information about periodic developmental, hearing, and speech monitoring and referrals to other support services. What is the cost to the family for services provided by the FRC? Family resources coordination, developmental screening, and evaluations to determine eligibility are provided at no cost to families. The FRC will work with the family to find funding resources for early intervention services if their child is found to be eligible. What if the family declines the referral to early intervention services? If a family declines the referral for early intervention services, document this in your records and when reporting results to the EHDDI program. Washington State EHDDI Program Phone: 206-418-5613 Toll Free: 1-888-WAEHDDI (1-888-923-4334) Fax: 206-364-0074 Email: [email protected] Website: www.doh.wa.gov/earlyhearingloss For persons with disabilities, this document is available upon request in other formats. To submit a request, please call 1-800-525-0127 (TTY call 711). DOH 344-075 Feb. 2018 ϯ2 In Washington, referrals to early intervention services are provided through Local Lead Agencies within each county. Family Resources Coordinators (FRCs) help families access the early intervention services their child may need. They also help families get a free developmental screening and suggest other community resources. You can used the Early Support for Infants and Toddlers (ESIT) Contact Directory to locate the primary referral contact for the county in which the child lives. For the current Contact Directory please click here. ϯ3 :DVKLQJWRQ+DQGV 9RLFHV*XLGH%\ 3OHDVH)D[RU0DLOWR $GGUHVV 1HZPDUNHW6W6XLWH%HOOLQJKDP:$ )$; ,DXWKRUL]H:$6WDWH&RXQW\HDUO\ $WWQ *XLGH%\ 3URYLGHUQRWHVBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBB /HIWHDUBBBBBBBBBBBBBB5LJKWHDUBBBBBBBBBBBBBBBBBBBBBBBBB$GGWLQIRBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBB &RQILUPDWLRQRIUHIHUUDOUHTXHVWHG" 5HIHUUHGE\BBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBB BBB 3ϰ 0DQRV\YRFHVGH:DVKLQJWRQ 3URJUDPDGH*XtDDVXODGR 1XHVWURVDVJXtDVHQWUHQDGRVDVRIUHFHQDSR\RLPSDUFLDO\HPRFLRQDO\ UHFXUVRVDODVIDPLOLDVTXHWLHQHQQLxRVFRQSpUGLGDDXGLWLYD 3RUIDYRUHQYtHSRUFRUUHRRSRUID[D 'LUHFFLyQ 1(WK6WUHHW%R[ 6HDWWOH:$ )$; +RUDSUHIHULGDSDUDFRQWDFWDUPHBBBBBBBBBBBBBBBBBBBBBBBBBBB Fecha______Consentimiento verbal____ 3URYLGHUQRWHVBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBB /HIWHDUBBBBBBBBBBBBBB5LJKW HDUBBBBBBBBBBBBBBBBBBBBBBBBB $GGW LQIRBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBB &RQILUPDWLRQRIUHIHUUDOUHTXHVWHG" 5HIHUUHGE\BBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBB BBB Printed notebooks are available in English and Spanish upon request. To have a supply of notebooks shipped to your clinic, please contact the EHDDI program at 206-418-5613 or [email protected]. Brochures and Handouts For Families 3ϳ Some things a baby with Where can I get more Information? normal speech, language, $BMMUIF8BTIJOHUPO4UBUF%FQBSUNFOUPG)FBMUI and hearing should be at 206-418-5613, or visit us online: able to do. www.doh.wa.gov/earlyhearingloss Your baby’s hearing test results Birth to 3 Months Can Your t #MJOLTPSKVNQTXIFOUIFSFJTBTVEEFO loud sound :PVS#BCZT/BNF t 2VJFUTPSTNJMFTXIFOTQPLFOUP t .BLFTTPVOETMJLFiPIIwBOEiBIIw Baby Date and Time 4 to 6 Months t -PPLTGPSTPVOETXJUIFZFT #JSUIJOH'BDJMJUZ t 6TFTNBOZTPVOET TRVFBMT BOEDIVDLMFT Hear? t .BLFTEJêFSFOUTPVOETXIFOFYDJUFEPS 5FTUFST/BNF angry 7 Months to 1 Year 3JHIU&BS 1"44 -FGU&BS 1"44 Your Baby’s 3&'&3 3&'&3 t 5VSOTIFBEUPXBSEMPVETPVOET First Hearing Test t 6OEFSTUBOETiOPOPwPSiCZFCZFw If your baby did not pass the hearing test, the t #BCCMFT GPSFYBNQMFiCBCB wiNBNNB w appointment below has been made for your baby’s iHBHBw next hearing test. t 3FQFBUTTJNQMFXPSETBOETPVOETZPVNBLF t $PSSFDUMZVTFTiNBNBwPSwEBEBw t 3FTQPOETUPTJOHJOHPSNVTJD Date and Time t 1PJOUTUPGBWPSJUFUPZTBOEPCKFDUTXIFO BTLFE 1MBDF If you have questions about your baby’s hearing or this list, talk with your 1IPOF/VNCFS baby’s doctor. Please call if you need to reschedule. Information in this brochure is provided by the DOH 344-036 May 2014 )FBMUI3FTPVSDFTBOE4FSWJDFT"ENJOJTUSBUJPO BOEUIF8BTIJOHUPO4UBUF%FQBSUNFOUPG)FBMUI For persons with disabilities, this document is available on request in other formats. To submit a request, please call 1-800-525-0127 (TDD/TTY 711). 3ϴ What should I know about newborn hearing testing? t ɨFUFTUJTTBGF QBJOMFTTBOEDBOCFEPOFJOBCPVU 10–20 minutes. t .PTUCBCJFTTMFFQUISPVHIUIFUFTU t "OJOGBOUXJUIBIFBSJOHMPTTNBZDSZPSBQQFBS UPSFTQPOEUPTPVOETKVTUMJLFCBCJFTXJUIOPSNBM hearing. Only a hearing test can tell you if your Why should my baby’s hearing baby has a hearing loss. be tested? t .PTUCBCJFTDBOIFBSXFMMBUCJSUI CVUBGFXEP Can a newborn baby pass the not. hearing test and still have a t "MMCBCJFTBSFUFTUFEUPNBLFTVSFUIFZBSFIFBSJOH normally. hearing loss? t *UJTJNQPSUBOUUPëOEIFBSJOHMPTTBTTPPOBT t :FT TPNFCBCJFTIFBSXFMMFOPVHIUPQBTTUIFëSTU possible. If hearing loss is found early, it is easier test, but lose their hearing later because of: for babies to learn. o 4PNFJMMOFTTFT t ɨFSFBSFNBOZXBZTUPIFMQZPVSCBCZSJHIU o 4PNFNFEJDJOFT away if hearing loss is found. o 4PNFJOKVSJFT o "GBNJMZIJTUPSZPGIFBSJOHMPTT Make sure your baby’s hearing is tested t 8BUDIGPSTJHOTPGIFBSJOHMPTTBTZPVSCBCZHSPXT before you leave the hospital. Why do some babies not pass t 6TFUIFMJTUPOUIFCBDLDPWFSBTBHVJEF the hearing test? t 4PNFCBCJFTNBZOFFEBOPUIFSUFTUCFDBVTF – Fluid in the ear o /PJTFJOUIFUFTUSPPN o #BCZXBTNPWJOHBMPU o #BCZIBTIFBSJOHMPTT t .PTUCBCJFTXIPOFFEBOPUIFSUFTUIBWFOPSNBM IFBSJOH4PNFXJMMIBWFIFBSJOHMPTT If your baby does not pass the hearing test, make sure he or she is tested again as soon as possible. 3ϵ Algunas cosas que un bebé ¿Dónde puedo obtener más con habla, lenguaje y audición información? normal puede hacer. Llame al Departamento de Salud del Estado de Washington al 206-418-5613, o visítenos en línea: Del nacimiento a los 3 meses ZZZGRKZDJRYHDUO\KHDULQJORVV • Parpadea o salta cuando existe un ruido alto ¿Puede repentino Los resultados de la prueba de audición de su bebé • Se tranquiliza o sonríe cuando se le habla • Emite sonidos como “ohh” y “ahh” Nombre de su bebé oír su 4 a 6 meses Fecha y hora • Busca los sonidos con los ojos • Emite muchos sonidos, chilla y ríe • Emite diferentes sonidos cuando se Centro de maternidad bebé? entusiasma o enfada Nombre de la persona que realiza la prueba 7 meses a 1 año • Gira la cabeza hacia los sonidos altos Oído La primera prueba q PASÓ Oído q PASÓ • Entiende “no-no” o “adiós” derecho: q REFERIDO izquierdo:q REFERIDO • Balbucea, por ejemplo “baba”, “mama”, de audición de su “gaga” Si su bebé no pasó la prueba de audición, se ha bebé • Repite las palabras y los sonidos simples que hecho la siguiente cita para la próxima prueba de su usted hace bebé. • Usa correctamente “mama” o “papa” • Reacciona a las canciones o la música • Apunta a su juguete u objeto favorito cuando Fecha y hora se le pide Lugar Si tiene preguntas acerca de la audición de su bebé o de esta lista, hable con el médico de su bebé. Número de teléfono Por favor llame si necesita hacer una nueva cita. La información en este folleto es proporcionada por la Administración de Servicios y Recursos de Salud y el '2+ 0D\ 6SDQLVK Departamento de Salud del Estado de Washington. 3DUD SHUVRQDV GLVFDSDFLWDGDV HVWH GRFXPHQWR HVWi GLVSRQLEOH D VX SHGLGR HQ RWURV IRUPDWRV 3DUD KDFHU VX SHGLGR OODPH DO 7''77< OODPH DO ϰϬ ¿Qué debería saber yo acerca de las pruebas de audición en los recién nacidos? • La prueba es segura, no causa dolor y se la puede realizar en unos 10 a 20 minutos. • La mayoría de los bebés duermen durante la prueba. • Un infante con pérdida de audición puede llorar o parecer que responde a sonidos, al igual que los ¿Por qué se debería probar la audición bebés con audición normal. Únicamente una prueba de audición puede determinar si su bebé tiene una de mi bebé? pérdida de audición. • La mayoría de los bebés pueden oír bien al nacer, sin embargo, algunos no. ¿Puede un recién nacido pasar la • Se hace una prueba a todos los bebés para asegurar prueba de audición y aún así tener que están oyendo normalmente. una pérdida de audición? • El estudio de audición del recién nacido es una forma de determinar si un bebé tiene pérdida de • Sí, algunos bebés escuchan lo suÀcientemente bien audición. como para pasar la primera prueba, pero perder su • Es importante descubrir la pérdida de audición tan audición debido a: pronto como sea posible. Si se descubre la pérdida – Alguna enfermedad de audición de forma temprana es más fácil que los – Algunos medicamentos bebés aprendan. – Algunas lesiones • Existen muchas formas para ayudar inmediatamente – Antecedentes familiares de pérdida de audición a su bebé si se descubre la pérdida de audición. ¿Por qué no pasan la prueba de • Esté pendiente de los síntomas de pérdida de audición Asegúrese de que le hagan una prueba de audición algunos bebés? conforme su bebé crece. audición a su bebé antes de salir del hospital. • Use la lista que se encuentra en la contracubierta como • Algunos bebés podrían necesitar otra prueba una guía. debido a: – Líquido en el oído – Ruido en la sala de examen – El bebé se estaba moviendo mucho – El bebé tiene pérdida de audición • La mayoría de los bebés que necesitan otra prueba tiene audición normal. Algunos tendrán pérdida de audición. Si su bebé no pasa la prueba de audición, asegúrese de que él o ella tenga otra prueba tan pronto como sea posible. 4ϭ Ребенок с нормальным Где можно получить дополнительную речевым, языковым и информацию? слуховым развитием: Звоните в Департамент здравоохранения штата Вашингтон (Washington State Department of Health) по Рождение - 3 месяца телефону 206-418-5613 или смотрите наш веб-сайт по адресу: www.doh.wa.gov/FBSMZIFBSJOHMPTT Может • Моргает или вздрагивает при внезапных громких звуках Результаты проверки слуха вашего ребенка • Успокаивается или улыбается, когда с ли ваш ним заговаривают • Издает звуки, такие как “oоо” и “aаа” Имя вашего ребенка ребенок С 4 до 6 месяцев Дата и время • Смотрит в направлении звука • Издает различные звуки, пищит и хихикает Родильное учреждение слышать? • Издает разные звуки, когда радуется или сердится Имя сотрудника, проводившего проверку С 7 месяцев до 1 года Правое ухо: Первая q ПРОШЕЛ Левое ухо: q ПРОШЕЛ • Поворачивает голову в направлении q НАПРАВИТЬ q НАПРАВИТЬ громких звуков проверка слуха • Понимает “нельзя-нельзя” или “пока-пока” Если результаты проверки слуха вашего ребенка • Лепечет, например, “баба,” “мама,” “гага” оказались неудовлетворительными, указанный ниже вашего ребенка • Повторяет за вами простые слова и звуки прием назначен для проведения следующей проверки слуха вашего ребенка. • Правильно использует слова “мама” или ”дада” • Реагирует на пение или музыку Дата и время • Показывает на любимые игрушки или предметы, если его просят Место Если у вас есть вопросы по поводу слуха Номер телефона вашего ребенка или этого перечня, обращайтесь к врачу вашего ребенка. Пожалуйста, позвоните, если вам нужно перенести прием. Информацию для этой брошюры предоставили «Health Resources and Services Administration (Администрация по вопросам медицинских ресурсов и услуг)» и Washington State Department of Health (Отдел здравоохранения штата Вашингтон). '2+ 0D\ 5XVVLDQ Лица, имеющие инвалидность, могут получить этот документ в другом формате по просьбе. Чтобы подать просьбу, пожалуйста, звоните по телефону 1-800-525-0127 (TDD/TTY для лиц с нарушениями слуха/речи ). 4Ϯ Что мне надо знать о проверке слуха новорожденных? • Проверка является безопасной, безболезненной и может быть проведена в течение 10–20 минут. • Большинство младенцев спит во время проведения проверки. • Новорожденный с потерей слуха может плакать или производить впечатление, что он(а) реагирует на звуки так же, как ребенок с нормальным слухом. Почему надо проверять слух Только проверка слуха может выявить потерю слуха вашего ребенка? у младенца. • Хотя у большинства младенцев при рождении Может ли так случиться, что хороший слух, некоторые не могут нормально результат проверки слуха у слышать. • Проверку делают всем младенцам, чтобы новорожденного ребенка был удостовериться, что они нормально слышат. удовлетворительным, а у ребенка • Проверка слуха новорожденных позволяет при этом наблюдается потеря слуха? выяснить, нет ли у ребенка потери слуха. • Важно выявить потерю слуха как можно раньше. • Да, у некоторых младенцев слух достаточный Если потеря слуха обнаружена в раннем возрасте, для удовлетворительного прохождения первой детям будет легче учиться. проверки, но позже они теряют слух как следствие: • Если у ребенка обнаружили потерю слуха, – Некоторых болезней существует много способов для оказания ребенку – Некоторых лекарств безотлагательной помощи. – Некоторых травм – Потеря слуха является семейным заболеванием Почему результаты проверки слуха • Следите, не появились ли признаки потери слуха по Позаботьтесь, чтобы вашему ребенку некоторых младенцев оказываются мере роста ребенка. проверили слух до выписки из больницы. неудовлетворительными? • Используйте перечень на последней странице в качестве руководства. • Некоторым младенцам может понадобиться еще одна проверка, в связи с тем, что: – У ребенка была жидкость в ухе – В кабинете, где проводилась проверка, было шумно – Ребенок много двигался – У ребенка потеря слуха • У большинства младенцев, которым понадобилась еще одна проверка слуха, отмечается нормальный слух. У некоторых может быть обнаружена потеря слуха. Если результат проверки слуха вашего ребенка оказался неудовлетворительным, позаботьтесь о том, чтобы в кратчайший срок была проведена еще одна проверка. 4ϯ Where Can I Get More Information? &DOOWKH:DVKLQJWRQ6WDWH'HSDUWPHQWRI+HDOWKDW Typical speech, language WROOIUHHDW RU YLVLWXVRQOLQHDW and hearing milestones www.doh.wa.gov/EarlyHearingLoss Even if your baby passes the screening, it is still possible he or Your baby’s first hearing screen results she can lose hearing later. It is im- portant to look for these mile- BBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBB x /RRNVIRUVRXQGVZLWKH\HV Your baby did not pass the hearing screen. x 8VHVPDQ\VRXQGVVTXHDOVDQG The appointment below is for your baby’s FKXFNOHV next hearing screen. x 0DNHVGLIIHUHQWVRXQGVZKHQH[ FLWHGRUDQJU\ BBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBB 'DWHDQG7LPH 7 Months to 1 Year BBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBB x 7XUQVKHDGWRZDUGORXGVRXQGV 3ODFH x 8QGHUVWDQGV³QRQR´RU³E\HE\H´ BBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBB x 5HVSRQGVWRVLQJLQJRUPXVLF 3KRQH1XPEHU x %DEEOHVIRUH[DPSOH³EDED´ ³PDPD´DQG³JDJD´ Please call if you need to reschedule. x 5HSHDWVVLPSOHZRUGVDQG VRXQGV\RXPDNH x &RUUHFWO\XVHV³PDPD´RU³GDGD´ x 3RLQWVWRIDYRULWHWR\VDQGREMHFWV ZKHQDVNHG '2+-XQH )RUSHUVRQVZLWKGLVDELOLWLHVWKLVGRFXPHQWLVDYDLODEOHRQUH If you have questions about your TXHVWLQRWKHUIRUPDWV7RVXEPLWDUHTXHVWSOHDVHFDOO baby’s hearing, talk to your 7''77<FDOO baby’s doctor. ,QIRUPDWLRQLQWKLVEURFKXUHLVSURYLGHGE\WKH+HDOWK 5HVRXUFHVDQG6HUYLFHV$GPLQLVWUDWLRQDQGWKH:DVKLQJWRQ 6WDWH'HSDUWPHQWRI+HDOWK 4ϰ What does a “Did not Pass” or Why does my baby need “Refer” Result Mean? another hearing test? x 7KHVHUHVXOWVPHDQ\RXUEDE\QHHGV 6RPHEDELHVPD\QHHGDQRWKHUWHVW DQRWKHUKHDULQJVFUHHQ EHFDXVH x )OXLGLQWKHHDU x 0RVWEDELHVFDQKHDUZHOODWELUWK EXWDIHZGRQRW$UHVFUHHQLVWKH x %DE\ZDVPRYLQJRUFU\LQJGXULQJ RQO\ZD\WRNQRZLI\RXUEDE\LVDW WKHILUVWWHVW ULVNIRUDKHDULQJORVV x 7RRQRLV\LQWKHURRPGXULQJWKHILUVW x ,WLVLPSRUWDQWWRILQGKHDULQJORVVDV WHVW VRRQDVSRVVLEOH,IKHDULQJORVVLV How do I prepare for my baby’s IRXQGHDUO\LWLVHDVLHUIRUEDELHVWR x %DE\PD\KDYHDKHDULQJORVV second hearing test? OHDUQWRFRPPXQLFDWHZLWK\RX /LNHWKHILUVWWHVWLQWKHKRVSLWDOWKHUH x 7KHUHDUHPDQ\ZD\VWRKHOS\RXU Make sure your baby’s hearing is VFUHHQLVTXLFNSDLQOHVVDQGEHVWGRQH EDE\ULJKWDZD\LIKHDULQJORVVLV rescreened before one month of ZKHQ\RXUEDE\LVDVOHHS IRXQG age. x 7U\QRWWROHW\RXUEDE\QDSEHIRUHWKH DSSRLQWPHQW Even though most babies pass x )HHG\RXUEDE\MXVWEHIRUHWHVWLQJ their second screen, it is VERY x %ULQJDEODQNHWH[WUDGLDSHUVFKDQJH important to get the second test RIFORWKHVDQGIRUPXOD done. This is the best way to be x 6FKHGXOHWKHDSSRLQWPHQWIRUDWLPH SURE about your baby’s hearing. ZKHQ\RXUEDE\LVOLNHO\WRVOHHS DO NOT wait until later to have your baby’s hearing rescreened. x ,WFDQEHKDUGHUWRVFUHHQ\RXUED E\¶VKHDULQJDIWHURQHPRQWKRIDJH x ,I\RXUEDE\LVWRRROGWRKDYHDUH VFUHHQDW\RXUORFDOKRVSLWDODVN \RXUEDE\¶VGRFWRUDERXWRWKHU VFUHHQLQJIDFLOLWLHVQHDUE\ 4ϱ ¿Dónde puedo obtener más información? &RPXQtTXHVHFRQHO:DVKLQJWRQ6WDWH'HSDUWPHQWRI Etapas habituales del habla, +HDOWK 'HSDUWDPHQWRGH6DOXGGHO(VWDGRGH:DVKLQJ WRQ DORGHPDQHUDJUDWXLWDDO el lenguaje y la audición. RYLVLWHQXHVWURVLWLRZHE Incluso si el bebé pasa el exa- www.doh.wa.gov/EarlyHearingLoss men, es posible que pueda Los primeros resultados auditivos del perder la audición más adelante. examen de su bebé Es importante identificar estas etapas. BBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBB 1RPEUHGHOEHEp Desde el nacimiento hasta los 3 meses BBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBB )HFKD\KRUD x 3DUSDGHDRVDOWDFXDQGRHVFXFKDXQ VRQLGRIXHUWHUHSHQWLQR BBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBB x (VFXFKDRVRQUtHFXDQGRDOJXLHQOH /XJDU KDEOD x +DFHVRQLGRVFRPR³RKK´\³DKK´ Método de Oído Oído evaluación derecho izquierdo Desde los 4 hasta los 6 meses 2$( 3$6Ï 3$6Ï x %XVFDVRQLGRVFRQORVRMRV $%5 '(5,9$5 '(5,9$5 x +DFHPXFKRVVRQLGRVFKLOODR VRQUtH Su bebé no pasó el examen auditivo. A con- x +DFHGLIHUHQWHVVRQLGRVFXDQGRHVWi tinuación se encuentra la cita para el sigui- HQWXVLDVPDGRRHQRMDGR ente examen auditivo de su bebé. Desde los 7 meses hasta el 1er año BBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBB )HFKD\KRUD x *LUDODFDEH]DFXDQGRHVFXFKD VRQLGRVIXHUWHV BBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBB x (QWLHQGHFXDQGROHGLFHQ³QR´ROR /XJDU VDOXGDQ BBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBBB x 5HVSRQGHDORVFDQWRVRDODP~VLFD 1~PHURGHWHOpIRQR x %DOEXFHDSDODEUDVFRPRSRUHMHPSOR ³EDED´³PDPD´\³JDJD´ Llámenos si necesita reprogramar su cita. x 5HSLWHSDODEUDV\VRQLGRVVLPSOHV TXHXVWHGHPLWH x 8VDGHPDQHUDFRUUHFWDODVSDODEUDV ³PDPi´R³SDSi´ x 6HxDODREMHWRV\MXJXHWHVSUHIHULGRV '2+-XQLR FXDQGROHSUHJXQWDQ /DVSHUVRQDVFRQGLVFDSDFLGDGHVSXHGHQVROLFLWDUHVWHGRFX PHQWRHQRWURVIRUPDWRV3DUDSUHVHQWDUXQDVROLFLWXGOODPHDO Si tiene dudas acerca de la audición de 7''77< su bebé, hable con el médico que lo /D+HDOWK5HVRXUFHVDQG6HUYLFHV$GPLQLVWUDWLRQ $GPLQLVWUDFLyQGH5HFXUVRV\6HUYLFLRVSDUDOD6DOXG \HO atiende. :DVKLQJWRQ6WDWH'HSDUWPHQWRI+HDOWKEULQGDURQODLQIRUPDFLyQ SDUDHVWHIROOHWR 4ϲ ¿Qué significa que el bebé “no pasó el ¿Por qué mi bebé necesita otro ex- examen”? ¿Y que necesita “ser deriva- amen de audición? do”? $OJXQRVEHEpVSXHGHQQHFHVLWDURWURH[D x (VWRVUHVXOWDGRVTXLHUHQGHFLUTXHVX PHQSRUORVVLJXLHQWHVPRWLYRV EHEpQHFHVLWDRWURH[DPHQDXGLWLYR x 7HQtDQIOXLGRVHQORVRtGRV x /DPD\RUtDGHORVEHEpVSXHGHQRtUELHQ x 6HPRYLHURQROORUDURQGXUDQWHHOSULPHU GHVGHHOQDFLPLHQWRSHURRWURVSRFRV H[DPHQ QR2WURH[DPHQHVOD~QLFDIRUPDGH FRQRFHUVLVXEHEpWLHQHULHVJRGH x +DEtDPXFKRUXLGRHQODKDELWDFLyQGX SHUGHUODDXGLFLyQ UDQWHHOSULPHUH[DPHQ x (VLPSRUWDQWHGHVFXEULUODSpUGLGDGH ¿Cómo me preparo para el segundo x (VSRVLEOHTXHWHQJDXQDSpUGLGDGH DXGLFLyQORDQWHVSRVLEOH6LVHGHVFXEUH DXGLFLyQ examen de mi bebé? ODSpUGLGDGHDXGLFLyQGHPDQHUDWHP SUDQDVHUiPiVIiFLOTXHHOEHEpDSUHQ $OLJXDOTXHHOSULPHUH[DPHQHQHOKRVSLWDO GDDFRPXQLFDUVHFRQXVWHG Asegúrese de que se le realice al bebé HOVHJXQGRHVUiSLGRVLQGRORU\VHUHDOL]D un segundo examen de audición antes PHMRUVLHOEHEpHVWiGRUPLGR x ([LVWHQPXFKDVPDQHUDVGHD\XGDUDVX del primer mes de edad. x 7UDWHGHTXHHOEHEpQRVHGXHUPDDQWHV EHEpUiSLGDPHQWHVLVHGHWHFWDODSp GHODFLWD UGLGDGHDXGLFLyQ x $OLPHQWHDOEHEpDQWHVGHOH[DPHQ Si bien la mayoría de los bebés pa- san el primer examen auditivo, es x 7UDLJDXQDPDQWDSDxDOHVH[WUDVURSD MUY importante que se les haga un SDUDFDPELDUOR\OHFKHGHIyUPXOD segundo examen. Esta es la mejor x 3URJUDPHODFLWDHQXQKRUDULRHQTXHVHD manera de ASEGURARSE de que SUREDEOHTXHHOEHEpVHGXHUPD su bebé escucha. NO demore mucho tiempo en llevar a su bebé al segundo examen de audición. x 3XHGHVHUPiVGLItFLOH[DPLQDUODDXGL FLyQGHVXEHEpOXHJRGHOSULPHUPHVGH HGDG x 6LVXEHEp\DSDVyODHGDGPi[LPDSDUD XQVHJXQGRH[DPHQHQVXKRVSLWDOORFDO FRQVXOWHFRQHOPpGLFRTXHORDWLHQGH VREUHRWUDVLQVWDODFLRQHVFHUFDQDVSDUD UHDOL]DUHOH[DPHQ 4ϳ What if my baby does have a How can I get more information be- hearing loss? fore my appointment with the Pediatric Audiologist? If your baby does have a hearing loss, If Your Baby there are many things that can be done Your baby’s doctor can answer many of the to help. Hearing aids, cochlear implants, questions you may have. Is Referred for a sign language and early intervention pro- grams are all options. Professionals and Call the Washington State Department of Hearing Evaluation other parents with experiences like Health at 1-888-WAEHDDI or email yours will be there to support you and [email protected] answer questions you have when you are deciding what is best for your family. The following websites are also an excel- lent source of information, support, and A local Family Resources Coordinator answers to questions you may have: (FRC) will help you find services and sup- port. If you have concerns about your www.babyhearing.org baby's hearing, or other concerns about www.doh.wa.gov/EarlyHearingLoss/Family your child's development, call the Family Health Hotline at 1-800-322-2588. Appointment information for your The sooner you find out if your baby has a hearing loss, the sooner you can begin baby’s hearing evaluation: to help your baby learn to listen and de- velop language. Research shows that ______most children with hearing loss who are Date and Time enrolled in early intervention before 6 months of age, have good speech, lan- ______guage, and listening skills. Place (Audiology Clinic) ______Phone Number No baby is too young Please call if you need to reschedule. for a hearing test… For persons with disabilities, this document is available on request in other formats. To submit a request, please call 1- DOH 344-034 August 2012 800-525-0127 (TDD/TTY call 711). 4ϴ Why does my baby’s hearing need to Continue to talk with your baby as you nor- be re-tested? mally would. Babies respond to the special speech and facial expressions that we re- The results of the hearing test show that serve just for them. Lots of eye contact, your baby may be at risk for hearing loss. touch, hugs and kisses help babies learn how However, more testing is needed to confirm to interact. whether or not your baby does have a hear- ing loss. About 3 in 1000 babies are born Does this mean my baby is deaf? with a hearing loss. Not necessarily. There are a few reasons How urgent is it to get re-tested? why a baby may need further testing. The most common reasons are: It is important to find hearing problems as x Middle ear fluid or infection early as possible because a hearing loss can x A blocked ear canal prevent your baby from learning speech and x A permanent hearing loss language. The sooner you find out about a hearing loss, the sooner you can help your If your baby has been referred for further baby. hearing testing, it is also important to un- derstand that there are different degrees of hearing loss. A hearing loss can range from mild to profound (deaf). What can I do to get ready for my baby’s hearing evaluation? Babies with the most severe degrees of Your baby needs to be quiet and calm during hearing loss will have difficulty hearing the hearing test. To make sure your baby is speech and even very loud sounds. Babies resting during the appointment: with the mildest degrees of hearing loss will respond to louder sounds. However, they x Try not to let your baby nap before the will have difficulty hearing the softest appointment. What should I do now? sounds of speech. You should make an appointment with a Pedi- x Feed your baby just before testing. The Pediatric Audiologist will do a complete atric Audiologist (a hearing specialist) for a x Bring a blanket, extra diapers, change of hearing evaluation for your baby. If there is hearing test as soon as possible. Any of the clothes, and formula. a hearing loss, your Audiologist will work Audiologists on the list given to you can pro- with you to find out the degree of your vide these services. Your baby’s doctor can x Try to schedule the appointment for a baby’s hearing loss. help you with any referrals that are needed time when your baby is likely to sleep. for your appointment. 4ϵ ¿Qué sucede si mi bebé tiene una ¿Cómo puedo obtener mayor pérdida auditiva? información antes de mi cita con el audiólogo pediatra? Si su bebé tiene una prueba auditiva, Si se refiere a su existen varias cosas que se pueden hacer El médico de su bebé puede responder para ayudar. Las opciones son audífonos, a muchas de las preguntas que usted bebé para una implantes cocleares, lenguaje de señas y pueda tener. programas de intervención temprana. Los Evaluación Auditiva profesionales y otros padres con Los siguientes sitios Web son también experiencias como la suya, estarán una excelente fuente de información y disponibles para prestarle apoyo y apoyo, y responde a las preguntas que responder a las preguntas que usted usted pueda tener: pudiera tener cuando esté decidiendo lo que es mejor para su familia. www.babyhearing.org www.doh.wa.gov/EarlyHearingLoss Un Coordinador de Recursos Familiares (FRC, por sus siglas en inglés) le ayudará a encontrar servicios y apoyo. Si tiene Información acerca de la cita para la preocupaciones acerca de la audición de su evaluación auditiva de su bebé: bebé, u otras preocupaciones acerca del ______desarrollo de su niño, llame a la línea Fecha y Hora informativa de Family Health al 1-800-322-2588. ______Lugar (Clínica Audiológica) Cuanto más pronto descubra usted que su bebé tiene una pérdida auditiva, más ______pronto podrá comenzar a ayudar a su bebé Número de teléfono a aprender, escuchar y desarrollar su lenguaje. La investigación muestra que la Por favor llame si necesita reprogramar mayoría de los niños con pérdida auditiva la cita. que son inscritos en intervención temprana antes de los 6 meses de edad, tienen Para personas discapacitadas, este documento está Ningún bebé es buenas destrezas del habla, de lenguaje y disponible a su pedido en otros formatos. Para hacer su para escuchar. pedido, llame al 1-800-525-0127 (TDD/TTY llame al 711). demasiado pequeño para una prueba auditiva ... La información en este folleto es proporcionada por Seattle Children’s Hospital y el Departamento de Salud del Estado ϱϬ DOH 344-034 May 2014 de Washington. ¿Por qué se necesita hacer una nueva Continúe hablando con su bebé como lo haría prueba auditiva a mi bebé? normalmente. Los bebés responden al lenguaje especial y las expresiones faciales que Los resultados de la prueba auditiva muestran nosotros reservamos solo para ellos. Mucho que su bebé podría estar en riesgo de pérdida contacto visual, tocarlos, darles abrazos y auditiva. Sin embargo, se necesitan más besos ayudan a los bebés a aprender sobre pruebas para confirmar si su bebé tiene o no cómo interactuar. una pérdida auditiva. Alrededor de 3 en 1000 ¿Significa esto que mi bebé es sordo? bebés nacen con pérdida auditiva. No necesariamente. Existen algunas razones ¿Cuán urgente es que se haga una por las que un bebé podría necesitar pruebas nueva prueba? adicionales. Las razones más comunes son: x Infección o líquido en el oído medio Es importante encontrar los problemas x Un canal auditivo bloqueado auditivos lo más temprano posible ya que una x Una pérdida auditiva permanente pérdida auditiva puede evitar que su bebé aprenda a hablar y el lenguaje. Cuanto más Si su bebé ha sido referido para pruebas pronto se entere usted acerca de la pérdida auditivas adicionales, es también importante auditiva, más pronto podrá ayudar a su bebé. entender que existen diferentes grados de pérdida auditiva. Una pérdida auditiva puede variar de leve a profunda (sordera). ¿Qué debo hacer para prepararme para Los bebés con los grados más severos de la evaluación auditiva de mi bebé? pérdida auditiva tendrán dificultad para Su bebé necesita estar tranquilo y calmado escuchar el lenguaje e inclusive los ruidos muy durante la prueba auditiva. Para asegurarse de altos. Los bebés con los grados más leves de que su bebé esté descansando durante la cita: pérdida auditiva responderán a los sonidos más altos. Sin embargo, tendrán dificultad para ¿Qué debo hacer ahora? x Trate de que su bebé no tome una siesta escuchar los sonidos más suaves del habla. antes de la cita. Usted debe hacer una cita con un Audiólogo x Alimente a su bebé inmediatamente antes El Audiólogo Pediatra hará una evaluación Pediatra (un especialista en audición) para una de la prueba. auditiva completa para su bebé. Si existe una prueba auditiva tan pronto como sea posible. x Traiga una manta/frazada, pañales pérdida auditiva, su Audiólogo trabajará con Cualquiera de los audiólogos en la lista que se adicionales, una muda de ropa, y leche usted para determinar el grado de la pérdida le dio puede proporcionar estos servicios. El maternizada (fórmula). auditiva de su bebé. médico de su bebé puede ayudarle con x Intente programar la cita para una hora en cualquier referencia que usted necesite para que su bebé probablemente duerma. su cita. 5ϭ ǻȖȒ ȉȕȏȌ ȗ ȐȒȉȇȒ ȔȉȅȉȑȎȄ ȓȒȖȉȔȣ ǮȄȎ Ȑȑȉ ȓȒȏȗțȌȖȠ ȈȒȓȒȏȑȌȖȉȏȠȑȗȢ ȕȏȗșȄ? ȌȑȘȒȔȐȄȚȌȢ ȈȒ ȓȔȌȉȐȄ ȗ ȈȉȖȕȎȒȇȒ ȄȗȈȌȒȏȒȇȄ? ǩȕȏȌ ȗ ȆȄȜȉȇȒ ȔȉȅȉȑȎȄ ȈȉȍȕȖȆȌȖȉȏȠȑȒ ǩȕȏȌ ȆȄȜȉȇȒ ȓȒȖȉȔȣ ȕȏȗșȄ, ȕȗȝȉȕȖȆȗȉȖ ȐȑȒȊȉȕȖȆȒ ǨȒȎȖȒȔ ȆȄȜȉȇȒ ȐȄȏȟȜȄ ȐȒȊȉȖ ȒȖȆȉȖȌȖȠ Ȇȉȝȉȍ, ȎȒȖȒȔȟȉ ȐȒȇȗȖ ȉȐȗ ȓȒȐȒțȠ. ȑȄ ȅȒȏȠȜȌȑȕȖȆȒ ȆȄȜȌș ȆȒȓȔȒȕȒȆ. ȔȉȅȉȑȎȄ ȑȄȓȔȄȆȌȏȌ ǵȔȉȈȌ ȆȄȔȌȄȑȖȒȆ: ȕȏȗșȒȆȟȉ ȄȓȓȄȔȄȖȟ, ȗȏȌȖȎȒȆȟȉ ȌȐȓȏȄȑȖȄȖȟ, ȣȋȟȎ ȊȉȕȖȒȆ Ȍ ǵȏȉȈȗȢȝȌȉ Ȇȉȅ-ȕȄȍȖȟ — ȉȝȉ ȒȈȌȑ ȑȄ ȓȔȒȆȉȔȎȗ ȕȏȗșȄ ȓȔȒȇȔȄȐȐȟ ȔȄȑȑȉȇȒ ȆȐȉȜȄȖȉȏȠȕȖȆȄ. ȋȄȐȉțȄȖȉȏȠȑȟȍ ȌȕȖȒțȑȌȎ ȌȑȘȒȔȐȄȚȌȌ dzȔȒȘȉȕȕȌȒȑȄȏȟ Ȍ ȈȔȗȇȌȉ ȔȒȈȌȖȉȏȌ, Ȉȏȣ ȓȒȏȗțȉȑȌȣ ȓȒȈȈȉȔȊȎȌ Ȍ ȒȖȆȉȖȒȆ ȑȄ ȕȖȒȏȎȑȗȆȜȌȉȕȣ ȕ ȖȉȐȌ Ȋȉ ȓȔȒȅȏȉȐȄȐȌ, ȆȄȜȌ ȆȒȓȔȒȕȟ: țȖȒ Ȍ Ȇȟ, ȕȐȒȇȗȖ ȒȎȄȋȄȖȠ ȆȄȐ www.babyhearing.org ȓȒȈȈȉȔȊȎȗ Ȍ ȒȖȆȉȖȌȖȠ ȑȄ ȆȒȋȑȌȎȜȌȉ ȗ www.doh.wa.gov/EarlyHearingLoss ȆȄȕ ȆȒȓȔȒȕȟ, ȎȒȇȈȄ Ȇȟ ȅȗȈȉȖȉ ȓȔȌȑȌȐȄȖȠ ȔȉȜȉȑȌȉ Ȓ ȖȒȐ, țȖȒ ȏȗțȜȉ ǬȑȘȒȔȐȄȚȌȣ Ȓ ȓȔȌȉȐȉ ȗ ȆȔȄțȄ Ȉȏȣ ȓȒȈșȒȈȌȖ Ȉȏȣ ȆȄȜȉȍ ȕȉȐȠȌ. ȓȔȒȆȉȔȎȌ ȕȏȗșȄ ȆȄȜȉȇȒ ȔȉȅȉȑȎȄ: ǰȉȕȖȑȟȍ ȎȒȒȔȈȌȑȄȖȒȔ ȕȉȐȉȍȑȟș ______ȔȉȕȗȔȕȒȆ (Family Resources Coordinator, ǨȄȖȄ Ȍ ȆȔȉȐȣ FRC) ȓȒȐȒȊȉȖ ȆȄȐ ȑȄȍȖȌ ȗȕȏȗȇȌ Ȍ ______ȓȒȈȈȉȔȊȎȗ. ǩȕȏȌ ȆȄȕ ȅȉȕȓȒȎȒȌȖ ǰȉȕȖȒ (ȄȗȈȌȒȏȒȇȌțȉȕȎȄȣ ȎȏȌȑȌȎȄ) ȕȒȕȖȒȣȑȌȉ ȕȏȗșȄ ȆȄȜȉȇȒ ȐȄȏȟȜȄ ȌȏȌ ______ȉȇȒ ȔȄȋȆȌȖȌȉ, ȓȒȋȆȒȑȌȖȉ Ȇ ǧȒȔȣțȗȢ DZȒȐȉȔ ȖȉȏȉȘȒȑȄ ȏȌȑȌȢ ȕȉȐȉȍȑȒȇȒ ȋȈȒȔȒȆȠȣ (Family Health Hotline) ȓȒ ȖȉȏȉȘȒȑȗ 1-800-322 -2588. ǩȕȏȌ ȆȄȐ ȑȗȊȑȒ ȓȉȔȉȑȉȕȖȌ ȓȔȌȉȐ, ȓȒȊȄȏȗȍȕȖȄ, ȕȒȒȅȝȌȖȉ Ȓȅ ȡȖȒȐ ȓȒ ǻȉȐ ȔȄȑȠȜȉ Ȇȟ ȗȋȑȄȉȖȉ, țȖȒ ȗ ȆȄȜȉȇȒ ȖȉȏȉȘȒȑȗ. ȔȉȅȉȑȎȄ ȓȒȖȉȔȣ ȕȏȗșȄ, ȖȉȐ ȔȄȑȠȜȉ Ȇȟ ȕȐȒȊȉȖȉ ȑȄțȄȖȠ ȓȒȐȒȇȄȖȠ ȉȐȗ ȗțȌȖȠȕȣ Ǩȏȣ ȏȌȚ ȕ ȒȇȔȄȑȌțȉȑȑȟȐȌ ȆȒȋȐȒȊȑȒȕȖȣȐȌ ȈȄȑȑȟȍ ȈȒȎȗȐȉȑȖ ȓȒ ȋȄȓȔȒȕȗ ȐȒȊȉȖ ȅȟȖȠ ȓȔȉȈȒȕȖȄȆȏȉȑ Ȇ ȈȔȗȇȌș ȕȏȗȜȄȖȠ Ȍ ȔȄȋȆȌȆȄȖȠ ȣȋȟȎ. ȘȒȔȐȄȖȄș. ǻȖȒȅȟ ȓȒȈȄȖȠ ȋȄȓȔȒȕ, ȓȒȊȄȏȗȍȕȖȄ, ȓȒȋȆȒȑȌȖȉ ǬȕȕȏȉȈȒȆȄȑȌȣ ȓȒȎȄȋȟȆȄȢȖ, țȖȒ ȓȒ ȑȒȐȉȔȗ 1-800-525-0127 (ȏȌȑȌȣ TDD/TTY 711). ǵȏȗș ȐȒȊȑȒ ȅȒȏȠȜȌȑȕȖȆȒ ȈȉȖȉȍ ȕ ȓȒȖȉȔȉȍ ȕȏȗșȄ, Ȇ ȓȔȒȆȉȔȌȖȠ ȈȄȊȉ ȗ ȒȖȑȒȜȉȑȌȌ ȎȒȖȒȔȟș ȔȄȑȑȉȉ ǬȑȘȒȔȐȄȚȌȣ ȆȐȉȜȄȖȉȏȠȕȖȆȒ ȑȄțȄȏȌ ȓȔȒȆȒȈȌȖȠ ȈȒ ȓȔȉȈȒȕȖȄȆȏȉȑȄ Children’s Hospital), ȕȒȈȉȔȊȄȝȄȣȕȣ ȕȄȐȟș ȐȄȏȉȑȠȎȌș… ǨȉȖȕȎȒȍ ȜȖȄȖȄ Ȇ ȈȄȑȑȒȍ ǦȄȜȌȑȇȖȒȑ ȅȒȏȠȑȌȚȉȍ Ȍ ǨȉȓȄȔȖȄȐȉȑȖȒȐ ȅȔȒȜȢȔȉ ȇ. 5Ϯ (Washington StateǵȌȡȖȏ Department, of DOH 344-034 May 2014 ȋȈȔȄȆȒȒșȔȄȑȉȑȌȣ (Seattle Health) . ǫȄțȉȐ ȑȗȊȑȒ ȓȔȒȆȒȈȌȖȠ ȓȒȆȖȒȔȑȗȢ dzȔȒȈȒȏȊȄȍȖȉ ȇȒȆȒȔȌȖȠ ȕ ȔȉȅȉȑȎȒȐ, ȎȄȎ ȒȅȟțȑȒ. ǨȉȖȌ ȔȉȄȇȌȔȗȢȖ ȑȄ ȒȕȒȅȉȑȑȗȢ ȓȔȒȆȉȔȎȗ ȕȏȗșȄ ȐȒȉȇȒ ȐȄȏȟȜȄ? ȔȉțȠ Ȍ ȆȟȔȄȊȉȑȌȣ ȏȌȚȄ, ȕ ȎȒȖȒȔȟȐȌ Ȑȟ ǴȉȋȗȏȠȖȄȖȟ ȓȔȒȆȉȔȎȌ ȕȏȗșȄ ȓȒȎȄȋȟȆȄȢȖ, ȒȅȔȄȝȄȉȐȕȣ ȖȒȏȠȎȒ Ȏ ȑȌȐ. ǻȄȕȖȟȍ țȖȒ Ȉȏȣ ȆȄȜȉȇȒ ȔȉȅȉȑȎȄ ȐȒȊȉȖ ȋȔȌȖȉȏȠȑȟȍ ȎȒȑȖȄȎȖ, ȎȄȕȄȑȌȣ, ȒȅȞȣȖȠȣ Ȍ ȕȗȝȉȕȖȆȒȆȄȖȠ ȔȌȕȎ ȓȒȖȉȔȌ ȕȏȗșȄ. DzȈȑȄȎȒ ȓȒȚȉȏȗȌ ȓȒȐȒȇȄȢȖ ȈȉȖȣȐ ȗțȌȖȠȕȣ ȖȔȉȅȗȉȖȕȣ ȓȔȒȆȉȕȖȌ ȈȒȓȒȏȑȌȖȉȏȠȑȒȉ ȒȅȝȄȖȠȕȣ ȖȉȕȖȌȔȒȆȄȑȌȉ, țȖȒȅȟ ȗȅȉȈȌȖȠȕȣ, ȕȏȟȜȌȖ ȆȄȜ ȔȉȅȉȑȒȎ ȌȏȌ ȑȉȖ. dzȔȌȐȉȔȑȒ 3 ȐȄȏȟȜȄ DzȋȑȄțȄȉȖ ȏȌ ȡȖȒ, țȖȒ ȐȒȍ ȔȉȅȉȑȒȎ Ȍȋ 1000 ȔȒȊȈȄȢȖȕȣ ȕ ȓȒȖȉȔȉȍ ȕȏȗșȄ. ȇȏȗșȒȍ? ǰȒȊȑȒ ȏȌ ȒȖȏȒȊȌȖȠ ȓȒȆȖȒȔȑȗȢ ȓȔȒȆȉȔȎȗ? DZȉ ȒȅȣȋȄȖȉȏȠȑȒ. ǩȕȖȠ ȑȉȕȎȒȏȠȎȒ ȓȔȌțȌȑ, ȓȒ ȎȒȖȒȔȟȐ ȆȄȜȉȐȗ ȐȄȏȟȜȗ ȐȒȊȉȖ ǦȄȊȑȒ ȈȌȄȇȑȒȕȖȌȔȒȆȄȖȠ ȓȔȒȅȏȉȐȟ ȕȒ ȖȔȉȅȒȆȄȖȠȕȣ ȈȄȏȠȑȉȍȜȄȣ ȓȔȒȆȉȔȎȄ. ǦȒȖ ȕȏȗșȒȐ ȎȄȎ ȐȒȊȑȒ ȔȄȑȠȜȉ, ȖȄȎ ȎȄȎ ȑȄȌȅȒȏȉȉ ȔȄȕȓȔȒȕȖȔȄȑȉȑȑȟȉ Ȍȋ ȑȌș: ȔȉȅȉȑȒȎ, ȆȒȋȐȒȊȑȒ, ȑȉ ȕȐȒȊȉȖ ȑȄȗțȌȖȠȕȣ ȇȒȆȒȔȌȖȠ, ȉȕȏȌ Ȓȑ ȑȉ ȕȏȟȜȌȖ. ǻȉȐ ȔȄȑȠȜȉ x ȊȌȈȎȒȕȖȠ Ȇ ȕȔȉȈȑȉȐ ȗșȉ ȌȏȌ ȌȑȘȉȎȚȌȣ; Ȇȟ ȗȋȑȄȉȖȉ Ȓ ȓȒȖȉȔȉ ȕȏȗșȄ, ȖȉȐ ȔȄȑȠȜȉ Ȇȟ x ȋȄȅȏȒȎȌȔȒȆȄȑȑȟȍ ȑȄȔȗȊȑȟȍ ȕȏȗșȒȆȒȍ ȕȐȒȊȉȖȉ ȓȒȐȒțȠ ȔȉȅȉȑȎȗ. ȓȔȒșȒȈ; x ȓȒȕȖȒȣȑȑȄȣ ȓȒȖȉȔȣ ȕȏȗșȄ. ǩȕȏȌ ȆȄȜȉȇȒ ȔȉȅȉȑȎȄ ȑȄȓȔȄȆȌȏȌ ȑȄ ȈȄȏȠȑȉȍȜȗȢ ȓȔȒȆȉȔȎȗ, ȖȄȎȊȉ ȆȄȊȑȒ ȓȒȑȌȐȄȖȠ, țȖȒ ȕȗȝȉȕȖȆȗȢȖ ȔȄȋȑȟȉ ǮȄȎ ȣ ȐȒȇȗ ȓȒȈȇȒȖȒȆȌȖȠȕȣ Ȏ ȓȔȒȆȉȔȎȉ ȕȖȉȓȉȑȌ ȓȒȖȉȔȌ ȕȏȗșȄ. dzȒȖȉȔȣ ȕȏȗșȄ ȕȏȗșȄ ȐȒȉȇȒ ȔȉȅȉȑȎȄ? ȐȒȊȉȖ ȅȟȖȠ ȒȖ ȗȐȉȔȉȑȑȒȍ ȈȒ ȖȣȊȉȏȒȍ ǦȒ ȆȔȉȐȣ ȓȔȒȆȉȔȎȌ ȔȉȅȉȑȒȎ ȈȒȏȊȉȑ ȆȉȕȖȌ (ȇȏȗșȒȖȄ). ȕȉȅȣ ȖȌșȒ Ȍ ȕȓȒȎȒȍȑȒ. ǻȖȒȅȟ ȐȄȏȟȜ ȑȉ ȑȉȔȆȑȌțȄȏ ȆȒ ȆȔȉȐȣ ȓȔȌȉȐȄ: ǨȉȖȣȐ ȕ ȕȄȐȟȐȌ ȖȣȊȉȏȟȐȌ ȕȖȉȓȉȑȣȐȌ x ȓȒȕȖȄȔȄȍȖȉȕȠ ȑȉ ȈȄȆȄȖȠ ȉȐȗ ȕȓȄȖȠ ȓȒȖȉȔȌ ȕȏȗșȄ ȅȗȈȉȖ ȕȏȒȊȑȒ ȕȏȟȜȄȖȠ ȔȉțȠ ǻȖȒ Ȑȑȉ ȑȗȊȑȒ ȕȈȉȏȄȖȠ? ȓȉȔȉȈ ȓȔȌȉȐȒȐ; Ȍ ȈȄȊȉ ȒțȉȑȠ ȇȔȒȐȎȌȉ ȋȆȗȎȌ. ǨȉȖȌ ȕ ȅȒȏȉȉ ǦȄȐ ȑȗȊȑȒ ȎȄȎ ȐȒȊȑȒ ȔȄȑȠȜȉ ȑȄȋȑȄțȌȖȠ ȏȉȇȎȌȐȌ ȘȒȔȐȄȐȌ ȅȗȈȗȖ ȔȉȄȇȌȔȒȆȄȖȠ ȑȄ x ȓȒȎȒȔȐȌȖȉ ȔȉȅȉȑȎȄ ȑȉȓȒȕȔȉȈȕȖȆȉȑȑȒ ȓȔȌȉȐ ȗ ȈȉȖȕȎȒȇȒ ȄȗȈȌȒȏȒȇȄ ȇȔȒȐȎȌȉ ȋȆȗȎȌ. DZȒ ȌȐ ȅȗȈȉȖ ȑȉȏȉȇȎȒ ȓȉȔȉȈ ȓȔȒȆȉȔȎȒȍ; (ȕȓȉȚȌȄȏȌȕȖȄ ȓȒ ȕȏȗșȗ) Ȉȏȣ ȓȔȒȆȉȔȎȌ ȔȄȕȕȏȟȜȄȖȠ ȐȣȇȎȌȉ ȋȆȗȎȌ ȔȉțȌ. ȕȏȗșȄ. ȁȖȌ ȗȕȏȗȇȌ ȐȒȊȉȖ ȓȔȉȈȒȕȖȄȆȌȖȠ x ȓȔȌȑȉȕȌȖȉ ȕ ȕȒȅȒȍ ȒȈȉȣȏȒ, ȋȄȓȄȕȑȟȉ ȏȢȅȒȍ ȄȗȈȌȒȏȒȇ Ȍȋ ȖȒȇȒ ȕȓȌȕȎȄ, ȎȒȖȒȔȟȍ ȓȒȈȇȗȋȑȌȎȌ, ȕȐȉȑȑȗȢ ȒȈȉȊȈȗ Ȍ ǨȉȖȕȎȌȍ ȄȗȈȌȒȏȒȇ ȓȔȒȆȉȈȉȖ ȓȒȏȑȗȢ ȆȄȐ ȆȟȈȄȏȌ. ǨȒȎȖȒȔ ȆȄȜȉȇȒ ȔȉȅȉȑȎȄ ȈȉȖȕȎȗȢ ȕȐȉȕȠ; ȐȒȊȉȖ ȓȒȐȒțȠ ȆȄȐ ȕ ȏȢȅȟȐȌ ȓȔȒȆȉȔȎȗ ȕȏȗșȄ ȆȄȜȉȇȒ ȔȉȅȉȑȎȄ. ǩȕȏȌ ȑȄȓȔȄȆȏȉȑȌȣȐȌ, ȑȉȒȅșȒȈȌȐȟȐȌ Ȉȏȣ x ȓȒȕȖȄȔȄȍȖȉȕȠ ȑȄȋȑȄțȌȖȠ ȓȔȌȉȐ ȑȄ ȖȒ ȌȐȉȉȖȕȣ ȓȒȖȉȔȣ ȕȏȗșȄ, ȆȄȜ ȄȗȈȌȒȏȒȇ 5ϯ Care Plan For Infants who are Deaf or Hard of Hearing Child’s Name: ______Date of Birth: ______ Contact the Family Resources Coordinator (FRC) for your county to learn about early intervention services. The Early Sup- port for Infants and Toddlers (ESIT) program provides services for infants and toddlers (birth to three years of age) who are deaf or hard of hearing. Your FRC can help you access services such as family training, counseling, and other specialized services to help Now that you have meet the unique communication needs of your child. learned your child is To locate the Lead FRC in your county, call the Family Health deaf or hard of hear‐ Hotline at 1-800-322-2588. ing, this care plan FRC: ______Phone: ______can help you under‐ stand the next steps. Contact the Center for Childhood Deafness and Hearing Loss (CDHL) to learn more about different ways your child can learn language. Someone from CDHL can work with you and your Fam- ily Resources Coordinator to help you explore communication op- tions. Contact CDHL at: 1-855-342-1670. Contact family support groups: ๐ Washington State Guide By Your Side ™ - support specifically for families of children who are deaf or hard of hearing: 425-268-7087 ๐ Washington State Parent to Parent: 1-800-821-5927 ๐ Washington State Father’s Network: 425-653-4286 Get the Resource Notebook for Families of Children who are Deaf or Hard of Hearing. This notebook includes stories from other parents, tools to help you stay organized, and information about your child’s hearing, communication options, and early in- tervention services. This notebook is a free resource. You can get if from your pediatric audiologist or download it at: www.doh.wa.gov/earlyhearingloss 54 Care Plan Continued If you choose amplification for your child, such as hearing aids, talk to your pediatric audiologist to learn about options. An evaluation by an ear, nose, and throat (ENT) doctor needs to be done before your child can get amplification. ENT Clinic: ______Date:______ Continue with regular visits to your pediatric audiologist to Your child has an check your child’s hearing and amplification if used. exci ng future ahead and being deaf or hard of hear‐ Continue with regular visits to your child’s doctor for well ing is just one part of child exams. that journey. Consider a genetic consultation.* A genetic consultation will de- termine if your child has any health issues that may be associated with being deaf or hard of hearing and can help you learn if your child’s condition may run in your family. Genetic Counselor: ______Date:______ Contact other medical specialists* (eye, heart, etc.) as needed. Specialist: ______Date:______ Specialist: ______Date:______ *You will usually need a referral from your child’s doctor to see these specialists. To learn more, please visit www.doh.wa.gov/earlyhearingloss and www.babyhearing.org The Early Hearing Detection, Diagnosis & Intervention (EHDDI) Program Phone: 206-418-5613 Toll free: 1-888-WAEHDDI Fax: 206-364-0074 E-mail: [email protected] For persons with disabilities, this document is available on request in other formats. To submit a request, please call 1-800-525-0127 (TTY/TDD 711). DOH 344-033 June 2017 55 3URYLGLQJXQELDVHGHPRWLRQDO VXSSRUWDQGUHVRXUFHVE\WUDLQHG 3DUHQW*XLGHVWRIDPLOLHV ZLWKFKLOGUHQZLWKKHDULQJORVV 7RUHTXHVWVHUYLFHV FRQWDFW &KULVWLQH*ULIILQ *%<6#ZDKDQGVDQGYRLFHVRUJ ƔƔƔ Guide By Your Side Provides… x ĐŽŵƉĂƐƐŝŽŶĂƚĞĂŶĚ ŬŶŽǁůĞĚŐĞĂďůĞWĂƌĞŶƚ 'ƵŝĚĞƚŽůŝƐƚĞŶĂŶĚƐŚĂƌĞ ƌĞƐŽƵƌĐĞƐ͘ x hŶďŝĂƐĞĚƐƵƉƉŽƌƚ͘ x &ƌĞĞƐƵƉƉŽƌƚƚŽt^ƚĂƚĞ ĨĂŵŝůŝĞƐ͘ Why is Parent Support Important? *XLGH%\ 5ϲ 3DUDSHGLUVHUYLFLRV FRPXQtTXHVHD &KULVWLQH*ULIILQ ƔƔƔ *%<6#ZDKDQGVDQGYRLFHVRUJ El programa de Guía a su lado ofrece… x *XtD PDGUHRSDGUHFDSDFLWDGR FRPSDVLYDHLQIRUPDGDSDUD HVFXFKDU\FRPSDUWLUUHFXUVRV x $SR\RLPSDUFLDO x $SR\RVLQFRVWRDOJXQRSDUD IDPLOLDVGHO(VWDGRGH :DVKLQJWRQ ¢ Por qué es importante el apoyo de otro padra/otra madre? x /DVIDPLOLDVDSUHQGHQVREUHWRGDV ODVRSFLRQHVFRPXQLFDWLYDV\ *XLGH%\ 5ϳ 5ϴ 5ϵ Facility Directories ϲϬ Infant Hearing Screening Test Sites in Western Washington The facilities below are hospitals, midwives, audiology clinics and a community organization that conduct outpatient newborn hearing screens. Private insurance and Medicaid often cover newborn hearing screens, however you will want to check with your insurance company and the facility to learn about what the cost may be. Hospitals Facility City Age Limit Phone Number Island Hospital Anacortes 6 months 360.588.2085 Cascade Valley Hospital Arlington 8 weeks 360.618.7754 Auburn Regional Medical Center Auburn 6 months 253.545.2895 Overlake Hospital Medical Center-Women's Clinic Bellevue 6 months 425.688.5389 St. Joseph Hospital Bellingham 5 months 360.788.6909 Highline Community Hospital Burien 6 months 253.403.2092 *Providence Centralia Hospital Centralia 2 months 360.736.2803 *Whidbey General Hospital Coupeville 3 months 360.678.7656 ext 2118 Swedish Medical Center Edmonds 6 months 206.718.5925 *St. Elizabeth Hospital Enumclaw 1 month 360.802.8530 *Providence Regional Medical Center Everett 6 months 425.304.6052 St. Francis Hospital Federal Way 6 months 253.403.2092 *Forks Community Hospital Forks No age limit 360.374.6271 ext 158 Swedish Medical Center Issaquah 6 months 425.313.5420 *Evergreen Health Medical Center Kirkland 6 months 425.899.3556 Valley General Hospital Monroe 6 months 360.794.1447 ext 2168 Skagit Valley Hospital Mount Vernon 4 months 360.428.2283 Naval Hospital Oak Harbor (Tricare only) Oak Harbor Call to verify 360.257.9777 Capital Medical Center Olympia 2 months 360.754.2229 Providence St. Peter Hospital Olympia 6 months 360.493.7015 Olympic Medical Center Port Angeles 3 months 360.417.7400 Jefferson Health Care Port Townsend 6 months 360.385.2200 ext 3600 Good Samaritan Hospital Puyallup 6 months 425.228.3440 ext 3890 Valley Medical Center Renton 6 months 425.228.3440 ext 3890 Northwest Hospital Seattle 3 months 206.718.5925 Swedish Medical Center-Ballard Seattle 6 months 206.386.3387 Swedish Medical Center-First Hill Seattle 6 months 206.386.3387 Harrison Memorial Hospital Silverdale 6 months 360.337.8904 St. Joseph Medical Center Tacoma 6 months 253.403.2092 Tacoma General Hospital Tacoma 6 months 253.403.2096 *Legacy Salmon Creek Hospital Vancouver 1 month 360.487.4000 *Screening available for former in-patients only 61 Midwives Facility City Age Limit Phone Number The Special Delivery Company Arlington Call to verify 425.339.3737 Birthroots Midwives & Birth Center Bellingham Call to verify 360.734.2182 Tranquil Healing Center Belfair Call to verify 360.552.2525 Gentle Hands Midwifery Bellingham 6 months 360.752.2229 Haven Midwifery Bellingham Call to verify 360.733.2904 Moonbelly Midwifery Bellingham 3 months 360.510.0188 Maven Midwife Buckley Call to verify 503.551.5605 Birth Passion Midwifery Eatonville Call to verify 253.370.6987 Ann Olsen Enumclaw Call to verify 360.825.5720 Foothills Midwifery Enumclaw Call to verify 206.227.2211 Cascade Midwives & Birth Center Everett 6 months 425.317.0157 London Health Center Ferndale Call to verify 360.384.2900 Gig Harbor Midwifery Gig Harbor Call to verify 253.632.6556 Greenbank Birth Center Greenbank Call to verify 360.678.3594 Birth & Family Midwifery Kelso Call to verify 360.353.3822 Puget Sound Birth Center Kirkland Call to verify 425.823.1919 Mountlake Sprout Birth Center & Natural Health Call to verify 425.678.9070 Terrace Mount Vernon Birth Center Mount Vernon Call to verify 360.336.9997 Around the Circle Midwifery Olympia 6 months 360.459.7222 New Day Midwifery Olympia Call to verify 360.701.1418 Peninsula Midwives Port Townsend Call to verify 360.385.6667 Natural Beginnings Midwifery Puyallup Call to verify 253.200.1499 Salmonberry Birth Center Poulsbo Call to verify 360.779.0004 Puget Sound Birth Center Renton Call to verify 425.207.8769 Center for Birth Seattle Call to verify 206.407.3397 Ground Floor Health Seattle 6 months 206.624.6627 In Tandem Midwifery Seattle Call to verify 425.243.7848 Journey Midwife Services Seattle 6 months 206.659.5645 Roots Naturopathic Medicine Seattle 6 months 206.972.2271 Seattle Naturopathy & Acupuncture Center Seattle 6 months 206.328.7929 Snohomish Midwives Snohomish Call to verify 877.869.6105 Firstlight Midwifery Tacoma Call to verify 253.973.9926 The Birthing Inn Tacoma Call to verify 253.761.8939 Vashon Island Midwifery Vashon Island Call to verify 206.227.1453 Audiology Clinics Facility City Age Limit Phone Number West Coast Hearing Clinic Aberdeen No age limit 360.533.0633 Cascade Ear Nose & Throat Anacortes No age limit 360.588.8985 Cascade Ear Nose & Throat Arlington No age limit 360.435.6300 Evergreen Speech & Hearing Clinic, Inc. Bellevue No age limit 425.454.1883 Seattle Children’s Bellevue Clinic and Surgery Bellevue No age limit 206.987.5173 option 1 Center The Hear Center-Kaiser Permanente (members Bellevue No age limit 425.502.3490 only) Western Washington University Speech & Bellingham No age limit 360.650.3881 Hearing Clinic Naval Hospital Bremerton Audiology (Tricare only) Bremerton No age limit 360.475.4000 62 Facility City Age Limit Phone Number South Seattle Otolaryngology Burien No age limit 206.242.3696 Hearing Health Services Coupeville No age limit 360.678.1423 Seattle Children’s North Clinic Everett No age limit 206.987.5173 The Everett Clinic Everett No age limit 425.339.5441 The Hear Center-Kaiser Permanente (members Everett No age limit 425.261.1931 only) Western Washington Medical Group Everett No age limit 425.791.3093 Listen for Life Center-Virginia Mason Federal Way No age limit 253.874.1750 Harbor Audiology & Hearing Services, Inc. Gig Harbor No age limit 253.203.6641 Eastside Audiology & Hearing Services, PS Issaquah No age limit 425.391.3343 Listen for Life Center-Virginia Mason Issaquah No age limit 425.557.8040 Swedish Otolaryngology/Audiology Issaquah No age limit 425.313.7089 Evergreen Speech & Hearing Clinic, Inc. Kirkland No age limit 425.899.5050 Hearing Specialty Center Kirkland No age limit 425.821.6600 The Everett Clinic Marysville No age limit 360.454.1941 Hearing & Balance Lab Mill Creek No age limit 425.225.2626 Cascade Ear Nose & Throat Mount Vernon No age limit 360.336.2178 My Hearing Centers Oak Harbor No age limit 360.279.1229 Ascent Audiology and Hearing Olympia No age limit 360.704.7900 Ear, Nose & Throat Associates Southwest Olympia No Age limit 360.357.6314 The Hear Center-Kaiser Permanente (members Olympia No age limit 360.923.7420 only) Nilsson Audiology Port Orchard No age limit 360.362.1404 Evergreen Speech & Hearing Clinic, Inc. Redmond No age limit 425.882.4347 Hearing Speech & Deaf Center Seattle No age limit 206.323.5770 Listen for Life Center-Virginia Mason Seattle No age limit 206.223.8802 Minor & James Medical Audiology Seattle No age limit 206.622.9916 Seattle Children’s Hospital Seattle No age limit 206.987.5173 option 1 Seattle Hearing & Balance Seattle No age limit 206.320.5687 Swedish Neuroscience Institute-Center for Hearing Seattle No age limit 206.320.8242 and Skull Base Surgery Swedish Otolaryngology/Audiology Seattle No age limit 206.215.1770 The Hear Center-Kaiser Permanente (members Seattle No age limit 206.326.3350 only) The Polyclinic Seattle No age limit 206.860.4642 UW Pediatric Audiology Clinic Seattle No age limit 206.598.9347 Link Audiology Silverdale No age limit 360.551.4800 The Doctor’s Clinic-Salmon Medical Center Silverdale No age limit 360.782.3897 The Everett Clinic Smokey Point No age limit 360.454.1941 Madigan Army Medical Center-Audiology (Tricare Tacoma No age limit 253.968.0927 only) Mary Bridge Children’s Hospital Tacoma No age limit 253.697.5200 The Hear Center-Kaiser Permanente (members Tacoma No age limit 253.396.4250 only) PeaceHealth Medical Group ENT Vancouver No age limit 360.256.4425 The Vancouver Clinic-Columbia Tech Center Vancouver No age limit 360.882.2778 The Vancouver Clinic-Salmon Creek Vancouver No age limit 360.882.2778 Out-Of-State Kaiser Permanente Central Interstate Clinic- Portland, OR No age limit 503.331.6052 Audiology (members only) Doernbecher Audiology Clinic Portland, OR No age limit 503.418.2116 6ϯ Facility City Age Limit Phone Number Legacy Audiology Services Portland, OR No age limit 503.413.4327 Providence Children’s Development Institute-East Portland, OR No age limit 503.215.2278 Providence Children’s Development Institute- Portland, OR No age limit 503.215.2278 West Community Organization Facility City Age Limit Phone Number Toddler Learning Center (serves all of Whidbey Oak Harbor 36 months 360.679.1039 Island) Washington State EHDDI Program Phone: 206-418-5613 Toll Free: 1-888-WAEHDDI (1-888-923-4334) Fax: 206-364-0074 Email: [email protected] DOH 334-039 Sept 2018 Website: www.doh.wa.gov/earlyhearingloss Please note that this list may not include all infant hearing screening sites in Washington. This list is provided for convenience only. The Washington State Department of Health does not endorse the professionals on this list and cannot make any guarantees regarding quality of care. For persons with disabilities, this document is available upon request in other formats. To submit a request, please call 1-800-525-0127 (TTY call 711). 64 Infant Hearing Screening Test Sites in Central & Eastern Washington The facilities below are hospitals, midwives, and audiology clinics that conduct outpatient newborn hearing screens. Private insurance and Medicaid often cover newborn hearing screens, however you will want to check with your insurance company and the facility to learn about what the cost may be. Hospitals Facility City Age Limit Phone Number *Three Rivers Hospital Brewster No age limit 509.689.2517 *Lake Chelan Community Hospital Chelan 2 months 509.682.3300 ext 6125 Whitman Hospital & Medical Center Colfax 4 months 509.397.3435 ext 327 Providence Mount Carmel Hospital Colville 4 months 509.685.5100 Kittitas Valley Healthcare Ellensburg 6 months 509.962.7328 Coulee Medical Center Grand Coulee No age limit 509.633.1753 *Trios Health Kennewick 5 months 509.586.5805 Samaritan Hospital Moses Lake 3 months 509.793.9750 Newport Hospital and Health Services Newport 3 months 509.447.6398 *Mid Valley Hospital Omak 2 months 509.826.7667 *Othello Community Hospital Othello 2 months 509.488.2636 Prosser Memorial Hospital Prosser No age limit 509.786.6633 *Pullman Regional Hospital Pullman 1 month 509.336.7401 Kadlec Medical Center Richland 3 months 509.942.2689 Deaconess Medical Center Spokane 6 months 509.473.3468 Providence Holy Family Hospital Spokane 6 months 509.474.4293 Providence Sacred Heart Medical Center Spokane 6 months 509.474.4293 Valley Hospital & Medical Center Spokane 6 months 509.473.3468 Sunnyside Community Hospital Sunnyside 3 months 509.837.1536 North Valley Hospital Tonasket 6 months 509.486.2151 *Toppenish Community Hospital Toppenish 2 months 509.865.1506 Walla Walla General Hospital Walla Walla 2 months 509.525.0480 ext 1070 Virginia Mason Memorial Yakima 6 months 509.575.8107 *Screening available for former in-patients only Midwives Facility City Age Limit Phone Number Traditional Beginnings Midwifery Chewelah Call to verify 509.722.3263 Sky Valley Midwifery Ellensburg Call to verify 360.775.6774 Birthwise Midwifery care Kennewick Call to verify 509.496.9330 Sunrise Midwifery Prosser Call to verify 509.780.3330 Rolling Hills Midwifery Pullman Call to verify 509.338.5326 Spokane Midwives Spokane 6 weeks 509.326.4366 Wenatchee Midwife Services Wenatchee Call to verify 509.663.2770 Natural Care Midwifery West Richland Call to verify 509.308.3711 65 Audiology Clinics Facility City Age Limit Phone Number Northwest Hearing Center Ellensburg No age limit 509.962.9575 Columbia Basin Hearing & Balance Center Kennewick No age limit 509.736.4005 Hearing Healthcare Kennewick No age limit 509.735.7461 Confluence Health Audiology Clinic Moses Lake No age limit 509.663.8711 Horan & Fevold Hearing Clinic Moses Lake No age limit 509.764.8642 Confluence Health Audiology Clinic Omak No age limit 509.826.1800 Palouse ENT and Audiology Pullman No age limit 509.332.8843 Kadlec Audiology Richland No age limit 509.942.3178 Rockwood Audiology Center Spokane No age limit 509.342.3350 Spokane Audiology Inc. Spokane No age limit 509.835.5111 Spokane Ear, Nose & Throat Spokane No age limit 509.624.2326 Spokane Valley Ear, Nose, Throat & Facial Spokane No age limit 509.928.7272 Plastics University Hearing & Speech Clinic Spokane No age limit 509.828.1323 Walla Walla Audiology Clinic Walla Walla No age limit 509.525.3720 Confluence Health Wenatchee Valley Hospital & Wenatchee No age limit 509.663.8711 Clinics-Audiology Eye & Ear Clinic of Wenatchee Wenatchee No age limit 509.662.7143 Horan & Fevold Hearing Clinic Wenatchee No age limit 509.665.3100 Hearing Connection Yakima No age limit 509.453.8600 Astria Hearing & Speech Center Yakima No age limit 509.453.8248 Out-Of-State Valley Facial Plastics & ENT Lewiston, ID No age limit 208.746.0193 Washington State EHDDI Program Phone: 206-418-5613 Toll Free: 1-888-WAEHDDI (1-888-923-4334) Fax: 206-364-0074 Email: [email protected] Website: www.doh.wa.gov/earlyhearingloss Please note that this list may not include all infant hearing screening sites in Washington. This list is provided for convenience only. The Washington State Department of Health does not endorse the professionals on this list and cannot make any guarantees regarding quality of care. For persons with disabilities, this document is available upon request in other formats. DOH 344-065 May 2018 To submit a request, please call 1-800-525-0127 (TTY call 711). 66 Diagnostic Audiology Clinics for Infants [S] Clinics that can provide sedation or general anesthesia If your child has NOT more than one hearing (contact clinic for details) it is highly that he or she receive a [HA] Clinics that can provide hearing aid services complete diagnostic test at a clinic below. for age 0–6 months [F] Clinics that offer options for financial assistance Western Washington Ascent Audiology & Hearing [HA/F] Madigan Army Medical Center WA 98502 [S] [S/HA/F] Phone: 360-704-7900 WA 98431 360-704-7909 Phone: 253-968-0927 253-968-5927 & Hearing [HA/F] only) WA 98122 WA 98107 Phone: 206-215-1770 206-215-1771 Phone: 206-789-7029 Mary & Hearing Ser- 206-789-5485 vices–Mary [S/HA/F] UW Pediatric Audiology Clinic Center Evergreen & WA 98403 for Human Development & Disability Clinic, [S/HA] Phone: 253-697-5200 (CHDD) [HA/F] WA 98004 253-697-5248 WA 98105 Phone: 425-454-1883 Phone: 206-598-9347 206-598-7815 425-454-2036 The [HA] WA 98034 WA 98104 Phone: 425-899-5050 Phone: 206-860-4642 The Vancouver Clinic– 425-899-5054 206-357-5041 Columbia Tech Center [HA] WA 98052 WA 98684 Phone: 425-882-4347 Phone: 360-882-2778 425-883-0043 Hospital 360-604-1784 [S/HA/F] WA 98004 Hearing & [F] Phone: 206-987-5173 Western Mill WA 98012 206-884-9370 University & Clinic [F] Phone: 425-225-2626 WA 98201 WA 98225 425-225-2634 Phone: 206-987-5173 Phone: 360-650-3881 425-783-6338 360-650-4334 Link Audiology [HA] WA 98105 Silverdale WA 98383 Phone: 206-987-5173 Phone: 360-551-4800 206-987-3599 360-551-4801 Swedish Neuroscience Institute-Center for Hearing and Listen for Life Center-Virginia Skull Base Surgery [S/HA/F] Mason WA 98122 WA 98003 [HA/F] Phone: 206-215-4327 Phone: 253-874-1750 206-320-8149 253-874-1752 WA 98101 [S/HA/F] Phone: 206-223-8802 206-223-2388 Central & Eastern Washington Astria Hearing & [HA] Hearing [HA] Spokane [HA/F] WA 98902 WA 99336 WA 99204 Phone: 509- 453-8248 Phone: 509-735-7461 Phone: 509-835-5111 509-248-9012 509-783-8167 509-835-5222 Confluence Health[F] Palouse ENT and Audiology [HA] Spokane Ear, Nose & Clinic [S/HA] WA 98837 WA 99163 WA 99201 Phone: 509-663-8711 Phone: 509-332-8843 Phone: 509-624-2326 Fax: 509-764-6428 509-332-8793 509-789-5705 WA 98841 Phone: 509-826-1800 Kadlec Audiology Walla Walla Clinic 509-826-7913 WA 99352 WA 99362 WA 98801 Phone: 509-942-3178 Phone: 509-525-3720 Phone: 509-663-8711 509-627-6330 509-524-1813 509-664-4809 Oregon Central Interstate Clinic [S] Service [S/F] OR 97227 OR 97227 [S/HA] Phone: 503-331-6052 Phone: 503-413-4327 OR 97225 503-331-6051 503-413-3959 Phone: 503-215-2278 Permanente i 503-215-2456 Doernbecher Audiology Clinic at [HA] OHSU [S/HA/F] OR 97213 OR 97239 Phone: 503-215-2278 Phone: 503-346-0640 503-346-0645 For questions regarding this guide, please contact: Washington State EHDDI Program Phone: 206-418-5613 Toll Free: 1-888-WAEHDDI (1-888-923-4334) Fax: 206-364-0074 Email: [email protected] Website: www.doh.wa.gov/earlyhearingloss This list is provided for convenience only. The Washington State Department of Health does not endorse the professionals on this list and cannot make any guarantees regard- ing quality of care. For persons with disabilities, this document is available upon request in other formats. To submit a request, please call 1-800-525-0127 (TTY call 711). DOH , $ ! . /is a web-based directory and search engine designed to help parents, hospital personnel, $ ! $ ! ' '++ ( + ( #( Facilities listed in EHDI–PALS must have the appropriate equipment and audiology services to evaluate and treat children who are less than 5 years of age. Additionally, these services must be provided by licensed audiologists. $" !$ , ! & ! % $ $ ( ) $* ! " ( $ ( " & ' - $. 0 / ! - $ ! - $ - ! $ " & $ & % ( 6ϵ Reporting Results to the EHDDI Program ϳϬ Hearing Loss Type and Reporting Guidelines Please always report the following to the EHDDI program: x Initial or repeat newborn hearing screens. x Diagnostic result for patients under three years of age who are identified with permanent hearing loss. x Diagnostic results for patients under three years of age who passed newborn hearing screening but have a risk factor for late-onset or progressive hearing loss. x Diagnostic results for patients who did not pass newborn hearing screening, regardless of the results of your evaluation (hearing loss, no hearing loss, inconclusive). x Diagnostic results for returning patients who have not had a conclusive (Final) evaluation after not passing newborn hearing screening. Not Final Reports The following types of hearing loss will be considered undetermined. These patients will need follow-up testing to determine if their hearing loss is temporary or permanent and/or type of hearing loss. Please indicate a return appointment date and continue to report all test results until a final diagnosis is made. Conductive Undetermined- A conductive hearing loss for which you cannot determine whether it is temporary or permanent. Unspecified- Hearing loss for which you cannot determine whether it is conductive, mixed, sensorineural or neural. Final Reports The following types of hearing loss will be considered final reports because you have identified or ruled out permanent hearing loss. After submitting a final report, you do not need to send future test results to the EHDDI program unless the patient’s hearing status changes. Conductive Fluctuating- A temporary conductive hearing loss that varies, such as conductive hearing loss caused by otitis media with effusion. The hearing loss is not permanent and not likely to be congenital, so the EHDDI program will label these patients as not having hearing loss. Although these patients will need follow-up testing 7ϭ to make sure their hearing loss resolves, there is no need to keep reporting results to the EHDDI program unless permanent hearing loss is identified in the future. Conductive Permanent- A stable conductive hearing loss that will not change without surgical intervention. Examples include conductive hearing loss due to aural atresia or ossicular chain abnormalities. Mixed- Hearing loss that has both a conductive and sensorineural component. Neural- Hearing loss due to dysfunction of the auditory nerve, this includes auditory neuropathy spectrum disorder (ANSD). Sensorineural- Hearing loss due to a dysfunction of the inner ear. 7Ϯ 7ϯ +RZWR&RPSOHWH%OXH(+'',5HVFUHHQ&DUGV 7KH(DUO\+HDULQJ'HWHFWLRQ'LDJQRVLVDQG,QWHUYHQWLRQ (+'', 3URJUDPZDVHVWDEOLVKHGWRPDNH VXUHLQIDQWVUHFHLYHKHDULQJVFUHHQVDQGDSSURSULDWHIROORZXSVHUYLFHV,WLVLPSRUWDQWWKDWDOOKHDULQJ VFUHHQLQJUHVXOWVDUHUHSRUWHGWRWKH(+'',SURJUDPVRLQIDQWVFDQUHFHLYHDFFXUDWHDQGWLPHO\IROORZXS 8VHDEOXHUHVFUHHQFDUGV x )RUKHDULQJUHVFUHHQVRU x ,IDSLQNFDUGLVQRWDYDLODEOHDWWKHWLPHRIWKHLQLWLDOVFUHHQ &RPSOHWLQJEOXHFDUGV 7UDQVIHUWKHSDWLHQW¶V(+'',,'QXPEHU IRXQGLQWKHORZHUULJKW FRUQHURIWKHSLQNFDUG WRWKHVSDFH SURYLGHGRQWKHEOXHFDUG,IWKLVQXPEHULVQRWDYDLODEOHSOHDVHOHDYHWKHVSDFHEODQN &RPSOHWHWKH0RWKHU¶V DQG&KLOG¶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ϰ Newborn Screening Supply Order Form Phone: 206-418-5410 / 1-866-660-9050 / Fax: 206-418-5415 (FAX form or SUBMIT by e-mail) SUBMITTER INFORMATION (* = Required) *Contact Name: *Contact Phone: Contact Email: DELIVERY INFORMATION (* = Required) *Hospital, Clinic, or Provider Name: Hospital, Clinic, or Provider ID #: (Example: H0001, C1245, M0123) Attention To: (Specific Floor, Department, Mailstop, and/or Person) *Address 1: (Please note: UPS will not ship to a PO Box.) Address 2: *City: *State: *Zip Code: Purchase Order #: ORDER INFORMATION Please indicate the number of each of the following you would like to receive. We will ship up to a three-month supply of newborn screening kits to your facility. (KITS include: specimen collection card, envelope, and English pamphlet) NBS Collection Kits: Kits w/Pink hearing insert: Blue Hearing Re-screen cards: ADDITIONAL SUPPLIES Additional Pamphlets: ENGLISH SPANISH (All other languages available online ONLY!) 7ϱ (+'',3URJUDP +HDULQJ(YDOXDWLRQ)RUP '2+ -XQH 3$7,(171$0( '2% 027+(5¶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ϲ +,3$$3ULYDF\5XOHDQG3XEOLF+HDOWK *XLGDQFHIURP&'&DQGWKH86'HSDUWPHQWRI +HDOWKDQG+XPDQ6HUYLFHV 6XPPDU\ New national health information privacy standards have been issued by the U.S. Department of Health and Human Services (DHHS), pursuant to the Health Insurance Portability and Accountability Act of 1996 (HIPAA). The new regulations provide protection for the privacy of certain individually identifiable health data, referred to as protected health information (PHI). Balancing the protection of individual health information with the need to protect public health, the Privacy Rule expressly permits disclosures without individual authorization to public health authorities authorized by law to collect or receive the information for the purpose of preventing or controlling disease, injury, or disability, including but not limited to public health surveillance, investigation, and intervention. Public health practice often requires the acquisition, use, and exchange of PHI to perform public health activities (e.g., public health surveillance, program evaluation, terrorism preparedness, outbreak investigations, direct health services, and public health research). Such information enables public health authorities to implement mandated activities (e.g., identifying, monitoring, and responding to death, disease, and disability among populations) and accomplish public health objectives. Public health authorities have a long history of respecting the confidentiality of PHI, and the majority of states as well as the federal government have laws that govern the use of, and serve to protect, identifiable information collected by public health authorities. The purpose of this report is to help public health agencies and others understand and interpret their responsibilities under the Privacy Rule. Elsewhere, comprehensive DHHS guidance is located at the HIPAA website of the Office for Civil Rights (http://www.hhs.gov/ocr/hipaa/). 3UHSDUHGE\&'&VWDIILQFRQVXOWDWLRQZLWKWKH2IILFHRIWKH*HQHUDO&RXQVHOWKH2IILFHIRU&LYLO 5LJKWVRWKHURIILFHVDQGDJHQFLHVZLWKLQWKH86'HSDUWPHQWRI+HDOWKDQG+XPDQ6HUYLFHV:DVKLQJWRQ '&DQGKHDOWKSULYDF\VSHFLDOLVWV 1RWH 7KLVLQIRUPDWLRQZDVWDNHQIURPWKH0RUELGLW\DQG0RUWDOLW\:HHNO\5HSRUW$SULO $YDLODEOHRQWKHZHEDW KWWS ZZZFGFJRYPPZUSGIRWKHUPHSGI 7ϳ %R[([DPSOHVRIVLWXDWLRQVUHODWHGWRWKH3ULYDF\5XOHDQGSXEOLFKHDOWK 6WDWH&DQFHUUHJLVWU\ 8QGHUDVWDWHODZKHDOWKFDUH KHDOWKDXWKRULW\)LQDOO\WKHFRYHUHGHQWLWLHVPD\UHO\XSRQ SURYLGHUVDUHUHTXLUHGWRUHSRUWFDQFHUFDVHVWRDVWDWH¶VFDQFHU WKHVWDWH¶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¶VFDQFHUUHJLVWU\7KHVWDWHKHDOWK 3+,WRWKHIRXQGDWLRQV%XWZLWKRXWDJUDQWRIDXWKRULW\3+, GHSDUWPHQWFRQWDFWVZLWKDVWDWHXQLYHUVLW\WRUHFHLYHWKHUHSRUWV PD\EHUHOHDVHGRQO\XQGHURQHRIWKHIROORZLQJVLWXDWLRQV DQGPDLQWDLQLWVUHJLVWU\$VFRYHUHGHQWLWLHVFDQKHDOWKFDUH x 5HOHDVHLVDXWKRUL]HGE\WKHSDWLHQW SURYLGHUVGLVFORVH3+,WRWKHVWDWHXQLYHUVLW\XQGHUWKH3ULYDF\ x 7KH3+,LVGHLGHQWLILHG 5XOH" x 7KH3+,LVFRQWDLQHGLQDOLPLWHGGDWDVHWJRYHUQHG 3ULYDF\5XOHHIIHFW $VQRWHGLQWKHSUHYLRXVH[DPSOH E\DGDWDXVHDJUHHPHQW FRYHUHGHQWLWLHVPD\GLVFORVHZLWKRXWDXWKRUL]DWLRQ3+,WRWKH x 5HOHDVHRI3+,LVLQDFFRUGZLWKWKHUXOH¶V FDQFHUUHJLVWU\XQGHUWKH3ULYDF\5XOHZKLFKH[SUHVVO\SHUPLWV SURYLVLRQVIRUGLVFORVXUHIRUUHVHDUFKZLWKRXW GLVFORVXUHRI3+,DVUHTXLUHGE\ODZDQGVKDULQJ RI3+,ZLWK DXWKRUL]DWLRQ SXEOLFKHDOWKDXWKRULWLHVIRUSXEOLFKHDOWKSXUSRVHV7KHVWDWH x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ϴ