1
FINDIN PARTNERSHIP WITH LANCASHIRE PARENT CARER FORUM Welcome to the Spring Issue of the FIND Newsletter, 2016 INSIDE I enjoy this time of year when we can say goodbye to winter with its dark mornings and evenings. It is a great time to be able to get out and enjoy some 2. Child and Family Support of the lovely walks we have in Lancashire. In this edition you will find some Development Team accessible walks on pages 6-8. Do you have any walks you would like to share Parent Carer Events with us? 3. POWAR This year Mother’s Day falls on the 6th March; I hope you all have a good day. In this work I come across many inspirational stories from children, young 4. Local Parent Carer Forum people and from many parent/carers. I have also had the pleasure of meeting Dates Jen Blackwell, a young woman with Down’s Syndrome who won inspirational 6-8. Trampers in Lancashire woman of the year award in 2015 for her work with DanceSyndrome. Read all Accessible Walks about this inspirational woman on page 12. 5 Ways to Wellbeing World Down’s Syndrome Day is on 21st March. On page 10 you can read Paul’s story about his experience as the father of a child with Down’s 9. Spring into Action Syndrome. 10. Paul’s Story The Summer newsletter will have a Fathers’ Day theme, so we need 12. Jen Blackwell - Inspirational inspirational stories from dads. If you have an article or a story you would like Woman of the Year to share, send to: [email protected] by 24th March. 14. TAAG I hope you all like the new design of the FIND Newsletter. We welcome your 15. JAG feedback. With this edition you will find a FIND Monitoring Questionnaire; please complete and return by 1st April 2016. You can also complete this Rainbow Support Group online at: https://lccsecure.lancashire.gov.uk/corporate/questionnaires/ 16-19. Swimming Information runQuestionnaire.asp?qid=677952 20. PHAB Thank you for your continued support 22. Sign High Norma O’Hagan Child and Family Support Liaison Officer 23. Sir Tom Finney School Special Educational Needs and Disability Service (SEND) 24. Useful Websites www.facebook.com/LancashireLocalOffer 25. New website for children Hundreds of dewdrops coming to hospital to greet the dawn 26. Dear Find Hundreds of bees in the Welcome to Holland purple clover 27. Lancashire County Council Hundreds of butterflies contact details on the lawn But only one mother the wide world over. ~George Cooper
www.lancashire.gov.uk/SEND 2
Child and Family Support Development Team
Dawn Fenton - Manager Email: [email protected] Mobile: 07825 755511 Sarah Deady and Pauline Mansley - Business Support Officers Email: [email protected] Telephone: 01772 538077 or 01772 532509
Child and Family Support Development Liaison Officers and their areas Sue Gaskell - West Lancashire and Burnley Liaison Officer Email: [email protected] Mobile: 07584 217661 Rachel Shatford - Lancaster, Fylde and Wyre Liaison Officer Email: [email protected] Mobile: 07557 030836 Norma O’Hagan - Chorley, South Ribble and Preston Liaison Officer Email: [email protected] Mobile: 07557 030837 Lauren Robertson - Hyndburn, Rossendale and Ribble Valley Liaison Officer Email: [email protected] Mobile: 07557 030839
For Pendle please contact any of the above Liaison Officers
Free Parent/Carer Event For Parents/Carers of children and young people age 0-25 in Lancashire Do you care for a child or young person with additional needs aged 0-25? Sign up for our 3rd Annual Events! This year’s theme is “Have your say, Time to Change”. Come and find out how you and your child or young person can make a difference. Come and join us and get involved with the workshops and presentations.
15th March 21st March 22nd March Burnley Football Club, Turf Park, Wellington Park, Church Road, Garstang Golf Club Bowgreave Burnley BB10 4XA Leyland PR25 3AB Drive Lancashire PR3 1YE
Registration from 9.30, Event runs from 10am – 2pm
Meet the professional Information Stands Find out about changes Share experiences Workshops Free Lunch & EHC Plans Free parking at all the Refreshments venues
To book a place E-mail: [email protected] Please state your name, telephone number post code, venue/date and any special dietary requirements. Or book online at: lpcf-events2016.eventbrite.co.uk Join us on Facebook @ www.facebook.com/LancashireParentCarerForum 3
POWAR is Lancashire County Council’s participation council group for children and young people with special educational needs and disabilities. The age range is 11-25 and there is also a separate group for primary age children up to 11. POWAR stands for: Participate, Opportunity, Win, Achieve and Respect
We were shortlisted for the NOW awards, some The next morning we started to pack and made our of our young people went to London and stayed way up to breakfast and met up with everyone. Then overnight. The next day we went to the head office of we went back to our room and finished packing, in Barnardo’s in Barking Side and met the head of the my room I was the first to be finished because we charity Javed Khan over a skype interview, then we had to carry our bags back up the stairs and then got back on the tube to Preston. meet up with everyone and then we walked to Putney Two of our young people went on a residential with Bridge tube station. First we had to get our tickets the Lancashire Youth Council in Borwick Hall. We and then walk up to where the trains are, we got had to choose from two campaigns out of five; out on the train Barkingside which is in Essex and then of the five the top two were announced from mental we went to Barnardo’s head office and did some health and curriculum for life. meetings then we went back to Barkingside tube station. AC, Age 18, POWAR Member Things I achieve: Overcoming my fear with the underground trains and In November I went from Preston to London with escalator I can do it now with smile on my face Barnardo’s because we were finalists at this awards ceremony at The Hurlington Club and it was a really Having a video call with CEO of Barnardo’s and good experience because even though that we did meeting different departments – young inspectors, not win it was a really good time and we stayed in an fundraising, recruitment and having lunch! area called Putney Bridge. ES, Age 17, POWAR Member
The next meeting dates for 2016 are:
Powar Central Meetings Are Held at: POWAR East meetings are held at: Bradbury House, 453 Leyland Road, Burnley Youth Zone, Whittam Street, Burnley, Lostock Hall, Preston, PR5 5SB BB11 1LW
Tuesday 1st March 6.00-8.00pm Wednesday 9th March 6.00-8.00pm Tuesday 5th April 6.00-8.00pm April – TBC due to Easter Holidays Tuesday 3rd May 6.00-8.00pm Wednesday 11th May 6.00-8.00pm
POWAR North meetings are held at: POWAR Combined meetings are held at: Barton Road YPS Centre, Barton Road, County Hall, Fishergate, Preston, Lancashire, Lancaster, LA1 4ER PR1 8XJ OR Bradbury House, 453 Leyland Road, Lostock Hall, Preston, PR5 5SB Wednesday 23rd March 5.00-7.00pm Tuesday 15th March 6.00-8.00pm Wednesday 27th April 5.00-7.00pm April – TBC due to Easter Holidays Wednesday 25th May 5.00-7.00pm Tuesday 17th May 6.00-8.00pm
Times and venues can be subject to change so please call 01772 629470 if you would like to attend a meeting 4 Local Parent Carer Forums Do you have a child/young person with additional needs? Come along to your local forum, it is an opportunity to raise any issues/concerns, chat to other parents and meet the guest speaker. Although the forums follow an agenda it is a relaxed, friendly atmosphere. You are also welcome to bring a friend along for support. The dates and times for your local forum can be found below. If you require more information contact your local Liaison Officer, contact details can be found on page two. Parent/carers are able to attend any of the local forums, please feel free to contact a liaison officer for more information.
Burnley Liaison Officer: Sue Gaskell Holly Grove School Mon 07 March 1:30pm – 3pm Barden Lane, Burnley Mon 04 April 1:30pm – 3pm BB10 1JD Mon 09 May 1:30pm – 3pm
Chorley & South Ribble Liaison Officer: Norma O’Hagan Community Room, Chorley Fire Station, Thurs 10 March 6:30pm – 8pm West Way, Chorley, PR7 6DH Environmental Education Centre Tue 10 May 10am – 12:30pm Farington Waste Recovery Park Sustainability Way, Leyland, PR26 6TB if using sat nav use PR26 6LZ Fylde Liaison Officer: Rachel Shatford Oak Tree Children’s Centre, Wed 09 March 1pm – 3pm Sydney Street, Lytham St Annes FY8 1TR Wed 04 May 1pm – 3pm Hyndburn Liaison Officer: Lauren Robertson Hyndburn Leisure Centre Wed 16 March 1pm – 3pm Henry Street, Wed 27 April 1pm – 3pm Church, Accrington BB5 4EP Wed 18 May 1pm – 3pm Lancaster Liaison Officer: Rachel Shatford Poulton Children’s Centre, Tue 01 March 12:15pm – 2:30pm. Clark Street, Morecambe LA4 5HT Firbank Children’s Centre, Firbank Road, Lancaster Tue 03 May 10:30am – 12noon LA1 3HL
Mama was my greatest teacher, a teacher of compassion, love and fearlessness. If love is sweet as a flower, then my mother is that sweet flower of love. Stevie Wonder 5 Pendle Please contact any Liaison Officer Pendle View Primary School, Thurs 31 March 1:30pm – 3pm Gibbfield Road, Colne Thurs 26 May 1:30pm – 3pm BB8 8JT
Preston Liaison Officer: Norma O’Hagan Preston City Trampoline Club , Unit 9 Lane Ends Wed 09 March 10am – 12noon Trading Estate, Blackpool Road, Preston PR2 2DS Sir Tom Finney School Thurs 12 May 10am – 12noon Ribbleton Hall Drive Preston PR2 6EE
Ribble Valley Liaison Officer: Lauren Robertson Community Room, Clitheroe Fire Station, Thurs 03 March 1pm – 3pm Princess Avenue, Thurs 05 May 1pm – 3pm Clitheroe, BB7 2AL
Rossendale Liaison Officer: Lauren Robertson Staghills Children Centre, Mon 14 March 1pm – 3pm Top Barn Lane, Mon 25 April 1pm – 3pm Newchurch, Mon 16 May 1pm – 3pm BB4 7UE
West Lancashire Liaison Officer: Sue Gaskell Park Children’s Centre Tue 08 March 1pm – 3pm Barnes Road Skelmersdale WN8 8HN First Steps Children’s Centre Tue 10 May 10am – 12noon Eavesdale, Tanhouse Skelmersdale WN8 6AU
Wyre Liaison Officer: Rachel Shatford Fleetwood Fire Station Thurs 28 April 1pm – 2:30pm Radcliffe Road, Fleetwood Thurs 19 May 1pm – 2:30pm FY7 6UJ
All the dates can also be found on our face book page which includes information on guest speakers:- www.facebook.com/LancashireLocalOffer 6 Trampers in Lancashire
Trampers are electric powered all terrain mobility buggies that enable physically less able people to experience and enjoy the best that the Lancashire countryside has to offer.
The Trampers are available for hire every day (with the exception of Christmas Day) at our two Country Parks, Beacon Fell nr Preston, and Wycoller nr Colne, where, after a short induction training, users will find waymarked trails leading to view points and points of interest. Though we try to accept bookings on the day it is best to book a minimum 24 hours in advance. We also provide a very popular guided walks program that includes many events which are Monday to Friday please ring 01772 533919. On Tramper accessible. For more information our weekends for Beacon Fell please phone events program can be accessed at: 01995 640557 or for Wycoller please phone www.lancashire.gov.uk/leisure-and-culture/ 01282 870253. country-parks-and-nature-reserves There is a Tramper at Beacon Country Park, The Trampers provide an opportunity for people Up Holland which is provided by West Lancs to experience Lancashire’s countryside for the District Council: www.westlancs.gov.uk/leisure- very first time or to re-visit old haunts after illness recreation/parks-and-countryside/parks-and- or infirmity has reduced their mobility. countryside-sites/beacon-country-park.
The Tramper is available to hire free of charge For other Trampers visit: but advance booking is essential. Trampers are www.forestofbowland.com/access-for-all available for everyone with low mobility who is www.visitlancashire.com/things-to-do/walking- over 14 years of age. Trampers are available from routes/tramper 10am to 3.30pm every day and booked in 1 or 2 www.ribblevalleyshopmobility.co.uk/ hour blocks.
Walks with buggies, the only UK web-site totally Accessible Walks dedicated to providing free information on routes that are suitable for parents with buggies and The following websites have information on young children. accessible walks:- www.walkswithbuggies.com/UK/Lancashire Accessible Countryside for Everyone – ACE Access Ability Walks – weekly walks around is a website providing information on walks, Blackburn and East Lancashire that are easily countryside and green spaces which are paced and accessible for all. accessible to those using wheelchairs, mobility www.accessability.org.uk/access-ability-walks scooters, pushchairs and buggies, as well as info www.facebook.com/AccessAbilityUK on disabled and carer organisations, accessible camp sites, holiday accommodation, sports, Lancashire Walks, A different walk for every week taxis, pubs and restaurants. ACE promotes and of the year. Explore the diversity of the Lancashire encourages the publication of accessibility info for countryside. A user friendly site for the casual leisure and recreation. walker. This site also includes tramper trails. www.accessiblecountryside.org.uk www.lancashirewalks.com Walks with wheelchairs, UK web-site totally Opposite are some accessible walks which are dedicated to providing free information on routes available in Lancashire. Would you like to share that are suitable for those that use a wheelchair. your favorite walk? Send in information and www.walkswithwheelchairs.com pictures to appear in the FIND Newsletter via www.walkswithwheelchairs.com/Lancashire email to [email protected] 7 Barrowford Park, off Gisburn Road, Alkincoats Park, Alkincoats Road, Colne Barrowford, BB9 6EW BB8 9QQ
Barrowford Park was first awarded a prestigious Green Alkincoats Park was first awarded a prestigious Green Flag in 2008, and has maintained its flag ever since. Flag in 2009, and has maintained it ever since. It is The park has a bowling green, war memorial and two an open park with plenty of recreational space. The children’s playgrounds, and some outdoor fitness main attractions of the park are the four tennis courts, equipment. In the heart of the park are a lake and a the bowling green, the bandstand, the children’s play wetland area. The lake was once the original mill pond. area, the picnic areas, and a Cafe which was opened in The pond is populated with moorhen, ducks and coots. Spring 2012. Also situated at the back of the park is Barrowford Cemetery which incorporates the Woodland Cemetery. Play Facilities A new picnic area has been developed near to the There are two playgrounds, both of which are dog free cemetery. The park hosts both the annual Barrowford areas: Show and events organised by the Friends Groups and • Infant: 3-5 year old, Park Keeper Service. • Junior: 5-14 year old
Disabled Facilities Disabled Facilities Many of the footpaths are wheelchair friendly • The playground has facilities for disabled users. Disabled toilets are available at the Heritage Centre • Many of the footpaths are suitable for people with and Bowling Pavilion (in season) low mobility. Disabled car parking bays are available at the Heritage • Disabled car parking bays are also available at the Centre entrance to the park. Alkincoats Road entrance. www.pendle.gov.uk/info/20088/parks_and_outdoor_ www.pendle.gov.uk/info/20088/parks_and_outdoor_ recreation/243/parks_in_pendle/4 recreation/243/parks_in_pendle/2
Fairy Glen, Appley Bridge The secluded atmosphere of the Glen - one of the most Abbey Lakes, picturesque woodlands in the borough - provides the Up Holland ideal home for an abundance of wildlife. A visit to peaceful, The waters of Sprodley Brook have, over time, cut secluded Abbey Lakes down through the underlying sandstone to create can help soothe away the steep Fairy Glen valley, which has spectacular the stresses and strains waterfalls and cliff faces. of modern life. The Fairy Glen Circular walk has wheelchair friendly paths. A wide variety of ducks, geese, swans, and other wetland birds congregate on the lake, making it the www.westlancs.gov.uk/leisure-recreation/parks- ideal place to introduce your children to the joy of and-countryside/parks-and-countryside-sites/fairy- feeding ducks. glen,-appley-bridge.aspx The lake was formerly a supply lake for a local abbey Brockholes Nature Reserve, Preston New and the fascinating history of this site has recently Road, Salmesbury, Preston PR5 0AG been the subject of the Abbey Lakes Heritage Project. Abbey Lakes is now a popular local coarse angling Most of the footpaths at Brockholes are level and facility. It’s leased to a local club and day tickets are surfaced. The kissing gates are accessible for smaller available from the bailiff who patrols the banks. Angling wheelchairs and pushchairs and are shown on the Trail platforms are provided around the lake with access via Access Guide. a circular path around the site. There is a vehicle access gate next to all kissing gates on surfaced paths. If you use a large mobility vehicle Disabled access or pushchair you can obtain a key to these gates for wheelchair friendly paths. your visit. Keys are available from the Welcome Centre for a £10 refundable deposit. www.westlancs.gov.uk/leisure-recreation/parks- There is a café and adapted toilets in the Welcome and-countryside/parks-and-countryside-sites/ Centre. abbey-lakes,-up-holland.aspx www.brockholes.org
I feel a physical happiness when spring is coming. Halldor Laxness 8 WWT Martin Mere Wetland Centre, Fish • There is step-free entry to all our hides Lane, Burscough L40 0TA • Accessible toilets • Restaurant staff are friendly and helpful and will has the following facilities: carry trays to the table if required • Free accessible car parking provision – 2 • Pond-dipping with station for wheelchair-users designated spaces • Accessible boat safari – maximum 2 manual • Trained assistance dogs welcome wheelchair-users per trip • Hearing induction loop in reception • Waterplay – accessible (boardwalks / gravel) for • Maps can be enlarged, please ask ahead of your children using wheelchairs visit • Eco Garden – a great sensory experience • Manual wheelchair available to loan • The paths around the site are level access www.wwt.org.uk/wetland-centres/martin-mere/ • Roaming volunteers, grounds and reception staff on hand if you require assistance
well as in. Seeing yourself, and your happiness, 5 Ways to Wellbeing linked to the wider community can be incredibly rewarding and creates connections with the • Connect… with the people around you. With people around you. family, friends, colleagues and neighbours. At home, work, school or in your local community. Health Benefits to Physical Activity Think of these as the cornerstones of your life To stay healthy, adults should try to be active daily and invest time in developing them. Building and aim to achieve at least 150 minutes of physical these connections will support and enrich you activity over a week through a variety of activities. every day. For most people, the easiest way to get moving is • Be Active… Go for a walk or run. Step outside. to make activity part of everyday life, like walking or Cycle. Play a game. Garden. Dance. Exercising cycling instead of using the car or public transport makes you feel good. Most importantly, discover to get around. a physical activity you enjoy and that suits your However, the more you do, the better, and taking level of mobility and fitness. part in activities such as sports and exercise will • Take Notice… Be curious Catch sight of the make you even healthier. beautiful. Remark on the unusual. Notice the For any type of activity to benefit your health, you changing seasons. Savour the moment, whether need to be moving quick enough to raise your heart you are walking to work, eating lunch or talking rate, breathe faster and feel warmer. to friends. Be aware of the world around you • Reduce the risk of heart disease & high blood and what you are feeling. Reflecting on your pressure experiences will help you appreciate what • Helps control weight and increase your matters. metabolism (the rate we burn calories) • Keep learning… Try something new. Rediscover • Reduce some of the effects of ageing an old interest. Sign up for that course. Take • Make joints, tendons and ligaments more flexible on a different responsibility at work. Fix a bike. • Can relieve stress and anxiety and make you feel Learn to play an instrument or how to cook your happier favourite food. Set a challenge you will enjoy • Increase energy levels achieving. Learning new things will make you Helps you FEEL GOOD, MEET NEW FRIENDS and more confident as well as being fun. GET FIT! • Give… Do something nice for a friend, or a stranger. Thank someone. Smile. Volunteer your From Access Ability CIC – contact details on page 6 time. Join a community group. Look out, as
I wandered lonely as a cloud That floats on high o’er vales and hills, When all at once I saw a crowd, A host, of golden daffodils; Beside the lake, beneath the trees, Fluttering and dancing in the breeze.” ~ William Wordsworth 9
What is Spring into Sport? Dance? 5aside? Classes and sessions for people who don’t do team sports? Whatever you’re into – we’ve got it! Springinto action Come along every fortnight to our NEW Spring into Sport sessions at Hyndburn Leisure Centre.
Spring into Sport is an inclusive and fun community Spring into Sport sports project where you decide what sports and activity the group does. Meet friends, have fun and Your Inclusive Community Sports Club try out activity that YOU want to do! Who’s it for? Stuck for something to do? People with and without learning disabilities, their • Bring yourselves AND YOUR mates siblings and friends, aged 11 - 17. Activities also available for people aged 18-30 at the same club. • Make new friends Contact us for details. • What the weekends are made for Where and When? When: Every Fortnight on Fridays, starting 8th April 2016 Time: 6.30pm – 8.30pm Where: Hyndburn Leisure Centre, Henry Street, Accrington, BB5 4EP Cost: £3 per person Who can tell me more? Call Lucy on 01254 457026 Text: 07956 018422 Email: [email protected] Starting www.spring-projects.co.uk Friday Funded by 8th April Follow us on Twitter: @SpringAndYou Like us on Facebook: 2016 facebook.com/SpringProjects Spring into Action CIC is a provider of quality inclusive services for people with disabilities.
The Wheels for All initiative is a nationally recognised programme that embraces all children and adults with disabilities and differing needs, to engage in a quality cycling activity. By using specially adapted cycles, the activities are both physically and mentally stimulating and above all fun for everyone involved. Wheels for All sessions - Inclsuive cycling for all abilities, aged 16+. All the centres are equipped with specially adapted cycles and Wheels for All trained leaders, who have the knowledge Every Monday and Thursday and confidence to work with adapted cycles for participants 10am to 2.30pm to enjoy the benefits of cycling. The centres welcome Moor Park, Preston, PR1 6AS individuals, groups and families to be involved. Junior Wheels for All - specifically for children and young Wheels for All Training gives individuals, carers and support people. staff the confidence to work with adapted cycles for their clients or family member so that all can enjoy the benefits Every Fortnight on a Saturday of cycling in a sociable environment. We even provide the 11am to 12.30pm adapted cycles so everyone can get involved. Moor Park, Preston, PR1 6AS
Preston on Wheels is a Big Lottery funded project in For more information please contact Yunus on partnership with Groundwork. Our sessions are suitable for 07748207549 or 01925 234213 everyone, from the complete beginner to the experienced Email [email protected] / [email protected] rider, and cater for all abilities. 10 She struggles to make herself understood Paul’s story and is only able to vocalise a couple of words together. She often gets frustrated when we don’t The date of March 21 is doubly significant for me understand her and that’s when her behaviour and my family every year. Firstly, it is my daughter deteriorates. But she is rather adept at Signalong Isabella’s (Izzy) birthday and she will be 11 this and possesses an extensive vocabulary. It year. Secondly, and rather coincidentally, it is is through this method that we are able to World Down’s Syndrome Day. Izzy has Down’s communicate. Syndrome. Public consciousness of Down’s syndrome has March 21 is the date because it signifies the increased over time thanks to the diligent efforts of triplication (trisomy) of the 21st chromosome. the Down’s Syndrome Association and many local groups. Plus there are actors with the condition Yes, Isabella has Down’s syndrome but she also appearing in soap operas. This can only help has blue eyes, the type of hair that her mother is awareness and stymy the ignorance. continually striving to keep tidy and a burgeoning personality and spirit that can shatter a serious Raising awareness and understanding of the moment into shards of comical mayhem. She is condition is just as important as raising funds for extremely hard work as is any child on the cusp of these charities. adolescence, but Izzy also has a severe learning disability, struggles to communicate and has also Although the transition of time has positively been diagnosed with ADHD. changed attitudes and opinions about people with disabilities and learning difficulties, inconsistencies It was not until she was around two years’ old that still exist and families like mine rely on these I had realised the significance of the date. March groups to raise awareness. is a busy time for birthdays in our household: Nannette - my wife - celebrates her birthday on the People with Down’s syndrome do not suffer as a sixth, Ella Rose on the 14th and seven days later it result of their condition. is the turn of Izzy. It is not a disease, nor are they victims. They are As a parent of a child with Down’s syndrome, not mentally handicapped, retarded or backward. I am constantly searching for and devouring information. It is helpful to hear of other families’ They are our children, siblings and friends. So experiences and relate them to our own. When I if you see many people wearing green rather stumbled upon the Down’s Syndrome International incongruently this week, don’t think that they are website, shortly after Izzy’s first birthday, I afforded being fashionably-naïve, they are simply lending myself a wry smile when the connection dawned. their support to World Down’s Syndrome Day.
But smiles are what Isabella brings to us in Paul Holliday, parent carer abundance. From her pleasantly impish grin to the manner in which she walks; or rather, waddles. She can beam light to a darkened state and radiate The Down’s Syndrome Association has lots warmth to a refrigerated mood. I’ve had the great of information on Down’s Syndrome including fortune of watching her grow up into a young lady. information for new parents: There is no greater tonic than a warm hug from her. www.downs-syndrome.org.uk To be greeted by her when I return home from a long, hard day at work, is one of the things I most You could also check out ways on how you can look forward to. raise awareness of Down’s Syndrome through their website at: www.downs-syndrome.org.uk/policy- As parents we don’t pretend that life has been and-campaigns/awareness-week/ straightforward for Isabella. It is wrong to judge her development alongside others, but comparison is frightfully impossible to avert.
If a child can’t learn the way we teach, maybe we should teach the way they learn. ~ Ignacio Estrada 11
12
disabilities can do amazing things with their lives if DanceSyndrome’s given a chance”. Jen Blackwell wins Jen’s mum Sue Blackwell said “There was tough competition from the other finalists but she did it! Jen has won this award because of her determination Inspirational Woman of to have a life in dance. She’s succeeding in her chosen career and so can other people with learning the Year disabilities.”
Jen Blackwell aged 33 from Chorley has won DanceSyndrome Managing Director Dawn Vickers Inspirational Woman of the Year in the Enterprise says “I am so proud of Jen for winning this award. Vision Awards 2015. Jen, who happens to have I know that Jen wants to inspire other people with Down’s syndrome, was nominated by colleagues at learning disabilities to lead a life of their choosing and inclusive dance charity DanceSyndrome, which Jen winning “Inspirational Woman of the Year” will help her founded - along with support from mum Sue - in 2009. to get the recognition that she deserves.” DanceSyndrome provides opportunities for people with learning disabilities to lead their own dance The Enterprise Vision Awards recognise women in workshops in the community across Lancashire and business from across the North West and celebrated Greater. Jen founded DanceSyndrome because she their 5th annual event on Friday 25th September 2015 could not find any opportunities to work in community at the Empress Ballrooms, Winter Gardens, Blackpool. dance. Now many people like Jen are training to become dance leaders and dancing together with For further information and photography please professional dance artists to produce beautiful contact: performance pieces which they perform across the UK. Dawn Vickers, Managing Director Email: [email protected] Jen says “I cannot believe I’ve won Inspirational Web: www.dancesyndrome.co.uk Woman of the Year, I’m so thrilled and grateful to Phone: 07875 128015 everyone who voted for me. Dancing is my life, I am Facebook: www.facebook.com/ passionate about dance and about supporting people dancerleddisabilityinspired like me to have opportunities in the dance world. Twitter: @Dancesyndrome Winning this award shows that people with learning 13 DanceSyndrome Workshops
DanceSyndrome offers weekly workshops in the community for adults of all abilities. DanceSyndrome workshops are inclusive and innovative. We believe that dancing can be fun for everyone, whatever your age or ability. Our trained dancers, both with and without learning disabilities, work alongside each other to offer dance workshops for anyone who wants to improve their physical health and personal wellbeing.
DanceSyndrome currently offer the following workshops:
Chorley - Tuesdays 10.30am - 12.30pm - The Arts Partnership, Chorley Community Centre, Railway Street, Chorley
Preston - Wednesdays 10.15am to 11:45pm - Plungington Community Centre, Brook St, Preston
Hindley - Wednesdays 10.30am to 12pm - The Rose Club, Atherton Road, Wigan
Accrington - Thursdays 10.30am to 12pm - New Era Complex, Paradise Street, Accrington
DanceSyndrome also work with schools to offer accessible, inclusive dance workshops to help children of all ages.
If you would like to discuss the possibility of DanceSyndrome visiting your child’s school please call 07597 942494 or email [email protected]
For more information about everything that Dancesyndrome offers please visit www.dancesyndrome.co.uk
Lancaster Down’s Syndrome Family and Carers Group
Meet on 1st Saturday of each month at Appletree Children’s Centre Milking Stile Lane Lancaster, LA1 5QB
Contact us on: 01524 64132 Or email: [email protected]
Bolton Smiley Faces
Bolton Smiley Faces is a parent-led Down’s syndrome support group. Our aim is to support families and carers and all those with an interest in Down’s syndrome in Bolton and the surrounding area.
E: [email protected] W: www.boltonsmileyfaces.org.uk 14
ContactContact Details: Details: E:E: [email protected] [email protected] T: T: 07738 07738 129447 129447 Website:Website: ww.taaglancashire.co.uk ww.taaglancashire.co.uk Twitter:Twitter: @TAAG_Lancashire @TAAG_Lancashire 15 2016/2017 Meeting Dates
Support group for children with Autism2016/2017 Spectrum Conditions, and their families Meeting Dates
Support group for children with Autism Spectrum Conditions, and their families
Welcome to the Junior Autism Group (JAG). JAG is a Lancashire based initiative, whose primary focus If you have a child who is going through an Autism is as a support group in the South Ribble/Preston area for children aged 0-11 with Autistic Spectrum assessment or who has recently been diagnosed, Conditions (ASC) and their families. Our aim is to enable children with ASC to play and their parents/carers to relax in a friendly, supportive and safe environment. local support group JAG can help. JAG is a Welcome to the Junior Autism Group (JAG). JAG is a Lancashire basedcommunity initiative, basedwhose group primary set up focus primarily to provide Please see belowis as the a dates support of our meetings/playgroup in the sessions South Ribble/Preston area for children ageda safe 0-11 and with non-judgmental Autistic Spectrum place for children on the which are all held on the third Monday of each month, Autism Spectrum to play, whilst their parents can meet except each DecemberConditions which (ASC) is one week and earlier. their families. Our aim is to enable children with ASCand to share play information, and their parents/carersconcerns and exchange ideas to relax in a friendly, supportive and safe environment. in a friendly environment. Cheeky Monkey’s Play and Party Centre Kem Mill Lane Whittle-le-WoodsPlease see below the dates of our meetings/play sessions In addition to regular monthly meetings, JAG also Nr Chorley which are all held on the third Monday of each month, have guest speakers, a monthly raffle, a large library PR6 7EA of Autism related books and will be running an outing except each December which is one week earlier. in April. The time is 6.00pm - 7.30pm. From £1 per childCheeky entry fee! Monkey’s Play and Party Centre To find out more and contact JAG, please visit their Kem Mill Lane website at: Whittle-le-Woods www.juniorautismgroup.co.uk 2016 Nr Chorley2017 18th JanuaryPR6 7EA 16th January 15th February 20th February 21st March The time is20st 6.00pm March - 7.30pm. 18th April From £1 per17th child April entry fee! 16th May 15th May 20th June 19th June 18th July 17th July No meeting in August No meeting in August 19th September201618th September 2017 17th October 16th October 18th January 16th January 21st November 20th November 12th December15th February11th December 20th February 21st March 20st March 18th April 17th April From our beginnings in 2011, our growth is testament to our success and we look forward to your continued support. The more16th members May we have, the more we can15th do forMay the children and us as parents/carers. Our aim is for the children to have oodles of fun and for the parents/carers to gain support through meeting other families.20th We June regularly invite professionals19th to speakJune at our meetings on a variety of topics and we also have 18than extensive July library of specialist titles,17th all Julyof which, are free to borrow. No meeting in August No meeting in August
For more19th information September please call 07437 86756218th, email September [email protected] SERVICES or visit www.juniorautismgroup.co.uk 17th October 16th October • Extensive Autism related lending library, stocked with Books, DVD’S , CD’S 21st November 20th November • Regular events and activities for the children 12th December 11th December • Regular professional guest speakers covering ASD related topics • Training opportunities for parents/carers • Advice relating to Disability Law, special Educational From our beginnings in 2011, our growth is testament to ourNeeds success Law and we look forward to your continued support. The more members we have, the more we can• doTheraputic for the children services/Activities and us as parents/carers. for parents/carers, plus Our aim is for the children to have oodles of fun and for themuch parents/carers more to gain support through meeting other families. We regularly invite professionals to speak at our meetings on a variety of topics Rainbow is a parent support group for children aged and we also have an extensive library of specialist titles, all of which, are free to borrow. 2-12yrs with Autistic spectrum disorders, (Autism, VENUE Aspergers Syndrome, Dyspraxia) We meet on the first Wedneday of each month from 6-7.30pm at Mini Magees playcentre, 60-62, Lodge We can and will sign post you to the right people and street, Ashton, Preston, PR1 8XE, the venue is booked organisations whoFor will more help informationyou get all theplease support call 07437 you 867562EXCLUSIVELY, email [email protected] for our use, siblings are welcome to attend or visit www.juniorautismgroup.co.uk and your child need and are entitled too. Our group is (no meetings in August) run by parents who have children with ASD, and is totally non-judgemental, being the parent of a child with ASD Find us on facebook - rainbow autism group Lancashire can sometimes feel like a very isolating experience, [email protected] but all our children have similar difficulties. We are all Contact Details: in the same boat and have shared the same problems, Rainbow meetings are relaxed and informal, the children 07954-258584 E: [email protected] T: 07738 129447 can play in a safe environment that has a wide range of Website: ww.taaglancashire.co.uk facilities. Twitter: @TAAG_Lancashire 16 Preston Disability Swim -relaxed swim available for disabled people and their families.
• Where: West View Climbing and Leisure Centre West View, Preston, PR1 5EP • When: Saturdays, 6.30pm - 7.30pm • Cost: free
No need to book. All sessions are on a first come first serve basis.
Hyndburn Disability Swim – session for people with disabilities wishing to swim in a more private and personal environment. Pool hoist facility available. Swimming • Where : Hyndburn Leisure Centre, Henry Street, Church, Accrington, BB5 4EP If you are the parent or carer of a child with disabilities • When : Tuesdays, 10.30am – 11.30am or special needs ensure they don’t miss out on all the • Contact: 01254 385945 fun and skills that can be gained by getting wet!
Swimming is a great activity for improving health and Swimming Lessons fitness and is often prescribed for children with a physical disability as a form of therapy because the Ensure your child doesn’t miss out on the benefits of water is weight bearing. It’s also a great leveller and swimming. Track down swimming lessons today. brings a feeling of equality. Once the swimmer is in the water often any physical disabilities are irrelevant. Depending on their disability, your child could learn to swim with non-disabled children and progress through Joining in with lessons or getting involved in a club the same ASA awards, but may be exempt from some is a good way for making those all important social skills where he or she is physically unable to achieve connections for your child. Meanwhile the sensory them. element of the water can stimulate interaction in children with emotional, behavioural and However, different pools have different policies. So we communication disorders and neurological conditions recommend you contact your local pool before booking such as autism. lessons. For more information please visit: Glovers Swim School offer swimming lessons and www.swimming.org/go/disability develop water confidence for babies, children and adults of all abilities in the Preston, Lancashire area. South Ribble Fun Swim – TAAG hold a Monthly Fun Lessons are held at locations in Longridge, Broughton, Swim & Parent Support Group. We have toys, floats, Kirkham and Blackpool. They also specialize in balls and lots of fun and exciting swimming pool teaching children with autism and Asperger’s games. Our sessions are led by trained and supportive Syndrome. staff from Breaking Barriers and Lancashire TAAG. • Where: Leyland Leisure Centre, Lancastergate, W: www.gloverswimschool.co.uk Leyland, PR25 2EX and Brinscall Baths, Lodge Bank, E: [email protected] Brinscall, Chorley, PR6 8QU T: 07912 373337 • When: please contact TAAG to confirm on:07738 129447 or email: [email protected] Deaf-Friendly Swimming Lessons - NDCS in • Cost: £2.00 partnership with Trafford Community Leisure Trust are • Young Children/Teens Ages 10yrs - 18yrs holding swimming lessons for deaf children and young • Parents Support Group held in the cafe area people in the North West. Young people will make new • Limited places available, please book via email: friends, take part in fun activities and improve their [email protected] swimming skills, delivered by fully qualified, deaf aware swimming teachers. Due to high demand we are planning more swimming
sessions for children and young people and their • Partington Sports Village, Chapel Lane, Manchester families. M31 4ES • Every Friday Bamber Bridge special needs swim– a session for • Beginners 4pm – 4.45pm those with additional needs. • Intermediate/Advanced 4.45pm – 5.30pm • Where: Bamber Bridge Leisure Centre, Brindle Road, • Variety of age groups Bamber Bridge, PR5 6YJ • £4.80 per lesson • When: Saturdays, 5pm – 6pm
• Cost: £2.40 E: [email protected] T: 0161 826 3954 17
Fylde Sharks Disability Swimming club offers 1 : 1 swimming lessons to children with all disabilities, up to and including 18 years of age.
Swimming lessons are fortnightly and are held at St Annes YMCA swimming pool on a Saturday afternoon and Kirkham YMCA Rural Splash swimming pool on a Sunday afternoon.
For further information please look at the website www.fyldesharks.co.uk
For further enquiries please phone 07922 522895 or email [email protected]
St Peter’s Centre, Burnley Aqualions Sunday 4:00pm till 5:00pm For people with physical and learning difficulties.
This session is for our members to relax and try to improve their swimming, in a Special Needs Swimming Club friendly and comfortable environment. Sundays, 3:30pm – 5:30pm For more information please call the centre New members always welcome 01282 664444 or ring Brian Crossley on Come along to: Marl Pits Swimming Pool, Newchurch Rd, 07764790386 Rossendale, Lancashire BB4 7SN Contact us on: and it’s 07515 515386 FREE! Facebook: www.facebook.com/RossyRays 18 Jubilee Pool, Tennyson Street Bolton, BL1 3HG
Jubilee Pool in Halliwell is designed for all members of the community, especially those with disabilities and their families.
Facilities include: It has several unique features and every Disabled Swim Times effort has been made to enable everyone to participate in swimming. A luxurious water Monday 9am – 12noon temperature of 95f -Accessible by chair lift or Tuesday 9am – 12noon 1pm – 3pm steps - Handrail surrounding the pool - Plastic Wednesday 9am – 12noon 1pm – 3pm wheelchair if required for use in the showers - Mobile hoist - Hot & Cold Drinks. 6pm – 8pm (open swim) Thursday 10am – 12noon For further information, contact the pool on 01204 334443 Friday 10am – 12noon 1pm – 3pm Sunday 10am – 11:30am (adults only) There are also two sensory rooms available at the pool. For more information, please call 01204 337808 or email [email protected]
Developed for children and young people with disabilities, their families, carers and friends, Quiet Nights sessions are brought to you by the Aiming High team at Sefton Council and run every couple of weeks on a Friday at Splash World. These exclusive sessions are designed to provide a splashtastic fun time in a safe environment.
2016 sessions: March 4, 18 Time: 6:30pm – 8:30pm Cost: £6 per person (+ 1 carer FREE)
Dunes Splash World, the Esplanade, Southport, PR8 1RX Telephone: 01704 537160 Email: [email protected] Twitter: @gotosplashworld
One swallow does not make a summer, but one skein of geese, cleaving the murk of March thaw, is the Spring. Aldo Leopold 19
Hydrotherapy Pool - sessions for Children and Young People with Disabilities or Additional Needs aged 0-19, their siblings and Carers
Monday 4.00 – 5.00 Carers Hydrotherapy Relaxation (4 max) £3.00 each Tuesday 4.00 – 5.00 Family Hydrotherapy (6 max) £3.00 each Wednesday 4.00 – 5.00 Waterbabies Thursday 4.00 – 5.00 Carers Hydrotherapy Relaxation (4 max) £3.00 each Friday 4.00 – 5.00 Carers Hydrotherapy Relaxation (4 max) £3.00 each Saturday 9.30 – 12.00 Waterbabies
Twinkle House in Skelmersdale provides a free with disabilities or additional needs throughout the sensory-based personalised support service for North West, at a discounted cost. Some rooms may children and young people 0-19 with disabilities also be utilised by the general public when they are and additional needs living in West Lancashire not being used by those with Disabilities. and neighbouring areas. We provide practical and emotional support to these children and their We have sensory light and dark rooms and a dance carers in order to empower them to bring about studio for group activities or parties. There is also positive change in their lives, thus improving their a café facility on site providing drinks and light mental health and well-being. snacks. We also hire out some of our rooms to people We are a not for profit organisation therefore all funds raised are used for charitable purposes. Telephone to book: 01695 455625 www.twinklehouse.co.uk Twitter: @TwinkleHouse2 Facebook: www.facebook.com/twinkle.house.77 Registered Charity No. 1121205
Hydro at the Barn Hydrotherapy pool for hire - Cottams Farm, My Life-My Choice Ltd Clayton-le-moors, Accrington, BB5 5SB. Big Blue Door is a centre in Oswaldtwistle, East Opening times Lancashire where children and young adults with Mon - Friday 9am - 7.30pm disabilities can receive respite care and support. Saturday 9am – 6pm Sunday 9am – 5pm We have a hydrotherapy pool with changing area, £35 per hour including changing times tracking and hoist, wash basin and toilet facilities. T: 07969 443995 All floor surfaces in the area are non-slip. E: [email protected] W: www.hydroatthebarn.co.uk For more information, contact us on: 01254 278378 Or visit our website: www.mylife-mychoice.co.uk
Music comes from an icicle as it melts, to live again as spring water. Henry Williamson 20
Phab Residential Projects 2016 Phab is very pleased to offer a unique range of Inclusive Living Holiday Projects for children and young people aged 8 – 25 years with and without disabilities where everyone can take part and be included. All Phab projects have an emphasis on self-reliance, building confidence and independence, breaking down barriers, learning to work as a team and most importantly having fun! The projects take place at accessible outdoor activity centres set in beautiful locations around the country. With over 200 places available, the following projects are now open to applications:
Bendrigg Lodge, Lake District, Seven Nights Bendrigg Lodge, for 8 – 18 years, Lake District Weekend 30th July – 6th August for 8 – 18 years, 24th – 26th June
Avon Tyrrell, Hampshire, Six Nights for 8 – 25 years, Bendrigg Lodge, 13th – 19th August Lake District, Seven Nights for 8 – 18 years, 6th – 13th August Phab does everything it can to make these projects affordable to everyone – we will not deny Bendrigg Lodge, anyone a place Lake District, simply because of the cost Family Weekend (Children 8 – 18 years) From only £65.00 14th – 16th October per child all inclusive!
For further details please contact Rebecca Hargreaves, National Projects Manager on 01254 824784 or [email protected] or apply on line at www.phab.org.uk 21
Sleep Service We provide free support for families with disabled children aged between 2 and 19 to help them get the sleep they need.
Over 70 per cent of disabled children have sleep problems. Lack of sleep can affect learning, mood, behaviour and health, and can affect not only the Scope disabled child but often the whole family. We offer a bespoke sleep support service to Face 2 Face is a network of local schemes, families. Our sleep practitioners can work with providing emotional support to parents of disabled families to create individual sleep programmes and children. offer guidance and support all along the way to a better night’s sleep. Local schemes recruit and train volunteer parents, who themselves have disabled children, to act as We also run regular ‘Time 2 Sleep’ workshops, ‘Befrienders’. Befrienders are able to share and open to both parents and professionals which offer empathise with other parents because of their own advice and support on dealing with common sleep emotional experiences. They can support them to problems for children with additional needs. Please make positive adjustments towards dealing with contact Julia Johnson for details on when the next their child’s disability. Sleep Workshop will run.
If anyone would like to talk to one of our trained For more information about these services please befrienders, or would like to find out more about contact: becoming a volunteer, please contact Julia Johnson (details below). Julia Johnson: 07974 197894 Or email: [email protected] We also run regular drop-in sessions in Preston, You can also check out our Facebook page at: West Lancs and South Ribble. Please contact us www.facebook.com/Scopeface2facenorthwest for details or check our Facebook page.
‘Lots of information available’
‘Liked the go karts’
‘Being able to speak to relevant people under one roof’
‘Would like to attend an event like this again it is Thank you to Rascals for letting us hold the family fun for kids and parents’ event on the 20th January. It was a good turn out with children having a fun time playing and lots of ‘It was like a party’ organisations available to get information. Thank you also to the Lancashire Parent Carer Forum ‘Great Venue’ Steering Group for funding the fantastic buffet. Some of the quotes received:- Rascals is open 7 days a week, for information on what is available:- ‘It was good to be able to find out information www.rascals-play.co.uk/ whilst children were playing’ Tel: 01772 823889 Email: [email protected] ‘Food very nice and much appreciated’
A mother is a person who seeing there are only four pieces of pie for five people, promptly announces she never did care for pie. ~Tenneva Jordan 22 Sign Hi Say Hi! Session Programme
Tuesday 15th March 2016 (6.00-8.00pm) In house interactive session – Magician with CJ Tazz Entertainment Watch as the fun of the magician dazzles the eyes
Blackpool Centre for Independent Living, 259 Whitegate Drive Blackpool, Lancashire FY3 9JL For any child with hearing impairment, their siblings and families, within the Lancashire area. Tuesday 5th April 2016 (6.00-8.00pm) Interactive session – Blackpool Tower Circus Sessions cost £1.00 per person, and under 5’s are Come along and watch the world famous show free, unless stated otherwise. with Mooky the clown To book a place or for details of future events, The Promenade, Blackpool, Lancashire FY1 please contact Karen McLeod on 07437 335655 or 4BJ, meet at the Primark entrance. Children of email [email protected] members will receive free tickets, adult tickets are £9.00 per person. For queries on the day of an event, please contact Emma Kirkham on 07507 562797 Date subject to change. Please book by Tuesday 1st March 2016 at the latest
Caritas Care
Our group runs once a week from 6-9pm, and offers a safe and fun environment for young people aged 11-18 whilst giving parents and carers a short period of respite.
Feedback from our young people is really positive. Young people report feeling a real part of the group, accepted as individuals and encouraged to make new friends and try new things.
Parents feel confident that their children are happy at the group and have access to the types of activities that should be available to all young people. They report that Youth Club their children are well supported and are enthusiastic about attending. each Wednesday evening from 6:00pm to 9:00pm Recently we have been fortunate to have had access to an external facilitator who has £5.00 per session supported the young people in producing their own positive thinking portraits through Sports, Trips Out, Themed Parties, Bowling, Computer Games Arts & Crafts and much more. Come and make new friends at: the use of Mac computers. We are eagerly awaiting the finished products and feel the 218 Tulketh Road, Ashton, PRESTON PR2 1ES young people will have a very positive and For more information or to book a place visual reminder of the sessions. contact Caritas Care today
01772 732313 www.caritascare.org.uk Charity No 326021
23 Sir Tom Finney Community High School
During the summer Sir Tom Finney Community High School, Preston’s secondary special school, moved from its old premises on Blackpool Road and relocated to purposely designed and newly refurbished premises, with a new build extension, at Ribbleton Hall Drive, on the site of the old City of Preston High School. The performance hall is fully fitted with lighting rigs and sound systems and is big enough to host the whole school all together, along with a large audience.
Upstairs there are meeting rooms, staff workrooms and a conference facility designed for up to 40 attendees.
The school opened its doors in September with an official opening ceremony. VIP guests included Brian Finney, Andrew Flintoff and Jermaine Beckford, along with County Council dignitaries and officials. The school boasts bigger classrooms; specialist facilities for food and design technology, science, Planning is being developed to utilise the annex hair and beauty, art and design and ICT and building for extended schools activity and as a computing. Sensory learners benefit from an music studio. As the weather improves we can immersive light room and sensory facility, ceiling begin to look at developing the outside areas; hoists and hygiene facilities to meet personal needs ideas include a market garden for horticulture, an and intimate care. The PE facilities include a full outside gym, seated and covered areas. Lettings size sports hall, small gym and external Multi Use opportunities are being considered so facilities can Games Area. be shared with others.
As part of the design of the new build extension If you need further information about the school, or there is a new post 16 department fully integrated to enquire about lettings, call the school office on into the school and a large hydrotherapy pool with 01772 795749 or visit the website: extensive changing facilities for ambulant and non www.stfch.lancs.sch.uk ambulant users.
New music studio will be a fantastic new resource- It’s amazing that we have Our new interactive Mr Markland, Music our own hydrotherapy pool screens are fantastic - its fantastic - Alex Dawson Olivia Salthouse
More opportunities and space I’m looking forward to for our children, a much calmer A brilliant new annex for all Scouts being held in and relaxed atmosphere - Miss our extended services to the new STFCH Annex - Pilkington, year 10 teacher take place – Sarah Leaman, Kian Preston Family Liaison Officer 24 UK Safer Internet Centre - technology has Useful Websites become integral to young people’s lives and it is important that they know how to stay safe online Disability Grants – your guide to Grants for the and make the most of the opportunities that the Disabled. Charities and Trusts provide funding internet provides. For children and young people towards the high cost of disability equipment, , the site has games, films, quizzes and advice holidays, housing, days out...... in fact anything to help them stay safe online. For parents and above and beyond the normal costs of everyday carers, there is advice about key esafety topics living. Discover what’s available nationally and like social networking, as well as how-to guides in your local area by searching the individual for setting up filters and parent settings. sections. W: www.saferinternet.org.uk W: www.disability-grants.org Contact a Family - a national charity for families Money Saving Expert – if you’re struggling with disabled children. We provide information, on a low income, there’s a lot more cash out advice and support. We bring families together there to help than you may think. Charities, the so they can support each other. We campaign to Government and even companies often have improve their circumstances, and for their right to funds which are available to help, especially if be included and equal in society. Our vision is that you’ve got children. families with disabled children feel valued and are W: www.moneysavingexpert.com/family/grants- strong, confident and able to make the decisions low-income that are right for them. W: www.cafamily.org.uk Changing Places - standard accessible toilets do not meet the needs of all people with a disability. Working Families - the UK’s leading work-life People with profound and multiple learning balance organisation. We help working parents disabilities, as well people with other physical and carers and their employers find a better disabilities such as spinal injuries, muscular balance between responsibilities at home and dystrophy and multiple sclerosis often need extra work. We provide Advice and information for facilities to allow them to use the toilets safely and working parents and carers on their employment comfortably. Changing Places toilets are different rights, Tax Credits and in-work benefits, maternity to standard accessible toilets (or “disabled and paternity leave, flexible working options and toilets”) as they have extra features and more maternity discrimination. This includes a section space to meet the needs of people who use them. especially for parents of disabled children. There are now over 800 Changing Places around W: www.workingfamilies.org.uk the UK, and families can register for a free Toilet T: 0300 -12 0312 Map account. E: [email protected] W: www.changing-places.org Blind Children UK – formerly National Blind ERIC - the only charity dedicated to helping all Children’s Society. Our services support children children and teenagers with continence difficulties with sight loss and their families every step of in the UK. We work to improve the quality of life the way – from the challenges of getting an of children, young people and their families in the initial diagnosis, right through the journey into UK who suffer from the consequences of wetting adulthood. Blind Children UK’s CustomEyes and soiling difficulties, to help them manage service produces large print books for children or overcome these problems. ERIC provides with vision impairment. These are tailor-made for information, support and resources to children, each child or young person, but we only charge young people and their families and health the recommended retail price. As Blind Children professionals on bladder and bowel problems. We UK is part of the Guide Dogs Family, we can also also have a confidential Helpline (Mondays and offer Buddy Dogs and guide dogs for young Thursdays, 10am – 2pm); you can also email or people. contact us via facebook at any time of the day or W: www.blindchildrenuk.org night. T: freephone 0800 781 1444 W: www.eric.org.uk E: [email protected] T: 0845 370 8008 E: [email protected] F: www.facebook.com/ERIC.UK1
“Daffodils that come before the swallow dares, and take the winds of March with beauty.” ~ Shakespeare 25 New site for children coming to hospital
A new website has been launched specifically to help There are leaflets and other information about different young people when coming in to hospital. conditions all laid out in a way that young people will be able to understand. The site was created by Blackpool Teaching Hospitals NHS Foundation Trust with help from young patients Fiona Jones, Patient Experience Officer for child health who have spent time in hospital. at the Trust said: “Coming in to hospital or meeting a new team can often be a bit scary, being able to find It is full of information presented in a way that will out more and see pictures and videos of where you are engage with young people and aims to put their minds coming and who you might meet will hopefully make it at rest before coming for treatment. less daunting and help you feel safe and happy.
Each children’s health service with the Trust, as well as “We have had help from local schools such as the children’s day case surgery, clinic and wards have Highfurlong School and lots of children and young easy to read profiles with contact information, pictures, people have also told us what information should go a video and information about how to get help from on and how it should look. them. “We hope it helps children, young people and The site was created with the help of the hospital’s parents access information about their health and Victoria’s Voice young patients’ advice group, and welcome any feedback about the site.” other local children, is filled with informative videos such as what happens during a ride in an ambulance, The site is live and can be found at what all the different departments in the hospital www.bfwh.nhs.uk/childrens/ are, who they are likely to meet and what is going to happen. 26 Dear FIND Welcome to Holland
Dear FIND, my child is 16 and is continuing I am often asked to describe the experience of their education in a Special School. I did raising a child with a disability – to try to help people receive tax credits, but these were recently who have not shared that unique experience to stopped as my child does not attend a sixth understand it, to imagine how it would feel. It’s like form college or training. this…
A: Child Tax Credit usually stops on 31 When you’re going to have a baby, it’s like planning August after your child turns 16 but can a fabulous trip – to Italy. You buy a bunch of continue for children under 20 in approved guidebooks and make your wonderful plans – the education, training or registered with a Colosseum, Michelangelo’s ‘David’, the gondolas careers service. in Venice. You may learn some handy phrases in Italian. It’s all very exciting. After months of eager You must tell the Tax Credit Office if your child anticipation the day finally arrives. You pack your is aged 16 and stays in approved education bags and off you go. Several hours later the plane or training. You will also need to tell them if lands. The stewardess comes in and says, “Welcome they are still in education or training when to Holland”. they turn 18, and again at 19. Approved education can include home education, if this “Holland?” you say. “What do you mean, Holland? started before your child turned 16. I signed up for Italy! I’m supposed to be in Italy. All my life I’ve dreamed of going to Italy. “But there’s If your child starts paid work of 24 or more been a change in the flight plan. They’ve landed in hours a week, or starts receiving benefits Holland there you must stay. themselves, eg Universal Credit, you must tell the Tax Credit Office as soon as possible. The important thing is that they haven’t taken you to a horrible filthy place, full of famine and disease. For further information please visit: It’s just a different place. So you must buy new www.gov.uk/child-tax-credit-when-child- guidebooks. And you must learn a whole new reaches-16 language. And you will meet a whole new group of people you would never have met. It’s just a different If your child has a gap in their education of up place, less flashy than Italy. But after you’ve been to 6 months due to illness or disability, they here for a while, you begin to notice that Holland may still be classed as in education for tax has windmills, Holland has tulips, Holland even has credit purposes, however you must always Rembrandts. check with the Tax Credits Office. More information can be found at: But everyone you know is busy coming and going www.hmrc.gov.uk/manuals/tctmanual/ from Italy and they’re all bragging about what a tctm02230.htm wonderful time they had there. And for the rest of your life you will say, “Yes, that’s where I was supposed to go. That’s what I had planned”. The pain of that will never go away because the loss of a dream is a very significant loss. But if you spend The Transition Team along with the local your life mourning the fact that you didn’t get to Italy, colleges and specialist schools are planning you may never be free to enjoy the very special, very an event aimed at young people with learning lovely things about Holland. disabilities in each area – North, East & Central, dates to be confirmed. Emily Perl Kingsley For updates, check Facebook: www.facebook.com/lancashirelocaloffer Or email your local team for more information: Who ran to help me when I fell, [email protected] And would some pretty story tell, [email protected] Or kiss the place to make it well? [email protected] My mother. ~Ann Taylor 27 Lancashire County Council – contact details www.lancashire.gov.uk/corporate/contact_us/index.asp Email: [email protected]
High level Service: Number: Service: Corporate Signposting / General enquiries 0300 123 6701 Services: Libraries 0300 123 6703 Library Service Automated Renewal Line 0300 123 6704 Registration and Certification Service 0300 123 6705 SEND Information, Advice and Support Service 0300 123 6706 School Admissions 0300 123 6707 School Appeals 0300 123 6708 Lancashire Adult College 0300 123 6709 Care Connect Social Care 0300 123 6720 Safeguarding Adults 0300 123 6721 Emergency Duty Team 0300 123 6722 County Care And Urgent Needs 0300 123 6735 Benefits Blue Badges 0300 123 6736 Service NoW Card 0300 123 6737 Schools Transport 0300 123 6738 Welfare Rights 0300 123 6739 Environment Anti-social behaviour on buses 0300 123 6782 Local SEND Central (Preston, Chorley, South Ribble, West Lancashire) 01772 531 597 Offices East (Hyndburn, Ribble Valley, Pendle, Burnley, 01254 220 561 Rossendale) North (Lancaster, Fylde, Wyre) 01524 581 200 Other Useful Family Information Service 0300 123 6712 Numbers Carers Lancashire 0345 688 7113 Educational Psychologist helpline (term time only 1:30pm 01772 530444 – 4:45pm)
Articles for Sale
If you would like to use this Service to sell your unwanted specialist equipment please send us your picture, text and contact details
Buy/Sell Equipment: This buy and selling feature is a service that is offered at the request of the FIND readers. However the FIND Newsletter or any of its representatives are unable to check any of the items for sale in this article. So you are advised to make your own enquiries and checks to ascertain the standard, quality, fitness, safety and suitability of the item. Any agreements entered into as a result of the advert are between the buyer and the seller. The FIND newsletter is only a medium for which to advertise items for sale and holds no other responsibility 28
Editorial Group
SEND Child and Family Support Liaison Officer [email protected] Tel: 07557 030837 [email protected] Tel: 07557 030839
Child and Family Support Business Support Officer Deadline forfor articlesarticles 24th8th JanuarMarch,y, next [email protected] Tel: 01772 538077 issuenext issue June March2016 2016 [email protected] Tel: 01772 532509 If undelivered please return to: Parent Representatives Room B37, County Hall, Chorley – Nannette Holliday Preston, Lancashire PR1 8RJ Lancaster – Lucy Ellis All other areas vacant
Voluntary Organisation – Julia Johnson, Face 2 Face/Scope Health – Tom Harrison, Lancashire Care Trust Children’s Centres representative – Gillian Bell
www.facebook.com/LancashireLocalOffer
The FIND Newsletter is produced by Lancashire County Council in partnership with Lancashire Parent Carer Forum. The views expressed in signed articles do not necessarily represent those of Lancashire County Council or the Lancashire Parent Carer Forum. The newsletter cannot accept any responsibility for products and services advertised within it.