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BACKBONE ~ 100th issue ~ BACKBONE CONTENTS 3 Latest News 4 Treatment for Adult Degenerative Scoliosis 7 International Scoliosis Awareness Day 8 Eva Butterly 10 Scoliosis and breathing 14 SAUK Fundraising 17 Regional Representative updates 18 SAUK yesterday and today A note on the front cover 20 Coping with pain This is a special issue of Backbone, we have reached 100 and we wanted to commemorate this by commissioning David Rintoul a unique front cover. Hannah Webb is a 23 graphic design student at Manchester School of Art who is now seven years post Exercises for Adult Degenerative Scoliosis scoliosis surgery. She first created the 24 Wonky Spine illustration for an exhibition at the Whitworth, Manchester called ‘Take Hold’ which celebrated positive body image 27 Scoliosis Campaign Fund - thank you and self-worth. The design is of Hannah’s spine, pre-surgery. She said, ‘at the time I didn’t think it was mighty fine, but now I see Members stories on Adult Degenerative Scoliosis things differently. I hope this will encourage 28 others with scoliosis to feel the same.’ Editors: Stephanie Clark and Claire Curley Designed by: Emily Wilson Cover: Designed by Hannah Webb. Inside cover: Eva Butterly, © Stephen Black photography All uncaptioned images royalty free stock images, © Patrica Wamaitha Ng’ang’a or author’s own. Printed in Great Britain by The Lavenham Press on Pure White Silk, a silk coated, high quality paper made from 100% recycled fibre and fully FSC certified. Produced using 100% recycled waste at a mill that has been awarded the ISO14001 certificate for environmental management. The pulp is bleached with a totally chlorine free (TCF) process. The Lavenham Press holds the FSC Chain of Custody certificate. SAUK has been accredited with The Information Standard. Backbone is outside the scope of this accreditation; however, medical articles are peer reviewed by a medical expert and will carry the Information Standard logo. Please contact us for more information on our accreditation and any sources used in the production of the medical articles. SAUK can accept no responsibility for the accuracy of the notices, letters, or articles in the magazine received from individuals, outside bodies, or organisations, nor does SAUK necessarily endorse such views or material published in Backbone. SAUK reserves the right to edit all letters and other material contained therein. © Scoliosis Association UK, 2019. Registered Charity No: 1181463. Please contact us if you require Backbone in a different format. T: 02089645343 2 BACKBONE | ISSUE 100 LATEST NEWS Farewell Isobel Gray Awards It is with great sadness that we have to Don’t forget to send us your announce we will be saying goodbye nominations for the Isobel Gray to our National Director, Claire Curley. Award and Roll of Honour! Email Claire joined SAUK in 2015 and has run [email protected] for an electronic SAUK alongside our sister charity the version. The Isobel Gray Award British Scoliosis Research Foundation recognises people who have made an (BSRF) for over 4 years. Claire has been extraordinary contribution to SAUK an incredible asset to SAUK, we are very and the Roll of Honour those who sorry to see her go but wish her all the have shown outstanding courage best for the future. while undergoing treatment. SAUK Raffle 500 Club Marathon and 10K This year’s exciting prizes courtesy of Be in with a chance of winning the The places for 2020’s London William Young Charitable Trust: jackpot. and supporting SAUK. Marathon and ASICS 10K in London will be announced later this month - 1st prize - £750 To buy a number and be entered into keep an on your emails if you sent in 2nd prize - £500 the annual cash draw costs £12 - you an application. Thank you to everyone 3rd prize - £250 can increase your chances by buying who did, we really appreciate you as many numbers as you would like. To wanting to support SAUK. The SAUK Raffle is a vital way for us to find out more or buy your ticket visit: raise money to continue our services www.sauk.org.uk/get-involved/500- as we rely solely on donations. A huge club You write thank you to all our donors and to If you would like to write a letter for everyone who has been selling our publication in Backbone please email tickets over the years. Get in touch [email protected] and If you have had experience with a mention You Write in the subject. The raffle will be drawn in early ScoliSMART Activity Suit please get Although we cannot publish all the December so get your tickets back to in touch, we would love to hear from letters we receive we would be very us in good time - best of luck! you. Email communications@sauk. pleased to hear from you and will do org.uk directly. our best to include your account. Colour Me Krazy SAUK are delighted to announce we have been chosen as one of the charities supported by Colour Me Krazy. Colour Me Krazy is an exciting race that brings together the challenge of a 5k with a splash of colour. Race founder Matt has chosen SAUK because his mother has scoliosis and she would like to help support the next generation of people diagnosed with the condition. Please visit www.njuko. net/w/77/ for more information or to sign up! ISSUE 100 | BACKBONE 3 N O N -S URGICAL M A N AGE M E N T OF A DULT D EGE N ERATIVE S COLIO S I S Sashin Ahuja Consultant Orthopaedic Spinal Surgeon University Hospital Llandough, Cardiff anagement 3) irregular posture. - Although scoliosis improved control of the spine which would of adult usually causes a sideways bend, patients help with mobility and function. Various degenerate with degenerative scoliosis may also have studies support muscle strengthening scoliosis is loss of sagittal (the anatomical plane which as a useful option to control back pain divides the body in half) spinal alignment symptoms. These above options would in challenging. because they would find that they tend to a way be the mainstay of treatment as they Almost all patients diagnosed with this lean forwards when they stand or walk. This would help the condition and symptoms typeM of scoliosis are usually initially treated loss of spinal alignment can lead to muscle and help maintain function and ongoing non-operatively to help manage their fatigue, which could affect the ability to care. symptoms. walk and mobilise comfortably to carry on with the day-to-day activities and function. Some therapists might use other options Surgery is an option but in some patients it apart from exercises to help the pain such may not be appropriate for various reasons Non-surgical options for as, TENS machines, shockwave therapy, and some patients may select non-surgical management of back pain ultrasound, accupressure, accupuncture options as their treatment of choice. which have mixed evidence for their Surgery in patients over 60 has a high Medication effectiveness but are an option to help with complication rate and unless there is a clear the symptoms and are part of the therapist’s possibility of substantial post-operative Analgesia (pain killers) are the most armamentarium. benefit it is better they be managed common treatment option to help with conservatively. Most patients would be pain which is usually provided by their But on some occasions managing back able to self-manage their symptoms with General Practitioner. There is published pain is difficult despite use of the above lifestyle modification and intermittent use evidence to support the use of analgesia measures and in those scenarios one of of medication to help the pain. to help back pain but prolonged use the options for management would be to of analgesia should be monitored and consider referral for a pain management Some patients may not be able to manage discussed with the doctor to assess the risks. programme via the local pain clinic. The their symptoms by simple measures as various techniques used by the pain team described above. In that case the non- Conservative therapies would usually include the appropriate surgical management would depend on use of medication to help with the pain the type of symptoms patients present Conservative measures - ie, physiotherapy, or injections to help the symptoms. The with. The most common symptoms chiropractic treatment, osteopathy, or injections that could be offered would would be 1) back pain, 2) nerve pain alternative methods which currently are depend on each individual’s symptoms and or nerve related symptoms - ie, pain gathering more support. For instance, potential pain source as per the assessment radiating down the legs like sciatica (pain pilates or yoga are routinely used by by the clinician. The options with regard to caused by irritation or compression of the individuals to help with back pain. There injections for back pain would include the sciatic nerve) or symptoms suggestive are exercise programmes available in following: of neurogenic claudication whereby an some places and the feedback from the 1) Facet joint injections - ie, injection of individual may find that they can walk individuals attending these classes is very steroid into the facet joints, which are the for a certain distance and have to stop favourable. These therapies usually help joints of the spine that lie behind the spinal and sit down to help the symptoms; or the muscles in the back so as to allow cord, and are usually done under local 4 BACKBONE | ISSUE 99 anaesthetic and under X-ray guidance. case-by-case basis a patient could be offered be used to control nerve pain but also to 2) Facet joint denervation - if facet joint a brace that could be used on occassions to help to localise the pain source so that if injections help symptoms for a reasonable help with function and mobility.
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