EVENT REGISTRATION SUMMER 2006

REGISTER NOW! You can register online at www.nationalmssociety.org, by phone at 1-800- FIGHT-MS, by fax, or by mail to your local office. The fax numbers and mailing addresses for each of the offices within the North Central States Chapter are listed inside the front cover of this newsletter. NAME: ______HOME PHONE: ______ADDRESS: ______WORK PHONE: ______CITY, STATE ZIP: ______TEAM NAME: ______TEAM CAPTAIN: ______YEARS PARTICIPATED: ______T-SHIRT SIZE: ______2006 MS WALK DATES 2006 MS BIKE DATES Cedar Rapids (IA), September 24 Black Hills (SD) MS 150 Burlington (IA), September 24 Bike Tour, September 23-24 (Black Hills W.R.A.T.H.)

Non Profit Org. US Postage PAID Sioux Falls, SD Permit No. 00684 National Multiple Sclerosis Society 3800 W Technology Circle, Ste 201 Sioux Falls, SD 57106

Toll-Free Number: 1 800 FIGHT MS Summer 2006 Chapter News 4 Programs 12 - 19 Volunteer Opportunities 5 Research 20 Tributes & Memorials 6 - 10 Development 21 - 31 In the Community 11

Volume 1 • Issue 2 North Central States Chapter Tri Chapter Education Conference, Promise 2010 Initiative hree Chapters of the innovative research into highly National Multiple Sclerosis promising areas and to improve Society came together MS patient care. This nationwide T to offer an excellent effort fueled by local chapters will educational program for raise at least $30 million by 2010 clients and professionals from to fund four targeted areas that FPO North Dakota, South Dakota, Iowa, hold great potential in the fight Minnesota and Nebraska. The Tri against the devastating effects of Chapter Education Conference, MS, but which have so far been Promise 2010 Initiative on July under-explored. 22, 2006 at the Sioux Falls, South Dakota, Convention Center was a These four areas include: Nervous huge success. Many thanks to the System Repair and Protection program staff of the Minnesota, Initiative – investigating ways Nebraska and North Central to roll back the ravages of MS; States Chapters who have been Pediatric MS Centers of Excellence working on this conference for over – treating the youngest people with a year. MS; The Sonya Slifka Longitudinal MS Study – gaining a better The Promise 2010 Campaign was understanding of the impact of preceded by the Society’s successful MS; and The MS Lesion Project Research Challenge of Champions – determining if MS is more than campaign, which was introduced one disease. in 2000 to raise at least $20 million over five years to fund four high- The excellent presenters from the interest areas. The Promise 2010 Mayo Clinic in Minnesota and Initiative, the National Multiple the Home Office of the National Sclerosis Society’s latest campaign, Multiple Sclerosis Society in New cont. on pg. 2 was launched last year to encourage York brought a

Photos: Dane Lenhard (see pg. 4), 2006 MS Walks (see pg. 26), Brenda Koppy (see pg. 4) CONT. FROM PAGE 1 Publication of the National Multiple new perspective to the research initiatives of Sclerosis Society, North Central the Promise 2010 Campaign. States Chapter If you were not able to attend the conference Des Moines Office but would like to see the four presentations 1300 50th Street, Suite 106 on the MS Lesion Project Initiative; Pediatric West Des Moines, IA 50266 MS Centers of Excellence; The Sonya Slifka Phone: (515) 270-6337 Longitudinal Study; and Nervous System Repair Fax: (515) 270-0337 and Protection, DVD’s will be available through our chapter’s lending library and for purchase Fargo Office by contacting your local North Central States 100 Fourth Street South, LL 14 Fargo, ND 58103 Chapter Office. In addition, the live taping of Phone: (701) 235-2678 those presentations are now linked to the North Fax: (701) 235-6358 Central States Chapter website and will be available for viewing for 90 days – approximately Rapid City Office through late October. 1719 West Main Street, Suite 103 Rapid City, SD 57702 Phone: (605) 718-5703 Fax: (605) 718-5703 Want to get involved? Sioux Falls Office Visit our website to find out more 3800 W Technology Circle about upcoming events and volunteer Suite 201 opportunities! Sioux Falls, SD 57106 Phone: (605) 336-7017 WWW. NATIONALMS SOCIETY.ORG/NTH Fax: (605) 336-8088

Board of Trustees Studies show that early and ongoing Dr. Scott Munsinger Chair treatment with an FDA-approved therapy Gary Mattson Vice Chair can reduce future disease activity and Dennis Galeazzi Treasurer improve quality of life for many people Tom Houle Secretary with multiple sclerosis. National MS Yvonne Ellinor Jennifer Helland Society medical advisors recommend that Brian Jans Lee Lewis people with MS talk with their health care Steve Lynch Bill Wright professional about using one of these medications and about strategies and Jennifer Kline Chapter President effective treatments to manage symptoms. If you or someone you know has MS, Patty Brooks Programs Director please contact the Society today at www. Mandy Petersen Development nationalmssociety.org or 1-800-FIGHT- Director MS to learn about ways to help manage multiple sclerosis and about current © 2006 National Multiple Sclerosis research that may one day reveal a cure. Society, North Central States Chapter

Toll-Free Number: 1 800 FIGHT MS PRESIDENT'S MESSAGE WHAT CAN WE BE FOR YOU? For over 50 years, the National someone more progressed MS Society has been dedicated in disease symptoms. to ending the devastating effects of multiple sclerosis. To meet this challenge, we Though we have been a leader need to develop a variety in the fight against MS, we of programs and services. know there is always more we Please take some time over can do. the next few weeks and Under the leadership of a new think about what you’d CEO, the National MS Society like to see the National is looking to the future and MS Society be. What asking, “What can we BE for people services should we provide? What with MS NOW?” For the past year, we should our goals be in our research have come up with many answers – and efforts? How should we provide up- an aggressive fund raising strategy to to-date information? How can we help us implement them. engage volunteers and health care professionals in our fight against MS? The Board of Trustees and staff of our chapter are now reviewing this new Watch your mailbox in the coming national strategic plan and working months for a personal invitation to one hard to adapt it to our states. of these town hall meetings. I hope to hear from you. And we want to hear from you. With my thanks and commitment, This fall, I will be traveling around the chapter – joined by our Director of Client Programs and members of our Board of Trustees – to hold town hall meetings. Our goal is to hear from as Jennifer Kline many people as possible, gathering Chapter President input that will shape the future of our chapter. We recognize that our over 8,000 clients have different needs. What someone with MS living in rural North Dakota SPECIAL NOTICE: would like to see this organization be We’d like to inform you that all of our might be very different than a caregiver offices – Des Moines, Fargo, Rapid living in Des Moines, IA. And what City, and Sioux Falls – will be closed someone who has just been diagnosed September 5-7 for an all staff meeting. with MS would like this organization We apologize for any inconveniences to be might be very different from this may cause.

3 Visit our Website at: nationalmssociety.org/nth CHAPTER NEWS SUMMER 2006 New Employees Join the Chapter Staff WELCOME DANE LENHARD WELCOME BRENDA KOPPY We are excited to welcome Dane Brenda Koppy comes to the National Lenhard to the Des Moines office of the MS Society with 15 years experience National Multiple Sclerosis in human services. In her Society, North Central States most recent position, she Chapter. Working as the was the Program Director for Corporate Relations Manager, Lutheran Social Services of Dane is responsible for North Dakota. She supervised developing and maintaining and trained 40 staff that corporate sponsorships for the provided Restorative Justice MS Walk and MS 150 Bike programming to juvenile Tour campaigns as well as offenders, families, victims leadership events throughout and community members the North Central States throughout the state of Chapter. North Dakota. She has a number of years of experience Dane was born and raised in providing training to staff Omaha, NE, and received his and communities on a variety Bachelor of Journalism degree of different topics. She has in Advertising in 2005 from experience developing and the University of Nebraska implementing new programs – Lincoln, where he served on and working with other the Student Advisory Board community entities for the and worked on a major campaign for best interest of the client. the White House. Prior to Dane’s move to West Des Moines and joining the MS She is very happy to be given the Society, he was a Sales Executive and opportunity to work for the National the Game Operations Director for the MS Society as the Program Manager Sioux Falls Stampede Hockey Club. for the North Central State Chapter. “I am very excited to be able to be a Despite being a rabid Husker fan, part of the work and mission of the Dane is happy to be in Iowa and to call National MS Society. I am looking Des Moines home. In addition to his forward to coordinating the MS career, Dane is a big hockey fan, he programs in North Dakota. I hope that enjoys being outside on his bike, and I will be able to help MS clients obtain loves to barbeque. the wonderful program the National Please help us in welcoming Dane. If MS Society has to offer. I also hope I you are in the West Des Moines area, can help continue to raise awareness please stop by the National MS Society in the State of North Dakota regarding office and introduce yourself to the multiple sclerosis.” newest member of our team! 4 Toll-Free Number: 1 800 FIGHT MS VOLUNTEER VOLUNTEERS WANTED the University of Illinois at Urbana- The North Central States Chapter is Champaign. In addition, the study will looking for a few good individuals who pay a compensation of $20.00 to each would like to donate their time and client who participates and completes efforts to assist with projects in each the study. of our chapter offices: Sioux Falls, Des Moines, Fargo and Rapid City. For more information, contact Dr. Robert W. Motl, at the Department of Volunteer opportunities include: bulk Kinesiology and Community Health at mailings, answering phones, printing, the University of Illinois at Urbana- copying, filing, typing, and other duties Champaign, Urbana, IL 61801, or e- as needed. If you would like to assist mail him at [email protected]. the North Central States Chapter by volunteering, or if you know of GET YOUR CARPETS CLEANED. someone who would like to volunteer, FIGHT MS. please contact your local office at 1- Troy Thompson, friend and advocate 800-FIGHT-MS, Option 2. for the North Central States Chapter, is offering carpet cleaning services CALL FOR CLIENTS TO for individuals with MS who live in VOLUNTEER IN RESEARCH Minnehaha or Lincoln Counties in STUDY FOR PHYSICAL ACTIVITY South Dakota. Robert W. Motl, Ph.D. of the He is offering to professionally clean Department of Kinesiology and carpets in full rooms, hallways, or Community Health at the University stairs with a cost of only $25.00 per of Illinois at Urbana-Champaign is room. All proceeds will go to the North conducting a research study in the Central States Chapter. area of physical activity for individuals with secondary progressive multiple For more information, contact Troy by sclerosis. This line of research is very calling him at Perfect Vision at (605) important because multiple sclerosis is 941-1611. associated with a substantial reduction in physical activity behavior, yet very little research has examined the NORTH DAKOTA CHARITABLE variables that explain that reduction. GAMING LAW REMINDER Dr. Motl, along with the North In accordance with the North Dakota Central States Chapter, is recruiting Charitable Gaming Law, the NMSS – individuals who have been diagnosed North Central States Chapter reminds with secondary progressive multiple its members that the quarterly gaming sclerosis to participate in the study. tax return is available for review at the There is no cost to participate in Fargo Office from 8:30 a.m. to 5:00 p.m., the study and all expenses involved Monday through Friday. The office is in participation, such as telephone located at 100 Fourth Street South, charges and mailings, are covered by Suite LL14, Fargo, North Dakota. 5 Toll-Free Number: 1 800 FIGHT MS Visit our Website at: nationalmssociety.org/nth TRIBUTES & MEMORIALS SUMMER 2006 Memorials, Contributions, Dorothy Lahren Honorariums A.K. & M. R. Larson The National Multiple Sclerosis Willard & Mary Hebert Society – North Central States Mark Bebelheimer Chapter is grateful for memorials Nancy Beckstrom and donations in honor of family and Janice Dahl friends. For information, call 1-800- Katherine Moe FIGHT-MS, option 2. Bob & Jami Hemerick Mrs. Beatrice Roberts IN MEMORY OF ... Rosemary Thomas Pearl Burley Craig & Lori Rottman Marilyn & Gregory Perlin Jeff & Ann Van Wie Roman “Romie” Adam Mary Ann Donnay Lee & Pamela Ness Brenda & Kevin Wolf Arnold Lillehaugen Philman & Patricia Skrove Blair Moe Dale Deters Bryan & Debra Lillehaugen Mary Jon Olinger Kent Lillehaugen Judy Knight Katherine Fischer Michael & Nancy Satrom Robert Fischer Mert Engelhardt Fred & Sally Wallock Bruce & Esther Ellingson J.D. Oberg Irvin & Lynann Rustad Ethan Allen Home Interiors of Molly Edmondson Fargo, ND Dolores Foster Arthur & Jo Ann Swanson Robert Vander Linden Dallas & Cecelia Lehman Dolores Menning Pat & Rae Colliton Harriet & Lyle Morse Hubert & D.J. Olson Robert & Wyota Scott Patricia Lavin Rodney & Betty Bruce Margie & Virgil Jasch Terrell & Myrna Baker Evelyn Montgomery Ernie Visser Marlowe & Joan Parries Garnet Dunn Ronald Westrick Raymond & Lorraine Koenigs Paul & Susan Hubbard Michael & Tricia Ballenger Mark Hubbard Rosemary & William Hedlund Diane Huso Dennis & Lois Appelhons Joyce Cortese Dave Bender Ron & Sandy Hendricksen Robert & C Ann Larson Robert & Karen Westrick Alan & Teri Buitenwerf Lori Pugh-Erdle Gregory & Lynn Van Vark Aubrey & Catherine Thomas Robert & Jana Cowan Russell & Eleanor Hanson Scott & Lu Cinda Van Tasell Robert Swenson cont. on pg. 7 6 Toll-Free Number: 1 800 FIGHT MS TRIBUTES & MEMORIALS cont. from pg. 6 Paul & Debbie Blakemore Dennis & Judy Steenhoek Mary Harrington Flanagan Jeff & Mary Ellen Anderson Chester & Bonnie Chase Karen King Mary Woodruff R.C & Margaret Van Vark Wilson & Vickie Smith Larry & Barbara Burkett Mayer, Flanagan, Scott & Rejman & Louise Jirsa Associates Rua Vander Linden D.Neil & Patricia Erusha Clair & Sally Fisher Jim & Cindy Heims Wilma Veenstra George & Linda Slusher Thyrza Steward Time & Laurie Broghammer Nondas Beswick Joanne Andersen Peter & Julie Otool Gutgsell Ed & Gina Wolbert Richard & Marilyn Thomas Marilyn Nef Gary & Jane Harman Sue & Roger Goosen Mr. & Mrs. Keith Aldrich Grant County Multiple Sclerosis Charles & Francesca Van Tuyl John & Arlene Radke Kevin & Lori Howe Philip & Kristin Tanner Harvey & Mary Kadlec Jeanette Ulrickson Raejean Warren Kerwin Ulrickson Lynn & Linda Bridie Gary Moran Shawn & Deann McAninch Ron & Bonnie Kramer Pella Rollscreen Foundation Helen Quirk Dan Thompson Mr. & Mrs. Edgar Resel & Deanne Warren & Gail Doe Jon Ryan McWilliams Patrick & Cindy Welch Qval Property Advisors, LLC Lynette Nieuwsma Cara Stowe Robert Tripp Phyllis & Bernard Devoronine J.D. White Julie & Jay Alexander D.J. Dillion Rosemary & William Hedlund E. Louise Porter Steve & Stephanie Pick Glynn Burhenn Jennifer Perkins Marilyn Burhenn Walden-Marling, Inc Becky Burhenn Real Estate Research Corporation Scott & Jacquie Dunker Joseph & Martha Pierce Chad Seedorf Robert Gamrath Erika Seedorf Charles & Karen Scavo Harold J. Foegen Keith McWilliams Anonymous Jerold Pingel Louise Harrington Steven & Judy Houg James & Margaret Kubczak Patricia Bloomcamp Janet Specht Jeanette Bickel Greiner cont. on pg. 8 7 Toll-Free Number: 1 800 FIGHT MS Visit our Website at: nationalmssociety.org/nth TRIBUTES & MEMORIALS SUMMER 2006 cont. from pg. 7 James & Ellen Kerr David & Karen Tuttle R. & Susan Arciago Stanton West R.D. & Dolores Lindstrom Bruce & Margery Vierling Carolyn Larson Curtis & Deann Geistler Ginny Kraus Linda & Robert Thomson James & Judith Tredway Donald & Judith Hunt Mark & Barbara Scholz Jerry & Alyce De Jong Greg & Ann Hauser Claude & Helenmae Jones Eileen O’Meara Integra Kauser & Cirz, Inc Douglas & Amy Kintzle Joseph J. Blake & Associates, Inc. Scott & Helen Harris Douglas Nelson Steven & Susan McDonald Charlotte Carter William & Lois Carlson William & Marianne Kapp Michael & Karon Lacey Helen Burr Wayne & Sonja Hennessey Pamela Cline Karen Lindstrom Cynthia Nohas Patrick & Sally Rohrs Joey Kirkpatrick J.A. Peachey Brent Hoover David & Ann Krogan Donald Spradlin & Jeri O’Donnell Dorothy Grandon Brian & Laura O’Donnell Eloise Frampton Kelly & Gary Constantine Brad & Emily Miller Milton Haag Iowa Chapter of the Appraisal Doris Davis Institute Helen Quirk Londa Fuller Edgar & Helen Resel Patricia & Gregory Lynch Phyllis Den Hartog Granger Mitchell PTA Orleath Ingle James & Corrine Mitchell Karen Hardy Tamberlane Estates Limited Stephen & Jane Sahly Steven & Bonnie Moravec Edwin Parliman Clifford & Lori McClure Mary Lou Jorgensen Joel & Marci Calvo Judith Ann Sueppel Barbara McWilliams Dolores Foster McGowen, Hurst, Clark & Keith Clanin Smith P.C. Dolores Foster Keith & Barbara McWilliams Ramona Shalla Living Trust Dolores Foster Judith & Patrick Moynahan Deborah Milburne Crosson Dannis, Inc Lila Day National Valuation Consultants Karen Ferris Richard & Jean Trusz Phil & Donna Breed cont. on pg. 9 8 Toll-Free Number: 1 800 FIGHT MS TRIBUTES & MEMORIALS cont. from pg. 8 Larry & Diane Donnelly Pat & Jean Curry Melvin & Lynne Donnelly John & Mary Curry Rodney & Shirley Rosenbaum Luann Ouellette Janice Kitzler Drs. Don & Connie Potter Lew & Renee Weinberg J. Gale Bliss Donna Groethe & Char Lande Gloria Donnelly Donald & Donna LaFerrier Don & Pat Schurdevin Fern Chicoine Russell & Midge Hall Thomas & Cecelia Mau Arlynn & Dorothy Schmidt Mark & Barb Chicoine ESA Alpha Phi # 1438 Gleenys Robbins Pete & Jan Petersen Sandra Sorenson June Ryan Martin & Carol Jorgensen Clayton & Barb Campbell Mary Ramsey Norm & Jan Griebel James Solien David & Jean Girard William & Anita Ramsey Roger & Patty Skinner Larry & Letitia Johnson Eleanor Geary Joseph & Elaine Hegland Tom & Pat Curry Pearl “Granny” Badker Frank & Sandra Stickney Joni Davis Dr. Tony Berg Brad Jorgensen George & Diane Donnelly Mary Lou Jorgensen Rita Ahmann Joy Leren Robert & Elizabeth Wood Joe Haerter & Elli Wicks Haerter Ruth Creasey John Lee Ruan Denise & Jill (Jill’s Hair Co.) Matt & Marolyn Cook Glenna Wong Tracey Ball & Randall Petty Craig & Leona McInerney Daryl Blasberg Jon & Shirley Larsen Robert & Jessica Weiner Clyde & Eleanor Rosenbaum Winston’s Pub & Grill Craig & Marie Eidem Robert & Helen Salisbury ESA Alpha Zeta Mary C. Calkins Jerry & Lois Nygaard Martin & Sharon Calkins Agnes Tostenrud Claudine Nauen Elmer & Beverly Mount William & Judith Haller Bonnie Glass IN HONOR OF ... Patrick & Theresa Wingen Penny Chesterman Jolinda Gray Susan Hansard John & Kathy Guenthner Mark & Marilee Davis Wedding Floyd & Norma Davis John & Genevieve Below Louie & Valda DeSmet Patrick & Debra Levi John & Rose McIntosh Bill & Claudia Ross cont. on pg. 10 9 Toll-Free Number: 1 800 FIGHT MS Visit our Website at: nationalmssociety.org/nth TRIBUTES & MEMORIALS SUMMER 2006 cont. from pg. 9 Sears Bob & Deb Engle American Memorial Life Kathy Savage Insurance Co. H.K. and Norma Sinning State of Iowa Friends & Guests of the Wedding Iowa Army Ammunition Plant of Melissa Salgado-Nelson Aetna & Andy Nelson MATCHING GIFT COMPANIES ... Melissa Salgado-Nelson and Andy US Bancorp Nelson Microsoft WORKPLACE GIVING Ewing Marion Kauffman COMPANIES ... Foundation Abbott Laboratories First National Bank Rockwell Collins Employees Ryan Companies US, Inc. United Fund Pella Rolscreen Foundation Wells Fargo Community Support GE Foundation Campaign Hubbell Realty Company Fiserv Foundation Piper Jaffray Foundation Hubbell Realty Company Pioneer Hi-Bred International, Nationwide Inc. American Ordnance Employee’s Pfizer Foundation United Fund Monsanto Fund The Meredith Corporation Foundation

WE WANT TO HEAR FROM YOU! The staff of the North Central States Chapter wants to gather your personal stories of accomplishment, encouragement and inspiration to share with others in our press releases, meetings, fundraisers, on our Internet site and through our quarterly MS Connection newsletter. We want to put actual names, faces and stories to the daily struggles of those living with multiple sclerosis in our chapter. We encourage you to send your stories and photos to Patty Brooks, Director of Client Programs, via her e-mail address at patty. [email protected], or by mail to 3800 W. Technology Circle, Suite 201; Sioux Falls, SD 57106. If you choose to submit your story or photo, please also provide a signed statement that you agree to allow the NMSS to use your story for purposes of public awareness. We can’t wait to hear from you.

10 Toll-Free Number: 1 800 FIGHT MS IN THE COMMUNITY Citizen of the Year – Jo Landis, RN Jo Landis, RN is the National in neurology teaching sessions for Association of Social Workers – South medical students, residents, and the Dakota Chapter, Citizen of the Year. general public. Jo was honored for her work on behalf of individuals and families affected by Jo combines her technical expertise in neurological diseases. Jo works with neurological nursing with a genuine Dr. Jerome Freeman at Neurology concern for the individuality and Associates in Sioux Falls, South particular circumstances of each Dakota. patient who comes into her care. She extends herself beyond the office, giving Jo has served on the Board of Trustees of her personal time and energies to for the North Central States Chapter of meet the needs of her patients. Jo the National Multiple Sclerosis Society, Landis provides exemplary care and is a member of the Neurology Nurses service with grace and willingness; her Association, and has co-authored two work personifies the values of social clinical articles. She also participates work professionalism.

YOUTH DONATE PORTION OF young fundraisers were going to use PROFITS TO THE MULTIPLE the proceeds to buy fireworks for the SCLEROSIS SOCIETY July 4th Holiday, but decided to put After watching their grandmother the money to better use after visiting deal with multiple sclerosis, three with their grandmother. Fifty percent North Platte youths donated a portion of the money they raised went to the of their lemonade stand profits to the North Central States Chapter. North Central States Chapter of the FARGO MARATHON CHALLENGES National Multiple Sclerosis Society. Morgan Roehrs, 14, Drake Roehrs, LOCAL RUNNER 11 and Kaitlin Roehrs, 7, set up their Sheri Paulson isn’t running from MS. lemonade stand at the corner of West Multiple sclerosis is her constant A Street and Buffalo Bill Avenue, running companion. Sheri runs in North Platte. Drake said that he because she can. On Saturday, May didn’t want to see anyone else suffer 19, 2006 Sheri Paulson participated like his grandma has in the three years in her first full marathon, 26.2 miles since she has been diagnosed. Their in Fargo, North Dakota. She ran 22.5 grandmother lives in South Dakota miles during the Fargo MS Walk, just and the children have seen first hand, three weeks earlier and she raised the effects that the disease has had on $2,200 in the fight against MS. Sheri their grandmother. “She doesn’t walk has been running for a year and a half. like she used to and she gets tired She was diagnosed with MS five years easier”, Morgan said. “She has a hard ago and she is an inspiration to us all. time remembering things too.” The 11 Toll-Free Number: 1 800 FIGHT MS Visit our Website at: nationalmssociety.org/nth PROGRAMS SUMMER 2006 North Central States Chapter Partners with the IRC The North Central States Chapter worked relentlessly to manage I & R has contracted with the Information calls, and coordinate the additional Resource Center (IRC) in Denver, programs we offer. The IRC allows Colorado. Inquiries regarding the staff added time for growth in information on MS, programs, and local programs delivery, and will local resources are now directed to assure continued customer service and the IRC, and handled by the trained accurate information to our clients.” Information & Referral Specialists. To contact the Information Resource Jennifer Kline, Chapter President, Center dial 1-800-FIGHT MS (1-800- said, “This is an excellent resource 344-4867), and select option 1, or email for the North Central States Chapter. the IRC at [email protected]. The programs staff in our offices have

The IRC staff has teamed up with our chapter to further assist our clients

TWO LOCAL STUDENTS WIN NATIONAL MS SOCIETY SCHOLARSHIPS Congratulations to Alexis Baker of need of financial assistance. This year, Des Moines, Iowa, and David Mally $442,000 was distributed to more of Mitchellville, Iowa, who have been than 200 recipients nationwide. awarded scholarships by the National Scholarships range from $1,000 to Multiple Sclerosis Society through $3,000 and are for one year. The the National MS Society Scholarship program is supported by donations Program. Both students have worked from across the country and has hard to overcome many obstacles, continued to grow exponentially since including the challenges resulting from its inception just four years ago. Funds living with multiple sclerosis in their and recipients more than doubled families. The National MS Society between 2005 and 2006, when the Scholarship Program was created to Society funded 88 students with a total assist people and families living with of $207,000. MS who are entering college and in 12 Toll-Free Number: 1 800 FIGHT MS PROGRAMS Val's Corner By Valerie Stickel, RN, MS, MSCN, Coordinator Ruan Neuroscience Center • Mercy Medical Center • Des Moines, Iowa Pain from MS is Types of MS pain more common than are; paroxysmal limb one might think. pain, dysesthetic The purpose of this extremity pain, tonic article is to share spasms, spasms, with you the many headache, optic different approaches neuritis, trigeminal we have to minimize neuralgia. The most your pain. Although reported pain in MS is there is not just one a burning, toothache- easy fix, there are type pain that occurs many people who do most commonly in control their pain by the extremities. combining different Complicating the interventions. control of pain is that many MS patients experience more than one In MS, myelin is damaged causing type of pain. scarring in the brain and spinal cord. The scarring disrupts transmission of Treatment of MS pain is directed by messages that communicate a desired the type of pain experienced. Chronic action from the brain, through the Neuropathic Pain is a common spinal cord, to various parts of the concern for our patients, the following body. The myelin can heal or repair, interventions can be very helpful. although, when symptoms persist we know the healing was not complete. Coping strategies to help minimize This can cause problems with vision, pain are: coordination, sensation in the • Behavior modification techniques extremities and other symptoms. • Relaxation techniques • Stress management techniques It is reported that more than 50% of • Cognitive behavior techniques people living with MS experience pain. • Pharmacologic therapy Although poorly understood, pain appears to result from short circuits in Pharmacologic therapies are: the tracts that carry sensory impulses • Baclofen (Lioresal) between the brain and spinal cord. This • Amitriptyline (Elavil) pain can be acute (lasting seconds), • Carbamazepine (Tegretol) subacute (lasting days/weeks), or • Gabapentin (Neurontin) chronic neuropathic (related to the • Tricyclic antidepressants demyelination of sensory pathways). cont. on pg. 14

13 Toll-Free Number: 1 800 FIGHT MS Visit our Website at: nationalmssociety.org/nth PROGRAMS SUMMER 2006 cont. from pg. 13 •Passive stretching of the affected Complementary therapies include: joint • Massage •Medications such as Botulinum • Tai Chi injections • Yoga •Intrathecal baclofen pump • Reflexology •Water therapy, in a cool pool • Acupuncture Communication is key to help the Rehabilitative interventions: healthcare team and patient identify • Assistive equipment possible treatable causes of pain, such • Seating, posture, and gait training as: • Exercise programs •Relapse or MS attack •Infection Spasticity is another common cause of •Constipation MS-related pain. The muscle groups •Bladder dysfunction that are most likely to develop spasticity •Altered skin integrity (pressure are the quadriceps, hamstrings, and sores or ingrown toenail) gastrocnemius muscles. •Disease modifying therapies Physical therapy is always an option •Stress of death/surgery, etc. for those that experience spasticity.

SELF HELP GROUPS IN THE North Dakota NORTH CENTRAL STATES Bismarck / Mandan, Bottineau, CHAPTER Dickinson, Fargo, Grand Forks / Red River Valley, and Minot. We The North Central States Chapter are looking at starting up a self help of the National MS Society currently group in Underwood. has self-help groups in the following areas: South Dakota Aberdeen, Brookings, Pierre, Rapid Iowa City, Sioux Falls, Spearfish, Winner Cedar Rapids, Creston, Davenport, and Watertown. We are looking at Des Moines, Iowa City, Marshalltown, starting up self help groups in Huron, Mason City, Muscatine, Northeast Mitchell and Madison. Iowa (encompassing Allamakee, Bremer, Buchanan, and Winneshiek If you, or someone you know, is Counties) Oskaloosa, Sioux City / interested in being a self-help group Dakota Dunes, and Storm Lake / leader, please contact Patty Brooks at Cherokee / Ida Grove. We are looking (605) 336-7017. We do provide leader at starting self help groups in Ames, training and staff support services. Grinnell, Dubuque, Ottumwa, Fort Dodge and Waterloo.

14 Toll-Free Number: 1 800 FIGHT MS Visit our Website at: nationalmssociety.org/nth PROGRAMS North Central States Annual Meetings The North Central States Chapter This year the North Central States Annual Meetings are held for the Chapter is going to hold an annual purpose of electing a Board of Trustees, meeting in each of the three states as well as considering the annual that make up our Chapter: North report of the Board of Trustees and the Dakota, South Dakota and Iowa. Your Treasurer’s report on the accounts in involvement is critical as we look at the Chapter. selecting those individuals who will represent the needs of all of the clients Nominations for the Board of Trustees with multiple sclerosis. will be reviewed by the Nominating Committee of the Board prior to the North Dakota’s Annual Meeting will submission for election. To nominate be held on Wednesday, September 13, someone for the Board, please provide 2006 at 7:00 pm at The Courtyard by the name, address and phone number Marriott in Moorhead, Minnesota. (for interviewing purposes) and a brief background of nominee as well South Dakota’s Annual Meeting will be as your name, address, and phone held on Thursday, September 28, 2006 number. Please direct nominations to at 7:00 pm at the Holiday Inn City the Nominating Committee at: North Center, Starlight Ballroom in Sioux Central States Nominating Committee, Falls, South Dakota. National Multiple Sclerosis Society, Iowa’s Annual Meeting will be held on 3800 W. Technology Circle, Suite 201, Saturday, October 28, 2006 at 10:00 Sioux Falls, SD 57106. am at the State Fairgrounds in Des If you are not able to attend one of the Moines, Iowa. annual meetings, but would like to For further information, please contact vote by proxy, please contact the North Patty Brooks, Director of Client Central States Chapter at (605) 336- Programs at (605) 336-7017. 7017.

Talkin' Teens. A new chat room on MSWorld for teens with MS is open to teens ages 13-18. The chat room will be open every Thursday at 7 pm EST (6 pm CST). Teens must register with MSWorld in order to participate in the chat room; participants will need to be pre-approved by the moderator. Here's how to register: • Go to www.msworld.org • Click on Chat and then Click on Register • Complete the registration information and hit Submit • Next, go to the MSWorld home page, scroll down to the middle section of the page and click on Staff (on the left side) • Click on JoyceCOC – email Joyce your user ID that was sent to you when you registered 15 Toll-Free Number: 1 800 FIGHT MS Visit our Website at: nationalmssociety.org/nth PROGRAMS SUMMER 2006

CALL FOR AWARD NOMINATIONS The North Central States Chapter of the National Multiple Sclerosis Society is now accepting nominations for the following awards to be awarded at each of the three locations of our annual meeting. These awards will be given in recognition of the efforts demonstrated by individuals and businesses in the following categories:

Volunteer of the Year Award. This sclerosis and who has proven to be an award will be given to the person who inspiration to everyone in their lives demonstrates outstanding volunteer and continues to set and reach all of services with exceptional dedication their own personal goals. and participation as a volunteer. Advocate of the Year Award. This Caregiver of the Year Award. This award will be given to the person who award will be given to the individual has demonstrated an undying strength who has demonstrated the relentless for advocating for individuals with pursuit of quality of life for someone multiple sclerosis at the local, state, or for whom they provided care during federal level. the year. The nominee for this award There will be an award given to one can be a caregiver in the home or a person/business for all categories in caregiver in a professional setting. each of the three states; North Dakota, Employer of the Year Award. This South Dakota and Iowa. Awards will award will be given to the business be presented at the annual meetings that has gone above and beyond the to be held in September and October call of duty in providing accessible 2006. Please complete the nomination accommodations for individuals with form (on page 17) and mail it to the disabilities in their employment. Nominating Committee, North Central States Chapter, 3800 W. Technology Parent of the Year Award. This Circle, Suite 201, Sioux Falls, SD award will be given to the parent of a 57106. child with multiple sclerosis who has demonstrated everlasting compassion Please remember that you are and commitment to the needs of their nominating one person or business in child and towards the mission of ending each of the categories for the state in the devastating effects of multiple which you live or the state nearest you, sclerosis. within our Chapter. If you have any questions, please call Patty Brooks at Achiever of the Year Award. This (605) 336-7017. award will be given to the person who has been diagnosed with multiple

16 Toll-Free Number: 1 800 FIGHT MS PROGRAMS

AWARD NOMINATION FORM (copies can be made to submit for more than one category) You can nominate individuals or businesses by completing this form and mailing back to Nominating Committee, North Central States Chapter, 3800 W. Technology Circle, Suite 201, Sioux Falls, SD 57106, by e-mailing the information to Darla Pintuck at [email protected], or by faxing it to (605) 336-8088. I would like to nominate… Name: Phone: Address: City: State: Zip: …for the following Award (please select one of the following options): Caregiver Employer Parent Achiever Advocate Volunteer Notes/Special Considerations for the Nomination:

LENDING LIBRARY Staff and volunteers of the North library and the amount of space that Central States Chapter are in the is available for the maintenance of the process of organizing all of the materials library. You will soon be able to check throughout our chapter for the lending our chapter’s website for a complete library. The lending library is a and up-to-date listing of all books, collection of information and materials videos, DVD’s and other materials that available for any member of the NMSS are available for checkout. The other North Central States Chapter to check chapter offices located in Sioux Falls, out. This is a free service but these Fargo, and Rapid City will not have items do need to be returned to the separate lending libraries, but they will library in a timely manner for the next maintain a collection of brochures and person to check out. The Des Moines, booklets to provide to clients who stop Iowa office has been selected to house by that local office. If an item from the our Chapter's lending library due the lending library is needed immediately, quantity of materials at the location, the Des Moines staff would be happy the number of volunteers to manage the to overnight a package to you.

17 Toll-Free Number: 1 800 FIGHT MS Visit our Website at: nationalmssociety.org/nth PROGRAMS SUMMER 2006 UPCOMING PROGRAMS OFFERED workshop will work with couples IN THE CHAPTER touched by multiple sclerosis and explore ways to develop a “team Moving Forward approach” to living well with MS. Dr. Scarberry will be presenting this program for clients who have This program will be provided by Len recently been diagnosed with MS on and Cheryl Chatman of Jacksonville, Wednesday, August 30, 2006 in Fargo, Florida. The Chatmans were married North Dakota. The time and location in 1984 and have two sons. In 1990, are yet to be determined. Please call Cheryl was diagnosed with relapsing- our Fargo office at (701) 235-2766 for remitting multiple sclerosis and their more information. relationship took on a new meaning. They now have a passion to reach out 2006 North American Educational to couples touched by MS and teach Conference people how to approach the diagnosis MS: The Genetic Connection will be and enrich their relationships while presented in Cedar Rapids, Iowa on managing the disease. Space for the September 10, 2006; in Des Moines, workshop is limited to 25 couples so Iowa on September 17, 2006; in please register early. Oskaloosa, Iowa on September 23, 2006; and in Mason City, Iowa on Registration is free and includes September 24, 2006. These materials a continental breakfast, lunch from the North American Educational and program materials. For more Conference are being viewed during information or to register, please call self help group meetings in the state of 1-800-FIGHT MS, option 1. Iowa throughout the summer and fall.

If you would like to register for the YOU CAN … EXERCISE – OR NOT conference at a location near you, – IN WATER please call 1-800-FIGHT-MS, option 1. We are pleased to announce a new These materials were shown in North topic in the “You CAN” web feature. Dakota and South Dakota this spring. “You CAN…Exercise – or not – in In the event you missed the information Water” has information on the unique being presented in your local qualities of water which provide community and would like to see the exceptional benefits to people with MS. video tape and workbook, please call Water helps people with MS move in Patty Brooks at (605) 336-7017. ways they may not be able to on land. Managing MS As A Team “You CAN” was created in collaboration This program, which is co-sponsored with The Heuga Center and can be by Teva Neuroscience and the North found in the “Living with MS” section Central States Chapter, will be offered of the National Website. We encourage in Davenport, Iowa on October 7, 2006 you to visit “You CAN” often, as topics (location to be determined). This change every other month. 18 Toll-Free Number: 1 800 FIGHT MS PROGRAMS Knowledge is Power The Knowledge Is When we receive your registration, Power (KIP) program your subscription will begin the very is a free, at-home next month and will continue for eight educational series weeks at no cost to you. for people newly diagnosed with MS Visit www.nationalmssociety.org to and their families. register online. Select “Living with KIP is written by MS,” then look for Knowledge Is Power highly regarded in the right side bar, OR call 1-800-344- professionals who know about MS and 4867, option 1 and indicate you would the effect it can have on your life and like to register for the KIP series, OR mail the registration form below: the lives of people who are around you. KIP provides up-to-date facts about many aspects of MS. Name: ______Address: ______The National MS Society’s mission is to City: ______end the devastating effects of multiple sclerosis. The Knowledge Is Power State: ______series is designed to give information ZIP: ______about how to deal with one of the Day Phone: ______greatest challenges presented by MS Night Phone: ______– the unpredictability and uncertainty of what is in your future. Email: ______Choose One: You can have Knowledge Is Power Email articles to me delivered to your email address or your postal address. Receive these new Mail articles to me topics each week in the convenience of Your name will be added to our your home. mailing list to receive Inside MS, chapter newsletters, and • What is Multiple Sclerosis? other mailings unless this box is • Dealing with your Diagnosis checked. • Working with your Doctor • Treatments in MS Please mail form to: • Disclosing your diagnosis National Multiple Sclerosis Society • Disease-Modifying Treatments for Training and Resource Center MS Knowledge Is Power • The Impact of MS on the Family 700 Broadway, Suite 810 • Maximizing Your Employment Denver, CO 80203 Options The KIP series is offered monthly.

19 Toll-Free Number: 1 800 FIGHT MS Visit our Website at: nationalmssociety.org/nth RESEARCH SUMMER 2006 Companies Launch Marketing of Tysabri® for Relapsing MS Biogen Idec and Elan Pharmaceuticals will be a delay of several weeks before have now commercially launched Tysabri is available to patients so that Tysabri® (natalizumab) in the U.S. infusion site personnel and others Tysabri was approved by the FDA in can receive training in the proper June for relapsing multiple sclerosis. use of the drug. Individual patients The companies are sending out letters may experience additional delays, and emails announcing this fact to depending on the availability of a healthcare professionals and to people nearby registered infusion site and with MS who had requested updates any health insurance coverage issues. on Tysabri. In order to receive Tysabri, persons The drug, given by monthly I.V. with relapsing MS must: infusion, is only available to patients • Talk to their doctors and and prescribing physicians who have understand the potential benefits registered in the TOUCH prescribing and risks of Tysabri; program, and infusions are only • Agree to follow all of the available at registered infusion sites instructions in the TOUCH where medical personnel have been prescribing program; trained in Tysabri’s use and in the • Sign the Prescriber/Patient risks of PML. PML (progressive Enrollment form. multifocal leukoencephalo-pathy) is a brain disease that occurred in Tysabri can only be: three people (two of whom died) who • Prescribed by doctors who are had participated in clinical trials of enrolled in the TOUCH prescribing Tysabri. program; • Infused at infusion centers that are Tysabri is generally recommended for enrolled in the TOUCH program; patients who have had inadequate • Given to patients who are enrolled response to, or are unable to tolerate, in the TOUCH program. other approved MS therapies (such as Copaxone®, Betaseron®, Avonex®, The decision about whether a person Rebif®, and Novantrone®). It is with MS should consider taking approved as a monotherapy, not to Tysabri should only be made through be combined with other immune discussions between an individual and system-modifying agents, and is not his or her neurologist. The discussion recommended for individuals who have should focus on how well the individual weakened immune systems. is doing on his or her current therapy and what is currently understood Availability/Prescribing Information about the potential risks and benefits According to company sources, there of Tysabri. cont. on pg. 22

20 Toll-Free Number: 1 800 FIGHT MS DEVELOPMENT DES MOINES WOMEN AGAINST MS CHAMPAGNE LUNCHEON The date is set and we hope you 128 newspapers nationwide. can join us! Mark you calendars for Friday, October 13, 2006 from 11:30 Tickets are $40 for individuals, or $280 am to 1:30 pm, for an afternoon in the for a table of 8. For ticket reservations company of delightful people at the and additional information, please 2006 Women Against MS Luncheon at contact our Des Moines office at (515) the Downtown Marriot in Des Moines, 270-6337. We hope to see you at the Iowa. This event brings individuals who 2006 Des Moines Women Against MS have a connection to MS together for Champagne Luncheon stories of inspiration and motivation, a delicious lunch, and a chance to meet some wonderful people, all while NORTH CENTRAL STATES raising money to move forward in the CHAPTER SEEKING WAMS fight against multiple sclerosis. COMMITTEE MEMBERS The North Central States Chapter The theme of this year’s event is “Little will be hosting Women Against Black Dress for MS”. We encourage MS (WAMS) luncheons in Fargo, all women in attendance to wear their Sioux Falls, and Des Moines in little black dresses in expression of 2007. These luncheons create an their support and commitment to find opportunity to empower women a cure for multiple sclerosis. Our to shape a better future for those featured speaker will be Jacquelyn living with MS today and those Mitchard, a renowned author whose who have not yet been diagnosed. New York Times best-selling novel, The Deep End of the Ocean, was chosen The North Central States Chapter as the first book for Oprah Winfrey’s is currently recruiting volunteers Book Club and was made into a movie to be table captains and serve on starring Michelle Pfeiffer. the planning committee. If you are interested in volunteering Other notable titles by Mitchard or would like more information include, The Most Wanted (1998), A about this event, please contact Theory of Relativity (2001), Twelve the Development Manager in your Times Blessed (2003), Christmas area. Present (2004), and The Breakdown Lane (2004), in addition to her essay Sioux Falls, Jackie Frederiksen collection, The Rest of Us: Dispatches (605) 336-7017 From the Mothership (1997). Mitchard Fargo, Amy Tapper also writes children’s books, serves as (701) 235-2678 a contributing editor for Wondertime magazine and is a syndicated Des Moines, Beth Aebly columnist for Tribune Media Services, (515) 270-6337 producing a column that appears in

21 Toll-Free Number: 1 800 FIGHT MS Visit our Website at: nationalmssociety.org/nth CALENDAR OF EVENTS SUMMER 2006 DEVELOPMENT NOTES The North Central States Chapter is proud to offer the CHRISTOPHER & BANKS MS HOPE wristband. The WALKS wristbands are 100% BURLINGTON (IA) – red silicone and are SEPTEMBER 24 engraved with the word "HOPE." CEDAR RAPIDS (IA) – The chapter is also promoting the MS SEPTEMBER 24 Ribbon of Hope pin. The prism ribbon seems to change color as it reflects light, and symbolizes the unpredicatable, life-altering affects MS has on people. The ribbon is also symbolic of the hope the National MS Society provides as we press forward toward our goal to end the devastating effects of MS - forever. MS BIKE TOURS We also have car magnets available BLACK HILLS W.R.A.T.H. throughout the chapter that have a (WEEKEND RIDE AROUND THE similar prism effect. HILLS)– SEPTEMBER 23-24 The bands and ribbons are $1 each and the car magnets are $5 each. They can QUAD CITIES TASTE OF all be purchased by calling 1-800 FIGHT GENEROSITY WINE TASTING MS, option 2, or by visiting the national AND AUCTION website at www.nationalmssociety.org. DAVENPORT (IA) – SEPTEMBER 29 cont. from pg. 20 Information about Tysabri is available on the National MS Society’s website at http://www.nationalmssociety.org/ tysabri.asp

WOMEN AGAINST MS The National MS Society is proud to be LUNCHEON a source of information about MS. Our comments are based on professional DES MOINES (IA) – OCTOBER 13 advice, published experience and expert opinion, but do not represent For more information on these individual therapeutic recommendation events, call 1-800-344-4867 or prescription. For specific information or go to our website at www. and advice, consult your personal physician. nationalmssociety.org/nth. 20 Toll-Free Number: 1 800 FIGHT MS DEVELOPMENT STAMPEDE FACE-OFF FOR KIDS Frederiksen, Development Manager, GOLF TOURNAMENT at (605) 336-7017. For the second year in a row, the North Central States Chapter will partner QUAD CITIES TASTE OF with the Sioux Falls Stampede Hockey GENEROSITY Club in the seventh annual Face-Off The Quad Cities will hold their 6th For Kids Golf Tournament held at Annual Taste of Generosity Wine the Brandon Golf Course on Friday, Tasting and Auction on Friday, September 8th. One-hundred percent September 29, 2006. of the money raised through green fees, Some exciting changes have been made tee box and hole sponsors, raffle prizes, to this year’s event including a move to mulligans and the dinner auction the Davenport Country Club at 25500 will go to two charities. Seventy-five Valley Drive, Pleasant Valley, Iowa. percent will be donated to the North The new setting is sure to make this Central States Chapter of the National event even more elegant. MS Society, and 25 percent will go to the Stampede’s Foundation for kids. The evening will begin at 5:30 PM with and MS update from Dr. E. Tourage The 36 foursomes allotted for the Shivapour. From 6:30 to 8:00 PM tournament have already been filled guests will enjoy a silent auction, jazz with each team raising $400. However, music, hors d’ouevres and the finest there are still opportunities to sponsor wines from the California, French, a tee box or a hole at $275 each. For Italian and Pacific Rim regions. more information on sponsorship contact Dane Lenhard, Corporate At 8:15 PM the attention will turn to Relations Manager, at (515) 270-6337. a live auction of exceptional wines and several other exciting items including: The Stampede Face-Off For Kids a week long stay in a Hilton Head Golf Tournament is projected to condo, a wine tasting party for ten raise $20,000 for the two charities, hosted by WineStyles and a pampering and will include an 18-hole shotgun spa package at Five Star Salon and start tournament, lunch, dinner, hole Spa. prizes, raffle prizes and an auction that showcases sports memorabilia. A The hopes are that this year’s event will number of the Stampede players will be a record-setter, both in attendance be on hand to help pass out lunch, and money raised. sign autographs and have fun with the Tickets to this gala event are $60 per participants. person or $480 for a table of eight. You The National MS Society is looking will not want to miss the premier wine for volunteers to help out at this event in the Quad Cities. For more fantastic event. If you or anyone information or to purchase tickets, you know would be interested in contact Beth Aebly at 1-800-798-6677. this opportunity, contact Jackie

23 Toll-Free Number: 1 800 FIGHT MS Visit our Website at: nationalmssociety.org/nth DEVELOPMENT SUMMER 2006 2006 Black Hills W.R.A.T.H. MS 150 Bike Tour: A Great Time For All! The 2nd Annual Black Hills Weekend where you can learn more about MS Ride Around The Hills MS 150 Bike and the mission of the Society. There Tour will be held on September 23rd will be several chances to win great and 24th. This fun prizes and yes, there and growing event will is more food! treat participants and volunteers to an exciting Sunday morning weekend, once again. finds the cyclists on their way back to Beginning on Friday Rapid City and the evening, September 22, finish line, which cyclists will be greeted at Friday Night will prove to be a lot of fun. Phil Fuel-Up. This is a time to turn in Busching, who rode last year, sums up pledges, pick up packets and have the the event by saying “The spectacular first of many good meals. scenery of the route is equaled only by the food, support and enthusiasm of Bright and early on Saturday morning, the organizers.” Do you want to miss cyclists will depart from the Civic it? Center on their journey through the Hills. The W.R.A.T.H. offers one of the As you can imagine, this event could most challenging and scenic routes in not be successful without the support the nation, taking participants through of volunteers. There are numerous the historic towns of Keystone, Custer volunteer opportunities available such and Hill City. The route continues past as staffing rest stops, greeting riders national landmarks Mt. Rushmore and and set up/clean up. The cyclists also Crazy Horse Memorial. appreciate seeing the clients for whom they are riding and raising money. Cyclists will cross the Saturday finish If you would like to volunteer please line in Hill City where they will stay contact Jackie Heier at 605-718-5703. overnight. Saturday evening is a great time to get to know fellow participants 2 DAYS. 150 MILES. as well as participate in the banquet DO YOU HAVE WHAT IT TAKES?

JOIN THE FIGHT AGAINST MS! You Can Help By Volunteering! It's As Easy As ... Calling: 1-800 FIGHT MS Or Visiting: www.nationalmssociety.org/nth

24 Toll-Free Number: 1 800 FIGHT MS DEVELOPMENT Every hour in the United States, someone new receives that frightening diagnosis: multiple sclerosis. MS is an unpredictable, often disabling disease of the central nervous system. Every year, hundreds of thousands Symptoms range from numbness and of event participants come together tingling to blindness and paralysis. to walk, ride and fundraise to work The progress, severity and specific towards ending the devastating effects symptoms of MS in any one person of multiple sclerosis. A National cannot yet be predicted, but advances Multiple Sclerosis Society program, in research and treatment are giving Champions Against MS is a critical part hope to those affected by the disease. of the fight against MS. Champions Most people with MS are diagnosed Against MS strives to connect people between the ages of 20 and 50, with living with MS and event participants. more than twice as many women as This connection fosters education, men developing the disease. MS affects awareness, gratitude and most more than 400,000 people in the United importantly, hope, through the symbol States and 2.5 million worldwide. of a bright red bandana. For more information on the Event participants can sign up for the Champions Against MS program, call Champions Against MS program when the North Central States Chapter at they register for an event. Participants 1-800 FIGHT MS, option 2. may request to be paired with a person with MS or have the option to say they are already participating for someone they know with MS. If you are already EVERY HOUR OF registered for an event and would like to participate, all it takes is a call to EVERY DAY, SOMEONE your local chapter at 1-800 FIGHT IS DIAGNOSED MS, option 2. WITH MS. If you have MS and would like to volunteer for the Champions Against MS program, please call the North THIS IS WHY Central States Chapter at 1-800 WE ARE HERE. FIGHT MS, option 2.

MSUM FUNDRAISER The Residential Life organization from Minnesota State University Moorhead got fellow RAs and other students together to raise $1,452.80 at an auction they hosted this Spring. Thank you MSUM RAs for your thoughtfulness in raising funds to find a cure for MS! 25 Toll-Free Number: 1 800 FIGHT MS Visit our Website at: nationalmssociety.org/nth DEVELOPMENT SUMMER 2006 A Great Spring for the Christopher & Banks MS Walks As our spring walks have come and & Banks MS Walk was a new addition gone, we’d like to take a moment to to the line-up this year. Held on April share with our readers the support 29th at the Gateway Celebration that exists in cities shelter, an amazing 223 and towns throughout people were registered our chapter. Thank for this first-time event. you to all participants, Despite heavy rain, volunteers, and sponsors Todd Evans and his for your hard work committee, along and dedication. with the University Thank you to our of Northern clients for inspiring Iowa Student and motivating Athletic Training everyone involved Organization put in our chapter to together a walk that move forward in the everyone enjoyed fight against MS! and has raised While there are still $15,775 so far. The two walks to be held community was in the fall, here’s a very supportive Top fundraising team, Team V, returning recap of the spring and excited for this from the route at the Des Moines MS season. Walk. event to continue in years to come. IOWA Sioux City Mason City The Sioux City Christopher & Banks The Mason City Christopher & Banks MS Walk was moved to the spring MS Walk continues to grow with over for 2006 and was held on April 22nd. 90 walkers registered this year and Over 100 walkers were registered for more than $12,500 raised. Thanks the event and they gathered at the to clear skies, this year’s walk was Long Lines Family Recreation Center held outside at Northern Iowa Area for the start. The festive atmosphere Community College. Mary Barragy was a great kick-off to the spring and her committee had plenty of food walk season. Special thanks to Janet donated for all and a great setting for Limoges, this year’s walk chair, and the May 6th event. her committee for a great event that Quad Cities has raised over $19,000 to date! And the award for most beautiful Cedar Falls weather for a Christopher & Banks MS The Cedar Falls/Waterloo Christopher cont. on pg. 27 26 Toll-Free Number: 1 800 FIGHT MS DEVELOPMENT cont. from pg. 26 Walk definitely goes to the Quad Cities committee! Dorothy Lemke and her committee organized a great event that was made even better by blue skies and a warm day on May 7th. Veteran’s Memorial Park was swarming with more than 320 people who enjoyed food, music and many carnival games in the MS KidZone. The event has raised over $27,000. The Starbucks crew came out to get Des Moines everyone going and ready to walk. A new location for the Des Moines Christopher & Banks MS Walk proved to be a great setting for a record- breaking event! The walk had 953 people registered and has raised over $105,000. Team V, headed by captain Veronica Fisher-Tewell holds the honor of being the top team out of the entire chapter’s walk teams, raising $13,920 so far! After entertainment from Creative Tom Novak’s Team was the top Movement Dance Studio and a warm- fundraising team for the 2006 Fargo up by the East High cheerleaders, Christopher & Banks MS Walk. KPWB and the Walk Honoree, Kathi & Banks MS Walk on Saturday April Wooderson, kicked off the walk at 10:00 29th. Powerplay DJ pumped up the AM on May 13th. Walkers enjoyed a crowd while folks registered, got scenic route along the riverfront and their fill of Starbucks Coffee, visited the East Village shopping area that the wall of hope and spoke with this was heavily supported by the Des year’s walk honorees, Larry & Cathi Moines Traffic Unit officers. Following Chial and Patrick McGlynn. Walkers the walk, participants enjoyed music prepared to walk the 3 or 6 mile route from Fat Tuesday and the Greasefire by warming up with Jodi Bucholz from Horns. Special thanks to the committee the Sports Center. Angie and Darcy who helped to organize the event. from the WDAY Noonday Show were on hand to thank the walkers. NORTH DAKOTA Fargo We would like to thank the volunteer The rain did not stop over 450 people Committee Members for helping to plan from attending Fargo’s Christopher cont. on pg. 28

27 Toll-Free Number: 1 800 FIGHT MS Visit our Website at: nationalmssociety.org/nth DEVELOPMENT SUMMER 2006 cont. from pg. 27 who helped plan and work the day of the this event: Sara Tanke, Cora Turner, event especially Angela Awender and Lorinda Semanko, Peggy Bye and Stacy Lewis. The top fundraiser was Traci Wiebe. Thank you to Red River Shelley Loftsgard, who raised $341, Amateur Radio, EVAC, Fargo North and the top team was Christopher & High School, Peace Lutheran Church, Banks. Jerry Wendell Daub, Minot massage therapist, A special thank you and Valerie Hanson to volunteers, Kristi from Body & Sole Patterson and Shelly Massage for their Lee for organizing efforts. a very successful And a huge thank you Christopher & to the walkers and Banks MS Walk sponsors for helping on May 13th in raise over $100,000 Minot. Pledges and for local programs sponsorship dollars and national This group of dedicated walkers kept combined, the event research! This their spirits up even in the rain. brought in $15,425! year’s top fundraiser The top fundraiser was Bob Boese who raised $2,012! The was Glenn Tepler, who raised $879 top team was Tom Novak’s Team from and walked 26 miles that day. The The Promersberger Company, which top team was Web-Tep, which raised raised over $4,802. Save the date for $2,105. the 2007 walk on April 21! Bismarck Jamestown The Bismarck Christopher & Banks Nearly 60 walkers helped raise close MS Walk planning committee worked to $6,000 on May 6th in Jamestown. hard to plan an awesome and successful It was a picture perfect spring day. walk that took place on May 20th at the The walkers were greeted by the Elks Lodge. Participants and sponsors Christopher & Banks staff who helped helped raise just over $25,000! Thank with registration. Walkers enjoyed you to our volunteer committee, made coffee and bagels, courtesy of Dakota up of John Berreth, DeAnn Balanga, Brands International, while they put Sue Schmaltz, Jeremy Parrish, Judy up their ribbons on the Wall of Hope. Moritz, Rae and Bernie Eckroth, Bernie The Jazzersize group led the walkers and Ray Berreth, Lori Chase, and Terry with stretches before they took off Friesz. This year’s top fundraiser was along the walking path with views of Darin Neugebauer, who raised $1,200, the golf course. and the top team was Legs for Lorisa, which raised $7,525. A special thank you to all the volunteers cont. on pg. 29

28 Toll-Free Number: 1 800 FIGHT MS DEVELOPMENT cont. from pg. 28 pleasant walk, and the event raised SOUTH DAKOTA nearly $4,000. A very special thanks Sioux Falls to Brenda Welch who again did a The Sioux Falls Christopher & Banks great job coordinating the 2006 Huron MS Walk returned to the Stewart Christopher & Banks MS Walk, and to Center at the University of Sioux Falls the volunteers and sponsors who made for 2006. Another this a great event! beautiful day and Watertown a great participant The 2006 turnout made W a t e r t o w n this another very Christopher & successful year. The Banks MS Walk Chapter’s largest was held under event had 1,146 bright blue skies on people registered May 6th. Walkers and raised over couldn’t have $150,000! The day wished for better started out with weather, and in all, great music from A group of walkers from Team Roytee's nearly 100 people Music in Motion, Racers is all smiles following a fun day attended the walk and a warm up at the Sioux Falls Christopher & Banks raising $7,500. MS Walk. from Tracy Hughes Walkers started from the Neuro Fit from Bramble Park Program. SuFuDu again started the and followed the beautiful bike paths walkers off on their 3, 6, or 9 mile routes. which made for a wonderful walk! Walkers enjoyed pizza provided by the Thanks to Sarah Foust, the awesome Diamond Room, Pepsi, and Culvers volunteers including Marsha, Gloria, frozen treats, along with entertainment Julie, Rachel, Angela, and Kathy, and from Mr. Twister and The Cartwright our walk sponsors for all of your hard Brothers. We’d like to thank our Sioux work. See you next year! Falls Walk Committee, our honorees Lorin Bromeling, Vicki Short, and Aberdeen Allan Hanson, the many wonderful On April 22nd, nearly 50 walkers volunteers, and our generous sponsors gathered on arguably the spring’s for making this the best Sioux Falls most beautiful day for the 2006 walk yet! Aberdeen Christopher & Banks Walk. The event raised almost $5,000 and Huron was fun for everyone involved. The The 2006 Huron Christopher & Banks walk started at Zion Lutheran Church MS Walk was held on May 20th. and took walkers through downtown Participants started their travels Aberdeen to Aldrich Park and back. A from Northwestern Energy again this cont. on pg. 30 year. Clear skies made for a very 29 Toll-Free Number: 1 800 FIGHT MS Visit our Website at: nationalmssociety.org/nth DEVELOPMENT SUMMER 2006 cont. from pg. 29 across the start line. Lindsey Jewitt, very special thanks goes out to Corrine committee member and client, stated Schlepp for coordinating another great it best when she said, “I was filled with walk! hope that we will beat this and we will find a cure.” Pierre On May 13th over 70 walkers gathered The North Central States Chapter at Steam Boat Park in Pierre to support would like to thank Lindsey and the their friends, family and neighbors 2006 committee members who worked living with multiple sclerosis, raising so diligently this year. It was a $6,500. Walkers enjoyed beautiful great success and enjoyed by all who weather and a scenic route as they participated. raised awareness and dollars for MS. Janet Haraldson of Pierre summed up On behalf of the Board of the day by saying, “The weather was Trustees, staff, volunteers and beautiful and the day got better and clients, we want to thank all better as more people came to register of our sponsors, committees, for the walk. I was hoping to double our event volunteers and walk funds raised last year and we did just participants throughout the that. A lot of participants are eager chapter for your efforts. to help out and are looking forward to next year. This means our walk next WE HOPE TO SEE YOU AT year will be bigger, better and raise A 2007 CHRISTOPHER & even more money!” BANKS MS WALK! Rapid City Over $19,000 was raised at this year’s Rapid City Christopher & Banks MS Walk! Nearly 300 participants enjoyed another great walk through Canyon Lake Park. The day was made even better by the countless number of volunteers, many from Ellsworth Air OB GRILL GOLF OUTING Force Base, who gave so willingly of A total of $1,600 was raised at the Old their time. Broadway Grill’s golf tournament that took place on July 10th in Fargo. The The weather could not have been National MS Society was chosen to be better and by 6:30 AM an army of the recipient charity for the money volunteers arrived to set up. Well that was collected from golfers who before registration people started to bought mulligans and entered contests arrive; and of course we can’t forget along the course. Thank you to all the the dogs that came along. The air was generous golfers and the Old Broadway filled with optimism as people streamed Grill. 30 Toll-Free Number: 1 800 FIGHT MS DEVELOPMENT THANK YOU! A special thank you to the following major sponsors throughout the North Central States Chapter:

Christopher & Banks Blank Children’s Hospital American Republic Insurance Company Kum & Go Berlex Biogen TEVA Neuroscience Serono/Pfizer KPWB 97.3 The Hawk KG95 Osco Drug Rebif Ressler Chevrolet Elks Lodge No. 1199 Mid-Continent Communications The Forum WDAY TV/Radio KSJB/KISS Radio Copaxone Risk Administration Services Results Radio The Diamond Room Pepsi Hot Springs Spas Rural Metro Ambulance Sioux Merchant Patrol Sioux Empire Amateur Radio Club Bluewire Technologies Culvers University of Sioux Falls Scheels Betaseron

TWO CHRISTOPHER & BANKS MS WALKS STILL TO COME THIS FALL With fall approaching, the people of against MS. Last year, both Cedar Rapids and Burlington know communities showed great support that means it’s time to get ready for the cause, and this year is sure for the Christopher & Banks MS to be even better. Walk! Please register now for the Cedar Both cities will be holding their Rapids and Burlington MS Walks! walks on Sunday, September 24, You can register online at www. 2006. The Cedar Rapids MS Walk nationalmssociety.org/nth or by will take place at Washington High calling 1-800-FIGHT MS. School and the Burlington event will be held at Crapo Park. There is also a registration form on the back cover of this newsletter The Christopher & Banks MS that you can mail to our Des Moines Walks will include great food, office at 1300 50th Street, Suite 106; entertainment and fun for everyone West Des Moines, IA 50266. while raising money for the fight

31 Toll-Free Number: 1 800 FIGHT MS Visit our Website at: nationalmssociety.org/nth