The child first andandalways always child first child first The The Impact ReportImpact 2010/11

Great Ormond Street Hospital Children’s Charity Impact Report 2010/11

[email protected] Design ManagerDesign Hospital Street Ormond Great Children’s CharityChildren’s Fourth floor Street 40 Bernard 1LE London WC1N E English or audio print, Braille large Translations, of this uponversions report available are the above. from address request French disponibles sur demande à Traductions en gros ci-dessus. Des versions l’adresse ou audio sont en braille caractères, également disponibles sur demande. Polish na są do uzyskania Tłumaczenia Turkish adresten edilirse yukarıdaki Talep edilirse, Talep edilebilir. tedarik çevirileri (görme engelliler için)iri harflerle, Braille edilebilir. sesli şekilde de tedarik veya Urdu Bengali adresem. powyżej żądanie pod podanym Dokumenty dużym drukiem, w formacie lub audio są także do uzyskaniabrajlem na żądanie. Punjabi Somali qoran ku kor cinwaanka ayaa Turjubaan markii la soo codsado.laga heli karaa fartawaa-wayn, Daabacad far indhoolaha xittaa ayaa ama hab la dhegaysto Braille markii la soo codsado.la heli karaa Tamil

Thank you to everyone whowas interviewed for, or gave permission Printed by The Colourhouse, utilising by Printed 42. on Heaven vegetable-based inks Ormond Street HospitalOrmond Street Children’s and Candice-Joelle Wordley. Laycock Adam for their picture to be used in this Designed and produced by Great by Designed and produced Photography by Richard Learoyd, Learoyd, Richard by Photography ©2007 Great Ormond Street Charity and Communications. Marketing report, as well as the many members to view at www.gosh.org Hospital Children’s Charity. Registered charity no. 235825. This Impact Report is available of the hospital and charity staff who helped during its production. 40 Bernard Street 40 Bernard 1LE London WC1N 3000 020 7239 www.gosh.org Hospital Children’s Charity Children’s Hospital Great Ormond StreetGreat

Our mission We raise money to enable Great Ormond Street Hospital to provide world-class care for its young patients and their families, and to pioneer new treatments and cures for childhood illnesses.

Contents

03 A letter from our Chief Executive and Executive Director 05 What we raised

Objectives 06 Redevelopment 08 The Morgan Stanley Clinical Building, part of the Mittal Children’s Medical Centre

Research 12 Today’s research for tomorrow’s cures 14 Advancing children’s palliative care 17 Healthy hearts for life

Equipment 18 Retinal imaging system 20 Genetic analyser 22 Image intensifier

Accommodation and welfare 25 The Volunteer Service 27 Parent and family accommodation

Looking forward Cover: One-year-old Quintin has 31 Our Chairman’s report been on Elephant Ward for over 33 Our objectives for 2011/12 a week to undergo various tests. 35 Our funding priorities for 2011/12 Today, he has been given the ‘all 37 Thank you clear’ and is getting ready to go 41 Charity Trustees, Directors home, taking with him his many favourite blue and yellow outfits. and Appeal Board members

Left: Ten-year-old Katherine has a rare condition called juvenile dermatomyositis which affects her skin, muscles, and frequently other parts of her body. Today, she is attending an outpatient clinic, specifically for children with this illness, and has met up with her friend Jessica in the waiting room (who is on the inside back cover). Impact Report 2010/11 01 A letter from our Chief Executive and Executive Director

Great Ormond Street Hospital has relied to secure some additional space very on philanthropy since it was first founded close to the hospital and our research in 1852 and this continued even after the partner, the UCL Institute of Child Health, founding of the NHS in 1948. to allow us to develop our work further.

Today, the generosity of individuals and We will share more information about organisations allows us to make significant this in due course, but this commitment advances in how we are able to care illustrates the importance that we place for children and their families. While the on continuing to find new and better ways NHS funds the day-to-day running of the to help the children we care for. Research hospital, the donations allow us to pioneer is at the centre of what we do and this new research projects, buy specialist year, donations to the charity allowed equipment and support families who us to commit £18 million to fund a wide rely on us. They are also allowing us range of medical research projects to fund the biggest redevelopment in at the hospital and the Institute. the hospital’s history. We launched our new research The hospital is now in the second phase fundraising initiative, Bringing Research of this major building programme. We are to Life, which aims to raise money initially delighted to report that we are on schedule to support a new Birth Defect Research and on budget, and our clinical teams will Centre at the Institute. The vital importance be moving into the new Morgan Stanley of research is illustrated through two Clinical Building in spring next year. The examples in this report which look at new space has been designed by the children’s palliative care and one of clinical teams to meet their needs and our cardiac research projects. to allow us to care for children and their families in the manner we should be in During the year, donations allowed us the 21st century. to buy £2.7 million worth of vital medical equipment, and we also spent over The Morgan Stanley Clinical Building £2 million on providing accommodation is the first part of the Mittal Children’s and welfare benefits to families and staff Medical Centre, with the second building at the hospital. All of this makes a huge planned to open in 2016. Together, these difference to the care we are able to two buildings will allow us to care for up offer to children and how we can support to 20 per cent more children who need families who are going through the most the specialist and expert care that, in dreadful of times. some instances, is only available at Great Ormond Street Hospital. Thank you to all our donors. Your contributions to our charity allow The hospital is proud of its history and us to make a difference. reputation as an innovator in paediatric medicine. Many of the developments in children’s specialist healthcare were pioneered at the hospital and it’s important Jane Collins that we continue to look forward so that Chief Executive we can understand what the future of children’s specialist care might look Four-year-old Theo is waiting with his mum and dad on like. Of course, the redevelopment is Dinosaur Ward for an an important part of that, but we are also Tim Johnson operation on his adenoids. delighted that the Special Trustees of the Executive Director charity took the decision during the year Impact Report 2010/11 03 What we raised

Following a difficult year in 2009/10, Income sources 2010/11 Charitable expenditure 2010/11 2010/11 turned out to be the charity’s 2010/11 2009/10 2010/11 2009/10 best ever year, enabling us to make an £ million £ million £ million £ million excellent contribution in all of our key Donations 42.6 35.2 Redevelopment 3.8 1.1 areas of support for the hospital. Legacies 10.8 8.3 Research 18.2 6.9 Trading 2.6 2.9 Medical equipment 11.2 6.8 Financial review 2010/11 Other* 2.6 1.5 and capital schemes Our total income for the year was Fundraising income 58.6 47.9 Patient and staff welfare 3.9 2.5 £63.9 million (including investment and Investments 3.7 5.7 Accommodation and other 1.9 1.7 property income). Fundraising income Property 1.6 1.8 Total 39 19 of £58.6 million included donations of Total 63.9 55.4 £42.6 million, an increase of 21 per cent *Other includes grants, auctions, tickets and sponsorship in comparison to the previous year. This achievement is due to the generosity of everyone who made a gift to the charity last year.

All fundraising areas showed an improved year-on-year performance. We were grateful for several large one-off gifts, in particular the exceptional gift of £4.4 million which will form the Richard Wright Fund for research into infant and childhood leukaemia, the Dickensian Ball, and a significant rise in legacy income. All of these contributed to our strong performance, and will make a huge difference to the care that the hospital can provide for its young patients and their families.

The charts on this page show where our funding came from in the past year, Donations 66% Trading 4% Research 46% Patient and and how we used it to benefit the patients staff welfare 10% at the hospital. The funds raised but not Legacies 17% Other 4% Medical equipment and capital Accommodation spent during this year are critical to our Investments 6% Property 3% schemes 29% and other 5% committed expenditure on the hospital’s redevelopment programme. Redevelopment 10%

Eight-year-old Ionatan suffers from protein-losing enteropathy, which results in an excessive loss of protein in his body. He is very popular with everybody on Bumblebee Ward, and is very happy to be posing with his sister, Genoveva, in the playroom. He can normally be found playing with his cars. Impact Report 2010/11 05 Objective 1 – redevelopment In order to maintain and advance our position as a world-class centre for paediatric care and research, we desperately need to upgrade our oldest buildings and create additional space to enable more children to be treated.

Our four-phase redevelopment Phase 1 centre. Our aim is to create a dynamic programme aims to rebuild Phase 1 was completed in 2006 environment that enables us to adapt two-thirds of the hospital site and includes: to the increasingly complex healthcare over a 20-year period. The first • the Octav Botnar Wing, needs of children with rare disorders, phase was completed in 2006, incorporating the Somers Medical and speed up on-site translational and we are now working on Daycare Centre and the Harris research, bringing real benefits the second. This is the largest International Patient Centre for patients. and most ambitious phase, • Weston House, which includes and it will transform clinical the Paul O’Gorman Patient Hotel The Mittal Children’s Medical Centre inpatient facilities for many • the refurbishment of four floors will comprise two new interlinking of the children we look after. of the Royal London Hospital for buildings – the Morgan Stanley Clinical Integrated Medicine to create the Building and a complete refurbishment Djanogly Outpatient Department of the existing Cardiac Wing. The new • the creation of the Hugh and centre will deliver a positive experience Donations make a difference Catherine Stevenson Centre for for all who use it, while having a Last year, you helped us Childhood Infectious Diseases and minimal impact on the environment. to fund the refurbishment Immunology at the UCL Institute of outpatient facilities of Child Health. We are currently close to completing for neurodisability and the first of these two buildings, the opthalmology patients, to Phase 2 Morgan Stanley Clinical Building, create a more child-friendly The second phase of the redevelopment which is scheduled to open in space and enable the hospital will see the construction of the Mittal 2012. The building will contain the to meet the growing demand Children’s Medical Centre, which will Wolfson Cardiothoracic Centre for for specialist support. This contain two important new clinical Children, the British Kidney Patient facility was generously buildings and enable the hospital to Association Children’s Kidney Centre, With her big eyes and supported by Sir Harry treat up to 20 per cent more children. a neurosciences centre, state-of-the-art operating theatres, and a new family lovely smile, six-month-old and Lady Djanogly. Zoe is a great favourite with Situated at the heart of the hospital and staff restaurant. the neurology staff on Tiger Thank you site, it will become the pivotal clinical Ward, and she loves being the centre of attention. Impact Report 2010/11 07 Objective 1 – redevelopment

The Morgan Stanley Clinical Building Part of the Mittal Children’s Medical Centre Aims Every part of the building has been To complete the construction of designed with the hospital’s motto in the Morgan Stanley Clinical Building. mind: the child, first and always. We want This includes: to provide more privacy and comfort for • the completion of external patients and families, and to make their walls, roof and windows stay with us as stress free as possible. • the commencement of the fitting out of the building The Redevelopment team engaged the • the start of the formal help of patients, parents and hospital commissioning process staff to fine-tune the design of the single • writing briefs and identifying bedrooms. A mock-up room was built, artists for the arts projects. allowing materials and design to be put to the test. Each single bedroom has an Achievement en suite bathroom, a parent area with a The building has really taken shape sofa bed, privacy curtain and storage over the past year, and the external cupboard. A parent will be able to stay cladding, roof and windows are at their child’s bedside, which has been complete. Wrapping and scaffolding proven to aid recovery. have been removed, revealing the striking glass flue, a chimney-like Contractors will hand the building over structure that extends from ground to the hospital at the end of 2011. Interior floor to roof level, which will help walls, door frames and glazed screens regulate the temperature of the have been installed, and testing of building. Construction remains mechanical and electrical services is on time and on budget. underway. In early 2012, clinical teams will test new equipment and conduct Fundraising has also maintained training on the wards. momentum. Thanks to the generosity of many donors, the charity has Arts projects and briefs have been finalised, now raised £171 million towards the and artists have been commissioned for £321 million Mittal Children’s Medical almost all of the projects. Art will help create Centre. The Department of Health a friendly and welcoming environment for has contributed £75 million, leaving patients, families and staff. Signage will £75 million still to raise. be installed and striking illustrations of animals will be applied in key areas, which will give each ward its own identity.

Finally, in spring 2012, patients This page from top to bottom: and families are due to move in. artist’s impression of the Morgan Stanley Clinical Building and a progress shot of the Morgan Stanley Clinical Building in April 2010.

Opposite: the Morgan Stanley Clinical Building in April 2011. 08 Impact Report 2010/11 Impact Report 2010/11 09 Objective 1 – redevelopment

The Morgan Stanley Clinical Building continued Part of the Mittal Children’s Medical Centre Impact The new Wolfson Cardiothoracic Centre will have space for a parent to stay by While we are unable to report on the for Children will allow us to treat all of their child’s bedside overnight, which is impact of the Morgan Stanley Clinical our patients in the facilities they deserve. important for a child’s recovery. There Building until it is complete, the success of The new Cardiac Intensive Care Unit, is currently only one bathroom per eight the Octav Botnar Wing, which has served which will house some of our most bed spaces, but in the new building, each as a template, gives us every confidence critically-ill children, will finally give bedroom will have en suite facilities to give that this new addition to the hospital site us the recommended space per bed. patients the privacy they deserve. will enable us to treat greater numbers of The ward will have plenty of room, not patients and deliver a positive experience only for patients and their parents, but Additionally, the centre will now incorporate for all those who use it. also vital equipment and better work the haemodialysis unit, which will maximise space for clinicians – overall, an the skills of our nursing and medical staff In order to create a benchmark for environment far better suited to across dialysis and inpatient care. the impact of the new building, we have facilitating translational research. started measuring the effectiveness of the Three new state-of-the-art operating current wards. This will prove invaluable The new Neurosciences Centre will theatres will allow us to cope with once the Morgan Stanley Clinical Building allow us to continue the expansion of the increasing demand for cardiac has been operational for a year, as we will our clinical services, while delivering operations and neurosurgery. A new be able to compare data to illustrate how scientific developments and breakthroughs angiography hybrid theatre, a first for the new building has helped us improve to patients all over the world. As more the hospital, will enable us to use it as both the care and experience of our children need our help, this new centre an extra operating theatre for cardiac patients and their families, as well will have a significant and tangible benefit operations when needed. as the staff who work here. for patients diagnosed with disabilities, tumours and diseases affecting the A new restaurant will cater for the whole Reducing our carbon footprint is also central nervous system. hospital, including a special area created a priority for the hospital. By 2016, the by The Walt Disney Company for our Mittal Children’s Medical Centre has The renal team at Great Ormond Street younger patients and their siblings. Art will the potential to generate a 120 per cent Hospital is the busiest in the country, be incorporated throughout the building to carbon reduction and a 60 per cent responding to the most complex, rare enrich the environment, promote wellbeing, renewable energy contribution to the and advanced cases – there are around and provide an essential distraction in a hospital as a whole. 7,000 patient visits each year. However, family-focused environment. the unit is in urgent need of redevelopment. Based in a building that dates back to the For more information on our 1930s, the current ward is cramped and redevelopment project, please outdated. The British Kidney Patient visit www.gosh.org/redevelopment Top: The mock-up bedroom, which Association Children’s Kidney Centre was used to test materials and design.

Bottom: Finishing touches are being made to the extracorporeal membrane oxygenation (ECMO) lift, which will transport critically-ill patients from the operating theatre to the Cardiac Intensive Care Unit. It is twice the size of a normal lift to accommodate the expert clinical team and life-sustaining ECMO equipment that need to travel with the patient. 10 Impact Report 2010/11 Impact Report 2010/11 11 Research to improve children’s medicine has always been at the heart of Great Ormond Street Objective 2 – research Hospital’s work. The complex and specialist nature of paediatric medicine means we must constantly research new and ever-better ways of treating patients if we are to offer children the greatest chance of a healthy life.

Today’s research for tomorrow’s cures Aim The charity is also supporting a To direct our funding to areas of major new project, which will bring urgent need as the UK’s largest together research teams from across dedicated charitable funder of the hospital and our dedicated paediatric research. academic partner, the UCL Institute of Child Health, to create Europe’s Achievement first Birth Defect Research Centre. Our supporters have enabled us This exciting initiative will allow our to guarantee a commitment of over leading researchers to share their £5 million each year to fund medical knowledge and expertise to help the research that will advance the 40 per cent of children whose illnesses health of children at the hospital, are due to a genetic or inborn condition. and ultimately, across the UK and around the world. We announced a new fundraising programme in the year called Bringing Impact Research to Life. Paediatric research is In addition to funding key senior staff still significantly underfunded compared who are revealing new insights into with many other areas of medical childhood diseases, we are helping our research. This initiative aims to bring clinical teams find ever-better ways to together individuals and organisations combat the complex and challenging who wish to redress this balance illnesses faced by our patients. and help us raise much-needed funds to support improvements in children’s medicine. Impact Report 2010/11 13 Donations make a difference Louis’ story, by his mother Ruth Objective 2 – research Last year, you helped us to invest over £18 million in This project is hugely important to Through Louis’ experience, we research. This has underpinned my husband, Bruce, our children and discovered that paediatric palliative innovation at all levels of the me, as we witnessed first hand the care is a hugely under-resourced area hospital’s work, with more than unimaginable pain suffered by my in the UK and, in fact, the world. Research 20 clinical units and many more son Louis. into paediatric pain management and staff benefiting from funding to palliative care is crucial. support research at the forefront Despite the very best care available and of paediatric medicine. the skill and devotion of the remarkable A combination of research, the clinical team at Great Ormond Street Hospital, application of that research, and the Your donations are helping he experienced side effects from his dissemination of findings will be the us to: illness – a brain tumour – which we most powerful way to reduce the • expand facilities for believe no one, let alone a four-year- suffering of these children. Advancing children’s palliative care our world-leading gene old, should have to suffer. Our friends therapy programme and family were shocked to the core We aim to bring the attention and Aim The new posts include the hospital’s • ensure chemotherapy is kept by the pain our little boy had to endure. investment to children’s palliative care To establish the UK’s first dedicated chair first dedicated palliative care clinical to a minimum for children that it sorely needs. It is my hope that and clinical academic centre for children’s psychologist to provide specialist with leukaemia by seizing this opportunity to establish palliative care, and lead research to psychosocial and bereavement support • increase the number of clinical the Louis Dundas Centre for Children’s improve the wellbeing of children with for families. We have also recruited trials for new cancer medicines Palliative Care to support the True life-limiting and life-threatening illnesses. staff to join the academic unit to • define a safe blood Colours Professorial Chair at Great support the research led by sugar level for children Ormond Street Hospital, my little boy’s Achievement Professor Bluebond-Langner. with hypoglycaemia suffering will bring relief to millions. With funding from the True Colours • understand and prevent Trust, last year we welcomed Professor The academic unit is undertaking research sudden infant death Myra Bluebond-Langner as head of that will advance and inform palliative care • deliver better treatments the country’s first integrated academic practice. Through lectures and key positions for children born with department of paediatric palliative care on various national and international immune disorders at Great Ormond Street Hospital and palliative care organisations, Professor • make inclusive education the UCL Institute of Child Health (ICH). Bluebond-Langner has endeavoured to for autistic children a success raise the profile of paediatric palliative • support the cost of developing Under Professor Bluebond-Langner’s care, and inform strategic policy and new research medicines academic lead, and with significant practice efforts to improve the lives of • personalise heart valve charitable support received during the children with life-limiting conditions and treatments for children past financial year, the Louis Dundas that of their families. with heart disease Centre for Children’s Palliative Care • tackle cystic fibrosis is now up and running. Impact in the crucial early years The work of the Louis Dundas Centre • innovate new surgical Delivering research, teaching and will ensure children’s voices are heard treatments for children practice in children’s palliative care, appropriately when decisions are made with feeding difficulties the Louis Dundas Centre is the first about the delivery of their care. The • capture ground-breaking of its kind in the world. Following research will help to understand the research images using a our appointment of the UK’s first uniquely complex medical, personal high-tech microscope consultant in palliative care in 1986, and cultural realities in which children’s • transform the lives of children today’s fundraising efforts are experiences unfold. It brings together with chronic kidney disease supporting salaries of researchers, doctors, nurses, researchers and teachers • pioneer gentler and clinicians and other specialist staff, from across the spheres of excellence at more effective bone working together to deliver an the hospital, ICH and beyond, to address marrow transplants integrated approach to palliative the physical, social, spiritual and emotional • ensure that children with care, available from diagnosis and needs of the child and family. severe visual impairment delivered seamlessly along with get the best start in life disease-directed care. By integrating research and clinical • establish a major research practice in this critical area, the team programme in childhood We have made several appointments is confident that in years to come, their gut disorders. to new clinical posts to expand the work will provide a global resource to hospital’s existing palliative care team. support children and families with Thank you life-limiting illness.

14 Impact Report 2010/11 Impact Report 2010/11 15 Objective 2 – research

Healthy hearts for life Aim blue baby syndrome – a series down 50 years of patients from old To draw on our unique experience in of defects in the heart’s plumbing, records and databases was a major providing life-saving heart surgery to called tetralogy of Fallot. challenge for the research team. children over the past 50 years and However, their efforts have provided ensure our patients remain healthy Fifty years ago, nearly a quarter of a source of information that is vital throughout adulthood. patients with this condition died within in helping us understand how to treat a year of their operation. By remaining today’s children. Achievement at the forefront of global advances In the 1960s, our researchers were in cardiac surgery, today at Great The research has highlighted the the first in the UK to build a heart-lung Ormond Street Hospital, the risk has potential dangers of our patients not bypass machine which allowed plummeted to less than two per cent. receiving structured and personalised successful surgery on children born care throughout their lives. With further with previously fatal heart defects. As part of the research, the team funding from our generous supporters, Since then, our heart and lung teams invited groups of patients from each the team are now in a position to enter have saved the lives of many thousands of the decades since the 1960s back into a unique formal collaboration with of children. They have even developed to the hospital to investigate the health other leading children’s hospitals ways to repair some heart defects of their hearts through exercise tests around the world, seeking to establish without the need for surgery. and cardiac imaging. Worryingly, nearly internationally-recognised guidelines a quarter of these patients had been for ensuring children’s long-term health Thanks to the overwhelming response completely lost to follow up as adults. and wellbeing. from the thousands of supporters Reassuringly, tests carried out by who kindly donated to our ‘blue baby’ the team showed that the majority This novel approach aims to develop At 19 years old, Ben is one of research appeal, Dr Kate Bull has now had good exercise performance and a tailored treatment plan for patients our older patients. He has been completed a landmark project, tracking reported a good quality of life well and their families based on robust and treated at Great Ormond Street the health of over a thousand patients into middle age. evidence-based practice. Ultimately, it Hospital since he was a baby, due treated at the hospital in the past 50 means we’ll be able to ensure that the to complications with his heart. years. The research looked at our Impact patients we treat with heart conditions The bike test he is having is to gauge the efficiency and health success in carrying out surgery for Pulling together the huge amount of as children, go on to enjoy safe and of his heart and lungs, which one of the most common causes of material needed to identify and track healthy adult lives. are still monitored regularly. Impact Report 2010/11 17 Objective 3 – equipment Last year, our donors helped us to fund new specialist equipment worth nearly £2.7 million. Th is enabled us to replace old and outdated machinery as well as purchasing new state-of-the-art technology, which is essential to the hospital’s work. Image: parent holding hand of baby in incubator

Retinal imaging system Aim in detail. The new retinal imaging To purchase a high resolution system uses coloured lights, which retinal imaging system to detect means that an injection is not needed. early signs of retinal disease and The images it produces are 10 times optic nerve conditions. more powerful than the older machines, revealing layers of the eye which were Achievement previously impossible to see. It also The new system was installed in automatically compensates for any September 2010 and is used every tiny eye movements so that the day at Great Ormond Street Hospital to pictures from children are clearer. help diagnose and monitor retinal and optic nerve problems in patients. This With this additional information, equipment was generously funded by clinicians can provide the patient and Julie Moseley, as well as many others. their family with specifi c information about the disease and how it is likely Impact to progress. Customised treatment, The equipment enables children and such as gene therapies, can begin, young people with vision problems targeting the areas of the retina that to be diagnosed faster and more stand the best chance of recovery. accurately. In particular, it will help Plans can also be put in place to detect very early signs of retinal support the patient’s development Farzana is 17 years old and is disease and optic nerve conditions. and learning. Vision develops rapidly having an opthalmology test. from infancy to adolescence, so early When she was 14, she was It is more child-friendly than the intervention is critical. inexplicably paralysed from old methods; one of which required the neck down for six months. patients to have fl uorescent dye Over time, the detailed images collected She returns to the hospital every couple of months for injected into their blood so that the from patients will be studied to help us tests, as doctors monitor and retina blood vessels could be seen better understand retinal diseases. try to diagnose her condition. Impact Report 2010/11 19 Objective 3 – equipment Donations make a difference Last year, you helped us to fund: • blanket warming/cooling units to help keep babies and children warm after surgery • an electron microscope to diagnose and monitor children with serious medical conditions • beds for children in the Genetic analyser Paediatric Intensive Care Unit • a flow cytometer to examine the Aim by the widest range of dedicated children’s health of the immune system To upgrade DNA sequencing equipment, healthcare specialists under one roof in • a neurosurgery ultrasound thereby helping clinicians diagnose the UK: specialists who might have treated scanner to provide images inherited genetic disorders. patients with these symptoms before, of the brain during surgery or conducted research in this area. • a transcutaneous CO2 Achievement monitor to monitor the The equipment upgrade to the DNA After assessing the patient, the clinician blood of newborn babies sequencer was put in place in April will request a blood test for DNA analysis who require surgery 2010. This prolongs the lifespan of the to determine whether particular gene • transport incubators to machine and provides extra capacity and mutations are present. Using the genetic transfer tiny, critically-ill babies backup for the laboratory. The sequencer analyser, the laboratory team is able to from the ambulance to the is used to screen for a wide range of selectively screen individual gene hospital’s intensive care unit inherited genetic conditions, including sequences for DNA mutations related to • anaesthetic machines to immunodeficiencies, neurological and the patient’s condition. A detailed report monitor patients and help craniofacial disorders, cystic fibrosis, is produced, showing what mutations them breathe during surgery and inherited endocrine and metabolic are present and their likely impact on • a new x-ray system to quickly diseases. In 2010/11, over 1,500 genetic the severity of the disease. provide high-quality images test reports were generated using the • a spinal monitoring system to genetic analyser. This report helps clinicians diagnose help surgeons protect a patient’s and manage the patient’s illness and spinal chord during surgery Impact plan treatment. It also provides families • a microchip electrophoresis Many of our patients and families come to with answers, helping them plan for their system to help diagnose Great Ormond Street Hospital looking for child’s long-term care and support needs. genetic diseases answers. Parents may have watched their This information is also important for the • a liquid scintillation counter child struggle with life-limiting symptoms identification of related family members to identify birth defects for years, attending appointment after who may be at risk or carry specific • IntelliVue patient monitors appointment and hoping for an explanation. gene mutations. to observe blood pressure, breathing and heart rate in Medicine is a complicated and ever- The genetic analyser upgrade has cardiac and respiratory patients changing field. Sometimes a disease greatly reduced the time needed to • a polymerase chain reaction is so rare that a doctor at a general produce these reports, and subsequently, plate automation system to hospital may not know which clues to the team is now able to keep up with the monitor transplant patients look for. When a baby, child or young increasing demand for its services from for viral infection person is referred to Great Ormond clinical teams. • magentic resonance imaging Street Hospital, they are cared for (MRI) monitors to observe the pulse, blood pressure and oxygen levels of children who are undergoing an MRI scan while under anaesthetic • an IT system to meet new national requirements for tracking and storing blood.

Thank you

The genetic analyser helps clinicians to identify a patient’s illness so they can begin treatment. 20 Impact Report 2010/11 Impact Report 2010/11 21 Objective 3 – equipment

Image intensifier Aim The image intensifier replaces a To purchase a new image intensifier 17-year-old machine that could not machine to guide procedures and keep up with the demands of modern operations more safely. surgery. The images it produced were not detailed enough for some of the Achievement delicate paediatric procedures. As a The image intensifier was purchased result, it could only be used for a few and installed in an operating theatre patients. If we had not replaced the old in early 2011, and provides live images image intensifier, it would ultimately have of the inside of the body. It guides intricate led to operations being cancelled. procedures like the reconstruction of bones, the removal of stones from the In contrast, the new machine can be used bladder, and the installation of venous for a wide range of procedures conducted lines in the chest. in the operating theatre by many different specialties, allowing essential treatment Impact to go ahead. Paediatric surgery is very delicate, particularly when the patient is small, Images are stored indefinitely on the as many of the hospital’s patients are. hospital-wide picture archiving system, allowing easy access if the patient Reliable imaging equipment allows us returns for future treatment. This also to offer less invasive surgical techniques offers exciting opportunities for clinical via keyhole or catheter, which can help research in future years. children make a faster recovery. Demand for high-tech imaging equipment is The new machine emits less radiation increasing throughout the hospital. than the former model, which will improve patient and staff safety, particularly as the machine will be in greater demand as the complexity of procedures increases.

The image intensifier shows the clinical team what is happening inside the patient’s body during procedures and operations.

22 Impact Report 2010/11 Impact Report 2010/11 23 Objective 4 – accommodation and welfare We believe in caring not only for the child but for the whole family. This care comes in many forms, from financial advice and spiritual counselling to the provision of accommodation for parents.

Image: family in transitional care flat

The Volunteer Service Aim families and staff, cannot be Donations make a difference To engage volunteers in meaningful overestimated. Being in hospital Last year, you helped us to fund: roles that enhance services and can be a very stressful and anxious • meals for breastfeeding mothers improve the patient and family time for families. More than half of • the Arts and experience at Great Ormond the patients we treat are from outside Humanities programme Street Hospital. of London. Some are in hospital • the chaplaincy for weeks or months at a time. • a consultant in psychiatry Achievement • the Ethics Support Service Dozens of new volunteer roles have In December 2010, a new patient • a craniofacial neurosurgeon been developed across the hospital and parent support programme was to work alongside a doctor in the past year to support patients, launched. After extensive training, who was retiring families and staff. These roles involve 12 volunteers were assigned to Fox • the Oncology and Late providing company and support to and Robin wards, where patients Effects Service patients and parents, assisting with are treated for immune problems, • a professor for young people’s ward administration duties, guiding infections, cancers, or are awaiting cancer care visitors around the hospital, and a bone marrow or stem cell transplant. • online training programmes assisting with catering and portering. for staff Volunteers provided a listening ear and • leadership and management Impact company for patients and families, and training for hospital staff Volunteering at Great Ormond Street were on hand to entertain patients so • the staff nursery subsidy Hospital is on the rise. Over the past that parents could take a much-needed • the Staff Counselling Service year, there has been a 50 per cent break from the wards. They also helped • the Citizens Advice Bureau. Eighteen-month-old Lily has increase in the number of people families access hospital services like been in hospital for four months volunteering on a regular basis; the Social Work Department and the Thank you and is a patient on one of our with over 350 people donating more Citizens Advice Bureau. The programme oncology wards. She has three than 110,000 hours of their time. was warmly received by families and more weeks of chemotherapy staff, and has since been expanded to go and then her mum is hoping that they can go home. The importance of volunteers and to other wards. She enjoys being read to by the support they provide to patients, hospital volunteer, Jo. Impact Report 2010/11 25 Objective 4 – accommodation

Parent and family accommodation Aim The Italian Building provides a To fund the upkeep of 21 rooms in the “home away from home”, with kitchens Italian Building on Queen Square, which and facilities where families can eat provides overnight accommodation for together. There are phones in each parents of patients in long-term care. of the bedrooms that connect directly to the hospital, so parents can be in To fund the upkeep of five apartments contact with the wards. and four flats, which house families of transplant patients who tend to need Maia and her parents, Hannah and a long stay in the hospital, as well Daniel (left), are from North Wales, as families who are learning to care nearly six hours away from Great for their child’s medical needs in Ormond Street Hospital. When Maia preparation for returning home. and Hannah arrived at the hospital, they did not expect to stay overnight. Achievement However, tests revealed that Maia’s Over the course of the year, we heart condition needed ongoing provided free accommodation in the treatment, and she has now been Italian Building, which is close to the in hospital for five weeks awaiting hospital, for 1,384 families, with each a heart transplant. family, on average, staying for one week. This accommodation was Having somewhere to stay that is generously funded by Center Parcs close to the hospital, means that UK as part of our Beds for Bedz Maia’s mum or dad can be with her Appeal, as well as by many others. at all times. “It’s the not knowing. It could be another week, or it could Impact be another three or four months. You To receive the specialised medical care couldn’t afford a hotel every single they need, patients can be in hospital night,” says Hannah. “There is room for weeks or months. More than half for three of us, which means that of our patients live outside of London, Dan’s mum can visit.” and many are hours away from home. Maia, age nine, has been in Distance places enormous stress on Like all nine year olds, Maia loves hospital for five weeks and is parents who are juggling the care of to play games, and often challenges awaiting a heart transplant. She other children, as well as the financial her mum and dad to a game of loves having her mum and dad close by in the Italian Building, pressures of taking time off work. Scrabble or Monopoly. “I win at and often challenges them to a Scrabble!” she giggles. game of Scrabble. Impact Report 2010/11 27 Looking forward

Freddie is 16 and is playing chess with his brother while waiting for an outpatient appointment on Kingfisher Ward. Looking forward Our Chairman’s report

I hope you will see from reading this conditions. The clinical teams and report that your gifts make a significant researchers in the hospital and the ICH difference to the care that Great Ormond are working together to propose the Street Hospital is able to provide for sick optimum mix of specialties and support children and their families. Thank you for teams to use the space most effectively. all of your support for this work. Alongside this, we will continue to fund The Special Trustees recently visited the ongoing research in the hospital and the new Morgan Stanley Clinical Building to Institute. As a member of the Association see first hand what the new wards and of Medical Research Charities, we ensure facilities will look like and, while there that our focus is on funding research of was still a great deal of building work the highest quality and which will improve to complete, we were able to see how the lives of the children who are treated transformational it will be for the children, at the hospital. Our priority is to fund families and staff who will be based there. projects that will translate the work Parents will be able to stay with their undertaken in laboratories into actual children overnight; lifts will be big clinical trials in the hospital. enough to transfer children with their equipment; families will have privacy The hospital relies on the charity to fund when they speak to doctors. vital new equipment to help staff provide the best available treatments for children. We are delighted that the building will We are also asked to support families open on time and on budget, and we with accommodation and other welfare are determined to make the same kind benefits, as well as to provide support for of progress with the next phase of the hospital staff. As ever, we will be guided project, the redevelopment of the Cardiac by the hospital as to its priorities. Wing. In order to achieve this, we will continue to rely on the generosity of It is difficult to predict what the future individuals, companies, trusts and will look like for fundraising. Economic foundations to help us. We still have conditions may continue to be difficult, but £75 million to raise towards the we also know from our own experience redevelopment, and we are focused that individuals, companies, trusts and on raising as much as possible foundations are still very generous. We towards this target over the next year. hope that we can continue to rely on your support. Your gifts really do allow us to In the introduction to this report, help children and families who depend we told you that we have purchased on the hospital today and more who will additional space close to the hospital do so in the future. and the UCL Institute of Child Health (ICH). Paediatric research remains a Thank you. core focus for all of us and we know that the progress being made in genetic and molecular medicine, for example, Savvina is nine months old is already opening up new opportunities and lives in Cyprus. She is being for doctors and researchers to develop treated on Bumblebee Ward for innovative new therapies to care for Alan Hodson Hirschsprung’s disease, which is children with previously untreatable Chairman a blockage of the large intestine. Savvina loves to sing, and can often be heard singing in to her microphone! Impact Report 2010/11 31 Our objectives for 2011/12

Our objectives for 2011/12 continue We will also work with the hospital and to focus on what matters most to us – the UCL Institute of Child Health (ICH) supporting the patients and families to develop a strategy for the new site who need the hospital today as well we have acquired on 20 Guilford Street. as helping children who may need the hospital in the future. Research We will aim to fund at least £4 million Fundraising worth of research projects in the hospital To raise at least £51 million. and the ICH.

Redevelopment We will also make available £1 million Our biggest challenge continues to be to worth of research funding to research raise funds for the redevelopment of the centres across the UK to seek new hospital. In this financial year, we aim to and better treatments for children provide funding to allow the hospital to: with neurological diseases. • complete the building of the Morgan Stanley Clinical Building, due to open Equipment in summer 2012 As well as providing equipment for the new Morgan Stanley Clinical Building, • purchase equipment to fit out we will aim to fund £3 million worth of the building new medical equipment for the hospital. • install signage and artwork to help children and families find their way Patient welfare around the hospital easily and in We will aim to fund at least £1 million worth an engaging way of welfare projects which provide additional • install interactive artwork that will help help and support for patients and their to distract and engage children who are families during such difficult times. being taken to theatres for operations.

In addition, we will work with the hospital to develop the fundraising strategy for the next part of the Mittal Children’s Medical Centre, which is the redevelopment of the existing Cardiac Wing.

Eleven-month-old Jamie is waiting for his outpatient appointment on Kingfisher Ward. He is here for a quick procedure and has been nil by mouth all day. Consequently, he has been trying to eat everything he can get his hands on. Impact Report 2010/11 33 Our funding priorities for 2011/12

New facilities Equipment We need to replace cramped, outdated It is essential that our exceptional doctors wards with new, modern facilities to give and nurses have leading-edge equipment our patients and their families a better, to provide children with world-class care. more fl exible and comfortable service. We need: Your support could help to: • new surgical instruments for • fund an angio hybrid theatre in the our operating theatres: £200,000 Morgan Stanley Clinical Building: • a new fl ow cytometer to monitor the £5 million immune system of patients who have • fund an extracorporeal membrane undergone a bone marrow transplant: oxygenation lift to transport £84,680 seriously-ill heart and lung patients, • an ultrasound machine for the and the equipment that keeps them neuromuscular outpatients centre: alive, between the ward and the £40,000 operating theatre or an intensive • equipment to monitor blood oxygen care unit: £450,000 levels in intensive care patients: • fund a patient bedroom with en suite £16,000 bathroom in the kidney centre: £100,000 • a defi brillator to identify when a patient • equip a refrigerator room near the undergoing a cardiac procedure goes operating theatres to store blood in into cardiac arrest: £4,845. case a transfusion is needed: £12,884 • fund a patient bed for our Cardiac Family accommodation Ward: £2,000 For some families, visiting the hospital • buy a clock for a single bedroom: £22. can be a traumatic experience and it is vital that we support them during this Research essentials diffi cult time. There can be no better care We are committed to fi nding treatments and reassurance for a child than to know and cures for some of the most complex that they have a parent at their bedside. and challenging illnesses for the benefi t of children at the hospital and worldwide. Your support could help to fund: • a bed for a parent to stay beside Your donations could help us to: their child in the new building: £600 • create Europe’s fi rst Birth Defect • the upkeep of a room for a parent or Research Centre: £5 million family member to stay overnight near • expand our pioneering tracheal their sick child: £12. transplant programme: £480,000 • fund the salary of a lead researcher heading up our unique gene therapy work: £140,000 • screen patients’ DNA to help discover the causes of irritable bowel syndrome: £20,000. Munira is fi ve years old and she is an oncology patient on Robin Ward, where she has beautifully decorated her room with all of her paintings and drawings. Impact Report 2010/11 35 Our sincere thanks go to those individuals and organisations overleaf who have so generously supported the charity this year.

We would also like to thank the general public. Thousands of people give generously to us throughout the year, and these donations are critical to the important work we do for sick children. On behalf of our inspiring patients and remarkable staff, thank you.

Impact Report 2010/11 37 Thank you

A C Enesco European Ltd I Matt and Emma Q Karim and Raya Abdel-Motaal Canary Wharf Contractors Fund Evander Glazing and Locks Ideal Shopping Direct Plc Matthew’s Friends Qdos Entertainment The Accenture Foundation Capita Group Evolution Gaming Imagem Music The 29th May 1961 Charitable Trust Christine Adcock and friends Carpetright plc Exponent Private Equity LLP Insight MBNA Europe Bank Limited R Malcolm Hardy Addison CarVal Investors UK Interserve Geraldine McCaughrean Alexandra Raphael and family Addleshaw Goddard LLP Caterham Round Table Ball F Jenny Ireland Francesca and Lauren McDermid Evans John Ratcliffe Debbie and Paul Adler Committee 2010 Fares Fares McGee Group Ltd Really Useful Group Theatres Aerium Group Center Parcs UK Limited Fidelity International J Allison and Harvey McGrath REN Skincare Ahmadiyya Muslim Association UK Jason and Belinda Chaffer Merrill, Amelia and Tatiana Fitzgibbons Steve Jacobs Scott and Suling Mead The Reuben Foundation Almanac Galleries Mr and Mrs Joe Chambers Dorothée and Pierre-Henri Flamand Jardine Lloyd Thompson Group Plc Mrs Audrey Meissner Adrian, Bruce and Doug Richards Sirdar Aly Aziz Christina Chandris Formula One Management Ltd JMS Estates Aleksandra Melnichenko Neil Richardson Ambassador Theatre Group Chester Properties Mindy Fowler The Jockey Club MHP Communications Tommy Roberts American Express Europe Ltd ChildBase Ltd John Frieda Sandra and John Joseph Michael Page Plc Nick Robinson and Jane Vaughan Angelina Our Star Appeal The Children’s Welfare and Richard Fulford-Smith Just Learning Nurseries Microgaming Rogge Global Partners Plc Another Film Company Research Foundation MissionFish The Gerald Ronson Foundation Arsenal Football Club CHILDREN with CANCER UK G K The Mitchell Charitable Trust The Countess of Rothes The Artemis Charitable Foundation Christopher Little Literary Agency GameAccount Rose Marie and Erland Karlsson MITIE Group Plc Rowlands Pharmacy Ashurst LLP Ashton and Tilly Clanfield Gamesys Ltd Mr and Mrs Nagi R Kawkabani Aditya and Megha Mittal Royal Bank of Canada ASK Restaurants CMS Cameron McKenna Garden House School Kent Commercial Finishings Ltd Sarah Monte Celia and Edward Atkin John Coates Charitable Trust Yassmin Ghandehari Bill Kenwright Ltd Morgan Stanley S John Coldman Globo Balear Philip King Charitable Trust Piers Morgan Charles Saatchi B Conygar Investment Company Plc Carolyn and Michael Goldhill King.com Martin Moshal The Saatchi Gallery, London The Badenoch Trust In memory of Paul Coombs Richard and Zoe Goodacre – Kevin Kitching and Sinead O’Shea Anthony Muller The Stanley Sanger Foundation BAM Construction Ltd James Corden ‘Friends of Stanley’ Mark Knopfler Santander UK plc Bank of America Charlotte Marie Coulton Appeal The Go Play Foundation N In memory of Mrs Thelma Sassoon Bankwood Group John Cox The Gosling Foundation Limited L Nabarro LLP Saudi Aramco The Barcapel Foundation Judy Craymer The Shauna Gosling Trust Ladbrokes in the Community Fiona and Andrew Neale Schroder Foundation Barclaycard Addison Cresswell Gary and Catherine Grant Charitable Trust Andrew and Marina Newington See Tickets Barclaycard Payment Acceptance Len Crisp and family Rob Gray The Kirby Laing Foundation Newlife Foundation for Disabled Children Yoko Sellek The Barclay Foundation Constance Green Foundation The Lake House Foundation News of the World Osman and Claudia Semerci Barlow Lyde & Gilbert LLP D Green’s Restaurants Ian and Lesley Lay and friends NG Bailey Lara Sevanot-Davis Annabel Bartfeld Daiwa Capital Markets Europe Ltd Deborah Gulperin LCH.Clearnet Group Ltd Northern Racing Limited ShareGift Mrs Heather Beckwith Deutsche Bank Leagas Delaney The Shetland Pony Grand National Sir John Beckwith The DG Charitable Trust H Legal and General plc O John Sibree and family Sinclair Beecham Sir Harry Djanogly CBE Charles and Kaaren Hale Eugène and Stephanie Léouzon The Office Agents Society SIG Roofing Alan and Sara Bennie and Lady Djanogly Robert Hall Foundation The Bernard Lewis Family Charitable Trust Georg und Emily von Opel Foundation Christina Smith Justin Bieber The Dorfman Foundation Harlow Greyhound Stadium Nina Littler OpenBet Family and friends of Harry Smith Andrew Birkin The Dorset Foundation Harpenden Golf Club Live Nation Open Mike Productions Sony Music Entertainment UK Ltd Bishopsgate School Dressage Extravaganza developed by Lord and Lady Harris Mr and Mrs Lloyd-Hughes The Salomon Oppenheimer Rosemary Squire and Howard Panter Family of Mr and Mrs Blackmore British Dressage Forum Members Martin and Zoe Harris Alison Loehnis Philanthropic Foundation Stanhope Plc BlueBay Asset Management The Dromintee Trust Michael and Jan Harris In memory of Ian Evans Lombe Oxford University Press In memory of Margaret Stansfield Bond Street Association DTZ Holdings plc Harrods Ltd Lords Golf and Country Club Starcards The British Kidney Patient Association Arabella Duffield Richard Hayden The Lotus Foundation P Stephen James Group Trading LLP Brookfield Multiplex Europe Lord and Lady Dundas Tony Hayward LV= (Liverpool Victoria) Pageant Media Anne and Mark Stewart BSG Management Services Friends of Ellie and Sam Dunlop Heating Plumbing Supplies Heidi and James Paradise The Yvonne Jean Stewart Charitable Trust BT Global Services: Government Herbert Smith M Simon Parker Bowles Robert Stirling and Health E The Hobson Charity Limited The Mackintosh Foundation PartyGaming Stitch Editing Jeremy Bull Eaton House Belgravia School The Olivia Hodson Cancer Fund The Mahboubian Family Trust PF Charitable Trust Stonehaven Chris Burrows Bernie Ecclestone Margaret Hogg Mansell Construction Services Ltd Philips AVENT Stoneleigh Deer Park Golf Club Tiggy Butler Petra Ecclestone Friends and family of Jessica Horton Marks and Spencer plc Paul Pindar Lord Sugar and Lady Sugar Tamara Ecclestone The Houghton Dunn Charitable Trust Marsh Ltd Nick and Miranda Pink Sweets for Life Ltd EFG Asset Management Ltd The Hoxton Juan Reig Mascarell Stephen and Dinah Posford Bobbi Hernandez and Morgan Sze Elimination of Leukaemia Fund Hudson & Yorke Masterson Holdings Gilberto Pozzi Mr J Elliot Matthew Hurlock Premier Mobile

38 Impact Report 2010/11 Impact Report 2010/11 39 Thank you Charity Trustees, Directors and Appeal Board members continued

T Gifts in kind Special Trustees Director of Marketing Christmas Carol Corporate The Taylor Family Foundation A&B Vintners Chair and Communications Concert 2010 Partnerships Board Ted of Horsham Sly Bailey Alan Hodson Lesley Miles Chair Chair Templar Publishing Ltd Antonio Carluccio Jamie Cayzer-Colvin Paul Pindar Thompson Family Charitable Trust Formula One Management Ltd Trustees Charity Patrons Stanley and Beatrice Tollman Hublot Watches Gabrielle Abbott Tess Daly Committee Board members Towergate Partnership Ltd Leagas Delaney Susan Burns Vernon Kay Michael Andrew Simon Ainslie Laura and Barry Townsley The Al Fayed Charitable Foundation Les Ambassadeurs Club Diana Dunstan OBE Victoria Asprey Marc Allera Toys R Us The Barclay Foundation Macfarlanes Hugo Llewelyn Carolyn Benson Russell Chambers The Toy Trust JM Barrie Pink Lady® apples Sir Mark Potter Thank you Julia Bonas Nick Clarry Trailfinders Mrs Heather Beckwith Renault F1™ Team Chris Spratling We would like to thank all Anita Bott Steve Cooke tri for life The Botnar family Santander UK plc of the board and committee Jo Bowlby Steve Din Norma Tuckey British Heart Foundation Peter Sauber Associate Trustees members who give their Luchie Cawood Jenny Halpern Prince In memory of Leonard Tunks The British Kidney Patient Association Southern Africa Travel Simon Brewer time and energy to help the Charles Denton Paul Hammersley The Bunting family Stitch David Elms MA FCAA charity in its fundraising. Shaun Gay Paul Hearn U CHILDREN with CANCER UK The Sugababes Simon Stormer Robin Gibbs Lorraine Heggessey UBS Investment Bank Charles Dickens Trinity Mirror Plc Michael Weston Bishopsgate School Fiona Gooley Steve Ingham The Ulverscroft Foundation The Djanogly Foundation Universal Music Charity Ball and Shoot Charles Hale Cyrus Kapadia Uniserve (Holdings) Ltd The Clore Duffield Foundation Virgin Unite Research Chair Matthew Hurlock Audrey Klein Universal Pictures (UK) Ltd GlaxoSmithKline Vodafone McLaren Mercedes Assessment Panel Andrew Taee Diana Saghi Kawkabani Patrick Lewis Constance Green Foundation Professor David Armstrong Timothy Knatchbull Dominic Murphy V Lord and Lady Harris Professor Andrew Copp Bringing Research to Eugène Léouzon Preston Rabl Amanda and Dominic Vail Martin and Zoe Harris Professor Martin Elliott Life Advisory Group Stephanie Léouzon Roland Rudd Venn Group The Bernard Lewis Family Charitable Trust Professor David Goldblatt Chair Gaelle Liaudet Dan Schwarzmann Vernier Ltd Allison and Harvey McGrath Professor David Jones The Rt Hon Baroness Jay Alison Loehnis Simon Smith Scott and Suling Mead Dr Lee Elliot Major of Paddington Martha Mehta W Aditya and Megha Mittal Dr Christina Petropoulos Nancy Mitchell The Dickensian Ball Waitrose Morgan Stanley Ms Miranda Pink Board members Simon Moore Chair Mrs Marjorie Walker Mike Nelson Professor Christopher Verity Karim and Raya Tony Murkett Ken Costa The Walt Disney Company Ltd Oak Foundation Abdel-Motaal Alice Page Mr and Mrs John Walton The Reuben Foundation Directors Susan Burns Luciana Redi Ferzana Barclay Daniel Waylett JN Somers Charitable Will Trust Chief Executive David Claydon Kate Rock Christina Chandris The Welton Foundation Mrs Phyllis Somers Dr Jane Collins Hywel Davies Amy Christiansen Si-Ahmed Debra Reuben Family and friends of Cosima Wiltshire Sir Hugh and Lady Stevenson Nicola Horlick Maritzina Slater Jordana Reuben The Charles Wolfson Charitable Trust Lord Sugar and Lady Sugar Chairman of Fundraising Jon Moulton Jayne Smith The Wolfson Foundation The Bernard Sunley Charitable (Non-Executive) Shona Nichols Bonnie Staley Richard Wright Foundation Charles Denton Miranda Pink Abigail Swiers David Wyatt Sweets for Life Ltd Dr Sara Riley Sarah Tozer Tesco Executive Director Nicole Ronson Dawn Vernon Z The Philip Ullmann Trust Tim Johnson Carina Schey Bridgett Walters Sanaz Zaimi Fund The Ulverscroft Foundation Lara Sevanot-Davis Jeremy Ward Founder United Biscuits Director of Corporate Fiona Williams John Frieda The Variety Club Children’s Charity Partnerships Charity Golf Day The Walt Disney Company Ltd Antonia Dalmahoy Chair Champions Co-founders The Garfield Weston Foundation Garth Bearman Malcolm Hardy Addison Andrew Barton The Charles Wolfson Charitable Trust Director of Major Gift The Gosling Foundation Antoinette Beenders The Wolfson Foundation Fundraising Committee Limited Nicky Clarke Richard Wright Neal Donnelly Christian Bearman Charles and Kaaren Hale Nicola Clarke Piers Beckwith Matthew Hurlock Michael Van Clarke Director of Finance Harry Bond and friends Andrew Collinge and Support Services Charles Carter Anne and Mark Stewart Errol Douglas Andrew Hibbert Katharine Fowler Daniel Galvin Keith Maxwell Harry Pearl Dominic Trusted

40 Impact Report 2010/11 Impact Report 2010/11 41 Charity Trustees, Directors and Appeal Board members continued

Joshua Galvin Mansell Constructions Associates Disney Theatrical Group ShareGift Members Philip King Charitable Trust Louise Galvin Services Ltd Deutsche Bank The Dorfman Foundation Christina Smith 4 Charity Foundation The Lake House Foundation Mark Hayes Masterson Holdings Evolution Gaming Arabella Duffield Stonehaven Mr and Mrs Terence Adams Jude Law Daniel Hersheson McGee Group Limited GameAccount Merrill, Amelia and Sally Stroud Nick and Kate Austin Eugène and Luke Hersheson MHP Communications King.com Tatiana Fitzgibbons tri for life Mr Tony Ball Stephanie Léouzon Mark Hill MITIE Group Plc Pageant Media Globo Balear Victoria Palace Theatre The Barclay Foundation Keith and Muriel Lipman Akin Konizi Patrons NG Bailey UBS Investment Bank Live Nation Mr and Mrs Peter Beckwith The Lotus Foundation Robert Lobetta Gabby and Kenny Logan Stanhope Plc The Mackintosh Foundation Patrons Sinclair Beecham Gavin and Luise MacDonald Anthony Mascolo Vernier Ltd Benefactor Francesca and Lauren Jamie Bamber Alan and Sara Bennie Jim and Jules Mann Pat Mascolo Chair Wolseley Plc Martin Moshal McDermid Evans Christopher Biggins Emily and Len Blavatnik Charles and Sophia Mason Sacha Mascolo-Tarbuck Jamie Hopkins James Nederlander Matthew Bourne OBE Tim and Sarah Bunting Matt and Emma Toni Mascolo Benefactors Alexandra Raphael Kenneth Branagh John and Susan Burns The Maaike McInnes Luigi Murenu Board members Carolyn and Michael Goldhill and family Simon Callow CBE CB Richard Ellis Charitable Trust Tony Rizzo and ambassadors John Laing Charitable Trust John Ratcliffe Sophie Dahl Jason and Belinda Chaffer Scott and Suling Mead Vidal Sassoon Mike Donegan Hugo Llewelyn Really Useful Group Joanna David Mr and Mrs Joe Chambers George Michael and Angelo Seminara Mark Elsey Theatres Rupert Everett Sir Trevor and Lady Chinn Kenny Goss Trevor Sorbie Michael Goldhill Jacques Sasson Susan Hampshire OBE John Coldman Mitch and Alison Moore Lee Stafford James Haugh Rosemary Squire and Sheila Hancock CBE Mr and Mrs Ken Costa Hilton and Louise Hellen Ward Audrey Klein Founder Howard Panter Jason Isaacs The Peter Cruddas Nathanson Richard Ward Hugh Lumby Heather Beckwith Norma Tuckey Damian Lewis Foundation Fiona and Andrew Neale Kerry Warn Colin McArdle Michael and Rachel Robert Lindsay Dr Genevieve and Andrew and Josh Wood Bill McGill Chair Weston Helen McCrory Mr Peter Davies Marina Newington Charles Worthington Ruby McGregor-Smith Patrons Rosemary Squire OBE Michael Pennington Ian and Penny Davis Amicia and Richard Oldfield Ian Metcalfe Sly Bailey Benefactors Arlene Phillips OBE The DG Charitable Trust Elizabeth and Daniel Peltz Nick Minkoff Antonio Carluccio Board members Jeremy Bull Jodie Prenger Sarah and Lloyd Dorfman Simon Picken QC and Monica O’Neill Hardeep Singh Kohli Christian and Channel 4 Television Jonathan Pryce CBE Alex and Tara Easton Dr Sophie Picken Preston Rabl Nicola Bearman Corporation Imelda Staunton OBE André Elshout and Paul Pindar Adrian Ringrose Chair Garth Bearman John Cox Juliet Stevenson CBE Mike Elms Gilberto Pozzi Royal Institution of Richard Glynn Julietta Dexter Len Crisp and family David Suchet CBE Michael and Andrew Priston Founder Chartered Surveyors John Frieda David Dein Barbara Windsor MBE Francesca Evans Alexandra Raphael Carmel Allen John Telling Board members Joyce Hytner OBE Exponent Private Equity LLP FDD International Ltd and family Robert Ware Charles Denton Lady Lloyd Webber Mindy Fowler Dorothée and The Reuben Foundation Richard Hadida Tim Morgan The Gosling Foundation Pierre-Henri Flamand Nick Robinson and Members James Hogan Norma Tuckey Limited Gary and Catherine Grant Jane Vaughan OSCAR Aerium Group Charlie Kerr Oliver Vigors Green Energy UK Plc Constance Green Stuart and Bianca Roden Ashurst LLP Alex Kovach Adrian Wyatt The Groucho Club Foundation The Rothermere Foundation BAM Construction Ltd Simon Parker Bowles W A Handley Charity Trust Charles and Kaaren Hale The Countess of Rothes Chair Canary Wharf Contractors Nam Quach Members Michael and Jan Harris Patron Robert Hall Foundation The Dr Mortimer and Phil Parry Fund Jez San OBE Ambassador Theatre HQ Theatres Gary Lineker OBE Mrs R E Heale Theresa Sackler CarVal Investors UK John Shepherd Group Ltd Rachel James The Hobson Charity Limited Foundation Campaign Board Chester Properties Dermot Smurfit Oscar Bearman JLT Chair Alan and Christiane Hodson The Basil Samuel Julian Bray CMS Cameron McKenna Heather Beckwith Arabella and Joel McCarthy Huw Jenkins CT van Hoorn Charitable Charitable Trust Richard Fulford-Smith Conygar Investment Partners Sir John Beckwith The Willie and Mabel Morris Trust Vipin and Beatrice Sareen Paul Jennings Company Plc Gamesys Ltd Bill Kenwright Ltd Charitable Trust Board members Steve Jacobs Ian and Carol Sellars Julie Lithgow Interserve Ladbrokes Jenny Brodie Heidi and James Paradise Jason Chaffer David and Elizabeth James Osman and Raffaele Zagari Kent Commercial Microgaming Kate and John Cariss Stephen and Dinah Posford Fiona Clutterbuck The Jenkins family Claudia Semerci Finishings Ltd OpenBet Christopher Little Literary Qdos Entertainment Michael Evans Nick and Linda Johnston The Michael Shanly PartyGaming Agency Jane Reed Steve Jacobs Rose Marie and Charitable Trust PKR Judy Craymer Neil Richardson Perry Littleboy Erland Karlsson Dominic and Rogge Global Partners Plc Charly Malek Mr and Mrs Nagi R Cathy Shorthouse See Tickets Dominic Vail Kawkabani John Sibree and family

42 Impact Report 2010/11 Impact Report 2010/11 43 Charity Trustees, Directors and Appeal Board members continued

Standard Chartered plc Sir Hugh and Lady Stevenson Robert Stirling Lord Sugar and Lady Sugar Bobbi Hernandez and Morgan Sze Andrew and Katrina Taee Chris and Carole Taylor The Taylor Family Foundation Richard and Susan Thornton – The Thornton Foundation Stanley and Beatrice Tollman Laura and Barry Townsley The Toy Trust Amanda and Dominic Vail Vivid Imaginations The Garfield Weston Foundation Michael and Rachel Weston Mr Pierre and Dr Yvonne Winkler Mr and Mrs Roger Wyatt

Benefactors John Coates Charitable Trust Richard Hayden Mr and Mrs Lloyd-Hughes Anthony Muller

We are extremely grateful to all our supporters, including those who wish to remain anonymous, for their generous support.

Jessica is 10 years old and, like her friend Katherine on the inside front cover, has a condition called juvenile dermatomyositis, a very rare autoimmune disease that affects only three children in every million in the UK. Today’s outpatient appointment has gone well and the girls had fun pulling faces for our camera. 44 Impact Report 2010/11

The child first andandalways always child first child first The The Impact ReportImpact 2010/11

Great Ormond Street Hospital Children’s Charity Impact Report 2010/11

[email protected] Design ManagerDesign Hospital Street Ormond Great Children’s CharityChildren’s Fourth floor Street 40 Bernard 1LE London WC1N E English or audio print, Braille large Translations, of this uponversions report available are the above. from address request French disponibles sur demande à Traductions en gros ci-dessus. Des versions l’adresse ou audio sont en braille caractères, également disponibles sur demande. Polish na są do uzyskania Tłumaczenia Turkish adresten edilirse yukarıdaki Talep edilirse, Talep edilebilir. tedarik çevirileri (görme engelliler için)iri harflerle, Braille edilebilir. sesli şekilde de tedarik veya Urdu Bengali adresem. powyżej żądanie pod podanym Dokumenty dużym drukiem, w formacie lub audio są także do uzyskaniabrajlem na żądanie. Punjabi Somali qoran ku kor cinwaanka ayaa Turjubaan markii la soo codsado.laga heli karaa fartawaa-wayn, Daabacad far indhoolaha xittaa ayaa ama hab la dhegaysto Braille markii la soo codsado.la heli karaa Tamil

Thank you to everyone whowas interviewed for, or gave permission Printed by The Colourhouse, utilising by Printed 42. on Heaven vegetable-based inks Ormond Street HospitalOrmond Street Children’s and Candice-Joelle Wordley. Laycock Adam for their picture to be used in this Designed and produced by Great by Designed and produced Photography by Richard Learoyd, Learoyd, Richard by Photography ©2007 Great Ormond Street Charity and Communications. Marketing report, as well as the many members to view at www.gosh.org Hospital Children’s Charity. Registered charity no. 235825. This Impact Report is available of the hospital and charity staff who helped during its production. 40 Bernard Street 40 Bernard 1LE London WC1N 3000 020 7239 www.gosh.org Hospital Children’s Charity Children’s Hospital Great Ormond StreetGreat