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Anxiety, Stress & Effective Living on the Autism Spectrum
Anxiety, Stress & Effective Living on the Autism Spectrum -Ava Ruth Baker Session Outline • What are stress & anxiety? • Fight / flight response • Executive function issues, stress & AS • Management & Prevention (emphasis on self-help) – General principles & range of options – Strategies for calming – Mind / Body approaches – Exposure anxiety – Cognitive Therapy • Concluding ideas: Beyond ‘tools’ • Further reading & references Terminology ‘Autistic’ / ‘autism’ / ‘AS’ (autism spectrum) = (person) anywhere on autism spectrum including Asperger’s, PDD etc ‘NT’ (neurotypical) / ‘NS’ (non-spectrum) = (person) not on autism spectrum What are stress & anxiety? • Anxiety: ‘a condition of excessive uneasiness or agitation’ • Stress: a condition of strain ‘when the demands imposed on you from the outside world outweigh your ability to cope with those demands’ (1) become strained, overwhelmed, anxious (1)Evans et al 2005; Gregson & Looker 1997 What are stress & anxiety? • Universal human experience: healthy & necessary • Part of body’s fight / flight response (stress response) • needed to activate us to • respond to threats • be focused, efficient, perform at our best • be motivated & ‘inspired’ • This activated state can be experienced as either • positive when excited, inspired, mastering challenges - or • negative when pressured, anxious, overwhelmed by challenges Autonomic nervous system • Involuntary: runs automatically (mostly subconsciously) • two opposing parts: – Sympathetic nervous system (SNS) =‘accelerator’ mobilizes for fight / flight, -
Gesnerus 2020-2.Indb
Gesnerus 77/2 (2020) 279–311, DOI: 10.24894/Gesn-de.2020.77012 Vom «autistischen Psychopathen» zum Autismusspektrum. Verhaltensdiagnostik und Persönlichkeitsbehauptung in der Geschichte des Autismus Rüdiger Graf Abstract Der Aufsatz untersucht das Verhältnis von Persönlichkeit und Verhalten in der Defi nition und Diagnostik des Autismus von Kanner und Asperger in den 1940er Jahren bis in die neueren Ausgaben des DSM und ICD. Dazu unter- scheidet er drei verschiedene epistemische Zugänge zum Autismus: ein exter- nes Wissen der dritten Person, das über Verhaltensbeobachtungen, Testver- fahren und Elterninterviews gewonnen wird; ein stärker praktisches Wissen der zweiten Person, das in der andauernden, alltäglichen Interaktion bei El- tern und Betreuer*innen entsteht, und schließlich das introspektive Wissen der ersten Person, d.h. der Autist*innen selbst. Dabei resultiert die Kerndif- ferenz in der Behandlung des Autismus daraus, ob man meint, die Persönlich- keit eines Menschen allein über die Beobachtung von Verhaltensweisen er- schließen zu können oder ob es sich um eine vorgängige Struktur handelt, die introspektiv zugänglich ist, Verhalten prägt und ihm Sinn verleihen kann. Die Entscheidung hierüber führt zu grundlegend anderen Positionierungen zu verhaltenstherapeutischen Ansätzen, wie insbesondere zu Ole Ivar Lovaas’ Applied Behavior Analysis. Autismus; Psychiatriegeschichte; Wissensgeschichte; Verhaltenstherapie; Neurodiversität PD Dr. Rüdiger Graf, Leibniz-Zentrum für Zeithistorische Forschung Potsdam, Am Neuen Markt 1, 14467 Potsdam, [email protected]. Gesnerus 77 (2020) 279 Downloaded from Brill.com09/27/2021 01:45:02AM via free access «Autistic Psychopaths» and the Autism Spectrum. Diagnosing Behavior and Claiming Personhood in the History of Autism The article examines how understandings of personality and behavior have interacted in the defi nition and diagnostics of autism from Kanner and As- perger in the 1940s to the latest editions of DSM and ICD. -
Gruson-Wood Julia F 2018 Phd.Pdf (1.393Mb)
‘I’M A JUGGLING ROBOT:’ AN ETHNOGRAPHY OF THE ORGANIZATION AND CULTURE OF AUTISM-BASED APPLIED BEHAVIOUR THERAPIES IN ONTARIO, CANADA JULIA GRUSON-WOOD A DISSERTATION SUBMITTED TO THE FACULTY OF GRADUATE STUDIES IN PARTIAL FULFILLMENT OF THE REQUIREMENTS FOR THE DEGREE OF DOCTOR OF PHILOSOPHY GRADUATE PROGAM IN SCIENCE AND TECHNOLOGY STUDIES YORK UNIVERSITY, ONTARIO AUGUST 2018 © Julia F Gruson-Wood 2018 ABSTRACT This dissertation is an ethnographic study of the culture, social organization, and everyday practices of providers and recipients of autism-based applied behavior therapies in Ontario, Canada. Autism-based applied behavior therapies are highly controversial evidence-based autism interventions that have become the standard of care, and the only guaranteed-funded services, for autistic people in this province. These therapies are provided by teachers in public autism classrooms, by parents in the home, and by personal support workers in group homes with autistic residents. The lives of many autistic people in this province, whether at school, in the home, or the community, are structured through completing behaviour therapy activities. The growing voices that resist and proliferate applied behaviour therapies, highlight the importance of critical scholarly attention to these therapies. This dissertation is situated within the fields of science studies, medical anthropology, and critical autism studies, and focuses on the experiences and practices of providers. Learning about what providers do, and how they make sense of what they do, helps to understand the professional culture in which they work, and the complex forces of power that govern both their activities and the everyday lives of autistic people in this province. -
April 2011 Issue As I Knew That Kim Pittaway, Who Did This Article Also About Adam and Myself, Also Wrote an Article About Michelle
6/26/2019 Estée Klar Estée Klar - Page 14 of 32 - My autistic son and I explore issues and meanings of autism in our lives Estée Klar Home Bio Lectures/Events Published Articles/Papers Books Contact Me Media Youtube Autistic Wandering and the DSM Filed Under (Activism, autism, Autism Spectrum and Diagnosis, Discrimination) by Estee on 04-04-2011 Recently, the CDC proposed a separate criteria for wandering in autism. You can find the PDF here. I have received permission from the Autism National Committee (AUTCOM) to make this letter available to readers in response to the proposal: Dear Ms. Pickett: We are writing as a coalition of organizations representing a wide variety of different constituents in the disabilities field. We include organizations run by people with disabilities as well as those run by parents, other family members, professionals, providers and many others. Our coalition also includes groups representing a wide array of different kinds of disability categories, including developmental disabilities, mental health conditions, physical disabilities and sensory disabilities. We are writing to express our profound concern about the proposed ICD-9-CM code for wandering discussed at the last meeting of the ICD Coordination and Maintenance Committee on March 9th-10th. While wandering behavior leading to injury and death represents an important and legitimate safety issue for the disability community, we are concerned that the proposal put forward by CDC’s National Center for Birth Defects and Developmental Disabilities (NCBDDD) is not rooted in high quality research and has significant potential unintended consequences for people with disabilities and family members. -
1 Recommended Books About the Disability Experience Adventures In
Recommended Books About the Disability Experience Adventures in the Mainstream: Coming of Age with Down Syndrome. (2005). Greg Palmer. Like many parents, Greg Palmer worries about his son’s future. But his son Ned’s last year of high school raises concerns and anxieties for him that most parents don’t experience. Ned has Down syndrome; when high school ends for him, school is out forever. The questions loom: What’s next? How will Ned negotiate the world without the structure of school? Will he find a rewarding job in something other than food service? To help him sort out these questions and document his son’s transition from high school to work, Palmer, an award-winning writer and producer of PBS documentaries, keeps a journal that’s the basis of this thoughtful and entertaining book. (Amazon.com) After the Tears: Parents Talk About Raising a Child With a Disability. (1987). Robin Simons. In parenting a child with a disability you face a major choice. You can believe that your child's condition is a death blow to everything you've dreamed and worked toward until now or you can decide that you will continue to lead the life you'd planned - and incorporate your child into it. Parents who choose the latter course find they do a tremendous amount of growing. This is the story of many such parents - parents who have struggled, learned and grown in the years since their children were born. They share their stories with you to give you the benefit of their experiences, to let you know you're not alone, and to offer you encouragement in growing with and loving your child. -
Download Decision
BEFORE THE OFFICE OF ADMINISTRATIVE HEARINGS STATE OF CALIFORNIA In the Consolidated Matters of: PARENT ON BEHALF OF STUDENT, OAH CASE NO. 2013080387 v. LAS VIRGENES UNIFIED SCHOOL DISTRICT, LAS VIRGENES UNIFIED SCHOOL OAH CASE NO. 2013071203 DISTRICT, v. PARENTS ON BEHALF OF STUDENT. DECISION Las Virgenes Unified School District (District) filed a Request for Due Process Hearing in OAH Case No. 2013071203 with the Office of Administrative Hearings (OAH), State of California, on July 29, 2013, naming Student. Student filed a Request for Due Process Hearing in OAH Case No. 2013080387 with OAH on August 8, 2013, naming District. OAH consolidated the matters on August 16, 2013, and ordered the 45-day timeline for issuance of the decision to be based on the date the complaint was filed in Student‟s case (OAH Case Number 2013080387). OAH continued the consolidated matter for good cause on September 6, 2013. June R. Lehrman, Administrative Law Judge (ALJ), heard this matter on October 28- 31, 2013, and November 4-6, 2013, in Calabasas, California. Jane DuBovy, Attorney at Law, and Carolina Watts, educational advocate, represented Parents and Student (collectively, Student). Student‟s mother (Mother) attended the hearing on all days. Student‟s father (Father) attended the hearing on October 28, November 4, and November 5, 2013. 1 Wesley B. Parsons and Siobhan H. Cullen, Attorneys at Law, appeared on behalf of District. Mary Schillinger, Assistant Superintendent, and Sahar Barsoum, Coordinator of Special Education, attended the hearing on all days. On the last day of hearing, a continuance was granted for the parties to file written closing arguments and the record remained open until November 20, 2013. -
The Cerebral Subject and the Challenge of Neurodiversity
BioSocieties (2009), 4, 425–445 ª London School of Economics and Political Science doi:10.1017/S1745855209990287 The Cerebral Subject and the Challenge of Neurodiversity Francisco Ortega Institute for Social Medicine, State University of Rio de Janeiro, Rua Saˇ o Francisco Xavier 524, Rio de Janeiro CEP 20550-900, Brazil E-mail: [email protected] Abstract The neurodiversity movement has so far been dominated by autistic people who believe their condition is not a disease to be treated and, if possible, cured, but rather a human specificity (like sex or race) that must be equally respected. Autistic self-advocates largely oppose groups of parents of autistic children and professionals searching for a cure for autism. This article discusses the posi- tions of the pro-cure and anti-cure groups. It also addresses the emergence of autistic cultures and various issues concerning autistic identities. It shows how identity issues are frequently linked to a ‘neurological self-awareness’ and a rejection of psychological interpretations. It argues that the preference for cerebral explanations cannot be reduced to an aversion to psychoanalysis or psychological culture. Instead, such preference must be understood within the context of the dif- fusion of neuroscientific claims beyond the laboratory and their penetration in different domains of life in contemporary biomedicalized societies. Within this framework, neuroscientific theories, prac- tices, technologies and therapies are influencing the ways we think about ourselves and relate to others, favoring forms of neurological or cerebral subjectivation. The article shows how neuroscien- tific claims are taken up in the formation of identities, as well as social and community networks. -
The Impact of a Diagnosis of Autism Spectrum Disorder on Nonmedical Treatment Options in the Learning Environment from the Perspectives of Parents and Pediatricians
St. John Fisher College Fisher Digital Publications Education Doctoral Ralph C. Wilson, Jr. School of Education 12-2017 The Impact of a Diagnosis of Autism Spectrum Disorder on Nonmedical Treatment Options in the Learning Environment from the Perspectives of Parents and Pediatricians Cecilia Scott-Croff St. John Fisher College, [email protected] Follow this and additional works at: https://fisherpub.sjfc.edu/education_etd Part of the Education Commons How has open access to Fisher Digital Publications benefited ou?y Recommended Citation Scott-Croff, Cecilia, "The Impact of a Diagnosis of Autism Spectrum Disorder on Nonmedical Treatment Options in the Learning Environment from the Perspectives of Parents and Pediatricians" (2017). Education Doctoral. Paper 341. Please note that the Recommended Citation provides general citation information and may not be appropriate for your discipline. To receive help in creating a citation based on your discipline, please visit http://libguides.sjfc.edu/citations. This document is posted at https://fisherpub.sjfc.edu/education_etd/341 and is brought to you for free and open access by Fisher Digital Publications at St. John Fisher College. For more information, please contact [email protected]. The Impact of a Diagnosis of Autism Spectrum Disorder on Nonmedical Treatment Options in the Learning Environment from the Perspectives of Parents and Pediatricians Abstract The purpose of this qualitative study was to identify the impact of a diagnosis of autism spectrum disorder on treatment options available, within the learning environment, at the onset of a diagnosis of autism spectrum disorder (ASD) from the perspective of parents and pediatricians. Utilizing a qualitative methodology to identify codes, themes, and sub-themes through semi-structured interviews, the research captures the lived experiences of five parents with children on the autism spectrum and five pediatricians who cared for those children and families. -
Introduction
Volume 1. No. 1 Introduction. October 17, 2012 By Larry Arnold. Introduction. By Larry Arnold In ‘Hopi Culture and a Matter of Representation,’ Lomayumtewa Ishii[1] describes the excessive preoccupation of North American academic ethnology and anthropology with the Hopi tribe to the extent that the representation of ’hopiland‘, as he describes it, has resulted in a cultural archive (citing Said) that maintains and continues to perpetuate an ‘intellectual colonisation’ over the Hopi people. As editor of this journal, I cannot help but see the parallels with the scientific, and more recently, the disability studies world’s preoccupation with autism, to the extent that in order to maintain our own academic credibility We find ourselves having to to cite outside “ethnographers” to validate ideas that had originally been introduced to this discussion by the autochthonous autistic community itself. It is with this background in mind that ‘Autonomy’ has been set up by a small group of autistic academics under the auspices of the Autreach Press, an organisation formed for the purpose, which subscribes to the general principles of the Autreach[2] group of autonomous organisations who share the common aim of promoting greater autistic autonomy, hence the title of this journal. Introduction. Indeed this mirrors the experience that Sinclair[3] has described with the establishment of the Autism Network International (ANI) after the experiences of attending various academic conferences and meeting other autistic people, hearing time and again papers about them, but not written by them. Often the only role we as ‘Autists’ play on this circuit is that of the subjects of research, either as volunteers or unwittingly when our autobiographic materials and many web sites and forums have been trawled by ethnographers and ethnomethodologists searching for readily available material. -
Introduction Contents
Select Committee on Autism, Department of the Senate, Parliament House, Canberra, ACT 2600. To the Committee, Introduction My name is David Cameron Staples. I am a son, a husband, a father, a professional worker in IT, I have lived in Melbourne my whole life, and I am on the Autism spectrum. Or, as we autists tend to prefer, I am “autistic”. Since I received my Asperger’s Syndrome diagnosis in 2010 at the age of 37, I have been reconciling myself with this new revealed identity, relearning how to better manage myself and my relations with others, and, over the last few years, attempting to advance the cause of Autism advocacy and access in my workplace at the University of Melbourne. Please note that what follows is based on my own experience and understanding. I am not a researcher (although I do make an effort to stay abreast of the research), and I do not speak for the University of Melbourne. I speak as an advocate for myself, and for my autistic kin, including those who aren’t so lucky as to be able to speak on their own behalf, easily or at all. I have tried to highlight key points below by bolding the main point and applying callout marks in the margins, as in this paragraph. I would make more recommendations for where to go next, but I think the main problem is that either we still don’t understand the question well enough yet, or else that it’s blindingly obvious what the answer is, but no-one’s done anything to implement it yet. -
A Historical Analysis of the Pioneers and Advocates of Autism
Loyola University Chicago Loyola eCommons Dissertations Theses and Dissertations 2015 A Historical Analysis of the Pioneers and Advocates of Autism Spectrum Disorder (1980-2013): Examining the Evolution of the Diagnosis and the Influences That Have Shaped What the Diagnosis Is Today Cynthia Marie Sikora Loyola University Chicago Recommended Citation Sikora, Cynthia Marie, "A Historical Analysis of the Pioneers and Advocates of Autism Spectrum Disorder (1980-2013): Examining the Evolution of the Diagnosis and the Influences That Have Shaped What the Diagnosis Is Today" (2015). Dissertations. Paper 1305. http://ecommons.luc.edu/luc_diss/1305 This Dissertation is brought to you for free and open access by the Theses and Dissertations at Loyola eCommons. It has been accepted for inclusion in Dissertations by an authorized administrator of Loyola eCommons. For more information, please contact [email protected]. This work is licensed under a Creative Commons Attribution-Noncommercial-No Derivative Works 3.0 License. Copyright © 2015 Cynthia Marie Sikora LOYOLA UNIVERSITY CHICAGO A HISTORICAL ANALYSIS OF THE PIONEERS AND ADVOCATES OF AUTISM SPECTRUM DISORDER (1980-2013): EXAMINING THE EVOLUTION OF THE DIAGNOSIS AND THE INFLUENCES THAT HAVE SHAPED WHAT THE DIAGNOSIS IS TODAY A DISSERTATION SUBMITTED TO THE FACULTY OF THE GRADUATE SCHOOL OF EDUCATION IN CANDIDACY FOR THE DEGREE OF DOCTOR OF EDUCATION PROGRAM IN ADMINISTRATION AND SUPERVISION BY CYNTHIA SIKORA CHICAGO, ILLINOIS MAY 2015 Copyright by Cynthia Sikora, 2015 All rights reserved. ACKNOWLEDGEMENTS I would like to thank Dr. Janis Fine who served as my adviser and mentor throughout the dissertation process. Dr. Fine gave helpful insight and provided feedback and a valuable learning experience. -
Jane Eyre. the Madwoman and the Blindman
THE MADWOMAN AND THE BLINDMAN THE MADWOMAN AND THE BLINDMAN Jane Eyre, Discourse, Disability EDITED BY DAVID BOLT JULIA MIELE RODAS ELIZABETH J. DONALDSON WITH A FOREWORD BY LENNARD J. DAVIS The Ohio State University Press | Columbus Copyright © 2012 by The Ohio State University. All rights reserved. Library of Congress Cataloging-in-Publication Data The madwoman and the blindman : Jane Eyre, discourse, disability / Edited by David Bolt, Julia Miele Rodas, and Elizabeth J. Donaldson ; with a foreword by Lennard J. Davis. p. cm. Includes bibliographical references and index. ISBN 978-0-8142-1196-0 (cloth : alk. paper)—ISBN 978-0-8142-9297-6 (cd) 1. Brontë, Charlotte, 1816–1855. Jane Eyre—Criticism, Textual. 2. People with disabilities in literature. I. Bolt, David, 1966– II. Rodas, Julia Miele, 1965– III. Donaldson, Eliza- beth J., 1965– PR4169.M23 2012 823'.8—dc23 2012027263 Cover design by James A. Baumann Text design by Juliet Williams Type set in Adobe Sabon and ITC Galliard Printed by Sheridan Books, Inc. The paper used in this publication meets the minimum requirements of the American Na- tional Standard for Information Sciences—Permanence of Paper for Printed Library Materi- als. ANSI Z39.48-1992. 9 8 7 6 5 4 3 2 1 Contents List of Illustrations vii Foreword by Lennard J. Davis ix Acknowledgments xiii INTRODUCTION · The Madwoman and the Blindman Julia Miele Rodas, Elizabeth J. Donaldson, and David Bolt 1 CHAPTER 1 · The Corpus of the Madwoman: Toward a Feminist Disability Studies Theory of Embodiment and Mental Illness Elizabeth J. Donaldson 11 CHAPTER 2 · The Blindman in the Classic: Feminisms, Ocularcentrism, and Jane Eyre David Bolt 32 CHAPTER 3 · “On the Spectrum”: Rereading Contact and Affect in Jane Eyre Julia Miele Rodas 51 vi CHAPTER 4 · From India-Rubber Back to Flesh: Contents A Reevaluation of Male Embodiment in Jane Eyre Margaret Rose Torrell 71 CHAPTER 5 · From Custodial Care to Caring Labor: The Discourse of Who Cares in Jane Eyre D.