PROSTATENEWS REDUCING THE IMPACT OF PROSTATE CANCER ISSUE 71 / JANUARY 2019
A focus on SURVIVORSHIP
Contact Us Prostate Cancer Foundation of Australia 1800 220 099 | pcfa.org.au INTRODUCTION Welcome from the Chairman
Contents improved prioritising of funded projects for the next five years and will be implemented in 2019.
Survivorship ...... 02 Our on-line community continues to attract increasing numbers of interested visitors who have access to general information (in English and five of the most spoken Nursing ...... 03 languages in Australia). This platform also enables interactive community discussion and posting of current research findings Support and and prostate cancer health issues from around the world. Awareness ...... 04 The number of Prostate Cancer Specialist Nurses employed in hospitals across Australia has also grown to 48. There is a Research...... 07 Dear Supporters need for 110 specialist nurses to ensure all men and their partners have access to the This is my first “Message from the services provided by these dedicated and Fundraising ...... 09 Chairman” and I am very proud to have compassionate professionals. PCFA are been appointed to this position by the actively seeking many sources of funding National Board of Directors. With your to ensure all Australians have access to help, PCFA will continue its vital mission Corporate Support ...... 11 this essential service. through strengthening and efficient delivery of our three program pillars of research, PCFA is a community organisation awareness and support. founded by and for those affected by Fundraising prostate cancer. We rely on your support In 2005 I became actively involved as to remain and build PCFA’s position as around the Country ...... 13 Convenor of the St Vincent’s Support the peak body, advocating and bringing Group to allow others who walk this services to these men and their families. path to have access to essential support services, many of which were in their Ours is a truly remarkable organisation infancy at that stage. We have come a and I feel deeply privileged to be able very long way since that time, however to serve you as National Chairman. I there is still much more we need to do. would like to offer my heartfelt thanks to I have remained involved in the prostate you – and all our supporters – for your cancer community for fourteen years and sustained contribution whether this be by have served as National Director for ten volunteering or financial support. years. In my new position, l am delighted to work with all our dedicated supporters, PCFA values your feedback. volunteers and staff on the expansion of If you would prefer a digital copy, PCFA’s positive impact for men diagnosed to unsubscribe, or to order more with prostate cancer and their families. copies, please send us an email at [email protected] Because of the generosity of people like Best wishes you, over the last ten years PCFA have For more information on PCFA, Steve Callister please visit www.pcfa.org.au funded Australian research programs National Chairman exceeding $60 million. Our newly developed Research Strategy allows
National Board
National Chairman Helen Dundon (SA/NT) Bill Munro (WA) Steve Callister (Marketing & Fundraising) Professor Mark Frydenberg AM John Palmer (Rotary) National Deputy Chairman (Awareness & Education) Geoff Underwood (VIC/TAS) Chris Hall (Finance & Operations) Peter Haylen (NSW/ACT) Associate Professor Tony Walker ASM Emeritus Professor Bruce Armstrong AM Jim Hughes AM (National Support & Community (Research Advisory) Associate Professor Andrew Kneebone Outreach) Distinguished Professor Judith Clements AC (QLD)
1 FEATURE Survivorship
Prostate cancer is the most commonly committed research and community diagnosed cancer in Australian men, with partners to strategically address prostate approximately 95% of men nationwide cancer survivorship issues. Key Action diagnosed surviving for at least 5 years. This collaborative effort uses an evidence- It is no surprise, therefore, that there are based approach to gather information, Areas over 200,000 Australian men living after a give voice and advocate for these men. › Survivorship focused diagnosis with prostate cancer. As the peak national body, our aim is to research studies inform improvements in policy, practice For those who survive, living with and and outcomes. › Build capacity through beyond a diagnosis presents other knowledge translation and significant challenges to health and Maintaining our grassroots approach, implementation wellbeing, collectively referred to as meaningful involvement from our network cancer survivorship. members brings invaluable, real-world › Advocate for change to perspective to this work. Such inclusive support optimal care A recent review into prostate cancer efforts increase the momentum and › survivorship has demonstrated substantial likelihood of long-term success. Integrate and promote gaps in knowledge, which result in barriers evidence-based support to real improvements in men’s outcomes Over the coming year we look forward across the survivorship experience. to updating everyone on the various survivorship projects, how to get involved In 2019, Prostate Cancer Foundation and progress made in this area. of Australia is driven to work with our
Key Needs Identified