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Keeping [In Touch] Spring 2021

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Keeping [In Touch] Spring 2021 keeping [inDeafBlind Ontariotouch Services | Spring 2021 ] ARRAY SERVICES + DEAFBLIND ONTARIO SERVICES ARE NOW ENRICHING LIVES, ONE TOUCH AND SIGN, AT A TIME TOGETHER AS DEAFBLIND ONTARIO SERVICES. ONTARIO FOUNDATION Contents 02 Community Partners 03 DeafBlind Ontario Services + Array Services 04 Community Services 05 Steve’s Story 06 Research Spotlight 07 Come to Your Senses A Scoping Review 08 Residential Services Reilly’s Story 10 Fundraising Events 2 11 Sponsors and Donors 12 Yarn Bombing/ National Deafblind Awareness Month Community Partners DeafBlind Ontario Services is grateful to the following organizations who have accepted people we support as volunteers or employees, giving them meaningful work experience and building confdence in their abilities: Agilec, Alcona Esso, Ayr Branch Library, County Style (Peterborough), East Side Mario’s (Aurora), Food Bank of Waterloo Region, Furry Friends (Barrie), Goodfellow Public School (Innisfl), Grandview Baptist Church (Kitchener), Holy Rosary Catholic Elementary School (Waterloo), Innisfl Fire Department, Innovation Works (London), K9 to 5 Doggie Daycare (Newmarket), 8 Knox United Church (Ayr), London Food Bank, Meals on Wheels (Oshawa), Peferlaw Library, Peterborough Fire Services, Salvation Army (Georgina), St. Peter’s Catholic School (Barrie), St. Thomas Aquinas School (Keswick), The Peggy Hill Team – Keller Williams Experience Realty, Brokerage (Barrie), Tim Hortons (Kitchener), Wal-Mart (London), Westhill Retirement Residence (Waterloo), Windreach Farm (Ashburn), YMCA Of London – Centre Branch, Zubick’s (London) Are you interested in making a diference as a Community Partner? Visit our website deafblindontario.com or call 12 1-855-340-3267 ext. 262 to learn more! 02 DeafBlind Ontario Services + On April 1, 2021, Array that combining our expertise Array Services Services and DeafBlind Ontario would strengthen services for Services, ofcially amalgamated individuals who are Deaf, to enhance specialized services hard-of-hearing, non-verbal and We are for people who are Deaf, hard-of- deafblind across Ontario. hearing, non-verbal and deafblind excited to across Ontario. “We’re excited by our future and announce our working better together.” By coming together, we will amalgamation be able to increase capacity, serve more people, and use resources more efectively. “We believe we will be stronger by Enriching lives coming together,” said Roxanna one touch and Spruyt, CEO of DeafBlind Ontario Services. “Our combined sign at a time expertise in serving these specialized populations is a natural ft.” The organizations worked Introducing our new logo! This towards this partnership for over combines DeafBlind Ontario a year. With government funders Services’ logo which symbolically looking for increased efciencies conveys the many facets of the in many sectors, including not-for- organization. With newly added profts, DeafBlind Ontario hands and colour scheme inspired Services and Array Services felt by Array Services’ logo. 03 Community Services Our Community Services are designed to reach Tremplin focuses on community involvement during people who are Deaf, hard of hearing, non-verbal or the day while allowing for participants to return home deafblind with customized support services. every night. Partnerships with families, other community agen- cies health care settings can beneft from our Supported Independent Living (SIL) for individu- expertise in support services, program planning, als who are Deaf, hard of hearing and non-verbal or training, and mentorship. deafblind who are able to live semi-independently within the community with minimal support. Partnerships ofers specialized expertise and services to individuals with deafblindness through Long Term Care provides communication support their supporting agency. services to persons who are Deaf, hard-of-hearing, non-verbal or deafblind living in Long Term Care Bridge (Sensory Loss Communication Training) (LTC) or other health care settings, to ensure people provides customized training opportunities for continue to have access to supports in their organizations that support individuals with a sensory language or preferred mode of communication. loss and/or communication challenges. Learn more at deafblindontario.com. (Sensory Loss Communication Training) (Sensory Loss Communication Training) Bridge 1004 Steve and his triplet brothers - Kevin (left), Steve (middle), and Philippe (right) Steve's Story “Let them” was Anne-Marie’s response oven burners to watch them heat or a location to open in the Ottawa area. to people staring at her son, Steve. try to get outside throughout the night, Throughout those years, Steve Without communication skills, Steve he was like Houdini. We had to install received support from DeafBlind often screamed as a child… a form a fence around the yard and lock the Ontario Services’ Partnerships, which of expression. But, he could not hear doors from the inside.” ofers specialized expertise and the sound or volume of his frequent services to individuals with deafblind- screams. Steve is deafblind. After years of sleepless nights and ness through their supporting agency. screaming, Steve was prescribed Deafblindness is a combination of medication that helped him to Steve moved into DeafBlind hearing and vision loss that is unique re-establish his internal clock. “It was Ontario Services’ new location earlier to each person. It can impact access a game changer,” recalls Anne-Marie. in 2020. “Steve and our entire family to information, communication, and From there, he learned Langue des are so happy. He has come a long mobility. signes Québécoise, LSQ for short. way, initiating conversation and Anne-Marie learned some LSQ too, increasing his knowledge of LSQ with Weighing just one pound and 14 noting that she practices this skill more consistent support from intervenors.” ounces, Steve and his identical triplet often with the team at DeafBlind brothers were born premature at 28 Ontario Services. “Steve has a home to call his own now, weeks. “At birth I learned that Steve living as normal of a life as possible. had vision loss due to Retinopathy DeafBlind Ontario Services’ Although it is difcult right now with of prematurity. Before he was a year, residential programs provide social distancing, my goal is for him to I knew that he had hearing loss too. accessible, barrier-free, afordable socialize more, meet friends for cofee, This was more difcult to determine, housing, and access to Intervenor or invite friends and family over for but around two, Steve was Services 24/7. Intervenors provide dinner in the future, to become more diagnosed as profoundly deaf. Steve visual and auditory information to and more independent in his daily also has chronic kidney disease,” says individuals with deafblindness. By living. Achieving this will be possible Anne-Marie. facilitating the exchange of informa- because of Intervenor Services,” says tion and assisting with communication Anne-Marie. Steve is completely blind in his right methods, intervenors empower people eye, with an eye prosthetic. In his left, with deafblindness to thrive. Today, Steve still taps into his sense he has between 10 to 20% vision, of discovery and curiosity to learn. bending and moving his head to see Anne-Marie frst learned about “On his own, he puts his fnger into with this eye. “We respected Steve’s DeafBlind Ontario Services through his glass to determine when a drink decision to not use a hearing aid, Centre Jules-Léger, the province’s only is poured to the right level. He also which he doesn’t like. Even with the French-language school for children brings his iPad close to his face so he highest quality hearing aid, there are who are Deaf or hard of hearing, blind can see a picture. He learned to slide still many sounds he wouldn’t be able or have low vision, are deafblind, or from one image to the next using his to hear,” Anne-Marie explains. have learning disabilities. nose... it’s very clever.” 95% of what we learn comes from “When I frst visited one of DeafBlind “When you go through something like what we see and hear. As a child, it Ontario Services’ locations in Steve has experienced, it’s really was very difcult for Steve to learn Kitchener, I knew it was what I wanted difcult. But, I am glad it happened to sign language. He had a hard time for Steve… somewhere he could live us. As a family, we see life so sitting still as well as sleeping. With as independently as possible,” says diferently and appreciate the small a spirit for adventure, Steve often Anne-Marie. victories. Every time Steve learns a learned through discovery. “He was new LSQ sign, we are so excited it’s very curious, he would turn on the For eight years, the family waited for unbelievable,” says Anne-Marie. 1105 rch on older adults with deafblindness deafblindness, to design services, pol- Research or dual sensory loss is limited with icies and solutions that directly affect respect to their experiences of health- them. Spotlight care access and utilization, despite the fact that the prevalence of DSL “By using inclusive methods, this work Research spotlight on Dr. Atul among the baby boomer generation is aimed to give a voice to the under-re- Jaiswal, PhD, Rehabilitation increasing and meeting their health- searched population of those with Science, School of Rehabilitation care needs can be one of the biggest deafblindness and to offer methodolog- Therapy, Queen’s University; challenges for the public health system ical guidelines for how to research with CIHR Postdoctoral Fellow, Vision of Canada. This is the knowledge gap persons with deafblindness,” he said. Science, Wittich Research Lab, that he intends to address in the Cana- “My research is guided by the values School of Optometry, Universi- dian context through his postdoctoral of equity, inclusion, and social justice.” ty of Montréal; MSW, Disability research. This methodology has been published Studies, Tata Institute of Social in SAGE Research Methods to help Sciences; BOT, Occupational In Ontario, 22 per cent or 70,080 of se- shape the future of inclusive research Therapy, Delhi University.
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