DOCSLIB.ORG

Executive Office of the President President's Council of Advisors On

Total Page：16

File Type：pdf, Size：1020Kb

Download full-text PDF Read full-text
Executive Office of the President President's Council of Advisors On REPORT TO THE PRESIDENT REALIZING THE FULL POTENTIAL OF HEALTH INFORMATION TECHNOLOGY TO IMPROVE HEALTHCARE FOR AMERICANS: THE PATH FORWARD Executive O!ce of the President President’s Council of Advisors on Science and Technology December 2010 Created: 2:52 PM 09/01/2009 — Modified: 2:27 PM 12/07/2010 REPORT TO THE PRESIDENT REALIZING THE FULL POTENTIAL OF HEALTH INFORMATION TECHNOLOGY TO IMPROVE HEALTHCARE FOR AMERICANS: THE PATH FORWARD Executive O!ce of the President President’s Council of Advisors on Science and Technology December 2010 About the President’s Council of Advisors on Science and Technology The President’s Council of Advisors on Science and Technology (PCAST) is an advisory group of the nation’s leading scientists and engineers, appointed by the President to augment the science and tech- nology advice available to him from inside the White House and from cabinet departments and other Federal agencies. PCAST is consulted about and often makes policy recommendations concerning the full range of issues where understandings from the domains of science, technology, and innovation bear potentially on the policy choices before the President. PCAST is administered by the White House Office of Science and Technology Policy (OSTP). For more information about PCAST, see http://www.whitehouse.gov/ostp/pcast + i + !e President’s Council of Advisors on Science and Technology Co-Chairs John P. Holdren Eric Lander Harold Varmus* Assistant to the President President, Broad Institute of President, Memorial Sloan- forScience and Technology Harvard and MIT Kettering Cancer Center Director, Office of Science and Technology Policy Members Rosina Bierbaum Chad Mirkin Dean, School of Natural Resources and Rathmann Professor, Chemistry, Materials Environment Science and Engineering, Chemical and University of Michigan Biological Engineering and Medicine Director, International Institute of Christine Cassel Nanotechnology President and CEO, American Board of Internal Northwestern University Medicine Mario Molina Christopher Chyba Professor, Chemistry and Biochemistry Professor, Astrophysical Sciences and University of California, San Diego International Affairs Professor, Center for Atmospheric Sciences Director, Program on Science and Global Security Scripps Institution of Oceanography Princeton University Director, Mario Molina Center for Energy and S. James Gates, Jr. Environment, Mexico City John S. Toll Professor of Physics Ernest J. Moniz Director, Center for String and Particle Theory Cecil and Ida Green Professor of Physics and University of Maryland Engineering Systems Shirley Ann Jackson Director, MIT’s Energy Initiative President, Rensselaer Polytechnic Institute Massachusetts Institute of Technology Richard C. Levin Craig Mundie President Chief Research and Strategy Officer Yale University Microsoft Corporation * Dr. Varmus resigned from PCAST on July 9, 2010 and subsequently became Director of the National Cancer Institute (NCI). + iii + Ed Penhoet Daniel Schrag Director, Alta Partners Sturgis Hooper Professor of Geology Professor Emeritus of Biochemistry Professor, Environmental Science and and of Public Health Engineering University of California, Berkeley Director, Harvard University-wide Center for Environment William Press Harvard University Raymer Professor in Computer Science and Integrative Biology David E. Shaw University of Texas at Austin Chief Scientist, D.E. Shaw Research Senior Research Fellow, Center for Maxine Savitz Computational Biology and Bioinformatics Vice President Columbia University National Academy of Engineering Ahmed Zewail Barbara Schaal Linus Pauling Professor of Chemistry and Physics Chilton Professor of Biology Director, Physical Biology Center Washington University California Institute of Technology Vice President, National Academy of Sciences Eric Schmidt Chairman and CEO Google, Inc. Staff Deborah Stine Mary Maxon Gera Jochum Executive Director, PCAST Deputy Executive Director, Policy Analyst PCAST + iv + EXECUTIVE OFFICE OF THE PRESIDENT PRESIDENT’S COUNCIL OF ADVISORS ON SCIENCE AND TECHNOLOGY WASHINGTON, D.C. 20502 President Barack Obama The White House Washington, DC 20502 Dear Mr. President, We are pleased to send you this report, Realizing the Full Potential of Health Information Technology to Improve Healthcare for Americans: The Path Forward, prepared by your President’s Council of Advisors on Science and Technology (PCAST). This report examines how health information technology could improve the quality of healthcare and reduce its cost, and whether existing Federal efforts in health information technology are optimized for these goals. To provide a solid scientific and economic basis for our recommendations, the Council assembled a Working Group of nongovernmental experts and also met with government officials, industry repre- sentatives, information technology experts, and healthcare professionals. PCAST has concluded that information technology can help catalyze a number of important benefits including improved access to patient data, which can help clinicians as they diagnose and treat patients and patients themselves as they strive to take more control over their health; streamlined monitoring of public health patterns and trends; an enhanced ability to conduct clinical trials of new diagnostic methods and treatments; and the creation of new high-technology markets and jobs. Health information technology can also help support a range of healthcare-related economic reforms needed to address our Nation’s long-term fiscal challenges. PCAST has also concluded that to achieve these objectives it is crucial that the Federal Government facilitate the nationwide adoption of a universal exchange language for healthcare information and a digital infrastructure for locating patient records while strictly ensuring patient privacy. More specifically, PCAST recommends that the Office of the National Coordinator for Health Information Technology and the Centers for Medicare and Medicaid Services develop guidelines to spur adoption of such a language and to facilitate a transition from traditional electronic health records to the use of healthcare data tagged with privacy and security specifications. PCAST hopes that its report will help lay a foundation for the decisions that you and others in the Federal Government must make. We are grateful for the opportunity to serve you and the country in this way and would be pleased to brief you or your staff if you have questions about our recommendations. Sincerely, John P. Holdren Eric Lander Co-Chair Co-Chair + v + Table of Contents About the President’s Council of Advisors on Science and Technology . i Co-Chairs . iii Members . iii Staff . iv Executive Summary . 1 PCAST Health Information Technology Working Group . 7 Co-Chairs . 7 Staff . 7 I. Introduction and Overview . 9 Introduction . 9 The Origins of This Study . 10 Analysis of the Problem . 10 The Present Federal Landscape . 12 Structure of This Report . 14 II. The Potential of Health IT . 15 Introduction . 15 Potential Benefits of Health IT: An Overview . 15 The Value of Patient-Specific Data to Patients . 18 The Value of Patient-Specific and Aggregated Data to Physicians. 19 The Value of Population Data for Research and Public Health . 21 Realizing the Potential of IT: A Data-Centric Approach . 22 Conclusion . 24 III. Health IT Today . 25 Introduction . 25 Historical Barriers to EHR Adoption . 25 Limitations of Present-Day EHRs . 26 Lessons from Early Adopters . 28 Health Information Exchanges . 31 New and Emerging Technologies . 32 The HITECH Act and Shifting Incentives. 34 Opportunities and Challenges for ONC and CMS . 34 Conclusion . 37 + vii + THE PATH FORWARD IV. Technology for an Integrated Health IT Ecosystem . 39 Introduction . 39 Earlier Models for Enabling Data Exchange . 39 Universal Exchange Using Metadata-Tagged Data Elements . 41 Data Element Access Services . 41 Advantages of the Tagged Data Element Approach . 43 V. Privacy and Security Considerations . 45 Introduction . 45 The Present Framework . 45 The Need for Strong, Persistent Privacy Protections . 46 Deleterious Effects on Medical Research and Care . 47 Data Security: How Good Is Good Enough? . 48 A Health IT Architecture for 21st-Century Privacy and Security. 49 Privacy Protection of Metadata-Tagged Data Elements. 51 VI. Economic and Regulatory Issues. 53 Introduction . 53 Standards and Incentives for Interoperability . 53 Creating a Data Exchange Infrastructure . 54 A Regulatory Structure for Data Access . 56 Competition to Supply Technology . 56 Innovation and Markets for Applications . 57 The Broader Economics of Healthcare . 58 Estimating Costs. 60 VII. Health Data and the Research Opportunity . 63 Introduction . 63 The Potential for Real-Time, Real-World, and Comprehensive Data . 64 Supporting Research Uses . 65 VIII. Guidance to Agencies . 69 Introduction . 69 A Feasible Roadmap to the Future . 69 Guidance on Necessary Design Choices . 71 Guidance on Meaningful Use Requirements . 73 IX. Recommendations . 77 + viii + TABLE OF CONTENTS Appendix A: Expert Input . 81 Appendix B: Acknowledgments . 85 Appendix C: Glossary . 87 Appendix D: Abbreviations . 91 + ix + Executive Summary Information technology (IT) has the potential to transform healthcare as it has transformed many parts of our economy and society in recent decades. Properly implemented, health IT can: • Integrate technology into the flow of clinical practice as an asset, while minimizing unproduc- tive data entry work. • Give clinicians real-time access to complete patient
Load more

Recommended publications
  • Executive Branch
    EXECUTIVE BRANCH THE PRESIDENT BARACK H. OBAMA, Senator from Illinois and 44th President of the United States; born in Honolulu, Hawaii, August 4, 1961; received a B.A. in 1983 from Columbia University, New York City; worked as a community organizer in Chicago, IL; studied law at Harvard University, where he became the first African American president of the Harvard Law Review, and received a J.D. in 1991; practiced law in Chicago, IL; lecturer on constitutional law, University of Chicago; member, Illinois State Senate, 1997–2004; elected as a Democrat to the U.S. Senate in 2004; and served from January 3, 2005, to November 16, 2008, when he resigned from office, having been elected President; family: married to Michelle; two children: Malia and Sasha; elected as President of the United States on November 4, 2008, and took the oath of office on January 20, 2009. EXECUTIVE OFFICE OF THE PRESIDENT 1600 Pennsylvania Avenue, NW., 20500 Eisenhower Executive Office Building (EEOB), 17th Street and Pennsylvania Avenue, NW., 20500, phone (202) 456–1414, http://www.whitehouse.gov The President of the United States.—Barack H. Obama. Special Assistant to the President and Personal Aide to the President.— Anita Decker Breckenridge. Director of Oval Office Operations.—Brian Mosteller. OFFICE OF THE VICE PRESIDENT phone (202) 456–1414 The Vice President.—Joseph R. Biden, Jr. Assistant to the President and Chief of Staff to the Vice President.—Bruce Reed, EEOB, room 276, 456–9000. Deputy Assistant to the President and Chief of Staff to Dr. Jill Biden.—Sheila Nix, EEOB, room 200, 456–7458.
    [Show full text]
  • Report to the President on Health Information Technology
    REPORT TO THE PRESIDENT REALIZING THE FULL POTENTIAL OF HEALTH INFORMATION TECHNOLOGY TO IMPROVE HEALTHCARE FOR AMERICANS: THE PATH FORWARD Executive Office of the President President’s Council of Advisors on Science and Technology December 2010 Created: 2:52 PM 09/01/2009 — Modified: 2:27 PM 12/07/2010 REPORT TO THE PRESIDENT REALIZING THE FULL POTENTIAL OF HEALTH INFORMATION TECHNOLOGY TO IMPROVE HEALTHCARE FOR AMERICANS: THE PATH FORWARD Executive Office of the President President’s Council of Advisors on Science and Technology December 2010 About the President’s Council of Advisors on Science and Technology The President’s Council of Advisors on Science and Technology (PCAST) is an advisory group of the nation’s leading scientists and engineers, appointed by the President to augment the science and tech­ nology advice available to him from inside the White House and from cabinet departments and other Federal agencies. PCAST is consulted about and often makes policy recommendations concerning the full range of issues where understandings from the domains of science, technology, and innovation bear potentially on the policy choices before the President. PCAST is administered by the White House Office of Science and Technology Policy (OSTP). For more information about PCAST, see http://www.whitehouse.gov/ostp/pcast ★ i ★ The President’s Council of Advisors on Science and Technology Co-Chairs John P. Holdren Eric Lander Harold Varmus* Assistant to the President President, Broad Institute of President, Memorial Sloan­ forScience and Technology
    [Show full text]
  • For Medical Products and Medications
    The Robert Wood Johnson Foundation is pleased to support the Health Data Initiative Forum III: The Health Datapalooza. It is clear our nation is not as in our way—in all their complexity— healthy as it can or should be. that we can forge solutions that Over our 40 years in health improve the health and health philanthropy, we have learned care of all Americans. We are that it is only when we fully proud to support this exploration grasp the challenges that stand at The Health Datapalooza. For more information visit www.rwjf.org. 40 YEARS OF IMPROVING HEALTH AND HEALTH CARE Honoring 40 years of leadership in addressing America’s most pressing health and health care challenges. Table of Contents Planning Committee of the Health Datapalooza 2 Welcome 3 The Health Data Consortium 5 History of the Health Data Initiative 6 Sponsors of the Health Datapalooza 7 Agenda At-a-Glance 8 Day 1 Detailed Schedule 10 Day 2 Detailed Schedule 12 Afternoon Apps Demos Schedule 14 Breakout Session Descriptions 16 Participants Moderators 31 Speakers 32 Special Guests 34 Data & Apps Expo Map 36 Participating Organizations 37 Apps Index 38 General Information 55 Acknowledgements and Area Map 56 Event Map Back Cover 1 Planning Committee Tremendous thanks to the talented, wise, creative members of the HDI Forum III: The Health Datapalooza Planning Committee. Visit our website at www.hdiforum.org to learn more about their contributions to the areas of health, technology, business, investing, law, academia, and research. Bob Kocher Co-Chair Partner, Venrock Richard N. Foster Co-Chair Managing Partner, Investment & Advisory Services, L.L.C.
    [Show full text]
  • Administration of Barack Obama, 2012 Digest of Other White House Announcements December 31, 2012 January 1 January 2 January
    Administration of Barack Obama, 2012 Digest of Other White House Announcements December 31, 2012 The following list includes the President's public schedule and other items of general interest announced by the Office of the Press Secretary and not included elsewhere in this Compilation. January 1 In the morning, in Kailua, HI, the President had an intelligence briefing. January 2 In the morning, the President had an intelligence briefing. In the afternoon, the President, Mrs. Obama, and their daughters Sasha and Malia returned to Washington, DC, arriving the following morning. The White House announced that the President will travel to Cleveland, OH, on January 4. January 3 In the morning, in the Oval Office, the President and Vice President Joe Biden had an intelligence briefing. Then, also in the Oval Office, he met with his senior advisers. In the afternoon, in the Private Dining Room, the President and Vice President Biden had lunch. Later, in the Oval Office, they met with Secretary of Defense Leon E. Panetta. January 4 In the morning, in the Oval Office, the President and Vice President Joe Biden had an intelligence briefing. He then traveled to Cleveland, OH. In the afternoon, outside the home of William and Endia Eason, the President greeted Cleveland residents. Later, he returned to Washington, DC. The White House announced that the President will travel to the Pentagon in Arlington, VA, on January 5. The White House announced that the President will welcome the 2011 NBA champion Dallas Mavericks to the White House on January 9. The President announced the recess appointment of Richard A.
    [Show full text]
  • Jeanne Lambrew Marilyn Tavenner Jon Blum
    3:00-4:00pm WHITE HOUSE DELIVERY SYSTEM REFORM MEETING Roosevelt Room Participants: Jeanne Lambrew Marilyn Tavenner Jon Blum Mark Childress Tim Gronniger, DPC Chris Dawe, NEC James D'Orta, Consumer Health Services Steve ErkenBrack, President and CEO, Rocky Mountain Health Plans, Grand Junction, CO Ben Chu, MD, Group President, Kaiser-Permanente of Southern California and HI Nancy Schlichting, CEO, Henry Ford Health System, Detroit, MI John Koster, MD, President and CEO, Providence Health System, Renton, WA Francis "Jay" Crosson, AMA, Chicago Format: - Guests and senior White House and HHS personnel will be seated around the table. - Childress welcomes guests to the White House and introduces YOU. - YOU give overview of meeting purpose. - Marilyn gives overview of Administration delivery system reform activities. - YOU and Childress moderate group discussion. - After one hour, YOU, Childress, (Marilyn) depart; Lambrew (Tavenner) Dawe and Gronniger stay to continue the discussion, if needed. 4:00-4:15pm DEPART WHITE HOUSE EN ROUTE TO HHS 4:30-6:00pm HEALTH REFORM IMPLEMENTATION COORDINATING COMMITTEE Deputy Secretary’s Conference Room 7:30pm (b)(6) Wednesday, May 1 Runner: AM Security: (b)(6), (b)(7)(F) PM Security: 9:15-9:30am DEPART RESIDENCE EN ROUTE US CHAMBER OF COMMERCE 7 9:30-9:50am OFFICIAL REMARKS: WE THE PEOPLE HEALTHCARE SYMPOSIUM US Chamber of Commerce Hall of Flags 1615 H Street NW Staff: Advance: Hollis Chappell and Samira Jali Press: Open Participants: Cástulo de la Rocha, President and CEO, AltaMed Audience: 300 primarily Latino CEO’s, Business Owners and Executives Format: - YOU will be introduced by Mr. de la Rocha - YOU will give remarks and depart 10:00-11:00am DEPART EN ROUTE TO JHU BLOOMBERG SCHOOL OF PUBLIC HEALTH 615 N.
    [Show full text]
  • The United States Government Manual 2014
    The United States Government Manual 2014 Office of the Federal Register National Archives and Records Administration Revised July 1, 2014 Charles A. Barth, Director of the Federal Register. David S. Ferriero, Archivist of the United States. ii Preface As the official handbook of the Federal Government, The United States Government Manual provides comprehensive information on the agencies of the legislative, judicial, and executive branches. The Manual also includes information on quasi- official agencies; international organizations in which the United States participates; and boards, commissions, and committees. A typical agency description includes a list of principal officials, a summary statement of the agency’s purpose and role in the Federal Government, a brief history of the agency, including its legislative or executive authority, a description of its programs and activities, and a “Sources of Information” section. This last section provides information on consumer activities, contracts and grants, employment, publications, and many other areas of public interest. The Manual is also available and periodically updated on its own website. The U.S. Government Manual website (usgovernmentmanual.gov) is jointly administered by the Office of the Federal Register (OFR)/Government Printing Office (GPO) partnership. The website offers three ways to and information about Government agencies and organizations by entering a term in the keyword search box, browsing categories, or using “The Government of the United States” site map for an overview of the Government. For more information and to view The Manual online, go to www. usgovernmentmanual.gov. The 2014 Manual was prepared by the Presidential and Legislative Publications Unit, Office of the Federal Register.
    [Show full text]
  • Read the Government CIO 50 Report
    February 2011 $99 Analytics.InformationWeek.com Strategy Session Presented in conjunction with Government CIO 50 Profiles of the top IT decision-makers in federal, state and local government, and their strategies for driving efficiency, innovation and new services. By John Foley and J. Nicholas Hoover Report ID: S2560211 Government CIO 50 Analytics.InformationWeek.com Strategy Session 3 List of Government CIO 50 S 4 Authors’ Bios 5 Executive Summary T 7 Introduction 9 Government CIO Profiles N 34 Chris Kemp Q&A F E 34 Air Force CIO Priorities O 35 Berkeley Lab: Cloud Leader T 35 Frank Baitman Q&A E 36 Related Reports N L B O A T C ABOUT US | InformationWeek Analytics’ experienced analysts arm business technology decision-makers with real-world perspective based on a combination of qualitative and quantitative research, business and technology assessment and planning tools, and technology adoption best practices gleaned from experience. If you’d like to contact us, write to managing director Art Wittmann at [email protected], content director Lorna Garey at [email protected] and research managing editor Heather Vallis at [email protected]. Find all of our reports at www.analytics.informationweek.com. 2 February 2011 © 2011 InformationWeek, Reproduction Prohibited Government CIO 50 Analytics.InformationWeek.com Strategy Session 9 Gen. Keith Alexander, NSA, U.S. CyberCommand 23 Todd Park, Health and Human Services 9 Rosio Alvarez, Lawrence Berkeley National 23 Carole Post, New York City Laboratory 24 Nitin Pradhan, Dept. of Transportation G 10 Lonny Anderson, National Security Agency 24 Ron Ross, NIST 10 Frank Baitman, Social Security Administration 25 Kristin Russell, Colorado 11 Roger Bake r, Dept.
    [Show full text]
  • Issues for the 114Th Congress
    The White House Office of Science and Technology Policy: Issues for the 114th Congress name redacted Acting Deputy Assistant Director/Resources, Science and Industry name redacted Specialist in Science and Technology Policy May 5, 2015 Congressional Research Service 7-.... www.crs.gov R43923 The White House Office of Science and Technology Policy: Issues for the 114th Congress Summary Congress established the Office of Science and Technology Policy (OSTP) through the National Science and Technology Policy, Organization, and Priorities Act of 1976 (P.L. 94-282). The act states, “The primary function of the OSTP Director is to provide, within the Executive Office of the President [EOP], advice on the scientific, engineering, and technological aspects of issues that require attention at the highest level of Government.” Further, “The Office shall serve as a source of scientific and technological analysis and judgment for the President with respect to major policies, plans, and programs of the Federal Government.” The OSTP Director is appointed by the President, subject to Senate confirmation, and may also be appointed Assistant to the President for Science and Technology (APST). The APST manages the National Science and Technology Council, an interagency body established by Executive Order 12881 that coordinates science and technology policy across the federal government. The APST also co-chairs the President’s Council of Advisors on Science and Technology, a council established by Executive Order 13539 and composed of external advisors who provide advice to the President. In the Obama Administration, John Holdren is both the OSTP Director and the APST. OSTP is engaged in several activities of potential interest to the 114th Congress.
    [Show full text]
  • 2014 Open Government Awards Submission of the United States Of
    2014 Open Government Awards Submission of The United States of America Collaboration and Innovation through Prizes, Crowdsourcing, and Citizen Science June 2014 i The 2014 Open Government Awards United States Submission Initiative Name Collaboration and Innovation through Prizes, Crowdsourcing, and Citizen Science The Nomination The United States selected this initiative because it is an element of President Barack Obama’s Strategy for American Innovation, an effort to advance national priorities by collaborating with civil society, including companies, universities, foundations, philanthropists, organizations, and everyday Americans. In completing the U.S. entry, the Administration consulted with experts on the subject from inside and outside of government, as well as with civil society through an in-person Open Government Working Group meeting, the online U.S. Open Government Discussion Group, and outreach to members of the public. Government Point of Contact The United States Government point of contact for this entry is U.S. Chief Technology Officer Todd Park. Mr. Park is best reached through U.S. Deputy CTO Nick Sinai. The physical address is: Todd Park U.S. Chief Technology Officer Office of Science and Technology Policy Executive Office of the President 1650 Pennsylvania Avenue, N.W. Washington, DC 20502 Tel: +1-202-456-4444 [email protected] Civil Society Points of Contact James Anderson Sarah Koch John Bracken Director, Government Director, Social Innovation Director, Media Innovation Innovation Programs Case Foundation John S. and James L. Knight Bloomberg Philanthropies [email protected] Foundation [email protected] [email protected] 1 Participants This entry involves collaborative projects across many U.S. Federal agencies, as well as civil society.
    [Show full text]
  • Todd Park ­ Wikipedia Todd Park from Wikipedia, the Free Encyclopedia
    10/18/2016 Todd Park ­ Wikipedia Todd Park From Wikipedia, the free encyclopedia Todd Park is a technology advisor based in Silicon Valley for the Obama Administration.[1] He was formerly the second Chief Todd Park Technology Officer of the United States,[2] replacing the United States' first CTO Aneesh Chopra. On September 4, 2014, it was announced that Megan Smith would replace Park.[3] Contents 1 Early life and education 2 Athenahealth, Castlight, and Ashoka 3 Department of Health and Human Services 4 US Chief Technology Officer 5 Involvement with Healthcare.gov 6 References 7 External links Early life and education 2nd United States Chief Technology Officer Park was born in 1973 in Salt Lake City, Utah to South Korean In office immigrant parents. He graduated from the Columbus Academy March 1, 2012 – August 28, 2014 in 1990.[4] In that year he was named a Presidential Scholar.[4] President Barack Obama He attended Harvard as an economics major where he met his Preceded by Aneesh Chopra future wife and mother of his two children, Amy.[5] He Succeeded by Megan Smith graduated magna cum laude and a Phi Beta Kappa.[6] Personal details Athenahealth, Castlight, and Ashoka Born 1973 (age 42–43) Salt Lake City, Utah, U.S. Park co­founded athenahealth with Jonathan S. Bush in 1997 at Political party Democratic [5] the age of 24. In 2008 he co­founded Castlight Health, named Spouse(s) Amy by the Wall Street Journal as the #1 venture­backed company in Children 2 America for 2011.[7] Alma mater Harvard University Park also served as a volunteer senior advisor to Ashoka, a global incubator of social entrepreneurs, where he helped start a venture called Healthpoint Services, which brings affordable clean water, drugs, diagnostics, and telehealth services to rural villages in India.
    [Show full text]
  • A Consensus Letter to the HHS Office of Civil Rights and the Centers For
    A Consensus Letter to the HHS Office of Civil Rights and the Centers for Medicare and Medicaid Services on the Need to Finalize the Proposed Rule to Expand the Rights of Patients to Access their Test Results October 26, 2012 The Honorable Kathleen Sebelius Secretary United States Department of Health and Human Services William V. Corr Deputy Secretary, Department of Health and Human Services Leon Rodriguez Director, Office of Civil Rights Marilyn Tavenner Administrator, Centers for Medicare and Medicaid Services Thomas R. Frieden Director, Centers for Disease Control and Prevention cc: Todd Park, United States Chief Technology Officer Farzad Mostashari, National Coordinator for Health Information Technology Joy Pritts, Chief Privacy Officer, Office of the National Coordinator for Health Information Technology Bryan Sivak, Chief Technology Officer, Department of Health and Human Services Re: Support for the 2011 Proposed Rulemaking on the CLIA Program and HIPAA Privacy Rule; Patients’ Access to Test Reports, RIN 0938-AQ38 Dear Secretary Sebelius, Director Rodriguez, Administrator Tavenner, and Director Frieden: On September 14, 2011, your agencies put forward a proposed rulemaking, RIN 0938- AQ38, which would expand patients’ right to access their health records by giving them the right to receive their test results directly from laboratories. We are writing to voice our whole-hearted support for that proposed rule and to encourage you to do all in your power to finalize it promptly, so that the current obstacles patients face in gaining access to their test results are removed as soon as possible. Background. The 2003 HIPAA Privacy Rule gave individuals the crucial right to access their protected health information.
    [Show full text]
  • Government Manual
    THE UNITED STAT ES GOVERNMENT MANUAL 2013 The United States Government Manual 2013 Offi ce of the Federal Register National Archives and Records Administration GGOVMAN.indbOVMAN.indb i 99/20/2013/20/2013 88:02:05:02:05 AAMM Revised July 1, 2013 Charles A. Barth, Director of the Federal Register. David S. Ferriero, Archivist of the United States. On the cover: The Stone of Hope Statue, the Martin Luther King, Jr. Memorial, near the Lincoln Memorial, on the shore of the Tidal Basin. The National Archives and Records Administration (NARA) joins the Nation in celebrating the 50th anniversary of the 1963 March on Washington for Jobs and Freedom. On August 28, 1963, despite searing heat, over 250,000 people from all corners of the country marched on our Nation’s capital. In the shadow of the Washington Monument, all the marchers shared the same dream: equality for the nearly 20 million African Americans living in the United States. Organized by a coalition of civil rights, religious, and labor organizations, the March on Washington for Jobs and Freedom drew hundreds of thousands of participants in support of President John F. Kennedy’s proposed civil rights bill. Organizers included A. Philip Randolph of the Brotherhood of Sleeping Car Porters, Roy Wilkins of the National Association for the Advancement of Colored People, John Lewis of the Student Nonviolent Coordinating Committee, and Dr. Martin Luther King, Jr. of the Southern Christian Leadership Conference. Recordings of Dr. King’s “I Have a Dream” speech that day have helped it become one of the best-remembered speeches in American history and a lasting symbol of the event.
    [Show full text]