Handbook for inpatients Welcome

After many years of planning, We want to do everything we our vision for a new Royal can to make your stay in hospital Papworth Hospital on the as pleasant and comfortable as Cambridge Biomedical possible. This booklet gives you Campus is now a reality. information about preparing for your stay, what to expect in The new Royal Papworth terms of your clinical care and Hospital has been designed by how we will help you make our clinicians with patients in arrangements for going home. mind, and we hope you will experience many of the benefi ts If, while you are in hospital, you of our new hospital during your have any questions about stay. Our doctors, nurses and something not covered in this other health professionals now booklet, please feel free to ask have access to brand new, state- a nurse or another member of of-the-art equipment, and we staff for help. have more theatres and catheter If you need any further laboratories in which to carry information before you are out our specialist procedures. due to arrive in hospital, please As a patient, you will benefi t contact our Patient Advice and from having your own en suite Liason Service (PALS) on 01480 bedroom during your stay in 364896/01223 638896 or the hospital. Each ward fl oor will nurse in charge of the ward also have a day room where you indicated on your appointment can relax and enjoy the company letter. They will be happy to of other patients. In your room, help you. you will have access to free With best wishes, Wi-Fi and a wide range of TV and radio channels to make you feel more at home in the hospital. In addition, a range of facilities including a shop, Stephen Posey, Chief Executive restaurant, coffee shop and cash point will be available for you to use during your stay. Preparing to come into hospital operates a policy Royal Papworth Hospital whereby if a caller telephones the switchboard and asks for Your admission letter will you by name, the operators give you specifi c information will confi rm which ward you including the date of your are on. Everyone working in admission and the name of the NHS has a legal duty to the unit or ward on which you keep information about you will be an inpatient. It may confi dential and if you would also include instructions as prefer us not to give out this appropriate, such as asking information, please inform you not to eat or drink, or take a member of staff on certain medicines, before you your arrival. come in. If you do not understand any Wards and visiting of these instructions, please Please fi nd details of visiting phone the number on your times below. We understand appointment letter for advice. how important it is to receive visits from friends and family This handbook provides members during your stay, and general information which will do our best to accommodate we hope you fi nd useful, visits outside of these times. but please also read your To minimise disruption to other admission letter carefully patients, please limit the number as that will give you more of visitors you have at any one specifi c information. time. Please speak to the nurse in charge to check whether Contacting us children under the age of two You can call the hospital will be allowed to visit you. switchboard on 01480 Visitors are asked not to lie or 830541/01223 638000. The sit on the beds and to return all switchboard team will be able spare chairs to their designated to put you through to the ward storage area after use. All or department you need. visitors will be asked to use the In order for relatives and hand hygiene gel located to the carers to contact you, the entrance to each ward. Visiting times on all wards • Night clothes (front opening/ except Critical Care buttoning) 14:00-17:30 each day • Dressing gown 18:30-20:00 each day • Slippers Visiting hours for Critical Care • Hairbrush/comb/shampoo Open visiting except between 14:30-15:30 each day • Toothbrush/toothpaste/denture cleaner Special requirements • Liquid soap (not a bar) If you have any special • Paper tissues requirements, please let us know before you are admitted to • Glasses/contact lenses hospital and remind your nurse • Shaving equipment (any when you arrive on the ward. electrical equipment may need These might include, for to be tested by hospital staff example, accessibility before use) requirements, dietary • Walking stick requirements or the need for translation services. Please also • Hearing aid and batteries mention any known allergies. • Mobile phone and charger For the hearing impaired, a • Ipad or tablet hearing ‘loop’ system operates in the main reception area, • Book outpatients reception and on What not to bring each ward reception. with you Large-print versions of hospital Personal property information booklets (including A bedside locker is available this one) are available on for your personal belongings. request. However, storage space is limited What to bring with you so please only bring the items you will need during your stay. You may wish to use this check-list as a guide: Valuables • Medication Please do not bring in a lot of money or valuables – just a small • Clothes and underwear amount of change that you will These must be shown to your need for newspapers, drinks etc. nurse or doctor when you arrive. Your nurse will arrange for them We regret that the hospital to be stored securely on the cannot be held responsible ward during your stay. for any money or valuables If you have an anticoagulant which are not handed over record book, methotrexate or for safe-keeping. lithium monitoring booklet, please bring this with you. At no A cash point is located on the time during your stay should you ground floor of the hospital, take any medicines (including close to the restaurant. herbal or complementary therapies or food supplements Please do not bring the such as vitamins and minerals) following into hospital not prescribed by, or known • Alcohol about and agreed by, your • Knives hospital doctor. • Towels If you are participating in the ‘Self Administration of • Flannels/face-cloths Medicines’ programme you Medicines will be advised by nursing staff how and when to take your Please bring your regular medicines. Your own medicines medicines with you into will be returned to you on hospital. These should include discharge provided that you are all those prescribed by your still instructed to continue with general practitioner: eye them. Any medicines no longer drops, inhalers, patches, prescribed will be destroyed creams, injections etc, and for your convenience. If you any medicines that you take do not wish to consent to the regularly but purchase from destruction of medication in this your local pharmacy including way then please alert a member any herbal or homeopathic of nursing or pharmacy staff preparations. The medicines at the beginning of your stay. should be in their original The hospital will provide you packaging and it is advisable to with any additional necessary bring in at least a week’s supply. medicines for you to take home on your discharge from hospital. During the course of your During this time you will be admission you may be prescribed kept informed by staff, and various medicines. Occasionally provided with refreshments. it may be necessary to prescribe Some patients are asked to a medicine which does not have come ‘starved’ for a procedure a product licence. Your doctor and in these circumstances will explain why this unlicensed refreshments will not be offered. medicine is being recommended and any possible side-effects. Patient identification If you have any queries or When you are in hospital, you concerns about any aspect of will be required to wear identity your medication, please ask your wristbands at all times. This doctor, nurse or pharmacist. ensures that staff can identify you correctly and give you the Pharmacists visit all inpatient right care. A member of staff wards daily (Monday-Friday). should put wristbands on you Arrival at Royal as soon as you are admitted to Papworth Hospital hospital and you should wear these throughout your stay. On arrival at Royal Papworth If a wristband comes off or is Hospital, please follow the uncomfortable, please ask a instructions in your appointment member of staff to replace it. letter and either go the main reception on the ground floor or If you have crowned, directly to your ward. bridged or loose teeth There are two lifts in the main During certain surgical waiting area on the ground floor operations, there is a slight risk with clear signs about which of damage to crowned teeth, wards are on each floor. dental bridge work or loose Please try to arrive on time. We teeth. If you have crowned will make your admission as teeth, bridge work or loose quick and easy as possible, but teeth please discuss this when delays may occur if others need you see the anaesthetist before to be admitted in an emergency. the operation. When you arrive on the ward, a member of staff will show you to your room. Nail varnish/nail Staff at Royal Papworth extensions Hospital Please remove any nail varnish, On the wards gel nails and false nails before During your stay you will of coming into hospital. course meet various doctors and nurses, but also many other Cancellations staff. You will be under the Royal Papworth Hospital care of a consultant and a team works extremely hard to avoid of doctors. Because of other cancelling procedures wherever commitments, the consultant possible. It fully recognises how may be unable to visit the ward frustrating and inconvenient every day but he or she will be in cancellation can be. However, close contact with the resident regrettably, due to medical doctors who are always available emergencies or unforeseen for medical attention or to circumstances, cancellation is explain things to you. sometimes unavoidable. If this is On the wards you will be cared the case we will organise a new for by senior nurses such as appointment or admission date ward sisters and specialist for you as soon as possible. nurses, and by more junior If your invasive procedure or nurses, such as staff nurses. surgery is cancelled at the last Healthcare support workers and minute − that is, on the day you housekeepers will also help with were due to be admitted, or your care. The different roles after you have been admitted, or are distinguished by different on the day of your operation − it uniforms, and they will all be will be rearranged for within 28 wearing identity badges. days, as set down by guidelines Matrons issued by the Department of The matrons are experienced Health. senior nurses who support The hospital always regrets the ward/department staff and apologises for any in managing and delivering inconvenience caused by patient care. They are cancellations, although it cannot responsible for ensuring that be held responsible for any costs services influencing the patient incurred. experience are of an acceptable standard. For example, they PALS advisors can also tell you monitor the cleanliness of the about the hospital’s complaints care environment, the standard process and how to contact of nursing care delivery, the other organisations that might housekeepers and the meal be able to help or advise you. delivery service. Matrons wear You can contact the PALS a navy-blue uniform with white team by phone on 01480 polka dots and you are most 364896/01223 638896, by email welcome to ask for their help to to [email protected] or answer any questions or address by visiting their office on the any concerns. If at any time ground floor of the hospital. during your stay you would like to speak to a matron, please Life on the ward ask your ward nurse who will The hospital day can begin contact them. early, with scheduled tests, investigations or operations All our staff − both on the commencing at 08:00. During wards and elsewhere – ward rounds, patients are seen wear identity badges, and by the medical staff working you are encouraged to ask with their consultant. to see them if you want to. If you or your relatives would like to speak to the consultant Patient Advice and privately, please ask your nurse Liaison Service (PALS) who will give you contact Our PALS team provides details so you can arrange confidential, on-the-spot advice an appointment. If you are and support to help you and uncomfortable or in pain, your family deal with any please let the staff know. questions or concerns you may Never be worried about using have about the care we provide. the call bell beside your bed; The team can offer help and your safety is our main concern, support if things go wrong and so please use the call bell if you will listen to your concerns, need to. suggestions and queries so that we can improve our services. Asking about your phlegm), chest pain and treatment breathlessness. We want you to feel informed and involved in your care VTE requires immediate throughout your stay in hospital. treatment: if you develop Please do not hesitate to ask any of these symptoms, anyone involved in your care either in hospital or after about the following subjects: discharge, please seek medical advice immediately. • What is the matter with me? • What is going to happen next? Admission to hospital can • When am I going to be increase a patient’s risk of discharged? developing VTE as inpatients tend to lie or sit still for long • What needs to happen before periods of time. On admission, I leave? and again as necessary during Well-informed patients are more your stay, you will be assessed likely to have a better experience for your VTE risk. Most patients in hospital and to return to their admitted to Royal Papworth are daily lives, so please feel able to given preventative treatment as ask these questions. a matter of routine unless this is for some reason inappropriate. Preventing Venous You may be given exercises Thromboembolism (VTE) to perform, special support VTE is caused by the formation stockings to wear, and/or of blood clots; most commonly anticoagulant medicine (blood in a form called deep vein thinners). thrombosis (DVT). This is a blood There are also ways in which clot that forms in a deep vein, you yourself can reduce your risk most commonly in your leg of VTE: or pelvis. It can result in pain • Try to get up and walk about and swelling, and if part of as soon as possible and the clot breaks off and lodges as much as possible − our in the arteries that supply the physiotherapists and nurses lungs, can result in pulmonary will help you with this in the embolism (PE), which causes early stages of your recovery. coughing (with blood-stained • Unless you are placed on sound − this indicates a fire in a fluid-restricted regime, another part of the building. drink plenty of fluid to keep hydrated. Lifting • Try to remember not to sit or Royal Papworth Hospital has lie with your legs crossed. introduced a minimal lifting The nurses will remind you! policy in order to reduce the risk of injury to its staff. Wherever As with all aspects of your possible, when a patient needs stay, if you have any queries or lifting, for example to change concerns, please ask a member their position in bed or into the of staff. bath, an appropriate lifting aid Teaching or hoist will be used. Royal Papworth Hospital Meals and diets provides important teaching During your stay in hospital, we facilities for clinical staff. You will provide you with a varied may be asked to allow students selection of meals to choose to be involved in your care. from. Our menus are coded We hope you will give your to allow you to select higher permission if your cooperation is energy, vegetarian, soft, and requested, but you are under no healthier choices as required. obligation to do so and should Other specialist menus are you decline, your treatment will available. If you have a particular not be affected in any way. dietary requirement, it is Fire alarm important to let the nurse know when you are admitted to the The fire alarm makes a loud, ward. Some of the meals on the continuous sound. On hearing menu may contain allergens, so the alarm you are advised to it is important to let us know stay in your bed area. Patients if you have an allergy. If you will be given instructions and/ require a special diet during your or assistance to evacuate the stay in hospital, we will advise building by one of the nursing you of this and you may be staff if the need arises. In some visited by a dietitian. In addition areas an intermittent alarm may to breakfast, lunch and dinner meals, snacks are served on interact with medication or go the wards twice a day. If you against dietary advice a patient miss a meal, you can ask for a has been given. snack box at any time of the day (or night). We therefore ask that you always seek advice from Restaurant the nurse in charge before Patients are also welcome to bringing in, or eating, visit the public restaurant on the brought-in food. ground floor of the hospital, but please check with the nurse Where appropriate, food will looking after you before leaving need to be clearly labelled with the ward. The restaurant will be the patient’s name and the date, open from 07:30 to 19:00 seven and be placed in the ward fridge days a week. by the housekeeping staff. Two Patients’ own food information sheets are available for patients/relatives who wish As part of its responsibility to bring food in - please ask the to its patients, the hospital is nurse for these. The hospital committed to ensuring that cannot be held responsible for patients receive a healthy any illness or adverse effect diet and that food is safely arising from food brought in stored, prepared and served in for patients from outside the accordance with legislation and hospital. It can only accept other standards. We understand responsibility for food provided that sometimes relatives and by its own catering department. friends might want to bring food gifts or that you might Shop and coffee pod ask for food to be brought in A WH Smith shop is located on to you. People who are unwell the ground floor of the hospital, or recovering from surgery selling a range of newspapers, are more prone than usual to magazines and essential items gastric infections, and even such as toiletries. You will also food seen as low-risk for food find a Costa Coffee pod located poisoning (such as sweets, fruit in the outpatient waiting area. and biscuits) can in some cases The Chaplaincy Service Accommodation for Pastoral and Spiritual Care relatives and friends Whatever your circumstances Our new hospital is based in or beliefs, hospital chaplains are the city of Cambridge, within available to support you and easy reach of a number of your friends and relatives. We hotels and B&Bs. We can provide the opportunity to talk also offer affordable single in confidence about thoughts accommodation for your relatives and feelings. We also provide and friends at our own hospital the opportunity for individual accommodation in Waterbeach, prayer and communion for which is 25 minutes away from patients on the ward. the hospital (public transport is available). If you need advice You do not have to be ‘religious’ about accommodation for your to talk to a chaplain. Our friends and relatives during chaplains are committed to your stay in hospital, please caring for each individual and contact the hospital switchboard respecting all people regardless on 01480 830541/01223 of race, religion, creed, gender 638000 and ask to speak to the and culture. Accommodation team. Chaplaincy staff can assist patients and relatives in making Post contact with a member of their There is a regular delivery of own faith community should post to the wards. Please ask they so wish. Chaplains are also your friends and relatives to available to offer bereavement address letters and parcels support to relatives. clearly with your name, surname If you would like to contact a and the ward or department to hospital chaplain, please call avoid delay. the switchboard on 01480 For example: 830541/01223 638000 and Mr A N Other ask to be put through to the Ward 5 South chaplain. Alternatively, you Royal Papworth Hospital can email papworth.chaplaincy@ Cambridge Biomedical Campus nhs.net. CB2 0AY Telephones Smoking There are no telephones in We are a non-smoking hospital. patient bedrooms. However, Smoking is not permitted all areas of the hospital benefit anywhere with the hospital from a good mobile signal. If buildings or grounds. you do not have a mobile phone and need to make an urgent Infection prevention and call, please inform a member of control staff on the ward. The prevention and control of In order to help protect the infection within the hospital is privacy and dignity of all our extremely important. patients, please never use your Some infections, which may mobile phone’s camera, voice not cause concern in the recording or video functions. No wider community, can be very photography or video recording hazardous for frail patients, will be permitted on the ward those who have recently unless approved by the Trust’s undergone an operation or Communications team. those with certain medical conditions. Television This is one reason why it is so There is a television screen in important that even fit and all patient bedrooms, which healthy visitors take certain provides access to a wide range precautions against infection. of TV and radio stations free of charge. You as a patient, and any visitors you have, are asked to play Internet connection your part in the fight against Free Wi-Fi is available to all infection: patients and visitors throughout • You may be asked to keep the hospital. Please ask a your bedroom door closed for member of staff if you have infection control reasons – if difficulty connecting to the Wi-Fi so, please comply with this network. request. It is important that door closure and any other requirements, such as staff wearing gloves and aprons, are adhered to. If you are being symptoms of diarrhoea and/or ‘barrier nursed’, doors must be vomiting within 72 hours prior kept closed. to admission please telephone the ward (phone number on • Hand hygiene plays a vital role your admission letter), as soon in helping to prevent infection. as possible, for advice. Alcohol gel is provided at the entrance to wards and at each What is a Preferred bedside for use by patients, Priorities of Care (PPC) visitors and staff. Please use document? it yourself, and encourage your visitors to use it, too. In Both before and during your addition, don't hesitate to admission to Royal Papworth remind any member of the Hospital, you will be given the team, if the need arises, to opportunity to discuss the care clean their hands. you will receive here. • If you are coming in for In this way you, our doctors and surgery, please do not shave nurses − and any other people the operation area prior to involved in your care, such as admission. relatives − can be clear about the type of care you wish to • Please do not bring flannels receive. or sponges into hospital; disposable wash-cloths are Many patients find that deciding available from ward staff. these issues informally in discussions with healthcare • Well-fitting slippers or similar professionals, friends and family footwear should be worn is sufficient. In some cases when walking around the patients may prefer to state hospital wards. their wishes more formally, • We ask that your visitors do in a PPC document. This is a not use patient toilet facilities. document which would be held by you, the patient, and if • Keeping the amount of you wished, a copy would also personal belongings to a be kept in your medical notes. minimum will allow domestic Some people think about filling staff to clean more easily. in a PPC document if their • If you, or any member of your disease becomes more difficult household, have suffered to manage, and they want to plan for their future care, should can be made by various health they become more unwell. PPC care professionals, including documents can be particularly doctors, nurses, social workers, useful if the time should come occupational therapists and when, for whatever reason, you discharge coordinators. are unable to make a decision The discharge team will liaise for yourself: anyone who has to with social services or other make decisions about your care support services local to your on your behalf would have to home to plan for your discharge. take into account anything you Any needs and options will have written in your PPC. be discussed with you and, if When you are discharged you agree, with your family, from the hospital carer or other representative. The team will look at how to When you are ready to be help you either return to live discharged from hospital, our independently or with support discharge coordinators and services. social workers will work with you to make the necessary Planning your discharge: preparations in a safe and timely moving to a community bed manner. Following assessment, some patients may benefit from a We prefer to plan your date of period of rehabilitation before discharge in advance so that returning home. This will take all the necessary arrangements place in a community bed or – for example with regards to NHS-funded nursing home bed carers, medication and transport depending on the provision in – can be properly planned. your local area. Occasionally, we may need to change your expected date of If you require rehabilitation, discharge if you are not well you will be transferred to the enough to leave the hospital, first available bed in a unit that but staff will keep you informed meets your needs. This may not if this is the case. be the closest unit to where you live. Our priority is to transfer Discharge assessments you as soon as possible so that An assessment of your care you can start your rehabilitation. needs and any support services you may require on discharge Planning your discharge: Things you could do to help repatriation to your local your discharge (please let us hospital know if you need help with any As Royal Papworth Hospital is a of the following): specialist cardiothoracic hospital, • Remind the person collecting you may need to be transferred you to bring clothes for you to to your local District General go home in Hospital for further treatment • Make sure you have a door key that may not be available here. Your local hospital will then • Make sure everything is ready make arrangements for your for you at home. For example, safe discharge when you are ensure you have enough food well enough. and drink or the heating is on Discharge lounge • If possible, have someone stay The discharge lounge at overnight with you. We know Royal Papworth Hospital is a this isn’t always possible but it comfortable, staffed area where can help you feel less anxious patients can wait for transport • Make sure you inform ward home once they no longer staff if you require any medical require the level of nursing care certificates offered on an inpatient ward. • If you require a follow up Refreshments are available for appointment make sure you patients in the same way as know time and date of your they are on the wards. Patients appointment can be collected from this area by family members or • Please take all your personal transport services to take them belongings with you when you home. The discharge lounge is leave located on the ground floor of If you or your relatives have any the Royal Papworth Hospital. questions or concerns about You can contact the discharge your discharge arrangements, lounge through our hospital please speak to the nurse caring switchboard by calling 01480 for you as soon as possible. 830541/01223 638000. How will I get home? this purpose. You can view We ask that you make your our patient privacy policy in own arrangements with family, detail on our website at www. friends or by public transport or royalpapworth.nhs.uk/privacy. taxi. Some help may be available Quality of service − please contact our Patient Transport Officer on 01480 We welcome any comments you 364721/01223 638721 for more might have on any aspect of information. your stay, and any suggestions on how we might improve our Patient-recorded services. We carry out patient Outcome Measures surveys from time to time and (PROMS) you may be asked to participate, Our patients’ views on the which is of course entirely treatment and care they receive voluntary. While we hope you here help us to measure and will not have cause to complain improve the quality of the about any aspect of your stay, services we provide. all complaints are thoroughly investigated to ensure that You may be invited to complete lessons are learnt for the future. a questionnaire before and after your treatment. Your If you would like to make a participation is voluntary and complaint, or pay a compliment any data we collect will be to an individual who has held and stored by our Audit provided a high standard of Department so that we can care, please email papworth. send the questionnaire for you [email protected] or speak to to complete approximately 12 a member of staff involved in weeks following your operation. your care. We adhere to strict guidelines You can also contact when handling and storing Healthwatch Cambridgeshire personal information and and Peterborough – published reports will not a local, independent contain any personal data. champion for people who Please let us know if you use healthcare services in would prefer us not to keep Cambridgeshire. Please visit your personal information for their website – http://www. National Reporting and Learning healthwatchcambridgeshire. System (NRLS), to inform and co.uk – for more details. improve the safety of healthcare. While the NRLS operates on an Patient safety anonymous basis, information Patient safety is a top priority which constitutes the personal for Royal Papworth Hospital data of patients, staff or visitors and we have a duty to provide may, in some cases, be passed a safe environment for patients, to the NRLS. Where this is visitors and staff. The hospital recognised, it will be deleted, as has an excellent safety record the NRLS does not intentionally with very few accidents/ hold personal identifiable incidents occurring. When any information. such incident does occur it is reported and investigated so Your personal and that lessons can be learnt to clinical data and how it prevent a recurrence. If you are will be used unfortunate enough to have We collect and store information an accident or suffer an injury, about you in order to ensure please tell your nurse, who will that the healthcare we provide is then arrange for any care or appropriate and that follow-up treatment you need as a result care, medication provision, home and also make sure the incident care support etc is provided is formally reported so that adequately and effectively. We it can be investigated. If you have a clear legal basis (provision have a suggestion about how of healthcare) for the collection the hospital could improve the and storage of this data under safety and quality of any aspect the GDPR legislation. of service, please contact any The use of this data throughout member of staff who will ensure the hospital is vital to ensure the appropriate action is taken. that the right decisions are Royal Papworth Hospital is made about your care, that your required by the Care Quality treatment is safe and effective, Commission (CQC) to report all that ongoing healthcare patient safety incidents to the provision is seamless and can be planned in advance to meet your needs. This data is also important in diagnosis and treatment of helping us to evaluate patient heart and lung disease. Our safety and care, ensuring that research is often of national our services can be planned to and international significance meet the service needs of future and results are not only used to patients, to allow us to evaluate improve care at Royal Papworth, healthcare and develop new but worldwide. treatments, prepare statistics We make the results of all on NHS performance and how research undertaken at Royal we spend public money. This Papworth widely available allows evaluation of the NHS through publication in high as a whole and government impact medical and nursing policies, which in turn supports journals. the health programme for the general public. We ask all patients who come to Royal Papworth to be aware You can read our full patient of the importance of research privacy policy on our website to the hospital and to take time at www.royalpapworth.nhs. to consider participating in our uk/privacy. studies. Your right to receive Many patients are pleased to copy letters have the opportunity to make If you would like to receive this worthwhile contribution. copies of the letters written All research carried out at Royal about you to your GP and other Papworth has been subjected health professionals, please let to approval by an NHS Research the receptionist know on your Ethics Committee whose duty arrival at the hospital. If you go is to protect the welfare of straight to the ward, tell your patients taking part. nurse. Once you have requested letters, we will continue to send Before a study can start, the them unless you ask us to stop. Committee scrutinises the research protocol so that A focus on research patients can be assured that the study will be conducted to As a specialist centre we are the highest standards, and that committed to high-quality their personal details will be kept research to help improve the confidential. Normally, patients are asked to where NHS patients wish to buy consider taking part in a research additional private treatment not study while waiting to come into funded by the NHS. Where a hospital. If approached, you will patient opts to pay for private be given detailed information care, their entitlement to NHS and the opportunity to discuss services remains and will not the study with a member of the be withdrawn. Please be assured research team. All patients are that Royal Papworth staff will given plenty of time to decide exhaust all reasonable avenues whether or not to take part. for securing NHS funding before suggesting a patient’s If you decide to take part, we only option is to pay for care will ask that you provide written privately. consent. This may include permission to access your Where a patient does opt to pay medical records in order to carry for additional private healthcare out the research. while continuing to receive care from the NHS: For further information on research at Royal Papworth, • It should always be clear please contact Research and whether an individual Development by email to procedure or treatment is [email protected]. privately funded or NHS funded. There is no obligation to take part and your treatment will not • Private and NHS care should be affected in any way if you say be kept as clearly separate as ‘No’, or if you say ‘Yes’ but then possible. change your mind at some later date and withdraw. Royal Papworth Hospital Charity NHS patients who wish Royal Papworth Hospital to pay for additional Charity exists to support the private care ground-breaking work of Royal Royal Papworth Hospital Papworth Hospital. With the complies with guidance from increasing pressures on NHS the Department of Health resources, the charity plays a vital role in ensuring the hospital involved and organise their own continues to provide the highest events – whether it be taking standards of care, whilst also part in a fun run, charity swim, ensuring the development of a marathon or hosting a coffee new ways of treating heart and morning, for example. Whatever lung disease. they do we make sure that they receive full support from Royal Papworth Hospital Charity the charity to ensure they have is fortunate to receive the everything they need. support of many thousands of people each year and is If you would like to offer your enormously grateful. support to Royal Papworth Hospital Charity you can get in This generosity enables us to touch with the Charity team via support the hospital by providing member of staff or by emailing additional amenities for patients [email protected]. and their families, provide additional equipment for the You can also find out more hospital and assist our medical about our work at www. staff with their training needs. papworthhospitalcharity. It also allows the hospital to org.uk undertake pioneering research programmes to identify new Volunteering ways of treating heart and lung Royal Papworth Hospital has an diseases. active team of volunteers who There are various ways our help our staff and patients in a supporters assist the charity in number of ways. Volunteer tasks the work we do; some choose to could include visiting patients, make a donation, others want to supporting our charity or helping support us over a period of time with events. with regular giving, and some For more information about want to remember us in their volunteering, please contact will or take part in one of the our PALS team on 01480 charity’s events. 364896/01223 638896 or visit Many of our supporters even www.royalpapworth.nhs.uk/ go the extra mile to get more volunteer. Contact with the media Become a Foundation We ask that patients, their Trust Member families and relatives speak to If you would like to stay in us before contacting the press. touch with the hospital, you Any media-related enquiries can may wish to consider becoming be sent to the Communications a Foundation Trust member of team at papworth. the hospital. As a Foundation [email protected]. Trust member, you will have the chance to share your views To protect the privacy and and opinions about the future dignity of other patients, please of the hospital, receive regular do not take any photos or create news and information and even videos in clinical areas of the stand for election to the Council hospital, including wards. Please of Governors. You will also be speak to the Communications invited to events including our team if you would like to create Annual Members’ Meeting. any social media content about your stay in hospital. To become a Foundation Trust member please visit www. If you are unhappy with any royalpapworth.nhs.uk/ftm or aspect of your treatment, we call us on 01480 830541/01223 ask that you speak to us first to 638000 and ask to speak to the give us the chance to resolve the Communications team and we issue, before sharing it on social will send you a form in the post. media or with the media. Anyone over the age of 16 who lives in England and Wales can join. Our public membership constituencies are: Cambridgeshire, Norfolk, Suffolk, and the rest of England and Wales. For details about how we store and process information about our members, please www.royalpapworth. nhs.uk/privacy.

Royal Papworth Hospital NHS Foundation Trust Papworth Road Cambridge Biomedical Campus CB2 2AY www.royalpapworth.nhs.uk www.facebook.com/royalpapworth www.twitter.com/royalpapworth Tel: 01480 830541 or 01223 638000 Large print copies and alternative language versions of this leafl et can be made available on request. Author ID: Communications Assistant Department: Communications Printed: January 2019 Review date: January 2021 Version: 4 Leafl et number: PI 01 © 2019 Royal Papworth Hospital NHS Foundation Trust