Handbook for inpatients

Handbook for inpatients Coming into

1

Handbook for inpatients

Welcome Royal Papworth Hospital is a If, while you are in hospital, special place because of the you require any information extraordinary people that not contained in this booklet, work, teach, treat and are please do speak to the nurse in treated every day. charge of the ward or to your doctor, who will be happy to The safety of our patients and help. the experience they have while in our care is very important to If you require additional all staff at Royal Papworth. We information prior to admission, are proud of our reputation please ring the hospital on as the UK’s largest specialist 01480 830541 and ask to speak cardiothoracic hospital, and to the Booking Office or the we achieve some of the best nurse in charge of the ward outcomes in the world for our indicated on your letter. They patients. will be happy to help you.

Our patients often travel long With best wishes. distances to see us, confident in the knowledge that we are at the forefront of providing new and innovative treatments Stephen Posey for heart and lung patients. Chief Executive

We will do all we can to make you welcome and make your time with us as pleasant and comfortable as possible. This booklet gives you information about preparing for, and being admitted to hospital and what to do when you arrive. It briefly describes the life of the hospital, how your clinical care is provided and also explains arrangements for going home. 1 Handbook for inpatients

Preparing to come into Royal Enclosures Papworth Hospital A comprehensive route map Your admission letter will and site plan are enclosed for give you specific information your use. including the date of your admission and the name of Contacting us the unit or ward on which you If you do not know the name will be an inpatient. It may of the ward or department you also include other instructions want, phone the main hospital as appropriate, such as asking number and our telephonists you not to eat or drink, or will be happy to assist you. take certain of your medicines, before you come in. In order for relatives and carers to contact you, the If you do not understand any hospital operates a policy of these instructions, please whereby if a caller telephones phone the ward or unit for the switchboard and asks for advice. The phone number will you by name, the operators be on the admission letter and will confirm what ward you is also listed in the telephone are on. Everyone working in numbers section of this the NHS has a legal duty to handbook. keep information about you confidential and if you do not This handbook provides wish the hospital to give out general information which this information, then please we hope you find useful, inform a member of staff who but please also read your will instruct the switchboard. admission letter carefully as that will give you more An index can be found at the specific information. end of this handbook.

2 Handbook for inpatients

Wards and visiting Your visitors are very welcome the nurse in charge of the at the hospital therefore ward ward whether children under staff will do their best to the age of two years are accommodate visits outside of allowed to visit you. the regular visiting hours in exceptional circumstances. Due Visitors are requested not to to limited space on the wards lie or sit on the beds and to and day rooms we would ask return all spare chairs to their that the number of visitors is designated storage area after kept to a minimum at any one use. All visitors to the wards time. are requested to use the hand hygiene gel which is located at Please check in advance with the entrance to each ward.

Visiting hours for Critical Care (Intensive Care Unit and Cardiac Recovery Unit) Open visiting - however visitors are asked to avoid mornings where possible as they may be asked to leave during ward rounds etc; also no visiting between 2.00-3.00pm. Visiting times on the wards: High Dependency Higginson 2:15pm-5:30pm & 6:30pm-8:00pm 2:15-5:30pm & 6:30-8:00pm It may be possible to visit at other Hugh Fleming times - please telephone the nurse 2:15-5:30pm & 6:30-8:00pm in charge beforehand. Mallard Chest Medical Unit 2:15-5:30pm & 6:30-8:00pm (Princess, Baron & Duchess) 10:00am-12:00noon Progressive Care Unit (PCU) 2:15-5:30pm 2:15-5:30pm & 6:30-8:00pm 7:00-9:00pm RSSC 11:00-8:00pm Open visiting Varrier-Jones Hemingford 2:15-5:30pm & 6:30-8:00pm 2:15-5:30pm & 6:30-8:00pm

3 Handbook for inpatients

Getting here The entrance to the hospital is within the village of Papworth Everard. It is approximately seven miles south of Huntingdon and 12 miles west of (see the map enclosed with this booklet).

The hospital’s full address is: Spaces for blue badge holders Royal Papworth Hospital are provided close to entrances NHS Foundation Trust to the various hospital Papworth Everard buildings and these are free of Cambridge charge. Blue badges must be CB23 3RE displayed at all times.

By car and parking Patients in receipt of Income All patients and visitors Support or one of the other parking on the site will need benefits listed in the Help with to display a parking ticket Health Costs Booklet (available or appropriate permit. Signs from Main Reception) are around the hospital will show eligible for reimbursement you where patients and visitors of the parking fee, provided may park (‘pay and display’). they can produce evidence of eligibility and a valid car Weekly/monthly tickets can parking ticket. be purchased from the Car Park and Patient Travel Office, By bus located by the hospital Main Whippet Coaches Ltd operate Reception. regular daytime services from Cambridge and less frequently Patients or visitors who attend from St Ives. Services in the Royal Papworth frequently evening are infrequent so it is usually find these are more advisable to make enquiries cost-effective than buying beforehand. shorter-term tickets. Tel: 01954 230011 or visit www.go-whippet.co.uk

4 Handbook for inpatients

By rail Travel costs payable are those The nearest railway stations ‘necessarily incurred’. This are in Huntingdon (20 minutes’ means travel by the cheapest drive from the hospital), means of transport available at St Neots (15 minutes) and the time you need to travel. Cambridge (30 minutes) but you will need to complete your NB: Taxi fares will not be journey by taxi or bus. reimbursed unless there is no other way for you to travel for For details please contact Rail all or part of your journey. The Enquiries on 08457 48 49 50 or types of travel costs paid are: at www.nationalrail.co.uk. • Public transport fares (supporting documentation Travel costs required) If you are travelling to Royal • A mileage allowance if Papworth Hospital for NHS travelling by private car treatment, you may be entitled • Contributions made towards to get help from the hospital transport provided by a local with your travel costs if you are voluntary car scheme receiving certain low-income allowances such as Income If you need someone to travel Support. with you for medical reasons, you may also get help with If you have any questions your escort’s travel costs, regarding which low-income providing you are entitled to allowances are eligible or help with your own costs. have any other queries about help with travel costs, Leaflets and posters about help please contact the Car Park with patient and travel costs Administrator on 01480 are widely available on the 364276, for advice before you wards and around the hospital. travel.

5 Handbook for inpatients

To claim your travel costs you All enquiries and claims should or your representative should be directed to the claimant’s see the Car Park Administrator local Jobcentre Plus office. If in the Car Park and Patient you have any queries please Travel Office each time you ask your nurse to contact our come for your treatment. social worker on 01480 364279 or 01480 364631. You will need to bring with you appropriate Further advice can be found documentation showing your online at NHS Choices: entitlement to have your www.nhs.uk/NHSEngland/ travel costs paid (eg benefit Healthcosts/Pages/Travelcosts. book, letter of notification of aspx your entitlement to Income Support, etc). The Car Park and Patient Travel Office is normally Visitors on Income Support, open at the following times: who are visiting a close relative, may be able to get • Monday to Friday help with their travel costs 8:00am-5:00pm from the Social Fund.

6 Handbook for inpatients

Special requirements What to bring with you If you have any special You may wish to use this requirements, please inform check-list as a guide: the hospital of these before you are admitted and mention • Medication (please see them again to your nurse on Medicine section) arrival at the ward. • Clothes and underwear These might include for • Night clothes - front example: accessibility; special opening/buttoning dietary needs; religious requirements; or translation • Dressing gown services. Please also mention • Slippers any known allergies. • Hairbrush/comb/shampoo For the hearing-impaired, a • Toothbrush/toothpaste/ ‘loop’ hearing system operates denture cleaner in the Main Reception area, • Liquid soap (not a bar) and portable loop hearing systems are available on most • Paper tissues wards - please ask your nurse • Spectacles/contact lenses if you would find one of these helpful. • Shaving equipment (any electrical equipment may Large-print versions of need to be tested by hospital information booklets hospital staff for safety) (including this one) are • Walking stick available on request. • Hearing aid and batteries • Pension book You may also wish to bring books, knitting, writing materials, stamps, etc.

7 Handbook for inpatients

What not to bring with you Personal property There are no banks or cash A bedside locker is available machines on the hospital site for your personal belongings. or in the village. However, However storage space is there is a Post Office in the limited, so we must ask you village store, which offers only to bring the clothes you some limited banking services. will need during your stay. The nearest banks can be Valuables found in St Ives (6 miles), We request you do not bring St Neots (7 miles) and in quantities of money or Huntingdon (7 miles). valuables. It would be helpful if, after your admission, a Please do not bring into the relative or friend could take hospital home any valuables or money, • Alcohol apart from a small amount • Knives of change which you may • Towels need for telephone cards, • Flannels/face-cloths newspapers, etc.

We regret that the hospital cannot be held responsible for any money or valuables which are not handed over for safe- keeping.

8 Handbook for inpatients

Medicines Please bring your regular If you are participating in medicines with you into the ‘Self Administration of hospital. These should include Medicines’ programme you all those prescribed by your will be advised by nursing staff general practitioner: eye how and when to take your drops, inhalers, patches, medicines. creams, injections etc., and any medicines that you take Your own medicines will be regularly but purchase from returned to you on discharge your local pharmacy including provided that you are still any herbal or homeopathic instructed to continue with preparations. The medicines them. Any medicines no longer should be in their original prescribed will be destroyed packaging and it is advisable for your convenience. If you to bring in at least a week’s do not wish to consent to the supply. These must be shown destruction of medication to your nurse or doctor when in this way then please you arrive. Your nurse will alert a member of nursing arrange for them to be stored or pharmacy staff at the securely on the ward during beginning of your stay. The your stay. hospital will provide you with any additional necessary If you have an anticoagulant medicines for you to take record book, methotrexate or home on your discharge from lithium monitoring booklet, hospital. please bring this with you. During the course of your At no time during your admission you may be stay should you take any prescribed various medicines. medicines (including herbal or complementary therapies Occasionally it may be or food supplements such as necessary to prescribe a vitamins and minerals) not medicine which does not prescribed by, or known about have a product licence. Your and agreed by, your hospital doctor will explain why this doctor. unlicensed medicine is being 9 Handbook for inpatients

recommended and any If you have been asked to possible side-effects. attend Main Reception, this is situated approximately 100 If you have any queries or yards inside the main entrance concerns about any aspect road, on the right. of your medication, please ask your doctor, nurse or Main Reception is open pharmacist. between the hours of: • 7:30am-8:00pm, Monday Pharmacists visit all the wards to Friday daily (Monday to Friday). • 9:00am-5:00pm, Saturday and Sunday Patient identification • 9:30am-5:00pm, Public When you are in hospital, holidays you will be required to wear identity wristbands at all times. This ensures that staff can If you arrive early for your identify you correctly and give admission, please take a seat you the right care. A member in Main Reception. If you are of staff should put wristbands arriving outside reception on you as soon as you are opening hours, and you admitted to hospital and you are unsure about where should wear these throughout to go, please report to the your stay. switchboard in the Ellen Kemp building (further along the If a wristband comes off or is hospital road on the left) or uncomfortable, please ask a use the hospital map sent to member of staff to replace it. you to go directly to the ward.

Arrival at Royal Papworth Please try to arrive on time. We Hospital will make your admission as On arrival at the hospital, quick and easy as possible, but please go straight to the delays may occur if others need location requested in your to be admitted as emergencies. admission correspondence. This may be a specific ward area or Main Reception. 10 Handbook for inpatients

When you arrive on the ward, Cancellations a member of staff will show Royal Papworth Hospital you to your bed. does its utmost to make sure procedures and operations On occasion, due to pressure are not cancelled. It fully on beds, your bed may not be recognises how frustrating and ready and you will be asked to inconvenient cancellation can wait in the Ward Day Room. be.

During this time you will be However, regrettably, due kept informed by staff, and to medical emergencies or provided with refreshments. unforeseen circumstances, Some patients are asked to cancellation is sometimes come ‘starved’ for a procedure unavoidable. If this is the and in these circumstances case we will organise a new refreshments will not be appointment or admission date offered. for you as soon as possible.

If you have crowned, bridged If your invasive procedure or loose teeth or surgery is cancelled at During certain surgical the last minute - that is, on operations, there is a slight risk the day you were due to be of damage to crowned teeth, admitted, or after you have dental bridge work or loose been admitted, or on the day teeth. of your operation - it will be rearranged for within 28 days, If you have crowned teeth, as set down by guidelines bridge work or loose teeth issued by the Department of please discuss this when you Health. see the anaesthetist before the operation. The hospital always regrets and apologises for any Nail varnish/nail extensions inconvenience caused by Please remove any nail varnish cancellations, although it gel nails and false nails before cannot be held responsible for coming into hospital. any costs incurred.

11 Handbook for inpatients

Staff at Royal Papworth Modern Matrons Hospital - On the wards The Modern Matrons are During your stay you will of experienced senior nurses who course meet various doctors support the ward/department and nurses, but also many staff in managing and other staff. You will be under delivering patient care. They the care of a consultant and are responsible for ensuring a team of doctors. Because that services influencing of other commitments, the the patient experience are consultant may be unable to of an acceptable standard, visit the ward every day but he for example they monitor or she will be in close contact the cleanliness of the care with the resident doctors environment; the standard who are always available for of nursing care delivery; the medical attention or to explain housekeepers and the meal things to you. delivery service. On the wards you will be cared for by senior nurses Modern Matrons wear a such as Ward Sisters and navy-blue uniform with white Specialist Nurses, and by more piping and they are available junior nurses, such as Staff to patients at any point in their Nurses. Healthcare Support hospital visit to respond to Workers and Housekeepers any questions or address any will also help with your concerns. If at any stage during care. The different roles are your stay you would like to distinguished by different speak to a Modern Matron uniforms, and they will all be please ask your ward nurse wearing identity badges. who will contact them.

Social Work Department All our staff - both on the The Social Workers provide wards and elsewhere - wear a service to patients, their identity badges, and you families and carers, hospital- are encouraged to ask if wide. Their work is wide- you want to know who ranging, and includes helping someone is. people to prepare for a safe discharge home, and advising 12 Handbook for inpatients on services and the practical therapist will assess you at help that is available in the home, after you have been community. Advice is available discharged, and identify any on welfare benefits, housing other services you may require. and employment. Advocacy, counselling and emotional Occupational therapy staff are support are also part of their available Monday to Saturday remit. on 01480 364408 and visit the wards regularly to assess, The Social Work Department and provide information can be contacted on 01480 to, patients. Please ask your 364631 or 01480 364279. nurse if you feel a referral to occupational therapy may be Occupational Therapy appropriate. An Occupational Therapist may assess you prior to Patient Advice and Liaison discharge from hospital to Service (PALS) ensure that you will manage PALS provides confidential, essential tasks of daily living. on-the-spot advice and support These include activities such to help you and your family as personal care, bathing, sort out any concerns you showering and domestic tasks. may have about the care we Information and assessment provide, guiding you through about equipment needs and the different services available techniques to support your from Royal Papworth Hospital. care will be provided, as appropriate, for discharge The staff can offer help and home. support if things go wrong and will listen to your concerns, Should a further assessment suggestions and queries so that for equipment or adaptation we can improve our services. to your home be necessary, the occupational therapist will The PALS staff can also tell you refer you to the community about the hospital’s complaints occupational therapy services process and how to contact in your local area. The other organisations that might community occupational be able to help or advise you. 13 Handbook for inpatients

The PALS staff can also advise Privacy and dignity you if you would like to Royal Papworth Hospital become more directly involved realises the importance in the development of our of privacy and dignity to services as we are keen to its patients and supports involve patients and relatives the Department of Health in this area. You can contact initiative to eradicate mixed PALS via a member of staff, or sex accommodation. by pressing the PALS button on your bedside telephone, giving All inpatients are nursed in you direct access to the PALS single-sex wards or in single- office. sex bays (with doors): the only exceptions being Critical Care Life on the ward and the High Dependency The hospital day can begin Units. All patient toilet and early, with scheduled tests and/ bathroom areas are single-sex. or investigations/operations commencing at 8:00am. During Preventing Venous ward rounds, patients are seen Thromboembolism (VTE) by the medical staff working VTE is caused by the formation with their consultant. of blood clots; most commonly in a form called deep vein If you or your relatives would thrombosis (DVT). This is a like to speak to the consultant blood clot that forms in a privately, please ask your nurse deep vein, most commonly in who will give you contact your leg or pelvis. It can result details so you can arrange in pain and swelling, and if an appointment. If you are part of the clot breaks off and uncomfortable or in pain, lodges in the arteries that please let the staff know. supply the lungs, can result in pulmonary embolism (PE), Never be worried about which causes coughing (with using the call bell beside your blood-stained phlegm), chest bed: your safety is our main pain and breathlessness. concern, so please use the call bell if you need to. VTE requires immediate treatment: if you develop any 14 Handbook for inpatients of these symptoms, either in hydrated. hospital or after discharge, • Try to remember not to sit please seek medical advice or lie with your legs crossed. immediately. The nurses will remind you!

Admission to hospital can As with all aspects of your increase a patient’s risk of stay, if you have any queries or developing VTE as inpatients concerns, please ask a member tend to lie or sit still for long of staff. periods of time. On admission, and again as necessary during Teaching your stay, you will be assessed Royal Papworth Hospital for your VTE risk. provides important teaching facilities for clinical staff. You Most patients admitted to may be asked to allow students Royal Papworth are given to be involved in your care. preventative treatment as a We hope you will give your matter of routine unless this is permission if your co-operation for some reason inappropriate. is requested, but you are You may be given exercises under no obligation to do so to perform, special support and should you decline, your stockings to wear, and/or treatment will not be affected anticoagulant medicine (blood in any way. thinners). Fire alarm There are also ways in which The fire alarm makes a loud, you yourself can reduce your continuous sound. On hearing risk of VTE: the alarm you are advised to • Try to get up and walk return to your bed area. about as soon as possible and as much as possible -the Patients will be given physiotherapists and nurses instructions and/or assistance will help you with this in the to evacuate the building by early stages of your recovery. one of the nursing staff if the • Unless you are placed on need arises. In some areas an a fluid-restricted regime, intermittent alarm may sound drink plenty of fluid to keep - this indicates a fire in another 15 Handbook for inpatients

part of the building.

Around the site The nature of the site here at the hospital may contain Royal Papworth means that ingredients produced from patients may sometimes be genetically modified soya and/ transported by ambulance or maize and some of the from one part of the hospital meals may contain nuts. If, to another. after admission, you require a special diet, we will advise you Lifting of this and you will be visited Royal Papworth Hospital has by the dietician. introduced a minimal lifting policy in order to reduce Patients are given a menu to the risk of injury to its staff choose from and we hope Wherever possible, when you will find something a patient needs lifting, for to your liking, but you are example to change their also welcome to ask for an position in bed or into the omelette or sandwich. Snacks bath, an appropriate lifting aid are served on the wards every or hoist will be used. afternoon and evening and additional meals may be Meals and diets ordered at all times from the The hospital will provide you ‘All Hours’ menu. with a choice of meals from a healthy, well-balanced menu, Restaurant with vegetarian options always Patients who would like to available. use the Garden Restaurant are welcome to do so. Please If you have a particular dietary let ward staff know your requirement, it would be whereabouts. Usually you helpful if on admission to the will have to pay for food in ward you would let the nurse the restaurant but in some in charge of the ward know circumstances might be given a this. ticket by the ward, entitling you to a meal from the ‘hospitality’ Some of the food used in menu. 16 Handbook for inpatients

Please be aware that Royal As staff have limited time for Papworth Hospital has only one meals, they are sometimes restaurant and it is used by staff, given priority during very busy patients and visitors. periods.

The restaurant is open from Patients’ own food 7:30am - 7:00pm, seven days As part of its responsibility a week. to its patients, the hospital is committed to ensuring that • Lunch is served from noon patients receive a healthy to 2:00pm diet and that food is safely • Supper is served from stored, prepared and served 5:30pm to 7:00pm in accordance with legislation and other standards.

We understand that sometimes relatives and friends might want to bring food gifts or that you might ask for food to be brought in to you.

People who are unwell or recovering from surgery are more prone than usual to gastric infections, and even food seen as low-risk for food- poisoning (such as sweets, fruit and biscuits) can in some cases interact with medication or go against dietary advice a patient has been given.

We therefore ask that you always seek advice from the nurse in charge before bringing in, or eating, brought-in food. 17 Handbook for inpatients

Where appropriate, food will need to be clearly labelled with the patient’s name and the date, and be placed in the ward fridge by the housekeeping staff. Two information sheets are available for patients/relatives who wish to bring food in - please ask the nurse for these.

The hospital cannot be held responsible for any illness or adverse effect arising from food brought in for patients from outside the hospital. It can only accept responsibility for food provided by its own catering department.

18 Handbook for inpatients

The Chaplaincy Service Pastoral and Spiritual Care The hospital employs a Chaplain, who is supported by a local Roman Catholic Priest, and by a Chaplaincy Assistant and a small team of Chaplaincy volunteers. They visit all the wards regularly and have local contacts for all the major faiths and denominations.

The Chaplain’s work is to care If you would specifically like for your spiritual, religious and to see the Chaplain, you can pastoral needs. This can be ask your named nurse, or anything from helping you to fill in a request slip from the follow your religious tradition chaplaincy leaflet available to listening to your experience on the ward, or phone 01480 of being in hospital and 364121 and leave a message offering comfort and support. on the answerphone.

The Chaplaincy Service is You could also request this via available to all patients, relatives, and staff, of any faith MR A N OTHER or denomination or none. Your MALLARD WARD own religious representative PAPWORTH HOSPITAL NHS FOUNDATION TRUST is welcome to visit you during PAPWORTH EVERARD your stay. CAMBRIDGE CB23 3RE Please contact the Chaplaincy Service on 01480 364121 if you PALS - simply press the PALS have any queries or special button on the bedside phone. requirements or would like further information. The Chaplaincy building is easy to find, being located The Chaplains endeavour to near the Restaurant. It consists provide a full ‘On-Call’ service; of the Chapel, the Chaplain’s please contact the switchboard Office and the Sanctuary. The if you need to contact a Sanctuary is divided into a Chaplain urgently or in an multi-faith area (with artefacts emergency. for prayer) and a rest area for 19 Handbook for inpatients

relatives. Information on local accommodation is available The facility is usually open from the Accommodation between 8.00am and 8.00pm; Office - on 01480 364958 if you require access outside of or by emailing: papworth. these times, please contact the accommodation.officer@nhs. switchboard. net - and this list can also be viewed on our website at A service of Holy Communion is www.royalpapworth.nhs.uk. held on Thursdays at 10.00am. For Holy days and special The Accommodation Office occasions, please see the Chapel makes bookings for the noticeboard for details or ask a shared-house accommodation, member of staff. The Christian and for some local B&Bs. Sacraments of Communion and of the Anointing of the Sick at Post the bedside are available on There is a regular delivery of request. post to the wards. Please ask your friends and relatives to Accommodation for relatives address your letters and parcels and friends clearly (in block capitals) For friends and relatives with the name, (initials and who wish to stay nearby, the surname), and the ward and/ hospital offers rooms in a fully or unit to avoid delay. For equipped shared house which example: is within a few minutes’ walk, in the centre of the village. Telephones The hospital has a bedside The hospital can also provide telephone system; you will details and book some need to purchase a phone local bed and breakfast card in order to make calls accommodation within the during your stay. The cards are village of Papworth Everard, available from the machines but this is limited. The located in ward areas and in remainder is outside the village the restaurant. and requires use of your own transport. Incoming calls are free to 20 Handbook for inpatients patients and you do not have of mobile phones to make to buy a phone card to receive and receive calls and texts calls but the caller will pay 20p is allowed on the wards, per minute. Callers should dial but please check with the 0706 9190009 and enter your nursing staff before using three-digit extension number. your phone.Mobile phones If you have an incoming call, may be permitted in Critical your bedside phone will ring Care, Theatres and the High Please note that the pond Dependency Unit, please check is deep. Children should be with the nursing staff. closely supervised. In order to help protect the and its light will flash: to privacy and dignity of all our accept the call, just lift the patients, you are asked never handset. to use your mobile phone’s camera, voice recording If relatives and friends wish or video functions or any to make enquiries about you, other device for recording or they should telephone the photography in the ward or in hospital on 01480 830541 and any other clinical area. ask for the appropriate ward, or phone the ward direct. Visitors are asked to use their (Direct dial numbers for wards mobile phones only in non- and units are given at the start clinical areas such as day- of this booklet). rooms, the restaurant, and the hospital grounds. Please be Where a number of calls are aware that the mobile phone likely to be made asking after signal across the hospital site is you - such as perhaps after variable and often very weak. an operation - it would be helpful to ward staff if one Television person would telephone for Television sets are provided information and then pass it on all wards and in some on to the others. individual rooms. Please try to keep the noise level down Mobile telephones to avoid disturbing other In most circumstances, use patients. DVDs are available on 21 Handbook for inpatients

some wards if you would like a You as a patient, and any change of viewing - please ask visitors you have, are asked your nurse. to play your part in the fight against infection: Hospital grounds • If you are in a side room, you Patients and visitors are most may be asked to keep your welcome to stroll in our door closed for infection pleasant hospital grounds. If control reasons - if so, please you do leave the ward, please comply with this request. It is let the ward staff know where important that door closure you are going. and any other requirements, such as staff wearing gloves Smoking and aprons, are adhered Smoking is not permitted to. If you are being ‘barrier anywhere within the hospital nursed’, doors must be kept buildings or grounds. shut. • Hand hygiene plays a vital Infection Prevention and role in helping to prevent Control infection. Alcohol gel is The prevention and control of provided at the entrance to infection within the hospital is wards and at each bedside a vital concern. for use by patients, visitors and staff. Please use it Some infections, which yourself, and encourage your in the wider community, visitors to use it. In addition, might not be a cause of don’t hesitate to remind concern are potentially very your doctor or nurse, if the hazardous to frail patients, need arises, to clean their the postoperative and those hands. with certain specific medical • If you are coming in for conditions. surgery, please do not shave the operation area prior to This is one reason why it is so admission. important that even fit and • Please do not bring flannels healthy visitors take certain or sponges into hospital; precautions against infection. disposable wash-cloths are available from ward staff. 22 Handbook for inpatients

If you have a PPC document you leave. please show it to the nurse admitting you. If you would In this way you, your doctors like to know more about and nurses, and others PPC documents, please ask including your family and the nursing staff. any carers can all be clear about the type of care you • Well-fitting slippers or wish to receive, and if you similar footwear should be need continuing care after worn when walking around discharge, where you would the hospital wards. like to receive this. • We ask that your visitors do not use patient toilet Many patients find that facilities. deciding these issues • Keeping the amount of informally in discussions with personal belongings to a healthcare professionals, minimum will allow domestic friends and family is sufficient. staff to clean more easily. In some cases patients may • If you, or any member prefer to state their wishes of your household, have more formally, in a PPC suffered any symptoms of document. This is a document diarrhoea and/or vomiting which would be held by you, within 72 hours prior to the patient, and if you wished, admission please telephone a copy would also be kept on the ward (phone number your medical notes. on your admission letter), as soon as possible, for advice. Some people think about filling in a PPC document if What is a Preferred Priorities their disease becomes more for Care (PPC) document? difficult to manage, and they Both before and during your want to plan for their future admission to Royal Papworth care, should they become more Hospital, you will be given the unwell. opportunity to discuss, and are encouraged to ask questions PPC documents can be about, your care while you are particularly useful if the an inpatient here and after time should come when, for 23 Handbook for inpatients

whatever reason, you are example, when you can safely unable to make a decision for drink alcohol, drive, or fly, etc. yourself: anyone who has to If you have a query which is make decisions about your care not covered - please ask your on your behalf would have to doctor or nurse. take into account anything you have written in your PPC. However, the following points give general advice on leaving When you are discharged from hospital: the hospital • Discuss with family and Discharge planning will friends, in advance of your take place before you are discharge date, your needs discharged from the hospital’s when you leave the hospital. care; in fact planning for Most procedures will require discharge often begins before you to have someone at admission. However, when home with you overnight the actual moment of your after discharge but the exact departure arrives please length of time will depend inform your nurse before you on the procedure you have. leave the ward in order that • Discuss with your nurse he/she can check that you have any questions, doubts or all the necessary medicines and concerns you may have discharge information. • Make sure you have transport - an ambulance Please be aware that you may or hospital car can only be be asked to vacate your bed at arranged if your doctor 8.00am on the day of discharge considers it is medically and wait in the patients’ day necessary. Again, please area. If this is necessary, your speak to your nurse if you named nurse will discuss this have any problems with you and explain that your • Check with your nurse to formal discharge will come find out if you are to attend later on in the day. an outpatient clinic at a later date The information you receive • Details may be sent to you may include some specific after you return home ‘do’s and don’ts’ such as, for • Make sure you have all the 24 Handbook for inpatients

medicines you need. If you feelings on certain aspects of have any new medicines your care during your stay. prescribed or if you need Please do use PET as it helps extra supplies, these will be us to improve our services dispensed by the Hospital Pharmacy once a discharge prescription has been written. • Should you have any questions about your medicines after you have been discharged, the Pharmacy Department operates a Medicines Helpline, tel 01480 364739. • Let your local Department of Work and Pensions office know you are being discharged so your benefits can be adjusted, if necessary • Please make sure that you have all your possessions with you and that you are not taking home any hospital property by mistake • Prior to discharge, you will be asked to use our Patient Experience Tracker (PET): this electronic device enables you to feed back to us your

If you need the services of the community nurse whilst at home, this will be arranged for you by your nurse.

25 Handbook for inpatients

Intermediate care only as long as he or she A team of health professionals requires close supervision, will assess whether you and frequent (at least weekly) are safe to return to your review, by a consultant. normal home environment immediately on discharge from Most other forms of Royal Papworth, or if you need continuing health care will some extra support for a short be delivered in the patient’s while to allow a safe recovery. own home, or in a residential or nursing facility. If you are In some cases patients go on considered as needing home, for a period of rehabilitation residential or nursing home in another hospital (perhaps care, there may well be a closer to home). Such short- financial assessment as charges term support is normally in the for these services may be form of a stay in a local care made. facility near to your home, or Our Social Workers would be Compliments are welcomed by happy to talk this through with our staff, who strive to provide you. Your nurse can arrange a a high standard of care and meeting. service. If you wish to pay a compliment to an individual or a team of staff we look forward to When you are discharged, a hearing from you. full letter will be sent to your GP advising of any subsequent support services visiting you in attention or medication that your own home for a while. is needed. If you have any problems after returning We call this intermediate care. home, please do not hesitate The types of intermediate care to contact your GP. vary from area to area, and we will discuss what is available to Sometimes transplant patients you on admission. will be advised to stay, with their carer, in the intermediate Continuing care discharge accommodation on- In most circumstances, a site, for a period after leaving patient will remain in hospital hospital and before returning 26 Handbook for inpatients home. we might improve services to our patients. We value Patient-recorded Outcome the opportunity to review Measures (PROMs) our practices and make Our patients’ views on the improvements wherever treatment and care they possible. We also carry out receive here at Royal Papworth patient surveys from time to are of great help in enabling time using questionnaires us to measure and improve and you may be asked to the quality of the services we participate; this of course is provide. entirely voluntary. While we hope you will not have cause You may therefore be invited to complain about any aspect to complete a questionnaire of your stay, all complaints before and after your surgery. are not only dealt with on an Your participation is voluntary individual basis but reported and any data we collect will be and investigated to ensure that held and stored by our Audit lessons are learnt and similar Department here at Royal occurrences avoided. Papworth Hospital so that we can send the ‘After your We would encourage patients operation’ questionnaire for and their carers to discuss any you to complete approximately issues of concern with the 12 weeks following your Modern Matrons in the first operation. instance, to see if they can be resolved locally. We adhere to strict guidelines when handling and storing If you do not feel that this personal information and has resolved the matter, published reports will not you can speak to the PALS contain any personal details. Manager (by pressing the PALS button on your bedside Quality of service phone); or complete the form We welcome any comments ‘Compliments, Comments and you might have on any Complaints’ within the leaflet aspect of your stay, and ‘Quality of Service’ (available any suggestions on how in all wards and departments); 27 Handbook for inpatients

or you can write to the Chief required by the Care Quality Executive at the hospital Commission (CQC) to report address given on the back all patient safety incidents to page of this booklet. the National Reporting and Learning System (RLS), to Patient safety inform and improve the safety Patient safety is a top priority of healthcare. While the RLS for Royal Papworth Hospital operates on an anonymous and we have a duty to provide basis, information which a safe environment for constitutes the personal patients, visitors and staff. The data of patients, staff or hospital has an excellent safety visitors may, in some cases, record with very few accidents/ be passed to the RLS. Where incidents occurring. When any this is recognised, it will be such incident does occur it is deleted, as the RLS does not reported and investigated so intentionally hold person that lessons can be learnt to identifiable information. prevent a recurrence. Your personal and clinical data If you are unfortunate enough and how it will be used to have an accident or suffer Clinical information is an injury, please tell your held about you to ensure nurse, who will then arrange clinicians have a complete for any care or treatment and continuous record about you need as a result and also your past, current and future make sure the incident is treatment. This information formally reported so that it will be shared with other can be investigated. If you health professionals involved have a suggestion about how in your care. the hospital could improve the safety and quality of The hospital actively any aspect of service, please implements and regularly contact any member of audits security measures to staff who will ensure the ensure your information is appropriate action is taken. safe. The Data Protection Act 1998 gives you, the patient, Royal Papworth Hospital is various rights, including the 28 Handbook for inpatients right to see and receive copies Your information could be of information held about you. used to educate doctors, nurses, pathologists and other For information on how professionals involved in to apply, and the charges patient care. involved, please contact the Patient Services Manager in It is also possible that your writing or by phone: 01480 information might be used by 364485. the NHS Litigation Authority (NHSLA), which manages and First and foremost your raises the standards of risk information is used to guide management throughout the your care. However, it will NHS. also be used for Clinical Audit, which reviews current In order to achieve this, all standards of hospital patient NHS Trusts are assessed every care against accepted best few years against a set of risk practice. Any final reports management standards, which published through clinical are based on those factors audit have all patient that give rise to the greatest identifiable data removed. number and cost of claims.

Your information might be As part of the assessment passed for entry to national process, the assessors will registers, eg diabetic register, look at a small number of cancer register, transplant patient notes and a selection databases and other national of incident report forms. None and local databases held of these documents will be (sometimes on other sites) removed from the premises. about various illnesses. Your information is used to help The assessors are all manage the NHS in other ways. professional people who have previously worked in NHS It is passed in an anonymous organisations and are now format and in some cases in employed on behalf of the an identifiable format for NHSLA under strict principles national and local returns. of confidentiality. 29 Handbook for inpatients

If you wish to object to your Your right to receive copy records being made available letters during an NHSLA assessment, please notify the hospital by If you would like to receive writing to the Patient Services copies of the letters written Manager. about you to your General Practitioner and other health There is no obligation to professionals, please let the take part and your treatment receptionist know on your will not be affected in any arrival at the hospital. If you way if you say ‘No’, or if you go straight to the ward, tell say ‘Yes’ but change your your nurse. Once you have mind at some later date and requested letters, we will withdraw. continue to send them unless you ask us to stop.

More information about the A focus on research NHSLA risk management As a specialist centre we are programme is available on its committed to high-quality website at www.nhsla.com research to help improve the diagnosis and treatment of Your data will also be passed heart and lung disease. Our to the Foundation Trust research is often of national membership database and the and international significance Papworth Hospital Charity who and results are not only used may choose to contact you to improve care at Royal with further information. Papworth, but care worldwide.

If you have any queries We make the results of all concerning the use of research undertaken at Royal information, please contact Papworth widely available the Information Governance through publication in high- Manager on 01480 830541 impact medical and nursing or email papworth. journals. [email protected] We ask all patients who come to Royal Papworth to be aware 30 Handbook for inpatients of the importance of research If you decide to take part, to the hospital and to take we will ask that you provide time to consider participating written consent. This may in our studies. include permission to access your medical records in order Many patients are pleased to to carry out the research. have the opportunity to make this worthwhile contribution. For further information on research at Royal Papworth, All research carried out at please contact Research and Royal Papworth has been Development on 01480 830541 subjected to approval by or by email to: info@papworth. an NHS Research Ethics nhs.uk. Committee whose duty is to protect the welfare of patients NHS patients who wish taking part. to pay for additional private care Before a study can start, the Royal Papworth Hospital Committee scrutinises the NHSFT complies with new research protocol so that guidance from the Department patients can be assured that of Health where NHS patients the study will be conducted to wish to buy additional private the highest standards, and that treatment not funded by the their personal details will be kept confidential. Giving If you would like to make Normally, patients are asked a donation to the hospital, to consider taking part in a please make your cheque research study whilst waiting payable to: ‘Papworth to come into hospital. If Hospital Charity.’ Please approached, you will be given send it to: detailed information and the Papworth Hospital Charity opportunity to discuss the Papworth Hospital study with a member of the NHS Foundation Trust research team. All patients are Papworth Everard given plenty of time to decide Cambridge whether or not to take part. CB23 3RE 31 Handbook for inpatients

NHS. Where a patient opts many thousands of people to pay for private care, their each year. We are enormously entitlement to NHS services grateful to them all whatever remains and will not be the size of their donation. withdrawn. Their help enables us to Please be assured that Royal support our patients and their Papworth staff will exhaust families, provide additional all reasonable avenues for equipment, assist our medical securing NHS funding before staff with their training suggesting a patient’s only needs. It also allows us to option is to pay for care undertake pioneering research privately. Where a patient programmes to identify new does opt to pay for additional treatments for heart and lung private healthcare while For more information continuing to receive care from about volunteering please the NHS: contact: • It should always be clear Voluntary Services Manager whether an individual Royal Papworth Hospital procedure or treatment is NHS Foundation Trust privately funded or NHS Papworth Everard funded. Cambridge • Private and NHS care should CB23 3RE be kept as clearly separate as Tel: 01480 364963 possible. Email: PALS@ • Private care should be papworthhospital.nhs.uk carried out at a different time to the NHS care that a patient is receiving. diseases. • Private care should be carried out in a different The way people support us is place to NHS care, and as as different as each individual. separately from other NHS Some make a donation, patients as possible. others want to support us over a period of time with Papworth Hospital Charity regular giving, some want to Royal Papworth is fortunate remember us in their will or to receive the support of take part in one of the events 32 Handbook for inpatients organised by the Charity. about making your gift as tax effective as possible. Using Many, however, want to get Gift Aid means that for every more involved and organise pound you give, our charity their own events - whether can reclaim an extra 25% it is taking part in a fun run from the Inland Revenue at or marathon, opening their no cost to you whatsoever. If gardens, holding a car boot you are a UK tax payer, you sale or auction - even for the simply need to sign a simple young at heart organising a Gift Aid Declaration Form. So school disco. Whatever they do if your gift is £10, by signing we make sure that they receive the Gift Aid Declaration, it as much support as they need will be worth £12.50 to Royal and we could not be more Papworth. grateful for their hard work and effort. For further details on how you can give to Royal Papworth If you would like to offer in a tax effective way, please your support to Papworth go to the Charity website or Hospital Charity you can get contact the Charity Office. in touch with us via a member They can also advise you on of staff or call 01480 364237. other ways of giving to the You can also find out more charity. Papworth Hospital about our work at www. Charity is a Registered Charity papworthhospitalcharity.org. No.1049224. uk. Ways to apply • Visit www.royalpapworth. All donations received are paid nhs.uk and apply online or into the hospital’s Charity and download a form; all our donors and fund-raisers • Phone 01480 364239 receive a personal thank you • Or write to: for supporting our work. Communications, Royal Papworth Hospital Tax effective giving NHS Foundation Trust, If you do choose to support us Papworth Everard please accept our thanks. We Cambridge CB23 3RE would also ask you to think 33 Handbook for inpatients

Further sources of information and support Details of Papworth Hospital’s own patient support groups can be found on its website at www.papworthhospital.nhs.uk. The following external organisations also offer advice and support.

British Cardiac Patients Association...... 01949 837070 www.bcpa.co.uk

British Heart Foundation...... 020 7554 0000 www.bhf.org.uk

British Lung Foundation...... 020 7688 5555 www.blf.org.uk

Cystic Fibrosis Trust...... 020 8464 7211 www.cysticfibrosis.org.uk

NHS Blood and Transplant...... 01923 486800 www.nhsbt.org.uk

NHS Choices...... 111 www.nhs.uk

Norfolk Zipper Club (for cardiac patients)...... 01508 492876

Pulmonary Hypertension Association...... 01709 761450 www.phassociation.uk.com

Transplant Sport UK...... 01962 865030 www.transplantsport.org.uk

34 Index

Accommodation for relatives and friends...... 19 Admission letters...... 2 Arrival...... 10 Cancellations...... 11 Chaplaincy service...... 18 Contacting us...... 2 Continuing care...... 24 Copy letters...... 28 Diets...... 16 Discharge...... 23 DVT - see VTE...... 14 Enclosures...... 2 Feedback...... 25 Fire alarm...... 15 Food - meals and diets...... 16 Food - patients’ own...... 17 Foundation Trust membership...... 33 Fundraising...... 30 Getting here...... 4 Hospital charity...... 30 Hospital grounds...... 21 Hospital shop...... 32 How to find us...... 4 Infection Prevention and Control...... 21 Information and support - external sources...... 34 Intermediate care...... 24 Life on the ward...... 14 Lifting...... 16 Meals and diets...... 16 Media contact...... 33 Medicines...... 9

35 Handbook for inpatients

Mobile telephones...... 20 PALS...... 13 Parking...... 4 Pastoral care...... 18 Patient Advice & Liaison Service (PALS)...... 13 Patient identification...... 10 Patient-recorded outcomes (PROMs)...... 25 Personal and clinical data...... 27 Personal property...... 8 Post...... 19 Preferred Priorities for Care...... 22 Privacy and dignity...... 14 Quality of service...... 25 Research and development...... 29 Restaurant...... 16 Safety...... 26 Smoking...... 21 Special requirements...... 7 Staff...... 12 Support - external sources...... 34 Teaching...... 15 Telephone numbers...... 37 Telephones...... 19 Television...... 20 Travel and car parking office...... 6 Valuables...... 8 Visiting hours...... 3 Volunteering...... 32 VTE (Venous Thromboembolism)...... 14 What not to bring with you...... 8 What to bring with you...... 7

36 Handbook for inpatients

Telephone numbers Main hospital...... 01480 830541 Main hospital fax...... 01480 831315 Baron Ward - Bernhard Baron Building...... 01480 364227 Cardiac Outpatients - Varrier-Jones Building...... 01480 364710 Cardiac Recovery Unit - Christopher Parish Building...... 01480 364347 Cardiac Support Team - Varrier-Jones Building...... 01480 364100 Cardiology High Dependency Unit - Christopher Parish Building...... 01480 364366 Chaplaincy Service...... 01480 364121 Critical Care - Christopher Parish Building...... 01480 364400 Cystic Fibrosis Unit - Bernhard Baron Building...... 01480 364292 Cardiac Day Ward - Christopher Parish Building...... 01480 364150 Duchess Ward - Bernhard Baron Building...... 01480 364512 Hemingford Ward - Christopher Parish Building...... 01480 364910 ...... 01480 364911 Higginson Ward - Christopher Parish Building...... 01480 364420 Hugh Fleming Ward - Christopher Parish Building...... 01480 364370 Intensive Care Unit - Christopher Parish Building...... 01480 364400 Mallard Ward - Christopher Parish Building...... 01480 364375 ...... 01480 364407 Main Reception - Bernhard Baron Building...... 01480 364625 PALS (Patient Advice & Liaison Service)...... 01480 364896 Princess Ward - Bernhard Baron Building...... 01480 364232 Progressive Care Unit, Mallard Ward...... 01480 364366 Respiratory Support and Sleep Centre...... 01480 364259 ...... 01480 364260 Thoracic Day Ward - Bernhard Baron Building...... 01480 364193 Transplant Continuing Care Unit...... 01480 364455 Travel and Car Parking Office - Bernhard Baron Building....01480 364276 Varrier-Jones Ward - Varrier-Jones Building...... 01480 364648

37 R

Royal Papworth HospitalHandbook NHS Foundation for inpatients Trust Papworth Everard, Cambridge, CB23 3RE Tel: 01480 830541 Fax: 01480 831315 www.royalpapworth.nhs.uk A member of Cambridge University Health Partners

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Author ID: Patient Services Manager Large print copies and Department: Patient Services & Communications Reprinted: May 2018 alternative language Review due: September 2018 versions of this leaflet Version: 3.2 Leaflet number: PI 01 can be made available © Royal Papworth Hospital NHS Foundation Trust on request.