Learning Disability
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Guide to Quality Individualized Education Program (IEP) Development and Implementation
The University of the State of New York The State Education Department Guide to Quality Individualized Education Program (IEP) Development and Implementation February 2010 (Revised December 2010) THE UNIVERSITY OF THE STATE OF NEW YORK Regents of The University MERRYL H. TISCH, Chancellor, B.A., M.A., Ed.D. .................................................. New York MILTON L. COFIELD, Vice Chancellor, B.S., M.B.A., Ph.D. .................................... Rochester ROBERT M. BENNETT, Chancellor Emeritus, B.A., M.S. ........................................ Tonawanda SAUL B. COHEN, B.A., M.A., Ph.D.......................................................................... Larchmont JAMES C. DAWSON, A.A., B.A., M.S., Ph.D. .......................................................... Plattsburgh ANTHONY S. BOTTAR, B.A., J.D. ............................................................................ Syracuse GERALDINE D. CHAPEY, B.A., M.A., Ed.D. ............................................................. Belle Harbor HARRY PHILLIPS, 3rd, B.A., M.S.F.S. .................................................................... Hartsdale JOSEPH E. BOWMAN, JR., B.A., M.L.S., M.A., M.Ed., Ed.D..................................... Albany JAMES R. TALLON, JR., B.A., M.A. ......................................................................... Binghamton ROGER TILLES, B.A., J.D. ....................................................................................... Great Neck KAREN BROOKS HOPKINS, B.A., M.F.A.................................................................. -
Lower Extremity Orthoses in Children with Spastic Quadriplegic Cerebral Palsy Implications for Nurses, Parents, and Caregivers
NOR200210.qxd 5/5/11 5:53 PM Page 155 Lower Extremity Orthoses in Children With Spastic Quadriplegic Cerebral Palsy Implications for Nurses, Parents, and Caregivers Kathleen Cervasio Understanding trends in the prevalence of children with cerebral prevalence for cerebral palsy in the United States is palsy is vital to evaluating and estimating supportive services for 2.4 per 1,000 children, an increase over previously re- children, families, and caregivers. The majority of children with ported data (Hirtz, Thurman, Gwinn-Hardy, Mohammad, cerebral palsy require lower extremity orthoses to stabilize their Chaudhuri, & Zalusky, 2007). Cerebral palsy is primar- muscles. The pediatric nurse needs a special body of knowledge ily a disorder of movement and posture originating in to accurately assess, apply, manage, teach, and evaluate the use the central nervous system with an incidence of 2.5 per 1,000 live births with spastic quadriplegia being the of lower extremity orthoses typically prescribed for this vulnera- common type of cerebral palsy (Blair & Watson, 2006). ble population. Inherent in caring for these children is the need This nonprogressive neurological disorder is defined as to teach the child, the family, and significant others the proper a variation in movement, coordination, posture, and application and care of the orthoses used in hospital and com- gait resulting from brain injury around birth (Blair & munity settings. Nursing literature review does not provide a Watson, 2006). Numerous associated comorbidities are basis for evidence in designing and teaching orthopaedic care usually present with cerebral palsy requiring various for children with orthoses. A protocol for orthoses management interventions. -
Fragile X Syndrome
November 2014, 1 Hour Fragile X Syndrome Fragile X Syndrome (FXS), also called Martin Bell It is estimated to affect 1:5000 males and 1:8000 Syndrome, is the most common heritable cause of females and found in all races and socioeconomic cognitive disability. It is the second known chromoso- groups. Sixty percent of males with FXS exhibit hand mal cause of cognitive disability (Down syndrome is flapping or biting; 90% exhibit poor eye contact and first). It is the most common known cause of Autism 60% have autism. Females with FXS generally have or “Autistic-like behaviors”, and is characterized by higher IQ’s than males and most exhibit shyness and distinct physical and behavioral characteristics. social anxiety. History In the late 1800’s there was an In 1969 Lehrke’s PHD Thesis chromosome. excess of males with Intellectual argued for the presence of an x- In 1991, the mutation causing the Disability noticed based on the US linked intellectual disability gene. FX syndrome was identified and census data. In the 1970’s, Sutherland showed the gene isolated. In 1943 a pedigree was published culture medium lacking folic acid by Martin and Bell describing the appearing to have a gap or break syndrome. in the end of the long arm of the x Genetics The Fragile X name comes from the broken appear- females will have symptoms; however, the severity is ance in the X chromosome where the FMR1 gene is decreased. found. It causes a mutation in the FMR1 gene. The The more repeats, the more unstable the FMR1 gene mutation shuts off the production of the FMR1 pro- is. -
STEP 10: Promote and Market Your Accessibility
STEP 10: Promote and Market Your Accessibility Guidance on Public Information and Marketing How to Write and Speak about People with Disabilities and Older Adults Suggestions for Creating a Public Information and Outreach Checklist Tools for Effective Communication in Promotional and Marketing Materials Best Practices — Marketing and Publicity Guidance on Public Information and Marketing For patrons and visitors with disabilities the option to participate in a cultural event should be based on choice and not limited by lack of access. Evaluate your organizations marketing plan to see that it promotes your accessibility. Central to your outreach, public information, and marketing is communicating to the public about the accessibility of your facility, program and services. Informing the public about the accessibility of your facility and programs is one way to communicate to people with disabilities that they are welcome. The use of appropriate terminology and disability etiquette communicates respect and a positive attitude that is welcoming to people with disabilities. In addition to physical access to programs, auxiliary aids and services provides effective communication and makes programs accessible and enjoyable to everyone. Plan to provide an opportunity for a patron or visitor with a disability to request the auxiliary aid or service that suits their needs. For example, not all persons who are blind use Braille as their primary form of communication. Whereas one person who is blind might request a Braille program, someone else may prefer an audiotape. 217 Ensure that your staff is trained as to the location, usage and maintenance of auxiliary aids such as assistive listening devices in order that they are available and in good working order when requested. -
Caring for Children with Disabilities and Other Special Needs Important?
Children with Disabilities and Other Special Needs First Edition, 2006 California Childcare Health Program Administered by the University of California, San Francisco School of Nursing, Department of Family Health Care Nursing (510) 839-1195 • (800) 333-3212 Healthline www.ucsfchildcarehealth.org Funded by First 5 California with additional support from the California Department of Education Child Development Division and Federal Maternal and Child Health Bureau. This module is part of the California Training Institute’s curriculum for Child Care Health Consultants. Acknowledgements Th e California Childcare Health Program is administered by the University of California, San Francisco School of Nursing, Department of Family Health Care Nursing. We wish to credit the following people for their contributions of time and expertise to the development and review of this curriculum since 2000. Th e names are listed in alphabetical order: Main Contributors Abbey Alkon, RN, PhD Jane Bernzweig, PhD Lynda Boyer-Chu, RN, MPH Judy Calder, RN, MS Lyn Dailey, RN, PHN Robert Frank, MS Lauren Heim Goldstein, PhD Gail D. Gonzalez, RN Susan Jensen, RN, MSN, PNP Judith Kunitz, MA Mardi Lucich, MA Cheryl Oku, BA Pamm Shaw, MS, EdD Marsha Sherman, MA, MFCC Eileen Walsh, RN, MPH Sharon Douglass Ware, RN, EdD Rahman Zamani, MD, MPH Additional Contributors Robert Bates, Vella Black-Roberts, Judy Blanding, Terry Holybee, Karen Sokal-Gutierrez Outside Reviewers, 2003 Edition Jan Gross, RN, BSN, Greenbank, WA Jacqueline Quirk, RN, BSN, Chapel Hill, NC Angelique M. White, RNc, MA, MN, CNS, New Orleans, LA CCHP Staff Ellen Bepp, Robin Calo, Catherine Cao, Sara Evinger, Joanna Farrer, Krishna Gopalan, Maleya Joseph, Cathy Miller, Dara Nelson, Bobbie Rose, Griselda Th omas, Kim To, Mimi Wolff Graphic Designers Edi Berton (2006), Eva Guralnick (2001-2005) We also want to thank the staff and Advisory Committee members of the California Childcare Health Program for their support and contributions. -
Squires Dyslexia Letter.Pdf
September 15, 2016 To Whom May Concern: It has come to our attention that there may be a misunderstanding about who is able to diagnose and treat literacy disabilities such as dyslexia. This letter is to educate and inform that it is within the scope of practice of licensed and certified speech-language pathologists (SLPs) to screen and evaluate children (and adults) for dyslexia, diagnose them if appropriate, and provide therapy. Dyslexia Defined as a Language-based Learning Disorder The National Institute of Child Health and Human Development defines dyslexia as “A specific learning disability that is neurobiological in origin. It is characterized by difficulties with accurate and/or fluent word recognition and by poor spelling and decoding abilities. These difficulties typically result from a deficit in the phonological component of language that is often unexpected in relation to other cognitive abilities and the provision of effective classroom instruction. Secondary consequences may include problems in reading comprehension and reduced reading experience that can impede growth of vocabulary and background knowledge.”1 Dyslexia is a language-based learning disability, and as such, is formally diagnosed after an SLP evaluates the child’s spoken and written language and consults with the child’s parents/caregivers and educational professionals. The Oral Language/Literacy Connection The connections between spoken and written language are well established. Spoken language serves as the foundation for the development of reading and writing. Spoken and written language have a reciprocal relationship. Furthermore, children with spoken language problems frequently have difficulty learning to read and write. Finally, instruction in spoken language can result in growth in written language, and vice versa. -
Design and Development of a Soft Pediatric Support
DESIGN AND DEVELOPMENT OF A SOFT PEDIATRIC SUPPORT GARMENT FOR ANKLE-FOOT ORTHOSES WEARERS by Danielle A Civil A thesis submitted to the Faculty of the University of Delaware in partial fulfillment of the requirements for Master of Science in Fashion and Apparel Studies Spring 2019 © 2019 Danielle Civil All Rights Reserved DESIGN AND DEVELOPMENT OF A SOFT PEDIATRIC SUPPORT GARMENT FOR ANKLE-FOOT ORTHOSES WEARERS by Danielle A Civil Approved: __________________________________________________________ Michele Lobo, PT, Ph.D. Professor in charge of thesis on behalf of the Advisory Committee Approved: __________________________________________________________ Huantian Cao, Ph.D. Interim Chair of the Department of Fashion and Apparel Studies Approved: __________________________________________________________ John Pelesko, Ph.D. Interim Dean of the College of Arts and Sciences Approved: __________________________________________________________ Douglas J. Doren, Ph.D. Interim Vice Provost for Graduate and Professional Education ACKNOWLEDGMENTS Throughout the course of this research and my master’s program, I have received an incredible amount of support, guidance, and assistance. I would first like to thank my advisor Dr. Michele Lobo whose guidance and expertise was incredibly invaluable. I am extremely appreciative of her support and encouragement throughout this process and so inspired by her passion and drive to help children. I’d also like to thank the rest of my committee, Dr. Huantian Cao and Dr. Karin Grävare Silbernagel, for their expertise and feedback that made my research stronger. Thank you so much to the Move To Learn lab team who has offered an incredible amount of support to me during the span of this research. Specifically, thank you to Andrea Cunha for your helpful contributions to the functional testing and data analysis; her expertise, hard work, and kindness was invaluable throughout the duration of this research. -
Choosing the Right Words
Nicole Koester “Choosing the NCDJ, Program Manager Walter Cronkite School of Journalism Right Words” and Mass Communication, Arizona State University “Until we learn to appreciate the power of language and the importance of using it responsibly, we will continue to produce negative social consequences for those victimized by dangerous language habits.” J. Dan Rothwell, Telling It Like It Isn’t: Language Misuse and Malpractice/ What We Can Do About It Our responsibility Use relevant disability terms that are: ● Accurate ● Objective ● Fair ● Neutral ● Respectful & Inclusive “Are we ‘handicapped’ or ‘disabled,’ ‘disabled people’ or ‘people with disabilities,’ ‘differently abled’ or ‘special needs?’” My Journey with Disability Language and Identity Andrew Pulrang, disability blogger, co-coordinator of #CripTheVote Monday, April 10, 2017 The disability community is not monolithic How has the disability language conversation evolved in the United States? Prior to 1960’s acceptable terms: idiot, imbecile, moron, crippled, lame, handicap 1970’s-1980’s disability advocacy expands along with the civil rights movement “People with disabilities” starts replacing “handicap” Source: http://www.disabilitymuseum.org/ 1990 - The “Capitol Crawl” and Americans with Disabilities Act On July 26, 1990, the Americans with Disabilities Act of 1990 was signed into law by President George H.W. Bush. “Spread the Word to End the Word” 2009 Disability Advocacy Campaign encouraging people to stop using the R-word – retard(ed) Rosa’s Law ● President Obama signs October, 5 2010 ● U.S. law that replaces several instances of “mental retardation” with “intellectual disability” in federal health, labor and education statutes. People-first language vs. Identity-first language People-first language Puts the emphasis on the person first; followed by a description of the disability. -
Hypotonia Surestep Product Catalog Page 29 in Step with Pediatric Hypotonia
SPECIAL EDUCATIONAL SERIES DIAGNOSTIC INSIGHTS ANALYZING GAIT CHANGES GROSS MOTOR SKILLS ORTHOTIC MANAGEMENT CLI N I CAL CASE STUDIES Sponsored by an educational grant from: In Step With Pediatric Hypotonia SureStep Product Catalog Page 29 In Step With Pediatric Hypotonia Contents VIEWPOINT FROM THE EDITOR: An Unexpected Path, Mobility and More an Invaluable Perspective At the most basic level, mobility is about get- PAGE 3 ting from point A to point B. But, for many children with hypotonia, it’s about so much 4 more. FEATURES It’s about independence. It’s about con- fidence. It’s about maintaining strength, fit- ness, and healthy bones. It’s about not being Understanding Hypotonia excluded from activities enjoyed by their PAGE 4 typically developing peers. And improved mobility may have even Gait: The Cornerstone more benefits in those children whose hy- potonia is associated with social and behav- of Intervention ioral developmental delays. New research PAGE 8 has identified an association between motor skills and sociobehavioral milestones in chil- 8 The Importance of Gross dren with autism spectrum disorder, who often present with hypotonia (see “The Im- Motor Skills portance of Gross Motor Skills,” page 12). PAGE 12 This suggests that early intervention to improve gross motor skills—including or- thotic devices and physical therapy—may Orthotic Solutions for also help certain children interact more Children with Hypotonia comfortably with others. That won’t come as PAGE 16 a surprise to the clinicians and parents who 12 have personally seen it happen. This special issue is filled with evidence- Orthotic Success Stories: based information and personal success sto- Four Cases in a Series ries illustrating how effective interventions can enhance mobility in children with hy- PAGE 20 potonia. -
Characteristics of Children with Learning Disabilities
National Association of Special Education Teachers NASET LD Report #3 Characteristics of Children with Learning Disabilities Children with learning disabilities are a heterogeneous group. These children are a diverse group of individuals, exhibiting potential difficulties in many different areas. For example, one child with a learning disability may experience significant reading problems, while another may experience no reading problems whatsoever, but has significant difficulties with written expression. Learning disabilities may also be mild, moderate, or severe. Students differ too, in their coping skills. According to Bowe (2005), “some learn to adjust to LD so well that they ‘pass’ as not having a disability, while others struggle throughout their lives to even do ‘simple’ things. Despite these differences, LD always begins in childhood and always is a life-long condition” (p. 71). Over the years, parents, educators, and other professionals have identified a wide variety of characteristics associated with learning disabilities (Gargiulo, 2004). One of the earliest profiles, developed by Clements (1966), includes the following ten frequently cited attributes: • Hyperactivity • Impulsivity • Perceptual-motor impairments • Disorders of memory and thinking • Emotional labiality • Academic difficulties • Coordination problems • Language deficits • Disorders of attention • Equivocal neurological signs Almost 35 years later, Lerner (2000) identified nine learning and behavioral characteristics of individuals with learning disabilities: -
Eliminating Ableism in Education
Eliminating Ableism in Education THOMAS HEHIR Harvard Graduate School of Education In this article, Thomas Hehir defines ableism as “the devaluation of disability” that “results in societal attitudes that uncritically assert that it is better for a child to walk than roll, speak than sign, read print than read Braille, spell independently than use a spell-check, and hang out with nondisabled kids as opposed to other dis- abled kids.” Hehir highlights ableist practices through a discussion of the history of and research pertaining to the education of deaf students, students who are blind or visually impaired, and students with learning disabilities, particularly dyslexia. He asserts that “the pervasiveness of...ableistassumptionsintheeducationof children with disabilities not only reinforces prevailing prejudices against disability but may very well contribute to low levels of educational attainment and employ- ment.” In conclusion, Hehir offers six detailed proposals for beginning to address and overturn ableist practices. Throughout this article, Hehir draws on his per- sonal experiences as former director of the U.S. Department of Education’s Office of Special Education Programs, Associate Superintendent for the Chicago Public Schools, and Director of Special Education in the Boston Public Schools. Ableist Assumptions When Joe Ford was born in 1983, it was clear to the doctors and to Joe’s mom Penny that he would likely have disabilities. What wasn’t clear to Penny at the time was that she was entering a new world, that of a parent of a child with disabilities, a world in which she would have to fight constantly for her child to have the most basic of rights, a world in which deeply held negative cul- tural assumptions concerning disability would influence every aspect of her son’s life. -
For Individuals With
ASSISTIVE TECHNOLOGY FOR INDIVIDU A LS WITH COGNITIVE IMP A IRMENTS A Handbook for Idahoans with Cognitive Impairments and the People Who Care for Them Promoting greater access to technology for ASSISTIVE TECHNOLOGYIdahoans FOR INDIVIDU withA LS WITHcognitive COGNITIVE IimpairmentsMP A IRMENTS 1 Acknowledgements A number of people need to be thanked for their assistance in making this handbook a reality. First, a big thank you goes to the staff of the Idaho Assistive Technology Project for their help in conceptualizing, editing, and proof-reading the handbook. A special thank you to the North Dakota Interagency Program for Assistive Technology (IPAT), and especially to Judy Lee, for allowing the use of their materials related to assistive technology and people with cogni- tive disabilities. A special thank you also goes to Edmund Frank LoPresti, Alex Mihailidis, and Ned Kirsch for allowing the use of their materials connected to assistive technology and cognitive rehabilitation. Illustrations by Sarah Moore, Martha Perske, and Sue House Design by Jane Fredrickson Statement of Purpose This handbook is designed as a guide for individuals, families, and professionals in Idaho who are involved with persons who experience cognitive disabilities. The application of assistive technology for meeting the needs of individuals with cognitive disabilities is still in its infancy in Idaho. This handbook was developed to increase knowledge and expertise about the use of assistive technology for this population. The handbook also provides information about how to locate funding for needed devices and lists a broad array of resources related to this topic. The handbook is designed to provide information that can be used by persons of all ages.