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Support Association of the Tri-State PARKINSON’S AWARENESS SUPPORT ASSOCIATION OF THE TRI-STATE 2020 IMPACT REPORT & RESOURCE GUIDE PARKINSON SUPPORT CENTER PARKINSON’S AWARENESS OF KENTUCKIANA (PSCKY) SUPPORT ASSOCIATION 315 Townepark Circle, Suite 100 OF THE TRI-STATE (PASATS) Louisville, KY 40243 P.O. Box 3745 502-254-3388 Evansville, IN 47736 www.parkinsoncenter.org 812-297-8658 www.pasats.org STAFF (An affiliate of PSCKY) Erika Branch Executive Director Andee Latham Program & Partnership Coordinator PASATS STEERING COMMITTEE EVANSVILLE PD PROGRAMS Anne Byrne Support Group PASATS support group leader Care Partner Support Groups Dorothy Wilderman Care Partner support group leader Delay the Disease scholarships Lynn Penland Feet to the Fire Writers’ Feet to the Fire Writers’ Workshop Workshop® leader Scott Bergen Sally Kroeger Jordana Lockwich Kathy McMurray Julie Monahan Greg Thomas FROM THE EXECUTIVE DIRECTOR April 2020 Everything seems different from Our independent grassroots approach when I wrote my message to you affords us the opportunity to be in last year’s resource guide. We had the first resource to many families. plans and we thought we knew Our mission to provide education, where we were going, but we have exercise, and support is always all been in for some surprises! In at the forefront when servicing the early months of 2020, we have the community. “Living Well with witnessed changes across all aspects Parkinson’s Disease” is more than of our lives. a slogan; it is an imperative life adjustment that is adopted by the As spring emerges, we find ourselves constituents we serve. We hope this ready to take stock of changes and year’s resource guide assists you in to reaffirm the core values we hold “Living Well with Parkinson’s Disease.” dear. The fact that things are different has not diminished our enthusiasm Erika Branch for improving the quality of life for Executive Director those living with Parkinson’s disease. Parkinson Support Center of The Parkinson’s Awareness Support Kentuckiana Association of the Tri-State and the Parkinson Support Center of Kentuckiana are still here for each of you. 1 TO THE EVANSVILLE COMMUNITY If you have been diagnosed with voices), and a writing workshop (for Parkinson’s disease, you are not our cognition). The majority of these alone. We estimate 2,500 people groups offer their services free of in the tristate have this chronic, charge. progressive, neurological condition. We are thankful for the medical Using our internet website, social support we receive from our local media channels, and in-person movement disorder specialist, support groups, we strive to connect neurologists, board certified with every person in our tristate neurology physical therapists, and area to keep them informed on all other medical professionals. that Evansville, Indiana, has to offer for People with Parkinson’s. Several If you know of someone who has people moved to Evansville because not reached out to PASATS, please of our Parkinson’s resources. encourage them to do so. All people are created differently, thus the need The PASATS steering committee is for different activities. If we don’t working hard to help improve your have participants, these activities will quality of life. not continue. Sign up for the monthly PASATS newsletter and join us for In October 2015, when we aligned something that sounds fun to you. If with the Parkinson Support Center you have a new idea, we would love of Kentuckiana, Evansville only had to hear from you. an in-person support group. With PSCKY’s help and thanks to our active In 2020, let’s get moving! steering committee spreading the word and creating opportunities, PASATS Steering Committee Evansville now has several [email protected] Parkinson’s focused exercise classes. Newsletter sign up: http://bit.ly/EVVPD We also have a singing group (for our 2 2019 PASATS ACCOMPLISHMENTS EXERCISE/ACTIVITY We maintained four Delay the Disease Nikki Pritchett led a “Walk in the Park” classes and paid for the training of series during the summer. two new trainers, Melanie Wilkinson (SWIRCA) and Richard Howell, to Because of a significant donation substitute at all locations. We also in December 2018, Lynn Penland continue to offer scholarships for all was trained to lead Feet to the Fire Parkinson’s constituents to attend Writers’ Workshops in Evansville. these exercise classes for free. Three sessions of six weeks each were held in 2019. EDUCATION Kathy McMurray, Mahendra Adhikari, Janet Thomas, and Aaron Stults from Medtronic participated in a panel on Deep Brain Stimulation. They discussed how it works, the effectiveness of the procedure, and their experiences preparing for and during surgery. Dr. James Schroeder from Easterseals presented an informational program about nutrition. The 2nd annual Living Well with PD Scott Bergen created and taught our symposium was held at Deaconess PD101 program. with approximately 200 people attending. Chris Eberhard and Carol McGill participated in a panel to discuss emergency response procedures and how they can be different for People with Parkinson’s. 3 COMMUNICATION The PASATS website continues account was created to increase our to provide information about visibility on the internet and direct Evansville resources including an people to the website. electronic version of the resource guide prepared for the April 2019 In June, Lori Lovell agreed to write Symposium. Social media including the monthly email newsletter sent to Facebook, Twitter, and Linked-In over 340 email addresses. Hard copy served as additional communication newsletters are sent to approximately channels. A MyGoogle Business 50 people each month. SUPPORT GROUPS PASATS Average attendance at the monthly support group meeting was 24 people, the same number as in 2018. In 2019, there were 26 people who attended their first meeting. These meetings are facilitated by Anne Byrne and held at the Deaconess Gateway Conference Center. CARE PARTNERS Dorothy Wilderman led a daytime and evening support group every month in 2019. 4 COMMUNITY Amneal Pharmaceutical Rep, Larry Marjorie Bergen coordinated a care Werner, provided a meal and partner display for the Caregiver skyped in a physician to discuss PD conference held in Evansville. medications on and off times. Julie Monahan, PT, held a PD exercise Janice Hatler and Scott Bergen held class every Wednesday at Encompass their first PD Self class graduating 15 Health. participants in April 2019 and enrolled 11 participants for 2019/2020. The program offers eight sessions for newly diagnosed patients. Kathy McMurray and Margaret Dennis publicized PASATS at the first International Film Festival in Evansville. A showing of Evansville native, Adam Ellenstein’s movie Victory Swim105 was shown. This movie was inspired by his aunt’s Parkinson’s diagnosis. 5 Cathy Funkhouser and Kathy McMurray also set up a table to advertise PASATS at Deaconess’ annual Palliative Care Conference. Kathy McMurray was trained as a Parkinson’s Foundation Aware in Care ambassador and facilitated system changes at Deaconess Hospital for Parkinson’s patients to improve their care and medicine protocols when they are in the hospital. She is also able to order bulk materials for local neurologist offices, rehab offices, nursing facilities, and any other facility Scott Bergen, Janet Thomas and Kathy McMurray. serving Parkinson’s patients. In August 2019, Erika Branch, In December 2019, PASATS became Sonya Disinger and JoAnn Drennen a member of the Southwest Indiana organized the Neil Diamond Sweet Chamber of Commerce. Caroline Tribute concert at The Victory Theater. THANK YOU TO OUR 2019 SPONSORS: Deaconess LIVING Sunovion Acadia Pharmaceuticals Medtronic WELL WITH Atlas World Group Abbvie PARKINSON’S Amneal Boston Scientific Lundbeck DISEASE US WorldMeds 6 “Not Alone” by Carol McGill The tulip is the Parkinson’s disease symbol. The center flower is surrounded by others who are affected by the disease themselves or are supporting loved ones who have the disease. We are not alone with this diagnosis. PASATS IMPACT STRATEGIC PARTNERS • Facilitate the PASATS and Care • University of Evansville Physical Partner Support Groups Therapy Department • Provide community scholarships • Delay the Disease: SWIRCA, St. for Delay the Disease Vincent Wellness, Evansville Parks • Host the annual Living Well with & Recreation Parkinson’s Symposium Evansville • Encompass Health Rehabilitation • Host the Feet to the Fire Writers’ Hospital Workshop® Evansville • YMCA of Southwestern Indiana: • Host community educational Rock Steady Boxing & Pedaling for programs on Parkinson’s disease Parkinson’s topics • PD Self • Parkinson’s disease advocates for • SongShine of Evansville Evansville, Indiana • Hub of Parkinson’s disease programs and education for the Evansville, Indiana area 7 2020 RESOURCE GUIDE EVANSVILLE, INDIANA TABLE OF CONTENTS SUPPORT 1 PARKINSON’S DISEASE & SYMPTOMS 3 DIAGNOSIS 5 AFTER DIAGNOSIS 6 CREATING A PERSONAL SUPPORT TEAM 7 MANAGEMENT LOCAL EXERCISE / ACTIVITY 8 MEDICATIONS 9 LOCALLY OWNED PHARMACIES 11 PHARMACEUTICAL COMPANIES 11 MEDICAL DEVICE COMPANIES 11 PHARMACEUTICAL PATIENT ASSISTANCE PROGRAMS 12 SURGICAL TREATMENTS 13 MOVEMENT DISORDER SPECIALISTS 14 NEUROLOGISTS 14 PHYSICAL, OCCUPATIONAL, AND SPEECH THERAPY 15 MENTAL HEALTH 16 DURABLE MEDICAL EQUIPMENT 16 SOCIAL SERVICES 17 TRANSPORTATION 20 SUPPORT LOCAL SUPPORT GROUPS PARKINSON’S AWARENESS SUPPORT ASSOCIATION OF THE TRI-STATE (PASATS) Evansville, IN www.pasats.org 812-278-8658 Our mission is to provide the tristate community with
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