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Impact Report PARKINSON’S AWARENESS SUPPORT ASSOCIATION OF THE TRI-STATE (PASATS) “Boston Cream Pie” by Christine Kellams 20 IMPACT REPORT 19 RESOURCE GUIDE PARKINSON’S AWARENESS PARKINSON SUPPORT CENTER SUPPORT ASSOCIATION OF KENTUCKIANA OF THE TRI-STATE (PASATS) 315 Townepark Circle, Suite 100 P.O. Box 3745 Louisville, KY 40243 Evansville, IN 47736 502-254-3388 812-297-8658 www.parkinsoncenter.org www.pasats.org An affiliate of the Parkinson STAFF Support Center of Kentuckiana Erika Branch Executive Director STEERING COMMITTEE Brenda Peixotto Sonya Disinger Office Manager Parkinson Support Center Board Member Anne Byrne PASATS Support Group Leader Kathy McMurray ON THE COVER Newsletter, Social Media “Boston Cream Pie” Lynn Penland Artist Christine Kellams Community Exercise This is my dog, Boston Cream Pie. Coordinator My Parkinson’s disease diagnosis Greg Thomas came just weeks after finding her Marketing & Publicity at the animal rescue looking for a home. Now, ten years later, I am Dorothy Wilderman reminded every day when I take Care Partner Support Group her for a walk that she keeps me Leader connected to other people, helps Scott Bergen me find hope for the future, and offers me unconditional love. At-Large - Don Kellams JoAnn Drennen Editor’s Note: Notice the At-Large international Parkinson’s disease Julie Monahan symbol, the tulip, on the dog tag. At-Large FROM THE EXECUTIVE DIRECTOR March 2019 There is no question that Parkinson’s Looking ahead, in 2019 we awareness is increasing in our will focus on strengthening our community. The number of assistance strategic partnerships with local calls from those newly diagnosed hospitals, medical professionals, and requests for resource assistance and businesses. We will continue has significantly increased within education efforts through the the last year. The Parkinson Support annual Living Well with Parkinson’s Center of Kentuckiana and PASATS are Symposium, Medication continuing to meet these demands. Management, and PD 101. Our Our independent, grassroots approach service does not stop there! affords us the opportunity to be the first resource to many families As you can see, we are committed even before diagnosis. Our mission to providing awareness and to provide education, exercise, and education to the local Parkinson’s support is always at the forefront community. Thank you to our when servicing the community. Living sponsors and incredible donors. If Well with Parkinson’s disease is more you have not done so, I urge you to than a slogan; it is an imperative life consider joining our PD Champion adjustment that is adopted by the monthly giving campaign. Every constituents we serve. dollar raised will ensure that our constituents in Kentucky and The collaboration of PSCKY and Indiana are “Living Well with PASATS has demonstrated the Parkinson’s” disease. effectiveness of the grassroots approach to create awareness and Erika Branch advocacy. It was our goal to provide a Executive Director coordinated, sustainable service model for the local community. 1 FROM PASATS It is with great excitement that we and support, not only for patients of share this Resource Guide providing PD, but also their care partners, family, information on various Parkinson’s and friends. These programs are built support groups and programs in on donated time from many people the Evansville community that are and monetary donations that help currently available. to support our PD patients in order to take full advantage of all of these When the Parkinson’s Awareness programs. Support Association of the Tri- State (PASATS) was started As our Mission Statement states… in 2008 as a small grassroots “Our goal is to provide the tri- organization; we had so many state community with access to dreams of what we would like information, resources, support, and to accomplish. It has been over companionship”. May we continue 10 years and we are truly gifted to do all of these in order to make life with the support that we have better throughout all of our challenges found from the Parkinson’s of life…for Everyone! Support Center of Kentuckiana (PSCKY) to help accomplish Sonya L Disinger those goals. As you read PASATS Co-Founder through the guide, you will PSCKY Board Member find information for programs PASATS HISTORY By Alex Dix and Rocio Fortuny Parkinson’s disease is a neurological condition that affects approximately 2,500 people in the Evansville area. Besides those with the disease, PD impacts thousands more that are loved ones and friends of people with Parkinson’s. The Parkinson’s Awareness Support Association of the 2 Tri-State (PASATS) was created to serve everyone impacted by PD by providing “We fall under their umbrella,” access to information, resources, said Disinger, who is PASATS’s support, and companionship. representative to PSCKY. With the money it receives, PASATS offers PASATS was founded in 2008 by AP exercise scholarships and hosts Drennen, Don Markee, Oscar Ozete, educational seminars such as the and Sonya Disinger. The mission Living Well with PD Symposium of PASATS has stayed the same and Medication Management for throughout the years-to bring together those who need it in the Evansville people diagnosed with PD and to help community. them feel they are not alone. PASATS offers them education and information, Kathy McMurray, a current member including tips on how to slow the and volunteer with PASATS, was progression of the disease. diagnosed with PD in December 2007, when she was only 36 years Sonya Disinger, who had been recently old. Trying to maintain being a wife, diagnosed at the time of that first mother, and community volunteer, PASATS meeting, says that while there Kathy pushed her diagnosis to the was another Parkinson’s support group back of her mind. Oscar Ozete, a in Evansville, there was a need for a PASATS founder and member of different resource. “Young Onset, the her church, recommended that she other group, was only for people who join a support group to learn more. were diagnosed before the age of 40, She thought she already knew but we wanted to start a group that everything there was to know, but would include everyone,” said Disinger. Kathy and her husband decided to attend one meeting. All the other In 2015, Sonya Disinger, JoAnn couples were at least 25 years their Drennen and Kathy McMurray senior. It just didn’t feel right. So, met with the Executive Director of they stopped attending after just the Parkinson’s Support Center of the first meeting. A year later, Kentuckiana (PSCKY), in Louisville, Oscar Ozete encouraged her to Kentucky, to discuss how the attend just one more meeting. organizations might best work together “Give them one more chance. I to further their missions. PSCKY agreed know it will make a difference to serve as an umbrella organization for you.” Now, nine years for PASATS and in doing so, provided later, she is still attending and the benefits of a 501c3 non-profit assisting other attendees with organization. her same issues. 3 Patients diagnosed with PD can often helped to normalize the disease for my be confused and misinformed about husband and me.” their condition. That’s why PASATS is so important. It is designed to “When you have Parkinson’s, it can be educate people with Parkinson’s and challenging to find the emotional and their caregivers about all aspects of psychological resources to continue to the disease. PD is often thought of be optimistic. Being in the group where primarily as a physical disease that there are lots of energetic, motivated affects movement. The mental and people who continue to be active, social impact of Parkinson’s are happy, and highly functioning - it’s just regularly overlooked. Depression good for you psychologically. And if it is a common occurrence. helps you psychologically, it also helps Socializing is key to maintaining you physically.” Penland is especially a positive outlook, but it can excited about the exercise programs become hard due to voices now available in Evansville. becoming softer and walking becoming increasing more Exercise is one of the most highly difficult. “Our support group is effective therapeutic agents for not one where people just get Parkinson’s disease. PASATS has helped together and complain, but one to create a lot of opportunities to help that educates, supports and people enjoy their lives and be able to encourages its members on delay the progression of the disease,” how to live well with PD,” says said Penland. Kathy. Of the approximately 2,500 Evansville Lynn Penland, whose husband area residents with Parkinson’s disease, was diagnosed with Parkinson’s, only 11% attend meetings or receive said that in PASATS they found a newsletter from PASATS. PASATS more than they had been wants the public to know that it is open looking for. “We were looking to anyone, young or old, affected by for any information about the Parkinson’s disease. McMurray said disease,” Penland says, “but that her experience has allowed her the quickly we found out that that privilege to slow down and smell the PASATS was more than just a tulips (the international symbol of PD) place to learn about the disease. and meet people in the community that It was an amazing group of she would never get the chance had it people. Being active with PASATS not been for PASATS. 4 The Parkinson’s Awareness Support achieved many of its goals Association of the Tri-State’s over already, and it has developed as 10-year journey is a success story an organization, touching a lot of in multiple ways. As a group, it has people’s lives on the way. • 2018 IN REVIEW LIVING WELL WITH PARKINSON’S SYMPOSIUM Evansville, March 2018 In 2018, approximately 200 people with Parkinson’s, caregivers, family members, physicians, healthcare, and senior care professionals joined us for a day of education and fellowship.
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