ALAMEDA COUNTY PUBLIC HEALTH DEPARTMENT OFFICE OF AIDS ADMINISTRATION AND OAKLAND EMA COLLABORATIVE COMMUNITY PLANNING COUNCIL
OAKLAND, CALIFORNIA ELIGIBLE METROPOLITAN AREA 2006 – 2009 COMPREHENSIVE HIV SERVICES PLAN
SUBMITTED TO THE US HEALTH RESOURCES AND SERVICES ADMINISTRATION
DECEMBER 28, 2005 Oakland Eligible Metropolitan Area (EMA) 2006 - 2009 Comprehensive HIV Services Plan
OAKLAND EMA 2006 – 2009 COMPREHENSIVE HIV SERVICES PLAN
TABLE OF CONTENTS
Table of Contents 1
Letter of Concurrence 2
Introduction & Acknowledgments 3
Executive Summary 6
Section I: Where Are We Now? What is Our Current System of Care? 8
Section II: Where Do We Want to Go? What System of Care Do We Want? 46
Section III: How Will We Get There? How Will Our System Need to Change to Assure Availability and Accessibility to Core Services? 47
Section IV: How Will We Monitor Our Progress? How Will We Evaluate Our Progress in Meeting? Our Short and Long-Term Goals? 60
Endnotes 63
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INTRODUCTION & ACKNOWLEDGMENTS
The 2006 - 2009 three-year Comprehensive Plan for HIV service delivery in the Oakland Eligible Metropolitan Area (EMA) is the product of an intensive planning and development process spearheaded by a diverse group of consumers, providers, and HIV specialists from both Alameda and Contra Costa Counties. Together, these individuals worked during the second half of 2005 to chart a course for the future of HIV services in the Oakland EMA that will allow our region to utilize Title I funds to make the greatest possible impact on the continually escalating crisis of HIV and AIDS.
Work on the comprehensive planning process began in early 2005 with an effort by the Services Planning Council of the Oakland EMA Collaborative Community Planning Council to thoroughly evaluate progress made toward goals and objectives contained in the 2002 Comprehensive Plan. Staff of both the Alameda and Contra Costa County AIDS programs prepared a report on progress made and successes achieved in implementing the previous Plan, and summarized ongoing initiatives to put remaining Plan provisions in place. In turn, these documents were utilized by the Services Planning Committee to provide a starting point for development of this year’s new three-year goals, objectives, and action steps.
Beginning in mid-2005, the Oakland EMA Planning Council also formed a Comprehensive Plan Task Force specifically to oversee the development of the three- year Plan. While functioning as an ad hoc subcommittee of the Services Planning Committee, membership on the Task Force was open to all Council members, as well as to interested community members and consumers. Chaired by Sheila Hall, the Task Force met regularly throughout the planning process, including in a special three-hour meeting in September 2005 to develop Plan objectives and action steps.
At the same time, the Planning Council and its Steering Committee reviewed documents produced by the Task Force and approved key components of the Plan. On October 26, for example, the Council reviewed and approved the Plan’s integrated set of three-year objectives. At its meeting of November 30, the Council reviewed and revised the Plan’s three-year action steps designed to aggressively move our EMA forward in continuing to respond effectively to local HIV care needs. And on December 13, the Planning Council Steering Committee met to review and revise the entire Comprehensive Plan document in preparation for submission to HRSA.
The following is a listing of current Planning Council members. The list includes Planning Council members who participated in the Comprehensive Plan Task Force process:
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Oakland Eligible Metropolitan Area Collaborative Community Planning Council
James Taylor, Chair Gale Brown, Vice Chair
Maria Aguilar Paulette Hogan Anthony Shearer Kenneth Arrington Arthur Hollister Bill Stewart Dan Barba Teree Jerome Keith Thompson Amity Balbutin-Burnham AJ King James Walker Maria Camacho Gloria Lockett Norvell Wallace Kathleen Clanon Roosevelt Mosby John Ward Cseneca Greenwood Roy Quintana Hazel Weiss Carla Goad Frederica Robinson Sylvia Young Sheila Hall Joaquin Sanchez Jim Zuber Lorenzo Hinojosa Pauline Sanger
Staff of the Alameda County Office of AIDS participated in the preparation of the Comprehensive Plan document through the submission of progress reports, attendance at Comprehensive Plan Task Force meetings, and review and revision of key Plan sections. The following is a listing of Alameda County AIDS Office staff members:
Alameda County Public Health Department Office of AIDS Administration
Ron Person, Director Lori Williams, Director Care & Prevention Maria Aguilar, Director Data & Quality
LaKisha Brents Venna Doijode Tom Mosmiller Ivory Butler Lorenzo Hinojosa Shelley Stinson Patricia Calloway Deborah Jones Beverly Wayne Dolly Cruse Michael Lee Kimberly Wilson Elenetia DeLeon Al Lugtu
Staff of the Contra Costa County Office of AIDS Administration also provided continual support to the planning process, and helped formulate key Plan sections. Carla Goad of the Office was a dedicated Task Force member. The following is a listing of Office of AIDS Administration staff:
Contra Costa County Health Department AIDS Program
Christine Leivermann, MPH, AIDS Program Director
Carmen Beyer Rhonda Choi Carla Goad
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Marlina Hartley Peter Ordaz
The Contra Costa HIV/AIDS Consortium provides ongoing advice, support, and input to the Contra Costa County Office of AIDS Administration. Consortium members include unaffiliated consumers and representatives of a broad range of local agencies. Consortium members helped provide input into Contra Costa County’s recommendations for the current Comprehensive Plan. The members of the Consortium are as follows:
Contra Costa HIV/AIDS Consortium
Mario Balcita Doris Glasper William Roby Carmen Beyer Robert Hamilton Graciele Salinas Betty Blackmore-Gee Lorena Huerta Sunny Solomon Gale Brown Desiree Jackson Jeri Stegman Mario Camacho Sandra Johnson Corrine Stuart Carlos Carvajal Julie Levin John Sturr Kelly Dunn Margaret Madams Junie Tate Dick Eastwood Cally Martin William Washington Sam Erwin Francisco Nanclares Larry Wilson Alicia Garcia Patrick O’Leary
Staff of All Health Care / Imanis - the Oakland EMA’s contracted Planning Council support agency - provided valuable assistance throughout the planning process. We are grateful to Shirley Manly-Lampkin PhD, RN, Norma Del Toro, Patrice Lee, and Priscilla Banks of All Health for their support. Robert Whirry, an independent Program Development Consultant, provided contracted support throughout the planning process, helping facilitate meetings and preparing successive draft versions of the Plan document.
We are grateful to all of those involved in making the 2006 - 2009 Comprehensive Plan for the Oakland EMA a reality.
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EXECUTIVE SUMMARY
The 2006 - 2009 Oakland EMA Comprehensive HIV Services Plan is designed to serve as a working blueprint to guide the growth and development of HIV/AIDS care and services in Alameda and Contra Costa Counties over the next three years of the HIV epidemic. Developed through a collaborative process involving the local Planning Council and our region’s two County AIDS programs, the Plan offers an assertive, coordinated plan of action designed to improve local HIV outreach, service linkage, and support, while developing effective strategies to better link HIV prevention and care. The Plan is designed to serve as a living document that is continually reviewed, revisited, and improved in order to respond to changing HIV needs and populations, and to incorporate new strategies for improving care and increasing parity of service access.
The need for a thoughtful roadmap to guide the continued development of our local HIV continuum is particularly critical at a time when increasing HIV-infected populations coincide with diminishing financial resources to meet these individuals’ needs. In the Oakland EMA, such financial challenges are particularly daunting given the exploding rates of HIV infection among underserved and hard-to-reach groups such as young gay men of color, transgendered people, active substance users, women, and the homeless - populations that require assertive, coordinated efforts in order to involve and retain them in care. The progress our EMA has made in reducing the percentage of individuals who have an unmet need for HIV medical care is continually being challenged by the growing complexity of newly-diagnosed populations, and the need for evolving systems that can affectively meet the needs of multiply-diagnosed individuals, persons in poverty, and sexual minorities.
A critical step in realizing our goal of a more unified approach to HIV prevention and care was initiated in 2004, when the Oakland EMA began to implement a long- contemplated strategy of merging the region’s HIV service and prevention planning councils into one unified body whose members could work together to address HIV care and prevention needs in a coordinated manner. The process of developing draft bylaws for the merged Planning Council began in August 2004, and the first joint meeting of the newly merged Oakland EMA Collaborative Community Planning Council was held in February 2005.
The newly merged Planning Council represents one of the first such successful efforts ever undertaken in the United States. Thus far, the merger has been extremely effective, with the Council functioning through a joint membership that is fully representative of the HIV epidemic in the Oakland EMA, and that includes a high percentage of both affiliated and unaffiliated consumer members. The group has successfully worked through issues and barriers that have arisen during the transitional period, and has found effective ways to ensure that it professionally accomplishes the twin federal mandates for the role and functioning of both Care and Prevention Planning
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Councils. The Council is looking forward to the development of new and innovative strategies for the coordination and integration of HIV care and prevention services, and for the implementation of new approaches that increase the accessibility, effectiveness, and cost-efficiency of both care and prevention programs.
Despite this important success, however, the challenges facing our regional HIV care system remain profound, and serious decisions are needed in order to continue to improve the effectiveness and impact of local CARE Act-funded resources and programs. Therefore, at the center of our 2006 action plan is a year-long, facilitated strategic planning process involving several full-day meetings to be attended by Council members, consumers, and providers. The goal of this process will be to systematically explore all aspects of both the local HIV care system and the process through which CARE Act funds are prioritized, allocated, and managed in the Oakland EMA, and to make the difficult decisions that are needed to bring about significant enhancements in this system. This process is expected to coincide with the process for addressing changes that may come about through the upcoming Ryan White CARE Act reauthorization.
Our action plan also outlines several key steps designed to increase coordination among the EMA’s two counties; to strengthen training and certification for HIV service providers; and to explore movement toward a continuous needs assessment process for the Oakland EMA. The goals, objectives, and action steps contained in our Plan outline what we believe is an exciting future for HIV care and service delivery in our region - one that gives us our best chance to cope with potential resource reductions while designing an ever-more effective, inclusive, and efficient spectrum of care.
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SECTION I: WHERE ARE WE NOW? WHAT IS OUR CURRENT SYSTEM OF CARE?
A. Description of the Oakland, California Eligible Metropolitan Area
Located east of San Francisco in the Bay Area, the Oakland Eligible Metropolitan Area includes the two counties of Alameda and Contra Costa. The City of Berkeley in Alameda County is its own health jurisdiction, but collaborates with the two counties in EMA-wide planning.
The Oakland EMA is a collection of extremes, encompassing a broad range of ethnicities, economies, and geographies. The total land area of the EMA is 1,458 square miles - an area roughly the size of State of Rhode Island - and encompasses major urban and suburban centers as well as extensive rural areas. The counties are roughly equivalent in land mass (733 square miles for Alameda and 725 square miles for Contra Costa), and the underprivileged in both counties must sometimes travel far distances to several different providers in order to access needed services.
According to the 2000 Census, the total population of the Oakland EMA is 2,392,557, a total representing just over 7% of the total population of the state of California. Alameda County, with a total population of 1,443,741, accounts for 60.3% of the Oakland EMA population, while Contra Costa County, with 948,816 residents, accounts for the remaining 39.7%. The city of Oakland, in Alameda County, is the EMA’s largest city, with a 2000 Census population of 399,484.
The Oakland EMA is one of the most ethnically diverse regions in the nation. The EMA includes a population that is 37% white; 13% African American; 19% Latino/Hispanic; 7% Asian/Pacific Islander; 1% Native American; and 14% multicultural/other ethnic populations. In fact, according to the 2000 Census, Alameda County is the third most ethnically diverse county in the United States. Oakland, Alameda County’s largest city, has a percentage of African Americans that is the second highest in California for places of 100,000 or more1. A total of 46 different languages and dialects are spoken here.
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B. Epidemiological Profile
Summary of the Current Local Epidemic
With 9,290 cumulative AIDS cases diagnosed as of December 31, 2004, the Oakland EMA has the 21st largest number of cumulative diagnosed AIDS cases of any U.S. metropolitan area, and a cumulative AIDS caseload larger than that of 18 U.S. states. Alameda County alone has the 4th highest number of reported AIDS cases by major counties in the State of California for 2005, while Contra Costa County ranks 10th in relation to other counties.2 Oakland also has the 18th highest reported cumulative AIDS caseload out of 107 metropolitan areas listed by the US Centers for Disease Control and Prevention (CDC).3
Between January 1, 2003 and December 31, 2004 alone - the most recent two-year period for which figures are available - a total of 570 new cases of AIDS were diagnosed in the Oakland EMA, according to CDC reports. The ethnic composition of these new AIDS cases was 47.28% Black; 19.33% Hispanic; 3.16% Asian/Pacific Islander; 0.35% Native American; 0.35% multi-racial; and 29.53% White. The percentages of new AIDS cases among people of color are much higher than these populations’ representation within the general population (see Figure 1 below). African Americans in particular are highly disproportionately represented, with new AIDS case rates nearly four times higher than their representation in the overall community.
Figure 1. Comparison of Oakland EMA Ethnicity Percentages - Total Population and AIDS Case Rates
50% 45% 40% 35% 30% 25% 20% 15% 10% 5% 0% African Latinos Whites Asians / Pacific Native Americans Islanders Americans
Percentage of Total Oakland EMA Population Percentage of People Living with AIDS as of 12/31/04 Percentage of New AIDS Cases - 1/1/03 - 12/31/04
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As of December 31, 2004, the CDC reports that there were 3,666 people living with AIDS (PLWA) in the Oakland EMA. The ethnic / racial composition of this population was 43.44% Black; 13.58% Hispanic; 3.36% Asian/Pacific Islander; 0.36% Native American; 0.16% multi-racial; 39.02% White; and 0.08% Unknown. Of all persons ever diagnosed with AIDS in the target region, 40% are still living with the disease.
Additionally, an estimated 4,5644 persons are believed to be living with HIV but not yet diagnosed with AIDS as of December 31, 2004. The Ethnic composition of this population is estimated to be 44.5% Black; 12.2% Hispanic; 3.7% Asian/Pacific Islander; 0.3% Native American; 0.1% Multi-racial; and 38.1% White. This means that an estimated combined total of 8,230 individuals were living with HIV and/or AIDS in the two counties of the Oakland EMA as of December 31, 2004.5
Ethnicity: As of December 31, 2004, over 54% of cumulative AIDS cases ever diagnosed in the Oakland EMA had been among communities of color, including 40.19% among African Americans; 10.95% among Latinos; 2.58% among Asian/Pacific Islanders; and 0.3% among Native Americans. In comparison, only 42% of cumulative AIDS cases in the entire state of California in 2003 had been among persons of color. From January 1, 2003 to December 31, 2004, over 73% of all new AIDS cases in the EMA occurred within communities of color, despite the fact that people of color make up 63% of the EMA’s total population. Figure 1 above compares the percentages for different ethnicities in the general population to their percentage of PLWA and new AIDS cases in the EMA
Of all communities of color affected by HIV/AIDS in the Oakland EMA, African Americans are by far the hardest hit and the most disproportionately represented, making up only 13% of the EMA’s total population but almost one-half (47.28%) of all persons diagnosed with AIDS between January 1, 2003 and December 31, 2004. African American men and women made up 43.44% of all persons living with AIDS as of December 31, 2004, and were estimated to comprise 45.5% of all those living with HIV as of the same date. Over 3,600 African American men, women, and children were already living with either HIV or AIDS in the Oakland EMA as of December 31, 2004. Meanwhile, Latinos make up just over 13.58% of all people living with AIDS in the Oakland EMA, and over 12.2% of all people estimated to be living with non-AIDS HIV in the two counties. However, Hispanic and Latino AIDS incidence rates have risen sharply over the last three years, a trend which has led to a disproportionate representation within this population.
Gender: As of December 31, 2004, 81.09% of all persons living with AIDS in the Oakland EMA were male, as were 77.6% of all those living with non-AIDS HIV. An estimated 6,515 men were living with either HIV or AIDS in the EMA as of the end of last year, illustrating the continuing crisis of HIV infection among men who have sex with men across all ethnic groups (56.52% of PLWA and 53.7% of people living with HIV (PLWH)). The trends toward higher percentages of HIV and AIDS in the Oakland EMA
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for women also continued in 2004, with 18.91% of all people living with AIDS being women as of the end of 2004, and 25.09% of all new AIDS cases diagnosed between January 1, 2003 and December 31, 2004 occurring among women. The Oakland EMA contains the highest percentage of diagnosed AIDS cases among women of any major metropolitan area in the western United States. In California 8% of all persons living with AIDS as of December 31, 2003 were women; for Los Angeles County the figure was 10.5%; and for San Francisco County the figure was 6.5%; in comparison to the Oakland EMA’s 17.5% representation as of the same date.
While 39% of men living with AIDS at the end of 2004 were African American, 64% of women with AIDS were African American (see Figures 2 & 3). Conversely, 20% of all women living with AIDS and 45% of all males living with AIDS were white. The highly disproportionate incidence of AIDS cases among African American women highlights the deadly magnitude of the HIV/AIDS epidemic within our region’s African American communities.
Figure 2. Men Living with AIDS as Figure 3. Women Living with AIDS of 12/31/04 by Race / Ethnicity as of 12/31/04 by Race / Ethnicity
African Americans (39%) African Americans (64%) Latinos (13%) Latinos (11%) Whites (45%) Whites (20%) Other (3%) Other (4%)
Men having sex with men (MSM) continue to make up the highest proportion of men living with AIDS in the Oakland EMA, constituting 62.35% of all persons living with AIDS in the region with MSM who inject drugs are included. For women, the majority of cases - 56.93% - result from heterosexual transmission. Injection drug use also accounts for a higher percentage of cases among women living with AIDS than among men (31.82% among women versus 18.16% among men). Women also report more “unknown” transmission sources, possibly due to their partners having sex with men or due to undisclosed partner drug use.6
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As of December 31, 2004, almost one out of every four people living with AIDS in the Oakland EMA was a woman, infant, child, or young person. Children and youth alone make up 0.5% of all people living with AIDS in the EMA. The CDC in 2003 listed Oakland as the highest metropolitan area for women, infants, children, and youth living with AIDS as a percentage of all PLWA in the Western US, at 20.8% of the total PLWA population.
A significant proportion of HIV and AIDS cases in the Oakland EMA occurs among transgender persons, a population that traverses a broad spectrum of lifestyles and gender transition stages. A total of at least 21 AIDS cases and 12 HIV cases have been identified among male-to-female transgender persons in Alameda County, while Contra Costa County lists six individuals living with HIV/AIDS as “other/unknown” gender, all of whom are assumed to be transgender individuals. HIV surveillance data reported from the CDC does not track the number of transgender cases at the national or state level, making it difficult to compare local numbers with other regional and national statistics.
Transmission Categories: Men who have Sex with Men, including those who inject drugs (MSM and MSM IDU) continue to make up the highest number of AIDS and HIV cases in the EMA, although the percentages are declining. 62.36% of all adult PLWA and 56.97% of adult PLWH are in this category, accounting for 59% of all adults believed to be living with HIV or AIDS in the Oakland EMA as of December 31, 2004. However, between January 1, 2003 and December 31, 2004, non-IDU MSM accounted for only 46.4% of all new AIDS cases diagnosed during that period, a percentage that is 10% lower than their percentage among the overall population of people living with AIDS.
HIV/AIDS among injection drug users (IDUs) in the Oakland EMA constitutes the largest such epidemic of any EMA in the state of California.7 Fully 17% of all AIDS cases ever diagnosed in the Oakland EMA have occurred among injection drug users, a percentage that is even higher if MSM IDU are accounted for. The epidemics of HIV/AIDS among injection drug users and women in the Oakland EMA are closely interrelated. Women injectors increase their risk by sharing needles and works with others, especially their male partners. Sexual activity with IDUs also contributes to the increase of heterosexual transmission cases among men and women. Sixteen percent of all of men living with AIDS in the Oakland EMA as of December 31, 2004 were heterosexual injection drug users.
Age at Diagnosis: Between January 1, 2003 and December 31, 2004, 63.38% of diagnosed AIDS cases in the Oakland EMA were among persons between the ages of 20 and 44. Two new AIDS cases were among children under 13 years of age, the low number due in large part to increased local provider efforts to identify, test, and support HIV-positive women during pregnancy. Although only one new AIDS case occurred in a young person between 13 and 19 years of age, evidence from AIDS incidence rates points to a rapid spread of HIV among younger populations. For example, while 45.44% of all PLWAs diagnosed with AIDS as of December 31, 2004 were between the ages of
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20 and 44, 63.38% of new AIDS cases diagnosed between January 1, 2003 and December 31, 2004 were within that age range. Conversely, 36.09% of new AIDS cases diagnosed between January 1, 2003 and December 31, 2004 were among persons 45 years or older, although this group still made up 54% of all PLWA in the EMA through the end of 2004.
Future Trends
Concerted efforts to expand and improve HIV education, prevention, testing, and treatment programs in the Oakland EMA have had remarkable success, helping decrease AIDS case rates from a high of 47.6 per 100,000 in 1992 to the present 9.3 cases per 100,000 population in 2004. AIDS Incidence by Race/Ethnicity Unfortunately, this rate is 80% still higher than the State 60% of California’s current rate of 7.8 per 100,000 40% population. The tables to 20% the right summarize AIDS incidence trends 0% Before 1990 1990 1994 2000 2004 within the Oakland EMA over the last 14 years by African American Hispanic White race/ethnicity, gender, and transmission AIDS Incidence by Gender category.8 100%
The regional AIDS 80% epidemic has decreased 60% in the White population 40% but increased year by 20% year among both African Americans and 0% Before 1990 1990 1994 2000 2004 Hispanics. Although Men who have sex with Men Male Female is still the largest transmission category, AIDS Incidence by Exposure Injection Drug Use has 80% continued to increase 60% over the years, and has now been augmented by 40% an upsurge in 20% Heterosexual transmission cases, 0% currently accounting for Before 1990 1990 1994 2000 2004 one-third of all new AIDS MSM IDU MSM & IDU Heteros ex ual
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cases reported in the region in 2004. Women have gone from making up less than 5% of new AIDS cases before 1990 to composing almost 25% of new AIDS cases in 2004, with rapid increases among Hispanic and Latino populations portending future disproportionate rates within this population as well.
C. History of the Local Response to the Epidemic
The Oakland EMA HIV Health Services Planning Council first came into existence in 1994, soon after Alameda and Contra Costa County together became eligible to apply for Ryan White CARE Act funding through Title I. Since its inception, the Planning Council has been responsible for establishing priorities and allocating Title I funds within the Oakland EMA; for ensuring broad information input regarding HIV trends and needs; for involving consumers in HIV-related assessment and decision-making; and for assessing the efficiency of the administrative mechanism in rapidly allocating and effectively monitoring the use of Ryan White CARE Act funds. The Planning Council is also responsible for developing a Comprehensive Plan for the organization and delivery of health services described in Section 2604 of the CARE Act, and participates in the development of the California Statewide Coordinated Statement of Need every three years.
The Planning Council - in collaboration with the Alameda and Contra Costa County AIDS programs - has also helped spearhead the development of a comprehensive, coordinated system of care that has consistently addressed the needs of the most disadvantaged and highest risk populations in our region. This has included a continual prioritization of HRSA-identified core services as lying at the heart of the local system of care, along with funding for additional services that help people with HIV/AIDS achieve stability in their lives in order to maintain health and remain compliant with HIV drug therapies.
By the late 1990s, the escalating crisis of HIV/AIDS among African Americans had become so acute that in November of 1998 the Alameda County Board of Supervisors made the unprecedented decision to declare a State of Emergency in Alameda County directly related to the increasing number and incidence of HIV and AIDS cases within the African American community. This was the first time that a local health emergency related to HIV/AIDS had been declared in any state or municipality, and it reflected the severity and seriousness of the epidemic among African Americans in the Oakland EMA. The declaration immediately resulted in the formation of a local Task Force to strategize solutions to the crisis, and increased national attention on the problem of the African American HIV/AIDS epidemic not only in Alameda County, but nationally. Meanwhile, the seriousness of the injection drug use crisis in Alameda County led to the declaration of a second state of emergency in December 1999 related specifically to the problem of transmission of HIV and Hepatitis B and C through contaminated needles.
Beginning in late 2004, the Oakland EMA began to implement a long-contemplated strategy of merging the region’s HIV service and prevention planning councils into one
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unified body whose members could work together to address HIV care and prevention needs in a coordinated manner, and to develop new and innovative strategies for integrating HIV care and prevention programs, particularly in light of the growing national attention being placed on prevention with positives programs. The process of developing draft bylaws for the merged Planning Council began in August 2004, with a hired consultant working in conjunction with representatives of both the HIV Health Services Planning Council and the HIV Prevention Planning Council. These bylaws were approved in early 2005, and the first joint meeting of the newly merged Oakland EMA Collaborative Community Planning Council was held in February 2005.
The newly merged Planning Council represents one of the first such successful efforts ever undertaken in the United States. Thus far, the merger has been extremely effective, with the Council functioning through a joint membership that is fully representative of the HIV epidemic in the Oakland EMA, and that includes a high percentage of both affiliated and unaffiliated consumer members. The group has successfully worked through issues and barriers that have arisen during 2005, and has found effective ways to ensure that it professionally accomplishes the twin federal mandates for the role and functioning of both Care and Prevention Planning Councils. The Council is looking forward to the development of new and innovative strategies for the coordination and integration of HIV care and prevention services, and for the implementation of new approaches that increase the accessibility, effectiveness, and cost-efficiency of both care and prevention programs.
D. Assessment of Need
HIV Care and Service Needs
The HIV/AIDS epidemic in the Oakland EMA is a critical health emergency that significantly impacts the quality and length of life for men, women, and children living in our region, and which continues to affect a much higher proportion of low-income men and women who lack access to basic health services than in other areas of California. In Alameda County, this disproportionate impact is related in large part to the epidemic’s impact on communities of color, especially upon African American and Latino communities, as well as on low-income women and children. In Contra Costa County, the disproportionate impact relates to the prevalence of the epidemic among both injection drug users and African American communities, including women, children, and homeless populations. In both counties, the epidemic also places severe pressure on underserved communities of gay young men of color and transgender people. The HIV/AIDS epidemic in our EMA targets the most underprivileged, underserved, and under-recognized populations in our region - individuals who face the most daunting range of personal and economic barriers to accessing and maintaining care. While the Oakland EMA does not contain the nation’s largest number of HIV/AIDS cases, it has been disproportionately devastated by the AIDS epidemic because of the degree to which the epidemic is impacting those populations who are least able to afford or access care, and who are precisely the most difficult and costly to reach and to serve.
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The HIV/AIDS epidemic in the Oakland EMA can only be properly understood as part of an interrelated series of epidemics rooted in the deeper underlying problems of poverty, racism, and economic and social disparity that characterize many parts of our service region. These epidemics - both social and health-related in nature - challenge the EMA to provide specialized HIV/AIDS services, while working with other disciplines to address the deeper causes that underlie these problems. In terms of HIV and AIDS, the epidemic’s co-morbidities serve both as indicators of the potential growth in the epidemic’s scale and impact, and as symptoms of the far deeper and more prevalent problems which the Oakland EMA has worked for many years to overcome.
Sexually Transmitted Diseases (STDs), for example, play a critical role in HIV transmission and other diseases such as Hepatitis. The Oakland EMA had an average of 53 new primary, secondary, and early latent syphilis cases reported each year between 2001-2003 (2.2 per 100,000 population) and an average of 7,383 annual cases of Chlamydia (308.58 per 100,000) over the same time period.9 Alameda County’s average 2001-2003 Chlamydia incidence rate of 331.57 cases per 100,000 ranks it as the county with the eleventh highest incidence in California, with Contra Costa County not far behind with 247.46 cases per 100,000. The EMA also copes with extremely high rates of gonorrhea. With 2,559 new gonorrhea cases reported in 2004 alone, and a rate of 107 per 100,000, this is above the California case rate of 82.7.10
Other diseases such as tuberculosis (TB) are more easily transmitted in the environments in which poor, homeless, and substance using individuals find themselves. An average of 285 new cases of Tuberculosis were diagnosed each year in the Oakland EMA between 2001 and 2003, for a total incidence of 11.9 per 100,000 population - a rate significantly higher than the California statewide incidence of 9.8 cases per 100,000. The average 144 new TB cases reported in Alameda County in 2004 gives Alameda County the third highest TB incidence rate of any county in California.11
Hepatitis C is also highly prevalent in the Oakland EMA, with estimates of 28,000 Hepatitis C infected residents in Alameda County12 and an even larger number in Contra Costa. New HCV cases are closely related to injection drug use through the sharing of needles, syringes, and other drug paraphernalia. One Public Health Department pilot HCV testing program conducted at HIV test sites in Alameda County in 2001-02 found an overall HCV positivity rate of 40%, with one local needle exchange site having a 70% HCV rate and with Highland Hospital having a positivity rate of 35%. Studies of methadone clients show that over 96% have seroconverted within 5 years of beginning their injection drug use. A Hepatitis B and C prevalence study of Street- Recruited IDUs by the Urban Health Study in our EMA found that 75% of individuals tested had antibodies to HBV and 89% tested positive for antibody to HCV in 200113. And a study conducted by the University of California San Francisco found that low- income women in San Francisco and Alameda County were infected with Hepatitis C at double the national average, with the same study also reporting a link to non-injection
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drug use such as cocaine snorting, as well as the co-morbidity of herpes, the lesions of which increase the likelihood of infection from other diseases14.
Other co-morbidities in the Oakland EMA with far-reaching implications include the ongoing local epidemics of substance use, poverty, and homelessness. While struggling with their addiction, substance users are far less likely to attend to basic healthcare needs, and often present at emergency rooms with advanced ailments such as abscesses, blood poisoning, and AIDS. Diagnosis in late stages of HIV infection means increased costs of medical care and limited benefits from the anti-retroviral drug therapies. It is currently estimated that at least 35,724 men, women, and young people over the age of 18 in the Oakland EMA are already active injection drug users, and every one of them is at extreme risk for HIV and HCV infection.15
Other drugs of abuse, such as crack, heroin, and methamphetamine, impair health and put people at risk due to crime, increased risky sexual and drug using behaviors, as well as place a heavy toll on the addicts’ family and friends. Between 1999-2001 - the last period for which full statistics are available - there was an average of 18,288 adult arrests each year for drug violations in the Oakland EMA, as well as 10,905 annual adult arrests for alcohol violations and 2,021 annual juvenile arrests for alcohol and drug offenses. In addition, an average of over 585 men and women died in the EMA each year as result of alcohol and drug use between 1999-2001.16
The threat of homelessness remains an ominous and continual fact of life in the Oakland EMA for most low-income persons living with HIV and AIDS. According to a recent report by the National Low Income Housing Coalition, both Alameda and Contra Costa County rank among the seven least affordable counties in the entire United States in terms of costs of rental housing.17 Because of the high costs of housing and low vacancy rates in the two counties, on any given night it is estimated that 15,000 individuals are homeless on the streets of the Oakland EMA, a rate of 626.9 per 100,000 population. Over the course of a given year, an estimated 42,000 men, women, and children will find themselves without an adequate place to find shelter.18 The Contra Costa County HIV/AIDS Housing Survey, conducted in late 1995 among persons living with HIV throughout the county, found that 31% of respondents had experienced homelessness since learning of their HIV status; 35% of respondents had experienced at least one episode of homelessness within the past five years; and 4% of respondents were currently homeless, living on the streets or in cars, abandoned buildings, or shelters. In addition, the California Comprehensive Housing Assistance Plan estimates that 25% to 30% of the state’s homeless suffer from severe mental illness, while the Contra Costa County Drug and Alcohol Needs Assessment estimates that between 23% and 40% of the homeless population abuses drugs or alcohol. Another 5% to 10% of California’s homeless population is estimated to be runaway youth, according to the Comprehensive Housing Assistance Plan.19
The problem of homelessness is closely linked to that of poverty, which presents an even more daunting challenge for those who care for HIV-affected populations in this
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region. Using 2000 Census data, we estimate that 35.9% of the Oakland EMA population is currently living at 300% of Federal Poverty Level or below, which translates to an estimated total of 858,902 individuals lacking resources to cover all but the most basic expenses. In the Contra Costa cities of Richmond and San Pablo, more than 50% of all persons live below Federal Poverty Level, and in over half of the census tracts in Contra Costa County, children comprise between 33% and 49% of all people in poverty. At the same time, an estimated 14.61% of those in the Oakland EMA are currently estimated to be without any form of insurance coverage - including Medicaid - for a total of 349,636 uninsured individuals in our region.20 According to a recent report, an estimated 77% of those who are uninsured in Alameda County are people of color.21 Unemployment has also been on the rise in the Oakland EMA, reaching 5.2% in Alameda County and 4.8% in Contra Costa County as of August 2005, figures that translate into at least 65,000 unemployed individuals in the two counties.22
Unmet Needs Estimate
The Oakland EMA utilizes the HRSA Unmet Needs Framework to estimate the total number of individuals with unmet HIV care needs living in our two-county region. During 2005, these estimates were prepared in collaboration with the California Department of Health Services, which worked with each of California’s nine Title I EMAs to estimate the number of persons who were living with HIV or AIDS, were aware of their status, and had received HIV primary care in FY 2003-2004. HIV primary care (met need) was operationalized as receipt of viral load (VL), CD4 count, or anti-retroviral therapy (ART) during the time period of 07/2003 – 06/2004. Of the 8,127 people estimated to be living with HIV/AIDS in the EMA jurisdiction, it is estimated that 4,916 (61.7%) received HIV primary medical care during the specified time period, while 3,111 (38.3%) demonstrated an unmet need for HIV primary medical care. Among the 4,347 people living with AIDS during the specified time period, 2,825 (65%) showed evidence of receiving primary medical care, while 1,522 (35.0%) had an unmet need in regard to primary medical care. Meanwhile, among the 3,780 people living with non-AIDS-diagnosed HIV in the EMA during the same time period, 2,191 (58%) had received HIV primary medical care at some point during the period, while 1,589 (42.0%) had an unmet need in these areas. The combined population of people living with AIDS and HIV who have an unmet need in the Oakland EMA are predominantly male (73.6%), over 40 years of age (71.8%), and primarily African American (38.7%) or White (34.9%). Demographic characteristics for these populations are described in Figure 4 below. Of the total number of people living with AIDS in the Oakland EMA who had an unmet need for HIV medical care, Alameda County had 76.1% of this total population and Contra Costa County had 23.9% of the population. Of all persons living with non-AIDS HIV in the EMA, 73.7% resided in Alameda County and 26.3% resided in Contra Costa County.
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Figure 4. Demographic Characteristics of Combined PLWA and PLWA Cases in the Oakland EMA
Out of Care (Unmet Need) In Care (Need Met) AIDS HIV Total AIDS HIV Total Gender Female 14.7% 37.6% 26.4% 19.8% 25.4% 22.2% Male 85.3% 62.4% 73.6% 80.2% 74.6% 77.8% Age Group 0-12 yrs 0.1% 2.8% 1.4% 0.2% 0.5% 0.4% 13-19 yrs 0.2% 2.4% 1.3% 0.4% 1.1% 0.7% 20-29 yrs 1.6% 10.8% 6.3% 2.2% 6.2% 3.9% 30-39 yrs 17.4% 20.9% 19.2% 18.9% 23.1% 20.8% 40-49 yrs 41.5% 31.5% 36.4% 43.5% 36.9% 40.6% 50& over 39.2% 31.6% 35.4% 34.8% 32.1% 33.6% Race/Ethnicity Asian/PI 3.2% 6.4% 4.8% 3.2% 5.0% 4.0% Black 36.9% 40.5% 38.7% 44.0% 42.9% 43.5% Hispanic 10.5% 8.9% 9.7% 14.3% 11.3% 13.0% Native Am/Alaskan 0.2% 0.4% 0.3% 0.4% 0.3% 0.3% White 41.4% 28.7% 34.9% 36.8% 34.1% 35.6% Other/Unknown 7.8% 15.2% 11.5% 1.3% 6.3% 3.5%
Total 1522 1589 3111 2825 2191 5016
In addition to the above unmet needs statistical data, a 2005 analysis of clients in care in the Oakland EMA shows that Title I/II funded programs in the EMA are serving populations most in need of subsidized medical and social service care. The system is serving a higher proportion of Blacks, Hispanics, Women and Heterosexuals - individuals from populations with increasing AIDS rates and those who are known to have problems accessing and maintaining service contact. For example, while 44% of those living with combined HIV/AIDS in the Oakland EMA as of December 31, 2004 are African American, 52.7% of those served through Title I programs over the 12 months period have been African American. Similarly, while 22.4% of all those living with HIV in the Oakland EMA are women, 26.8% of those served through the local Ryan White system are women. The EMA’s system also serves a higher percentage of heterosexually infected individuals (31.8%) than in the overall HIV-infected population
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(20.4%). Hispanics are also being served higher (16.7%) than their proportion of infected people in the EMA (12.2%).
Gaps in Care
The Oakland EMA undertook a Needs Assessment in 2004-05.23 The most significant finding resulting from that assessment centered on the fact that in 15 separate service categories, at least 20% of participants said that they needed more access to that service than they were able to obtain, or indicated barriers to accessing those services. For example, 16% of respondents stated that they needed more Primary Care services than what they received and 25% indicated they needed more Case Management; 34% stated they needed more Dental services; Emergency Financial Assistance was cited by 32%; Food Vouchers 29%; Food and Household Items 25%; Transportation 23%; Housing Assistance 25%; and Therapy and Counseling 20%. Interestingly, over 61% said they did not need substance abuse treatment services, and only 10% said they needed more than what was available. Very few felt they would need these services in the future. This is counter to what providers say they know of their clients’ habits, with some medical providers estimating that over 60% of their clients have substance abuse issues, especially polydrug use.
Prevention Needs
Consistent, personalized, and assertive HIV prevention education and support for persons living with HIV and AIDS is an indispensable component in the continuum of effective HIV care. Creating strong linkages between HIV prevention and care helps defer new cases of HIV; ensures rapid identification of new HIV infections; and can immediately link newly-diagnosed HIV-positive individuals to the HIV care system, in turn greatly increasing their chances of accessing and remaining on combination therapies. At the same time, HIV prevention programs for HIV-positive persons can reduce new cases of HIV infection while helping reinforce stable lifestyles and self- protective behaviors. The US Centers for Disease Control and Prevention’s Advancing HIV Prevention (AHP) Initiative highlights prevention with positives as the third of the initiative’s four central strategies, stressing the importance of prevention with positives programs in reaching those who have been diagnosed with HIV but are not in care, and emphasizing the need to develop standardized procedures for prevention interventions for persons living with HIV.24
The February 2005 merger of the Oakland EMA HIV Services and HIV Prevention Planning Councils represents a groundbreaking statement of commitment by our region in support of the notion that HIV prevention and care must be better and more effectively linked, integrated, and coordinated. The merger reflects the strong belief that HIV prevention and care can no longer be effectively treated as separated areas, but rather must be viewed as inextricable components which make up a larger vision of HIV intervention that begins at the first moment of personal HIV risk and continues through the full spectrum of HIV care and support.
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The new merged Planning Council will allow our region to develop a broad range of innovative approaches to better linking HIV prevention and care, including creating more assertive prevention outreach initiatives directed toward hard-to-reach and underserved communities such as young gay men of color and transgender populations - interventions which we hope will lead to greater numbers HIV-infected youth and adults being identified and linked to care at the earliest possible stage in their infection. Our efforts will also be focused on expanding the quality and availability of prevention with positives services within HIV treatment and support organizations, including applying the expertise of HIV prevention specialists to the HIV-positive population through training, support, and program development collaborations throughout the EMA.
It is our hope that the new local merged Planning Council will eventually be seen as a major step forward in helping providing the kind of leadership that will eventually help other EMAs to better and more effectively link and integrate HIV prevention and care programs at all levels.
E. Description of the Current Continuum of Care
The Oakland EMA is composed of Alameda and Contra Costa Counties. Each Health Department is responsible for the health needs of its populace. A third health jurisdiction, the City of Berkeley, is within Alameda County but includes its own health department. Alameda County (the Grantee) and Contra Costa County (the Subcontractor) have an Intergovernmental Agreement specifying the details of their working relationship in accordance with HRSA regulations, including that up to 5% of local Title I funds may be expended for administration of the program by the Office of AIDS and up to 5% for Quality Assurance activities. Remaining funds are allotted by the Planning Council as per HRSA regulations, with proportional allocation of Ryan White Title I and MAI funds based on the number of AIDS cases reported as of December 31 of the previous year by the State of California Department of Health and Human Services. The Title I Grantee Agency for the Oakland EMA is the Alameda County Health Care Services Agency and its Office of AIDS Administration (OAA). The Title I funds in Contra Costa County are administered through the Contra Costa County Department of Health Services AIDS Program.
The chart on the following page outlines the current Continuum of Care design for HIV services in the Oakland Eligible Metropolitan Area.
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Oakland EMA Continuum of Care
SUPPORT SERVICES Client Advocacy Transportation
Health Education OTHER HEALTH &Case CARE SERVICES Housing Management Risk Reduction Clinical Research Advocacy & Food ESSENTIAL SERVICES Out of Care Housing Primary Outreach Assistance Health Care Primary Medical Care Legal Services Substance Abuse Treatment Emergency Financial Mental Health Services Treatment Adherence Assistance Oral Health Case Management Services HIV Related Medications Alternative Treatment Vision Care Nutritional Hospice Services Home Health Care Day or Respite Child Welfare Services Services Translation Emotional Support
Access Services
- Case Management - HIV Testing & Counseling - Medical Programs - Information and Referral - Early Intervention Services - Outreach, Education and Prevention
Although the Oakland EMA consists of three separate health jurisdictions, the region’s Continuum of Care framework enables providers, health departments, and the community to meet the continuing and changing needs of people living with HIV/AIDS in any area of the EMA in order to increase access to services and decrease disparities to people disproportionately affected by HIV (HRSA’s goal). The overarching goal of the EMA-wide system is to ensure that all people living with HIV or AIDS are enrolled in a primary medical care program. Alameda County relies on a system of public and private hospitals, numerous community health clinics and private physicians linked through Titles I, II, III, and IV funding and provider networks. Every year, more than 20 agencies are funded by Titles I/II to provide a wide array of services. Additionally, over 40 more agencies in Alameda County are linked to these providers by referral systems and collaborate through long-standing provider networks. In Contra Costa County the County Health system, through its Basic Health Care plan, provides primary medical care and other health services to PLWH/A who are low-income or indigent.
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Approximately seven agencies are funded per year to provide Core Services and a variety of other HIV related services.
The components of the region’s Continuum of Care consist of the following: