1 World Hepatitis Alliance Quarterly : October Report - December 2017

Quarterly Report

October - December 2017 2 World Hepatitis Alliance Quarterly Report : October - December 2017 Organisational Meeting attendance updates 26 Strategic partnerships Ending thesocialinjustice of viral hepatitis Advocating for viral hepatitis Raising Our awareness impact of CONTENTS this viral quarter hepatitis 4 6

22 20 18 12 O the monthsofOctober, November andDecember 2017. quarterly report covers ourprogress towards theambitiousobjectives we have setfor ourselves for major contribution towards improving thelives ofmillions ofpeople livingwithviral hepatitis.This Our strategic plan clearly states whatwe will do inorder to make thebiggestimpact andmake a O Q 2 ctober 3 1 ur uarterly

hepatitis Ending thesocialinjustice ofviral Advocating for viral hepatitis Raising awareness ofviral hepatitis core -D ecember

areas

report 2017

of

work

Quarterly Report : October - December 2017 December - October : Report Quarterly World Hepatitis Alliance Hepatitis World 3 4 World Hepatitis Alliance Quarterly Report : October - December 2017 K ey H countries indiviuals 214 countries managers 82 delegates 750 ighligts

programme

attende attende across

from

65 68

governments 6 representatives 11 media 900 NO 53 hep countries

coveage ministerial

pieces

endorse

across

of

G S launched 2020 WHA 2018- launched F report H T A inancing emplate trategy ccountable overnments olding

launched strategy

website

organisations 4 launched development on W attende 7

hite economic new policy

member paper

events

case and

Quarterly Report : October - December 2017 December - October : Report Quarterly World Hepatitis Alliance Hepatitis World 5 7 Actions World Hepatitis Alliance Quarterly : October Report - December 2017

World Hepatitis Day - celebrating our global awareness day

This quarter we started preparations for 2018 (WHD2018). Continuing with the theme of ELIMINATE HEPATITIS, the campaign will centre on increasing diagnosis and WHA’s organisational focus of ‘Finding the Missing Millions’. The theme and focus for WHD2018 were announced at the Pre-Summit Member Conference in Brazil, 30-31 October 2017. More details will be presented in Q1 of 2018.

NOhep - expanding awareness-raising activities beyond a single day, increasing the support for viral hepatitis and the impact on the ground In this quarter we continued to make significant progress implementing the strategy:

NOhep Communications Strategy

The NOhep working group had the opportunity to meet at the World Hepatitis Summit (WHS2017) to develop and agree upon the 2018 NOhep strategy. The three key objectives for 2018 are to build brand recognition, mobilise and expand the NOhep supporter base and drive advocacy activity.

NOhep Visionaries Programme

Medical Professionals: This quarter we secured commitment from 17 leading medical professionals in the Americas Region. They spearheaded the launch of the programme at The Liver Meeting in October. To date, the NOhep Medical Visionaries Programme has gained over 250 supporters globally, and this is growing daily. Find out more here.

Governments: On day one of WHS17, we launched the NOhep Visionaries Programme for Governments. Six government representatives publically endorsed the movement on stage in front of a delegation of 750 people. These countries were Raising Bangladesh, Brazil, The Gambia, Georgia, Egypt and Mongolia. Find out more here. 1 awareness of NOhep at WHS17 The NOhep presence at WHS17 was viral hepatitis strengthened by the NOhep booth and media 8 World Hepatitis Alliance Quarterly Report : October - December 2017 Meeting andWHS17. media presence andengagement withglobal events like theInternational Liver Congress, TheLiver Facebook and from 976onTwitter to 2,000.Thishuge increase islargely thanks to ourstrong social Facebook pages; from 506likes to 1271on and followers ontheNOhepTwitter and more thandoubled theamountoflikes 120 countries. Inthelast year, we have to 80,264,leading to sign-ups from over NOhep actions have increased from 66,557 NOhep movement. Inthisquarter alone 2017 hasbeenanincredible year for the I out thenewwebsite here . up conversion ofSummitdelegates. Check during theevent, whichled to an11%sign in a70%increase intraffic to thewebsite redesign intimefor WHS17.Thisresulted signs-ups. Inresponse, we embarked ona times andapoornavigation were reducing audit inQ4whichshowed thatslow load gain momentum we conducted awebsite To ensure thatthemovement continues to NO tweets alsocontained #NOhep. In addition, 25%ofall #HepSummit2017 and aresult of20.9million impressions. with NOhephashtag trending onTwitter campaign. Overall itwas agreat success highly successful andengaging socialmedia We alsousedtheevent to implement a presentations here. other WHAmembers. You can findall ofthe to present theirnationalNOhepactivities to We invited supporters from different regions impact NOhepishaving across theworld. information) to demonstrate theglobal Member Conference sectionfor additional (please refer to theWHAPre-Summit the WHAPre-Summit MemberConference In addition, we held a90minute sessionat that were provided to usby oursupporters. available andwe alsohad othermaterials and theVisionariesProgramme were made sign up. Aselection offactsheets onNOhep about themovement andencourage themto goal beingto engage andeducate delegates Programme for Governments withtheoverall to leverage thelaunch oftheVisionaries wall inthefoyer area. We usedthesespaces ncrease hep

website

in

the

level re - launch

of

NO hep

supporters

the photos here. not bepossible withoutpeople. Checkout that theeliminationofviral hepatitiswill taken. Thisprovided reminder apowerful the WHAstand. Atotal of391photos were having theirphoto taken inaphoto boothat human face to theeliminationgoalby We alsoencouraged delegates to puta videos here. immediate action mustbetaken. Watch the on peoples’ lives andremind delegates why the devastating impact viral hepatitishas main programme atWHS17to highlight testimonials were shown throughout the receiving adiagnosis andtreatment. The including stigmaanddiscrimination, the United States, whichcovered topics Mexico, Russia,VietNam,Uganda and videos withourmembers inAustralia, with viral hepatitis.We produced sixshort a spotlight onthestories ofpeople living We usedWHS17asanopportunity to put W profiling adifferent story inhepVoice each month. communications. We promoted theWall ofStories through oursocialmediachannelsandby This quarter we continued to putthehumanside oflivingwithviral ofour hepatitisattheheart W home thereality ofthediseasebeyond thestatistics million people worldwide livingwithviral hepatitis to bring T orld all he

of reality H S epatitis tories

S of ummit

viral

hepa tiis

- illustrating thelives ofthe325

Quarterly Report : October - December 2017 December - October : Report Quarterly World Hepatitis Alliance Hepatitis World 9 10 World Hepatitis Alliance Quarterly Report : October - December 2017 Day on 1 March. dates in 2018,such asZero Discrimination disseminatedIt will befurther around key findings around stigma anddiscrimination. the event withaninfographic basedonthe Direction 1(SD1). Itwas alsopromoted at key messages presented within Strategic The report was released atWHS17,with is meaningfully involved intheresponse. discrimination isaddressed andcivilsociety needs to bedone to ensure that stigmaand survey. Thereport thatmore highlights based onthefindingsofourcivilsociety Survey Global Findings’, Report whichis Governments Accountable: WHACivilSociety This quarter we publishedthe‘Holding H our civilsociety survey andtheWHOCountry Response Profiles isongoing. WHO andGCUare still accepting responses from countries andcollaboration around the results of place andthoseplans are more likely to befunded. Thepresentation can beaccessed here. to date highlighted thatcountries whoinvolve civilsociety are more likely to have nationalplans in Caledonian University (GCU) atWHS17.Aglobal overview ofthe132countries thathave responded An interim report ontheWHOCountry Response profiles (2016/2017) was delivered by Glasgow C elimination targets. to access itandsoshould notproperly be considered diagnosed. Thiswill impact reaching WHO’s are unaware andhave notbeenlinked to care, andassuch are noteligible for treatment orable of people withHBV and20%ofpeople withHCVhave beendiagnosed, yet manyofthesepeople diagnosis –ourkey strategic focus for 2018-2020.Globally, WHOestimate thatapproximately 10% agreement ondata, especially inregards to we will continue to work towards reaching data setinviral hepatitis.Moving forward, need for aconsistent global andnational outreach. Thisexample reiterates theurgent Analysis (CDA) to support ourmedia a result, we useddata from theCentre for we were unable to reach aconsensus. As of substantiated nationaldata available media activities. However, given thelack (WHO) to agree onadata setto inform closely withtheWorld Health Organization the lead up to WHS17,we collaborated still remain withviral hepatitisdata. In This quarter highlighted thatinconsistencies A anddevelop andpromote ourown data D ountry gree olding ata

on

G - advocating for consistent andreliable data onthe

responses

consistent overnments

on

global A

hepatitis ccountable

d ata B and : WHAC C ivil S ociety S urvey numerous SDGs. used ourinfographic to highlighthow acomprehensive viral hepatitisresponse helps to achieve eliminate viral hepatitiscontribute to achieving universal health coverage. Onsocialmediawe On 12December we usedUniversal Health Coverage Day asahookto stress to thatefforts Development Goals contributes to theachievement ofmanyotherSustainable viral hepatitisgoesbeyond goodhealth andwellbeing and S ustainable 1: Ending poverty T arget D evelopment sanitation water and 6: Managing achieving manyothertargets Eliminiating viral hepatitis will successfully contribute to Combatting viral hepatitisgoesbeyond ahealth issue • • • • • • 3.3: 3.c: Health financingandhealth workforce 3.b: Access to affordable medicinesandvaccines 3.8: Achievinguniversal health coverage 3.5: Preventing andtreating substance usedisorders 3.4: Reducing mortality from non-communicable diseases 3.1: Reducing maternal mortality G combat oals and commodities access to services inequality in 10: Reducing

- demonstrating how tackling

viral discrimination promote non- societies that inclusive 16: Promoting

hepatitis implementation building for and capacity 17: Financing

11 Quarterly Report : October - December 2017 December - October : Report Quarterly Alliance Hepatitis World 12 World Hepatitis Alliance Quarterly Report : October - December 2017 2 viral hep Advoca ting for a titis quarter of2018. with stakeholders inNigeria.Discussions onthefinancingoptions are due to take place inthe first Strategy Template website here . Work isnow ongoing by CHAIto agree costsand inputassumptions this meetingare available asacase study onourNationalViral HepatitisProgramme Financing The first technical working group meetingwas held inNigeriaOctober andtheoutcomes of Nigeria website. Programme Financing Strategy Template case study onourNationalViral Hepatitis which, whenfinalised,will appear asa CDA are theproject now drafting report, WHS17. 4 (SD4):financingfor innovation sessionat up treatment duringtheStrategic Direction and highlighted Colombia’s plan to scale presented asummaryofthesediscussions Programme Manager for viral hepatitis Following themeeting,Colombian scale up oftheirviral hepatitisprogramme. and to discussfinancingoptions for the off thecostingandinvestment inputs case working group meetinginColombia to sign In October CDA convened asecond technical Colombia the area offinancingandtheirrelationship withMinistries ofHealth. to carry outthisproject -CHAIinNigeriaandCDA inColombia -basedonboththeirexperience in The Clinton Health Access Initiative (CHAI)andtheCentre for DiseasesAnalysis (CDA) were selected assisting F develop acomment piece for This quarter we usedthefindingsofourwhite paper ontheeconomic anddevelopment case to HCV A tool. we will make thewhite paper available to ourmembers andotherstakeholders asanadvocacy Publishing thisarticle was thefirst step inourdisseminationplan for thisproject andinearly 2018 hepatitis. Thefull text can beaccessed here. was publishedto coincide withWHS17, called for better donor involvement intheresponse to viral P commitment hepatitis andsupporting governments fulfill their inancial olitical ctions and

B HBV – countries arriers

will developing

to with

- building thecase for eliminatingviral E limination

costing The Lancet Gastroenterology & Hepatology & Gastroenterology Lancet The

global , financing

of

H business epatitis

and

cases C

investment in L

ow

and

case M iddle

development I journal.Thearticle, which ncome C ountries -

13 Quarterly Report : October - December 2017 December - October : Report Quarterly Alliance Hepatitis World 14 World Hepatitis Alliance Quarterly Report : October - December 2017 Despite concerted andcollaborative throughout efforts theproduction cycle, this hasremained one Committee partners to andits identifyandinvite nationalProgramme Managers to the meeting. In order to bring thesetwo audiences together, significant work was undertaken by theOrganising on stage. Malta, Mongolia, Pakistan, Sudan, Syria and Uganda demonstrated high-level global commitment 42 in2015.Inaddition, 11ministerial representatives from Brazil, China,Egypt, Georgia, Lesotho, Intotal,patients. 82programme managers across 65countries were inattendance, compared to platform for civilsociety andgovernment to come together for thebenefitofviral hepatitis WHS17 was specifically designed asa Government Representation elimination ofviral hepatitis. speakers presented onways to achieve the Over thethree days, 100+international Ricardo Barros, Minister of Health for Brazil. WHA CEORaquel Peck andtheHonourable in aspectacular event thatwas opened by Sixteen months’ofhard work cumulated andfunders. scientists States, patientorganisations, policy-makers, groups, WHO representatives Member and its together aglobal audience ofcivilsociety Brazilian Government anditbrought HepatitisAlliance (WHA),WHOandthe meetingwas ajointinitiativeThis year’s between theWorld Paulo, Brazil for thesecond World Hepatitis Summit. In thisquarter, over 750delegates from 106countries convened attheWorld Trade Center inSão W Further promotion to policymakers andourmembers viaourcommunication channelsisongoing. Informative handoutsaboutthewebsite were alsomade available for all WHS17’sparticipants. important role advocating for financinghasinachieving afunded viral hepatitisprogramme. countries thatwant to startlooking atthisthemselves. Importantly, thewebsite the alsohighlights case, budgeting andcatalytic financingstrategies. Built inisaninteractive costing tool to help strategies: costing, creating aninvestment emphasisonfinancing with particular ofacomprehensivepart financingprocess of thefollowing steps whichare required as of theoryandcase studies, itexplores each their viral hepatitisprogramme. Usingamix strategic approach to costing andfinancing national governments onhow to adopt a This website will serve asaguide for can beaccessed here. innovation sessionatWHS17.Thewebsite presentation withinSD4:financingfor website was ofWHA’s launched aspart Financing Strategy Template website. The the NationalViral HepatitisProgramme CHAI to finalisethetext anddesign for This quarter we collaborated closely with A orld viral H

hepatitis epatitis

S financing ummit (1-3N

strategy ovember

blueprint 2017)

for

countries

Excellent. Thefull report onWHS17will be available inthefirst quarter of2018. Feedback hasbeenuniversally positive for the event –withdelegate satisfaction scores of 91% therecognitiondisease gets itneedsanddeserves. largely ignored inthemedia. We will continue to leverage these mediarelationships to ensure the Lancet, El Mundo andAFP. Thiswas amassive achievement given thatviral hepatitisisusually and printoutlets including BBC World News, secured inamixture ofonline,broadcast million across theglobe. Coverage was 53 countries, reaching approximately 400 resulted inover 900pieces ofcoverage in press releases to mediaworldwide, which course oftheevent we distributed seven international mediacampaign. Over the and profile WHS17,we launched an To raise awareness ofviral hepatitis WHS17 mediacoverage hepatitis response. of people livingwiththediseasein Viral Hepatitis,demanding theinvolvement the São Paulo Community Declaration on society andpatientadvocates andlaunched disease. Inresponse, we convened civil government commitment to eliminate the representatives. Thisdocument reaffirmed Declaration from highlevel government with theannouncement oftheSão Paulo strengthened astheevent concluded Government commitment was further Civil Society Response conditions, including HIV/AIDS orTB. the disease’slow profile relative to other were symptomatic oftheproblems of viral hepatitisProgramme Managers many oftheproject’s difficulty insecuring necessarilywasn’t apriority. Assuch, of diseases–andfor whomviral hepatitis responsibility andfocus across anumber but alsoworked withaco- weren’t dedicated only to viral hepatitis period thatProgramme Managers often It alsobecame obvious duringthemarketing international businesstravel. income countries didnothave budget for Programme Managers indeveloping orlow did notspeak English andnon-funded Similarly, manyProgramme Managers was already inproduction. acquiring andqualifyingit,whilsttheevent WHO had to gothrough theslow process of single place. Assuch theSummitteam and monitored globally existina anddoesn’t Programme Managers collected isn’t and In large thiswas because part, data for of theprimarychallenges for theevent.

15 Quarterly Report : October - December 2017 December - October : Report Quarterly Alliance Hepatitis World 16 World Hepatitis Alliance Quarterly Report : October - December 2017 The full report onthePre-Summit MemberConference will beavailable in thefirst quarter of2018. that thisunique event fostered. contributed to thefeeling ofcommunity dinner was very well received andfurther conference dinneronthefirst evening. The integral ofthisconference, part we held a informal peer-to-peer learning isan Understanding thatnetworking and most useful. region. found Participants thesesessions the togetherpoints to discussissues withintheir members andthe WHO regional focal The event alsoenabled usto bringour the centre. conference whichputthepatientvoice at proved to beanengaging andinformative own topics inourOpenSpace session,it the opportunity for delegates to settheir and theNOhepmovement aswell as on access to medicinesanddiagnostics their field. Withcapacity building sessions learn fromin oneanotherandexperts organisations from around theworld to was aunique opportunity for civil society The Pre-Summit MemberConference hepatitis patientgroups. of WHArepresenting 138different viral those inattendance, 158were members individuals from 68different countries. Of Paulo, Brazil. Theconference convened 214 was held onthe30-31October inSão The WHAPre-Summit MemberConference WHA M No updates thisquarter. hepatitis should bechampionedby everyone C T the ground inhibit ourmembers from makinganeven biggerimpact on he apa W city embers hy /C

of P re V apability -S iral ummit H C epa

onference building tiis

- sharingreasons whyviral

- tackling theobstacles that Survey” sectionfor additional information. Governments Accountable: WHACivilSociety discrimination. Please refer to “Holding involve themandaddress stigmaand to thecommitmentstheyhave made to society iftheyare to hold governments outwhatactionssets are required by civil advocacyis apowerful tool whichclearly Survey Global Findings Report’. Thereport Governments Accountable: WHACivilSociety were disseminated viaour’Holding The findingsfrom thecivilsociety survey WHA civil

society

survey

17 Quarterly Report : October - December 2017 December - October : Report Quarterly Alliance Hepatitis World 18 World Hepatitis Alliance Quarterly Report : October - December 2017 3 hepatitis injustice ofviral Ending the social video message here. currently livingwithhepatitisB.Watch his Bollywood actor Amitabh Bachchan whois a testimonial from prominent celebrity stigma anddiscrimination.Theseincluded to highlightthestories ofthoselivingwith series ofpatienttestimonials atWHS17 As highlighted above, we broadcasted a T A H reach behindfirst. thefurthest the resounding messages of WHS17was notonly to leave noonebehind butensure thatefforts including criminalisationofdrug offences andto adopt apublichealth approach. Evidently, oneof on political leaders to remove barriers thatprevent people using drugs from accessing services, Policy Consortium, Treatment Action Group, Coalition Plus andWHAlaunched adeclaration calling du Monde (MDM),International Drug society organisations including Médecins imagined country scenarios. Fifteencivil by applying anequity framework to to work together andthinkdifferently equitable services encouraged delegates unique interactive workshop ondelivering children andtheburden ofhepatitisD. A for priority populations, viral hepatitisin at specific issues including service delivery presentations andside meetingslooked need for harmreduction policieswhile throughout theevent stressed the in discussionsatWHS17.Speakers overlookedoften groups featured heavily and people whousedrugs to prisoners, From Indigenouspopulations to children first E a priority E S hepatitis avoice andexposingprejudices suffered opic fforts epatitis quity top

ctions given

the must S

- makingthelack ofaccess to lifesaving interventions ummit

prominence

reach stigma 2017

the

at furthest and

the

W discrimination

orld behind

- givingpeople withviral

19 Quarterly Report : October - December 2017 December - October : Report Quarterly Alliance Hepatitis World 20 World Hepatitis Alliance Quarterly Report : October - December 2017 partnership Strategic s hear abouttheircurrent workplan in HIV, TBandhepatitis C aswell asdiscussfuture plans. advisory expert group,MPP: AsamemberofMPP’s we were invited to participateintheir AGM and information.section for further declaration onviral hepatitisanddrug use,which theyspearheaded. Please refer to theequity MDM: Thisquarter we supported MDMwiththedevelopment anddisseminationofanimportant MD / well andnationalcivilsociety isengaged withthem. and inNigeria(together withCHAI).Asreported earlier, bothfinancinginitiatives are progressing CHAI andCDA: Thisquarter we continued ourfinancingwork inColombia (inpartnership withCDA) and we were involved inthosediscussions. preparation for thisimportantmeeting,aseriesofcalls were organised to shape theprogramme at WHS17to hostaside meetingfocusing ontheirrole towards viral hepatitiselimination.In Liver Societies:ThemainLiver Societiesinthefield (AASLD, EASL,APASL andALEH)came together officially launched inthelast day ofWHS17. participate andrepresent thepeople livingwiththedisease.Thedeclaration was endorsed and to reiterate thecountries’ commitment to eliminate viral hepatitisby 2030.We were invited to level meetingsinGeneva withotherMemberStates to develop theSão Paulo Declaration, aiming Government ofBrazil: intherunup to WHS17theBrazilian government conducted manyhigh G discuss plans for 2018andform strategies to grow themovement. WHO/CEVHAP/ELPA/CDC: asmembers ofNOhep’ssteering committee, we all metatWHS17to raise theawareness ofhepatitisontheglobal stage, aswell asnationally. to develop astrong mediastrategy aimingto generate asmanypieces ofcoverage aspossible and Government ofBrazil /WHO:Inpreparation for WHS17inBrazil, we worked withourevent partners G their eliminationtargets. the regions andcontinue to work withtheotherregions to ensure countries are supported to reach AFRO (2018-2019).We will work closely together withthefocal to points strengthen in theefforts Furthermore, we have managed to secure fundingto support two key atWHOEUROand posts and WHS17was agreat opportunity to meetwith manyofthemanddiscussplans for 2018. This quarter we continued to work withimportantpartners to advance theviral hepatitisresponse E A R overnment overnment nding aising dvoca S edicines

ting awareness

of of ocial B B

razil razil for P atent I /L /W

njustice viral P iver orld ool S

(MPP) hep H ocieties ealth a titis /CHAID O rganisation A /CEVHAPELPA /CD

21 Quarterly Report : October - December 2017 December - October : Report Quarterly Alliance Hepatitis World 22 World Hepatitis Alliance Quarterly Report : October - December 2017

Meeting attendance access hereaccess . The outcome ofthemeetingwas ascientificreport, whichyou can roundtable was hosted inassociationwiththeBritishLiver Trust. changes such asdietthatHCPs can educate with.The patients the liver: Coffee, caffeine andlifestyle factors” discussing lifestyle on liver health. Thethemeoftheroundtable was “Lookingafter to participateinaroundtable ofcoffee discussiononthebenefits We were invited by theInstitute for ScientificInformation onCoffee elimination. treatment. Thiswas aunique meetingfor theEmirates, whichwe hope will drive action towards governments. WHA’s presentation touched onfinancing,hard-to-reach populations, diagnosis and hepatitis landscape andhighlighted thedifferent challenges andopportunities thatexistfor Emirate states to discusseliminatingviral hepatitis.WHAPresident presented ontheglobal viral This meetingbrought together ministerial representatives andprogramme managers from seven ofWHA’scrucial part role asconvenor. collaborating withotherorganisations, whichisa there was aclear understanding of ofthebenefits organisations. Evaluation forms showed that sign-ups by introducing themovement to many Hepatitis Day activities andencouraged NOhep to thinkmore strategically abouttheirWorld of WHA’s mission.We alsoencouraged groups the importance ofcollaboration, acornerstone WHA members), andinparticular, emphasised among ELPA members (manyofwhichare also The interactive sessionhelped build capacity collaborations to enhance nationalactivities. University onthesubject ofleveraging community We were invited to give aseminaratELPA ( C U ELPA U goal offee nited 2) A

and niversity rab H E ealth mira : B tes R ud oundtable M apest inisterial , H ungary : L M ondon , 30S eeting , UK,18O eptember : D ubai , UAE3O ( ctober go al 1) ( goal ct ober 1)

23 Quarterly Report : October - December 2017 December - October : Report Quarterly Alliance Hepatitis World 24 World Hepatitis Alliance Quarterly Report : October - December 2017 scale-up screening andtreatment to meetthe2030targets. According to Polaris Observatory, Ireland islagging far behindotherEuropean countries andmust who listened intently to ourpresentation aboutIreland’s slow progression to meettheWHOtargets. ofHealthDepartment withresponsibility for Health Promotion andtheNationalDrugs Strategy, Dublin, Ireland. Thehalf-day meetingwas opened by Catherine ByrneT.D. Minister ofState atthe We were invited by Hepatitis CPartnership, ourmemberorganisation, to give akey note address in in2018. this further came outofthemeetingwas to create aseparate testing week for viral hepatitis.We will explore NETWORK, INHSUandothers, whoalsoshared theirplans for 2018.Oneofthemainideas that meeting was attended by anumberofcivilsociety groups including ECDC,EATG, CORRELATION Mediterranean) presented WHA’s 2018-2020strategy atELPA’s annual stakeholder meeting.The WHA Board Members Ivana Dragojevic (Europe) andAmmalMokhtar Metwally (Eastern HCV E ELPA S limination t akeholdrs S eminar M eeting : D : ublin P alermo , I reland , I t al , 29N y , 27N o vember ovember ( goal ( go 2) al 1) any recommendations have followed thestrictGRADEprocess andare therefore justified. much to befinalisedbefore itgoesto theGuidelines ReviewCommittee, whichwill make sure that rather thanprioritisingcertain groups. TheGDGcame to sometentative conclusions butthere isstill addition, theGDGconsidered whether there isenough evidence to recommend treating everyone Sofosbuvir/Velpatasvir/Voxilaprevir) eitheralongside orinplace ofcurrent recommendations. In of thenewdrugs should berecommended (Glecaprevir/Pibrentasvir, Sofosbuvir/Velpatasvir, We attended theHCVtreatment update guidelines development group meetingto discusswhich them favourably. elimination targets. Thesewere presented to Dr. Carissa F. Etienne, Director ofPAHO, whoreceived goal ofenhancingPAHO’s technical collaboration to accelerate theregional response towards cumulated withthedevelopment ofrecommendations onstrategic key interventions withthe moving forward andachieving thegoalsofhepatitiseliminationby 2030.Thetwo day meeting (PAHO) Technical Advisory Committee to assistPAHO withleading andsupporting theregion in Möller) andourPresident-Elect (Michael Ninburg), attended thePan American Health Organization WHA Board Memberfor Americas (SuWang), WHARegionalAdvisor for Americas (Patricia Vélez organisations R PAHO M egional

eeting consultation : C : airo W ashingt , E gypt

on

on , 20D strengthening , USA,6-7D ecember (

goal the ecember

2) role (

goal of

civil 2)

society

25 Quarterly Report : October - December 2017 December - October : Report Quarterly Alliance Hepatitis World 26 World Hepatitis Alliance Quarterly Report : October - December 2017 Organisatio nal updates

256 members spanning across 87 countries (123voting members and133non-voting members). the USA,HepatitisFoundation International, whoceased operating 23years. after We now have remaining two members comefrom USAandArgentina. Sadly, we lost onevoting memberbasedin come from Colombia, acountry where we have nothad anymemberpresence untilnow. The In December theBoard approved four neworganisations for membership. Two ofthesemembers maternity leave. 2018, andKarineBelondrade, COO, asActingCEOfrom January to July to cover Raquel Peck’s Finally, theBoard unanimously confirmed Michael Ninburg asPresident, commencing inJanuary the Board should take every opportunity to meetface to face. was agreed Board thatvirtual meetingsshould take place quarterly from January 2018 and that well asinitialfeedback from members intheirregion. 2018activities were alsobriefly discussed.It Board Members kicked offthemeeting by sharingtheirthoughtsonthePre-Summit activities as With all WHABoard Members attending WHS17,thiswas anopportunity to hold a board meeting. the video here. (Françaisici) (Español aqui) video thatcelebrates WHA’s trailblazing journeysofar outourvisionfor andsets thefuture. Watch To coincide withthelaunch ofour2018-2020Strategic Plan, we have alsodeveloped aspecial meeting was closed by Michael Ninburg, WHAPresident for 2018–2019. engagement andhow crucial itisfor usto work together ifwe are to achieve elimination.The the missingmillions” for thenextthree years. Thiswas accompanied by discussionsonmembers’ CEO, shared thestory behindournew, refreshed mission andintroduced WHA’s focus of“Finding Member Conference to gatherfor anExtraordinary General Meeting.Atthemeeting,Raquel Peck, We took theopportunity ofhaving all ourmembers under thesameroof atthePre-Summit here. mission to “Harnessthepower ofpeople livingwithviral hepatitisto achieve elimination”. its Read it In thisquarter, we launched ourstrategic plan for 2018–2020,whichunveiled ournew, refreshed W WHA B 2018 –2020S G overnance elcoming o ard

This project focuses onincreasing access for hepatitisCtreatment inColombia. project withCoalition Plus called “Regalate UnMinuto” (Give yourself aminute). predominantly inthefield of viral hepatitis.Theyare currently working ona They have recently moved away from justfocusing onHIVandnow work Fundación Ifarma (Colombia) –Non-voting new M

eeting members trategy

27 Quarterly Report : October - December 2017 December - October : Report Quarterly Alliance Hepatitis World 28 World Hepatitis Alliance Quarterly Report : October - December 2017 delivery ofourambitiousstrategy. They are all are very valuable to assets theWHAteam andwill beinstrumental to thesuccessful will re-join theteam asProject Coordinator working across different projects untilthesummer. Additionally, following herexceptional work asProject Assistant attheWHS17,Naomi Robertson Assistant. responsibilities withintheoperations team from January 2018asOffice Manager /Operations We are alsopleased to note thatBenMurray, Office Manager, will betaking onfurther rapidly becoming anasset,shehasgonefrom strength to strength intheorganisation. has beenpromoted to Communications Manager. Bridiejoinedtheteam asanintern in2014and four yearsAfter ofcommitment to theorganisation, we are delighted to announce thatBridieTaylor WHA team

patient’s perspective. space inthemedia’sagenda to positiontheproblem ofviral hepatitisfrom the main activitiesinround consist ofparticipating tables. Theiraimisto occupy a This highly-active organisation ispredominantly apatientsupport group. Their ABV -Asociación CivilBuena Vida (Argentina) –Non-voting Francisco. B testing andvaccinations to AsianandPacific Islander (API)throughout San hepatitis Bfree city inthenation.Theyaimto provide free andlow-cost Free Project. SFHBFisacitywide campaign to turn SanFrancisco into thefirst Community Initiatives are thefiscal agentsresponsible for theSanFrancisco Hep receiving anoriginalapplication from SanFrancisco HepBFree Project (SFHBF). We approached Community Initiatives to apply directly for membership after Community Initiatives (USA)–Non-voting 2014-2017. active inthedevelopment oftheColombian NationalPlan for Viral Hepatitis educating thepopulation. Theyhave provided evidence to show thattheywere organisation’s are efforts predominantly focused onraising awareness and application process for thisorganisation andtheyhave herendorsement. The (WHA RegionalAdvisor for LatinAmerica) helped withthetranslation and communication breakdown ithastaken along timeto process. Patricia Velez This organisation first applied to become members inearly 2016butdue to Asociación NorteSantandereana de HepatitisVirales (Colombia) –Non-voting changes achieving ourgoalofeliminatingviral hepatitisby 2030. is particularly excited attheopportunity to useherskills to play in apart recently attheLocal Clinical Research Network oftheUniversity ofLeeds.She managing thefinances withinboththefor-profit andthethird sector, most WHA complies withall financialregulations. Ruthhasextensive experience maintenance oftheorganisation’s financialrecords including ensuringthatthe on all aspects offinances oftheorganisation andwill beresponsible for the Finance Manager asanewaddition to ouroperations team. Ruthwill lead Finally, thisquarter we are alsopleased to welcome RuthJessop, Part-time W elcome

29 Quarterly Report : October - December 2017 December - October : Report Quarterly Alliance Hepatitis World 30 World Hepatitis Alliance Quarterly Report : October - December 2017 www.worldhepatitisalliance.org Email: [email protected] Telephone: +41(0)225180616 86bis, routedeFrontenex UK andmailingaddress: Case Postale6364 Swiss address: 1, BadenPlace 1211 Genève6 Switzerland SE1 1YW London UK