1 World Hepatitis Alliance World Quarterly Report : October - December 2017 Report- December : October Quarterly Quarterly Report October - December 2017 2 3 CONTENTS QUARTERLY REPORT Hepatitis Alliance World OCTOBER - DECEMBER 2017 Our impact this quarter 4 Our strategic plan clearly states what we will do in order to make the biggest impact and make a Raising awareness of viral hepatitis 6 2017 Report- December : October Quarterly major contribution towards improving the lives of millions of people living with viral hepatitis. This Advocating for viral hepatitis 12 quarterly report covers our progress towards the ambitious objectives we have set for ourselves for the months of October, November and December 2017. Ending the social injustice of viral hepatitis 18 Quarterly Report : October - December 2017 Report- December : October Quarterly Strategic partnerships 20 Meeting attendance 22 OUR CORE AREAS OF WORK Organisational updates 26 World Hepatitis Alliance World 1 Raising awareness of viral hepatitis 2 Advocating for viral hepatitis Ending the social injustice of viral 3 hepatitis 4 5 KEY HIGHLIGHTS Hepatitis Alliance World Quarterly Report : October - December 2017 Report- December : October Quarterly HOLDING WHITE PAPER PIECES OF 900 GOVERNMENTS ON ECONOMIC AND 750 MEDIA COVEAGE ACROSS DELEGATES ATTENDED ACCOUNTABLE DEVELOPMENT CASE Quarterly Report : October - December 2017 Report- December : October Quarterly COUNTRIES 53 REPORT LAUNCHED LAUNCHED FINANCING 82 PROGRAMME World Hepatitis Alliance World MINISTERIAL STRATEGY POLICY EVENTS MANAGERS ACROSS 65 11 7 REPRESENTATIVES TEMPLATE WEBSITE ATTENDED COUNTRIES LAUNCHED WHA 2018- 2020 STRATEGY 4 NEW MEMBER ORGANISATIONS LAUNCHED 214 6 INDIVIDUALS FROM 68 GOVERNMENTS ENDORSE COUNTRIES ATTENDED NOHEP 7 ACTIONS Hepatitis Alliance World WORLD HEPATITIS DAY - celebrating our global awareness day This quarter we started preparations for World Hepatitis Day 2018 (WHD2018). Continuing with the theme of ELIMINATE HEPATITIS, the campaign will centre on increasing diagnosis and WHA’s 2017 Report- December : October Quarterly organisational focus of ‘Finding the Missing Millions’. The theme and focus for WHD2018 were announced at the Pre-Summit Member Conference in Brazil, 30-31 October 2017. More details will be presented in Q1 of 2018. NOHEP - expanding awareness-raising activities beyond a single day, increasing the support for viral hepatitis and the impact on the ground In this quarter we continued to make significant progress implementing the strategy: NOHEP COMMUNICATIONS STRATEGY The NOhep working group had the opportunity to meet at the World Hepatitis Summit (WHS2017) to develop and agree upon the 2018 NOhep strategy. The three key objectives for 2018 are to build brand recognition, mobilise and expand the NOhep supporter base and drive advocacy activity. NOHEP VISIONARIES PROGRAMME Medical Professionals: This quarter we secured commitment from 17 leading medical professionals in the Americas Region. They spearheaded the launch of the programme at The Liver Meeting in October. To date, the NOhep Medical Visionaries Programme has gained over 250 supporters globally, and this is growing daily. Find out more here. Governments: On day one of WHS17, we launched the NOhep Visionaries Programme for Governments. Six government representatives publically endorsed the movement on stage in front of a delegation of 750 people. These countries were RAISING Bangladesh, Brazil, The Gambia, Georgia, Egypt and Mongolia. Find out more here. 1 AWARENESS OF NOHEP AT WHS17 The NOhep presence at WHS17 was VIRAL HEPATITIS strengthened by the NOhep booth and media wall in the foyer area. We used these spaces 8 9 to leverage the launch of the Visionaries THE REALITY OF VIRAL HEPATITIS - illustrating the lives of the 325 Programme for Governments with the overall million people worldwide living with viral hepatitis to bring Hepatitis Alliance World goal being to engage and educate delegates about the movement and encourage them to home the reality of the disease beyond the statistics sign up. A selection of factsheets on NOhep and the Visionaries Programme were made WALL OF STORIES available and we also had other materials that were provided to us by our supporters. This quarter we continued to put the human side of living with viral hepatitis at the heart of our communications. We promoted the Wall of Stories through our social media channels and by 2017 Report- December : October Quarterly In addition, we held a 90 minute session at profiling a different story in hepVoice each month. the WHA Pre-Summit Member Conference (please refer to the WHA Pre-Summit WORLD HEPATITIS SUMMIT Member Conference section for additional information) to demonstrate the global We used WHS17 as an opportunity to put Quarterly Report : October - December 2017 Report- December : October Quarterly impact NOhep is having across the world. a spotlight on the stories of people living We invited supporters from different regions with viral hepatitis. We produced six short to present their national NOhep activities to videos with our members in Australia, other WHA members. You can find all of the Mexico, Russia, Viet Nam, Uganda and presentations here. the United States, which covered topics including stigma and discrimination, We also used the event to implement a receiving a diagnosis and treatment. The World Hepatitis Alliance World highly successful and engaging social media testimonials were shown throughout the campaign. Overall it was a great success main programme at WHS17 to highlight with NOhep hashtag trending on Twitter the devastating impact viral hepatitis has and a result of 20.9 million impressions. on peoples’ lives and remind delegates why In addition, 25% of all #HepSummit2017 immediate action must be taken. Watch the tweets also contained #NOhep. videos here. NOHEP WEBSITE RE-LAUNCH We also encouraged delegates to put a human face to the elimination goal by To ensure that the movement continues to having their photo taken in a photo booth at gain momentum we conducted a website the WHA stand. A total of 391 photos were audit in Q4 which showed that slow load taken. This provided a powerful reminder times and a poor navigation were reducing that the elimination of viral hepatitis will signs-ups. In response, we embarked on a not be possible without people. Check out redesign in time for WHS17. This resulted the photos here. in a 70% increase in traffic to the website during the event, which led to an 11% sign up conversion of Summit delegates. Check out the new website here. INCREASE IN THE LEVEL OF NOHEP SUPPORTERS 2017 has been an incredible year for the NOhep movement. In this quarter alone NOhep actions have increased from 66,557 to 80,264, leading to sign-ups from over 120 countries. In the last year, we have more than doubled the amount of likes and followers on the NOhep Twitter and Facebook pages; from 506 likes to 1271 on Facebook and from 976 on Twitter to 2,000. This huge increase is largely thanks to our strong social media presence and engagement with global events like the International Liver Congress, The Liver Meeting and WHS17. 10 DATA - advocating for consistent and reliable data on the SUSTAINABLE DEVELOPMENT GOALS - demonstrating how tackling 11 diseases and develop and promote our own data viral hepatitis goes beyond good health and wellbeing and Hepatitis Alliance World contributes to the achievement of many other Sustainable AGREE ON CONSISTENT GLOBAL DATA Development Goals This quarter highlighted that inconsistencies On 12 December we used Universal Health Coverage Day as a hook to stress that efforts to still remain with viral hepatitis data. In eliminate viral hepatitis contribute to achieving universal health coverage. On social media we Quarterly Report : October - December 2017 Report- December : October Quarterly the lead up to WHS17, we collaborated used our infographic to highlight how a comprehensive viral hepatitis response helps to achieve closely with the World Health Organization numerous SDGs. (WHO) to agree on a data set to inform media activities. However, given the lack of substantiated national data available we were unable to reach a consensus. As Quarterly Report : October - December 2017 Report- December : October Quarterly a result, we used data from the Centre for Disease Analysis (CDA) to support our media outreach. This example reiterates the urgent need for a consistent global and national data set in viral hepatitis. Moving forward, we will continue to work towards reaching ARGET COMBAT VIRAL HEPATITIS agreement on data, especially in regards to T 3.3: World Hepatitis Alliance World diagnosis – our key strategic focus for 2018-2020. Globally, WHO estimate that approximately 10% Combatting viral hepatitis goes beyond a health issue of people with HBV and 20% of people with HCV have been diagnosed, yet many of these people Eliminiating viral hepatitis will successfully contribute to are unaware and have not been linked to care, and as such are not eligible for treatment or able achieving many other targets to access it and so should not properly be considered diagnosed. This will impact reaching WHO’s elimination targets. COUNTRY RESPONSES ON HEPATITIS B AND C • 3.1: Reducing maternal mortality • 3.4: Reducing mortality from non-communicable diseases An interim report on the WHO Country Response profiles (2016/2017) was delivered by Glasgow • 3.5: Preventing and treating substance use disorders Caledonian University (GCU) at WHS17. A global overview