1 World Hepatitis Alliance Strategic Plan 2017 - 2018

Countdown to the elimination of viral hepatitis by 2030:

Our 2017-2018 strategic plan 2 World Hepatitis Alliance Strategic Plan 2017 - 2018 Our members Our funding Ending thesocialinjustice of viral hepatitis Advocating for viral hepatitis Raising Our recent successes &achievements awareness Who of Message we viral from are CONTENTS 4 hepatitis our 8 President 3

20 19 16 12 5 addressed to make thispossible: three fundamental areas thatmustbe 2017-2018 to concentrate onthe we have adapted ourGlobal Strategy that eliminationistheaccepted goal heart-breaking tales ofsuffering. Now with aninexcusable death toll and political interest, we are still faced Yet, against thisbackdrop ofgreater hepatitis. the first-ever global strategy for viral by 2030by unanimously adopting the goalofeliminatingviral hepatitis national government committed to Development Goals(SDGs);andevery in theadoption oftheSustainable as aglobal development priority viral hepatitiswas finally recognised develop national hepatitisplans; in September 2015to help countries the inaugural World HepatitisSummit global community came together at pivotal momentfor viral hepatitis.The The pastyear hasproved to beatruly progress shows nosignofhalting. patient advocates across theglobe, Testament to thetireless of efforts really can changetheworld. has proven thatastrong patientvoice country intheworld, thepastdecade eliminate viral hepatitisfrom every makers to aglobal commitment to almost completely ignored by policy- made. From alittle-known illness unimaginable progress hasbeen and inthoseten years previously the World HepatitisAlliance (WHA) In 2017we celebrate ten years of M • • • essage viral hepatitis Ending thesocialinjustice of Advocating for viral hepatitis hepatitis Raising awareness ofviral

from from viral hepatitis. want to live inaworld thatisfree going to have to fightifwe really to galvanise global will andwe are can getbehind.We are goingto have everyone, notjustourcommunity, need to make eliminationacause that have achieved we andinparticular action. We mustbuild onwhatwe by usingthemto encourage greater must honourouraccomplishments ourselves to become complacent. We anniversary, we cannot allow As we celebrate ourten year each year. well asthemillions more putatrisk the 400million people we serve, as approach will we changethelives of Only by taking anall-encompassing to beattheveryofourwork. heart living withviral hepatitiscontinue ensures thattheneedsofpeople We believe thisrevised approach

our P resident 4 World Hepatitis Alliance Strategic Plan 2017 - 2018 social injustice. awareness-raising andthefight to endits we provide global leadership inadvocacy, To achieve aworld free from viral hepatitis, O viral hepatitis. remain anorganisation for thepeople livingwith organisation andindoing soensure we always provide governance andstrategic direction to the or C.Theyare unpaidandtheirprimaryrole isto living withorhave beencured ofviral hepatitisB and sixRegionalBoard Members, all ofwhomare Our Executive Board iscomposed ofaPresident hepatitis. representing the400million living with viral patient-led andpatient-driven organisation The World HepatitisAlliance isanambitious F W ighting ur M ho ission

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the table andeffect policychangeataglobal level. United NationsECOSOC, enable us to have aseatat Organization andourconsultative status with our officialrelations status withthe World Health with nationalMinistriesofHealth. Inaddition, bodies andcivilsociety groups butalsodirectly We work withawide range oforganisations, global expertise. knowledge to help usinareas where we are lacking around theworld whoare able to bringspecialist panel’our ‘expert ofleading authoritiesfrom at ourLondon office. Theteam isable to call on carried outby asmall, dedicated team based The day-to-day activities oftheorganisation are O hep ur atitis V alues Ambition Make adifference

Trust Integrity hepatitis feature intheSustainable Development from countries to tackle itto now seeingviral of thediseaseandpractically zero commitment time where there was absolutely noawareness less than10years ofexistence. We went from a transformed thelandscape ofviral hepatitisin We andourmembers have completely achievements O Action Plans andthen advocated for theiradoption by the MemberStates ofthoseregions. In 2015and2016we worked withWHORegionalOffices on thedevelopment ofregional by 2030. In 2016we created andlaunched NOhep, theglobal movement to eliminate viral hepatitis to beadopted by MemberStates. WHOand its In 2016we successfully advocated for theGlobal Health Sector Strategy for viral hepatitis Alliance (WHA)-incollaboration withadifferent hostcountry for each Summit. that isajointinitiative between World Health Organization (WHO)andtheWorld Hepatitis In 2015we established theWorld HepatitisSummit,a large-scale, global biennialevent 2030. hepatitis withtargets andagoaloftheeliminationbothhepatitisB Cby That led to thecreation oftheGlobal in2015ofadraft Health Sector Strategy for viral viral hepatitisandto settargets to achieve elimination. In 2014we persuaded MemberStates to askWHOto assessthefeasibility ofelimination In 2010and2014we initiated thefirst two WHOresolutions onviral hepatitis. In 2010we successfully advocated for itto beofficially adopted by WHOMemberStates. days thatiscelebrated on28July. In 2008we setup World HepatitisDay, oneofjustfour -specific global awareness ur

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successes hepatitis untilwe seethisdiseaseeliminated. fighting onbehalfofpeople affected by viral members, we are more thanever committed to NGOs inover 80countries. Together withthese We have alsogrown ourmembership to 240+ the eliminationofhepatitisBandCby 2030. Goals (SDGs)andhaving aglobal strategy for

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work M A snapshot ofhow ourworkmembers: benefits no onebehind.” to achieve the common aimofleave awareness andscreening programs and religious groups inHepatitis health care workers, academia people whoinject drugs, media, pregnant women, transgenders, young people, homeless people, engage multi stakeholders including We usedtheplatform ofNOhepto living withHepatitisinPakistan. “More than15million people are Australia Australia, Hepatitis advanced asaresult.” addressing hepatitiscould only be the growing global commitment to that history was beingmade and room andthere was aclear sense was aspine-tingling energy inthe was aunique opportunity. There delegates from across theglobe Hepatitis Summitandmeeting ofthefirst“Being part ever World national impact.” us to build awareness anddeliver andgovernments,patients helping global community oforganisations, us each year connectsuswitha resources andguidance theyprovide celebrate World HepatitisDay. The with theWorld HepatitisAlliance to “Since 2010,we have joinedforces Bridging Health Foundation, Pakistan Foundation, Health Bridging Deutsche Leberhilfe e.V., Germany e.V., Leberhilfe Deutsche aking

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Fundación Hepatos Aión, Mexico Aión, Hepatos Fundación of patients.” viral hepatitis,to benefitthehealth together to help stop thespread of aside theirdifferences andcooperate languages andcultures, they put where people withdifferent to belong to aglobal community “Being amemberoftheWHAmeans People for Organisation National larger global patientadvocacy voice.” initiatives, we know we’re ofa part and more effective. Byjoininginsuch engaging withpolicymakers easier the World Health Assembly, makes the Global Health Sector Strategy at ministers calling for theadoption of such asthetemplate letter to resources andguidance provided, voice heard by thegovernment. The Alliance greatly ingettingour assists “Support from theWorld Hepatitis global policiesinto nationalactions.” webinars, have helped ustranslate their regular capability building global policylandscape andthrough awareness andknowledge ofthe Alliance hashelped usbuild our “Working withtheWorld Hepatitis

Liver Foundation, West Bengal, India Bengal, West Foundation, Liver Living with , Uganda B, Hepatitis with Living

Strategic Plan 2017 - 2018 - 2017 Plan Strategic World Hepatitis Alliance Hepatitis World 7 9

Our focus World Hepatitis Alliance Strategic Plan 2017 - 2018

Viral hepatitis kills more each year than any of Together with our members, we have the other big communicable such as successfully raised awareness of these cancer- HIV, TB or and is now the 7th leading causing viruses within the political, health and, cause of death globally. Lack of awareness to a certain extent, global development spheres amongst the general public remains one of the but much more remains to be done. With 400 key reasons that, while deaths from HIV, TB and million people living with this disease and only malaria are falling, those from viral hepatitis 5% knowing their status, raising awareness are if anything increasing. We have undoubtedly remains a crucial part of our work and the come a long way from the days when viral next step is for us to ensure we have solid hepatitis was almost entirely neglected on the data backing our campaigns, continue to grow global health agenda to the commitment in the global impact of and 2016 by all the 194 governments to eliminate it together with our members and partners extend by 2030. awareness activities beyond a single day and show the human side of the disease beyond the statistics.

Actions

World Hepatitis Day Deliverables:

Coordinate the official global campaign together An integrated campaign with our members and the World Health Organization to bring the world together to raise awareness of the global burden of viral hepatitis and to influence real change in disease prevention and access to testing, treatment and care.

Raising awareness of 1 viral hepatitis 10 World Hepatitis Alliance Strategic Plan 2017 - 2018 findings from ourown members’ surveys. develop and promote ourown data, for example consistent andreliable data onthediseasesand Key to drivingaction ontheground. Advocate for D statistics. home thereality ofthediseasebeyond the worldwide livingwithviral hepatitisto bring that illustrate thelives ofthe400million people Collect, disseminate andpromote thestories The Realityofviralhepatitis hepatitis andimpact ontheground. a single day andbothincrease support for viral to expandawareness-raising activities beyond Together withourmembers, usetheplatform NOhep Disease goals. the advancement oftheNon-Communicable hepatitis will have onliver cancer deaths and positive impact thattheeliminationofviral link existingbetween thetwo andpromote the Strategically raise awareness ofthestrong Liver cancerandviralhepatitis ata Deliverables: Deliverables: Deliverables: Deliverables: media release, website, e-magazine andsocial our communication channelsincl. press produced andresults disseminated through and access to diagnostics andtreatment responsetheir country’s to viral hepatitis discrimination, members’ involvement in Civil society survey onstigmaand completed with WHOandthegovernment ofScotland and C(2016/17):collaboration process Country Response Profile onHepatitisB high level meetings presentations andcontributions to events/ When appropriate, systematic inclusion in and shared Campaign resources andmaterials created developed andshared withourmembers Communications andcampaign action plan deaths. of viral hepatitiswill have onliver cancer the positive impact thattheelimination link existingbetween thetwo andpromote Strategically raise awareness ofthestrong case studies, photos andvideos Content gathered including testimonials, and implemented human side ofviral hepatitisdeveloped Communication strategy focused onthe World Health Organization Global Burden ofDiseasedata andthe Agree onconsistent global data withthe Sustainable Development Goals. contributes to theachievement ofmanyother goes beyond goodhealth andwellbeing and viral hepatitisto demonstrate how tackling it development own inits right.Further frame as anessentialcomponent for sustainable Combating viral hepatitishasbeenrecognised Sustainable Development Goals partners. working withanincreasing numberofglobal Widen thescope andimpact ofour work by Strategic partnerships 1: Ending poverty T arget sanitation water and 6: Managing achieving manyothertargets Eliminiating viral hepatitis will successfully contribute to Combatting viral hepatitisgoesbeyond ahealth issue • • • • • • 3.3: 3.c: Health financingandhealth workforce 3.b: Access to affordable medicinesandvaccines 3.8: Achievinguniversal health coverage 3.5: Preventing andtreating substance usedisorders 3.4: Reducing mortality from non-communicable diseases 3.1: Reducing maternal mortality combat and commodities access to services inequality in 10: Reducing Deliverables: Deliverables: high level meetings presentations andcontributions to events/ When appropriate, systematic inclusion in Strategic partners identified andengaged via ourwebsite andsocialmediachannels Targeted content developed andpromoted

viral discrimination promote non- societies that inclusive 16: Promoting

hep atitis implementation building for and capacity 17: Financing

11 Strategic Plan 2017 - 2018 - 2017 Plan Strategic Alliance Hepatitis World 12 World Hepatitis Alliance Strategic Plan 2017 - 2018 2 viral hep Advoca ting for a titis huge burden and thesolutions that exist. should bechampionedby everyone such asthe Develop and propagate thekey reasons whyit The Whyofviralhepatitis eliminate thisdisease. support theminfulfilling theircommitment to and offer concrete solutions to governments to at how countries can fundtheirresponse to it Build acase for eliminatingviral hepatitis,look Political Will A offering incentive andtangible solutions. that eliminationisindeed withintheirreach by for viral hepatitisandconvince governments make theeconomic anddevelopment case we needto continue ourambitious work to priorities andshrinkingsources offunding, into reality. Inaworld filled withcompeting of usifwe are to turn thesecommitments 2030, although manychallenges are ahead of viral hepatitisasapublichealth threat by commitment ofgovernments to ridtheworld collective advocacy work. We now have the recent clinical advances andoursuccessful enjoying amomentinthespotlight thanksto yearsAfter ofneglect, viral hepatitisisfinally O ctions ur

focus Deliverables: Deliverables: elimination by 2030. are today andadvocacy will bekey to reaching because itissolvable. Advocacy gotuswhere we the sheernumberofpeople affected butalso Viral hepatitisisunique notonly because of years. and millions oflives are saved inthecoming ensure policymakers deliver ontheirpromises World HepatitisDay 2016-remains apriority to NOhep –theglobal movement we launched on rallying thegeneral publicto ourcause through voice for abiggerimpact ontheground and At thesametime,strengthening thepatient documents and development ofsupporting e-capacity/capability building programme Subject matter addressed inthe our overall communications strategy Focus onpromoting solutions integrated in Government ofBrazil with WHOandincollaboration withthe delivered inNovember inpartnership The second World HepatitisSummit promoted to policymakers blueprint for countries developed and A viral hepatitisfinancingstrategy development costing, financingandinvestment case Selected countries assisted with development actors disseminated to key global health and for viral hepatitismade; white paper The economic anddevelopment case

13 Strategic Plan 2017 - 2018 - 2017 Plan Strategic Alliance Hepatitis World 14 World Hepatitis Alliance Strategic Plan 2017 - 2018 making aneven biggerimpact ontheground. assessment thatinhibitourmembers from Tackle theobstacles identified inourneeds Capacity members. build strategic inconsultation efforts withour the secretariat, secure financialresources and Grow themovement by continuing to provide NOhep /Capability building Deliverables: Deliverables: as advocacy tools and treatment disseminated to members viral hepatitisandaccess to diagnostics involvement response intheircountry’s to stigma anddiscrimination,members’ Findings from ourcivilsociety survey on delivered inNovember 2017 WHA Members Pre-Summit Conference approached Prospective corporate partners scoped and implemented A communications strategy developed and An independent working group setup running E-capacity/capability building programme A strategic plan developed Assembly andUnited Nationsbodies. within forums such astheWorld Health Seek opportunities to promote viral hepatitis Sustainable Development Goals partners. working withanincreasing numberofglobal Widen thescope andimpact ofour work by Strategic partnerships Deliverables: Deliverables: Strategic partners identified andengaged opportunities astheyarise dynamic andwe will proactively respond to The viral hepatitisenvironment isvery

15 Strategic Plan 2017 - 2018 - 2017 Plan Strategic Alliance Hepatitis World 16 World Hepatitis Alliance Strategic Plan 2017 - 2018 3 hepatitis injustice ofviral Ending the social living withthisdiseasedo notaccess them. and economic reasons themajority ofpeople treatments andacure) butfor various social interventions exist(vaccines, diagnostics, Make thisissue apriority. Lifesaving Equity this prejudice. our members we give themavoice andexpose marginalised oneway oranother;together with People livingwithviral hepatitisare discrimination Stop thestigmaand inject drugs, Indigenouspeoples, prisoners, affected by viral hepatitis,such aspeople who top ofthismanygroups thatare particularly of stigmaanddiscriminationhead-on. On members, are committed to tackling theissue disclose theirstatus. Thisiswhywe, withour only oneinfive people feeling comfortable to one way oranothersuffer from stigmawith viral hepatitiscontinue to face discriminationin raising manyofthepeople efforts, living with stigma, andinequity. Inspite ofourawareness- of viral hepatitis-discrimination,together with Two key issues highlightthebitter socialinjustice O A ctions ur

focus Deliverables: Deliverables: can endthesocialinjustice ofviral hepatitis. and through theNOhepmovement. Together we the personal behind stories ofthosebeingleft conscience through awareness-raising, through We will continue to mobilisetheworld’s social treatment. living withchronic hepatitisBorCare receiving completely suppress hepatitisB,just1%ofthose even though we can cure hepatitisCandwe can healthcare. Thenetresult ofthisinjustice isthat, already marginalised andhave pooraccess to men whohave sexwithmenandmigrants, are indigenous people government response to of theplights Conference to highlightand ensure disseminated access incountries conducted and findings A survey aimedatidentifyingthelevel of Hepatitis Summit2017 Topic given prominence attheWorld awareness-raising activities A special focus onaccess isgiven inour media release, website, e-magazine andsocial our communication channelsincl. press tackle theseissues. Disseminationthrough with whatgovernments claim to do to stigma anddiscriminationcompared Findings ofourcivil society survey about e-capacity/capability building programme Hepatitis Summit2017andcovered inthe Topic given prominence attheWorld channels profiled across ourcommunication Poignant case studies identified and

17 Strategic Plan 2017 - 2018 - 2017 Plan Strategic Alliance Hepatitis World 18 World Hepatitis Alliance Strategic Plan 2017 - 2018 partners. working withanincreasing numberofglobal Widen thescope andimpact ofourwork by Strategic partnerships Deliverables: Strategic partners identified andengaged O we do. we members, whosuffer from thesame challenges scarce nationalfundingthere isaway from our is alsoimportantthatwe do nottake what hepatitis isvery rarely even onthemenus.It down menuswiththeirareas ofinterest. Viral example, manyfundingbodieshave drop- low, perhaps especially amongstfunders. For for us.Awareness ofviral hepatitisremains The fundingenvironment isvery challenging transparent aboutthis. Business Conduct can befound here. We are very negative perception (ourCode ofEthics and aware thathaving themasfunders creates a say inhow theorganisation isrun,we are though thepharmaceutical industryhasno a lesser extent, diagnostic companies. Even industry, specifically pharmaceutical and,to funding comes from foundations andfrom Almost all oftheWorld HepatitisAlliance ur

funding hepatitis ceases to beapublichealth threat. work butto significantly expandituntilviral that will allow notjustto continue ourcrucial able to access awhole newfundinglandscape both ahealth andasocialcause, we will be elimination ofviral hepatitisgainstraction as Nevertheless we are confident that,asthe bear fruits. but itwill take sometimefor ourstrategy to world. We are puttingalotinto ofefforts this raise much needed awareness inthecorporate diversify oursources ofincome andaswe do so In spite ofthosechallenges we are committed to

19 Strategic Plan 2017 - 2018 - 2017 Plan Strategic Alliance Hepatitis World 20 World Hepatitis Alliance Strategic Plan 2017 - 2018 O BELGIUM BELARUS BANGLADESH AZERBAIJAN AUSTRIA AUSTRALIA ARGENTINA ALGERIA AFGHANISTAN initiatives. deliver life-saving interventions and awareness, lobby governments and viral hepatitis,theyadvocate, raise on behalfofpeople livingwith up ofpatientorganisations fighting organisation. Predominantly made Our members are thecore ofour worldwide. 240+ organisations inover 80countries Our global membership ismade up of ur

mebers CANADA CAMEROON BURUNDI BURKINA FASO BULGARIA BRAZIL HERZEGOVINA BOSNIA AND BENIN DJIBOUTI DENMARK CROATIA COTE D’IVOIRE REP OFTHE CONGO, THEDEM CHINESE TAIPEI CHINA CHILE GUINEA GUATEMALA GREECE GHANA GERMANY GAMBIA FRANCE FINLAND EGYPT LEBANON KAZAKHSTAN JAPAN ITALY ISRAEL IRELAND INDONESIA INDIA HUNGARY MONTENEGRO MONGOLIA MEXICO MAURITIUS MAURITANIA MALI MALAWI MACEDONIA LITHUANIA PHILIPPINES PERU PAKISTAN NIGERIA NEW ZEALAND NETHERLANDS NEPAL MYANMAR MOROCCO SINGAPORE SERBIA SENEGAL RWANDA FEDERATION RUSSIAN ROMANIA PORTUGAL POLAND UGANDA TURKEY TOGO THAILAND SWITZERLAND SWEDEN SPAIN SLOVENIA SLOVAKIA VIET NAM UNITED STATES UNITED KINGDOM UKRAINE

21 Strategic Plan 2017 - 2018 - 2017 Plan Strategic Alliance Hepatitis World 22 World Hepatitis Alliance Strategic Plan 2017 - 2018 www.worldhepatitisalliance.org Email: [email protected] Telephone: +41(0)225180616 86bis, routedeFrontenex UK andmailingaddress: Case Postale6364 Swiss address: 1, BadenPlace 1211 Genève6 Switzerland SE1 1YW London UK