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Americana Travel SCI & Walking Learning to Say ‘Yes’ THE LATEST IN life beyond wheels Medicinal Marijuana newmobility.com JUL 2016 $4 MODERN ART THAT ELEVATES YOUR PERSPECTIVE THE TEK-RMD VERTICAL MOBILITY DEVICE Form meets function in the world’s smallest vertical mobility device, the revolutionary TEK-RMD from Innovations Health. At just 16.5 inches wide at the base, the TEK lets you move through any indoor space with ease, reaching high cabinets, accessing small bathrooms, and living life as it was meant to be lived; upright and mobile. The TEK provides the health benefits of standing with the ability to go where you need to go, and do what you need to do. Call or email today to arrange a demonstration in your home, and discover the art of mobility with the TEK-RMD from Innovations Health. (800) 659-4548 Robotic www.InnovationsHealth.com Mobilization Powered by Device www.facebook.com/InnovationsHealth NEW 04/16 THE ELECTRIC DRIVE FOR ACTIVE WHEELCHAIRS Energize your wheelchair. - Power assist for active users - Fastest power assist up to 6 mph - Smartphone connectivity - Very dynamic driving characteristics - Braking assistance - Weight: Only 13 lbs per wheel including battery With Mobility Plus package: Use even more features in Call and get further information! the twion App and communicate directly with your twion wheels via smartphone (available for Android and iOS) 888-426-8581 Alber USA LLC | 1005 International Drive | Oakdale, PA 15071 www.alber-usa.com 20160425_AB_Anzeige_USA_twion_New_Mobility_203,2x273_final_VZ.indd 1 26.04.16 14:44 CONTENTS VOLUME 27 NUMBER 274 July 2016 life beyond wheels FEATURES 14 UNIQUE GETAWAYS What is typically American? Here are three examples of Americana, each with its own unique character and landscape. BY STEVE WRIGHT 19 CHINA SCI TRIALS EXCEED EXPECTATIONS Wise Young has been seek- ing ways to overcome paralysis for decades. IAN RUDER interviews him about his latest results. 37 LEARNING TO SAY YES Transitioning from life-altering injury is difficult, but finding a pathway to growth can lead to success. BY STEVE DALTON COVERCANNABIS STORY STEW: STIRRING THE POT 24 Twenty-five states now have some kind of medical marijuana program, four have legalized recre- ational marijuana, and tax revenue from pot products is certain to lure more states into recreational expansion. The old hippie vision of “if it feels good, do it” has taken America by the purse strings. But will medical use grow or wither from the competition? MARK BRAUNSTEIN AND IAN RUDER report. Cover Photo by Matt Wong Contents Photo by Monique Chevalier DEPARTMENTS 4 BULLY PULPIT 13 EAT WELL, LIVE WELL 6 LETTERS 35 UNITED SPINAL NEWS 8 NEWS 42 INNOVATIONS 10 EVERYDAY ADVOCACY 44 RAISING A RUCKUS 12 SCI LIFE 48 CRIP BUZZ BULLY PULPIT life beyond wheels JULY 2016 NEW MOBILITY IS THE MONTHLY MAGAZINE OF PRESIDENT & CEO: JAMES WEISMAN VICE PRESIDENT OF PUBLICATIONS: JEAN DOBBS Your Right To Drive Is Under Attack In May I reported on adaptive van dealerships tification. All of this in order to rent and drive a EDITORIAL no longer making rental vans available with wheelchair accessible van with hand controls. PUBLISHER: JEAN DOBBS hand controls. I called out the nation’s largest Your driver’s license or years of experience EDITOR: TIM GILMER wheelchair accessible van dealer, Mobility- driving with hand controls are no longer suf- MANAGING EDITOR: JOSIE BYZEK Works (61 stores), as a major offender. When ficient to prove you are qualified. SENIOR EDITOR: IAN RUDER our right to drive is restricted by a company’s How did we regress to this sorry state? SENIOR CORRESPONDENT: BOB VOGEL policies, it is not only offensive, it may be illegal. Rampant consolidation and buy-outs. Local making travel easy for individuals with spinalEDITORIAL cord disabilitie SUBMISSIONS:s However, according to MobilityWorks’ director family-run businesses are being taken over by [email protected] of store operations, Trevorr Jurgensen, his com- major national corporations whose policies are pany is sympathetic to our needs — it is their more about liability and less about service. insurance carrier that is calling the shots. NEW MOBILITY readers Felix and Vicky Gutier- CUSTOMER SERVICE Jurgensen says that PSA Insurance and Fi- rez used to rent vans with hand controls from nancial Services, the leading insurer for adaptive a small company in northern California. When Toll-free 800/404-2898, van dealers across the nation, requires the pro- MobilityWorks bought them out, the Gutier- ext. 7203 spective driver (renter) to provide an “updated prescription or certification from a certified Local family-run businesses driver rehab specialist” identifying the type of ADVERTISING SALES adaptive controls to be installed and proof that are being taken over by major 718/803-3782 the driver is qualified to use this specific type. national corporations whose NATIONAL SALES MANAGER: Jurgensen says that none of the MobilityWorks MEGAN LEE, EXT. 7253 stores has wheelchair accessible rental vans policies are more about liability AD MATERIALS: DEANNA FIKE, EXT. 7250 available with hand controls installed. They do and less about service. not even stock hand controls. If a driver presents PRODUCTION the required documentation, the hand controls rez family had to rent a car with hand controls PRODUCTION MANAGER: DEANNA FIKE must be ordered, purchased, shipped and in- stalled prior to renting. The process would take from Hertz (no ramp or lift). In this month’s CIRCULATION a minimum of one to two weeks. letters they write: “One has to wonder why a As onerous as this policy is, a more restric- commercial car rental company can provide CIRCULATION MANAGER: tive requirement is engaging the services of hand controls, while a company that special- BEVERLY SMITH a certified driver rehab specialist (CDR) in the izes in wheelchair accessible vehicles is so CIRCULATION COORDINATOR: first place. Six states do not even have CDRs short-sighted and insures with a company that MARIA KURTZ within their borders. Fifteen states have three does not allow renters the independence they POSTMASTER: Send address changes to New Mobility, 120-34 or fewer CDRs. Entire geographical regions are should be entitled to.” Queens Blvd, #320, Kew Gardens NY 11415. Subscription rates: $27.95/year; $35.95/year in Canada; very poorly served. A few states are excep- At the same dealer, Chuck McAvoy was not $67.95/year international via airmail. tions. California, for instance, lists 15 CDRs, but allowed to test drive a van he was considering New Mobility (ISSN 1086-4741), Volume 27, Issue 273, is almost all of them are confined to Southern buying since he had no CDR certification. Is driv- published monthly by United Spinal Association, 120-34 Queens Blvd, #320, Kew Gardens NY 11415. California or the Bay area. ing with hand controls under attack? Is our right Copyright 2016, all rights reserved. Reproduction without to drive our personal vehicles next? What can permission of any material contained herein is strictly Even if you succeed in engaging the ser- prohibited. We welcome comments; vices of a CDR, you must then pay out of your we do to protect that right? Post a comment or we reserve the right to edit submissions. own pocket to become certified. Expect to send an email to [email protected]. Periodicals postage paid at Flushing, NY and additional mailing offices. pay at least $500 to $1,000 for a “current” cer- — TIM GILMER www.newmobility.com 4 NEW MOBILITY CONTRIBUTORS life beyond wheels JULY 2016 CONTRIBUTING EDITORS Mark Mathew Braunstein was welcomed into the ranks of SCI by MICHAEL COLLINS way of a diving accident in 1990. Lucky him, his injury and recovery MIKE ERVIN were made into a short TV documentary (youtu.be/96EhHzN6RoI). ROXANNE FURLONG As a T12 paraplegic, he uses cannabis medicinally for below the RICHARD HOLICKY waist (leg spasms) and recreationally above. He is the author of PRISCILLA MALTBIE three books, including Radical Vegetarianism, and says he considers ALLEN RUCKER cannabis a radical vegetable. He frequently contributes to many ROBERT SAMUELS holistic health magazines and to NEW MOBILITY. You can be outraged ERIC STAMPFLI by his counterculture writings at www.MarkBraunstein.org. ELLEN STOHL BOB VOGEL LOREN WORTHINGTON A motorcycle accident in 2003 left Matthew Castelluccio with a T6 spinal cord injury. He credits the United Spinal Association with providing the resources and mentoring to help him become com- fortable as a paraplegic, and Helen Hayes Hospital with exposing him to adapted sports. Following his rehab there, he joined the hos- COMMUNITY PARTNERS pital as its adapted sports program coordinator/patient mentor in KIM ANDERSON November 2007. He has not only facilitated the hospital’s member- CHRISTIAAN “OTTER” BAILEY ship as a Paralympic Sports Club and a Disabled Sports USA chap- MARTY BALL ter, but has spearheaded the establishment of the Hudson Valley TIFFINY CARLSON Chapter of United Spinal, of which he is president. LAWRENCE CARTER-LONG RORY COOPER JASON DASILVA Embracing living with a T4 spinal cord injury in 2002 with seeming DEBORAH DAVIS ease, Steve Dalton wondered why this usually difficult transition TOBIAS FORREST went so well. Years later he learned about the science of post- JENNIFER FRENCH traumatic growth and focused his senior thesis on the intersection ALLISON CAMERON GRAY between PTG and the humanities in completing his bachelor of arts. MINNA HONG Since his injury he has been able to share his growth experience and scholarly interests in peer support groups, as well as lecturing in MARK JOHNSON PT, OT and humanities classes. He lives in San Pablo, California with GARY KARP his wife, Sydney, and their new kitten, Camhi. NANCY BECKER KENNEDY BRITTANY MARTIN LINDA MASTANDREA LYNN MURRAY Steve Wright is an award-winning travel writer who has been ASHLEY LYN OLSON a mainstay freelancer for NEW MOBILITY for two decades.